2021-05-12T10:29:24-05:00 2020-12-31 042571780 AAFCPAS INC 50 WASHINGTON STREET WESTBOROUGH MA 01581 990 2020-01-01 043068130 NATIONAL BRAIN TUMOR SOCIETY INC NATI 6179249997 55 CHAPEL STREET NO 200 NEWTON MA 02458 DAVID ARONS CEO 6179249997 2021-05-11 1 DAVID ARONS 999009999 JOHN BUCKLEY CPA P00830631 5083669100 2021-05-11 2 AAL1 IAL1 2020 2022-09-23 18:48:47Z DAVID ARONS 55 CHAPEL STREET NO 200 NEWTON MA 02458 8964505 0 X WWW.BRAINTUMOR.ORG X 1989 MA NATIONAL BRAIN TUMOR SOCIETY UNRELENTINGLY INVESTS IN, MOBILIZES, AND UNITES OUR COMMUNITY TO DISCOVER A CURE, DELIVER EFFECTIVE TREATMENTS, AND ADVOCATE FOR PATIENTS AND CARE PARTNERS. 16 16 46 233 0 0 14128145 8855708 0 0 36564 75517 0 0 14164709 8931225 1592534 968121 0 0 4504961 4180836 0 0 620200 3540349 2004248 9637844 7153205 4526865 1778020 7787968 10033142 1023668 1478031 6764300 8555111 X NATIONAL BRAIN TUMOR SOCIETY UNRELENTINGLY INVESTS IN, MOBILIZES, AND UNITES OUR COMMUNITY TO DISCOVER A CURE, DELIVER EFFECTIVE TREATMENTS, AND ADVOCATE FOR PATIENTS AND CARE PARTNERS. 0 0 1983638 968121 RESEARCH: NATIONAL BRAIN TUMOR SOCIETY (NBTS) THROUGHOUT ITS HISTORY HAS FUNDED SOME OF THE MOST IMPORTANT DISCOVERIES THAT HAVE LED TO THE ADVANCEMENT OF BRAIN TUMOR RESEARCH. TODAY, NBTS IS FUNDING INNOVATIVE TEAM-SCIENCE INITIATIVES INCLUDING THE DEFEAT GBM RESEARCH COLLABORATIVE AND THE DEFEAT PEDIATRIC BRAIN TUMORS RESEARCH COLLABORATIVE. OUR "DEFEAT" PROGRAMS BRING TOGETHER WORLD-RENOWN INSTITUTIONS TO ACCELERATE THE PACE OF RESEARCH BY REQUIRING DATA SHARING AND THE RAPID MOVEMENT OF DISCOVERIES TO BE TRANSLATED INTO POTENTIAL NEW TREATMENTS. IN JUST THREE YEARS DEFEAT GBM DISCOVERED FOUR POTENTIAL NEW TREATMENTS FOR GBM AND HAS SCREENED THOUSANDS OF EXISTING DRUGS FOR POTENTIAL BENEFIT. NBTS IS ALSO FUNDING OUTSTANDING LOW-GRADE BRAIN TUMOR RESEARCH. IT ALSO HOSTS A UNIQUE RESEARCH ROUNDTABLE OF RESEARCH LEADERS COMMITTED TO ELIMINATING THE BARRIERS TO PROGRESS. 867841 PUBLIC POLICY & ADVOCACY: NBTS IS WELL-RECOGNIZED AS A LEADER IN PUBLIC POLICY RELATED TO BRAIN TUMORS AND CANCER GENERALLY. EACH YEAR WE ADVANCE A SPECIFIC POLICY AGENDA WITH CONGRESS AND THE EXECUTIVE BRANCH TO IMPROVE PATIENTS LIVES AND THE LIKELIHOOD OF THE DEVELOPMENT OF NEW TREATMENTS. NBTS ADVOCACY EFFORTS HAVE LED TO GREATER FEDERAL INVESTMENT IN BRAIN TUMOR RESEARCH AND IMPROVED POLICIES THAT SPEED THE RESEARCH PROCESS. THROUGH ADVOCACY PATIENTS AND THEIR FAMILIES, AND RESEARCHERS ALSO HAVE A VOICE AND CAN COME TO WASHINGTON DC FOR OUR SIGNATURE HEAD TO THE HILL HELD ANNUALLY. 