2021-11-15T11:30:50-06:00 2020-12-31 390919055 RITZ HOLMAN LLP 330 E KILBOURN AVE SUITE 550 MILWAUKEE WI 53202 990 2020-01-01 464152355 CHILDHOOD ARTHRITIS AND RHEUMATOLOGY RESEARCH ALLIANCE CHIL 4149189822 555 E WELLS ST NO 1100 MILWAUKEE WI 53202 STACY ARDOIN MD TREASURER 4149189822 2021-11-15 1 STACY ARDOIN MD 999009999 KATY L SOMMER P00273273 4142711451 2021-11-08 3 AAL1 IAL1 2020 2022-09-23 18:48:47Z EMILY VON SCHEVEN MD MA 5833140 0 X HTTPS://WWW.CARRAGROUP.ORG/ X 2014 CA CARRA MEMBERS WORK TOGETHER TO CAPITALIZE ON OPPORTUNITIES, ACTIVELY DEVELOP A STRUCTURE AND A SCIENTIFIC AGENDA, AND COLLABORATE WITH POTENTIAL FUNDING SOURCES TO CREATE A RESEARCH ALLIANCE THAT BENEFITS OUR PATIENTS. CARRA CONDUCTS COLLABORATIVE RESEARCH TO PREVENT, TREAT AND CURE PEDIATRIC RHEUMATIC DISEASES. 9 5 0 0 0 0 7209074 3005647 3642918 2715047 167009 46432 10269 66014 11029270 5833140 360272 563869 0 0 290214 288111 0 0 0 7765217 7236792 8415703 8088772 2613567 -2255632 20873541 18697197 1086941 1166229 19786600 17530968 X CARRA MEMBERS WORK TOGETHER TO CAPITALIZE ON OPPORTUNITIES, ACTIVELY DEVELOP A STRUCTURE AND A SCIENTIFIC AGENDA, AND COLLABORATE WITH POTENTIAL FUNDING SOURCES TO CREATE A RESEARCH ALLIANCE THAT BENEFITS OUR PATIENTS. CARRA CONDUCTS COLLABORATIVE RESEARCH TO PREVENT, TREAT AND CURE PEDIATRIC RHEUMATIC DISEASES. 0 0 5232137 2666447 CARRA REGISTRY: CARRA AND THE DUKE CLINICAL RESEARCH INSTITUTE (DCRI) ARE COLLABORATING TO LAUNCH THE SECOND PHASE OF THE CARRA REGISTRY, A REGISTRY OF CHILDREN AND YOUNG ADULTS WITH PEDIATRIC-ONSET RHEUMATIC CONDITIONS SUCH AS JUVENILE IDIOPATHIC ARTHRITIS (JIA). THE REGISTRY IS A CORNERSTONE OF CARRA AND PROVIDES DISEASE AND TREATMENT DATA ON CHILDREN WITH A VARIETY OF RHEUMATIC DISEASES. 142471 ANNUAL MEETING: PROVIDES MANY OPPORTUNITIES TO DEVELOP AND REFINE SCIENTIFIC APPROACHES TO QUESTIONS IN CLINICAL AND TRANSLATIONAL RESEARCH, WHILE NETWORKING WITH COLLEAGUES. THE MEETING OFFERS A UNIQUE, INTERACTIVE FORMAT WITH SESSIONS THAT ENCOURAGE ACTIVE PARTICIPATION, INCLUDING BRAINSTORMING AND CONTRIBUTING TO NEW RESEARCH INITIATIVES AND IDEAS. 563869 563869 GRANT SUPPORT TO OTHERS: CARRA OFFERS MEMBERS VARIOUS FUNDING AND INTERNSHIP OPPORTUNITIES TO FURTHER RESEARCH THAT LEVERAGES THE CARRA NETWORK AND POSITIVELY IMPACTS THE PEDIATRIC RHEUMATOLOGY SCIENTIFIC COMMUNITY AND ADVANCES THE CARRA MISSION. 1394231 48600 OTHER PROGRAM SERVICES: INFORMATICS/PROGRAMING, LEADERSHIP SERVICE ASSOCIATED WITH FURTHERING THE MISSION AND ACR MEETING EXPENSES. 