2021-10-11T08:13:06-05:00 2021-06-30 420714325 RSM US LLP 2021 L STREET NW SUITE 400 WASHINGTON DC 20036 990 2020-07-01 521638207 CHILDREN'S INN AT NIH INC CHIL 3014965672 7 WEST DR BETHESDA MD 20814 JENNIE LUCCA CHIEF EXECUTIVE OFFICER 3014965672 2021-10-08 1 JENNIE LUCCA XXX-XX-XXXX FREDERICK LONGWOOD P00439715 2022932200 2021-10-08 0 AAL1 IAL1 2020 2022-09-23 18:48:47Z THE CHILDREN'S INN AT NIH INC JENNIE LUCCA 7 WEST DR BETHESDA MD 20814 12003867 0 X WWW.CHILDRENSINN.ORG X 1988 MD TO KEEP FAMILIES TOGETHER DURING ILLNESS IN A SUPPORTIVE, THERAPEUTIC & EDUCATIONAL ENVIRONMENT 21 21 50 212 0 0 6256363 5485072 952251 734694 1864335 3843531 -74245 40649 8998704 10103946 76800 31191 0 0 4237378 4217223 63300 64800 1448664 4726479 4080441 9103957 8393655 -105253 1710291 63199204 74253988 1721702 1495875 61477502 72758113 X THE CHILDREN'S INN AT NIH, INC. (THE INN) IS A PRIVATE, NONPROFIT RESIDENCE FOR FAMILIES AND THEIR CHILDREN WHO ARE PARTICIPATING IN PEDIATRIC RESEARCH AT THE NATIONAL INSTITUTES OF HEALTH'S (NIH) CLINICAL CENTER. THE INN'S MISSION IS TO FULLY AND CONSISTENTLY MEET THE NEEDS OF CHILDREN AND FAMILIES PARTICIPATING IN GROUNDBREAKING RESEARCH AT NIH, BY:- RESPONDING TO EVOLVING FAMILY SUPPORT NEEDS FROM PEDIATRIC RESEARCH AND CLINICAL CARE- PROVIDING A FREE FAMILY-CENTERED "PLACE LIKE HOME"- REDUCING THE BURDENS OF ILLNESS THROUGH THERAPEUTIC, EDUCATIONAL AND RECREATIONAL PROGRAMMING. 0 0 3012174 734694 HOUSING:THE CHILDREN'S INN AT NIH IS A HOSPITAL HOSPITALITY HOUSE THAT PROVIDES FREE LODGING AND SUPPORT SERVICES FOR CHILDREN AND THEIR FAMILIES PARTICIPATING IN CLINICAL RESEARCH STUDIES AT THE NATIONAL INSTITUTES OF HEALTH (NIH), THE WORLD'S LARGEST BIOMEDICAL RESEARCH HOSPITAL. FAMILIES WHO STAY AT THE INN HAVE PEDIATRIC, TEEN, AND YOUNG ADULT PATIENTS WITH RARE, UNDIAGNOSED, OR LIFE-THREATENING DISEASES THAT CANNOT BE SUCCESSFULLY TREATED OR CURED OUTSIDE OF CLINICAL RESEARCH STUDIES. OVER THE PAST 30 YEARS, MORE THAN 16,000 CHILDREN AND YOUNG ADULTS FROM 104 COUNTRIES HAVE CALLED THE INN HOME.OUR MISSION IS TO PROVIDE A "PLACE LIKE HOME" WHERE FAMILIES CAN STAY TOGETHER COMFORTABLY AT NO COST. THE STUDIES CHILDREN, TEENS, AND YOUNG ADULTS PARTICIPATE IN ARE THEIR BEST HOPE FOR A DIAGNOSIS AND TREATMENT. OUTCOMES FROM THESE STUDIES LEAD TO INNOVATIONS THAT HELP IMPROVE THE LIVES AND SURVIVAL RATES OF COUNTLESS CHILDREN, TEENS, AND YOUNG PEOPLE WORLDWIDE. THE CHILDREN'S INN FEATURES 60 ROOMS AND PROVIDES OFF-CAMPUS LODGING AT THREE APARTMENTS LOCATED IN BETHESDA, MARYLAND, FOR FAMILIES WHOSE CHILDREN HAVE UNIQUE NEEDS FOR EXAMPLE, CHILDREN WHO MAY BE ON ISOLATION AND TO ACCOMMODATE FAMILIES WHEN THE INN'S ROOMS ARE FULLY OCCUPIED. SOME OF OUR ROOMS HAVE BEEN SPECIALLY FURNISHED TO SERVE AS ISOLATION ROOMS FOR PATIENTS WHOSE FRAGILE IMMUNE SYSTEMS OR OTHER UNIQUE HEALTH ISSUES DO NOT PERMIT THEM TO STAY IN REGULAR ROOMS. ISOLATION ROOMS HAVE SPECIAL FLOORING AND OTHER SURFACES THAT ARE EASY TO CLEAN. WHILE MOST FAMILIES SPEND BETWEEN ONE AND FIVE NIGHTS AT THE INN PER VISIT, MANY STAY FOR WEEKS OR MONTHS AT A TIME TO UNDERGO SUCH COMPLEX TREATMENTS AS GENE THERAPY, IMMUNE THERAPY OR BONE MARROW TRANSPLANTS THAT REQUIRE LENGTHY PREPARATION AND RECUPERATION TIMES. AS A "PLACE LIKE HOME", THE INN MAKES IT POSSIBLE FOR FAMILIES TO ENGAGE IN TYPICAL ACTIVITIES EASILY AND COMFORTABLYMEAL PREPARATION, HOMEWORK, LAUNDRY, EXERCISING, AND SPENDING TIME TOGETHER