3347388 INFORMATION, AWARENESS AND REMEMBRANCE: NBTS IS COMMITTED TO HELPING PATIENTS AND CARE PARTNERS OBTAIN ESSENTIAL INFORMATION FROM THE TIME OF DIAGNOSIS INCLUDING INFORMATION ABOUT TREATMENT OPTIONS AND CLINICAL TRIALS. THROUGH ITS BRAIN TUMOR EXPERIENCE WEBSITE, NBTS PROVIDES, TO MANY ACROSS THE U.S. AND GLOBALLY, TIMELY INFORMATION AND IS AVAILABLE BY PHONE TO HELP CONNECT TO TREATMENTS CENTERS AND SUPPORT SERVICES. IT ALSO HELPS PATIENTS FIND CLINICAL TRIALS THROUGH THE NBTS CLINICAL TRIALS FINDER ON OUR WEBSITE AND THROUGH THE REGULAR NBTS CLINICAL TRIALS REPORT. NBTS ALSO CONNECTS PATIENTS TO EACH OTHER THROUGH REGIONAL EVENTS AND HELPS FAMILIES HONOR THEIR LOVED ONES. THE EVENTS PROVIDE ACCESS TO TREATMENT PROVIDERS FOR FAMILIES AND FRIENDS, AND HELP MAKE THE BROADER PUBLIC MORE AWARE OF OUR CAUSE THROUGH COMMUNICATIONS PROGRAMS. 6198867 1 1 0 1 0 0 0 0 0 1 1 0 0 0 0 1 0 1 0 0 0 0 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 1 35 0 1 46 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 16 16 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 MA CA X X SUSAN LOWE INTERIM CFO 6179249997 55 CHAPEL STREET NEWTON MA 02458 ROBERT BURGER VICE CHAIR 1.00 X X 0 0 0 DAVE BROWN TREASURER 1.00 X X 0 0 0 LIZ SALMI CLERK 1.00 X X 0 0 0 DAVID DONABEDIAN BOARD MEMBER 1.00 X 0 0 0 ERIC OLSON PHD BOARD MEMBER 1.00 X 0 0 0 DR EVANTHIA GALANIS BOARD MEMBER 1.00 X 0 0 0 ROBERT CORRAO BOARD MEMBER 1.00 X 0 0 0 SALO ZELERMYER BOARD MEMBER 1.00 X 0 0 0 ERICA BURKE BOARD MEMBER 1.00 X 0 0 0 TOM ROLOFF CHAIR 2.00 X X 0 0 0 RYAN LANG BOARD MEMBER 1.00 X 0 0 0 AMY FENTON BOARD MEMBER 1.00 X 0 0 0 DR EDJAH NDUOM BOARD MEMBER 1.00 X 0 0 0 MICHAEL SMITH BOARD MEMBER 1.00 X 0 0 0 DR JOOHEE SUL BOARD MEMBER 1.00 X 0 0 0 CORIE YUTKIN BOARD MEMBER 1.00 X 0 0 0 DAVID ARONS CEO 40.00 X 253346 0 28454 STEVE GALLUCCI CFO 40.00 X 151928 0 20520 LAUREN HALL CDO 40.00 X 228403 0 2675 KIRK TANNER CSO 40.00 X 201152 0 8267 KEVIN JEANS ASSISTANT CDO 40.00 X 181265 0 168 ASHLEY BRENNAN SR. DIRECTOR OF DEVELOPMENT 40.00 X 124428 0 30466 DANIELLE LEACH CHIEF OF COMM. AND GOV. RELATIONS 40.00 X 151951 0 2072 1292473 0 92622 7 0 1 0 0 4498244 4357464 18743 8855708 68697 68697 40100 33280 6820 6820 6820 0 4498244 0 0 8931225 0 0 75517 968121 968121 454247 354776 45424 54047 3195590 2785477 23393 386720 43690 30630 3815 9245 199502 197931 207 1364 287807 252070 1200 34537 58228 58228 38381 38381 338214 321931 3238 13045 88953 88321 90 542 58734 51008 4224 3502 305184 255113 17672 32399 234920 187936 23492 23492 41445 37242 69 4134 4787 3622 478 687 32110 28899 3211 SPECIAL EVENTS 532642 471078 17831 43733 TECHNOLOGY 117194 93957 17489 5748 BAD DEBT 71104 71104 DUES AND SUBSCRIPTIONS 35919 30140 78 5701 46433 40615 4514 1304 7153205 6198867 334138 620200 2758348 3009210 3663652 5050537 289200 256700 618247 176834 184531 38826 29467 14146 9359 849578 869348 36210 35210 7787968 10033142 523668 253149 500000 500000 25000 699882 1023668 1478031 X 2339672 3431389 4424628 5123722 6764300 8555111 7787968 10033142 1778020 12791 0 X X 0 1 X 1 0 X 7735788 10249779 11269569 14128145 8855708 52238989 7735788 10249779 11269569 14128145 8855708 52238989 52238989 22788 17938 28476 33770 66897 169869 52408858 0.99680 