2021-10-29T11:26:31-05:00 2020-12-31 362658780 MUELLER & CO LLP 1707 N RANDALL ROAD ELGIN IL 60123 990 2020-01-01 364077528 THE CHILDREN'S HEART FOUNDATION CHIL 8476346474 5 REVERE DRIVE NO 200 NORTHBROOK IL 600621500 BARBARA NEWHOUSE PRESIDENT AND CEO 8476346474 2021-10-28 1 BARBARA NEWHOUSE 999009999 GREGORY F KASH P00161547 8478888600 2021-10-28 2 AAL1 IAL1 2020 2022-09-23 18:48:47Z ABIGAIL RODDIE-HAMLIN 5 REVERE DRIVE NO 200 NORTHBROOK IL 600621500 2732871 0 X WWW.CHILDRENSHEARTFOUNDATION.ORG X 1996 IL THE MISSION OF THE CHILDREN'S HEART FOUNDATION (CHF) IS TO ADVANCE THE DIAGNOSIS, TREATMENT, AND PREVENTION OF CONGENITAL HEART DEFECTS (CHDS) BY FUNDING THE MOST PROMISING RESEARCH. 14 14 12 500 0 0 2468430 2725561 0 0 612 1037 186245 -422083 2655287 2304515 1410284 734326 0 0 627158 799536 0 0 463156 760961 854601 2798403 2388463 -143116 -83948 2160928 1986794 898904 808718 1262024 1178076 X THE MISSION OF THE CHILDREN'S HEART FOUNDATION (CHF) IS TO ADVANCE THE DIAGNOSIS, TREATMENT, AND PREVENTION OF CONGENITAL HEART DEFECTS (CHDS) BY FUNDING THE MOST PROMISING RESEARCH. 0 0 990208 734326 RESEARCH - THE CHILDREN'S HEART FOUNDATION FUNDS THE MOST PROMISING CONGENITAL HEART DEFECT (CHD) RESEARCH. SINCE 1996, CHF HAS INVESTED NEARLY $14 MILLION INTO CHD RESEARCH AND SCIENTIFIC COLLABORATIONS.IN 2020, CHF FUNDED MORE THAN $735,000 IN CHD RESEARCH AND SCIENTIFIC COLLABORATIONS ACROSS FOUR KEY INITIATIVES: 1. INDEPENDENT RESEARCH FUNDED BY THE FOUNDATION, 2. COLLABORATIVE RESEARCH WITH THE AMERICAN HEART ASSOCIATION THROUGH JOINT CONGENITAL HEART DEFECT RESEARCH AWARDS, 3. FUNDING THE AMERICAN ACADEMY OF PEDIATRICS' PEDIATRIC CARDIOLOGY RESEARCH FELLOWSHIP AWARD, AND 4. FUNDING CARDIAC NETWORKS UNITED (CNU), A NATIONAL PEDIATRIC AND CONGENITAL CARDIOVASCULAR RESEARCH NETWORK.ALONG WITH NEW RESEARCH, THE FOUNDATION PROVIDED SECOND-YEAR FUNDING TO THREE PROJECTS THAT MADE SIGNIFICANT PROGRESS: -KRISTOPHER B. DEATRICK, MD [UNIVERSITY OF MARYLAND] FOR HIS WORK ON STEM CELL THERAPY FOR POST- CARDIOPULMONARY BYPASS LOW CARDIAC OUTPUT SYNDROME. -YOUNGJAE CHUN, PHD [UNIVERSITY OF PITTSBURGH] FOR HIS EFFORTS ON A SELF-GROWING PERCUTANEOUS HEART VALVE FRAME TO TREAT CONGENITAL HEART DISEASE. -ALLEN EVERETT, MD [JOHNS HOPKINS UNIVERSITY] WHO IS STUDYING THE ROLE OF CYCLOHEXANONE TOXICITY IN MEDIATING CONGENITAL CARDIAC SURGICAL OUTCOMES.THESE RESEARCH EFFORTS WILL HELP EXPERTS LEARN MORE ABOUT THE LIFE-LONG CARE NEEDS OF INDIVIDUALS LIVING WITH CHDS AND HOW TO CONTINUE TO IMPROVE THEIR OVERALL QUALITY OF LIFE.THE CHILDREN'S HEART FOUNDATION PROVIDES FUNDING TO CARDIAC NETWORKS UNITED TO IMPROVE OUTCOMES FOR CHILDREN WITH CHDS. ONE OF CNU'S CURRENT RESEARCH EFFORTSTHE PAC3 CHEST TUBE PROJECTIS NOW BEING IMPLEMENTED AT