2021-08-16T10:06:34-05:00 2020-09-30 042578039 R A HALL & CO LLC CPA'S 183 STATE STREET BOSTON MA 02109 990 2019-10-01 371483975 LUMIND IDSC FOUNDATION LUMI 7818251300 20 BURLINGTON MALL ROAD NO 200 BURLINGTON MA 01803 HAMPUS HILLERSTROM PRESIDENT/CEO 7818251300 2021-08-13 1 ERIC J HALL P00303080 6177233333 2021-08-13 2019 2022-09-23 18:48:47Z HAMPUS HILLERSTROM 20 BURLINGTON MALL ROAD NO 200 BURLINGTON MA 01803 1945026 0 X LUMINDRDS.ORG X 2003 CA TO ACCELERATE RESEARCH THAT WILL INCREASE THE AVAILABILITY OF THERAPEUTIC, DIAGNOSTIC AND MEDICAL CARE OPTIONS TO IMPROVE HEALTH AND INDEPENDENCE FOR PEOPLE WITH DOWN SYNDROME AND TO EMPOWER FAMILIES THROUGH EDUCATION, CONNECTIONS AND SUPPORT. 15 15 12 0 0 0 3589169 1577945 0 0 0 0 243358 285886 3832527 1863831 1439030 1020395 0 0 1038853 956058 0 0 421316 1007395 594339 3485278 2570792 347249 -706961 3828926 2462353 2280809 1621197 1548117 841156 X TO ACCELERATE RESEARCH THAT WILL INCREASE THE AVAILABILITY OF THERAPEUTIC, DIAGNOSTIC AND MEDICAL CARE OPTIONS TO IMPROVE HEALTH AND INDEPENDENCE FOR PEOPLE WITH DOWN SYNDROME AND TO EMPOWER FAMILIES THROUGH EDUCATION, CONNECTIONS AND SUPPORT. 1 0 870000 696000 DS-CTN - SUPPORT MEDICAL RESEARCH THAT WILL RESULT IN TREATMENTS TO SIGNIFICANTLY IMPROVE HEALTH AND INDEPENDENCE IN PERSONS WITH DOWN SYNDROME. 498000 324000 RESEARCH AND MEDICAL GRANTS PROGRAM LUMIND IDSC RESEARCH AND MEDICAL GRANTS PROGRAM SUPPORTED 10 PROJECTS THIS YEAR COVERING PROJECTS IN SLEEP APNEA, ALZHEIMER'S, COVID19, GENE THEREAPY, INDEPENDENCE, MEDICAL CARE AND REGULATORY. 558934 COMMUNITY ENGAGEMENT PROGRAM FOR RESEARCH AWARENESS AND PARTICIPATION PARTICIPATION AND EMPOWERING FAMILIES WITH RESOURCES, MEDICAL INFORMATION AND RESEARCH PARTICIPATION OPPORTUNITIES. INCLUDES COSTS RELATED TO LUMIND IDSC'S MY DOWN SYNDROME COMMUNITY PLATFORM (MYDSC). 395 PROGRAMS TO ACCELERATE RESEARCH TO INCREASE AVAILABILITY OF THERAPEUTIC, DIAGNOSTIC, AND MEDICAL CARE OPTIONS AND WE EMPOWER FAMILIES THROUGH EDUCATION, CONNECTIONS, AND SUPPORT. 395 1926934 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 1 0 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 14 0 1 12 1 0 0 0 0 0 1 1 0 0 0 0 X 15 15 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 CA MA NY AL AK AZ AR CO CT DC FL GA IL KS KY ME MD MA MI MN MS NH NJ NC ND OH OK OR PA RI SC TN UT VA WA WV WI X X HAMPUS HILLERSTROM PRESIDENT AND C 7818251300 20 BURLINGTON MALL ROAD SUITE 200 BURLINGTON MA 01803 PATRICK KANNAN BOARD MEMBER 1.00 X X 0 0 0 MICHAEL J MANNOR PHD BOARD CHAIR 1.00 X 0 0 0 PAUL MURASKO MEMBER 1.00 X 0 0 0 TONY HUNG VICE CHAIR 1.00 X 0 0 0 HAMPUS HILLERSTROM PRESIDENT AND CEO 40.00 X X 313978 0 15186 HECTOR GUINNESS MEMBER 1.00 X 0 0 0 ANULA JAYASURYA SECRETARY 1.00 X 0 0 0 ANTHONY PROVIDENTI MEMBER 1.00 X X 0 0 0 CHRISTOPHER LIS MEMBER 1.00 X 0 0 0 JEFF W STROBEL MEMBER 