0.99720 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 477918 477918 6675287 7153205 507660 126915 0 0 576814 596789 578379 507660 2259642 3389463 137761 222954 308751 477918 1147384 144204 149197 144595 126915 564911 847367 565448 565448 508547 56901 565448 315448 193099 508547 312104 3344 315448 306397 5707 312104 0.97000 0.03000 0 0 9602 5405 4197 29224 24062 5162 9359 X 8963742 12791 21746 34537 8929205 2020 2020 8931225 7172931 21746 21746 7151185 2020 2020 7153205 PART V, LINE 4: THE ORGANIZATION HAS ENDOWMENT NET ASSETS IN WHICH THE PRINCIPAL AND ANY CURRENT CONTRIBUTIONS ARE PERMANENTLY DONOR RESTRICTED. THE BALANCE AS OF DECEMBER 31, 2020 WAS INVESTED IN BOND FUNDS AND MONEY MARKETS. INCOME AND APPRECIATION EARNED ON THE PERMANENTLY RESTRICTED NET ASSETS ARE RESTRICTED TO SUPPORT THE COSTS OF PRODUCING AND DISTRIBUTING THE ESSENTIAL GUIDE TO BRAIN TUMORS AND TO FUND RESEARCH PROJECTS. THE INFORMATION IS UPDATED ON AN ANNUAL BASIS AND MADE AVAILABLE THROUGH THE ORGANIZATION'S WEBSITE. PART X, LINE 2: THE ORGANIZATION ACCOUNTS FOR UNCERTAINTY IN INCOME TAXES IN ACCORDANCE WITH ASC TOPIC, INCOME TAXES. THIS STANDARD CLARIFIES THE ACCOUNTING FOR UNCERTAINTY IN TAX POSITIONS AND PRESCRIBES A RECOGNITION THRESHOLD AND MEASUREMENT ATTRIBUTE FOR THE CONSOLIDATED FINANCIAL STATEMENTS REGARDING A TAX POSITION TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN. THE ORGANIZATION HAS DETERMINED THAT THERE ARE NO UNCERTAIN TAX POSITIONS WHICH QUALIFY FOR EITHER RECOGNITION OR DISCLOSURE IN THE CONSOLIDATED FINANCIAL STATEMENTS AT DECEMBER 31, 2020. WALK - RACE FOR HOPE -DC 840087 840087 WALK - RACE FOR HOPE - PHIL 565654 565654 40 3092503 3092503 0 4498244 4498244 1 ONCOCEUTICS INC 3675 MARKET ST SUITE 200 PHILADELPHIA PA 19104 800416804 200000 RESEARCH UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 208 W FRANKLIN STREET CHAPEL HILL NC 27516 566001393 501 (C) 3 150000 RESEARCH YALE UNIVERSITY PO BOX 1873 NEW HAVEN CT 06508 060646973 501 (C) 3 125000 RESEARCH ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI 1 GUSTAVE L LEVY PLACE NEW YORK NY 10029 136171197 501 (C) 3 100000 RESEARCH THE CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVENUE CLEVELAND OH 44195 340714585 501 (C) 3 100000 RESEARCH REGENTS OF THE UNIVERSITY OF MICHIGAN 1000 VICTORS WAY SUITE 1A ANN ARBOR MI 48109 386006309 501 (C) 3 50000 RESEARCH GLOBAL COALITION FOR ADAPTIVE RESEARCH 1661 MASSACHUSETTS AVENUE BOX 427 LEXINGTON MA 024209998 821199380 501 (C) 3 40000 RESEARCH UC SAN FRANCISCO 3333 CALIFORNIA STREET STE 315 SAN FRANCISCO CA 94143 946036493 501 (C) 3 25000 RESEARCH UC LOS ANGELES 405 HILGARD AVE BOX 957089 LOS ANGELES CA 90095 956006143 501 (C) 3 25000 RESEARCH MAYO CLINIC 200 FIRST STREET SW ROCHESTER MN 55905 416011702 501 (C) 3 25000 RESEARCH DANA FARBER CANCER INSTITUTE 450 BROOKLINE AVE BOSTON MA 02215 042263040 501 (C) 3 25000 