2021-08-16T17:15:09-05:00 2020-09-30 822029500 TOAL MURRAY DAY & LALOR LLC 130 ADMIRAL COCHRANE DR SUITE 200 ANNAPOLIS MD 214017368 990 2019-10-01 352222262 CURE JM FOUNDATION CURE 2025966267 19309 WINMEADE DRIVE SUITE 204 LEESBURG VA 20176 JAMES MINOW EXECUTIVE DIRECTOR 2025966267 2021-08-16 THADDEUS N TOAL CPA P00780668 4102240343 2021-08-16 2019 2022-09-23 18:48:47Z JAMES MINOW 19309 WINMEADE DRIVE SUITE 204 LEESBURG VA 20176 2004444 false X WWW.CUREJM.ORG X 2003 CA TO FIND BETTER TREATMENTS AND A CURE FOR JUVENILE MYOSITIS AND IMPROVE THE LIVES OF FAMILIES. 15 15 9 226 0 1854330 1891711 0 13143 14640 55797 1219 1923270 1907570 880722 1075543 0 660872 669864 0 379360 198806 219300 1740400 1964707 182870 -57137 1920336 1977559 105866 217801 1814470 1759758 X TO FIND BETTER TREATMENTS AND A CURE FOR JUVENILE MYOSITIS AND IMPROVE THE LIVES OF FAMILIES. false false 1225453 1075543 THE ORGANIZATION DIRECTLY SUPPORTED RESEARCH AS FOLLOWS: 1) 262,548 TO THE CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE (CARRA) TO LAUNCH A MULTI-CENTER JM PATIENT REGISTRY TO COLLECT INFORMATION AT THE TIME OF DIAGNOSIS AND AT REGULAR INTERVALS ABOUT HOW A PATIENT IS DOING, MEDICATIONS USED, AND SIDE EFFECTS; 2) 113,234 TO THE CENTER FOR APPLIED GENOMICS AT CHILDRENS'S HOSPITAL OF PHILADELPHIA, TO INVEST IN A GENETIC DISCOVERY PROGRAM; 3) 100,000 TO THE NATIONAL CENTER FOR ADVANCING TRANSLATIONAL SCIENCES - NIH IN BETHESDA, MD; 4) 95,000 TO GEORGE WASHINGTON UNIVERSITY'S PROJECT TO MEASURE OXIDATIVE STRESS AND MITOCHONDRIAL FUNCTION AS POSSIBLE CAUSES OF FATIGUE; 5) 87,500 TO THE ANN & ROBERT H. LURIE CHILDREN'S HOSPITAL IN CHICAGO, IL FOR CURE JM PROGRAM OF EXCELLENCE RESEARCH; 6) 83,500 TO DUKE UNIVERSITY MEDICAL CENTER IN DURHAM, NC TO IDENTIFY ABERRANT PATTERNS OF METABOLITE EXPRESSION IN THE BLOOD AND MUSCLE OF CHILDREN WITH JDM; 7) 73,938 TO THE HOSPITAL FOR SICK CHILDREN IN WASHINGTON, DC; 8) 60,014 TO THE SEATTLE CHILDREN'S HOSPITAL IN SEATTLE, WA; 9) 20,000 TO THE NATIONAL INSTITUTE OF ENVIRONMENTAL HEALTH SCIENCES IN DURHAM, NC TO INVESTIGATE THE CLINICAL RESPONSE TO THERAPIES IN PATIENTS WITH JDM; 10) 11,581 TO THE GLOBAL CONFERENCE ON MYOSITIS, INC. IN JACKSONVILLE, FL; AND 11) 150,020 TO UNIVERSITY COLLEGE LONDON (UK) FOR THE STUDY OF GENETIC RISK FACTORS FOR JUVENILE DERMATOMYOSITIS. 96874 THE ANNUAL NATIONAL FAMILY CONFERENCE & WALK STRONG TO CURE JM EVENT WAS HELD IN VARIOUS LOCATIONS ACROSS THE UNITED STATES. FAMILIES ATTENDED INCLUDING GRANDPARENTS, PARENTS, CHILDREN, TEENS, YOUNG ADULTS. MEDICAL PROFESSIONALS ALSO PARTICIPATED IN A MEDICAL CONFERENCE TO SHARE THE LATEST ADVANCEMENTS IN JM RESEARCH AND TREATMENTS. FAMILIES CAPPED THE WEEKEND WITH ATTENDANCE AT THE WALK STRONG TO CURE JM EVENTS. 