2021-03-23T17:12:22-05:00 2020-06-30 650715836 ZOMMA GROUP LLP 355 ALHAMBRA CIRCLE SUITE 1100 CORAL GABLES FL 33134 990 2019-07-01 201048322 COPD FOUNDATION INC COPD 8667312673 3300 PONCE DE LEON BLVD MIAMI FL 33134 SASHA LAVIN CFO 8667312673 2021-02-25 1 MARGARITA G LISKER CPA P00957338 3054448288 2021-02-24 2019 2022-09-23 18:48:47Z CORINNE COSTA 3300 PONCE DE LEON BLVD MIAMI FL 33134 15105720 0 X WWW.COPDFOUNDATION.ORG X 2004 FL SEE SCHEDULE O.COPD'S MISSION IS TO SPEED INNOVATIONS WHICH WILL MAKE TREATMENT MORE EFFECTIVE AND AFFORDABLE, TO UNDERTAKE INITIATIVES THAT RESULT IN EXPANDED SERVICES FOR COPD PATIENTS, AND IMPROVE THE LIVES OF PATIENTS WITH COPD AND RELATED DISORDERS (THROUGH SCIENTIFIC RESEARCH, EDUCATION & AWARENESS) THAT WILL LEAD TO PREVENTION AND A STOP IN THE PROGRESSION OF COPD. THE ORGANIZATION'S ACTIVITIES FOCUS ON ACHIEVING THESE RESULTS THROUGH RESEARCH, EDUCATION AND ADVOCACY PROGRAMS THAT WILL LEAD TO PREVENTION AND SOMEDAY, A CURE FOR THE DISEASE. 13 13 28 313 0 0 9742695 8749406 121668 93175 243524 215839 0 375164 10107887 9433584 1936959 789670 0 0 2916760 3219372 0 0 1017792 5850455 4885207 10704174 8894249 -596287 539335 9184199 10533837 3105458 4002703 6078741 6531134 X THE COPD FOUNDATION WAS ESTABLISHED TO SPEED INNOVATIONS WHICH WILL MAKE TREATMENTS MORE EFFECTIVE AND AFFORDABLE, UNDERTAKE INITIATIVES THAT RESULT IN EXPANDED SERVICES FOR COPD PATIENTS, AND IMPROVE THE LIVES OF PATIENTS WITH COPD THROUGH EDUCATION AND RESEARCH THAT WILL LEAD TO PREVENTION AND SOMEDAY A CURE FOR THE DISEASE 0 0 6214222 789670 2499351 RESEARCH THE COPD360 UNIQUE RESEARCH PLATFORM INCLUDES MULTIPLE ELEMENTS SUCH AS TWO PATIENT REGISTRIES, COPD PATIENT POWERED RESEARCH NETWORK (COPD PPRN) AND BRONCHIECTASIS AND NTM RESEARCH REGISTRY (BRR), AND THE RECENTLY LAUNCHED DIGITAL HEALTH AND THERAPEUTICS DEVELOPMENT NETWORK (COPD360NET). ALL ARE POWERED BY A SECURE CLOUD-BASED ANALYTICAL INFRASTRUCTURE THAT SUPPORTS THE GROWTH OF THE COPD FOUNDATION'S PATIENT CENTERED RESEARCH ACTIVITIES. COPD PATIENT-POWERED RESEARCH NETWORK (COPD PPRN) THE COPD PATIENT-POWERED RESEARCH NETWORK (COPD PPRN) IS A PATIENT REGISTRY OF OVER 8000 INDIVIDUALS WITH CHRONIC OBSTRUCTIVE PULMONARY DISEASE OR WHO MAY BE AT RISK FOR COPD WHO HAVE AGREED TO SHARE THEIR HEALTH INFORMATION AND PARTICIPATE IN RESEARCH. IT IS UNIQUELY OVERSEEN BY A PATIENT-LED GOVERNING BOARD AND IS SLATED TO BE THE LARGEST RESEARCH REGISTRY FOR COPD.PARTICIPANTS CREATE AN ACCOUNT ON A SECURE PLATFORM WHERE THEY PROVIDE DIGITAL CONSENT, AGREE TO COMPLETE SURVEYS AND TO