2021-04-29T21:04:25-05:00 2020-12-31 521446779 JOHNSON LAMBERT LLP 4242 SIX FORKS ROAD SUITE 1500 RALEIGH NC 27609 990 2020-01-01 364253176 CITIZENS UNITED FOR RESEARCH IN EPILEPSY CITI 3122551801 420 N WABASH AVE NO 650 CHICAGO IL 60611 BETH LEWIN DEAN CHIEF EXECUTIVE OFFICER 3122551801 2021-04-29 1 BETH LEWIN DEAN 999009999 J CALVIN MARKS P01226973 9197196400 2 AAL1 IAL1 2020 2022-09-23 18:48:47Z CURE EPILEPSY BETH LEWIN DEAN 420 N WABASH AVE NO 650 CHICAGO IL 60611 11567533 0 X WWW.CUREEPILEPSY.ORG X 1998 IL TO FIND A CURE FOR EPILEPSY BY PROMOTING AND FUNDING PATIENT FOCUSED RESEARCH. 11 11 18 250 0 0 7599997 6964176 0 0 127285 509703 -242369 -130043 7484913 7343836 3260536 4747582 0 0 1719233 1928861 36574 0 603506 1247103 873359 6263446 7549802 1221467 -205966 11158995 10595195 4278558 4018911 6880437 6576284 THE MISSION OF CURE EPILEPSY IS TO FIND A CURE FOR EPILEPSY BY PROMOTING AND FUNDING PATIENT FOCUSED RESEARCH. WE IDENTIFY AND FUND CUTTING-EDGE RESEARCH, CHALLENGING SCIENTISTS WORLDWIDE TO COLLABORATE AND INNOVATE IN PURSUIT OF A CURE FOR EPILEPSY 0 0 5721759 4697582 SINCE ITS INCEPTION IN 1998, CURE EPILEPSY HAS RAISED MORE THAN $78 MILLION TO FUND EPILEPSY RESEARCH AND OTHER INITIATIVES THAT WILL LEAD THE WAY TO CURES FOR THE EPILEPSIES. CURE EPILEPSY AWARDS GRANTS FOR NOVEL RESEARCH PROJECTS TO PREVENT EPILEPSY RELATED TO PEDIATRIC EPILEPSY, POST-TRAUMATIC EPILEPSY, TREATMENT-RESISTANT EPILEPSIES, SUDDEN UNEXPLAINED DEATH IN EPILEPSY (SUDEP), AND SLEEP AND EPILEPSY ADVANCING THE SEARCH FOR A CURE, ELIMINATING TREATMENT SIDE EFFECTS, AND REVERSING DEFICITS CAUSED BY FREQUENT SEIZURES. CURE EPILEPSY FUNDS GRANTS FOR YOUNG AND ESTABLISHED INVESTIGATORS AND TODATE HAS AWARDED MORE THAN 260 CUTTING-EDGE PROJECTS IN 16 COUNTRIES AROUND THE WORLD. 855731 CURE EPILEPSY BELIEVES THAT AWARENESS IS A CRITICAL VEHICLE TO INCREASE THE AMOUNT OF FUNDING FOR EPILEPSY RESEARCH AND TO SHARE KEY LEARNINGS AND OPPORTUNITIES FOR THOSE IMPACTED BY EPILEPSY. CURE EPILEPSY CREATES, SPONSORS AND LEVERS OUR WEBSITE, WEBINARS, SEMINARS, PODCASTS, EDUCATIONAL EVENTS AND OTHER DIGITAL COMMUNICATION TO DRIVE THIS CRITICAL AWARENESS. 50000 50000 CURE EPILEPSY FUNDS AN ANNUAL EDUCATION ENRICHMENT SCHOLARSHIP. THIS PROGRAM IS A ONE-TIME SCHOLARSHIP (UP TO $5,000) FOR THOSE LIVING WITH EPILEPSY, THEIR FAMILY MEMBERS OR THEIR CAREGIVERS. THESE SCHOLARSHIPS SUPPORT COURSEWORK IN SCHOLARS' CHOSEN FIELDS, SO THEY CAN USE THEIR KNOWLEDGE AND SKILLS TO BECOME AGENTS OF CHANGE IN THE EPILEPSY COMMUNITY. 