2021-10-26T08:58:36-05:00 2020-12-31 473556755 JACOB COHEN CPA LLC 1613 WALNUT STREET 2ND FLOOR PHILADELPHIA PA 19103 990 2020-01-01 453768161 CYSTIC FIBROSIS RESEARCH FUND INC CYST 6106643252 100 ST GEORGES ROAD NO G1 ARDMORE PA 19003 MICHAEL GOLINKOFF PRESIDENT 6106643252 2021-10-21 1 MICHAEL GOLINKOFF XXX-XX-XXXX JACOB COHEN CPA P01083745 2677645476 X 2 AAL1 IAL1 2020 2022-09-23 18:48:47Z EMILY'S ENTOURAGE MICHAEL GOLINKOFF 100 ST GEORGES ROAD UNIT G1 ARDMORE PA 19003 2129748 0 X WWW.EMILYSENTOURAGE.ORG X 1987 PA THE CYSTIC FIBROSIS RESEARCH FUND (EMILY'S ENTOURAGE) ACCELERATES RESEARCH AND DRUG DEVELOPMENT FOR NONSENSE MUTATIONS OF CYSTIC FIBROSIS. 15 15 3 106 0 0 1843829 1781373 0 0 54953 20192 190586 240833 2089368 2042398 821984 679835 0 0 118663 197024 0 0 164712 130447 292432 1071094 1169291 1018274 873107 2308993 3196742 10789 25431 2298204 3171311 THE CYSTIC FIBROSIS RESEARCH FUND (EMILY'S ENTOURAGE) ACCELERATES RESEARCH AND DRUG DEVELOPMENT FOR NONSENSE MUTATIONS OF CYSTIC FIBROSIS. 0 0 860164 679835 THE ORGANIZATION RAISES MONEY FOR CYSTIC FIBROSIS RESEARCH THROUGH DIRECT SOLICITATION ACTIVITIES. 860164 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 0 1 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 6 0 1 3 1 0 0 0 0 0 0 0 0 0 0 X 15 15 1 0 0 0 0 0 0 1 1 0 0 1 0 0 1 0 0 0 PA NY X MICHAEL GOLINKOFF 2153416720 100 ST GEORGES ROAD G1 ARDMORE PA 19003 X MICHAEL GOLINKOFF PRESIDENT 4.00 X X 0 0 0 ELIZABETH P KRAMER SECRETARY 20.00 X X 0 0 0 EMILY K KRAMER-GOLINKOFF DIRECTOR 10.00 X 0 0 0 TED BERNSTEIN DIRECTOR 0.50 X 0 0 0 NICKIE BOSTON DIRECTOR 1.00 X 0 0 0 NICK DINGES DIRECTOR 0.20 X 0 0 0 JOAN DENENBERG DIRECTOR 1.00 X 0 0 0 JESSICA KURTZ ERLBAUM RETD 720 DIRECTOR 0.20 X 0 0 0 NANCY ASTOR FOX DIRECTOR 0.50 X 0 0 0 BETH SHAPIRO LAVIN DIRECTOR 0.20 X 0 0 0 JESSICA RUTSTEIN LAZARUS DIRECTOR 4.00 X 0 0 0 GREG REH DIRECTOR 0.50 X 0 0 0 JULIET SPITZER RETD 720 DIRECTOR 0.20 X 0 0 0 JULIE WERTHEIMER DIRECTOR 1.00 X 0 0 0 DOUG YOUNG DIRECTOR 1.00 X 0 0 0 DANIELLE SELBER DIRECTOR 0.20 X 0 0 0 JACOB KRAMER-GOLINKOFF DIRECTOR 4.00 X 0 0 0 0 0 0 0 0 0 0 0 1039603 741770 74946 1781373 20192 20192 256791 256791 68672 68672 0 0 720 1039603 18678 -17958 -17958 EIDG 2000 2000 2000 2042398 0 0 261025 624835 624835 55000 55000 169811 33963 84905 50943 12349 2470 6174 3705 14864 2973 7432 4459 10420 2293 8127 1433 222 877 334 6001 420 5401 180 1040 1040 SUBCONTRACTORS 102335 102335 FUNDRAISING 71171 71171 CONSULTING 56533 5653 16960 33920 ADVOCACY & EDUCATION 30000 30000 13499 13499 1169291 860164 144415 164712 363096 386980 1945897 2809762 2308993 3196742 10789 8644 16787 10789 25431 X 2298204 3171311 2298204 3171311 2308993 3196742 873107 0 X 0 1 X 0 0 X 238001 443639 729212 1843829 1781373 5036054 238001 443639 729212 1843829 1781373 5036054 265491 4770563 7062 6591 5874 445724 276983 742234 5778288 0.82560 0.86160 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 X 2065324 22926 22926 2042398 0 2042398 1192217 22926 22926 