2021-08-06T08:18:59-05:00 2020-12-31 521373858 DELEON & STANG CPAS AND ADVISORS 100 LAKEFOREST BLVD STE 650 GAITHERSBURG MD 208772609 990 2020-01-01 202897110 BLADDER CANCER ADVOCACY NETWORK INC BLAD 3012159099 4520 EAST-WEST HIGHWAY SUITE 610 BETHESDA MD 20814 ANDREA MADDOX-SMITH CEO 3012159099 2021-06-21 true ANDREA MADDOX-SMITH XXX-XX-XXXX CLINT LEHMAN CPA P00840525 3019489825 2021-08-04 2020 2022-09-23 18:48:47Z ANDREA MADDOX-SMITH 4520 EAST-WEST HIGHWAY SUITE 610 BETHESDA MD 20814 4801294 false X WWW.BCAN.ORG X 2005 MD TO INCREASE PUBLIC AWARENESS ABOUT BLADDER CANCER, TO ADVANCE BLADDER CANCER RESEARCH, AND TO PROVIDE EDUCATIONAL AND SUPPORT SERVICES FOR THE BLADDER CANCER COMMUNITY. 12 12 10 0 3374295 4644432 239890 111940 2806 22398 3077 22524 3620068 4801294 510577 752042 0 941702 1063950 0 219126 1253844 781132 2706123 2597124 913945 2204170 5730465 8195786 189633 427247 5540832 7768539 X TO INCREASE PUBLIC AWARENESS ABOUT BLADDER CANCER, TO ADVANCE BLADDER CANCER RESEARCH, AND TO PROVIDE EDUCATIONAL AND SUPPORT SERVICES FOR THE BLADDER CANCER COMMUNITY. false false 720575 655742 BCAN WORKS TO ADVANCE BLADDER CANCER RESEARCH. RECOGNIZING THE OVERWHELMING NEED FOR RESEARCH FUNDING, BCAN HAS ENGAGED A NEW GENERATION OF RESEARCHERS WITH THE YOUNG INVESTIGATOR RESEARCH AWARDS, AND IN 2020 GRANTED THREE AWARDS. IN ADDITION, BCAN SUPPORTS EXCEPTIONALLY NOVEL AND CREATIVE PROJECTS WITH GREAT POTENTIAL TO PRODUCE BREAKTHROUGHS IN THE MANAGEMENT OF BLADDER CANCER THROUGH ITS BLADDER CANCER RESEARCH INNOVATION AWARD, A 300,000 GRANT AWARDED OVER TWO-YEARS. ONE RESEARCH INNOVATION AWARD WAS GRANTED IN 2020. TO ENCOURAGE GREATER COLLABORATION AMONG BLADDER CANCER RESEARCHERS, BCAN LAUNCHED THE BLADDER CANCER GENOMICS CONSORTIUM (BCGC), A COLLABORATIVE EFFORT BETWEEN BCAN AND MAJOR MEDICAL CENTERS, WITH THE GOAL OF DEVELOPING AN ENRICHED UNDERSTANDING OF THE GENOMIC PROFILE OF BLADDER CANCER TO FACILITATE THE DEVELOPMENT OF NOVEL THERAPEUTICS. THE FIRST RESEARCH PROJECT IS UNDERWAY WHICH FOCUSES ON PATIENTS WITH METASTATIC DISEASE, AN AREA IN GREAT NEED OF IMPROVED TREATMENTS. BCAN HAS INVESTED 2.3 MILLION FROM PRIVATE PHILANTHROPY TO SUPPORT THE STUDY MANAGEMENT, SUPPORT SERVICES, AND GENOMIC SEQUENCING REPORTING - COSTS WHICH ARE OFTEN A BARRIER TO PERSONALIZED CARE FOR PATIENTS. WITH THE LAUNCH OF BCGC, BCAN HAS NOW INVESTED MORE THAN 5.3 MILLION IN BLADDER CANCER RESEARCH. 