2021-06-29T13:17:50-05:00 2020-12-31 561743537 LANGDON & COMPANY LLP 223 US HIGHWAY 70 EAST SUITE 100 GARNER NC 275294051 990 2020-01-01 208423943 CHORDOMA FOUNDATION CHOR 9198096779 PO BOX 2127 DURHAM NC 27702 JOSH SOMMER EXEC. DIR. & PRES. 9198096779 2021-06-29 true JOSH SOMMER XXX-XX-XXXX SUSAN DEAN P01281194 9196621001 2021-06-29 2020 2022-09-23 18:48:47Z JOSH SOMMER PO BOX 2127 DURHAM NC 27702 2495845 false X WWW.CHORDOMAFOUNDATION.ORG X 2007 NC THE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE. 14 13 11 65 0 5151081 2488341 2512 1775 -19166 5729 21231 0 5155658 2495845 2298076 1135565 0 873401 959325 36000 225 412693 729744 425570 3937221 2520685 1218437 -24840 7176227 6345825 2472648 1648064 4703579 4697761 THE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE. false false 1566934 1135565 (RESEARCH) TO ACCELERATE THE DEVELOPMENT OF BETTER TREATMENTS FOR CHORDOMA, THE CHORDOMA FOUNDATION INITIATED AND FUNDED A PORTFOLIO OF RESEARCH PROJECTS SPANNING BASIC, TRANSLATIONAL AND CLINICAL SCIENCE, AND PROVIDED A VARIETY OF VITAL SERVICES TO THE CHORDOMA RESEARCH COMMUNITY, INCLUDING BANKING CHORDOMA TUMOR TISSUE, DEVELOPING AND DISTRIBUTING PRECLINICAL MODELS OF CHORDOMA, PERFORMING PRECLINICAL DRUG SCREENING, AND FACILITATING PATIENT PARTICIPATION IN CLINICAL TRIALS. 325097 1775 (PATIENT SERVICES) TO IMPROVE THE LIVES OF INDIVIDUALS AFFECTED BY CHORDOMA, THE CHORDOMA FOUNDATION HELPED PATIENTS AND THEIR FAMILIES FIND ACCURATE INFORMATION ABOUT CHORDOMA AND TREATMENT OPTIONS, OVERCOME BARRIERS TO CARE, AND GET EMOTIONAL SUPPORT FROM PEERS. THIS INCLUDED DEVELOPING AND DISTRIBUTING EDUCATIONAL CONTENT, PROVIDING PATIENT NAVIGATION SERVICES, HOSTING EDUCATIONAL CONFERENCES, AND OPERATING AN ONLINE COMMUNITY FORUM FOR PATIENTS AND FAMILIES. 1892031 true true false false false false false false false false true false false false false true true false false false true true false false false false false true false true false false false false false true false false true false false false false false false false false true 10 0 true 11 true false false false false false false false false false false false false X 14 13 false false false false false false false true true false false true true true true true true true true false X X X JOSH SOMMER 9198096779 PO BOX 2127 DURHAM NC 27702 JOAN LEVY DIRECTOR OF 40.00 X 155812 0 19797 JOSH SOMMER EXEC. DIR. & 60.00 X X 123809 0 12584 KENNY BRIGHTON HEAD OF PHIL 40.00 X 130054 0 4878 PAUL FELDMAN DIRECTOR 2.00 X 0 0 0 STEVEN GOLICK DIRECTOR 2.00 X 0 0 0 CHRISTOPHER HEERY DIRECTOR 2.00 X 0 0 0 INGEMAR LANEVI TREASURER 2.00 X 0 0 0 JACOB LES DIRECTOR 2.00 X 0 0 0 SUSAN MAHONY DIRECTOR 2.00 X 0 0 0 STEVEN MANDEL DIRECTOR 2.00 X 0 0 0 SHREYASKUMAR PATEL DIRECTOR 2.00 X 0 0 0 DAVID SANDAK CHAIR 4.00 X 0 0 0 ANDREW SCHOELKOPF DIRECTOR 2.00 