2021-12-13T07:47:33-06:00 2021-01-31 273605969 CBIZ MHM LLC 140 FOUNTAIN PKWY N STE 410 ST PETERSBURG FL 33716 990 2020-02-01 943124732 AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION AMYO 8136379000 3242 PARKSIDE CENTER CIRCLE TAMPA FL 33619 RAY CARSON PRESIDENT/CEO 8136379000 2021-12-13 1 RAY CARSON XXX-XX-XXXX PAUL DUNHAM P00100222 7275721400 2 AAL1 IAL1 2020 2022-09-23 18:48:47Z THE ALS ASSOCIATION FLORIDA CHAPTER INC RAY CARSON 3242 PARKSIDE CENTER CIRCLE TAMPA FL 33619 2836771 0 4119 X ALSAFL.ORG X 1987 FL IMPROVING THE LIVES OF PEOPLE LIVING WITH ALS, RAISING PROGRAMS FUNDS & PARTICIPATING IN ADVOCACY. 12 12 20 325 741 0 1962348 2711833 0 0 1419 2447 -80432 -54028 1883335 2660252 310864 312384 0 0 1141838 1219290 0 0 321972 668431 922772 2121133 2454446 -237798 205806 1150493 1859209 337277 845187 813216 1014022 X OUR MISSION IS TO DISCOVER TREATMENTS AND A CURE FOR ALS, AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST. 0 0 1462652 197331 PATIENT SERVICES: THE ALS ASSOCIATION FLORIDA CHAPTER PROVIDED A WIDE RANGE OF SERVICES AND PROGRAMS TO HELP PEOPLE LIVING WITH LOU GEHRIG'S DISEASE. THE CHAPTER SERVED 1,477 PATIENTS IN 2020. PROGRAMS INCLUDED: 1) PARTNERSHIP WITH 10 MULTIDISCIPLINARY ALS CLINICS IN THE STATE OF FLORIDA, WHICH INCLUDE IN-KIND STAFF SUPPORT, PROVIDING 1,548 CLINIC VISITS; 2) A NETWORK OF TEN CARE SERVICES STAFF WHO HELPED PATIENTS, FAMILIES, AND CAREGIVERS NAVIGATE THE PHYSICAL, SOCIAL, EMOTIONAL, AND FINANCIAL EFFECTS OF ALS THROUGH CASE MANAGEMENT, SOCIAL WORK SERVICES, REFERRALS, ASSESSMENTS, EDUCATION AND GOVERNMENT/VETERAN BENEFITS/INSURANCE ADVOCACY; 3) SUPPORT/RESOURCE GROUPS IN 21 STATEWIDE LOCATIONS, 148 MEETINGS HELD, ATTENDED BY 1,231 PEOPLE OVER THE YEAR; (CONTINUED ON SCHEDULE O)4) LOANED MEDICAL EQUIPMENT AND ASSISTIVE TECHNOLOGY PROGRAMS THAT PROVIDED 275 PIECES OF DURABLE MEDICAL EQUIPMENT AND ASSISTIVE AUGMENTED COMMUNICATION DEVICES TO PATIENTS IN NEED; 5) ALS SPECIALTY HOME HEALTH COORDINATION; 6) A VISITING VOLUNTEERS PROGRAM THAT MATCHED 19 PEOPLE LIVING WITH ALS WITH A VOLUNTEER TO ASSIST IN THE HOME WITH NON-MEDICAL NEEDS SUCH AS YARD WORK, HOME CLEANING, AND OTHER HOME PROJECTS; 7) FUNDING FOR 111 MONETARY GRANTS TO PATIENTS THAT PROVIDED 479 HOURS OF RESPITE CARE, AS WELL AS HOME MODIFICATIONS, VAN MODIFICATIONS, TRANSPORTATION, MEDICAL EQUIPMENT NOT COVERED BY INSURANCE, AND OTHER FINANCIAL