2021-09-29T08:00:38-05:00 2020-12-31 351178661 BLUE & CO LLC 250 WEST MAIN STREET SUITE 2900 LEXINGTON KY 40507 990 2020-01-01 411984675 CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION CHIL 6129286325 P O BOX 34066 LEXINGTON KY 40507 AMY BRIN CEO 6129286325 2021-09-22 1 AMY BRIN 999009999 JAMES K PLEASANTS P00176816 8592531100 2021-09-22 0 AAL1 IAL1 2020 2022-09-23 18:48:47Z X AMY BRIN 249 E MAIN ST SUITE 205 LEXINGTON KY 40507 3558837 0 X WWW.CHILDNEUROLOGYFOUNDATION.ORG X 2000 MN COMMITTED TO SERVING AS A COLLABORATIVE CENTER OF EDUCATION AND SUPPORT FOR CHILDREN AND FAMILIES LIVING WITH NEUROLOGICAL CONDITIONS. CNF'S BOARD OF DIRECTORS HAS ESTABLISHED PROGRAMMATIC PRIORITIES IN THE FOLLOWING AREAS, INCLUDING TRANSITIONS OF CARE, PEER SUPPORT, DISEASE EDUCATION AND AWARENESS, COLLABORATIVE MODELS OF ADVOCACY, GRANTS AND SCHOLARSHIPS, AND IMPROVING COMMUNICATION BETWEEN HEALTH CARE PROVIDER AND PATIENTS/CAREGIVERS. 16 16 0 0 0 0 1823166 2984818 495000 555000 29253 16769 0 2250 2347419 3558837 269126 501186 0 0 615184 917890 112500 120000 210017 812536 1270996 1809346 2810072 538073 748765 3025194 3990213 567974 784228 2457220 3205985 X COMMITTED TO SERVING AS A COLLABORATIVE CENTER OF EDUCATION AND SUPPORT FOR CHILDREN AND FAMILIES LIVING WITH NEUROLOGICAL CONDITIONS. CNF'S BOARD OF DIRECTORS HAS ESTABLISHED PROGRAMMATIC PROPERTIES IN THE FOLLOWING AREAS, INCLUDING TRANSITIONS OF CARE, PEER SUPPORT, DISEASE EDUCATION AND AWARENESS, COLLABORATIVE MODELS OF ADVOCACY, GRANTS AND SCHOLARSHIPS, AND IMPROVING COMMUNICATION BETWEEN HEALTH CARE PROVIDER AND PATIENTS/CAREGIVERS. 0 0 205943 201686 0 RESEARCH GRANTS: SINCE 2001, CNF HAS AWARDED OVER $4.1 MILLION IN RESEARCH FUNDING AND SCHOLARSHIPS TO CHILD NEUROLOGISTS, MEDICAL STUDENTS AND RESEARCHERS. GRANTS SUPPORT TRANSLATIONAL, CLINICAL, OR BASIC RESEARCH BY MEDICAL PROFESSIONALS EARLY IN THEIR ACADEMIC CAREERS. IN 2020, CNF AWARDED TWO RESEARCH GRANTS TOTALING OVER $200,000. 1492151 276000 0 COMUNITY SUPPORT: THROUGH CNF'S COLLABORATIVE, MULTI-STAKEHOLDER FRAMEWORK, VARIOUS COMMUNITY SUPPORT EFFORTS ARE OFFERED INCLUDING PATIENT/CAREGIVER EDUCATION PROGRAMMING, CLINICAL TOOLS, RESOURCE NAVIGATION, AND A PEER SUPPORT VIRTUAL NETWORK. SINCE 2017, CNF'S PEER SUPPORT NETWORK HAS SERVED NEARLY 1,000 FAMILIES IN 50 STATES AND 75 COUNTRIES. IN 2020. CNF SERVED MORE THAN 100 FAMILIES THROUGH THE PEER SUPPORT NETWORK. ADDITIONALLY, CNF PROVIDED COMMUNITY AND FAMILY EMERGENCY RELIEF GRANTS TO 150 FAMILIES IN NEED DUE TO THE COVID-19 PANDEMIC. CNF INTERFACES WITH THE LARGER COMMUNITY VIA COMMUNITY EVENTS AND EXHIBITIONS, WEB SITE, SOCIAL MEDIA, AND WEBINARS. 