NEARLY 20 U.S. HOSPITALS AS RESEARCHERS CONSIDER THE OPTIMAL TIME FOR CHEST TUBE REMOVAL IN YOUNG CHD PATIENTS.IN ADDITION, THE FOUNDATION FUNDED THE AMERICAN ACADEMY OF PEDIATRICS' 2020 PEDIATRIC CARDIOLOGY RESEARCH FELLOWSHIP AWARD GIVEN TO DAVID STAUDT, MD, PHD, PEDIATRIC CARDIOLOGY FELLOW AT STANFORD UNIVERSITY. HIS RESEARCHUNRAVELING MOLECULAR MODIFIERS OF HYPERTROPHIC AND RESTRICTIVE CARDIOMYOPATHYIS IMPORTANT BECAUSE IT BEGINS TO IDENTIFY GENETIC MUTATIONS AND UNDERLYING CAUSES OF HYPERTROPHIC AND RESTRICTIVE CARDIOMYOPATHIES, WHICH COULD LEAD TO THERAPIES THAT COUNTERACT OR PREVENT CHDS. 307487 AWARENESS -CONGENITAL HEART WALKS: THE CHILDREN'S HEART FOUNDATION'S CONGENITAL HEART WALK SERIES IS THE NATION'S LARGEST WALK SERIES SOLELY DEDICATED TO RAISING AWARENESS AND FUNDS FOR CONGENITAL HEART DEFECT RESEARCH. THE 2020 CONGENITAL HEART WALK SERIES VIRTUALLY BROUGHT TOGETHER 5,000 WALKERS, 800 TEAMS, AND HUNDREDS OF FAMILIES, PROVIDERS, AND SPONSORS WHO SHARED DIRECT SUPPORT, ALONG WITH 28 AMAZING WALK DAY PROGRAMS, AS WE RAISED OVER $1,000,000 FOR CHD RESEARCH. THE WALKS OFFER A CHANCE TO STRENGTHEN OUR COMMUNITY AND SPREAD AWARENESS ABOUT AMERICA'S MOST COMMON BIRTH DEFECT - CHDS.""VOLUNTEER SUMMIT: IN FEBRUARY 2020, THE CHILDREN'S HEART FOUNDATION HOSTED A GROUP OF VOLUNTEERS FROM ACROSS THE COUNTRY AT A SUMMIT THAT FOCUSED ON TRAINING THE FOUNDATION'S VOLUNTEER COMMITTEES OF OUR CONGENITAL HEART WALKS TO STRENGTHEN THEIR EFFORTS IN FUNDRAISING AND AWARENESS." "FUNDRAISING EVENTS AND CAMPAIGNS: VARIOUS FUNDRAISING EVENTS AND CAMPAIGNS TOOK PLACE THROUGHOUT 2020, INCLUDING HEARTS AT PLAY, GRAEME'S RUN, #GIVINGTUESDAY, HEART MONTH, AND VOLUNTEER APPRECIATION MONTH - ALL OF WHICH HELPED RAISE AWARENESS AND FUNDS OF THE CHILDREN'S HEART FOUNDATION'S CRITICAL MISSION. " GENERAL AWARENESS: THE CHILDREN'S HEART FOUNDATION UTILIZES SOCIAL MEDIA AND VIDEO STORYTELLING TO SPREAD FURTHER AWARENESS OF CHDS AND CHF. OUR SOCIAL MEDIA EFFORTS FOCUS ON SHARING STORIES OF CHILDREN, ADULTS, AND FAMILIES IMPACTED BY CHDS, AS WELL AS TELLING OUR AUDIENCE ABOUT THE IMPORTANT RESEARCH EFFORTS WE ARE FUNDING. THESE TOOLS HELP US REACH PEOPLE WHO MAY NOT HAVE PREVIOUSLY KNOWN ABOUT OUR IMPORTANT WORK. 263702 ADVOCACY - IN 2020, THE CHILDREN'S HEART FOUNDATION (CHF) PROUDLY PARTNERED WITH MENDED LITTLE HEARTS (MLH) AND THE ADULT CONGENITAL HEART ASSOCIATION (ACHA) TO HOST THE FIRST COLLABORATIVE TELEMEDICINE WEBINAR. THE THREE ORGANIZATIONS ALSO WORKED TOGETHER ON A VIRTUAL ADVOCACY OUTREACH CAMPAIGN. SPANNING SEPTEMBER 28 TO OCTOBER 9, THE EFFORT REACHED STATE AND LOCAL LEGISLATORS NATIONWIDE TO RAISE AWARENESS ABOUT CONGENITAL HEART DEFECTS AND THE CRITICAL NEED FOR INCREASED RESEARCH FUNDING. WE ENDEAVORED TO CREATE