NEEDS; 8) THE RICK AND SHERRY MURRAY MEDICAL FUTURES SCHOLARSHIP FUND, PROVIDING SCHOLARSHIPS TO 1 STUDENT; 9) ONE HOPE AND HELP SYMPOSIUM, A FULL-DAY EVENT THAT FEATURED INFORMATIVE SESSIONS FOR PATIENTS, CAREGIVERS, AND SUPPORTERS OF PEOPLE WITH ALS AND INCLUDED IMPORTANT KEYNOTE SPEAKERS, A VENDOR FAIR, OPPORTUNITIES TO "ASK THE EXPERTS, AND AN AMBASSADOR OF HOPE. IN 2020, BECAUSE OF COVID-19 THIS EVENT WAS HELD VIRTUALLY AND ATTENDED BY 252 CONSTITUENTS. 397323 25719 AWARENESS: THROUGH PUBLIC OUTREACH, MEDIA RELATIONS, ONLINE PLATFORMS, CHAPTER COLLATERAL, AND SOCIAL MEDIA, THE ALS ASSOCIATION FLORIDA CHAPTER CONTINUED TO RAISE AWARENESS ABOUT ALS, THE PEOPLE WE SERVE, OUR PUBLIC POLICY GOALS, AND THE SEARCH FOR A TREATMENT AND CURE. OUR WEBSITE IS AN INVALUABLE SOURCE OF INFORMATION FOR THOSE LIVING WITH ALS AND PEOPLE LOOKING FOR THE LATEST INFORMATION ABOUT THE DISEASE. CHAPTER COLLATERAL SUCH AS BROCHURES, INFOGRAPHIC HANDOUTS, AND FLYERS PROVIDED OUR CONSTITUENTS IN THE COMMUNITIES WE SERVE WITH TIMELY INFORMATION ABOUT THE CHAPTER AND THE ACHIEVEMENT OF OUR MISSION PRIORITIES. (CONTINUED ON SCHEDULE O)E-COMMUNICATION CAMPAIGNS SUCH AS OUR MONTHLY EMAIL NEWSLETTERS, END OF YEAR GIVING CAMPAIGN, ALS AWARENESS MONTH CAMPAIGN, AND OTHER FUNDRAISING CAMPAIGNS WERE DEVELOPED TO FURTHER OUR PUBLIC POLICY, CARE SERVICES AND GLOBAL RESEARCH GOALS. STATEWIDE AWARENESS EVENTS SUCH AS OUR PARTNERSHIP WITH VARIOUS SPONSORS AND PARTICIPATION IN HEALTH FAIRS PROVIDED OPPORTUNITIES TO BRING THE ALS COMMUNITY TOGETHER THROUGHOUT THE STATE. MEDIA RELATIONS AND ONGOING COMMUNICATION WITH VARIOUS MEDIA OUTLETS AROUND THE STATE PROVIDED THE LATEST NEWS AND MANY PATIENT STORIES, SPOTLIGHTING THE NEED FOR MORE FUNDING AND CARE AND SUPPORT OF THE ALS COMMUNITY IN FLORIDA. SOCIAL MEDIA CHANNELS INCLUDING FACEBOOK, TWITTER, AND INSTAGRAM, PROVIDED THE CHAPTER THE CHANCE TO SPREAD AWARENESS OF THE LATEST RESEARCH UPDATES, CHAPTER AND STATEWIDE EVENTS, AND BUILD AN ONLINE COMMUNITY WITH THOSE LIVING WITH ALS AND THOSE SUPPORTING THE ALS COMMUNITY STATEWIDE. 