110003 23500 0 COMMUNITY EDUCATION: IN 2020 CNF SERVED AS A CONVENER IN THE CHILD NEUROLOGY COMMUNITY TO BUILD EDUCATION AND ADVOCATE FOR PATIENTS AND PROVIDERS, DEMONSTRATED BY A PROGRAMMING SHIFT TO PRODUCE WEEKLY VIRTUAL, COVID RELEVANT PATIENT EDUCATION RELATED TO TELEHEALTH, MENTAL HEALTH, AND RETURNING TO SCHOOL. ADDITIONALLY, ANNUAL CONTENT CONTINUED, SUCH AS THE INFANTILE SPASMS ACTION NETWORK, THE TRANSITION PROJECT ADVISORY COMMITTEE (PROVIDERS, CAREGIVERS, AND INDUSTRY COLLABORATING AROUND THE ISSUES OF TRANSITIONING YOUNG ADULTS INTO THE ADULT HEALTH CARE SYSTEM); AND PROVIDING EDUCATION RELATED TO TOPICS SUCH AS SUDDEN UNEXPECTED DEATH IN EPILEPSY, DISRUPTIVE AND HARMFUL BEHAVIOR MANAGEMENT, AND SHORTENING THE DIAGNOSTIC ODYSSEY. 1808097 1 1 0 0 0 0 0 0 0 1 1 0 0 0 0 1 1 0 0 1 1 0 0 1 0 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 21 0 1 0 0 0 0 0 0 0 0 0 0 0 X 16 16 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 CA KY MN AL DC RI HI MA MS NH NY OH OR SC VA OK WV NV FL AR IL KS MD NJ NM TN MI UT NC WI CO AK ND PA CT ME WA GA LA MO AZ DE ID IN IA MT NE SD TX VT WY X X AMY BRIN 6129286325 249 E MAIN ST SUITE 205 LEXINGTON KY 40507 X DR SCOTT POMEROY PRESIDENT 1.00 X X 0 0 0 DR ANN TILTON PAST-PRESIDENT 1.00 X X 0 0 0 DR ANUP PATEL PRESIDENT-ELECT 1.00 X X 0 0 0 DR SHAUN HUSSAIN SECRETARY 1.00 X X 0 0 0 STEPHEN PETERS TREASURER 1.00 X X 0 0 0 DR W DONALD SHIELDS HONORARY DIRECTOR OF BOD 1.00 X 0 0 0 JOHN HUTCHINS DIRECTOR 1.00 X 0 0 0 SANDRA CUSHNER WEINSTEIN DIRECTOR 1.00 X 0 0 0 DR MARY ZUPANC DIRECTOR 1.00 X 0 0 0 JULIE GILBERT DIRECTOR 1.00 X 0 0 0 DR THOMAS LANGAN DIRECTOR 1.00 X 0 0 0 DONALD PEARL DIRECTOR 1.00 X 0 0 0 DR M SCOTT PERRY DIRECTOR 1.00 X 0 0 0 SUE YUDOVIN DIRECTOR 1.00 X 0 0 0 DR JONATHAN MINK EX-OFFICIO DIRECTOR 1.00 X 0 0 0 DR PHILLIP PEARL EX-OFFICIO DIRECTOR 1.00 X 0 0 0 ROGER LARSON EX-OFFICIO DIRECTOR 1.00 X 0 0 0 AMY BRIN DIRECTOR NON-VOTING MEMBER EXECUTIVE DIRECTOR 45.00 X 0 234376 38062 GRETA WRIGHT CHIEF OPERATIONS OFFICER 45.00 X 0 104381 33160 0 338757 71222 0 0 1 0 BURTON STRATEGIES INC 2920 NEILSON WAY SUITE 501 SANTA MONICA CA 90405 PROFESSIONAL FUNDRAISING CONSULTANT 120000 1 56498 2928320 2984818 CORPORATE ADVISORY BOA 900099 555000 555000 555000 16769 16769 2250 2250 2250 3558837 557250 0 16769 X 342686 342686 153500 153500 5000 5000 338757 116417 198009 24331 363920 125065 212716 26139 66197 22749 38693 4755 102203 35123 59739 7341 46813 16088 27363 3362 79992 27890 46195 5907 42949 33418 4947 4584 120000 120000 1034927 898634 133025 3268 835 650 96 89 10753 1591 7861 1301 20112 2542 14084 3486 33797 14627 15913 3257 12229 5299 6411 519 11990 5196 6286 508 14430 14430 6753 854 4729 1170 DUES & SUBSCRIPTIONS 2229 768 1461 0 2810072 