1394231 48600 7332708 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 11 0 1 0 0 0 0 0 0 0 0 0 0 0 X 9 5 0 1 0 0 1 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 CA X EXECUTIVE DIRECTOR INC 4142766445 555 E WELLS STREET SUITE 110 MILWAUKEE WI 53202 YUKIKO KIMURA MD PAST PRESIDENT 14.00 X X 56827 0 0 ROBERT FUHLBRIGGE MD PHD PAST PRESIDENT 10.00 X X 61236 0 0 CHRISTY SANDBORG MD CHAIR 3.00 X X 0 0 0 EMILY VON SCHEVEN MD MAS PRESIDENT 10.00 X X 96298 0 0 CAROL WALLACE MD DIRECTOR 1.00 X 0 0 0 HARRY SAAL PHD DIRECTOR 1.00 X 0 0 0 ROBERT COLBERT MD PHD VICE PRESIDENT 8.00 X X 40000 0 0 STACY ARDOIN MD TREASURER 5.00 X X 33750 0 0 LEIGH WHITE JD DIRECTOR 1.00 X 0 0 0 DANIEL SOLOMON MD PHD DIRECTOR 1.00 X 0 0 0 JOHN SUNDY MD PHD DIRECTOR 1.00 X 0 0 0 288111 0 0 0 0 0 0 DUKE CLINICAL RESEARCH INSTITUTE 2400 PRATT ST DURHAM NC 27705 CARRA REGISTRY MANAGEMENT 4564424 EXECUTIVE DIRECTOR INC 555 E WELLS ST STE 1100 MILWAUKEE WI 53202 MANAGEMENT SERVICES 985357 BOSTON CHILDREN'S HOSPITAL 300 LONGWOOD AVE BOSTON MA 02115 INFORMATICS SUPPORT FOR REGISTRY 260000 LESLIE HANRAHAN DBA 2020 HEALTH STRATEG 11306 HOUNDS WAY ROCKVILLE MD 20852 CONTRACT SERVICES 124803 4 3005647 3005647 RESEARCH STUDIES & COL 541900 2666447 2666447 MEMBERSHIP DUES 541900 48600 48600 2715047 46432 46432 GRANT SUPPORT REFUNDS 900099 48875 48875 IRS REFUNDS 900099 15700 15700 REBATES/COMMISSIONS 900099 900 900 539 539 66014 5833140 2781061 0 46432 X 560163 560163 756 756 2950 2950 288111 144056 144055 1486679 988378 498301 772 772 7925 7925 4982945 4980653 2292 14150 14150 7484 1778 5706 35114 35114 1754 1754 143735 143735 4240 4240 27492 27492 SUBSTUDIES RESEARCH PRO 394189 394189 MANUSCRIPTS 116050 116050 STAFF TRAINING AND DEVE 10300 10300 MISCELLANEOUS 3963 3963 8088772 7332708 756064 0 2642705 1829061 9229981 11023773 7000000 4333333 1947168 1435553 44148 70177 9539 5300 20873541 18697197 1085591 1085055 1350 81174 1086941 1166229 X 12786600 13197635 7000000 4333333 19786600 17530968 20873541 18697197 -2255632 0 X 0 1 X 1 0 X 4523687 10497647 6025669 7209074 3005647 31261724 4523687 10497647 6025669 7209074 3005647 31261724 31261724 1267 2102 19852 167009 46432 236662 84232 106280 72294 114075 376881 31875267 0.98080 0.99210 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: GRANT SUPPORT REFUNDS - 2018 AMOUNT: $ 46,030. 2019 AMOUNT: $ 4,693. 2020 AMOUNT: $ 48,875. REBATES/COMMISSIONS - 2019 AMOUNT: $ 5,576. 2020 AMOUNT: $ 900. GROSS RECEIPTS FROM RELATED ACTIVITIES - 2016 AMOUNT: $ 84,232. 2018 AMOUNT: $ 60,250. 2019 AMOUNT: $ 62,025. 2020 AMOUNT: $ 48,600. IRS REFUNDS - 2020 AMOUNT: $ 15,700. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 X 5784265 0 5784265 48875 48875 5833140 8039897 0 8039897 48875 48875 8088772 PART X, LINE 2: THE ORGANIZATION IS EXEMPT FROM INCOME TAX UNDER SECTION 501(C)(3) OF INTERNAL REVENUE CODE AND IS CLASSIFIED AS OTHER THAN A PRIVATE FOUNDATION. MANAGEMENT HAS REVIEWED ALL TAX POSITIONS RECOGNIZED IN PREVIOUSLY FILED TAX RETURNS AND THOSE EXPECTED TO BE TAKEN IN FUTURE TAX RETURNS. AS OF DECEMBER 31, 2020, THE ORGANIZATION HAD NO AMOUNTS RELATED TO UNRECOGNIZED INCOME TAX BENEFITS AND NO AMOUNTS RELATED TO ACCRUED INTEREST AND PENALTIES. THE ORGANIZATION DOES NOT ANTICIPATE ANY SIGNIFICANT CHANGES TO UNRECOGNIZED INCOME TAX BENEFITS OVER THE NEXT YEAR. PART XI, LINE 4B - OTHER ADJUSTMENTS: GRANT SUPPORT REFUNDS PART XII, LINE 4B - OTHER ADJUSTMENTS: GRANT SUPPORT REFUNDS SCHEDULE D PART XI LINE 4B OTHER REVENUE INCLUDED ON FORM 990 BUT NOT INCLUDED IN THE F/S GRANT SUPPORT REFUNDS $48,875 SCHEDULE D PART XII LINE 4B OTHER EXPENSES INCLUDED ON FORM 990 BUT NOT INCLUDED IN THE F/S GRANT SUPPORT REFUNDS $48,875 1 CONNECTICUT CHILDREN'S MEDIC 282 WASHINGTON ST HARTFORD CT 06106 222619869 3 4755 FMV PUBLICATION & SMALL GRANT COHEN CHILDREN'S MEDICAL CENTER OF NEW YORK 1983 MARCUS AVENUE SUITE 130 NEW HYDE PARK NY 11042 113418133 3 24910 FMV SMALL GRANT MONTEFIORE MEDICAL CENTER 111 EAST 210TH ST NEW YORK NY 10467 131740114 3 750 FMV PUBLICATION SUPPORT GRANT BOSTON CHILDREN'S HOSPITAL 300 LONGWOOD AVE BOSTON MA 02115 042774441 3 1948 FMV SMALL GRANT STANFORD UNIVERSITY 450 SERRA MALL STANFORD CA 94305 941156365 3 10000 FMV DATA ANALYSIS GRANT CHILDREN'S HOSPITAL OF PHILA 3401 CIVIC CENTER BLVD PHILADELPHIA PA 19104 231352166 3 152000 FMV TRANSDISCIPLINARY RESEARCH GRANT CINCINNATI CHILDRENS HOSPITAL 3333 BURNET AVE CINCINNATI OH 45229 316026285 3 35980 FMV LARGE/SMALL/FELLOWS GRANT CHILDREN'S RESEARCH INSTITUTE 111 MICHIGAN AVE NW WASHINGTON DC 20010 521654453 3 53973 FMV DATA ANALYSIS & SMALL GRANT ALBERT EINSTEIN COLLEGE OF MEDICINE 1300 MORRIS PARK AVENUE BRONX NY 10461 830621846 3 23768 FMV SMALL & FELLOWS GRANT MICHIGAN STATE UNIVERSITY 426 AUDITORIUM ROAD EAST LANSING MI 48824 386005984 3 150000 FMV TRANSDISCIPLINARY RESEARCH GRANT NATIONWIDE CHILDREN'S HOSPITAL 700 CHILDRENS DR COLUMBUS OH 43205 311036370 3 2000 FMV SMALL GRANT SEATTLE CHILDREN'S HOSPITAL FOUNDATION 4800 SAND POINT WAY NE SEATTLE WA 98105 911156519 3 11979 FMV DATA ANALYSIS & SMALL GRANT DUKE MEDICAL CENTER 10 DUKE MEDICINE CIR DURHAM NC 27710 560532129 3 57000 FMV PUBLICATION & SMALL GRANT UNIVERSITY OF UTAH 201 PRESIDENTS CIR SALT LAKE CITY UT 84112 876000525 3 2000 FMV SMALL GRANT UNIVERSITY OF PITTSBURGH 4200 FIFTH AVE PITTSBURGH PA 15260 250965591 3 25000 FMV SMALL GRANT REGENTS OF THE UNIVERSITY OF MINNESOTA 200 OAK STREET SE MINNEAPOLIS MN 55455 416007513 3 525 