372986 96300 EDUCATION AND INFORMATION BCAN HOSTS A VARIETY OF EDUCATIONAL PROGRAMS AND PUBLISHES PRINTED MATERIALS TO EDUCATE THOSE COPING WITH A BLADDER CANCER DIAGNOSIS. BCAN'S COMPREHENSIVE PATIENT HANDBOOK, "BLADDER CANCER BASICS FOR THE NEWLY DIAGNOSED," HAS BEEN PROVIDED TO THOUSANDS OF SURVIVORS, CAREGIVERS, UROLOGY PRACTICES, AND CANCER CENTERS ACROSS THE UNITED STATES. THE PATIENT INSIGHT WEBINAR SERIES IS AN INTERACTIVE PROGRAM THAT ADDRESSES A VARIETY OF ISSUES. THE WEBINARS FEATURE TOP EXPERTS IN THEIR FIELD AND ADDRESS PATIENT CONCERNS IN AN EASY FORMAT. THE SURVIVOR 2 SURVIVOR PROGRAM CONNECTS NEWLY DIAGNOSED PATIENTS WITH SURVIVORS WITH A SIMILAR DIAGNOSIS. 230035 111940 THINK TANK THE BLADDER CANCER THINK TANK (THINK TANK) IS THE MEDICAL SYMPOSIUM DEDICATED SOLELY TO BLADDER CANCER. THROUGH COLLABORATION, UROLOGISTS, ONCOLOGISTS, SCIENTISTS, AND RESEARCHERS ARE PIONEERING NEW TREATMENT PROTOCOLS, INVESTIGATING GENETIC EXPRESSIONS, AND IMPROVING ACCESS TO QUALITY CARE FOR THOSE LIVING WITH THE DISEASE. THE JOHN QUALE TRAVEL FELLOWSHIP PROGRAM PROVIDES FINANCIAL SUPPORT TO HELP SELECT RESEARCHERS PAY TRAVEL EXPENSES RELATED TO THEIR ATTENDANCE AT THE ANNUAL BLADDER CANCER THINK TANK WHERE THEY HAVE THE OPPORTUNITY TO PRESENT THEIR RESEARCH, NETWORK WITH LEADING BLADDER CANCER RESEARCHERS AND GAIN INSIGHTS FROM THE THINK TANK. 441167 WALK TO END BLADDER CANCER THE WALK TO END BLADDER CANCER IS BCAN'S SIGNATURE AWARENESS EVENT AND PRIMARILY TAKES PLACE IN MAY. THE WALKS UNITE BLADDER CANCER SURVIVORS, LOVED ONES, AND THE MEDICAL COMMUNITY TO PROMOTE RECOGNITION AND UNDERSTANDING OF THE DISEASE. IN 2020, FOR BCAN'S VIRTUAL WALK TO END BLADDER CANCER, THERE WERE 2,143 PARTICIPANTS FROM 859 CITIES AND 46 STATES PLUS THE DISTRICT OF COLUMBIA. MORE THAN 6,700 VIEWED THE BROADCAST ON BCAN'S SOCIAL MEDIA CHANNELS. THE OVERALL AWARENESS INITIATIVE REACHED MORE THAN 4.3 MILLION THROUGH THE WEBSITE, MAILINGS, DIGITAL ADVERTISING, PROMOTION, AND OUTREACH. WALK FOR BLADDER CANCER THE EVENT INCLUDES A HEALTH WALK, SURVIVOR RECOGNITION, AND EDUCATION ABOUT THE SIGNS AND SYMPTOMS OF BLADDER CANCER. MANY WALK PARTICIPANTS ALSO RAISE ADDITIONAL FUNDS TO SUPPORT BCAN'S MISSION PROGRAMS. THE WALK FOR BLADDER CANCER IS TRADITIONALLY HELD IN MAY AS PART OF BLADDER CANCER AWARENESS MONTH. ADVOCACY AS THE VOICE FOR THE PATIENT COMMUNITY, BCAN PARTICIPATES IN COALITIONS AND WORKS WITH OTHER MEMBERSHIP GROUPS TO WEIGH IN ON POLICY ISSUES THAT DIRECTLY IMPACT THOSE LIVING WITH BLADDER CANCER. THROUGH ITS ANNUAL BLADDER CANCER, BCAN PROVIDES PARTICIPANTS WITH THE OPPORTUNITY TO BUILD CONNECTIONS, IDENTIFY BLADDER CANCER STATE AND NATIONAL LEGISLATIVE ISSUES OF IMPORTANCE, AND LEARN BEST PRACTICES FOR RAISING AWARENESS OF BLADDER CANCER WITHIN COMMUNITIES. THE ADVOCATES SUCCESSFULLY URGED LEGISLATORS TO SUPPORT A RESOLUTION RECOGNIZING NATIONAL BLADDER CANCER AWARENESS MONTH. EXPANDING CANCER RESEARCH IS A PRIORITY FOR BCAN. BCAN IS A MEMBER OF ONE VOICE AGAINST CANCER, A COALITION OF PATIENT ADVOCACY GROUPS THAT WORK TOGETHER TO SUPPORT GOVERNMENT FUNDED CANCER RESEARCH. DRUG SHORTAGES, ACCESS TO SCREENING, AND INSURANCE COVERAGE ISSUES ARE BCAN'S OTHER LEGISLATIVE PRIORITIES. 