38507 THE ORGANIZATION IS COMMITTED TO INCREASING AWARENESS AND EDUCATION OF THIS RARE, INCURABLE AUTOIMMUNE DISEASE AS WELL AS PROVIDING A SUPPORT COMMUNITY FOR IMPACTED FAMILIES. THESE EFFORTS ARE ACCOMPLISHED THROUGH A VARIETY OF METHODS SUCH AS: ATTENDANCE AT MEDICAL CONFERENCES REPRESENTING CURE JM FOUNDATION AND ITS WORK/ACTIVITIES; DISTRIBUTION OF PRINTED INFORMATION CARDS, BROCHURES AND EDUCATIONAL BOOKS TO IMPACTED FAMILIES AND THE MEDICAL COMMUNITY; DISTRIBUTION OF WELCOME KITS TO NEWLY DIAGNOSED FAMILIES; NEWSLETTERS; EDUCATIONAL EVENTS AND GATHERINGS; FAMILY SUPPORT; SURVEY AND METRIC TOOLS; MAINTENANCE OF A PATIENT REGISTRY AND MESSAGE BOARD AND UPDATES/MAINTENANCE OF THE ORGANIZATION' S WEBSITE. 1360834 true true false false false false false false false false false false false false true true true false false false false true false false true false false true false true false false false false false false false false false false false false false false false false false true 14 0 false 9 true false false false false false true true false false false false false false false false X 15 15 true false false false false false false true true false true true true true true true true true true false false CA OR IL WA MD CO NY FL MN PA MA X X JAMES MINOW 2025966267 19309 WINMEADE DRIVE SUITE 204 LEESBURG VA 20176 X KRISTINE ALDERFER DIRECTOR 10.00 X 0 0 0 RAGAN CANTRELLE SECRETARY 12.00 X X 0 0 0 KEVIN COFFEY DIRECTOR 2.00 X 0 0 0 MITALI DAVE CHAIRMAN 1.00 X X 0 0 0 SUZANNE EDISON DIRECTOR 10.00 X 0 0 0 NIKKI HAHN PRESIDENT 1.00 X X 0 0 0 TIM HAUSER TREASURER 1.00 X X 0 0 0 ANDREW HEATON PHD CHIEF SCIENT 40.00 X 218700 0 0 SHARI HUME CO-FOUNDER 42.00 X 0 0 0 TOM HUME CO-FOUNDER 8.00 X 0 0 0 DENISE KOCH DIRECTOR 1.00 X 0 0 0 RHONDA MCKEEVER CHAIRMAN EME 1.00 X X 0 0 0 JAMES MINOW EXECUTIVE DI 40.00 X 165418 0 0 ANNIE MITCHELL DIRECTOR 5.00 X 0 0 0 TIM SHELBY DIRECTOR 1.00 X 0 0 0 ALLISON TAYLOR DIRECTOR 1.00 X 0 0 0 TRACY VAN NESS DIRECTOR 2.00 X 0 0 0 384118 2 false true false 588952 1302759 1891711 14640 14640 96874 588952 96874 819 819 819 OTHER REVENUE 900099 400 400 400 1907570 400 15459 925523 925523 150020 150020 181000 63350 54300 63350 411288 120959 41676 248653 77576 35716 12455 29405 1079 1079 59989 8998 50991 31250 6250 5514 19486 5946 5532 414 34183 31800 2383 3485 2169 1316 6855 6855 EDUCATIONAL/SPECIAL EVENT 38507 38507 