1808097 791958 210017 1514720 2319451 1351229 1481577 2182 18525 74047 37338 27046 36709 130017 133951 3025194 3990213 184827 204395 298147 299833 85000 280000 567974 784228 X 252126 363712 2205094 2842273 2457220 3205985 3025194 3990213 748765 0 X 0 1 X 1 0 X 1307084 740999 1454513 1823166 2984818 8310580 1307084 740999 1454513 1823166 2984818 8310580 5111221 3199359 3897 17224 -9974 29253 16769 57169 2000 6050 600 2250 10900 8378649 0.38180 0.35730 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: MISCELLANEOUS REVENUE RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 130017 8783 4849 133951 115616 20183 5782 130017 130442 -9974 4852 115616 116649 17224 3431 130442 118282 3897 5530 116649 0.00000 0.74700 0.25300 1 0 8190 3685 4505 21803 5503 16300 44054 28150 15904 36709 X 3558837 0 3558837 0 3558837 2810072 0 2810072 0 2810072 PART X, LINE 2: THE FOUNDATION IS ORGANIZED AND OPERATES ON A NOT-FOR-PROFIT BASIS AND ITS TAX-EXEMPT STATUS HAS BEEN RECOGNIZED BY THE INTERNAL REVENUE SERVICE UNDER SECTION 501(C)(3). THE FOUNDATION IS CLASSIFIED AS AN ORGANIZATION WHICH IS NOT PRIVATE FOUNDATIONS UNDER THE INTERNAL REVENUE CODE (IRC) AND CHARITABLE CONTRIBUTIONS BY DONORS ARE TAX DEDUCTIBLE. THE FOUNDATION IS SUBJECT TO UNRELATED BUSINESS INCOME TAXES UNDER THE IRC FOR FEDERAL AND STATE TAX PURPOSES. THE FOUNDATION FOLLOWS THE PROVISIONS OF FASB, WHICH REQUIRES THAT A TAX POSITION BE RECOGNIZED OR DERECOGNIZED BASED ON A "MORE LIKELY THAN NOT" THRESHOLD. THIS APPLIES TO POSITIONS TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN. THE FOUNDATION DOES NOT BELIEVE ITS FINANCIAL STATEMENTS INCLUDE ANY UNCERTAIN TAX POSITIONS. THE FOUNDATION'S TAX RETURNS ARE SUBJECT TO REVIEW AND EXAMINATION BY FEDERAL AUTHORITIES. SCHEDULE D, PART V, LINE 4 IN 2010, THE SOCIETY OF NEURODEVELOPMENTAL DISABILITIES (NDD) DISSOLVED, AND THEREBY, TRANSFERRING REMAINING ASSETS TO CNF. THESE FUNDS ARE INTENDED TO ENDOW AN ANNUAL EDUCATIONAL SCHOLARSHIP FOR MEDICAL STUDENTS INTERESTED IN THE FIELD OF CHILD NEUROLOGY, WITH PRIORITY GIVEN TO AN APPLICANT FOCUSED ON NEURO-DEVELOPMENTAL DISABILITIES. THE INITIAL AWARD IS TO BE $3,500. THE AMOUNT OR THE NUMBER OF AWARDS MAY BE ADJUSTED BASED ON ENDOWMENT VALUE AS APPROVED BY THE BOARD OF CNF 1 EUROPE 0 0 GRANTMAKING UK INFANTILE SPASMS TRUST 5000 NORTH AMERICA (INCLUDING CANADA) 0 2 PROGRAM SERVICES ALTAIRA NORTHE $48,091.05 & CLARE HENNIG $ 43,787.50 91879 0 2 0 0 0 2 96879 0 96879 0 0 0 0 0 0 PART I, LINE 2: STARTING IN 2016, CNF PROVIDED GRANTS TO SUPPORT ORGANIZATIONS' EFFORTS IN INCREASING INFANTILE SPASMS AWARENESS. TO BE ELIGIBLE FOR AN AWARD, AN ORGANIZATION NEEDS TO BE A MEMBER OF INFANTILE SPASMS ACTION