441167 1764763 true true false true false false false false false false true false false false true true true false false false false false false false false false false false true true false false false false false false false false false false false false false false false false false true 10 0 true 10 true false false false false false false false false false false false false X 12 12 false false false false false false false true true false false false true true true true true true true false MD IL CA CT FL MA MI MO NJ NY OH PA RI VA WA GA X X X ANDREA MADDOX-SMITH 3012159099 4520 EAST-WEST HIGHWAY SUITE 610 BETHESDA MD 20814 GERALD MCNAMARA CHAIRMAN 2.00 X X 0 0 0 ROBERT LEVIN DIRECTOR/TRE 2.00 X X 0 0 0 JARED SHER DIRECTOR/SEC 2.00 X X 0 0 0 DIANE ZIPURSKY QUALE CO-FOUNDER 2.00 X X 0 0 0 MARY GUSHEE DIRECTOR 1.00 X 0 0 0 JAMIE GILLESPIE DIRECTOR 1.00 X 0 0 0 BEVERLY JAMES DIRECTOR 1.00 X 0 0 0 CHERYL TAYLORE LEE DIRECTOR 1.00 X 0 0 0 SETH LERNER DIRECTOR 1.00 X 0 0 0 DAVID PULVER DIRECTOR 1.00 X 0 0 0 NEAL SHORE DIRECTOR 1.00 X 0 0 0 DAVID SHULMAN DIRECTOR 1.00 X 0 0 0 ANDREA MADDOX-SMITH CEO 40.00 X 260000 0 7800 MARK STORY DIR OF COMMU 40.00 X 128741 0 16674 STEPHANIE CHISOLM DIR. OF EDUC 40.00 X 112679 0 19519 ANITA PARKER DIR. OF DEVE 40.00 X 108977 0 19462 610397 63455 4 false true false 4644432 4644432 CONFERENCE INCOME 111940 111940 111940 22398 22398 OTHER REVENUE 900099 22524 22524 22524 4801294 134464 22398 752042 752042 260000 169727 46490 43783 657382 429135 117546 110701 79317 51776 14184 13357 67251 43901 12025 11325 36699 36699 123548 45172 78376 96276 41018 55126 132 108530 36360 72170 132637 37460 91972 3205 143123 93430 25592 24101 30286 8689 21586 11 23563 23563 6180 6180 6844 6844 MISCELLANEOUS 24741 17210 7531 STATE REGISTRATIONS 11669 896 10773 EQUIPMENT RENTAL & MAINT. 9246 9246 DUES AND MEMBERSHIP 8107 3250 3119 1738 19683 12030 7653 2597124 1764763 613235 219126 1288141 3273232 87274 720101 43655 44703 76623 36647 43276 39976 4254122 4103777 13997 13997 5730465 8195786 37051 26263 150000 150000 159500 2582 91484 189633 427247 X 4878548 7768539 662284 5540832 7768539 5730465 8195786 2204170 23537 X false true X true false X 2459875 2727002 3294248 3374295 4644432 16499852 2459875 2727002 3294248 