1.00 X X 0 0 0 CLAUDIA MOREIRA MEMBER 1.00 X 0 0 0 SOHAIL MASOOD MEMBER 1.00 X 0 0 0 BEV PAPERIELLO MEMBER 1.00 X 0 0 0 JENNIFER SMOLKA MEMBER 1.00 X 0 0 0 KIM WARREN MEMBER 1.00 X 0 0 0 MARIA DELLAPINA MEMBER 1.00 X 0 0 0 PAUL MURASKO MEMBER 1.00 X 0 0 0 DR JAMES HENDRIX CHIEF SCIENTIFIC OFFICER 40.00 X 170105 0 17667 MICHELLE PETRONIO CHIEF DEVELOPMENT OFFICER 40.00 X 128032 0 4261 612115 0 37114 3 0 1 0 0 1577945 1577945 339736 81195 258541 258541 OTHER INCOME 900099 27345 27345 27345 1863831 0 0 285886 1020395 1020395 765166 396096 105819 263251 36954 19130 5111 12713 84423 70172 7737 6514 69515 35985 9614 23916 273200 238354 30254 4592 10489 10489 17540 17540 5068 5068 19333 13045 4530 1758 105211 19237 13723 72251 52618 27238 7277 18103 42304 42304 17176 16559 617 13833 7161 1913 4759 10426 10426 -6095 -6095 STATE FILING FEES 17470 17470 PRINTING 7057 3187 3870 POSTAGE AND SHIPPING 4920 2577 406 1937 BANK FEES AND CREDIT CA 3789 -3246 7035 2570792 1926934 222542 421316 137309 39147 890168 244092 2615959 1823377 53809 2925 90384 85191 259962 23091 16374 236871 11819 13104 30750 3828926 2462353 116540 218501 1994854 1202036 60995 600 108420 200060 2280809 1621197 X 153167 117205 1394950 723951 1548117 841156 3828926 2462353 -706961 0 X X 0 1 X 1 0 X 1451150 1420558 1378038 1577945 5827691 1451150 1420558 1378038 1577945 5827691 5827691 152 1241 601 1301 3295 10 240 250 5831236 0.99940 0.99940 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 259962 23091 236871 236871 PPP LOAN 153800 CREDIT CARD 7179 WAGES AND TAX PAYABLE 39081 200060 X 1863831 0 1863831 0 1863831 2570792 0 2570792 0 2570792 PART X, LINE 2: THE ORGANIZATION IS EXEMPT FROM TAXATION UNDER THE PROVISION OF SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE, EXCEPT ON ANY NET INCOME DERIVED FROM UNRELATED BUSINESS ACTIVITIES. THE ORGANIZATION HAS ALSO BEEN CLASSIFIED AS AN ENTITY THAT IS NOT A PRIVATE FOUNDATION WITHIN THE MEANING OF SECTION 509(A)(1) AND QUALIFIES FOR DEDUCTIBLE CONTRIBUTIONS AS PROVIDED IN SECTION 170(B)(1)(A)(VI). ACCORDINGLY, NO PROVISION FOR INCOME TAXES IS INCLUDED IN THE FINANCIAL STATEMENTS. THE ORGANIZATION FOLLOWS THE RECOGNITION REQUIREMENTS FOR UNCERTAIN INCOME TAX POSITIONS AS REQUIRED BY GENERALLY ACCEPTED ACCOUNTING PRINCIPLES BY ANNUALLY EVALUATING ITS TAX STATUS AND TAX POSITIONS WITH RESPECT TO ITS OPERATIONS AND FINANCIAL POSITION. LUMIND HAS NOT RECORDED ANY RESERVES, OR RELATED ACCRUALS FOR INTEREST AND PENALTIES FOR UNCERTAIN INCOME TAX PROVISIONS AT SEPTEMBER 30, 2019 AND 2018. THE FEDERAL INFORMATION RETURNS OF THE ORGANIZATION FOR THE YEARS ENDED SEPTEMBER 30, 2019 AND 2018 AND 2017 ARE SUBJECT TO EXAMINATION BY THE INTERNAL REVENUE SERVICE GENERALLY FOR THREE YEARS AFTER THEY WERE FILED. CANADA GRANT TO FUND RESEARCH GOAL ATTAINMENT SCALING TO MEASURE DEMENTIA 78222 