NETWORK AND COMPLETE THE GRANT APPLICATION. IF ALL CRITERIA ON THE APPLICATION ARE MET THEN THE ORGANIZATION RECEIVED A GRANT CHECK. EACH ORGANIZATION AWARDED WAS REQUIRED TO SUBMIT A RECONCILIATION REPORT 90-DAYS AFTER THE COMPLETION OF THEIR AWARENESS BUILDING ACTIVITY CONCLUDED. PART III ACCOUNTING METHOD: X X X X X X 1 BURTON STRATEGIES INC 2920 NEILSON WAY SUITE 501 SANTA MONICA CA 90405 STRATEGIC DEVELOPMENT PLAN WITH BUILDING A MAJOR DONOR BASE 0 0 120000 -120000 120000 -120000 CA KY MN 1 THE BRAIN RECOVERY PROJECT 969 COLORADO BLVD SUITE 101 LOS ANGELES CA 90041 452571898 501(C)(3) 10000 2020 RISING TIDES EMERGENCY RESPONSE ORGANIZATION GRANT WISHES FOR ELLIOT 1234 CRITTENDEN ST NW WASHINGTON DC 20011 471822559 501(C)(3) 10000 2020 RISING TIDES EMERGENCY RESPONSE ORGANIZATION GRANT KIF1AORG 616 WEST 137TH STREET 3A NEW YORK NY 10031 820714729 501(C)(3) 10000 2020 RISING TIDES EMERGENCY RESPONSE ORGANIZATION GRANT THE CUTE SYNDROME FOUNDATION 1 MEADOWBROOK LANE TROY NY 12180 462699066 501(C)(3) 10000 2020 RISING TIDES EMERGENCY RESPONSE ORGANIZATION GRANT SATB2 GENE FOUNDATION 3050 FIVE FORKS TRICKUM ROAD SW SUITE D524 LILBURN GA 30047 823474637 501(C)(3) 10000 2020 RISING TIDES EMERGENCY RESPONSE ORGANIZATION GRANT JUNE JESSEE MEMORIAL FOUNDATION 12561 AMERSHAM COURT ST LOUIS MO 63141 824339655 501(C)(3) 10000 2020 RISING TIDES EMERGENCY RESPONSE ORGANIZATION GRANT EMPOWERING EPILEPSY 32342 SPRINGSIDE LANE SOLON OH 44139 471250482 501(C)(3) 10000 2020 RISING TIDES EMERGENCY RESPONSE ORGANIZATION GRANT BRAINWORKS FOUNDATION INC 2478 WORTHINGTON ROAD AKRON OH 44313 611550552 501(C)(3) 10000 2020 RISING TIDES EMERGENCY RESPONSE ORGANIZATION GRANT NATIONAL TAY-SACHS & ALLIED DISEASES ASSOCIATION INC 2001 BEACON STREET SUITE 204 BOSTON MA 02135 131912877 501(C)(3) 10000 2020 RISING TIDES EMERGENCY RESPONSE ORGANIZATION GRANT MLD FOUNDATION 21345 MILES DRIVE WEST LINN OR 97068 931320953 501(C)(3) 10000 2020 RISING TIDES EMERGENCY RESPONSE ORGANIZATION GRANT BOT - LELAND STANFORD JUNIOR UNIVERSITY-AWARDEE JULIET KNOWLES MD PHD 485 BROADWAY REDWOOD CITY CA 94063 941156365 100000 2020 PERF SHIELDS RESEARCH GRANT CHILDREN'S RESEARCH INSTITUTE - AWARDEE YOUSSEF KOUSA DO PHD 801 ROEDER ROAD SUITE 500 SILVER SPRING MD 20910 521654453 100000 2020 PERF ELTERMAN RESEARCH GRANT CHILD NEUROLOGY SOCIETY 1000 WEST COUNTY ROAD E SUITE 290 SAINT PAUL MN 55126 237359775 20000 2020 UNRESTRICTED SYMPOSIUM GRANT NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC 8737 COLESVILLE ROAD NO 400 SILVER SPRING MD 20910 953018799 501(C)(3) 10000 INFANTILE SPASMS AWARENESS WEEK GRANT 2020 RISE EMERGENCY RESPONSE GRANTS - TO SUPPORT FAMILIES LIVING WITH NEUROLOGIC DIAGNOSIS, WHICH