X 0 0 0 CHRISTY SHAFFER DIRECTOR 2.00 X 0 0 0 JULIE SONG SECRETARY 2.00 X 0 0 0 JOHN THERIEN DIRECTOR 2.00 X 0 0 0 409675 37259 3 false true false 120400 2367941 42744 2488341 COMMUNITY CONFERENCE 1775 1775 1775 5729 5729 2495845 7504 746756 746756 388809 388809 295753 245052 18086 32615 507688 230175 62575 214938 21243 13457 1014 6772 76628 44672 15399 16557 58013 34259 5176 18578 11889 11889 225 225 100848 69066 14559 17223 15328 4001 5271 6056 51223 12571 4450 34202 163867 61896 58103 43868 33210 19312 4104 9794 18243 6238 1201 10804 8119 8119 20769 13693 6015 1061 EVENTS 2074 2074 2520685 1892031 215961 412693 3531358 3630931 261026 1394808 2701029 1074179 11782 5384 20989 13820 61229 36480 16616 24749 633427 201954 7176227 6345825 135144 152372 2335214 1480313 2290 15379 2472648 1648064 X 2034561 2720084 2669018 1977677 4703579 4697761 7176227 6345825 X -24840 19022 X false true X true false X 4144568 2013420 2350245 5151081 2488341 16147655 4144568 2013420 2350245 5151081 2488341 16147655 5552893 10594762 439 3685 4180 1049 5729 15082 15044 4345 11150 2512 1775 34826 16197563 133859 0.65410 0.62820 X PART II, LINE 10 CONFERENCE REGISTRATION FEES 34,826 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 7540 5061 2479 53689 31419 22270 24749 X 2686859 171992 19022 191014 2495845 2495845 2692677 171992 171992 2520685 2520685 SCHEDULE D, PAGE 3, PART X THE FOUNDATION EVALUATES ANY UNCERTAIN TAX POSITIONS. ACCORDINGLY, THE FOUNDATIONS POLICY IS TO RECORD A LIABILITY FOR ANY TAX POSITION TAKEN THAT IS BENEFICIAL TO THE FOUNDATION, INCLUDING ANY RELATED INTEREST AND PENALTIES, WHEN IT IS MORE LIKELY THAN NOT THE POSITION OF MANAGEMENT WITH RESPECT TO A TRANSACTION OR CLASS OF TRANSACTIONS WILL BE OVERTURNED BY A TAXING AUTHORITY UPON EXAMINATION. MANAGEMENT DOES NOT BELIEVE ANY SIGNIFICANT INCOME TAX UNCERTAINTIES EXIST AS OF DECEMBER 31, 2020 OR 2019. SCHEDULE D, PAGE 4, PART XI, LINE 2D GAIN ON FOREIGN CURRENCY 19,022 true EUROPE GRANTS RESEARCH 45000 SOUTH ASIA GRANTS RESEARCH 343809 388809 388809 EUROPE RESEARCH 45000 WIRE TRANSFER SOUTH ASIA RESEARCH 343809 WIRE TRANSFER 1 1 false false false false false false SCHEDULE F, PAGE 1, PART I, LINE 2 MONITORING THE USE OF GRANT FUNDS OUTSIDE THE U.S. IS CARRIED OUT THROUGH REGULAR REPORTING BY GRANTEE ORGANIZATIONS. SCHEDULE F, PAGE 1, PART I, LINE 3 EUROPE 45,000 0 SOUTH ASIA 343,809 0 true CHILDREN'S HOSPITAL OF PHILADELPHIA CHOP 3615 CIVIC CENTER BOULEVARD PHILADELPHIA PA 19104 231352166 501C3 83074 RESEARCH GRANT START 4383 MEDICAL DRIVE SUITE 4021 SAN ANTONIO TX 78229 208313687 456666 RESEARCH GRANT UNIVERSITY OF MICHIGAN 1150 E MEDICAL CENTER DR ANN ARBOR MI 48109 386006309 501C3 25000 RESEARCH GRANT UNIVERSITY OF NC AT CHAPEL HILL 120 MASON FARM ROAD CHAPEL HILL NC 27519 566001393 501C3 49981 RESEARCH GRANT CANCER RESEARCH