AS A FAMILYWHILE ALSO PROVIDING AMPLE SPACE TO PLAY, RELAX, AND PARTICIPATE IN FUN ACTIVITIES. FAMILIES HAVE ACCESS TO THREE FULLY EQUIPPED KITCHENS WITH SEPARATE REFRIGERATOR/FREEZERS AND CABINET SPACE, SHARED DINING ROOMS, LIVING AND LAUNDRY ROOMS. THE CHILDREN'S INN HAS MULTIPLE INDOOR PLAY SPACES, A COMPUTER ROOM, AN EDUCATION CENTER, AND AN ART ROOM TO PLAY, LEARN, MAKE FRIENDS AND PARTICIPATE IN THE INN'S WIDE ARRAY OF RECREATIONAL, EDUCATIONAL AND THERAPEUTIC ACTIVITIES.THE INN'S EXERCISE ROOM PROVIDES THE CHANCE TO WORK OUT ALONE OR AS PART OF INSTRUCTOR-LED GROUP EXERCISE CLASSES. A REFLECTION SPACE PROVIDES FAMILIES WITH A QUIET ROOM TO PRAY OR ENGAGE IN SPIRITUAL ACTIVITIES. WHEN THE WEATHER ALLOWS, THE INN'S LARGE PLAYGROUND IS THE PERFECT PLACE FOR CHILDREN TO MEET OTHER CHILDREN, WHILE THE SPORTS COURT PROVIDES THE OPPORTUNITY TO PRACTICE A VARIETY OF SPORTS. COMMUNITY BIKES, TRIKES, SCOOTERS AND OTHER EQUIPMENT ARE AVAILABLE, AND WALKING PATHS ALLOW FAMILIES TO STROLL. MEMBERS OF THE CHILDREN'S INN STAFF ARE ONSITE AROUND THE CLOCK FOR ASSISTANCE. MANY SPEAK MULTIPLE LANGUAGES, AND A FREE ON-CALL INTERPRETATION SERVICE IS AVAILABLE TO AID COMMUNICATION. THE INN'S WELCOMING, PHYSICAL SPACE AND ITS MANY FAMILY-CENTERED ACTIVITIES MAKE IT EASY FOR FAMILIES TO GET TO KNOW ONE ANOTHER AND FORM DEEP CONNECTIONS THAT LEAD TO LASTING, SUPPORTIVE FRIENDSHIPS REGARDLESS OF AGE OR BACKGROUND.IN JUNE 2018, THE INN LAUNCHED ITS MULTIYEAR STRATEGIC PLAN TITLED, "#INN2025." THE PLAN'S THREE MAIN GOALS ARE:- TO IMPROVE OUR FACILITY TO BETTER SERVE FAMILIES - TO ENHANCE OUR ABILITY TO SUPPORT FAMILIES AND NIH'S RESEARCH STUDIES, AND - TO DIVERSIFY AND STRENGTHEN OUR FISCAL SUSTAINABILITY. DURING FY20, A MASTER PLAN FOR RENOVATIONS WAS COMPLETED AND PRESENTED TO THE INN'S BOARD OF DIRECTORS. IN THE SPRING, THE INN SELECTED AN OWNER'S REPRESENTATIVE FIRM TO OVERSEE THE IMPLEMENTATION OF THE MASTER PLAN. THE INN'S HOUSING PLANS FOR THE NEAR FUTURE ALSO INCLUDE CREATING LODGING ON THE NIH CAMPUS TO MEET OUR YOUNG ADULT POPULATION'S UNIQUE NEEDS. THE INN IS IN THE DESIGN PHASE OF RENOVATIONS OF A BRICK DUPLEX LOCATED ACROSS FROM ITS MAIN BUILDING. NIH GRANTED THE INN PERMISSION TO RENOVATE THE DUPLEX AND TURN IT INTO ADDITIONAL PATIENT HOUSING. WHEN COMPLETED IN 2023, THE NEWLY RENOVATED BUILDING WILL COMPRISE SIX PRIVATE BEDROOMS, A SHARED KITCHEN AND SHARED LIVING SPACE GEARED TOWARD YOUNG ADULTS.DURING THE YEAR, 407 NIH PEDIATRIC, TEEN AND YOUNG ADULT PATIENTS AND THEIR FAMILIES VISITED THE INN AND STAYED FOR A TOTAL OF 8,510 OVERNIGHT STAYS. DUE TO THE COVID-19 PANDEMIC, THIS IS LOWER THAN OUR TYPICAL YEAR WHEN WE SERVE MORE THAN 1,500 FAMILIES. THE HOUSING COSTS TO SUPPORT THESE FAMILIES AMOUNTED TO $3,012,174. THE INN RECEIVED ADDITIONAL IN-KIND SUPPORT TOTALING $2,382,846 THROUGH A PARTNERSHIP WITH THE NIH, CORPORATE SPONSORSHIPS, AND INDIVIDUAL DONATIONS. THE INN IS ALSO SUPPORTED BY A DEDICATED GROUP OF VOLUNTEERS WHOSE 102 HOURS OF SERVICE HAS AN ESTIMATED VALUE OF $ 2,897. THE TOTAL MANAGED EFFORT OF HOUSING SERVICES WAS $5,397,917.ON MARCH 23, 2020, TO REDUCE THE RISK OF TRANSMISSION OF COVID-19 AND ENHANCE STAFF SAFETY, THE NIH SHIFTED TO MISSION-CRITICAL FUNCTIONS. AS A RESULT, ONLY RESEARCH PARTICIPANTS IN NIH CLINICAL PROTOCOLS THAT WERE NON-ELECTIVE WERE ABLE TO CONTINUE THEIR TREATMENTS AND STAYS AT THE INN. THIS FOLLOWED THE MARCH 13 GUIDANCE TO ALL ELIGIBLE NIH STAFF TO TELEWORK TO THE MAXIMUM EXTENT POSSIBLE.TO FURTHER THE HEALTH AND SAFETY OF ALL INN FAMILIES, STAFF AND VOLUNTEERS, THE INN CHANGED HOW SUPPORT WAS PROVIDED. THESE CHANGES INCLUDE:- MANDATORY MASK USAGE, SOCIAL DISTANCING AND HEALTH SCREENING.