LINK THEIR ELECTRONIC HEALTH RECORD TO THE PPRN DATABASE. BY BECOMING PART OF THE PPRN, PARTICIPANTS AGREE TO BE CONTACTED ABOUT STUDY OPPORTUNITIES AND RETAIN ACCESS TO WEB PORTALS WITH PERSONALIZED DASHBOARDS WHERE THEY CAN ACCESS THEIR INFORMED CONSENT, TAKE SURVEYS, RECEIVE NOTIFICATION OF AVAILABLE STUDIES THEY CAN ENROLL IN, VIEW REPORTS COMPARING THEM WITH OTHER PARTICIPANTS AND ACCESS THE LATEST COPD FOUNDATION RESOURCES. THIS PATIENT-CENTERED APPROACH SPEEDS INNOVATION AND FACILITATE ACCESS/RECRUITMENT TO CLINICAL TRIALS THAT MAY ULTIMATELY RESULT IN NOVEL THERAPIES. BRONCHIECTASIS AND NTM RESEARCH REGISTRY (BRR) FOUNDED IN 2007, THE BRONCHIECTASIS AND NTM RESEARCH REGISTRY IS A CLINICAL REGISTRY OF PATIENTS WITH NON-CF BRONCHIECTASIS AND/OR NONTUBERCULOSIS MYCOBACTERIA (NTM) LUNG DISEASE. THE BRR INCLUDES MORE THAN 3,500 PARTICIPANTS IN 17 CLINICAL SITES. IN SOME CASES THERE IS UP TO 13 YEARS OF LONGITUDINAL PHYSICIAN-REPORTED DATA THAT IS USEFUL FOR IDENTIFYING INDIVIDUALS RESEARCH STUDIES AND CLINICAL TRIALS. WE ARE IN THE PROCESS OF A REGISTRY EXPANSION DURING WHICH WE WILL ADD 5 NEW SITES, REACH 5,000 ENROLLED PARTICIPANTS BY MAY OF 2022, AND CONTINUE LONGITUDINAL FOLLOW-UP OF PARTICIPANTS IN THE REGISTRY. THE COPD FOUNDATION'S BRR HAS BEEN VERY SUCCESSFUL AND HAS SERVED AS A MODEL FOR MULTIPLE BRONCHIECTASIS REGISTRIES OUTSIDE OF THE UNITED STATES. THE BRR HAS BEEN USED TO ASSIST WITH RECRUITMENT INTO MAJOR RESEARCH STUDIES AND CLINICAL TRIALS, INCLUDING THOSE TESTING IMPORTANT THERAPIES FOR THE TREATMENT OF NON-CF BRONCHIECTASIS AND NTM LUNG DISEASE. IT HAS ALSO BEEN USED FOR EDUCATIONAL PURPOSES. DIGITAL HEALTH AND THERAPEUTICS ACCELERATOR NETWORK (COPD360NET)THE COPD FOUNDATION'S DIGITAL HEALTH AND THERAPEUTICS COPD360NET WAS ESTABLISHED IN 2020 AND IS DESIGNED TO FACILITATE, REVIEW, AND EXPEDITE CLINICAL TRIALS FOR NEW THERAPIES AND DIGITAL HEALTH TOOLS. IN ADDITION, COPD360NET IS FOCUSED ON IMPLEMENTATION SCIENCE FACILITATING DISCOVERY TO DELIVERY. COPD360NET IS COMPRISED OF CORE COPD FOUNDATION ACCREDITED CARE CENTERS, EXPERTS IN THE FIELD OF COPD AND RELATED LUNG DISEASE, AND RELEVANT SUBJECT MATTER EXPERTS (INCLUDING A HEALTH ECONOMIST ASSESSING PATIENT PREFERENCES AND VALUATION OF THE COPDF PIPELINE, A PSYCHOSOCIAL EXPERT STUDYING COGNITIVE IMPAIRMENT IN CHRONIC DISEASE, AND PRIMARY CARE PHYSICIANS). THE GOALS FOR COPD360NET ARE TO: ACCELERATE THE ADOPTION AND REIMBURSEMENT OF DIGITAL HEALTH TOOLS ACCELERATE THE DEVELOPMENT OF NOVEL THERAPIES, INCLUDING PROMISING REPURPOSED OR SHELVED MOLECULES INNOVATE