89334 89334 RESEARCH: THE ALS ASSOCIATION FLORIDA CHAPTER, THROUGH THE ALS ASSOCIATION, HAS COMMITTED OVER $2 MILLION TO RESEARCH AT SEVERAL RENOWNED RESEARCH CENTERS IN THE STATE INCLUDING THE MAYO CLINIC IN JACKSONVILLE, THE UNIVERSITY OF SOUTH FLORIDA IN TAMPA, THE UNIVERSITY OF FLORIDA IN GAINESVILLE AND JACKSONVILLE, THE UNIVERSITY OF MIAMI, AND HOLY CROSS. FLORIDA PATIENTS AND RESEARCHERS PARTICIPATE IN A VARIETY OF STUDIES INCLUDING: BIOMARKER, DRUG DEVELOPMENT, GENETICS, DISEASE MECHANISM, OBSERVATIONAL/NATURAL HISTORY, AND SYMPTOM MANAGEMENT. THE CHAPTER ALSO WORK TO ENCOURAGE PEOPLE LIVING WITH ALS TO REGISTER WITH THE NATIONAL ALS REGISTRY THROUGH THE CENTERS FOR DISEASE CONTROL AND PREVENTION. 85469 ADVOCACY: THE ALS ASSOCIATION FLORIDA CHAPTER SUPPORTS THE ALS ASSOCIATION'S ADVOCACY AGENDA INCLUDING APPROPRIATIONS, LEGISLATION, AND REGULATORY AFFAIRS.FEDERAL PUBLIC POLICY PRIORITIESAPPROPRIATIONS FOR ALS RESEARCH:NATIONAL ALS REGISTRY - PROVIDE $10 MILLION APPROPRIATION TO CONTINUE THE NATIONAL ALS REGISTRY AND BIOREPOSITORY AT THE CENTERS FOR DISEASE CONTROL AND PREVENTION. THE REGISTRY COLLECTS DATA AND DIRECTS A BIOREPOSITORY FOR PEOPLE LIVING WITH ALS AND COLLABORATES WITH THE CENTERS FOR MEDICARE AND MEDICAID SERVICES, THE VETERAN'S ADMINISTRATION AND THE NATIONAL INSTITUTES OF HEALTH (NIH). IT IS A CRITICAL DRIVER OF THE SEARCH TO FIND TREATMENTS AND A CURE BECAUSE IT CONNECTS RESEARCHERS CONDUCTING CLINICAL TRIALS WITH PEOPLE LIVING WITH ALS IN ADDITION TO FUNDING ITS OWN RESEARCH.DEPARTMENT OF DEFENSE - PROVIDE A $10 MILLION APPROPRIATION TO CONTINUE THE ALS RESEARCH PROGRAM (ALSRP) AT THE DEPARTMENT OF DEFENSE (DOD). RESEARCH HAS REPEATEDLY DEMONSTRATED THAT MILITARY VETERANS, REGARDLESS OF BRANCH OR ERA OF SERVICE, ARE APPROXIMATELY TWICE AS LIKELY TO DIE FROM ALS THAN CIVILIANS. THE ALS RESEARCH PROGRAM (ALSRP), FUNDED AS PART OF THE CONGRESSIONAL DIRECTED MEDICAL RESEARCH PROGRAM AT DOD, PROVIDES COMPETITIVE GRANTS THAT ARE AN ESSENTIAL COMPONENT OF EFFORTS TO IDENTIFY TREATMENTS AND A CURE FOR ALS.NATIONAL INSTITUTES OF HEALTH - CONTINUE ALS RESEARCH AT THE NATIONAL INSTITUTE FOR NEUROLOGICAL DISORDERS AND STROKE AND OTHER INSTITUTES AT THE NATIONAL INSTITUTES OF HEALTH (NIH). NIH SPENDS APPROXIMATELY $55 MILLION FOR ALS RESEARCH WITHIN THE NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS AND STROKE (NINDS) AND FOUR OTHER INSTITUTES.LEGISLATION:WAIVE THE FIVE-MONTH WAITING PERIOD FOR SOCIAL SECURITY - THE ALS DISABILITY INSURANCE ACCESS ACT (S.379/ H.R.1171) TO ELIMINATE THE FIVE-MONTH WAITING PERIOD FOR SOCIAL SECURITY DISABILITY INSURANCE (SSDI) OR MEDICARE DID NOT PASS IN THE 115TH CONGRESS. UNDER CURRENT LAW, PEOPLE WITH ALS WHO QUALIFY FOR