- LIMITED ONSITE VOLUNTEERS AND VISITORS ALLOWED BASED ON ORGANIZATIONAL NEEDS.- ONLY MISSION-CRITICAL STAFF ARE ONSITE WHILE OTHERS WORK FROM HOME.- TRIPS TO THE GROCERY STORES ARE SUSPENDED - INSTEAD, INN STAFF COORDINATE GROCERY DELIVERIES FOR FAMILIES. - TO REPLACE THE MEALS DONATED TO INN RESIDENTS WEEKLY BY COMMUNITY GROUPS, THE INN NOW PURCHASES AND COORDINATES THE DELIVERY OF INDIVIDUALLY PACKAGED MEALS DAILY.- IF FAMILIES CHOOSE TO COOK IN ONE OF THE KITCHENS, THEY MUST RESERVE A TIME TO PRACTICE SAFE DISTANCING.- ONLINE ACTIVITIES HAVE REPLACED OFF-SITE FIELD TRIPS AND GROUP ACTIVITIES. IN THE SPRING SOME SOCIALLY DISTANCED OFFSITE ACTIVITIES BEGAN ALLOWING FAMILIES OPPORTUNITIES TO PARTICIPATE IN LIMITED IN-PERSON ACTIVITIES. THE INN ALSO HOLDS OUTDOOR ACTIVITIES THAT MAKE PHYSICAL DISTANCING EASIER, SUCH AS MOVIE NIGHTS ON THE PLAYGROUND, PICNICS AND CAMPOUTS.- THE INN CONTINUES TO WORK CLOSELY WITH NIH EPIDEMIOLOGISTS TO ADJUST PROCEDURES AS NEEDED. 2309678 31191 RESIDENT SERVICES:THE CHILDREN'S INN AT NIH WAS FOUNDED 30 YEARS AGO TO PROVIDE A COMFORTABLE AND NURTURING "PLACE LIKE HOME" FREE OF CHARGE TO CHILDREN AND THEIR FAMILIES PARTICIPATING IN CLINICAL RESEARCH STUDIES AT THE NATIONAL INSTITUTES OF HEALTH (NIH). FAMILIES WHO STAY AT THE INN HAVE PEDIATRIC, TEEN AND YOUNG ADULT PATIENTS WITH RARE, UNDIAGNOSED, OR LIFE-THREATENING DISEASES THAT CANNOT BE SUCCESSFULLY TREATED OR CURED OUTSIDE OF CLINICAL RESEARCH STUDIES. FOR MANY, IT IS THEIR BEST HOPE FOR A DIAGNOSIS AND TREATMENT. IN ADDITION TO PROVIDING FREE LODGING FOR THE ENTIRE FAMILY, OUR GOALS ARE TO MAKE CHILDHOOD POSSIBLE, RELIEVE THE BURDEN OF ILLNESS ON FAMILIES AND HELP ADVANCE NIH CLINICAL RESEARCH. THE INN'S FAMILY PROGRAMS TEAM IS PRIMARILY RESPONSIBLE FOR DEVELOPING AND IMPLEMENTING PROGRAMS THAT MEET THE THERAPEUTIC NEEDS OF FAMILIES. KEEPING FAMILIES TOGETHER IS CRUCIAL FOR THEIR HEALTH AND WELL-BEING, ESPECIALLY WHEN FACED WITH A CHILD'S RARE AND SERIOUS ILLNESS. THE INN'S ENVIRONMENT IS DESIGNED TO SUPPORT FAMILY LIFE AND MEET EVERY DAY NEEDS SUCH AS COOKING A CHILD'S FAVORITE MEAL, SPENDING QUALITY TIME TOGETHER OUTSIDE OF THE HOSPITAL, AND PARTICIPATING IN ACTIVITIES. OUR FAMILIES LOOK FORWARD TO THE MANY FREE RECREATIONAL, EDUCATIONAL, AND THERAPEUTIC ACTIVITIES PROVIDED. THESE ACTIVITIES NOT ONLY PROVIDE ENTERTAINMENT BUT ALSO HELP FOSTER LASTING RELATIONSHIPS WITH OTHER FAMILIES, CREATING THE INN'S UNIQUE NURTURING AND SUPPORTIVE COMMUNITY.THE INN'S EDUCATIONAL PROGRAMS SUPPORT THE PATIENT AND THEIR SIBLINGS WITH SCHOOLWORK AND GROUP ACTIVITIES. CHILDREN MAY BE MATCHED WITH INDIVIDUAL TUTORS BASED ON THEIR EDUCATIONAL NEEDS AND LANGUAGE PREFERENCES. EDUCATIONAL ACTIVITIES INCLUDE LEARNING ABOUT TECHNOLOGY OR MEETING CHILDREN'S BOOK AUTHORS WHO LEAD LIVELY DISCUSSIONS ABOUT THE FUN OF READING AND WRITING STORIES. SPECIAL ACTIVITIES FOR PATIENTS AND THEIR SIBLINGS INCLUDE:- CAMP INNCREDIBLE ALLOWS CHILDREN TO PARTICIPATE IN TYPICAL CAMP ACTIVITIES DURING THE SUMMER MONTHS. RECENTLY, THE INN ADDED CAMP ACTIVITIES FOR TEENS, AS WELL AS ACTIVITIES DURING THE SPRING AND WINTER BREAKS. - SIBLING DAY PROVIDES THE CHANCE FOR