CLINICAL TRIAL DESIGNS: TARGET SPECIFIC COPD SUB POPULATIONS, USE NEW ENDPOINTS, AND TAKE A MOSTLY REMOTE DIGITAL TRIALS APPROACH TRANSLATE TRIAL FINDINGS AND PATIENT PREFERENCE INTO PRACTICE TO INFORM OPTIMAL CARE DELIVERY AND REIMBURSEMENT. COVID-19 RESEARCH IN RESPONSE TO THE COVID-19 PANDEMIC, IN 2020, THE COPD FOUNDATION CONDUCTED 3 RESEARCH SURVEYS DESIGNED TO RAPIDLY ACCESS INFORMATION FROM PATIENTS AND CAREGIVERS ON THE IMPACT OF COVID-19. IN EACH SURVEY, PARTICIPANTS WERE ASKED A SERIES OF QUESTIONS RELATED TO COVID-19 DIAGNOSIS AND COVID-19 RELATED CONCERNS. THE CONTINUED COLLECTION OF THIS TYPE OF INFORMATION ALLOWS THE FOUNDATION TO BETTER UNDERSTAND THE IMPACT OF ONGOING PANDEMIC ON OUR COMMUNITY AND PRIORITIZE EDUCATION AND ADVOCACY PROGRAMS THAT ADDRESS ITS NEEDS SUCH AS ACCESS TO OXYGEN, NEBULIZED THERAPIES, SUPERVISED EXERCISE, PULMONARY REHABILITATION, AND PROGRAMS THAT ADDRESS STRESS AND ISOLATION. MULTIPLE COVID-19 RELATED SURVEYS TARGETING PATIENTS AND CAREGIVERS THAT WERE CONDUCTED BY THE COPD FOUNDATION AND ITS MEDICAL AND SCIENTIFIC PARTNERS HAVE ALL BEEN PUBLISHED. THEY HAVE ALSO BEEN SHARED WITH THE COMMUNITY IN BLOG POSTS AND INFORMING WEBINARS.TAL-SINGER R, YAWN B, WISE B, THOMASHOW B, BOYCE DM. THE COPD FOUNDATION CORONAVIRUS DISEASE 2019 INTERNATIONAL MEDICAL EXPERTS SURVEY: RESULTS. CHRONIC OBSTR PULM DIS. 2020; 7(3): 139-146.BOYCE DM, THOMASHOW BM, SULLIVAN J, TAL-SINGER R. NEW ADOPTERS OF TELEMEDICINE DURING THE CORONAVIRUS-19 PANDEMIC IN RESPONDENTS TO AN ONLINE COMMUNITY SURVEY: THE CASE FOR ACCESS TO REMOTE MANAGEMENT TOOLS FOR INDIVIDUALS WITH CHRONIC OBSTRUCTIVE PULMONARY DISEASE. CHRONIC OBSTR PULM DIS. 2020 DEC 8. DOI: 10.15326/JCOPDF.2020.0181. EPUB AHEAD OF PRINT. PMID: 33291190.SURVEY #1HTTPS://WWW.COPDFOUNDATION.ORG/COPD360SOCIAL/COMMUNITY/COPD-DIGEST/ARTICLE/1566/EXPLORING-THE-COPD-PATIENT-AND-CAREGIVERS-EXPERIENCE-WITH-COVID-19-THROUGH-SURV.ASPXSURVEY #2: COPD HIGHLIGHTS: HTTPS://WWW.COPDFOUNDATION.ORG/COPD360SOCIAL/COMMUNITY/COPD-DIGEST/ARTICLE/1586/HIGHLIGHTS-FROM-COVID-19-SURVEY-2-PANDEMIC-IMPACT-ON-THE-COPD-COMMUNITY.ASPXBRONCH/NTM HIGHLIGHTS: HTTPS://WWW.BRONCHIECTASISANDNTMINITIATIVE.ORG/BRONCHANDNTM360SOCIAL/COMMUNITY-DISCUSSIONS/BLOG/ARTICLE/121/HIGHLIGHTS-FROM-COVID-19-SURVEY-2-PANDEMIC-IMPACT-ON-THE-BRONCHIECTASIS-AND-NTMSURVEY #3HTTPS://WWW.COPDFOUNDATION.ORG/COPD360SOCIAL/COMMUNITY/COPD-DIGEST/ARTICLE/1609/COVID-19-AND-THE-CHRONIC-LUNG-CONDITIONS-COMMUNITY-HOW-ARE-WE-DOING-AFTER-6-MON.ASPXTHE COPD FOUNDATION NEBULIZER CONSORTIUM (CNC WAS LAUNCHED IN JAN 2020 AS A RESPONSE TO COVID-19 CONCERNS. IT AIMS TO ADDRESS THE UNIQUE CHALLENGES SURROUNDING AEROSOL GENERATING PROCEDURES DURING THE COVID-19 PANDEMIC AND TO IMPROVE THE UNDERSTANDING OF ANY INFECTION RISKS THAT MAY BE ASSOCIATED WITH THE ADMINISTRATION OF NEBULIZED THERAPIES AND TO DEVELOP SOLUTIONS THAT ENSURE THE SAFETY OF PATIENTS, CAREGIVERS, AND HEALTH CARE PROVIDERS. 