INSTITUTE 29 BROADWAY FLOOR 4 NEW YORK NY 10006 501C3 100000 RESEARCH GRANT 4 1 SCHEDULE I, PAGE 1, PART I, LINE 2 MONITORING USE OF GRANT FUNDS INSIDE THE U.S. IS CARRIED OUT THROUGH REGULAR REPORTING BY GRANTEE ORGANIZATIONS. X X false false false false false false false true false JOAN LEVY DIRECTOR OF RESEARCH 144092 5000 6720 4664 15133 175609 SCHEDULE J, PAGE 1, PART I, LINE 7 BONUS CONTINGENT ON ACCOMPLISHMENT OF PRE-DEFINED GOALS UNIQUE TO POSITION, PAYABLE AT THE SOLE DISCRETION OF THE FOUNDATION, AND DEPENDENT UPON THE FINANCIAL POSITION OF THE FOUNDATION. SMITH ANDERSON LLP BOARD DIRECTOR 59890 IN-KIND LEGAL SVCS false SCHEDULE L, PART V THE FOUNDATION RECEIVED AN IN-KIND DONATION OF LEGAL SERVICES FROM SMITH ANDERSON, LLP. JOHN THERIEN, A BOARD MEMBER OF THE FOUNDATION, IS ALSO A MEMBER OF THE LAW FIRM SMITH ANDERSON, LLP. X 5 9384 FMV X TECH SOLUTIONS 1 33360 FMV false true false FORM 990, PAGE 6, PART VI, LINE 11B FINANCIAL REPORTS AND THE FORM 990 ARE REVIEWED BY THE FOUNDATION'S EXECUTIVE DIRECTOR, BOARD CHAIR AND FINANCE COMMITTEE BEFORE BEING DISTRIBUTED TO THE FULL BOARD FOR REVIEW AND APPROVAL. FORM 990, PAGE 6, PART VI, LINE 12C EACH EMPLOYEE, DIRECTOR, OR OTHER AGENT OF THE FOUNDATION SIGNS A STATEMENT THAT AFFIRMS THEY HAVE RECEIVED A COPY OF THE POLICY, READ AND UNDERSTAND THE POLICY, AGREED TO COMPLY WITH THE POLICY, AND UNDERSTAND THE FOUNDATION MUST ENGAGE PRIMARILY IN ACTIVITIES THAT ACCOMPLISH ONE OR MORE OF ITS TAX-EXEMPT PURPOSES IN ORDER TO MAINTAIN THEIR FEDERAL TAX EXEMPTION. FORM 990, PAGE 6, PART VI, LINE 15A THE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS RECOMMENDS COMPENSATION OF THE EXECUTIVE DIRECTOR AND KEY EMPLOYEES THAT IS (I) WITHIN THE BUDGET APPROVED BY THE BOARD OF DIRECTORS, AND (II) COMPARABLE TO INDUSTRY NORMS FOR SIMILARLY SIZED NONPROFITS. THE BOARD OF DIRECTORS DECIDE ON COMPENSATION OF THE EXECUTIVE DIRECTOR AND KEY EMPLOYEES BY VOTE. FORM 990, PAGE 6, PART VI, LINE 15B THE EXECUTIVE DIRECTOR, ALONG WITH THE BOARD OF DIRECTORS, DETERMINE THE COMPENSATION OF THE ORGANIZATION'S EMPLOYEES AFTER CAREFULLY REVIEWING THE EMPLOYEE CREDENTIALS AND THE ORGANIZATION'S BUDGET. ALL POSITIONS AND COMPENSATIONS ARE APPROVED AND FUNDED THROUGH THE ANNUAL BUDGET, WHICH REQUIRES BOARD REVIEW AND APPROVAL. IN ADDITION, PERSONNEL ISSUES MAY BE BROUGHT BEFORE THE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS BY THE EXECUTIVE DIRECTOR. FORM 990, PAGE 6, PART VI, LINE 19 GOVERNING DOCUMENTS, DISCLOSURE EXPLANATION, ARTICLES OF INCORPORATION, BY-LAWS, POLICIES AND PROCEDURES MANUAL, CONFLICT OF INTEREST POLICY AND OTHER GOVERNING POLICIES, ANNUAL AUDITS AND 990'S ARE ON FILE IN THE FINANCE OFFICE, AVAILABLE ON THE FOUNDATION'S WEBSITE AND AVAILABLE TO THE PUBLIC UPON REQUEST. FORM 990, PART XI, LINE 9 GAIN ON FOREIGN CURRENCY 19,022