2021-08-16T16:15:25-05:00 2020-09-30 910189318 MOSS ADAMS LLP 3121 W MARCH LN STE 200 STOCKTON CA 952192367 990 2019-10-01 474011296 THE MYALGIC ENCEPHALOMYELITIS ACTION NETWORK MYAL 6263547833 1217 WILSHIRE BOULEVARD NO 3639 SANTA MONICA CA 90403 JULIE MIELE EXECUTIVE DIRECTOR 6263547833 2021-08-13 1 TRACY S PAGLIA P00366884 2099556100 2021-08-13 2019 2022-09-23 18:48:47Z X JULIE MIELE 1217 WILSHIRE BOULEVARD NO 3639 SANTA MONICA CA 90403 661074 0 X HTTPS://WWW.MEACTION.NET X 2014 NJ TO BUILD A GLOBAL MOVEMENT TO FIGHT FOR RECOGNITION, EDUCATION, AND RESEARCH SO THAT ONE DAY, ALL PEOPLE WITH ME WILL HAVE ACCESS TO COMPASSIONATE AND EFFECTIVE CARE. 8 7 8 250 0 0 252180 660581 0 0 1 0 269 3 252450 660584 0 0 0 0 275121 423160 0 7500 89299 202632 292176 477753 722836 -225303 -62252 88152 115038 9474 98683 78678 16355 X TO BUILD A GLOBAL MOVEMENT TO FIGHT FOR RECOGNITION, EDUCATION, AND RESEARCH SO THAT ONE DAY, ALL PEOPLE WITH ME WILL HAVE ACCESS TO COMPASSIONATE AND EFFECTIVE CARE. 0 0 134343 0 0 RESEARCH AND MEDICAL:WE AIM TO GROW THE SCIENTIFIC FIELD THROUGH OUTREACH, EDUCATION AND FELLOWSHIP OPPORTUNITIES FOR YOUNG INVESTIGATORS, AND BY EMPOWERING PATIENTS TO UNDERSTAND, ENGAGE WITH AND PARTICIPATE IN RESEARCH. WE ENCOURAGE RESEARCHERS AND CLINICIANS IN THE ME/CFS FIELD, OR WHO ARE INTERESTED IN LEARNING MORE, TO UTILIZE OUR RESOURCES AND PLATFORMS FOR EDUCATION, RESEARCH AND RECRUITMENT. TO SUPPORT THEIR WORK, WE ENCOURAGE PATIENTS TO SIGN UP FOR RESEARCH STUDIES, CONTRIBUTE TO OUR CROWD-SOURCED KNOWLEDGE BASED, MEPEDIA, FOLLOW US ON SOCIAL MEDIA AND WRITE THEIR OWN ARTICLES. 128983 0 0 DIGITAL ADVOCACY AND AWARENESS:ADVOCACY IS A CORNERSTONE OF OUR WORK AT #MEACTION. EVERY YEAR, WE TAKE DECISIVE STEPS TO STRENGTHEN OUR VOICE WITH THE US GOVERNMENT THROUGH THE NATIONAL INSTITUTES OF HEALTH, THE CENTER FOR DISEASE CONTROL & PREVENTION, AND THE DEPARTMENT OF HEALTH AND HUMAN SERVICES. WE URGE EACH AGENCY TO PRIORITIZE THE HEALTH OF ME/CFS PATIENTS THROUGH ACCELERATED RESEARCH, CLINICAL EDUCATION AND A DEDICATED SEARCH FOR AN FDA-APPROVED TREATMENT. INFLUENCED BY THE HIV/AIDS MOVEMENT, OUR ADVOCACY ACTIVITIES INCLUDE PARTICIPATION IN GOVERNMENT COMMITTEES, PUBLISHED PETITIONS, OPEN LETTERS, MEETINGS, PEACEFUL PROTESTS, PRESS CONFERENCES, ADVOCACY DAYS AND MORE. 100032 0 0 #MILLIONSMISSING:#MILLIONSMISSING IS OUR GLOBAL EFFORT TO RAISE AWARENESS AND ACHIEVE RIGHTS FOR ME/CFS PATIENTS. SINCE 2016, WE HAVE BANDED TOGETHER EVERY YEAR IN NEARLY 100 LOCATIONS AROUND THE GLOBE AS A COMMUNITY OF PEOPLE WITH ME/CFS, CAREGIVERS AND ALLIES TO RAISE AWARENESS AND ADVOCATE FOR ACTION: MILLIONS ARE MISSING FROM THEIR CAREERS, SCHOOLS, FAMILIES AND LIVES BECAUSE OF THIS DISABLING DISEASE. MILLIONS OF DOLLARS ARE MISSING FROM RESEARCH AND CLINICAL EDUCATION FUNDING. MILLIONS OF MEDICAL PROVIDERS ARE MISSING OUT ON THE PROPER TRAINING TO DIAGNOSE AND HELP PATIENTS MANAGE THIS ILLNESS. 