923396 523169 CARE DELIVERYCOPD FOUNDATION'S CARE DELIVERY PROGRAMS PROVIDE EDUCATIONAL OPPORTUNITIES FOR ALL PEOPLE IMPACTED BY COPD OR RELATED LUNG CONDITIONS INCLUDING PATIENTS, FAMILY MEMBERS, HEALTH CARE PROVIDERS OR OTHERS AFFECTED BY THESE CONDITIONS. AT THE CORE OF THE FOUNDATION'S CARE DELIVERY EFFORTS IS THE COPD360SOCIAL PLATFORM, WHERE NEARLY 50,000 MEMBERS OF OUR COMMUNITY ACCESS EDUCATIONAL RESOURCES, SUPPORT AND CONNECT WITH EACH OTHER. SPECIFIC EFFORTS IN CARE DELIVERY INCLUDE:IN JULY OF 2019, THE COPD FOUNDATION HELD OUR THIRD READMISSIONS REDUCTION INSTITUTE MEETING IN DAVIS, CA. THE GOAL OF THESE INSTITUTES IS TO ENABLE COLLECTIVE EFFORTS BY HEALTH CARE PROVIDERS IN A PARTICULAR COMMUNITY ON TO DEVELOP AND IMPLEMENT STRATEGIES TO REDUCE HOSPITAL READMISSIONS.THE NEBULIZER EDUCATION AND VIDEO SERIES PROVIDED ESSENTIAL INFORMATION ON PROPER USE AND MAINTENANCE OF NEBULIZERS. THROUGHOUT 2020, THE COPD FOUNDATION WAS COMMITTED TO EDUCATING AND INFORMING OUR COMMUNITY ABOUT THE RISKS OF COVID-19 AND THE STEPS THEY COULD TAKE TO PROTECT THEMSELVES. THIS INCLUDED A DEDICATED WEBPAGE, WEBINARS, FACEBOOK LIVE EVENT, VIDEOS, FAQS, AND BLOG POSTS ON MATTERS OF INTEREST TO OUR COMMUNITY.IN COLLABORATION WITH AMERICAN COLLEGE OF CHEST PHYSICIANS, WE CONDUCTED SURVEYS OF PATIENTS AND HEALTH CARE PROVIDERS TO ANALYZE ATTITUDES ABOUT COPD EXACERBATIONS AND WHAT COULD BE DONE TO IMPROVE COMMUNICATION RELATED TO EXACERBATIONS. WE SAW SIGNIFICANT DIFFERENCES IN HOW EACH GROUP PERCEIVED THE LEVEL OF COMMUNICATION, DEMONSTRATING A NEED FOR TRAINING AND EDUCATION TO IMPROVE THAT INTERACTION.THE HARMONICAS FOR HEALTH (H4H) PROGRAM CONTINUES TO GROW. THROUGH THIS PROGRAM, INDIVIDUALS CAN DEVELOP STRONG BREATHING SKILLS AND A GENERAL SENSE OF WELL-BEING WHILE PLAYING THE HARMONICA. THE PROGRAM ALSO SERVES AS AN AVENUE FOR THOSE STRUGGLING WITH COPD TO RECEIVE ENCOURAGEMENT AND SUPPORT FROM OTHERS.WE CONTINUED UPDATING OUR COPD POCKET CONSULTANT GUIDE (PCG) APP AND IN NOVEMBER 2019, WE LAUNCHED A NEW PATIENT/CAREGIVER TRACK ON THE APP WHICH IS AVAILABLE FOR BOTH IOS AND ANDROID USERS. THE PRINTED COPD PCG WAS UPDATED IN 2020 AND IS NOW AVAILABLE FOR DISTRIBUTION. WE DEVELOPED AN