RESEARCH DUKE UNIVERSITY 324 BLACKWELL ST STE 850 DURHAM NC 27701 560532129 501 (C) 3 25000 RESEARCH TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA PO BOX 4390 PHILADELPHIA PA 19178 231352685 501 (C) 3 25000 RESEARCH JOHN WAYNE CANCER INSTITUTE 2200 SANTA MONICA BLVD SANTA MONICA CA 90404 954291515 501 (C) 3 25000 RESEARCH 13 1 PART I, LINE 2: THE NATIONAL BRAIN TUMOR SOCIETY (NBTS) REQUIRES, AS A CONDITION OF THE GRANT, SCIENTIFIC REVIEW, THE PRODUCTION OF SCIENTIFIC AND FINANCIAL REPORTS ON AN ANNUAL BASIS, AND REGULAR TELECONFERENCES WITH RESEARCHERS TO DETERMINE USE OF GRANT FUNDS AND PERFORMANCE. X X X X 0 0 0 0 0 0 0 0 0 DAVID ARONS CEO 253346 0 0 0 0 0 4160 0 24294 0 281800 0 0 0 LAUREN HALL CDO 228403 0 0 0 0 0 2675 0 0 0 231078 0 0 0 KIRK TANNER CSO 201152 0 0 0 0 0 0 0 8267 0 209419 0 0 0 KEVIN JEANS ASSISTANT CDO 181265 0 0 0 0 0 0 0 168 0 181433 0 0 0 STEVE GALLUCCI CFO 151928 0 0 0 0 0 2260 0 18260 0 172448 0 0 0 ASHLEY BRENNAN SR. DIRECTOR OF DEVELOPMENT 124428 0 0 0 0 0 827 0 29639 0 154894 0 0 0 DANIELLE LEACH CHIEF OF COMM. AND GOV. RELATIONS 151951 0 0 0 0 0 2072 0 0 0 154023 0 0 0 FORM 990, PART VI, SECTION A, LINE 2 A BOARD MEMBER IS THE CEO OF AN ORGANIZATION WHERE ANOTHER BOARD MEMBER IS EMPLOYED. FORM 990, PART VI, SECTION B, LINE 11B A COPY OF THE FEDERAL FORM 990 IS EMAILED TO THE FULL BOARD OF DIRECTORS FOR REVIEW AND COMMENT PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C THE BOARD REQUIRES THAT ALL MEMBERS CONDUCT AN ANNUAL REVIEW FOR ANY CONFLICTS OF INTEREST AND SHOULD ANY ARISE, THAT THEY BE DISCLOSED TO THE BOARD AND MANAGEMENT. FORM 990, PART VI, SECTION B, LINE 15 THE EXECUTIVE COMMITTEE OF THE BOARD DETERMINES THE CEO'S SALARY. COMPARABILITY FIGURES REPRESENTING COMPARABLE POSITIONS, SCOPE OF RESPONSIBILITY, SIZE OF ORGANIZATION AND BUDGET AND SIMILAR INDUSTRY WERE PROVIDED TO THE EXECUTIVE COMMITTEE. IN REGARD TO OTHER OFFICERS AND KEY EMPLOYEES, THE HR MANAGER REVIEWS COMPARABLE DATA FOR JOB RESPONSIBILITIES AND REVIEWS WITH THE CEO TO VERIFY COMPENSATION. FORM 990, PART VI, SECTION C, LINE 19 THE FINANCIAL STATEMENTS ARE AVAILABLE ON THE ORGANIZATION'S WEBSITE. ALL OTHER DOCUMENTS ARE AVAILABLE UPON REQUEST. FORM 990, PART XI, LINE 2C THE FINANCE COMMITTEE IS RESPONSIBLE FOR OVERSIGHT AND SELECTION OF THE INDEPENDENT AUDITOR CURE GBM 55 CHAPEL STREET SUITE 200 NEWTON MA 02458 371703878 BRAIN TUMOR RESEARCH DE NATIONAL BRAIN TUMOR SOCIETY INC PEDIATRIC CANCER CURE LLC 55 CHAPEL STREET SUITE 200 NEWTON MA 02458 472233672 PEDIATRIC BRAIN TUMOR RESEARCH DE NATIONAL BRAIN TUMOR SOCIETY INC ACCELERATE BRAIN CANCER INNOVATION FUND LLC 55 CHAPEL STREET SUITE 200 NEWTON MA 02458 844245990 BRAIN TUMOR RESEARCH DE 2514 1633310 NATIONAL BRAIN TUMOR SOCIETY INC NBTS VENTURE FUND LLC 55 CHAPEL STREET SUITE 200 NEWTON MA 02458 845100031 BRAIN TUMOR RESEARCH DE 601028 992 NATIONAL BRAIN TUMOR SOCIETY INC