SIBLINGS TO LEARN ABOUT THE MEDICAL PROCEDURES THEIR SICK SIBLING MAY UNDERGO AND RECOGNIZES THEM AS "SUPER SIBS" FOR THEIR MANY IMPORTANT CONTRIBUTIONS TO THEIR FAMILIES.THE CHILDREN'S INN ALSO PROVIDES SUPPORT AND ACTIVITIES DESIGNED FOR OUR TEEN AND YOUNG ADULT RESIDENTS. THE TEEN AND YOUNG ADULT LOUNGE IS DESIGNED FOR CHILDREN AGES 13 AND OLDER TO HAVE THEIR OWN SPACE TO PLAY BOARD AND VIDEO GAMES, READ, STUDY, PARTICIPATE IN ORGANIZED GROUP DISCUSSIONS OR GATHER BEFORE OUTINGS TO LOCAL RESTAURANTS, LIVE CONCERTS AND SHOWS. THE CHANCE TO GET TO KNOW, SOCIALIZE AND MAKE FRIENDS WITH PEERS OF THE SAME AGE FACED WITH CHRONIC OR LIFE-THREATENING DISEASES IS WELCOMED BY OUR YOUNG PEOPLE WHO TYPICALLY HAVE NEVER HAD THE CHANCE TO MEET OTHER YOUNG ADULTS FACED WITH SIMILAR, RARE HEALTH CHALLENGES. ADDITONALLY, THE INN PROVIDES TWO DAYS OF ACTIVITIES JUST FOR OUR TEEN RESIDENTS WHO PARTICIPATE IN THE "TEEN RETREAT".THE CHILDREN'S INN IS EXPANDING PROGRAMS AND ACTIVITIES FOR OUR YOUNG ADULTS WHO OFTEN HAVE NOT HAD THE CHANCE TO DEVELOP INDEPENDENT LIVING SKILLS TO THE SAME DEGREE AS THEIR HEALTHY PEERS. BY 2022, WE PLAN TO DEDICATE A STAFF MEMBER TO SUPPORT OUR YOUNG ADULT RESIDENTS AND THEIR UNIQUE NEEDS. OUR STAFF IS WORKING CLOSELY WITH OUR PARTNERS AT THE NIH TO COORDINATE THIS NEW POSITION. IN 2023, THE INN ALSO PLANS TO OPEN A SECOND BUILDING LOCATED DIRECTLY ACROSS THE STREET, WHICH WILL PROVIDE HOUSING DESIGNED FOR OUR YOUNG ADULTS, AGES 18-30. CAREGIVER GATHERINGS LED BY THE CLINICAL CENTER'S NON-DENOMINATIONAL CHAPLAIN PROVIDE PARENTS, GRANDPARENTS AND OTHERS WITH THE CHANCE TO ENGAGE IN DISCUSSIONS, SING SONGS TOGETHER AND EXPLORE THEIR SPIRITUALITY. MANY CAREGIVERS REPORT THEY FIND SOLACE AND INSPIRATION IN CONVERSATIONS WITH THE CHAPLAIN AND OTHER FAMILIES. THE CHANCE TO EXPRESS AND DISCUSS THE DIFFICULTIES OF THEIR SITUATION STRENGTHENS FAMILIES' BONDS AND THE INN'S NURTURING COMMUNITY. EXERCISE IS ANOTHER MEANINGFUL WAY FOR CAREGIVERS TO PRACTICE SELF-CARE. THE INN'S EXERCISE ROOM PROVIDES WEIGHTS AND CARDIAC EQUIPMENT FOR AN EASY WAY TO STAY IN SHAPE AND DE-STRESS. IN ADDITION, THE INN OFFERS FREE FITNESS CLASSES TAUGHT BY CERTIFIED TRAINERS. THE INN'S STAFF ALSO PROVIDES A WIDE RANGE OF RECREATIONAL ACTIVITIES WHICH INCLUDE FIELD TRIPS TO TOURIST ATTRACTIONS, LOCAL MUSEUMS AND ART STUDIOS, SPORTING EVENTS, RESTAURANTS, CONCERTS, MUSICALS AND OTHER FAMILY-FRIENDLY PERFORMANCES. ACTIVITIES FOR THE ENTIRE FAMILY INCLUDE: - "CHRISTMAS IN JULY," WHICH IS A SPECIAL SUMMERTIME VISIT FROM SANTA WHO BRINGS GIFTS AND SURPRIZES FOR THE WHOLE FAMILY. -HOLIDAY DECORATIONS AND VISITS FROM SANTA AND THE ELVES TRANSFORM THE INN INTO A MAGICAL PLACE DURING THE MONTH OF DECEMBER. EVERY CHILD AND FAMILY MEMBER CAN WRITE SANTA A WISH LIST, AND SANTA AND HIS ELVES MAKE SURE WISHES ARE FILLED TO THE BEST EXTENT POSSIBLE. MEALS SERVED BY VOLUNTEERS OR INN STAFF PROVIDE FAMILIES THE CHANCE TO FOCUS ON THEIR CHILD AND THEIR HEALTH RATHER THAN COOK AFTER LONG DAYS OF TRAVEL OR MEDICAL APPOINTMENTS. TO SUPPORT FAMILIES, VOLUNTEERS AND COMMUNITY GROUPS SERVE BREAKFAST MOST DAYS AND DINNERS MOST NIGHTS OF THE WEEK, AS WELL AS SUNDAY BRUNCH. RECENTLY, THE INN BEGAN SERVING LUNCH TO FURTHER SUPPORT FAMILIES AND OFFER THEM AN ADDITIONAL MEAL FREE OF CHARGE. WE ALSO INCLUDE MEAL OPTIONS FOR VARIOUS DIETARY RESTRICTIONS AND MEET STRICT FOOD STANDARDS FOR OUR TRANSPLANT PATIENTS. THE EXPANDED