1169291 0 1169291 PART X, LINE 2: CYSTIC FIBROSIS RESEARCH FUND, INC. (EMILY'S ENTOURAGE) IS A NOT-FOR-PROFIT ORGANIZATION WHICH HAS BEEN DETERMINED BY THE INTERNAL REVENUE SERVICE TO BE EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. THE ORGANIZATION RECOGNIZES ACCRUED INTEREST AND PENALTIES ASSOCIATED WITH UNCERTAIN TAX POSITIONS, IF ANY, AS PART OF THE INCOME TAX PROVISION. THERE WAS NO INCOME TAX RELATED INTEREST AND PENALTIES RECORDED FOR THE YEAR ENDED DECEMBER 31, 2020. THE TAX RETURNS OF THE ORGANIZATION FOR THE YEARS ENDED DECEMBER 31, 2017, 2018,AND 2019 ARE SUBJECT TO EXAMINATION BY THE INTERNAL REVENUE SERVICE AND OTHER VARIOUS TAXING AUTHORITIES, GENERALLY FOR THREE YEARS AFTER THEY WERE FILED. 0 0 0 0 0 0 0 0 0 0 NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES CYSTIC FIBROSIS RESEARCH 55000 0 0 0 0 0 0 PART III ACCOUNTING METHOD: ANNUAL GALAS - PA & NY 1040323 1039603 720 18678 1040323 1039603 720 18678 18678 -17958 1 UNIVERSITY OF ILLINOIS AT URBANA-CHAMPAIGN 505 SOUTH MATHEWS AVENUE URBANA IL 61801 376000511 55000 CASH CYSTIC FIBROSIS RESEARCH YALE UNIVERSITY 149 ELM STREET NEW HAVEN CT 06511 141250 CASH CYSTIC FIBROSIS RESEARCH GEORGIA TECH UNIVERSITY 225 NORTH AVENUE FIRST FLOOR ATLANTA GA 30332 51085 CASH CYSTIC FIBROSIS RESEARCH ROCKEFELLER UNIVERSITY 1230 YORK AVE NEW YORK CITY NY 10065 55000 CASH CYSTIC FIBROSIS RESEARCH WISTAR INSTITUTE 3601 SPRUCE STREET PHILADELPHIA PA 19104 55000 CASH CYSTIC FIBROSIS RESEARCH UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 UNIVERSITY BLVD BIRMINGHAM AL 35294 55000 CASH CYSTIC FIBROSIS RESEARCH CASE WESTERN UNIVERSITY 10900 EUCLID AVE CLEVELAND OH 44106 110000 CASH CYSTIC FIBROSIS RESEARCH UNIVERSITY OF CALIFORNIA SAN FRANCISCO 1701 DIVISADERO STREET SAN FRANCISCO CA 94115 82500 CASH CYSTIC FIBROSIS RESEARCH COLD SPRING HARBOR LABORATORY 1 BUNGTOWN ROAD COLD SPRING HARBOR NY 11724 20000 CASH CYSTIC FIBROSIS RESEARCH PART I, LINE 2: ONCE A GRANT APPLICATION IS APPROVED, THE FIRST QUARTER OF THE GRANT IS REMITTED TO THE GRANTEE. EVERY SIX MONTHS, THE GRANTEE IS REQUIRED TO SUBMIT A PROGRESS REPORT TO EMILY'S ENTOURAGE'S SCIENTIFIC SUBCOMMITTEE FOR REVIEW. ONCE THE SUBCOMMITTEE APPROVES THE PROGRESS OF THE PROJECT, ANOTHER QUARTER INSTALLMENT PAYMENT IS RELEASED. ONCE THE GRANT HAS BEEN FULLY PAID, THE GRANTEE ORGANIZATION IS OBLIGED TO SUPPLY A FINAL REPORT AND BUDGET RECONCILIATION TO THE SUBCOMMITTEE. X 4 68672 FAIR MARKET VALUE X MISCELLANEOUS AUCTION ITEMS 10 6274 FAIR MARKET VALUE 0 0 1 PART I, LINE 32B: SOME AUCTION ITEMS WERE AUCTIONED BY CHARITYBUZZ, A FOR-PROFIT INTERNET COMPANY FORM 990, PART VI, SECTION A, LINE 2 THREE BOARD MEMBERS ARE RELATED (PARENTS AND CHILD). FORM 990, PART VI, SECTION B, LINE 11B FORM 990 IS DISTRIBUTED TO BOARD MEMBERS PRIOR TO ITS FILING WITH THE IRS. FORM 990, PART VI, SECTION C, LINE 18 FORM 990 IS DISTRIBUTED TO BOARD MEMBERS PRIOR TO ITS FILING WITH THE IRS. FORM 990, PART VI, SECTION C, LINE 19 ISSUED UPON REQUEST.