SOCIAL SECURITY DISABILITY INSURANCE (SSDI) MUST WAIT FIVE MONTHS BEFORE RECEIVING SSDI AND ACCESS TO MEDICARE. THE LEGISLATION WOULD ELIMINATE THE FIVE-MONTH WAITING PERIOD FOR PEOPLE WITH ALS. THE BILL WILL BE RE-INTRODUCED IN THE 116TH CONGRESS.REGULATORY AFFAIRS:MEDICARE PROPOSED RULE - THE ALS ASSOCIATION SUBMITTED COMMENTS ON THE CENTERS FOR MEDICARE AND MEDICAID (CMS) PROPOSED RULE 1689-P. THE LETTER FOCUSED ON TWO COMPONENTS OF THE PROPOSED RULE: HOME HEALTH AND HOME INFUSIONS.CHAPTER ADVOCACY ACTIVITIES:MARCH 2020 - PARTICIPATED IN "FLY-IN" ADVOCACY TOP ROOTS (IN WASHINGTON, DC) EVENT VIRTUALLY THIS YEAR BECAUSE OF COVID-19. MET WITH TARGETED FLORIDA REPRESENTATIVES OVER ZOOM VIDEO CALLS.MAY 2020 - ANNUAL NATIONAL ALS ADVOCACY DAYS AND PUBLIC POLICY CONFERENCE TYPICALLY ATTENDED IN WASHINGTON, DC WAS ATTENDED VIRTUALLY OVER ZOOM VIDEO CALLS. CHAPTER ADVOCATES MET WITH FLORIDA'S TWO SENATORS AND 27 REPRESENTATIVES VIRTUALLY.OTHER ADVOCACY ACTIVITIES:BOARD OF DIRECTORS COMMITTEE ON ADVOCACY FOCUSED ON ENGAGING BOARD MEMBERS IN FEDERAL ADVOCACY AND DISCUSSED OPTIONS FOR BUILDING A STATE ADVOCACY PROGRAM. 85469 2034778 1 1 0 1 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 0 0 0 0 1 0 0 1 1 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 5 0 1 20 1 1 1 0 0 0 0 1 1 0 0 0 0 0 0 X 12 12 1 0 1 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 FL X X RAY CARSON 8136379000 3242 PARKSIDE CENTER CIRCLE TAMPA FL 33619 JOHN CANNISTRA CHAIRMAN 5.00 X X 0 0 0 HAMPTON GRAHAM VICE CHARIMAN 5.00 X X 0 0 0 GLENN STAMBAUGH TREASURER 5.00 X X 0 0 0 SHARON SAM MAYBROOK SECRETARY 5.00 X 0 0 0 JO-ANN CLYNCH TRUSTEE 3.00 X 0 0 0 ALECIA JONES BAILEY TRUSTEE 3.00 X 0 0 0 JOHN COLLINS TRUSTEE 3.00 X 0 0 0 KEVIN CONN TRUSTEE 3.00 X 0 0 0 TROY FIELDS TRUSTEE 3.00 X 0 0 0 MELISSA SPRING TRUSTEE 3.00 X 0 0 0 CHRISTINE HOPKINS TRUSTEE 3.00 X 0 0 0 JEFF EBERT TRUSTEE 3.00 X 0 0 0 RAY CARSON PRESIDENT/CEO 40.00 X 130000 0 3900 130000 0 3900 1 0 0 0 MAYO CLINIC JACKSONVILLE 4500 SAN PABLO RD JACKSONVILLE FL 32224 CENTER SUPPORT 147802 UNIVERSITY OF MIAMI 1150 NW 14TH ST STE 609 MIAMI FL 33136 CENTER SUPPORT 139848 USF FOUNDATION INC 4202 E FOWLER AVE ALC 100 TAMPA FL 33620 CENTER SUPPORT 123395 3 809996 508334 1393503 201495 2711833 1144 1144 14494 12186 2308 2308 741 1567 107836 106533 1303 1303 1303 1435 809996 57800 -56365 -56365 29 29 29 2660252 0 741 -52322 X 251853 