6627490 1 1 0 1 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 1 1 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 10 0 1 18 1 0 0 0 0 0 0 0 0 0 0 0 0 X 11 11 0 0 1 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 AL AR CA CT FL GA HI IL KS KY MA MD MI MN MS NC NH NJ NM NY OR PA RI SC TN UT VA WI WV X X JOHN ANDERLUH 3122551801 420 N WABASH AVE NO 650 CHICAGO IL 60611 LAURA LUBBERS CHIEF SCIENTIFIC OFFICER 37.50 X 285888 0 19220 BETH LEWIN DEAN CEO 37.50 X 261453 0 34338 DEBBY HECHT SR DIRECTOR, MARKETING & COMM 37.50 X 152717 0 7329 PRIYA BALASUBRAMANIAN ASSOC DIRECTOR OF RESEARCH 37.50 X 107013 0 27816 LAUREN HARTE DOD, ASSOC DIRECTOR OF RESEARCH 37.50 X 106935 0 3616 JOHN ANDERLUH CFO 37.50 X 105219 0 24403 ALSYHA BIEHL SR DIRECTOR, DEVELOPMENT 37.50 X 104283 0 9245 STACEY PIGOTT CHAIR 1.00 X X 0 0 0 KELLY CERVANTES CHAIR ELECT 1.00 X X 0 0 0 ANN BENSCHOTER PAST CHAIR (TO OCT '20) 1.00 X X 0 0 0 KATHY MCKENNA TREASURER 1.00 X X 0 0 0 MIKE AXELROD SECRETARY 1.00 X X 0 0 0 KIMBERLY BORDEN DIRECTOR (FROM OCT'20) 1.00 X 0 0 0 LISA COTTON DIRECTOR 1.00 X 0 0 0 BLAKE CUNNEEN DIRECTOR 1.00 X 0 0 0 MARILYNN GARDNER DIRECTOR 1.00 X 0 0 0 CARRIE GARMAN (DIRECTOR (FROM JUN '20) 1.00 X 0 0 0 BRIAN GORCZYNSKI (DIRECTOR (FROM DEC '20) 1.00 X 0 0 0 CELIA HUBER DIRECTOR (TO OCT '20) 1.00 X 0 0 0 DAVID REIFMAN DIRECTOR 1.00 X 0 0 0 1123508 0 125967 7 0 1 0 0 1843037 3039412 2081727 134008 6964176 105918 105918 4503161 4097016 2360 406145 -2360 403785 403785 0 1843037 124321 -124321 -124321 -5722 -5722 -5722 7343836 0 0 379660 4522948 4522948 224634 224634 730520 488698 94041 147781 975002 653596 124535 196871 21111 14121 2801 4189 96517 64562 12806 19149 105711 73516 10633 21562 33218 27383 2261 3574 26567 26567 121207 23235 1918 96054 168290 168290 93803 50749 9216 33838 232058 198358 10317 23383 90549 60665 11579 18305 15290 8573 3959 2758 24194 2363 122 21709 17721 11873 2266 3582 16314 10930 2086 3298 LICENSES & FEES 17282 11578 2210 3494 DUES & SUBSCRIPTIONS 7580 5323 528 1729 9286 6095 961 2230 7549802 6627490 318806 603506 1100686 3396662 3901028 1124490 1841173 1530744 45606 43199 229381 171909 57265 57472 4199911 4432628 13326 10000 11158995 10595195 359136 134299 951959 1798527 2967463 1849485 236600 4278558 4018911 X 5077553 4800489 1802884 1775795 6880437 6576284 11158995 10595195 X -205966 -183684 85497 X 0 1 X 1 1 1 X 4560949 4103518 7555195 7599997 6964176 30783835 4560949 4103518 7555195 7599997 6964176 30783835 766980 30016855 157025 182025 71470 175964 105918 692402 -5722 -5722 31470515 638750 0.95380 0.93490 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 0 7549802 7549802 527490 131873 0 0 377462 427783 463172 527490 1795907 2693861 94366 106946 115793 131873 448978 673467 93319 71351 21968 136062 100558 35504 57472 X 7425014 -183684 241319 64747 122382 