EDUCATION PROGRAM ON NONTUBERCULOUS MYCOBACTERIAL (NTM) LUNG DISEASE AND HOW IT CAN IMPACT INDIVIDUALS LIVING WITH COPD AND BRONCHIECTASIS. THE PROJECT INCLUDED A RARE DISEASE DAY WEBINAR, TWO EDUCATIONAL VIDEOS WITH A MEDICAL PROFESSIONAL, AND A SERIES OF SIX BLOG POSTS.WE AUTHORED A SIX-BLOG SERIES DESIGNED TO INFORM THE COPD COMMUNITY ABOUT BRONCHIECTASIS AND HOW PEOPLE LIVING WITH COPD MAY BE AT RISK.ADDITIONALLY, WE HAVE OVER 200,000 UNIQUE WEBSITE VISITORS EACH MONTH SEEKING OUR RESOURCES. 201175 COMMUNICATIONSTHE COPD FOUNDATION EMPHASIZES COMMUNICATION AS ONE OF ITS CORE ATTRIBUTES. THERE ARE MULTIPLE STAKEHOLDERS WITHIN OUR COMMUNITY, EACH EQUALLY VALUED. AS SUCH, WE HAVE EXPANDED AUDIENCE-SPECIFIC COMMUNICATIONS THROUGH OUR SOCIAL MEDIA CHANNELS FOCUSING FACEBOOK AND INSTAGRAM ON OUR PATIENT AND CAREGIVER COMMUNITY, AND LINKEDIN ON INDUSTRY AND HEALTHCARE PROFESSIONALS. WE PRODUCE SEVERAL DIGITAL NEWSLETTERS: PRAXIS IS FOR OUR HEALTH CARE AND SCIENCE COMMUNITY AND FACES OF COPD IS DIRECTED AT OUR PATIENT AND CAREGIVER CONSTITUENTS. OTHER NEWSLETTERS WERE CREATED FOR OUR BRONCHIECTASIS/NTM COMMUNITY AND FOR MEMBERS OF OUR STATE CAPTAINS PROGRAM. 126158 ADVOCACY AND PUBLIC POLICY - ADVOCATING FOR THE COPD COMMUNITY AND TRAINING OTHERS IN THE COMMUNITY TO BECOME ADVOCATES REMAINS A KEY FOCUS. BEYOND OUR CONTINUAL EFFORTS TO RAISE AWARENESS OF THE SYMPTOMS, CAUSES, AND TREATMENTS OF COPD AND RELATED LUNG CONDITIONS, WE ENGAGED IN SPECIFIC ADVOCACY EFFORTS THIS YEAR FOCUSED ON (1) ACCESS TO PULMONARY REHABILITATION (2) IMPROVED ACCESS TO AFFORDABLE OXYGEN SERVICES FOR PEOPLE WITH CHRONIC RESPIRATORY CONDITIONS; AND (3) ACCESS TO SAFE NEBULIZED THERAPIES DURING THE COVID-19 CRISIS. WE ALSO PARTNERED WITH ALLIED ORGANIZATIONS ON MULTIPLE POSITION DOCUMENTS ON SMOKING, VAPING, MASK USAGE DURING COVID-19, AND DEALING WITH AIR POLLUTION.THE FOUNDATION'S VIRTUAL IMPACT ADVOCACY EVENT INCLUDED 50 ADVOCATES FROM AROUND THE NATION WHO PARTICIPATED IN WORKSHOPS AND ENGAGED ELECTED REPRESENTATIVES IN CONVERSATIONS ABOUT COPD. FOR EXAMPLE, IMPACT 2020 ADDRESSED THE NEED TO ENSURE ACCESS TO PULMONARY REHABILITATION AND WE WERE HAPPY WITH THE DECISION BY THE CENTERS FOR MEDICARE AND MEDICAID SERVICES TO REIMBURSE PULMONARY REHABILITATION AS WELL AS TELEHEALTH SERVICES DURING THE COVID-19 PUBLIC HEALTH EMERGENCY. PUBLICATIONSOUR PEER-REVIEWED, OPEN ACCESS JOURNAL, CHRONIC OBSTRUCTIVE PULMONARY DISEASE: JOURNAL OF THE COPD FOUNDATION RECEIVED NEWS THIS PAST YEAR THAT IT HAD BEEN SELECTED TO MOVE INTO THE WEB OF SCIENCE'S TOP TIER OF