251853 60531 60531 133900 107120 13390 13390 916664 668438 13167 235059 14598 10532 72 3994 73758 54433 1844 17481 80370 59313 2009 19048 65 65 60610 11633 42142 6835 37270 37270 534047 528383 540 5124 68418 54180 7468 6770 65692 52554 6569 6569 31023 24818 3102 3103 5731 5731 10211 6460 441 3310 10046 8319 722 1005 2633 2107 263 263 MEDICAL EQUIPMENT 96600 96600 EXCISE TAX 215 215 211 169 21 21 2454446 2034778 97696 321972 X 14373 982 0 13391 81007 344353 422258 579198 96335 395609 4145 13262 1136947 610505 540303 526442 6037 0 408 345 1150493 1859209 73007 77300 30468 232777 177491 161496 190600 56311 183014 337277 845187 X 755525 931329 57691 82693 813216 1014022 1150493 1859209 X 205806 -5000 X X 0 1 X 1 0 X 2516946 2579574 2344722 1962348 2711833 12115423 5845 5845 587 29 616 2522791 2579574 2345309 1962348 2711862 12121884 28675 53256 80166 59373 19218 240688 0 28675 53256 80166 59373 19218 240688 11881196 1467 4276 16584 17343 10987 50657 2847 1808 1933 1224 7812 4314 6084 18517 18567 10987 58469 830 2540 3370 2527935 2588198 2363826 1980915 2722849 12183723 0.97520 0.97360 0.00480 0.00400 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 0 0 0 0 1 37270 0 0 37270 0 PART II-B, LINE 1: THE CHAPTER'S ADVOCACY EFFORTS INCLUDE BOTH GRASSROOTS AND DIRECT LOBBYING ACTIVITIES. GRASSROOTS ACTIVITIES ARE CONDUCTED BY VOLUNTEERS, PATIENTS AND/OR OTHER CONSTITUENTS. GRASSROOTS VOLUNTEERS MEET WITH LEGISLATORS AND/OR SEND INFORMATION ON KEY LEGISLATIVE PRIORITIES TO LEGISLATIVE OFFICES. THE CHAPTER WORKS WITH ELECTED OFFICIALS AT THE STATE AND FEDERAL LEVELS. DIRECT LOBBYING IS CONDUCTED THROUGH VIRTUAL MEETINGS WITH LEGISLATORS. FOR THE FISCAL YEAR ENDED JANUARY 31, 2021, THE PRESIDENT/CEO, TWO STAFF MEMBERS AND ABOUT ONE DOZEN VOLUNTEER PARTICIPATED IN VIRTUAL MEETINGS WITH FEDERAL LEGISLATORS. INDIVIDUAL MEETINGS LASTED BETWEEN 15 AND 30 MINUTES. 225000 225000 485609 184167 301442 426338 426338 0 526442 DUE TO NATIONAL ALS 183014 183014 X 2730238 69986 69986 2660252 0 2660252 2529432 74986 74986 2454446 0 2454446 PART X, LINE 2: THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION AND ITS AFFILIATED CHAPTERS, INCLUDING THE ASSOCIATION, HAVE BEEN RECOGNIZED COLLECTIVELY BY THE INTERNAL REVENUE SERVICE AS TAX-EXEMPT ORGANIZATIONS DESCRIBED IN SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE OF 1986. INCOME EARNED IN FURTHERANCE OF THE ASSOCIATION'S