3374295 4644432 16499852 3076976 13422876 403 11094 46483 2806 22398 83184 16583036 800654 0.80940 0.96380 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED false false false false false false false false false false SCHEDULE C, PART II-B, LINE 1 THE LOBBYIST COORDINATED THE MEETINGS AND MESSAGING FOR OUR ANNUAL HILL DAY TO SUPPORT BLADDER CANCER AWARENESS MONTH. HE LED A TRAINING FOR OUR PATIENT ADVOCATES WHO JOINED US FROM AROUND THE COUNTRY FOR THIS DAY ON THE HILL. 76623 36647 39976 39976 DEFERRED LEASE BENEFIT 91484 91484 X 4824831 23537 23537 4801294 4801294 2597124 2597124 2597124 SCHEDULE D, PAGE 3, PART X IN GENERAL, WHEN TAX RETURNS ARE FILED, IT IS HIGHLY CERTAIN THAT SOME POSITIONS TAKEN WOULD BE SUSTAINED UPON EXAMINATION BY THE TAXING AUTHORITIES, WHILE OTHERS ARE SUBJECT TO UNCERTAINTY ABOUT THE MERITS OF THE POSITION TAKEN OR THE AMOUNT OF THE POSITION THAT WOULD BE ULTIMATELY SUSTAINED. THE BENEFIT OF A TAX POSITION IS RECOGNIZED IN THE FINANCIAL STATEMENTS IN THE PERIOD DURING WHICH, BASED ON ALL AVAILABLE EVIDENCE, MANAGEMENT BELIEVES IT IS MORE LIKELY THAN NOT THAT THE POSITION WILL BE SUSTAINED UPON EXAMINATION, INCLUDING THE RESOLUTION OF APPEALS OR LITIGATION PROCESSES, IF ANY. TAX POSITIONS TAKEN ARE NOT OFFSET OR AGGREGATED WITH OTHER POSITIONS. TAX POSITIONS THAT MEET THE MORE-LIKELY- THAN-NOT RECOGNITION THRESHOLD ARE MEASURED AS THE LARGEST AMOUNT OF TAX BENEFIT THAT IS MORE THAN 50 PERCENT LIKELY OF BEING REALIZED UPON SETTLEMENT WITH THE APPLICABLE TAXING AUTHORITY. THE PORTION OF THE BENEFITS ASSOCIATED WITH TAX POSITIONS TAKEN THAT EXCEEDS THE AMOUNT MEASURED AS DESCRIBED ABOVE IS REFLECTED AS A LIABILITY FOR UNRECOGNIZED TAX BENEFITS IN THE ACCOMPANYING BALANCE SHEETS, ALONG WITH ANY ASSOCIATED INTEREST AND PENALTIES THAT WOULD BE PAYABLE TO THE TAXING AUTHORITIES UPON EXAMINATION. BCAN HAS DETERMINED THAT NO SUCH LIABILITIES WERE REQUIRED AT DECEMBER 31, 2020 AND 2019. AT DECEMBER 31, 2020, TAX YEARS 2017 THROUGH 2019 REMAIN SUBJECT TO EXAMINATION BY FEDERAL AND STATE TAXING JURISDICTIONS. BCAN HAS NOT BEEN CONTACTED BY ANY TAX AUTHORITY REGARDING ANY TAX ISSUE. false RESEARCH 6 752042 SCHEDULE I, PAGE 1, PART I, LINE 2 FOR A 24 MONTH GRANT PERIOD: THE RECIPIENTS ARE REQUIRED TO SUBMIT AN ANNUAL WRITTEN SUMMARIES TO BCAN DOCUMENTING THE PROGRESS MADE IN CONNECTION WITH THE GRANT. false false false false false false false false false ANDREA MADDOX-SMITH CEO 260000 7800 267800 FORM 990, PAGE 2, PART III, LINE 4A BCAN WORKS TO ADVANCE BLADDER CANCER RESEARCH. RECOGNIZING THE OVERWHELMING NEED FOR RESEARCH FUNDING, BCAN HAS ENGAGED A NEW GENERATION OF