INDEXING- THE SCIENCE CITATION INDEX EXPANDED (SCIE). THE JOURNAL MET 28 QUALITY AND IMPACT CRITERIA TO MOVE INTO THIS TOP TIER. THIS IS A GREAT MILESTONE FOR THE JOURNAL AS THE SCIE INDEX DESCRIBES ITSELF AS SELECTING "THE MOST INFLUENTIAL JOURNALS IN THEIR RESPECTIVE FIELDS FOR THE SCIENCE CITATION INDEX EXPANDED." WITH THIS NEW DISTINCTION THE JOURNAL WILL RECEIVE ITS FIRST IMPACT FACTOR IN THE SUMMER OF 2021. IN ADDITION TO THE SCIE, THE JOURNAL ALSO CONTINUES TO BE INDEXED BY PUBMED, PUBMEDCENTRAL, AND SCOPUS. 126158 7464951 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 1 0 0 0 1 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 44 0 1 28 1 0 0 0 0 0 1 1 0 0 0 0 X 13 13 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 FL X X THE ORGANIZATION 8667312673 3300 PONCE DE LEON BLVD MIAMI FL 33134 MICHAEL P MAYER CHAIRMAN 2.00 X X 0 0 0 WAYNE E WITHERS JR VICE-CHAIR, TREASURER 2.00 X X 0 0 0 DONALD GRAY SECRETARY 2.00 X X 0 0 0 JAMES D CRAPO MD DIRECTOR 2.00 X 0 0 0 ROBERT WISE MD DIRECTOR 2.00 X 0 0 0 RICHARD CASABURI PHD MD DIRECTOR 2.00 X 0 0 0 STEW COGAN ESQ DIRECTOR 2.00 X 0 0 0 GERARD M TURINO MD DIRECTOR 2.00 X 0 0 0 LEONARD FROMER MD DIRECTOR 2.00 X 0 0 0 JEAN WRIGHT MD MBA DIRECTOR 2.00 X 0 0 0 RUSSELL L GANTT DIRECTOR 2.00 X 0 0 0 HERB YARDLEY DIRECTOR 2.00 X 0 0 0 BYRON M THOMASHOW MD CHIEF MEDICAL OFFICER 2.00 X X 0 0 0 CORINNE COSTA CEO 40.00 X 249458 0 37948 SASHA LAVIN CFO 40.00 X 145622 0 14076 MARY A BYRNES CAO 40.00 X 214186 0 12543 VINCENT MALANGA CIO 40.00 X 204948 0 19412 SARA D LATHAM EXECUTIVE VICE PRESIDENT 40.00 X 145259 0 34464 CAROLL ADAMS VP CORPORATE RELATIONS 24.00 X 139050 0 0 ELISHA MALANGA EXECUTIVE VICE PRESIDENT 40.00 X 138184 0 31190 JAMIE SULLIVAN VP PUBLIC AFFAIRS 40.00 X 100269 0 1200 1336976 0 150833 8 0 1 0 NATIONAL JEWISH HEALTH 1400 JACKSON STREET DENVER CO 80206 CLINICAL STUDY CONTRACTOR 661438 UNIVERSITY OF NORTH CAROLINA 104 AIRPORT DRIVE CHAPEL HILL NC 27599 CLINICAL STUDY CONTRACTOR 583450 UNIVERSITY OF MICHIGAN 500 S STATE ST ANN ARBOR MI 48109 CLINICAL STUDY CONTRACTOR 361760 SCHEDULINGCOM 720 3RD AVE SUITE 1000 SEATTLE WA 98104 DATA COORDINATING CENTER 320749 DEBORA D MERRILL 3461 PICKERTOWN ROAD CHALFONT PA 18194 CONTRACTOR 190895 14 282319 8467087 8749406 PUBLICATION INCOME 511120 93175 93175 93175 134722 134722 5628775 5547658 81117 81117 81117 124478 282319 124478 0 MANAGEMENT FEES 541610 375164 375164 375164 9433584 0 0 684178 X 789670 789670 2706826 1796096 218652 692078 317045 235010 22976 59059 195501 135662 13225 46614 1186 1186 35100 12980 19075 3045 3901044 