ARE INTENDED TO HELP FAMILIES BY OFFSETTING EXPENSES THAT MAY ONLY BE PARTIALLY COVERED BY INSURANCE OR NOT AT ALL. IN THE PAST, FAMILIES HAVE UTILIZED THESE GRANTS FOR ITEMS SUCH: DURABLE MEDICAL EQUIPMENT, ASSISTIVE TECHNOLOGY, THERAPY SERVICES, RESPITE CARE, ETC. 149 149000 BRENDAN HARNETT INFANTILE SPASMS FAMILY GRANT - FOUNDED IN 2014 BY DR. MICHAEL HARNETT AS AN ENDURING MEMORIAL TO HIS NEPHEW, BRENDAN MICHAEL HARNETT. BRENDAN WAS DIAGNOZED WITH INFANTILE SPASMS AND PASSED AWAY BEFORE HIS FIRST BIRTHDAY. CNF GRATEFULLY PARTNERED WITH THE HARNETT FAMILY AGAIN IN 2020 TO HONOR BRENDAN THROUGH OFFERING ONE $1,000 GRANT TO ASSIST FAMILIES LIVING WITH INFANTILE SPASMS. 1 1000 NEURO DEVELOPMENT DISORDER RESEARCH SCHOLARSHIP - SUMMER SCHOLARSHIP AWARDED TO ONE STUDENT AT THE UNIVERSITY OF ROCHESTER. 1 3500 PART I, LINE 2: SINCE 2001, THE CNF HAS ATTRACTED PREMIER YOUNG INVESTIGATORS FOR ITS AWARDS. WE PUBLICIZE THE AWARD TO REQUEST CANDIDATES WITH THE AMERICAN ACADEMY OF NEUROLOGY; PROFESSORS OF CHILD NEUROLOGY; CHILD NEUROLOGY SOCIETY; AND THE AMERICAN ACADEMY OF PEDIATRICS. APPLICATIONS REVIEWED VIA A DEFINED METHODOLOGY COMMUNITY. UPON GRANT AWARD, RECIPIENTS SIGN A CONTRACT WITH CNF WHICH OUTLINES EXPECTATIONS FOR REPORTING DURING AND AT CONCLUSION OF THE GRANT AWARD. CNF MANAGES THE EXECUTION OF THE GRANT ADMINISTRATION AND REPORTING THROUGHOUT THE GRANT DURATION. CHILD NEUROLOGIST RESEARCHER APPLICANTS ARE ASKED TO SUBMIT A LETTER OF APPLICATION. THESE LETTERS ARE RANKED BY A COMMITTEE OF WELL-RESPECTED CHILD NEUROLOGISTS. (MEMBERS AVOID CONFLICT OF INTEREST BY RECUSING THEMSELVES.) TOP CONTENDERS ARE INVITED TO SUBMIT FULL APPLICATIONS. CNF USES A HYBRID OF THE NIH RESEARCH APPLICATION. THE COMMITTEE THEN RANKS AND SUBMITS THE TOP APPLICANT TO THE CNF BOARD OF DIRECTORS FOR CONFIRMATION. OUTSIDE DONORS ARE NOT INVOLVED IN THE SELECTION OF THE AWARDEE OR ANY GUIDELINES REGARDING THE USE OF RESEARCH FUNDS. GRANT AWARD CHECKS ARE NEVER MADE PAYABLE TO THE INDIVIDUAL RESEARCHER. RATHER, CHECKS ARE MADE PAYABLE TO THE INSTITUTIONS FOR WHICH THEY EITHER WORK OR GO TO SCHOOL. REPORTS ARE REQUIRED OF THE RESEARCHER AT THE MIDPOINT OF THEIR RESEARCH IN THE FORM OR PROGRESS REPORTS AND AT THE END TO SHOW THE RESULTS OF THE RESEARCH. IN THE CASE OF SCHOLARSHIP RECIPIENTS, THE SAME IS TRUE. CHECKS ARE MADE PAYABLE TO THE INSTITUTION AND THEIR REPORTS ARE DUE AT THE END OF THEIR RESEARCH. ADDITIONALLY, STARTING IN 2016, CNF PROVIDED GRANTS TO SUPPORT ORGANIZATIONS' EFFORTS IN INCREASING INFANTILE SPASMS AWARENESS. TO BE ELIGIBLE FOR AN AWARD, AN ORGANIZATION NEEDS TO BE A MEMBER OF THE INFATILE SPASMS ACTION NETWORK AND COMPLETE THE GRANT APPLICATION. IF