1462 0 0 OTHER PROGAMS: IN 2019, WE LAUNCHED POSTCARDS TO DOCTORS, A MEDICAL EDUCATION CAMPAIGN IN WHICH WE SENT OVER 6,000 BEAUTIFULLY-DESIGNED, HANDWRITTEN POSTCARDS TO DOCTORS ACROSS THE US - ENCOURAGING THEM TO LEARN MORE ABOUT ME/CFS BY TAKING THE UNREST CONTINUING MEDICAL EDUCATION. ME/CFS PATIENTS ARE ALSO ENCOURAGED TO SEND OUT POSTCARDS. 1462 0 0 364820 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 0 0 0 0 0 1 8 0 1 8 1 0 0 0 0 0 0 0 0 0 0 0 0 X 8 7 0 0 0 0 0 0 0 1 1 0 0 1 0 0 0 0 0 0 CA NJ X X LESLIE BOSSON 3236272458 1462 NORTH OCCIDENTAL BLVD LOS ANGELES CA 90026 X JILL HINSON CO-CHAIR 5.00 X X 0 0 0 BETH MAZUR CO-CHAIR 5.00 X X 0 0 0 MICHELLE PINEDO TREASURER 1.00 X X 0 0 0 JUDY GAYER SECRETARY 1.00 X X 0 0 0 JEN BREA TRUSTEE/EXECUTIVE DIRECTOR 20.00 X X 0 0 0 JD DAVIDS TRUSTEE 1.00 X 0 0 0 ROB SKLANS TRUSTEE 1.00 X 0 0 0 RYAN PRIOR TRUSTEE 1.00 X 0 0 0 0 0 0 0 0 0 0 0 8000 652581 660581 493 490 3 3 660584 0 0 3 X 384819 254134 86315 44370 7825 7825 30516 20153 6845 3518 49666 49666 1000 1000 15463 15463 7500 7500 103224 75336 21691 6197 12619 2910 9709 73446 10506 38795 24145 18964 18964 2080 436 1644 1315 1315 BUSINESS REGISTRATION F 7419 7419 PLATFORM/TRANSACTION FE 3169 3169 3811 30 3381 400 722836 364820 268717 89299 65298 101551 10883 10883 11971 2604 88152 115038 5360 28286 4114 0 0 70397 9474 98683 X 73678 16355 5000 0 78678 16355 88152 115038 X -62252 1 -72 X 0 1 X 1 0 X 30408 143040 711183 252180 660581 1797392 30408 143040 711183 252180 660581 1797392 515452 1281940 1 1 2 10263 3616 493 14372 1811766 0.70760 0.74570 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: SALE OF INVENTORY PART II, COLUMNS (A) - (E): THE ME ACTION NETWORK FILED A SHORT YEAR TAX RETURN TO TRANSITION FROM A CALENDAR YEAR TO A FISCAL YEAR END OF SEPTEMBER 30 FOR THE 2018 FORM 990 (COLUMN (D)). SCHEDULE A, PART II, COLUMN (E) INCLUDES THE ACTIVITY FOR THE FISCAL YEAR OCTOBER 1, 2019 - SEPTEMBER 30, 2020. SCHEDULE A, PART II, COLUMN (D) INCLUDES THE ACTIVITY FOR THE PERIOD JANUARY 1, 2019 - SEPTEMBER 30, 2019, A TOTAL OF NINE MONTHS. SCHEDULE A, PART II, COLUMN (C) REPORTS THE ACTIVITY FOR THE CALENDAR YEAR JANUARY 1, 2018 - DECEMBER 31, 2018. SCHEDULE A, PART II, COLUMN (B) REPORTS THE ACTIVITY FOR THE CALENDAR YEAR JANUARY 1, 2017 - DECEMBER 31, 2017. SCHEDULE A, PART II, COLUMN (A) REPORTS THE ACTIVITY FOR THE CALENDAR YEAR JANUARY 1, 2016 - DECEMBER 31, 2016. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 X 661002 490 490 660512 72 72 660584 723326 490 490 722836 0 722836 PART X, LINE 2: MEACTION IS A NONPROFIT PUBLIC BENEFIT CORPORATION EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND FROM STATE OF CALIFORNIA INCOME TAXES, EXCEPT ON UNRELATED BUSINESS INCOME. THEREFORE, THESE FINANCIAL STATEMENTS CONTAIN NO PROVISION OF SUCH TAXES. INFORMATIONAL RETURNS ARE FILED ANNUALLY WITH FEDERAL AND STATE TAXING AUTHORITIES. MEACTION IS NOT AWARE OF ANY TRANSACTIONS THAT WOULD AFFECT ITS TAX-EXEMPT STATUS. MEACTION HAD NO UNRECOGNIZED TAX BENEFITS AS OF SEPTEMBER 30, 2020. PART XI, LINE 2D - OTHER ADJUSTMENTS: COST OF GOODS SOLD 490. PART XI, LINE 4B - OTHER ADJUSTMENTS: EXCHANGE GAIN OR LOSS 72. PART XII, LINE 2D - OTHER ADJUSTMENTS: COST OF GOODS SOLD 490. EUROPE (INCLUDING ICELAND & GREENLAND) 0 0 PROGRAM SERVICES COORDINATION OF UK VOLUNTEER EFFORTS 51956 0 0 0 0 0 0 51956 0 51956 0 0 0 0 0 0 PART I, LINE 3: ACCRUAL PART III ACCOUNTING METHOD: CANARY JENNIFER BREA IS 100% OWNER OF CANARY BALANCE DUE FOR SHARED OFFICE SPACE AND EXPENSES X 7554 2604 0 1 0 2604 SHELLA FILMS LLC JENNIFER BREA IS 100% OWNER OF SHELLA FILMS, LLC 17000 BELOW-MARKET RENT 0 PARTS II AND IV: CANARY AND SHELLA FILMS ARE 100% OWNED BY JENNIFER BREA. #MEACTION SHARES OFFICE SPACE, UTILITIES, OFFICE EXPENSES AND SOME PAYROLL COSTS WITH CANARY AND SHELLA FILMS. OFFICE SPACE IS PROVIDED AT BELOW MARKET RENT TO #MEACTION. FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 WILL BE REVIEWED BY MANAGEMENT AND PROVIDED TO EACH MEMBER OF THE BOARD OF DIRECTORS PRIOR TO FILING WITH THE IRS. FORM 990, PART VI, SECTION C, LINE 19 #MEACTION DOES NOT CURRENTLY MAKE ITS GOVERNING DOCUMENTS OR CONFLICT OF INTEREST POLICY AVAILABLE TO THE PUBLIC. FINANCIAL STATEMENTS ARE MADE AVAILABLE ON THE ORGANIZATION'S WEBSITE. FORM 990, PART VI, SECTION B, LINES 12, 13, AND 14: #MEACTION WAS IN THE PROCESS OF ADOPTING SUCH POLICIES WHICH WERE ADOPTED IN THE YEAR ENDING SEPTEMBER 30, 2021 AND WILL BE REPORTED IN THE 2020 FORM 990. FORM 990, PART IX, LINE 11G PAYROLL PROCESSING FEES: PROGRAM SERVICE EXPENSES 2,261. MANAGEMENT AND GENERAL EXPENSES 793. FUNDRAISING EXPENSES 412. TOTAL EXPENSES 3,466. DIGITAL SERVICES: PROGRAM SERVICE EXPENSES 65,095. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 65,095. OTHER OUTSIDE SERVICES : PROGRAM SERVICE EXPENSES 7,980. MANAGEMENT AND GENERAL EXPENSES 10,898. FUNDRAISING EXPENSES 5,785. TOTAL EXPENSES 24,663. ADVOCACY CONSULTING: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 10,000. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 10,000. FORM 990, PART XI, LINE 9: EXCHANGE LOSS -72.