OPTIONS INCLUDE GLUTEN-FREE, FAT-FREE AND DAIRY-FREE MEALS, AS WELL AS FRESH FRUIT AND VEGETABLES AND VEGETARIAN OPTIONS. SHARED MEALS BRING FAMILIES TOGETHER WHERE THEY CAN MEET ONE ANOTHER AND BOND. INTERNATIONALLY THEMED MEALS ORGANIZED BY OUR STAFF PROVIDE THE OPPORTUNITY FOR FAMILIES FROM DIFFERENT COUNTRIES AND CULTURES TO SHARE THEIR NATIONAL DISHES AND CELEBRATE THEIR CULTURES WITH OUR COMMUNITY OF RESIDENTS.FOR FAMILIES WISHING TO COOK, NON-PERISHABLE ITEMS FOR QUICK MEALS ARE PROVIDED FREE OF CHARGE IN OUR KITCHENS' COMMUNITY PANTRIES. THREE TIMES A WEEK, OUR TEAM ORGANIZES TRIPS TO THE GROCERY STORE AND GIVES OUT GROCERY GIFT CARDS TO FAMILIES. OUR KITCHENS ARE EQUIPPED WITH INDIVIDUAL REFRIGERATOR/FREEZERS AND PANTRY SPACE FOR EASY, HYGIENIC FOOD STORAGE. TO HELP NON-ENGLISH-SPEAKING FAMILIES, TUTORING IS AVAILABLE FREE OF CHARGE. MULTILINGUAL STAFF AND PHONE-ACCESSIBLE TRANSLATION SERVICES ARE ALWAYS AVAILABLE TO HELP FAMILIES COMMUNICATE. A GROUP OF DEDICATED VOLUNTEERS SUPPORTS THE INN'S RESIDENT SERVICES AND FAMILY PROGRAMS TEAMS BY MANAGING THE WELCOME DESK, CHECKING FAMILIES IN AND OUT OF THE INN, STOCKING THE KITCHENS, ORGANIZING IN-KIND DONATIONS AND OFFERING INFORMATION TO FAMILIES ABOUT LOCAL CULTURAL AND TOURIST ATTRACTIONS, PUBLIC TRANSPORTATION AND MORE. IN FY2021, THE INN OFFERED 429 OCCURRENCES OF RECREATIONAL, EDUCATIONAL AND THERAPEUTIC ACTIVITIES FOR CHILDREN, TEENS, YOUNG ADULTS AND THEIR CAREGIVERS. THE INN DEDICATED $2,309,679 OF ITS RESOURCES TO OFFERING FAMILY SUPPORT SERVICES AND RECEIVED ADDITIONAL IN-KIND SERVICES VALUED AT $527,954 FOR OUR FAMILY SUPPORT PROGRAMS AND OUTINGS. VOLUNTEER SUPPORT FOR RESIDENT SERVICES AND FAMILY PROGRAMS TOTALED 1,276 HOURS OR THE EQUIVALENT OF .6 STAFF MEMBERS, VALUED AT $36,417. THE TOTAL MANAGED EFFORT OF OUR FAMILY SUPPORT SERVICES IS $2,874,050.ON MARCH 23, 2020, THE NIH SHIFTED TO MISSION-CRITICAL FUNCTIONS TO REDUCE THE RISK OF TRANSMISSION OF COVID-19 AND ENHANCE PATIENT AND STAFF SAFETY. AS A RESULT, ONLY RESEARCH PARTICIPANTS IN NIH CLINICAL PROTOCOLS THAT WERE NON-ELECTIVE WERE ABLE TO CONTINUE THEIR TREATMENTS AND STAYS AT THE INN. THIS FOLLOWED THE MARCH 13 GUIDANCE THAT ALL ELIGIBLE NIH STAFF TELEWORK TO THE MAXIMUM EXTENT POSSIBLE.TO HELP PROTECT THE HEALTH AND SAFETY OF ALL INN FAMILIES, STAFF AND VOLUNTEERS, THE INN AND ITS RESIDENT SERVICES AND FAMILY PROGRAMS TEAMS ADJUSTED THE WAY THEY SUPPORT FAMILIES. THESE CHANGES INCLUDE:- MANDATORY MASK USAGE, PHYSICAL DISTANCING AND HEALTH SCREENING.- SUSPENSION OF ALL ONSITE VOLUNTEERS AND VISITORS.- ONLY MISSION-CRITICAL STAFF ARE ONSITE WHILE OTHERS TELEWORK.- SUSPENSION OF GROCERY STORE TRIPS IN FAVOR OF GROCERY DELIVERIES ORGANIZED BY STAFF AND VOLUNTEERS. - REPLACEMENT OF VOLUNTEER-PROVIDED COMMUNITY MEALS WITH RESTAURANT-PROVIDED, INDIVIDUALLY PACKAGED MEALS SERVED BY STAFF.- RESERVATION REQUIREMENT FOR KITCHEN USE TO ENFORCE PHYSICAL DISTANCING. 