7302632 26567 14637 41204 7343836 7729167 241319 241319 7487848 26567 35387 61954 7549802 PART X, LINE 2: MANAGEMENT HAS CONCLUDED THAT CURE EPILEPSY HAS PROPERLY MAINTAINED ITS EXEMPT STATUS. THE PREVIOUS THREE TAX YEARS ARE SUBJECT TO EXAMINATION BY FEDERAL AUTHORITIES, THERE ARE CURRENTLY NO EXAMINATIONS BEING CONDUCTED. PART XI, LINE 4B - OTHER ADJUSTMENTS: SPECIAL EVENTS 16,997. FIXED ASSET RETIREMENT -2,360. PART XII, LINE 4B - OTHER ADJUSTMENTS: RETURN GRANTS 20,750. SPECIAL EVENTS 16,997. FIXED ASSET RETIREMENT -2,360. 1 EUROPE 0 0 GRANT TO RECIPIENT IN REGION 124901 EAST ASIA AND THE PACIFIC 0 0 GRANT TO RECIPIENTS IN REGION 99733 0 0 0 0 0 0 224634 0 224634 EUROPE RESEARCH GRANT 99900 EAST ASIA AND THE PACIFIC RESEARCH GRANT 99733 EUROPE RESEARCH GRANT 15000 EUROPE SUPPORTING EPILEPSY COURSE 7001 4 0 0 0 0 0 0 0 PART I, LINE 2: GRANTEES ARE REQUIRED TO MAKE PERIODIC PROGRESS REPORTS. PART III ACCOUNTING METHOD: VIRTUAL BENEFIT 1843037 1843037 0 284 435 1257 2500 119845 1843037 1843037 284 435 1257 2500 119845 124321 -124321 1 MASSACHUSETTS GENERAL HOSPITAL 55 FRUIT ST BOSTON MA 02114 041564655 501(C)(3) 1385914 RESEARCH GRANT MID ATLANTIC EPILEPSY & SLEEP CENTER LLC 6410 ROCKLEDGE DR STE 610 BETHESDA MD 20817 300767458 555980 RESEARCH GRANT BOARD OF TRUSTEES UNIVERSITY OF ILLINOIS HENRY ADMIN BLDG 506 S WRIGHT ST URBANA IL 61801 376000511 115 300000 RESEARCH GRANT UNIVERSITY OF FLORIDA BOARD OF TRUSTEES UNIVERSITY OF FLORIDA GAINESVILLE FL 32611 596002052 115 267499 RESEARCH GRANT CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNETT AVE MCL 4900 CINCINNATI OH 45229 310833936 501(C)(3) 250000 RESEARCH GRANT EMORY UNIVERSITY SCHOOL OF MEDICINE BRAIN HEALTH CENTER 201 DOWMAN DR ATLANTA GA 30322 580566256 501(C)(3) 250000 RESEARCH GRANT RUTGERS THE STATE UNIVERSITY 3 RUTGERS PLAZA ASB III NEW BRUNSWICK NJ 08901 226001086 115 250000 RESEARCH GRANT DUKE UNIVERSITY MEDICAL CENTER 615 DOUGLAS ST STE 700 DURHAM NC 27705 562070036 501(C)(3) 249908 RESEARCH GRANT THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT HOUSTON 7000 FANNIN UCT 1000 HOUSTON TX 77030 741761309 115 237466 RESEARCH GRANT TRUSTEES OF UNIVERSITY OF PENNSYLVANIA 3451 WALNUT ST PHILADELPHIA PA 19104 231352685 501(C)(3) 233005 RESEARCH GRANT UNIVERSITY OF CALIFORNIA SAN FRANCISCO 500 PARNASSUS AVE MU-200W SAN FRANCISCO CA 94143 946036493 115 130000 RESEARCH GRANT UNIVERSITY OF CALIFORNIA LOS ANGELES 220 WESTWOOD PLAZA LOS ANGELES CA 900951390 956006143 115 100000 RESEARCH GRANT UNIVERSITY OF VIRGINIA 248 MCCORMICK RD CHARLOTTESVILLE VA 22904 546001796 115 99991 RESEARCH GRANT AMERICAN EPILEPSY SOCIETY 135 S LASALLE ST STE 2850 CHICAGO IL 60603 046112600 