BANK FEES 11377 2390 4209 4778 PENALTIES & INTEREST 10791 2266 3993 4532 OTHER EXPENSES 5337 1120 1975 2242 10501 3566 2818 4117 1964707 1360834 224513 379360 1136751 1177222 783585 797912 2425 1920336 1977559 100200 105866 117601 105866 217801 X 1814470 1759758 1814470 1759758 1920336 1977559 X -57137 2425 X true X false true false X 1288464 1721373 1959884 1854330 1891711 8715762 1288464 1721373 1959884 1854330 1891711 8715762 8715762 5929 7916 11812 13143 14640 53440 1501 819 2320 8771522 226322 0.99360 0.81120 X PART II, LINE 10 OTHER INCOME 1,501 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED PAYROLL TAXES PAYABLE 109919 CREDIT CARDS PAYABLE 7682 117601 X 2004444 96874 96874 1907570 1907570 2061581 96874 96874 1964707 1964707 SCHEDULE D, PAGE 3, PART X CURE JM FOUNDATION ACCOUNTS FOR UNCERTAINTY IN INCOME TAX POSITIONS IN THE FINANCIAL STATEMENTS BY APPLYING A RECOGNITION THRESHOLD AND MEASUREMENT ATTRIBUTE FOR FINANCIAL STATEMENT RECOGNITION AND MEASUREMENT OF A TAX POSITION TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN. MANAGEMENT HAS ANALYZED THE TAX POSITIONS TAKEN AND HAS CONCLUDED THAT AS OF SEPTEMBER 30, 2020, THERE ARE NO UNCERTAIN TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN THAT WOULD REQUIRE RECOGNITION OF A LIABILITY (OR ASSET) OR DISCLOSURE IN THE FINANCIAL STATEMENTS. SCHEDULE D, PAGE 4, PART XI, LINE 2D RECLASSIFICATION OF EVENT EXPENSES 96,874 SCHEDULE D, PAGE 4, PART XII, LINE 2D RECLASSIFICATION OF EVENT EXPENSES 96,874 LONDON JUVENILE DERMATOMYOS 150020 WIRE false false false false false false WALK STRONG AME 154724 138853 15871 15871 WALK STRONG NEW 99773 99043 730 730 20 431329 351056 80273 80273 685826 588952 96874 96874 96874 false CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE 555 EAST WELLS STREET SUITE 1100 MILWAUKEE WI 53202 464152355 501C3 73210 SUPPORT THE EXPANSIO DUKE UNIVERSITY MEDICAL CENTER BOX 3212 DURHAM NC 27710 560532129 501C3 76000 JUVENILE IDIOPATHIC THE GEORGE WASHINGTON UNIVERSITY 45155 RESEARCH PLACE SUITE 260 ASHBURN VA 20147 530196584 501C3 165000 STUDY TO EXPLORE REL ANN & ROBERT H LURIE CHILDREN'S 2225 E CHICAGO AVENUE BOX 4 CHICAGO IL 606112605 362170833 501C3 187501 CONDUCT THE ONGOING NATL INSTITUTE OF ENVIR HEALTH SCIE 111 TW ALEXANDER DRIVE DURHAM NC 27709 25000 SEATTLE CHILDRENS HOSPITAL PO BOX 5371 MS RC-507 SEATTLE WA 981455005 910564748 501C3 57078 CHILDREN'S HOSPITAL OF PHILADELPHIA 3401 CIVIC CENTER BLVD PHILADELPHIA PA 19104 231352166 501C3 113234 GENETIC DISCOVERY false false false false false false false false false