MORE AWARENESS OF THE NEED FOR ADVOCACY FOR THOSE WITH CHDS AND THEIR FAMILY MEMBERS BY TELLING THEIR STORY ON OUR WEBSITES, IN VIDEO, AND THROUGH SPECIAL BROADCAST PRODUCTIONS, LIKE THE PBS VISIONARIES SERIES. OUR ADVOCACY EFFORTS FOCUS ON RAISING AWARENESS OF THE NEED FOR INCREASED FUNDING FOR RESEARCH, SURVIVAL, LONGIEVITY AND QUALITY OF LIFE EFFORTS WHICH HAVE DRAMATICALLY INCREASED FOR CHD PATIENTS. THERE HAS BEEN A 37.5% DECREASE IN BABIES DYING AT BIRTH WHICH IS A TREMENDOUS RESULT, BUT WE KNOW THAT BABIES ARE STILL BEING BORN DAILY WITH CHDS. WITH CHD PATIENTS LIVING LONGER WE ARE LOOKING TO DRIVE MORE RESEARCH FUNDING AND ADVOCATE FOR EFFORTS IN NEURODEVELOPMENT, COGNITIVE FUNCTION, MENTAL HEALTH CARE, DEVICES, AND PROCEDURAL RESEARCH, TRANSITIONAL CARE, AND LONG-TERM CARE FOR ADULTS WITH CHDS. LAST YEAR, WE HELD MORE THAN 20 VIRTUAL RESEARCH RECEPTIONS THAT UNDERSCORED THIS CRITICAL LINKAGE FROM THE DOLLARS RAISED IN COMMUNITIES THROUGH OUR WALKS AND OTHER EVENTS, CREATING MORE AWARENESS OF CHDS, AND, ADVOCATING FOR MORE FUNDING THROUGH PARTNERSHIPS AND HEALTH SYSTEM RELATIONSHIPS. WE ARE MOVING FORWARD TO ENGAGE MORE IN ADVOCACY EFFORTS BY RECRUITING GRASSROOTS VOLUNTEERS, CREATING A STRATEGIC LEGISLATIVE AGENDA, AND ADVOCATING THROUGH VOLUNTEER EFFORTS TO INFLUENCE MORE FUNDING FOR CARDIAC HEART DEFECTS. 1561397 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 1 0 0 0 0 0 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 9 0 12 1 0 0 0 0 0 0 0 0 0 0 X 14 14 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 0 0 0 0 0 IL X X ABIGAIL RODDIE-HAMLIN 8476346474 5 REVERE DRIVE ONE NORTHBROOK PLACE NORTHBROOK IL 600621500 KATHRYN OSTEEN MEMBER 10.00 X 0 0 0 DANIELLE PRADAS MEMBER 10.00 X 0 0 0 MELISSA ALEXANDER MEMBER 10.00 X 0 0 0 SALLY POWERS SECRETARY 10.00 X X 0 0 0 LORI JONES SECRETARY IN TRAINING 10.00 X 0 0 0 WILLIAM ROACH MEMBER 10.00 X 0 0 0 TAMARA THOMAS IMMEDIATE PAST BOARD CHAIR 10.00 X X 0 0 0 DR JENNIFER ROMANO MEDICAL ADVISORY COUNCIL LIA 10.00 X 0 0 0 DR JOHN COSTELLO MEDICAL ADVISORY COUNCIL IN TRNG 10.00 X 0 0 0 KEVIN SLAWIN DIRECTOR 10.00 X 0 0 0 MARTHA HAUBER BOARD CHAIR 10.00 X X 0 0 0 JIM BOLOTIN TREASURER 10.00 X X 0 0 0 KELLY WITTICH ADVOCACY CHAIR 10.00 X 0 0 0 BARBARA NEWHOUSE CHIEF EXECUTIVE OFFICER 40.00 X 154000 0 0 FARRAH WATSON DIRECTOR OF FINANCE AND OPERATIONS 40.00 X 85000 0 0 239000 0 0 1 0 1 0 UNIVERSITY OF MICHIGAN CONGENITAL HEAR 1540 E HOSPITAL DR FLR 11 ANN ARBOR MI 48109 MEDICAL RESEARCH 300000 MCDERMOTT WILL & EMERY 444 W LAKE ST CHICAGO IL 60606 LEGAL 257944 BLACKBAUD 2000 DANIEL ISLAND DR CHARLESTON SC 29492 INFORMATION TECHNOLOGY 205640 AMERICAN HEART ASSOCIATION 7272 GREENVILLE AVE DALLAS TX 75231 MEDICAL RESEARCH 200000 THE CHILDREN'S HOSPITAL