TAX-EXEMPT PURPOSE IS EXEMPT FROM FEDERAL AND STATE INCOME TAXES. THE ASSOCIATION, THROUGH THE COLLECTIVE EXEMPTION DESCRIBED PREVIOUSLY, IS TREATED AS A PUBLICLY SUPPORTED ORGANIZATION, AND NOT AS A PRIVATE FOUNDATION. THE ASSOCIATION HAS ADOPTED THE PROVISIONS OF ASC TOPIC 740, INCOME TAXES, RELATING TO ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES AND DOES NOT BELIEVE IT HAS ANY MATERIAL INCOME TAX EXPOSURE RELATING TO UNCERTAIN TAX POSITIONS. THE ASSOCIATION'S INCOME TAX FILINGS FOR PERIODS AFTER THE FISCAL YEAR ENDED JANUARY 31, 2018 REMAIN SUBJECT TO EXAMINATION. BEGINNING WITH THE YEAR ENDED JANUARY 31, 2009, THE ASSOCIATION RECEIVED RENT FROM A TENANT, WHICH IS CONSIDERED UNRELATED TAXABLE BUSINESS INCOME. FOR THE YEARS ENDED JANUARY 31, 2021 AND 2020, THIS ACTIVITY GENERATED A NOMINAL AMOUNT OF INCOME TAX EXPENSE IN EACH YEAR. PART XI, LINE 2D - OTHER ADJUSTMENTS: EVENT EXPENSES DEDUCTED ON PART VIII, LINE 8B 57,800. RENTAL EXPENSES DEDUCTED ON PART VIII, LINE 6B 12,186. PART XII, LINE 2D - OTHER ADJUSTMENTS: EVENT EXPENSES DEDUCTED ON PART VIII, LINE 8B 57,800. RENTAL EXPENSES DEDUCTED ON PART VIII, LINE 6B 12,186. WRITE OFF OF UNCOLLECTABLE PLEDGES REPORTED ON PART XI, LINE 9 5,000. WALK TO DEFEAT ALS EVENTS 659425 659425 14652 36952 RIDE TO DEFEAT ALS EVENTS 114268 112833 1435 273 4200 1 37738 37738 1723 811431 809996 1435 14925 42875 57800 -56365 1 THE ALS ASSOCIATION 1275 K STREET NW 250 WASHINGTON DC 20005 133271855 501(C)(3) 10584 0 N/A N/A RESEARCH THE ALS ASSOCIATION 1275 K STREET NW 250 WASHINGTON DC 20005 133271855 501(C)(3) 241269 0 N/A N/A ADVOCACY, AWARENESS, CARE SERVICES, ETC. 1 0 MEDICAL FUTURES SCHOLARSHIPS 1 5000 N/A N/A TRANSPORTATION 11 461 N/A N/A EQUIPMENT LOAN PROGRAM 195 0 EQUIPMENT IS NOT VALUED 275 PIECES OF DURABLE MEDICAL EQUIPMENT AND COMMUNICATION DEVICES LOANED CARE ASSIST GRANTS (SEE PART IV) 100 55070 N/A N/A PART I, LINE 2: APPLICANTS APPLY FOR GRANTS ONLINE. APPLICATIONS ARE REVIEWED FOR A VARIETY OF FACTORS, INCLUDING BUT NOT LIMITED TO CONFORMITY WITH GRANT CRITERIA, VALIDITY OF NEED, OTHER POTENTIAL FUNDING SOURCES, ETC. GRANTS ARE SUBSTANTIATED THROUGH RESPITE CALENDARS, EQUIPMENT INVOICES, AND OTHER RELEVANT RECEIPTS. PART III - GRANTS AND OTHER ASSISTANCE TO DOMESTIC INDIVIDUALS: FINANCIAL ASSISTANCE PROGRAMS AID FINANCIALLY STRESSED PEOPLE LIVING WITH ALS AND THEIR FAMILIES WITH EQUIPMENT AND