5321852 1 1 0 0 0 0 0 0 0 1 1 0 0 0 1 0 1 0 0 0 0 0 0 1 1 0 0 0 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 1 37 0 1 50 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 21 21 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 AL AR CA FL GA HI IL KS KY MA MD MI MN MS NC NH NJ NM NY OK OR PA RI SC TN UT VA WV WI ND X X JEAN BUERGLER 3014965672 7 WEST DR BETHESDA MD 20814 SUSAN PENFIELD CHAIR 4.00 X X 0 0 0 PORTER SHIFFLETT VICE CHAIR 2.00 X X 0 0 0 BRIAN KELLY SECRETARY 2.00 X X 0 0 0 MATT BELL PHD TREASURER 2.00 X X 0 0 0 BETH MALONEY DIRECTOR 1.00 X 0 0 0 LOIS ALPERSTEIN DIRECTOR 1.00 X 0 0 0 DIANA ARAOZ-FRASER DIRECTOR 1.00 X 0 0 0 TIMOTHY J ATKIN DIRECTOR 1.00 X 0 0 0 DIANE BAKER DIRECTOR (TILL 10/15/2020) 1.00 X 0 0 0 LATESE BRIGGS DIRECTOR 1.00 X 0 0 0 WILLIAM L DAHUT PHD DIRECTOR 1.00 X 0 0 0 PRACHEE DEVADAS DIRECTOR 1.00 X 0 0 0 ERIN DARLING JD DIRECTOR 1.00 X 0 0 0 CHRISTINE GRADY MSN PHD DIRECTOR 1.00 X 0 0 0 BETH MEAGHER DIRECTOR 1.00 X 0 0 0 KAMAL NARANG DIRECTOR 1.00 X 0 0 0 JILL OLMSTEAD DIRECTOR 1.00 X 0 0 0 KRISTINE RIBAS DIRECTOR 1.00 X 0 0 0 RYAN A RIEL DIRECTOR 1.00 X 0 0 0 CONSTANTINE STRATAKIS MD DIRECTOR (TILL 10/15/2020) 1.00 X 0 0 0 SCOTT VOGEL DIRECTOR 1.00 X 0 0 0 DANIEL L WEAVER CPA DIRECTOR 1.00 X 0 0 0 LIZ WURSTER DIRECTOR 1.00 X 0 0 0 JENNIFER LUCCA CHIEF EXECUTIVE OFFICER 40.00 X 258790 0 50083 JEAN BUERGLER SR. DIRECTOR OF FINANCE 40.00 X 137786 0 21936 FERN STONE CHIEF DEVELOPMENT & COMMUNICATIONS 40.00 X 225525 0 33186 TAMMY PINSON COO 40.00 X 161510 0 45558 CATHY MORALES CHIEF PROGRAM & SERVICES OFFICER 40.00 X 137071 0 14273 LIZA COLE DIR, LEADERSHIP & LEGACY GIVING 40.00 X 116521 0 39293 RICHARD SAUNDERS SR. DIR, INFORMATION TECHNOLOGY 40.00 X 120913 0 13070 LAURA KING DIRECTOR OF COMMUNITY ENGAGEMENT 40.00 X 106790 0 29268 ANNE MANDEVILLE DIR, DEVELOPMENT OPS & STRATEGIC PARTNERSHIPS 40.00 X 105042 0 11606 1369948 0 258273 9 0 1 0 HITT CONTRACTING INC PO BOX 37762 BALTIMORE MD 21297 CONSTRUCTION SERVICES 1064740 CROTHALL HEALTHCARE 13028 COLLECTION CENTER DRIVE CHICAGO IL 60693 HOUSEKEEPING SERVICES 787104 CALLISONRTKL INC 901 SOUTH BOND ST BALTIMORE MD 21231 ARCHITECTURAL & CONSTRUCTION 304912 FUSE FUNDRAISING 12110 SUNSET HILLS ROAD STE 600 RESTON VA 20190 FUNDRAISING SERVICES 245596 WELLS FARGO BANK NA 550 SOUTH 4TH ST MINNEAPOLIS MN 55415 INVESTMENT ADVISOR 148658 8 51946 128925 893181 4411020 792304 5485072 PATIENT LODGING 900099 734694 734694 734694 899033 899033 4766219 4229 1825950 0 2940269 4229 2944498 2944498 110125 128925 73971 36154 36154 OTHER REVENUE 900099 4495 4495 4495 10103946 734694 0 3884180 31191 31191 970680 268956 396509 305215 2470107 1477760 485396 506951 221933 134041 42468 45424 317709 181846 67288 68575 236794 122535 58947 55312 11840 11840 32400 32400 64800 64800 152663 152663 182207 70546 97199 14462 407818 127625 27025 253168 114659 44304 45527 24828 342593 115707 146266 80620 55570 54236 445 889 8411 4264 2080 2067 888663 853116 26660 8887 37830 10170 23418 4242 RESIDENT FAMILY PROGRAM 754322 754322 CLEANING 721793 704615 5726 11452 FACILITIES & EQUIP MAIN 251170 248825 782 1563 RESIDENT SUPPLIES & EXP 74642 74642 43860 43151 500 209 8393655 5321852 1623139 1448664 X 250664 102231 19957 128476 13457 12633 1830175 4985089 565463 214877 46656 128181 19504 14229 106230 99418 15048324 10557494 3506279 4490830 57111440 64308731 63199204 74253988 1095300 835035 9000 617402 660840 1721702 1495875 X 24572728 31010208 36904774 41747905 61477502 72758113 63199204 74253988 1710291 9570320 0 X X 0 1 X 1 0 X 5681551 5267008 5094027 6256363 5731328 28030277 2734859 2778247 2796161 2823175 2862113 13994555 8416410 8045255 7890188 9079538 8593441 42024832 42024832 1152163 1666624 3020976 1361082 899033 8099878 3777 196 526361 9049 4483 543866 50668576 3101870 0.82940 0.80680 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: OTHER INCOME - 2016 AMOUNT: $ 3,777. 2017 AMOUNT: $ 196. 