RESEARCHERS WITH THE YOUNG INVESTIGATOR RESEARCH AWARDS, AND IN 2020 GRANTED THREE AWARDS. IN ADDITION, BCAN SUPPORTS EXCEPTIONALLY NOVEL AND CREATIVE PROJECTS WITH GREAT POTENTIAL TO PRODUCE BREAKTHROUGHS IN THE MANAGEMENT OF BLADDER CANCER THROUGH ITS BLADDER CANCER RESEARCH INNOVATION AWARD, A 300,000 GRANT AWARDED OVER TWO-YEARS. ONE RESEARCH INNOVATION AWARD WAS GRANTED IN 2020. TO ENCOURAGE GREATER COLLABORATION AMONG BLADDER CANCER RESEARCHERS, BCAN LAUNCHED THE BLADDER CANCER GENOMICS CONSORTIUM (BCGC), A COLLABORATIVE EFFORT BETWEEN BCAN AND MAJOR MEDICAL CENTERS, WITH THE GOAL OF DEVELOPING AN ENRICHED UNDERSTANDING OF THE GENOMIC PROFILE OF BLADDER CANCER TO FACILITATE THE DEVELOPMENT OF NOVEL THERAPEUTICS. THE FIRST RESEARCH PROJECT IS UNDERWAY WHICH FOCUSES ON PATIENTS WITH METASTATIC DISEASE, AN AREA IN GREAT NEED OF IMPROVED TREATMENTS. BCAN HAS INVESTED 2.3 MILLION FROM PRIVATE PHILANTHROPY TO SUPPORT THE STUDY MANAGEMENT, SUPPORT SERVICES, AND GENOMIC SEQUENCING REPORTING - COSTS WHICH ARE OFTEN A BARRIER TO PERSONALIZED CARE FOR PATIENTS. WITH THE LAUNCH OF BCGC, BCAN HAS NOW INVESTED MORE THAN 5.3 MILLION IN BLADDER CANCER RESEARCH. FORM 990, PAGE 2, PART III, LINE 4C THINK TANK THE BLADDER CANCER THINK TANK (THINK TANK) IS THE MEDICAL SYMPOSIUM DEDICATED SOLELY TO BLADDER CANCER. THROUGH COLLABORATION, UROLOGISTS, ONCOLOGISTS, SCIENTISTS, AND RESEARCHERS ARE PIONEERING NEW TREATMENT PROTOCOLS, INVESTIGATING GENETIC EXPRESSIONS, AND IMPROVING ACCESS TO QUALITY CARE FOR THOSE LIVING WITH THE DISEASE. THE JOHN QUALE TRAVEL FELLOWSHIP PROGRAM PROVIDES FINANCIAL SUPPORT TO HELP SELECT RESEARCHERS PAY TRAVEL EXPENSES RELATED TO THEIR ATTENDANCE AT THE ANNUAL BLADDER CANCER THINK TANK WHERE THEY HAVE THE OPPORTUNITY TO PRESENT THEIR RESEARCH, NETWORK WITH LEADING BLADDER CANCER RESEARCHERS AND GAIN INSIGHTS FROM THE THINK TANK. FORM 990, PAGE 2, PART III, LINE 4D WALK TO END BLADDER CANCER THE WALK TO END BLADDER CANCER IS BCAN'S SIGNATURE AWARENESS EVENT AND PRIMARILY TAKES PLACE IN MAY. THE WALKS UNITE BLADDER CANCER SURVIVORS, LOVED ONES, AND THE MEDICAL COMMUNITY TO PROMOTE RECOGNITION AND UNDERSTANDING OF THE DISEASE. IN 2020, FOR BCAN'S VIRTUAL WALK TO END BLADDER CANCER, THERE WERE 2,143 PARTICIPANTS FROM 859 CITIES AND 46 STATES PLUS THE DISTRICT OF COLUMBIA. MORE THAN 6,700 VIEWED THE BROADCAST ON BCAN'S SOCIAL MEDIA CHANNELS. THE OVERALL AWARENESS INITIATIVE REACHED MORE THAN 4.3 MILLION THROUGH THE WEBSITE, MAILINGS, DIGITAL ADVERTISING, PROMOTION, AND OUTREACH. WALK FOR BLADDER CANCER THE EVENT INCLUDES A HEALTH WALK, SURVIVOR RECOGNITION, AND EDUCATION ABOUT THE