SERVICES. ASSISTANCE IS AVAILABLE FOR RESPITE CARE, HOME MODIFICATIONS, VAN MODIFICATIONS OR VAN PURCHASE ASSISTANCE, MEDICAL EQUIPMENT, ASSISTIVE TECHNOLOGY, AND TRANSPORTATION TO AN ALS CERTIFIED CENTER OF EXCELLENCE OR CLINIC AFFILIATED WITH THE ALS ASSOCIATION FLORIDA CHAPTER. WE ALSO OFFER TEMPORARY LOANER EQUIPMENT, INCLUDING SPEECH GENERATING DEVICES, TO FLORIDA RESIDENTS WITH A VERIFIED DIAGNOSIS OF ALS WHO ARE UNINSURED, UNDERINSURED, WHO CANNOT ACCESS THEIR INSURANCE (WHILE IN A NURSING HOME OR HOSPICE) OR WHO ARE WAITING FOR INSURANCE APPROVAL. WE COLLABORATE WITH DURABLE MEDICAL EQUIPMENT (DME) COMPANIES, ACCESSIBLE VAN DEALERS AND MODIFICATION BUSINESSES THAT PROVIDE SERVICES TO PEOPLE WITH ALS AND HAVE SPECIALISTS KNOWLEDGEABLE ABOUT THE PROGRESSIVE EQUIPMENT NEEDS OF PERSONS WITH ALS. X 17 104895 STOCK QUOTE X MEDICAL EQUIPMENT 103 96600 FAIR MARKET VALUE 0 0 1 0 FORM 990, PART VI, SECTION A, LINE 2 TRUSTEES HAMPTON GRAHAM AND GLENN STAMBAUGH HAVE A PROFESSIONAL BUSINESS RELATIONSHIP OUTSIDE OF THEIR DUTIES AS BOARD MEMBERS. FORM 990, PART VI, SECTION A, LINE 4 THE BYLAWS WERE AMENDED DURING THE YEAR. THE FIRST CHANGE CREATED A NEW CLASS OF BOARD MEMBER KNOWN AS HONORARY LIFE MEMBER. THE NEW CLASS WAS RECOMMENDED SO THAT THE CHAPTER BOARD COULD HAVE THE OPTION OF RETAINING THE INSTITUTIONAL KNOWLEDGE OF VALUED BOARD MEMBERS AFTER THEY HAVE COMPLETED THEIR THREE, 3-YEAR TERMS. APPROVED HONORARY LIFE MEMBERS WOULD BE INVITED TO ALL BOARD MEETINGS BUT WOULD NOT HAVE THE ABILITY TO VOTE SO THEY WOULD NOT BE COUNTED TOWARD A MEETING QUORUM. THE SECOND BYLAW CHANGE AUTOMATICALLY EXTENDED THE TERM OF AN OUTGOING CHAIRMAN BY TWO YEARS, EVEN IF THAT MEANS THAT THE INDIVIDUAL WOULD EXCEED HIS/HER THREE, 3-YEAR TERMS TO ENSURE THAT AN INCOMING CHAIRMAN WOULD HAVE THE BENEFIT AND SUPPORT OF HAVING THE IMMEDIATE PAST CHAIRMAN ON THE BOARD. FORM 990, PART VI, SECTION B, LINE 11B THE AUDIT REPORT AND FORM 990 IS FIRST REVIEWED AND DISCUSSED WITH THE FINANCE COMMITTEE AND THE ACCOUNTANT. ONCE ANY QUESTIONS OR CONCERNS HAVE BEEN ADDRESSED, THE FINANCE COMMITTEE VOTES TO ACCEPT THE AUDIT REPORT AND FORM 990. ONCE THIS IS COMPLETE, BOTH ARE PRESENTED TO THE ENTIRE BOARD OF DIRECTORS FOR VOTE AND APPROVAL. FORM 990, PART VI, SECTION B, LINE 12C BOARD MEMBERS AND KEY EMPLOYEES ARE ASKED TO SIGN A CONFLICT OF INTEREST POLICY ANNUALLY. ANY CONFLICTS ARE DISCUSSED WITH