2018 AMOUNT: $ 5,222. 2019 AMOUNT: $ 9,049. 2020 AMOUNT: $ 4,483. INSURANCE CLAIMS - 2018 AMOUNT: $ 521,139. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 32377872 194789 6445694 39018355 30854553 468814 1054505 32377872 28852173 186660 1850865 35145 30854553 26494725 928217 1452751 23520 28852173 22990935 1324137 2179653 26494725 0.75329 0.24671 0 0 10496730 7814480 2682250 3579443 2703696 875747 972151 39318 932833 4490830 PAYROLL PROTECTION PROGRAM LOAN 660840 660840 22703943 9570320 3108369 12678689 10025254 152663 -73971 78692 10103946 11423332 3108369 73971 3182340 8240992 152663 152663 8393655 PART V, LINE 4: THE INN HOLDS VARIOUS PERMANENTLY RESTRICTED ENDOWMENTS, WHICH ARE DESCRIBED AS FOLLOWS: SANOFI AVENTIS LEGACY FUND - THIS FUND WAS ESTABLISHED IN 2008 TO SUPPORT THE NEEDS OF CHILDREN AND FAMILIES RECEIVING MEDICAL CARE AT THE NIH. THE MERCK COMPANY FOUNDATION FUND - THIS FUND WAS ESTABLISHED IN 1996 TO PROVIDE SUPPORT FOR FUTURE OPERATING EXPENSES OF THE INN. THE WEINBERG FOUNDATION FUND - THIS FUND WAS ESTABLISHED IN 1993 THROUGH RESTRICTED CONTRIBUTIONS FROM DONORS TO SUBSIDIZE VARIOUS PROGRAMS AND SERVICES FOR TEMPORARY RESIDENTS AND VISITORS OF THE INN. THE JOYCE A. JENKINS ENDOWMENT FUND - THIS FUND WAS ESTABLISHED IN 2006 TO SUPPORT THE NEEDS OF CHILDREN AND THEIR FAMILIES RECEIVING MEDICAL CARE AT THE NIH. GENERAL ENDOWMENT FUND - THE PURPOSE OF THIS FUND IS TO PROVIDE INVESTMENT INCOME TO BE USED FOR OPERATING EXPENSES. ROBERT JAMES FITZGERALD ENDOWMENT FUND - THIS FUND WAS ESTABLISHED IN 2008 TO PROVIDE SUPPORT FOR FUTURE OPERATING EXPENSES OF THE INN. AFCEA ENDOWMENT FUND - THIS FUND WAS ESTABLISHED IN 2008 TO ENSURE THAT CHILDREN AND THEIR FAMILIES RECEIVE THE UTMOST CARE AND COMFORT DURING THEIR STAY AT THE INN. ROSE AND HAROLD KRAMER ENDOWMENT FUND - THIS FUND WAS ESTABLISHED IN 2007 TO RAISE FUNDS TO PROVIDE SERVICES TO CHILDREN AND/OR FOR RESEARCH PURPOSES. OTHER - USED FOR DESIGNATED PURPOSE OR, IF NO SPECIAL PURPOSE WAS SPECIFIED, FOR GENERAL OPERATING EXPENSES. PART XI, LINE 4B - OTHER ADJUSTMENTS: FUNDRAISING EVENT EXPENSES REPORTED IN PART VIII LINE 8 -73,971. PART XII, LINE 2D - OTHER ADJUSTMENTS: FUNDRAISING EVENT EXPENSES REPORTED IN PART VIII LINE 8 73,971. X X X X X X X 1 FUSE FUNDRAISING 12110 SUNSET HILLS RD STE 600 RESTON VA 20190 PLANNING/PROGRAM MGMT OF FUNDRAISING CAMPAIGNS & DIRECT MAIL 0 877810 224121 653689 877810 224121 653689 AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY 2021 GOLF 176625 116900 59725 1150 9553 9118 8720 2429 CHEF DINNER 62425 12025 50400 22500 20500 239050 128925 110125 1150 9553 31618 29220 2429 73970 36155 SCHEDULE G, PART I, LINE 2B, COLUMN (V) THE INN PAID MINDSET DIRECT PROFESSIONAL FUNDRAISING FEES IN THE AMOUNT OF $64,800. THIS IS IN ADDITION TO PRODUCTION EXPENSES THAT WERE ALSO PAID TO MINDSET DIRECT IN THE AMOUNT OF $159,321. 1 TUITION 13 14292 EMERGENCY ASSISTANCE TO RESIDENTS 17 16899 PART I, LINE 2: GENERALLY, THE INN PAYS EXPENSES DIRECTLY TO GOODS AND SERVICE PROVIDERS ON BEHALF OF THE RECIPIENTS, AND THEREFORE, DOES NOT NEED TO MONITOR THE USE OF GRANT FUNDS. IF A GRANT IS MADE DIRECTLY TO A RESIDENT OR FAMILY MEMBER, THE RECEIPIENT MUST PROVIDE PROOF OF PAYMENT FOR THE GOODS OR SERVICES FOR WHICH THE GRANT WAS INTENDED. X X X X X 0 0 0 0 0 0 0 1 0 JENNIFER LUCCA CHIEF EXECUTIVE OFFICER 228520 0 30000 0 270 0 22768 0 28547 0 310105 0 0 0 FERN STONE CHIEF DEVELOPMENT & COMMUNICATIONS 223239 0 0 0 2286 0 23419 0 10999 0 259943 0 0 0 TAMMY PINSON COO 159740 0 0 0 1770 0 17242 0 29547 0 208299 0 0 0 JEAN BUERGLER SR. DIRECTOR OF FINANCE 124630 0 0 0 13156 0 12988 0 10032 0 160806 0 0 0 LIZA COLE DIR, LEADERSHIP & LEGACY GIVING 116161 0 0 0 360 0 11977 0 28378 0 156876 0 0 0 CATHY MORALES CHIEF PROGRAM & SERVICES OFFICER 136297 0 0 0 774 0 14273 0 1118 0 152462 0 0 0 PART I, LINE 7 ALL BONUSES RECEIVED BY OFFICERS, KEY EMPLOYEES AND HIGHEST COMPENSATED EMPLOYEES LISTED IN FORM 990, PART VII WERE BASED ON AN APPRAISAL OF HIS/HER PERFORMANCE. X 17 655030 FMV X 108 23314 ESTIMATED X SUPPLIES 546 97500 ESTIMATE X RECUMBENT BIKE 1 8000 FMV X AUCTION ITEMS 4 4315 FMV X EVENT SUPPORT 11 2995 FMV X CLOSET ORGANIZERS 2 1150 FMV 0 1 0 PART I, COLUMN (B): REPORTING THE NUMBER OF CONTRIBUTIONS FORM 990, PART III, LINE 4B - LAUNCH OF ONLINE ACTIVITIES TO REPLACE IN-PERSON GROUP ACTIVITIES AND OFF-SITE TRIPS. IN LATE AUGUST, SOME PHYSICALLY DISTANCED ACTIVITIES RESUMED. THE INN ALSO HAS BEEN HOLDING OUTDOOR ACTIVITIES THAT MAKE PHYSICAL DISTANCING EASIER, SUCH AS MOVIE NIGHTS ON THE PLAYGROUND, PICNICS AND CAMPOUTS. INSTRUCTOR-LED EXERCISE CLASSES ARE ALSO PROVIDED THROUGH ONLINE PLATFORMS. - NIH EPIDEMIOLOGISTS WORK CLOSELY WITH CHILDREN'S INN STAFF TO ADJUST PROCEDURES AS NEEDED. FORM 990, PART VI, SECTION A, LINE 2 ONE OF THE TRUSTEES IS THE FATHER A OF BOARD MEMBER FORM 990, PART VI, SECTION B, LINE 11B THE INN HIRES AN INDEPENDENT ACCOUNTING FIRM TO PREPARE THE FEDERAL FORM 990. THE FEDERAL FORM 990 IS THEN REVIEWED BY THE AUDIT COMMITTEE. UPON APPROVAL, THE FEDERAL FORM 990 IS THEN DISTRIBUTED TO THE ENTIRE BOARD OF DIRECTORS PRIOR TO FILING WITH THE INTERNAL REVENUE SERVICE. FORM 990, PART VI, SECTION B, LINE 12C ALL STAFF, COMMITTEE MEMBERS AND BOARD MEMBERS ARE REQUIRED TO SIGN THE CONFLICT OF INTEREST DECLARATION WHEN THEY INITIALLY BECOME A MEMBER OF THE INN'S TEAM AND THEN ANNUALLY, THEREAFTER. THE CHIEF OPERATING OFFICER MONITORS STAFF. COMMITTEE AND BOARD MEMBERS ARE MONITORED BY THE SPECIAL ASSISTANT TO THE CEO. COMPLIANCE IS ENFORCED BY THE CHAIR OF THE AUDIT COMMITTEE. A BOARD MEMBER WITH A DUAL INTEREST IN A PROPOSED TRANSACTION SHALL BE EXCLUDED FROM ANY DISCUSSION OR VOTE REGARDING THE MATTER EXCEPT WHEN POINTS OF CLARIFICATION ARE NEEDED. FORM 990, PART VI, SECTION B, LINE 15A JENNIE LUCCA, CEO, WAS HIRED EFFECTIVE 1/1/2015 FOLLOWING THE UNANIMOUS APPROVAL BY THE BOARD. AN AUTOMATICALLY RENEWING CONTRACT IS IN PLACE, AND THE INCREASE AND BONUS AWARDED WERE CONSISTENT WITH THE TERMS OF THE CONTRACT, INCLUDING THE USE OF COMPARABILITY DATA, REVIEW AND APPROVAL BY THE BOARD (INDEPENDENT PERSONS) AND CONTEMPORANEOUS SUBSTANTIATION OF THE DELIBERATION AND DECISION. FORM 990, PART VI, SECTION C, LINE 19 THE COMPLETE FINANCIAL STATEMENTS, GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY, AND THE FORM 1023 ARE AVAILABLE IN OUR OFFICES AND WILL BE MADE AVAILABLE TO ANYONE REQUESTING COPIES. BASIC INCOME, EXPENSE, FUNCTIONAL EXPENSE BREAKDOWN, CLASSIFICATION OF NET ASSETS, MOST RECENT FEDERAL FORM 990, MOST RECENT AUDITED FINANCIAL STATEMENTS, OUR CODE OF ETHICS AND CORE VALUES ARE AVAILABLE ON OUR WEBSITE. FORM 990, PART XII, LINE 2C: THE PROCESS FOR OVERSIGHT OF THE AUDIT HAS NOT CHANGED DURING THE TAX YEAR. SEVENWEST LLC 7 WEST DRIVE BETHESDA MD 20814 521638207 HOLDING DEED TO TIME-SHARE MD 0 10000 THE CHILDREN'S INN AT NIH INC