2025-07-31T14:59:48-05:00 2024-12-31 MILLER COOPER & CO LTD 1751 Lake Cook Road Suite 400 Deerfield IL 60015 990 2024-01-01 237286648 American Brain Tumor Association % KELLY SITKIN PRESIDENT & CEO AMER 7735778750 8550 W Bryn Mawr Ave Ste 550 Chicago IL 60631 Kelly Sitkin PRESIDENT AND CEO 7735778750 2025-06-30 true true Robin Bartlo P01315661 8472055000 2024 2025-03-06 01:10:19Z Kelly Sitkin President CEO 8550 W Bryn Mawr Ave Ste 550 Chicago IL 60631 8160185 false X WWW.ABTA.ORG X 1973 IL SEE ATTACHMENT 1 10 10 42 2224 0 7773291 6320311 0 0 97709 303898 210509 171994 8081509 6796203 1678611 1791922 0 0 3811691 4105785 0 0 540327 1976449 1935133 7466751 7832840 614758 -1036637 10672619 9844227 1760969 1831526 8911650 8012701 X MISSION STATEMENT THE MISSION OF THE AMERICAN BRAIN TUMOR ASSOCIATION (ABTA) IS TO ADVANCE THE UNDERSTANDING AND TREATMENT OF BRAIN TUMORS WITH THE GOALS OF IMPROVING, EXTENDING AND, ULTIMATELY, SAVING THE LIVES OF THOSE IMPACTED BY A BRAIN TUMOR DIAGNOSIS. WE DO THIS THROUGH INTERACTIONS AND ENGAGEMENT WITH BRAIN TUMOR PATIENTS AND THEIR FAMILIES; COLLABORATIONS WITH ALLIED GROUPS AND ORGANIZATIONS; AND THE FUNDING OF BRAIN TUMOR RESEARCH. IMPACT STATEMENT FOUNDED IN 1973, THE AMERICAN BRAIN TUMOR ASSOCIATION WAS THE FIRST NATIONAL NON-PROFIT ORGANIZATION COMMITTED TO FUNDING BRAIN TUMOR RESEARCH AND PROVIDING INFORMATION AND EDUCATION FOR ALL BRAIN TUMOR TYPES ACROSS ALL AGE GROUPS. false false 2807647 1283327 See "Program Service" attachment 2374035 341095 See "Program Service" attachment 861655 See "Program Service" attachment 256981 167500 6300318 true true false false false false false false false false true false false false true false true false false false false false false false true false false true true true false false false false false false false false false false false false false false false false false true 35 0 42 false false false false false false false false false false false X 10 10 false false true false false false false true true false false true true true true true true true false false AL AK AZ AR CA CO CT DE DC FL GA ID IL IN KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VA WA WV WI WY X X KELLY SITKIN PRESIDENT CEO 7735778750 8550 W BRYN MAWR AVE 550 CHICAGO IL 60631 Ralph DeVitto President & CEO 38.75 0.0 X 294823 0 6156 Kelly Sitkin CHIEF DEVELOPMENT OFFICER 38.75 0.0 X 212291 0 5434 Nicole Willmarth Chief Mission Officer 38.75 0.0 X 198094 0 5399 Phillip Samuels Senior Director of Finance 38.75 0.0 X 121442 0 3873 Debra Robins Dir. Corp. & Fdn. Relations 38.75 0.0 X 113425 0 2285 RAM SUBRAMANIAN CHAIR 1.0 0.0 X X 0 0 0 JAMES REILLY IMMEDIATE PAST CHAIR 1.0 0.0 X X 0 0 0 BOB KRUCHTEN VICE CHAIR 1.0 0.0 X X 0 0 0 MINDEE J PLUGUES SECRETARY 1.0 0.0 X X 0 0 0 CHARLES K SCHAFER Director 1.0 0.0 X 0 0 0 LAURA AGUILAR DIRECTOR 1.0 0.0 X 0 0 0 Mitch Berger DIRECTOR 1.0 0.0 X 0 0 0 DANNY MONSON TREASURER 1.0 0.0 X X 0 0 0 Patti Tsai-Steiner DIRECTOR 1.0 0.0 X 0 0 0 SRISUPEN ANDERSEN Director 1.0 0.0 X 0 0 0 940075 0 23147 5 false true false 0 2292577 4027734 6320311 0 278009 278009 0 0 0 0 0 625985 0 600096 0 25889 0 25889 25889 914413 2292577 763886 150527 150527 0 0 0 0 0 0 OTHER INCOME 900099 21467 21467 21467 6796203 21467 454425 167500 167500 1624422 1624422 0 0 300979 255832 30098 15049 0 2903381 2117629 532085 253667 