FMV PUBLICATION SUPPORT GRANT THE CHILDREN'S MERCY HOSPITAL 2401 GILLHAM RD KANSAS CITY MO 64108 440605373 3 2000 FMV SMALL GRANT JOSEPH M SANZARI CHILDREN'S HOSPITAL 30 PROSPECT AVE HACKENSACK NJ 07601 221487576 3 1575 FMV PUBLICATION SUPPORT GRANT 18 PART I, LINE 2: CARRA HAS A GRANTS REVIEW COMMITTEE THAT OVERSEES THE FUNDING OF GRANTS. GRANT RECIPIENTS MUST GO THROUGH A GRANT REVIEW PROCESS, WHICH INCLUDES A FINAL GRANT REPORT DUE WITHIN 30 DAYS OF THE END OF THE PROJECT PERIOD. FORM 990, PART VI, SECTION A, LINE 3 LINE 3 EXPLANATION - CARRA CONTRACTS WITH EXECUTIVE DIRECTOR INC. (A FOR-PROFIT MANAGEMENT COMPANY) TO PROVIDE OFFICE FACILITIES, MANAGEMENT, RECORD KEEPING, ACCOUNTING, STORAGE, OTHER SIGNIFICANT SERVICES, PLUS RELATED OVERHEAD COSTS. FORM 990, PART VI, SECTION A, LINE 6 LINE 6 EXPLANATION - THE ORGANIZATION HAS MEMBERS. FORM 990, PART VI, SECTION B, LINE 11B LINE 11B EXPLANATION - PRIOR TO FILING, FORM 990 WILL BE REVIEWED BY MANAGEMENT AND THEN DISTRIBUTED TO THE FULL BOARD AND FINANCE COMMITTEE FOR REVIEW. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST POLICY IS MONITORED BY THE ETHICS COMMITTEE AND REVIEWED AND SIGNED AT THE BEGINNING OF EACH FISCAL YEAR BY ALL STAFF AND BOARD MEMBERS WITH SIGNIFICANT DECISION MAKING AUTHORITY. IT IS EACH SIGNATOR'S OBLIGATION TO DISCLOSE ANY POTENTIAL CONFLICT AS SOON AS IT IS KNOWN, OR REASONABLY SHOULD BE KNOWN. FORM 990, PART VI, SECTION B, LINE 15 THE BOARD OF DIRECTORS SHALL REVIEW ANY COMPENSATION PACKAGES AND SHALL APPROVE SUCH COMPENSATION ONLY AFTER DETERMINING THAT THE COMPENSATION IS REASONABLE. COMPENSATION IS DETERMINED USING INFORMATION ABOUT COMPENSATION PAID BY SIMILARLY SITUATED TAXABLE AND TAX-EXEMPT ORGANIZATIONS FOR SIMILAR SERVICES. SUCH INFORMATION MAY INCLUDE UP-TO-DATE COMPENSATION SURVEYS COMPILED BY INDEPENDENT FIRMS OR ACTUAL WRITTEN OFFERS FROM SIMILARLY SITUATED ORGANIZATIONS. APPROVALS OF ALL COMPENSATION MUST BE DOCUMENTED IN WRITING WITH THE DATES AND TERMS OF THE AGREEMENT, A RECORD OF ALL INDIVIDUALS WHO VOTED IN CONSIDERATION, ALONG WITH ALL INFORMATION AND THE INFORMATION'S SOURCE. FORM 990, PART VI, SECTION C, LINE 19 THE MOST RECENT FORM 990S (INCLUDING FINANCIAL INFORMATION), THE BYLAWS, ARTICLES OF INCORPORATION, FORM 1023 APPLICATION FOR EXEMPTION, AND CONFLICT OF INTEREST POLICY ARE PROVIDED TO THE PUBLIC UPON REQUEST FORM 990, PART IX, LINE 11G BANK FEES: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 2,292. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 2,292. CARRA REGISTRY DATABASE MANAGEMENT: PROGRAM SERVICE EXPENSES 4,980,653. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 4,980,653.