3751611 57554 91879 100074 92986 1485 5603 94668 86709 2632 5327 67199 43541 6720 16938 206958 181018 12850 13090 22535 31045 1829 -10339 6339 6339 24944 17336 739 6869 LICENSES AND FEES 277112 214839 37451 24822 DUES & SUBSCRIPTIONS 72126 36597 26 35503 PRINTING AND PUBLICATIO 35027 25443 134 9450 BUSINESS MEALS 30570 15476 3323 11771 10325 -1068 5310 6083 8894249 7464951 411506 1017792 1070979 1801540 720225 737484 1630629 2951395 304044 722571 54799 41262 14172 13537 5030062 3859890 414088 447420 9184199 10533837 1887712 1025722 967746 2672111 250000 304870 3105458 4002703 X 1552744 1678821 4525997 4852313 6078741 6531134 9184199 10533837 539335 -86942 0 X X 0 0 0 X 7484148 10023890 9064117 9371908 8749406 44693469 7484148 10023890 9064117 9371908 8749406 44693469 14696775 29996694 75278 22857 63186 132557 134722 428600 45122069 0.66480 0.54610 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 54799 41262 13537 13537 X 9346642 -86942 -86942 9433584 0 9433584 8894249 0 8894249 0 8894249 PART X, LINE 2: THE ORGANIZATION IS ORGANIZED AS A NOT-FOR-PROFIT ENTITY AND IS EXEMPT FROM INCOME TAXES UNDER SECTION 501(C) (3) OF THE INTERNAL REVENUE CODE. UNRELATED BUSINESS INCOME, OF WHICH THE ORGANIZATION HAD NONE FOR THE YEARS ENDED JUNE 30, 2020 AND 2019, WOULD BE SUBJECT TO FEDERAL INCOME TAXES. THE ORGANIZATION'S INFORMATION RETURNS FILED WITH THE INTERNAL REVENUE SERVICE HAVE NOT BEEN EXAMINED IN THE PAST. THE ORGANIZATION IS NOT AWARE OF ANY UNCERTAINTIES THAT COULD JEOPARDIZE ITS NOT-FOR-PROFIT STATUS. THEREFORE, NO PROVISION OR LIABILITY FOR INCOME TAXES IS DEEMED NECESSARY. THE ORGANIZATION FOLLOWS THE PROVISIONS OF UNCERTAIN TAX PROVISIONS ADDRESSED BY FAS ASC 740-10 ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES. THE ORGANIZATION HAS NO UNCERTAIN TAX POSITIONS AT JUNE 30, 2020 AND 2019, FOR WHICH THE ULTIMATE DEDUCTIBILITY IS HIGHLY CERTAIN BUT FOR WHICH THERE ARE UNCERTAINTY ABOUT THE TIMING OF SUCH DEDUCTIBILITY. THE ORGANIZATION RECOGNIZES INTEREST ACCRUED RELATED TO UNRECOGNIZED TAX BENEFITS IN INTEREST EXPENSE AND PENALTIES IN OPERATING EXPENSE. THE ORGANIZATION HAS DETERMINED THAT NO AMOUNT REQUIRED TO BE ACCRUED FOR TAXES OR RELATED PENALTIES AND INTEREST FOR ANY TAX POSITION TAKEN THROUGH JUNE 30, 2020 AND 2019. 