74715 55393 13051 6271 596653 442350 104221 50082 230057 170561 40186 19310 0 6893 6290 407 196 42440 7134 34498 808 0 0 42269 31338 7383 3548 259598 195031 43531 21036 346929 275380 2164 69385 332176 265380 37283 29513 326044 243827 50582 31635 0 0 186803 159896 18174 8733 0 65114 57010 5474 2630 0 0 74460 55203 13007 6250 30945 22942 5405 2598 RECRUITING EXPENSE 25752 19077 4515 2160 STATE REGISTRATION 20229 0 20229 0 STAFF DEVELOPMENT/EDUCATION 15660 12775 1949 936 OTHER 159821 115348 27953 16520 7832840 6300318 992195 540327 0 0 5489761 4470437 1067384 1024826 0 0 0 0 0 0 0 0 0 0 214216 218182 1233022 978045 315637 254977 3108929 3463856 0 0 0 0 0 0 476692 411949 10672619 9844227 289580 231562 731500 825000 68477 154559 0 0 0 0 0 0 0 0 0 0 671412 620405 1760969 1831526 X 7159024 5713335 1752626 2299366 8911650 8012701 10672619 9844227 X -1036637 137688 X false true true false X 4785762 4643146 6846889 7773291 6320311 30369399 0 0 4785762 4643146 6846889 7773291 6320311 30369399 607812 29761587 91296 131822 136321 195086 278009 832534 0 0 31201933 3541956 0.95384 0.95735 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 483646 326114 157532 420063 352375 67688 329313 299556 29757 254977 0 OPERATING LEASE LIABILITY CURR 112816 OPERATING LEASE LIABILITY LONG 507589 620405 6915461 137688 20000 157688 6757773 38430 38430 6796203 7814410 20000 20000 7794410 38430 38430 7832840 BRKTH FOR BRAIN 1999388 1490985 508403 679225 VLNTR FUNDRS EV 381885 338530 43355 63702 17 825717 463062 362655 20960 3206990 2292577 914413 763887 763887 150526 true Central Brain Tumor Registry of the US 625 SOUTH COUNTY LINE ROAD Hinsdale IL 60521 60000 RESEARCH GRANT Society of Neuro Oncology (SNO) PO Box 273296 Houston TX 772773296 35000 RESEARCH FELLOWSHIPS Brain Tumor Epidemiology Consortium (BTEC) 1211 Alabama Avenue Durham NC 27705 10000 RESEARCH GRANT AMERICAN ASSOCIATION FOR CANCER RESEARCH 615 CHESNUT STREET 17th Floor PHILADELPHIA PA 19106 8000 RESEARCH GRANT Cold Spring Harbor Laboratory 1 Bungtown Road Cold Spring Harbor NY 117242213 10000 RESEARCH GRANT Grants to U.S. Individuals - See Attachment 1228232 SCHEDULE I, PART IV - MONITORING USE OF GRANT FUNDS THE AMERICAN BRAIN TUMOR ASSOCIATION FUNDS RESEARCH THROUGH FIVE PRIMARY PROGRAMS: THE BASIC RESEARCH FELLOWSHIP PROGRAM, AWARDING TWO-YEAR, $100,000 GRANTS SUPPORTING EARLY-CAREER RESEARCHERS ENTERING THE FIELD OF BRAIN TUMOR RESEARCH; THE DISCOVERY GRANT PROGRAM, ONE-YEAR, $50,000 GRANTS FOR HIGH-RISK, HIGH-IMPACT PROJECTS DEEMED TO HAVE THE POTENTIAL TO CHANGE CURRENT DIAGNOSTIC OR TREATMENT PARADIGMS FOR ADULT AND PEDIATRIC BRAIN TUMOR CARE; THE ABTA RESEARCH COLLABORATION GRANTS, TWO-YEAR, $200,000 GRANTS TO SUPPORT MULTI-PRINCIPAL INVESTIGATOR, MULTI-INSTITUTIONAL PROJECTS THAT BRING DIVERSE EXPERTISE AND APPROACHES TOGETHER TO ADDRESS THE COMPLEXITY OF BRAIN TUMORS; THE JACK AND FAY NETCHIN MEDICAL STUDENT SUMMER FELLOWSHIP PROGRAM, $3,000 GRANTS FOR TEN-TO-TWELVE WEEK SUMMER LABORATORY EXPERIENCES; AND COLLABORATIVE INITIATIVES, THE JOINT FUNDING OF BASIC RESEARCH AND CLINICAL STUDIES WITH PROFESSIONAL AND OTHER BRAIN TUMOR RESEARCH FUNDING ORGANIZATIONS. WE ALSO SUPPORT PROFESSIONAL FORUMS AND OPPORTUNITIES FOR DATA GATHERING AND / OR INFORMATION EXCHANGES AMONG THE MEDICAL AND SCIENTIFIC COMMUNITIES. ABTA FELLOWSHIPS, DISCOVERY