SIGNS AND SYMPTOMS OF BLADDER CANCER. MANY WALK PARTICIPANTS ALSO RAISE ADDITIONAL FUNDS TO SUPPORT BCAN'S MISSION PROGRAMS. THE WALK FOR BLADDER CANCER IS TRADITIONALLY HELD IN MAY AS PART OF BLADDER CANCER AWARENESS MONTH. ADVOCACY AS THE VOICE FOR THE PATIENT COMMUNITY, BCAN PARTICIPATES IN COALITIONS AND WORKS WITH OTHER MEMBERSHIP GROUPS TO WEIGH IN ON POLICY ISSUES THAT DIRECTLY IMPACT THOSE LIVING WITH BLADDER CANCER. THROUGH ITS ANNUAL BLADDER CANCER, BCAN PROVIDES PARTICIPANTS WITH THE OPPORTUNITY TO BUILD CONNECTIONS, IDENTIFY BLADDER CANCER STATE AND NATIONAL LEGISLATIVE ISSUES OF IMPORTANCE, AND LEARN BEST PRACTICES FOR RAISING AWARENESS OF BLADDER CANCER WITHIN COMMUNITIES. THE ADVOCATES SUCCESSFULLY URGED LEGISLATORS TO SUPPORT A RESOLUTION RECOGNIZING NATIONAL BLADDER CANCER AWARENESS MONTH. EXPANDING CANCER RESEARCH IS A PRIORITY FOR BCAN. BCAN IS A MEMBER OF ONE VOICE AGAINST CANCER, A COALITION OF PATIENT ADVOCACY GROUPS THAT WORK TOGETHER TO SUPPORT GOVERNMENT FUNDED CANCER RESEARCH. DRUG SHORTAGES, ACCESS TO SCREENING, AND INSURANCE COVERAGE ISSUES ARE BCAN'S OTHER LEGISLATIVE PRIORITIES. FORM 990, PAGE 6, PART VI, LINE 11B PRIOR TO FILING, THE FORM 990 IS REVIEWED BY MANAGEMENT AND THE TREASURER OF THE BOARD OF DIRECTORS. FORM 990, PAGE 6, PART VI, LINE 12C ANNUALLY, EACH BOARD MEMBER, OFFICER, AND MEMBER OF A COMMITTEE WITH BOARD DELEGATED POWERS SIGNS A STATEMENT WHICH AFFIRMS THEY HAVE READ AND ARE COMPLYING WITH BCAN'S CONFLICT OF INTEREST POLICIES. FORM 990, PAGE 6, PART VI, LINE 15A TO DETERMINE APPROPRIATE COMPENSATION FOR BCAN'S EXECUTIVE DIRECTOR, THE OFFICERS ANNUALLY REVIEW THE MOST RECENTLY AVAILABLE NONPROFIT SALARY SURVEYS FOR THE DC METROPOLITAN AREA BEFORE DESIGNATING A SALARY RANGE BASED ON THE EXECUTIVE DIRECTORS SKILLS AND EXPERIENCE. THE PROPOSED COMPENSATION IS SUBJECT TO APPROVAL BY THE BOARD OF DIRECTORS. FORM 990, PAGE 6, PART VI, LINE 15B BCAN'S OFFICERS DO NOT DRAW ANY SALARY, NOR DO THEY GET REIMBURSED FOR TRAVEL TO BOARD MEETINGS. THE APPROPRIATE COMPENSATION FOR BCAN'S OTHER STAFF IS REVIEWED AT LEAST ANNUALLY BY BCAN'S EXECUTIVE DIRECTOR. SHE REVIEWS THE MOST RECENTLY AVAILABLE NONPROFIT SALARY SURVEYS FOR THE DC METROPOLITAN AREA TO DESIGNATE A SALARY RANGE BASED ON STAFF'S SKILLS AND EXPERIENCE. THE PROPOSED COMPENSATION IS SUBJECT TO APPROVAL BY THE BOARD OF DIRECTORS EACH YEAR WHEN THEY APPROVE THE ANNUAL BUDGET. FORM 990, PAGE 6, PART VI, LINE 17 VIRGINIA, WASHINGTON, GEORGIA FORM 990, PAGE 6, PART VI, LINE 19 BLADDER CANCER'S 990 AND DOCUMENTS ARE AVAILABLE TO THE PUBLIC BY REQUEST. THEY ALSO HAVE THE 990 AVAILABLE ON GUIDESTAR.ORG