0 0 0 0 0 0 0 0 0 0 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESEARCH 40000 WIRE 0 0 0 0 0 0 PART III ACCOUNTING METHOD: FUNDRAISING EVENT 406797 282319 124478 10835 113643 406797 282319 124478 10835 113643 124478 0 1 NATIONAL JEWISH HEALTH 1400 JACKSON STREET DENVER CO 80206 742044647 501(C)(3) 562500 RESEARCH AMERICAN THORACIC SOCIETY 25 BROADWAY 4TH FLOOR NEW YORK NY 10004 061548706 501(C)(3) 10000 RESEARCH OREGON HEALTH & SCIENCE UNIVERSITY 3181 SW SAM JACKSON PARK RD PORTLAND OR 97239 931176109 501(C)(3) 29995 RESEARCH UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CHAPEL HILL NC 27599 566001393 501(C)(3) 61651 RESEARCH WAKE FOREST UNIVERSITY HEALTH SCIENCES MEDICAL CENTER BLVD WINSTONSALEM NC 27157 223849199 501(C)(3) 74688 RESEARCH JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD N4327-B BALTIMORE MD 21211 520595110 501(C)(3) 21345 RESEARCH 6 FORM 990, SCHEDULE I, PART I, LINE 2 THE ORGANIZATION HAS PROCEDURES IN PLACE TO REVIEW GRANTS AND ENSURE THAT THE AGREED UPON SCIENTIFIC DELIVERABLES ARE MET AND THAT THE FINANCIAL ASPECTS OF THE GRANT ARE EXECUTED IN ACCORDANCE WITH AGREEMENTS. SCIENTIFIC PROGRESS IS ASSESSED ACCORDING TO PROPOSED STUDY PROTOCOL AND PLANS. X X 1 0 0 0 0 0 0 0 0 CORINNE COSTA CEO 249458 0 0 0 0 0 0 0 37948 0 287406 0 0 0 SASHA LAVIN CFO 145622 0 0 0 0 0 0 0 14076 0 159698 0 0 0 MARY A BYRNES CAO 214186 0 0 0 0 0 0 0 12543 0 226729 0 0 0 VINCENT MALANGA CIO 204948 0 0 0 0 0 0 0 19412 0 224360 0 0 0 SARA D LATHAM EXECUTIVE VICE PRESIDENT 145259 0 0 0 0 0 0 0 34464 0 179723 0 0 0 ELISHA MALANGA EXECUTIVE VICE PRESIDENT 138184 0 0 0 0 0 0 0 31190 0 169374 0 0 0 FORM 990, PART VI, SECTION B, LINE 11B AFTER REVIEW BY THE CFO, THE DRAFT FORM 990 IS CIRCULATED TO MEMBERS OF MANAGEMENT FOR REVIEW AND COMMENT. THE FORM 990 IS THEN PROVIDED TO THE FOUNDATION'S BOARD OF DIRECTORS FOR REVIEW PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C AT EACH BOARD MEETING THE CONFLICT OF INTEREST POLICY IS READ BEFORE THE CONDUCT OF ANY OTHER ITEM. WRITTEN CONFLICT OF INTEREST STATEMENTS ARE OBTAINED FROM ALL OFFICERS, BOARD MEMBERS, COMMITTEE MEMBERS, STAFF AND CONTRACTED PERSONNEL ANNUALLY. FAILURE TO FILE THE STATEMENT WILL RESULT IN THE PERSON BEING REMOVED FROM SERVICE ON ANY COMMITTEE FORM 990, PART VI, SECTION B, LINE 15 SALARIES FOR COPD FOUNDATION MANAGEMENT ARE DETERMINED BY ANNUAL SURVEYS OF COMPARABLE NOT-FOR-PROFIT ORANIZATIONS. FORM 990, PART VI, SECTION C, LINE 19 THE WEBSITE WWW.COPDFOUNDATION.ORG INCLUDES THE POSTING OF FINANCIAL STATEMENTS, FORM 990, ANNUAL REPORT, CONFLICT OF INTEREST POLICY AND WHISTLEBLOWER POLICY. FORM 990, PART IX, LINE 11G CONTRACT SERVICES: PROGRAM SERVICE EXPENSES 3,751,611. MANAGEMENT AND GENERAL EXPENSES 57,554. FUNDRAISING EXPENSES 91,879. TOTAL EXPENSES 3,901,044. PART XII, LINE 2C EXPLANATION THERE WERE NO CHANGES FROM PRIOR YEAR.