GRANTS, RESEARCH COLLABORATION GRANTS AND MEDICAL STUDENT GRANTS REQUIRE A WRITTEN REPORT OF OUTCOMES AT THE CONCLUSION OF THE FUNDING PERIOD. FINANCIAL REPORTS ARE ALSO REQUIRED AT THE CONCLUSION OF THE FUNDING PERIOD. ANY UNUSED FUNDS ARE REIMBURSED TO ABTA. THOSE COMPLETING THEIR GRANT PERIOD COME TO CHICAGO TO REPORT THEIR FINDINGS AT A NATIONAL CONFERENCE POSTER RECEPTION ATTENDED BY THE BOARD OF DIRECTORS, DONORS AND ABTA CONSTITUENTS. ATTENDEES AT THAT EVENT ASK QUESTONS AND INTERACT DIRECTLY WITH THE RESEARCHERS. X X X X X X false false false false false false false false false Ralph DeVitto President & CEO 294823 0 0 6156 0 300979 0 Kelly Sitkin CHIEF DEVELOPMENT OFFICER 212291 0 0 5434 0 217725 0 Nicole Willmarth Chief Mission Officer 198094 0 0 5399 0 203493 0 PART VI, SECTION B, LINE 11A - REVIEW OF 990 Prior to signing and submitting each year's Form 990 and accompanying attachments, all members of the ABTA Board of Directors review and if they wish, they comment on the document. If a Board meeting is scheduled within thirty days of the submission date: All Board members receive a copy of the Form 990 and attachments in electronic format. Board meeting materials are sent to Directors approximately a week before the meeting. Directors who are unable to attend the meeting will be invited to submit questions, concerns, or support for the document as drafted prior to the meeting. Such feedback is sent to the ABTA President & CEO, the Board Chair, or the Treasurer for inclusion in the discussion of the draft. At the Board meeting, the Chair entertains a motion to authorize the President & CEO to sign and submit the draft as presented or as amended through discussion. A majority of those present can approve the motion. If a Board meeting is not scheduled within thirty days of the submission date: All Board members will be sent a copy of the Form 990 and attachments electronically at least thirty days prior to the submission date. Directors are encouraged to ask questions about, raise issues about, and indicate support for the draft within ten days. Such feedback can be sent to the President & CEO, the Board Chair, or the Treasurer by email or other form of delivery as long as it is received within the ten days. If a Director does not respond within the ten-day period, it will be considered that the Director is satisfied with the document as drafted. Any issues raised by Directors within ten days after receiving the draft Form 990 will be reviewed and resolved by the President & CEO, the Treasurer, and a simple majority of the members of the Board's Finance Committee in collaboration, with assistance as needed from the tax preparer. A summary of the changes made to the draft Form 990 and the reasons for the changes will be emailed to all Directors ten days or more before scheduled submission. Should changes by Directors to the new draft of Form 990 be received within seven days, the Board Chair and Treasurer will together decide whether: (1) to proceed with submission and make warranted adjustments though the IRS amendment process; or (2) request an extension for filing and resolve remaining issues at the subsequent Board meeting. PART VI, SECTION B, LINE 12C - CONFLICT OF INTEREST POLICY ENFORCEMENT Each associate (defined as, ABTA directors, officers, volunteers and employees) shall