ALL CRITERIA ON THE APPLICATION WAS MET, THEN DISBURSEMENT WAS MADE. EACH ORGANIZATION AWARDED WAS REQUIRE TO SUBMIT A RECONCILIATION REPORT 90-DAYS AFTER THE COMPLETION OF THEIR AWARENESS BUILDING ACTIVITY CONCLUDED. X X X 0 0 0 0 0 0 0 0 0 AMY BRIN DIRECTOR NON-VOTING MEMBER EXECUTIVE 0 214960 0 19223 0 193 0 19294 0 18768 0 272438 0 19223 PART I, LINE 3 CHILD NEUROLOGY FOUNDATION (CNF) SHARES EMPLOYEES WITH AMERICAN ACADEMY OF NEUROLOGY (AAN) THROUGH A CONTRACTUAL ARRANGEMENT BY WHICH AAN'S EMPLOYEES ARE LEASED TO CNF. THIS ARRANGEMENT INCLUDED, AS OF 2020, THE FOUNDATION'S EXECUTIVE DIRECTOR BEING LEASED THROUGH AAN. THE CNF'S BOARD OF DIRECTORS IS RESPONSIBLE FOR HIRING AND SETTING THE COMPENSATION FOR THE EXECUTIVE DIRECTOR. THE BOARD EMPLOYS PROCEDURES (USE OF INDEPENDENT CONSULTANT, COMPENSATION SURVEY, AND NO INVOLVEMENT OF PERSONS WITH CONFLICT OF INTEREST) AND LAST SET COMPENSATION IN 2020. OTHER KEY EMPLOYEES LEASED FROM AAN COMPENSATION IS ESTABLISHED (USING INDEPENDENT CONSULTANT, EMPLOYMENT AGREEMENTS, COMPENSATION SURVEY AND APPROVAL BY BOARD) BY AAN'S COMPENSATION COMMITTEE (AND APPROVED BY AAN BOARD). FORM 990, PART VI, SECTION B, LINE 11B THE CEO AND DIRECTOR OF ACCOUNTING AND FINANCE UNDERTOOK EXTENSIVE REVIEW OF THE DRAFT FORM 990 PRIOR TO PRESENTING TO THE FINANCE COMMITTEE FOR REVIEW. THE FINAL FORM 990 IS PRESENTED TO THE BOARD OF DIRECTORS FOR THEIR REVIEW AND APPROVAL PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C THE FOUNDATION HAS A CONFLICT OF INTEREST POLICY COVERING ALL BOARD MEMBERS. BOARD MEMBERS COMPLETE A POLICY FORM ON AN ANNUAL BASIS WHICH IS MONITORED AND REVIEWED BY THE BOARD OFFICERS AFTER SUBMISSION. SHOULD A CONFLICT EXIST, THE BOARD WOULD DETERMINE THE APPROPRIATE ACTION INCLUDING OMISSION FROM VOTING ON ANY RELATED MATTERS AND DOCUMENT IN THE MEETING MINUTES. FORM 990, PART VI, SECTION B, LINE 15A IN 2020, THE FOUNDATION'S EXECUTIVE DIRECTOR WAS LEASED TO THE FOUNDATION THROUGH A CONTRACTUAL RELATIONSHIP WITH THE AMERICAN ACADEMY OF NEUROLOGY. THE FOUNDATION'S EXECUTIVE COMMITTEE IS RESPONSIBLE FOR HIRING AND SETTING THE COMPENSATION OF THE EXECUTIVE DIRECTOR. THE COMMITTEE EMPLOYS PROCEDURES (USE OF COMPENSATION SURVEYS AND BOARD APPROVAL) AND LAST SET COMPENSATION IN 2020. FORM 990, PART VI, SECTION C, LINE 19 THE FOUNDATION DOES NOT MAKE ITS GOVERNING DOCUMENTS OF CONFLICT OF INTEREST POLICY AVAILABLE TO THE PUBLIC. THE ORGANIZATION'S FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC UPOON REQUEST. LINE 11G THE CHILD NEUROLOGY FOUNDATION SPENT $1,034,927 IN 2020 ON CONTRACTORS WITH SPECIALIZED SKILLS TO ASSIST WITH IMPLEMENTING PROGRAM INITIATIVES, EVENT STAFF, AND MARKETING EFFORTS.