CORPORATION 300 LONGWOOD AVE BOSTON MA 02115 MEDICAL RESEARCH 199326 5 1455208 110000 1160353 2725561 1037 1037 5930 1455208 428356 -422426 -422426 OTHER INCOME 900099 343 343 343 2304515 343 0 -421389 X 734326 734326 799536 399768 175898 223870 423351 211676 93137 118538 54543 27272 11999 15272 75909 37955 16700 21254 191561 95781 42143 53637 79528 39764 17496 22268 8628 4314 1898 2416 7494 3747 1649 2098 2580 1290 568 722 10798 5399 2376 3023 MISCELLANEOUS 209 105 46 58 2388463 1561397 363910 463156 1614253 1263993 410190 411077 160098 102222 109813 42742 35877 6795 6865 27468 34948 2160928 1986794 864371 776045 34533 32673 898904 808718 X 1161029 843803 100995 334273 1262024 1178076 2160928 1986794 -83948 0 X 0 1 X 1 0 X 2399112 2509205 2544951 2396929 2303135 12153332 2399112 2509205 2544951 2396929 2303135 12153332 0 0 0 12153332 285 400 83 612 1037 2417 285 400 83 612 1037 2417 2323 30507 257746 343 290919 2399397 2511928 2575541 2655287 2304515 12446668 0.97640 0.97730 0.00020 0.00010 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 42742 35877 6865 6865 2732871 0 2732871 -428356 -428356 2304515 2816819 428356 428356 2388463 0 2388463 PART XI, LINE 4B - OTHER ADJUSTMENTS: SPECIAL EVENTS PART XII, LINE 2D - OTHER ADJUSTMENTS: SPECIAL EVENTS EXTERNAL SPECIAL EVENTS 1461138 1455208 5930 19972 42941 365443 1461138 1455208 5930 19972 42941 365443 428356 -422426 0 AMERICAN HEART ASSOCIATION 7272 GREENVILLE AVE DALLAS TX 75231 200000 RESEARCH AMERICAN ACADEMY OF PEDIATRICS 345 PARK BLVD ITASCA IL 60143 35000 RESEARCH CARDIAC NETWORKS UNITED 1000 OAKBROOK DR STE 100 ANN ARBOR MI 48104 300000 RESEARCH BOSTON CHILDREN'S HOSPITAL PO BOX 414413 BOSTON MA 02241 199326 RESEARCH 0 0 0 0 0 0 0 0 0 BARBARA NEWHOUSE CHIEF EXECUTIVE OFFICER 154000 0 0 0 0 0 0 0 0 0 154000 0 0 0 FORM 990, PART VI, SECTION B, LINE 11B THE ORGANIZATION'S BOARD TREASURER REVIEWS FORM 990 AND DISCUSSES IT DURING THE TREASURER'S REPORT AT THE NEXT BOARD MEETING. FORM 990, PART VI, SECTION B, LINE 12C EVERY DIRECTOR AND OFFICER, IN A MANNER, FORM AND FREQUENCY TO BE PRESCRIBED BY THE BOARD OF DIRECTORS, SHALL BE REQUIRED, AS A CONDITION OF HIS OR HER OFFICE, TO DISCLOSE FULLY ANY INTEREST THAT COULD GIVE RISE TO A CONFLICT OF INTEREST AS DEFINED IN ARTICLE 8 OF THE ORGANIZATION'S BYLAWS AND ANY POLICY ADOPTED BY THE BOARD RELATING TO CONFLICT OF INTEREST. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION'S GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY ARE AVAILABLE UPON REQUEST. THE FINANCIAL STATEMENTS ARE AVAILABLE ON THEIR WEBSITE. FORM 990, PART IX, LINE 11G OTHER PROFESSIONAL EXPENSES: PROGRAM SERVICE EXPENSES 211,676. MANAGEMENT AND GENERAL EXPENSES 93,137. FUNDRAISING EXPENSES 118,538. TOTAL EXPENSES 423,351.