sign an annual conflict of interest disclosure statement, which describes any existing or potential conflict of interest and affirms that such person: A. Has received a copy of the policy; B. Has read and understands the policy; and C. Has agreed to comply with the policy. Annual conflict of interest disclosure statements shall be filed on or before June 30 in the case of employees and on or before the date of the first meeting of the board in each fiscal year in the case of governance volunteers. It shall be the continuing responsibility of associates to scrutinize their transactions and outside business interests and relationships for potential conflicts and to immediately make any necessary disclosures. PART VI, SECTION B, LINE 15 - COMPENSATION REVIEW AND APPROVAL When hiring the President & CEO and thereafter at least every three years, the executive committee of the board will engage in a detailed review of his/her compensation package to ensure it fits current conditions. In addition, annually the executive committee of the board (with approval of the full board) conducts an evaluation of the President & CEO and makes adjustments to salary as they deem appropriate. As part of this process, the executive committee will review: Salary surveys Written employment contracts Information from 990's filed with the IRS Other information and input as needed sourced through an independent compensation consultant. The process and the documents reviewed each time a compensation package for the President & CEO will be recorded as the process is occurring. A report on the process will be made at the next meeting of the board of directors and entered into the minutes. PART VI, SEC C, LN 19 - AVAILABILITY OF GOV DOCS, POLICIES, & FIN'L STMTS As part of its accountability to its constituencies and to the public, ABTA is committed to disclosure of organizational information that is appropriate for public viewing. The following ABTA documents are available from ABTA for public inspection upon request: ABTA incorporation papers ABTA By-Laws IRS Form 1023 and supporting documents: application for 501(c)(3) Status IRS determination letter documenting that ABTA is an exempt Organization ABTA's annual 990's filed with the IRS (not including schedule B)-last three filings ABTA's annual report to the Illinois attorney general-last three years ABTA'S Conflict of interest policy for board and staff Requests received by mail, phone, fax, or e-mail will be honored by directing the interested party to the appropriate section on the ABTA website. Requests made in-person to view documents at ABTA's offices during ABTA's business hours will be honored that day up until the office closes for the day. Individuals or groups who request hard copies of the documents may be asked to pay, in advance, reasonable copying costs of $.20 per page and postage costs. Documents will be mailed within thirty days of the time payment for copying and postage costs are received. PART VI, SECTION A, LINE 4 - SIGNIFICANT CHANGES TO GOVERNING DOCS Revised By-Laws related to the number of board members and the extension of terms for the immediate past chair. ABTA is committed to disclosure of organizational information that is appropriate for public viewing. The ABTA by-laws are available for public inspection upon request.