THE EXECUTIVE COMMITTEE OF THE BOARD FOR APPROPRIATE ACTION, IF NECESSARY. BOARD MEMBERS WITH A CONFLICT ON ANY VOTING MATTERS RECUSE THEMSELVES FROM THE VOTE. FORM 990, PART VI, SECTION B, LINE 15 THE PROCESS FOR DETERMINING THE PRESIDENT/CEO'S SALARY IS AS FOLLOWS: (1) THE PRESIDENT/CEO'S PERFORMANCE IS REVIEWED BY THE CHAIRMAN AND A WRITTEN EVALUATION IS PROVIDED TO THE PRESIDENT/CEO AND TO THE EXECUTIVE COMMITTEE; (2) SALARY IS DETERMINED AND DOCUMENTED BY USING COMPARABLE DATA FROM NONPROFITS OF SIMILAR MISSION, BUDGET SIZE, AND GEOGRAPHIC REGION, INCLUDING SISTER ALS CHAPTERS, WITH ALLOWANCES MADE FOR DIFFERENCES IN SIZE AND LOCATION; (3) THE EXECUTIVE COMMITTEE MAKES A RECOMMENDATION TO THE BOARD FOR APPROVAL; AND (4) THE BOARD'S CONSIDERATION AND APPROVAL OF THE COMPENSATION IS DOCUMENTED IN THE BOARDS MINUTES. THE PROCESS FOR DETERMINING KEY EMPLOYEE'S SALARY IS AS FOLLOWS: (1) THE EMPLOYEE'S PERFORMANCE IS REVIEWED BY THE PRESIDENT/CEO; AND (2) SALARY IS DETERMINED AND DOCUMENTED BY USING COMPARABLE DATA FROM NONPROFITS OF SIMILAR MISSION, BUDGET SIZE, AND GEOGRAPHIC REGION. FORM 990, PART VI, SECTION C, LINE 19 THE CHAPTER MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST. FORM 990, PART IX, LINE 11G PAYROLL ADMINISTRATION: PROGRAM SERVICE EXPENSES 15,955. MANAGEMENT AND GENERAL EXPENSES 540. FUNDRAISING EXPENSES 5,124. TOTAL EXPENSES 21,619. OTHER PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 52,319. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 52,319. CONTRACTOR FEES: PROGRAM SERVICE EXPENSES 18,900. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 18,900. SUBCONTRACTOR FEES-CENTER SUPPORT: PROGRAM SERVICE EXPENSES 441,209. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 441,209. FORM 990, PART XI, LINE 9: WRITE OFF OF UNCOLLECTABLE PLEDGES -5,000. FORM 990, PART XII, LINE 2C: THE FINANCIAL STATEMENT AUDIT AND SELECTION OF THE INDEPENDENT CPA FIRM IS MANAGED BY THE PRESIDENT/CEO AND OVERSEEN BY THE FINANCE COMMITTEE OF THE BOARD. THE CPA FIRM PRESENTS THE AUDIT AND 990 TO THE FINANCE COMMITTEE. THE FIRM MEETS WITH THE TREASURER AT LEAST ONCE WITHOUT STAFF PRESENT TO ENSURE THE PROCESS IS FULLY INDEPENDENT. THE FINANCE COMMITTEE THEN PRESENTS THE AUDIT AND 990 TO THE FULL BOARD. THE CPA FIRM IS CHOSEN FROM THREE (3) INDEPENDENT PROPOSALS WHEN A CHANGE IN FIRM IS MADE. THIS PROCESS HAS NOT CHANGED FROM THE PRIOR YEAR.