2021-08-26T10:17:51-05:00 2020-12-31 843551139 LEE & CROWLEY LLC 76 CANAL STREET SUITE 300 BOSTON MA 02114 990 2020-01-01 454955538 HUNTINGTON'S DISEASE YOUTH ORGANIZATION OF AMERICA INC HUNT 9522705428 37824 N LAUREL PARK DRIVE LIVONIA MI 48152 HAYLEY HUBBERSTEY CHAIRPERSON 9522705428 2021-08-26 1 HAYLEY HUBBERSTEY 999009999 CHRISTOPHER LEE P01571686 6173568220 X 2 AAL1 IAL1 2020 2022-09-23 18:48:47Z X HAYLEY HUBBERSTEY 37824 N LAUREL PARK DRIVE LIVONIA MI 48152 454833 0 X WWW.HDYO.ORG X 2013 MN SUPPORT YOUNG PEOPLE AROUND THE WORLD IMPACTED BY HUNTINGTON'S DISEASE. 4 4 1 50 136 0 358079 454697 0 0 4 0 3724 136 361807 454833 169094 182400 0 0 84012 83109 0 0 0 85068 33177 338174 298686 23633 156147 80739 236886 0 0 80739 236886 X THE HUNTINGTON'S DISEASE YOUTH ORGANIZATION OF AMERICA IS A NON-PROFIT ORGANIZATION SET UP TO SPECIFICALLY PROVIDE SUPPORT FOR YOUNG PEOPLE AROUND THE WORLD IMPACTED BY HUNTINGTON'S DISEASE. THE ORGANIZATION PROVIDES SUPPORT, EDUCATION AND GUIDANCE TO YOUNG PEOPLE AND THEIR FAMILIES IMPACTED BY HUNTINGTON'S DISEASE AND PROMOTES AWARENESS AND PROVIDES EDUCATION WITHIN PROFESSIONAL SETTINGS FOR THOSE WORKING WITH HUNTINGTON'S DISEASE FAMILIES. 0 0 15000 YOUNG ADULT CONGRESS EVENT: INTERNATIONAL YOUNG ADULT EVENT FOR SUPPORT AND EDUCATION. 84117 DIRECTOR OF YOUTH SERVICES ROLE; OUR DIRECTOR OF YOUTH SERVICES IS OUR SINGLE EMPLOYEE IN THE US. THEY WORK OUT OF GEORGETOWN UNIVERSITY'S HD CENTER AND PROVIDES FACE-TO-FACE AND VIRTUAL SUPPORT TO YOUNG PEOPLE AND FAMILIES THROUGHOUT THE COUNTRY, WHILE MOSTLY FOCUSING ON THE MID-ATLANTIC REGION IN THE USA. 182400 182400 HDYO UK GRANT SUPPORT: HDYO OF AMERICA SUPPORTED OUR SISTER ORGANIZATION, ALSO KNOWN AS HDYO, REGISTERED AS A CHARITY UNDER THE UNITED KINGDOM CHARITY COMISSION. OUR GRANTS PROVIDED FUNDS FOR THE CREATION AND SHARING OF JOINT RESOURCES INCLUDING A WEBSITE, BROCHURES, EDUCATIONAL PROGRAMS, AND MUCH MORE. OUR SISTER ORGANIZATION WORKS INSYNC WITH HDYO-AMERICA TO COMBINE OUR EFFORTS TO PROVIDE THE BEST SUPPORT POSSIBLE FOR ALL YOUNG PEOPLE AROUND THE WORLD IMPACTED BY HD. 12683 THE ORGANIZATION PROVIDES SUPPORT, EDUCATION AND GUIDANCE TO YOUNG PEOPLE AND THEIR FAMILIES IMPACTED BY HUNTINGTON'S DISEASE AND PROMOTES AWARENESS AND PROVIDES EDUCATION WITHIN PROFESSIONAL SETTINGS FOR THOSE WORKING WITH HUNTINGTON'S DISEASE FAMILIES. 12683 294200 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 0 0 1 1 0 0 0 0 0 0 0 0 0 0 X 4 4 0 0 0 0 0 0 0 1 1 0 0 1 1 0 0 1 1 0 1 0 X DONNA SPENCER 2489825043 37824 N LAUREL PARK DRIVE LIVONIA MI 48152 X DR BONNIE HENNIG BOARD MEMBER 2.00 X 0 0 0 ANA WEISS BOARD MEMBER 2.00 X 0 0 0 ERIC MILLER BOARD MEMBER 2.00 X 0 0 0 DONNA SPENCER BOARD MEMBER 2.00 X 0 0 0 HAYLEY HUBBERSTEY CHAIRPERSON 15.00 X X 0 0 0 0 0 0 0 0 0 0 0 454697 454697 MERCHANDISE REVENUE 448000 136 136 136 454833 0 136 0 182400 182400 77442 77442 5667 5667 3000 3000 41 41 7196 6961 235 750 563 187 3063 3063 2237 2237 1023 1023 YOUNG ADULT CONGRESS EV 15000 15000 SPECIALTY PROJECTS 867 867 298686 294200 4486 0 65033 236386 15358 0 348 500 80739 236886 0 0 X 80739 117886 119000 80739 236886 80739 236886 156147 0 X 0 0 0 X 250556 305337 415822 358139 454697 1784551 250556 305337 415822 358139 454697 1784551 0 0 0 1784551 250556 305337 415822 358139 454697 1784551 1.00000 1.00000 0.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 0 0 0 0 0 0 0 0 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM SUPPORT YOUTH WITH HUNTINGTON'S DISEASE IN UNITED KINGDOM 174400 CHECK CANADA SUPPORT HUNTINGTON'S MENTORSHIP PROGRAM IN CANADA. 8000 CHECK 2 0 0 0 0 0 0 PART III ACCOUNTING METHOD: FORM 990, PART VI, SECTION B, LINE 11B FORM 990 REVIEWED BY ORGANIZATION CHAIRPERSON PRIOR TO FILING FORM 990, PART VI, SECTION B, LINE 15B COMPENSATION LEVEL DETERMINED BY BOARD OF DIRECTORS FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE UPON REQUEST HUNTINGTON'S DISEASE YOUTH ORGANIZATION 131 MOUNT PLEASANT LIVERPOOL UK SUPPORT PEOPLE AROUND THE WORLD WHO ARE AFFECTED BY HD UK 0 HUNTINGTON'S SOCIETY OF CANDA 30 ERB ST W SUITE 801 WATERLOO CA SUPPORT PEOPLE AROUND THE WORLD WHO ARE AFFECTED BY HD CA 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 HUNTINGTON'S DISEASE YOUTH ORGANIZATION UK B 174400 HUNTINGTON'S SOCIETY OF CANADA B 8000