501(C)(3) 20000 RESEARCH GRANT UNIVERSITY OF COLORADO CU BOULDER CO 80309 846000555 115 15000 RESEARCH GRANT ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI 1 GUSTAVE L LEVY PL NEW YORK NY 10029 136171197 501(C)(3) 15000 RESEARCH GRANT STANFORD UNIVERSITY 450 SERRA MALL STANFORD CA 94305 941156365 501(C)(3) 15000 RESEARCH GRANT TUFTS UNIVERSITY BALLOU HALL MEDFORD MA 02155 042103634 501(C)(3) 15000 RESEARCH GRANT YALE UNIVERSITY PO BOX 2038 NEW HAVEN CT 06521 060646973 501(C)(3) 15000 RESEARCH GRANT UNIVERSITY OF VERMONT STATE 85 S PROSPECT ST BURLINGTON VT 05405 030179440 115 14999 RESEARCH GRANT UNIVERSITY OF WISCONSIN 702 W JOHNSON ST STE 1101 MADISON WI 53715 396006492 115 14970 RESEARCH GRANT UNIVERSITY OF NORTH CAROLINA CHAPEL HILL 103 S BLDG CB 9100 CHAPEL HILL NC 27599 566001393 115 14937 RESEARCH GRANT EXPESICOR 350 N MERIDIAN RD KALISPELL MT 59901 822708568 11530 RESEARCH GRANT VANDERBILT UNIVERSITY 2201 WEST END AVE NASHVILLE TN 37235 620476822 501(C)(3) 10000 SCHOLARSHIP TESS RESEARCH FOUNDATION 655 OAK GROVE AVE STE 53 MENLO PARK CA 94026 473108868 501(C)(3) 6000 CONFERENCE SUPPORT 23 2 PART I, LINE 2: GRANTEES ARE REQUIRED TO MAKE PERIODIC PROGRESS REPORTS. X X X X X 0 0 0 0 0 0 0 0 0 LAURA LUBBERS CHIEF SCIENTIFIC OFFICER 260287 0 25601 0 0 0 7975 0 11245 0 305108 0 0 0 BETH LEWIN DEAN CEO 241245 0 20208 0 0 0 8049 0 26289 0 295791 0 0 0 DEBBY HECHT SR DIRECTOR, MARKETING & COMM 152717 0 0 0 0 0 4589 0 2740 0 160046 0 0 0 X 5 134008 FMV 0 0 1 PART I, COLUMN (B): THE NUMBER OF CONTRIBUTIONS RECEIVED, RATHER THAN THE NUMBER OF STOCK SHARES RECEIVED, ARE BEING REPORTED FOR SCHEDULE M PURPOSES. PART I, LINE 32B: THE ORGANIZATION DISPOSES OF DONATED SECURITIES THROUGH AN INVESTMENT BROKER UPON RECEIPT. FORM 990, PART VI, SECTION A, LINE 4 THE BYLAWS WERE AMENDED TO EXPAND THE BOARD'S RESPONSIBILITIES TO INCLUDE MONITORING AND IMPROVING UPON KEY PERFORMANCE INDICATORS. FORM 990, PART VI, SECTION B, LINE 11B FORM 990 IS REVIEWED BY THE FINANCE MANAGER, TREASURER, AND CHIEF EXECUTIVE OFFICER. WHEN THE DRAFT IS APPROVED, IT IS SENT TO THE ENTIRE BOARD. FORM 990, PART VI, SECTION B, LINE 12C EACH BOARD MEMBER SIGNS IT ANNUALLY AND EXPECTS TO SELF-MONITOR. CONFLICTS ARE DEALT WITH ON A CASE-BY-CASE BASIS. FORM 990, PART VI, SECTION B, LINE 15A COMPARABLE SALARY INFORMATION IS OBTAINED AND REVIEWED USING AN OUTSIDE EXECUTIVE SEARCH FIRM. THE BOARD OF DIRECTORS HAS FINAL APPROVAL, AND REVIEWS COMPENSATION ANNUALLY. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY ARE NOT GENERALLY AVAILABLE TO THE PUBLIC. THE ORGANIZATION'S FINANCIAL STATEMENTS ARE AVAILABLE ON ITS WEBSITE. FORM 990, PART XI, LINE 9: RETURN GRANTS 85,497.