SWITZERLAND GRANT TO FUND RESEARCH TO SUPPORT CLINICAL TRIAL OF ACI-024 FOR DOWN SYNDROME ASSOCIATED ALZHEIMER'S DISEASE 100000 0 0 0 0 0 0 178222 0 178222 0 0 0 0 0 0 PART I, LINE 2: LUMIND REQUIRES DETAILED FINANCIAL AND OTHER REPORTS FROM OUR GRANTEES INSIDE AND OUTSIDE THE UNITED STATES INCLUDING DETAIL EXPENSE RECORDS TO ENSURE FUNDS ARE USED IN ACCORDANCE WITH THE GRANT. PART III ACCOUNTING METHOD: CHICAGO FUNDING FUTURES 193590 193590 13170 3683 2400 8370 SUMMER DOUBLE DIP 75500 75500 37750 19 70646 70646 6232 21504 339736 339736 13170 9915 2400 67624 93109 246627 0 UNIVERSITY OF ARIZONA PO BOX 41867 TUSCON AZ 85717 7500 TO SUPPORT COGNITION AND SLEEP APNEA RESEARCH FOR DOWN SYNDROME STANFORD UNIVERSITY GILBERT RM 420A STANFORD CA 943055020 18750 TO SUPPORT COGNITION RESEARCH FOR DOWN SYNDROME DOWN SYNDROME CLINICAL TRIALS NETWORK MULTIPLE GRANTS 451723 TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH MASSACHUSETTS INSTITUTE OF TECHNOLOGY 77 MASSACHUSETTS AVENUE BLG W98-300 W98-300 CAMBRIDGE MA 02139 110000 TO STUDY THE GENETIC UNDERSTANDING FOR DOWN SYNDROME UCONN HEALTH - PINTER 236 FARMINGTON AVE FRAMINGTON CT 06030 65000 TO SUPPORT GENE THERAPY RESEARCH FOR DOWN SYNDROME UCSD PO BOX 741539 LOS ANGELES CA 900741539 50000 TO SUPPORT THE INITIAL FEASIBILITY OF THE DS-CTN NETWORK X X 0 0 0 1 0 0 0 0 0 HAMPUS HILLERSTROM PRESIDENT AND CEO 288978 0 25000 0 0 0 0 0 15186 0 329164 0 0 0 DR JAMES HENDRIX CHIEF SCIENTIFIC OFFICER 170105 0 0 0 0 0 0 0 17667 0 187772 0 0 0 PART I, LINE 3 BOARD OF DIRECTORS APPROVED CEO COMPENSATION IS CONTAINED IN A WRITTEN EMPLOYMENT AGREEMENT PART I, LINE 5 A PORTION OF THE CEO COMPENSATION IS RELATED TO REVENUE GROWTH FORM 990, PART III, LINE 2 COMMUNITY ENGAGEMENT PROGRAM FOR RESEARCH AWARENESS, RESEARCH PARTICIPATION AND EMPOWERING FAMILIES WITH RESOURCES AND MEDICAL INFORMATION. FORM 990, PART VI, SECTION B, LINE 11B THE ORGANIZATION'S PROCESS TO REVIEW THE FINAL FORM 990 IS TO HAVE THE BOARD AND FINANCE COMMITTEE REVIEW THE FINAL RETURN PRIOR TO SUBMISSION AND THEN THE RETURN IS SIGNED BY AN AUTHORIZED OFFICER. FORM 990, PART VI, SECTION B, LINE 12C THE PROCESS FOR MONITORING THIS IS BY ADDRESSING ACTIVITY IN QUARTERLY BOARD MEETINGS AND AD HOC CALLS AS NEEDED. FORM 990, PART VI, SECTION B, LINE 15 COMPENSATION FOR KEY EMPLOYEES ARE APPROVED BY THE BOARD OF DIRECTORS AND INCREASES ARE APPROVED IN THE BUDGET. FORM 990, PART VI, SECTION C, LINE 18 FORM 1023 AND FORM 990 ARE AVAILABLE UPON REQUEST AND AVAILABLE ONLINE THROUGH PUBLIC NON PROFIT WEBSITES. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS DISCLOSURE, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. FORM 990, PART XII, LINE 2C: THE ORGANIZATION HAS AN AUDIT COMMITTEE TO OVERSEE AND REVIEW THE AUDIT AND FORM 990 PRIOR TO SUBMISSION. THE PROCESS HAS NOT BEEN CHANGED IN CURRENT YEAR.