ANDREW HEATON PHD CHIEF SCIENTIFIC OFC 218700 218700 JAMES MINOW EXECUTIVE DIRECTOR 165418 165418 FORM 990, PAGE 2, PART III, LINE 4A THE ORGANIZATION DIRECTLY SUPPORTED RESEARCH AS FOLLOWS: 1) 262,548 TO THE CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE (CARRA) TO LAUNCH A MULTI-CENTER JM PATIENT REGISTRY TO COLLECT INFORMATION AT THE TIME OF DIAGNOSIS AND AT REGULAR INTERVALS ABOUT HOW A PATIENT IS DOING, MEDICATIONS USED, AND SIDE EFFECTS; 2) 113,234 TO THE CENTER FOR APPLIED GENOMICS AT CHILDRENS'S HOSPITAL OF PHILADELPHIA, TO INVEST IN A GENETIC DISCOVERY PROGRAM; 3) 100,000 TO THE NATIONAL CENTER FOR ADVANCING TRANSLATIONAL SCIENCES - NIH IN BETHESDA, MD; 4) 95,000 TO GEORGE WASHINGTON UNIVERSITY'S PROJECT TO MEASURE OXIDATIVE STRESS AND MITOCHONDRIAL FUNCTION AS POSSIBLE CAUSES OF FATIGUE; 5) 87,500 TO THE ANN & ROBERT H. LURIE CHILDREN'S HOSPITAL IN CHICAGO, IL FOR CURE JM PROGRAM OF EXCELLENCE RESEARCH; 6) 83,500 TO DUKE UNIVERSITY MEDICAL CENTER IN DURHAM, NC TO IDENTIFY ABERRANT PATTERNS OF METABOLITE EXPRESSION IN THE BLOOD AND MUSCLE OF CHILDREN WITH JDM; 7) 73,938 TO THE HOSPITAL FOR SICK CHILDREN IN WASHINGTON, DC; 8) 60,014 TO THE SEATTLE CHILDREN'S HOSPITAL IN SEATTLE, WA; 9) 20,000 TO THE NATIONAL INSTITUTE OF ENVIRONMENTAL HEALTH SCIENCES IN DURHAM, NC TO INVESTIGATE THE CLINICAL RESPONSE TO THERAPIES IN PATIENTS WITH JDM; 10) 11,581 TO THE GLOBAL CONFERENCE ON MYOSITIS, INC. IN JACKSONVILLE, FL; AND 11) 150,020 TO UNIVERSITY COLLEGE LONDON (UK) FOR THE STUDY OF GENETIC RISK FACTORS FOR JUVENILE DERMATOMYOSITIS. FORM 990, PAGE 6, PART VI, LINE 2 TOM HUME SHARI HUME CO-FOUNDER CO-FOUNDER HUSBAND/WIFE FORM 990, PAGE 6, PART VI, LINE 11B DRAFT COPY OF FORM 990 WAS PROVIDED TO THE EXECUTIVE COMMITTEE FOR REVIEW BEFORE IT WAS FILED. FORM 990, PAGE 6, PART VI, LINE 12C THE ORGANIZATION REGULARLY REVIEWS CONTRACTS AND RELATIONSHIPS WITH VENDORS TO ASSURE COMPLIANCE WITH ITS CONFLICT OF INTEREST POLICY. FORM 990, PAGE 6, PART VI, LINE 15A THE BOARD OF DIRECTORS RESEARCHED THE COMPENSATION OF COMPARABLE ORGANIZATIONS BASED ON JOB DESCRIPTION AND EVALUATED THE PERFORMANCE OF EXECUTIVE DIRECTOR. FORM 990, PAGE 6, PART VI, LINE 19 THE ORGANIZATION'S EXEMPT ORGANIZATION TAX RETURNS AND AUDITED FINANCIAL STATEMENTS ARE AVAILABLE FOR REVIEW ON ITS WEBSITE AT WWW.CUREJM.ORG. THE ORGANIZATION'S FORM 1023, CONFLICT OF INTEREST POLICY AND OTHER GOVERNING DOCUMENTS ARE AVAILABLE FOR REVIEW UPON REQUEST. FORM 990, PART XI, LINE 9 RECLASSIFICATION OF EVENT EXPENSES 96,874 RECLASSIFICATION OF EVENT EXPENSES -96,874