2021-05-04T11:19:29-07:00 2020-06-30 134036703 SCHALL & ASHENFARB CPAS 307 5th Ave 15th Floor NEW YORK NY 10016 990 2019-07-01 521704978 CurePSP Inc CURE 8027341185 1216 Broadway 2nd Floor New York NY 10001 David Kemp President 2021-05-04 true Michael Schall P02024184 2122682800 2019 2022-09-23 18:48:47Z David Kemp 1216 Broadway 2nd Floor New York NY 10001 9012501 false X www.curepsp.org X 1990 MD Dedicated to increasing awareness of progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), and related brain diseases; 15 15 12 170 0 2845244 3419168 205367 0 48189 80238 16637 22737 3115437 3522143 306291 471836 0 835694 920284 0 213221 1252132 1240621 2394117 2632741 721320 889402 4347464 5358201 737016 784288 3610448 4573913 Dedicated to increasing awareness of progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), and related brain diseases; false false 752360 552390 CurePSP advances the understanding and seeks treatment and cure for progressive supranuclear palsy(PSP) and related "prime of life" neurodegenerative diseases by funding research that focuses on (a) the causes and risk factors for these disorders, (b) biomarkers and clinical tests that aid in diagnosis, (c) genetic variants that are associated with the diseases, (d) therapies that would prevent, stop, or reverse brain damage associated with pathological protein accumulation in the brain, and (e) aiding pharmaceutical companies and research institutions in recruitment of cohorts for clinical trials and marketing of those trials. CurePSP provides critical brain-tissue samples to researchers through its support of the Mayo Clinic's brain bank. 750942 32920 CurePSP advocates for patients, families, and caregivers managing prime of life neurodegeneration to improve quality of life and patient outcomes. CurePSP does this through family conferences, caregiver retreats, volunteer development, professional education, online and printed resources, and social media. CurePSP supports some 50 support groups and around 200 volunteers providing online, telephone, and face-to-face support worldwide. CurePSP's Cherie Levien Quality of Life Fund provides professional in-home care to families in need. 501545 CurePSP publishes a library of printed and online educational materials for families, patients, physicians and other healthcare professionals. The foundation sponsors professional education conferences in collaboration with leading institutions to increase knowledge of the disease that will lead to earlier and more accurate diagnosis and better patient care. Several dozen volunteer events annually supported by CurePSP further educate the general public. CurePSP uses several social media platforms to communicate with its constituents, maintains an online patient and caregiver forum, and produces national webinars, online support groups, and online presentations from clinicians and researchers. 2004847 true true false false false false false false false true true false false false false true false true false false true true false false true false false true false true false false false false false false false false false false false false true false false false false true 53 0 true 12 true false false false false false false false 0 false false false false false false false X 15 15 true false false false false false false true true false false true true true true true true true false false AK AL AR CA CO CT DC FL GA HI IL KS KY LA MA MD ME MI MN MO MS NC ND NH NJ NM NV NY OH OK OR PA RI SC TN TX UT VA WA WI WV X X David Kemp 8027341185 1216 Broadway 2nd Floor New York NY 10001 David Kemp President 40.00 0.00 X 220000 0 8305 William McFarland Chair 6.00 0.00 X X 0 0 0 Amy Branch Vice Chair 15.00 0.00 X X 0 0 0 Justin Shea Treasurer 2.00 0.00 X X 0 0 0 Larry Levien Secretary 2.00 0.00 X X 0 0 0 Everett Cook Director 2.00 0.00 X 0 0 0 Jeff Freidman thru 102019 Director 2.00 0.00 X 0 0 0 John Sr Burhoe Chair Emeritus 3.00 0.00 X 0 0 0 Larry Golbe rejoined 12020 Director 10.00 0.00 X 0 0 0 Ileen McFarland Director 40.00 0.00 X 0 0 0 Andy Maus Director 2.00 0.00 X 0 0 0 Brent Bluett Director 3.00 0.00 X 0 0 0 Stephen Goldman Director 2.00 0.00 X 0 0 0 McClellan James Director 2.00 0.00 X 0 0 0 Orseth Maggie Director 3.00 0.00 X 0 0 0 John Jr Burhoe thru 32020 Director 2.00 0.00 X 0 0 0 Jessica Shurer Director 3.50 0.00 X 0 0 0 Alex Pantelyat Director 2.00 0.00 X 0 0 0 Bobby Hand Director 2.00 0.00 X 0 0 0 220000 8305 1 false true false Kiwi Partners Inc 237 West 35th Street Suite 1101 New York NY 10001 Accounting Services 107977 Regina Printing 260 Wagner Street Middlesex NJ 08846 Printing Services 284568 2 111497 3307671 3419168 0 76559 76559 0 0 0 5494037 5490358 3679 3679 3679 111497 0 0 0 Other Revenue 22737 22737 22737 3522143 22737 80238 391836 391836 0 80000 80000 0 200000 130000 50000 20000 0 556528 463432 69707 23389 14008 11229 1958 821 87975 70521 12298 5156 61773 49517 8635 3621 0 50191 42662 7529 100425 100425 0 0 0 67294 37365 29629 300 0 0 99475 65817 17541 16117 0 97314 77131 14544 5639 65433 48100 14390 2943 0 33749 31917 735 1097 0 0 22378 17925 3142 1311 12257 276 11981 Recruiting and marketing 229209 155644 20054 53511 Direct mail 206881 179926 26955 Research support 83054 83054 Postage and Shipping 69087 7832 11519 49736 103874 60663 40586 2625 2632741 2004847 414673 213221 850058 170337 1025983 2899072 25500 108000 0 0 0 0 0 81487 132506 203718 193663 23325 10055 2334111 1914755 0 0 0 7000 123476 4347464 5358201 94812 114914 458113 356532 184091 178807 134035 737016 784288 X 2538372 3326160 1072076 1247753 3610448 4573913 4347464 5358201 X 889402 -21809 95872 X false true X true false X 3119335 2577806 2598398 2845244 3419168 14559951 105518 112913 191356 205367 615154 0 0 0 3224853 2690719 2789754 3050611 3419168 15175105 50696 138765 93594 74320 33051 390426 0 50696 138765 93594 74320 33051 390426 14784679 15298 10394 12836 27191 76559 142278 0 15298 10394 12836 27191 76559 142278 0 39664 16637 22737 79038 3240151 2701113 2842254 3094439 3518464 15396421 0.96030 0.90090 0.00920 0.00540 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 332916 -1296 15000 316620 452650 9116 128850 332916 403444 52826 3620 452650 372118 34596 3270 403444 380827 -5591 3118 372118 1.00000 false false false 203718 193663 10055 10055 X 3596206 -21809 95872 74063 3522143 3522143 2632741 2632741 2632741 Part X : FIN48 Footnote The Organization does not believe its financial statements include any uncertain tax positions. Tax filing for the period ending June 30, 2017 and later are subject to examination by applicable taxing authorities. Part XI, Line 2d: Other revenue amounts included in F/S but not included on form 990 Refund of grants $95872 true Europe 0 0 Grant making 80000 80000 80000 Research Wire Europe Research 80000 Wire 2 false false false false false false Part I, Line 2 - Grantmakers Explanation For Monitoring Use of Funds Outside US Investigators are required to provide two progress reports during the term of the grant. The progress report is sent for review and approval to the Vice President of Scientific Affairs and payment may be released only after approval has been given. If progress reports are not determined to be satisfactory, payment may be withheld until the investigator can provide a satisfactory report. false Fundraising Event 111497 111497 111497 111497 true Duke University 324 Blackwell Street Durham NC 27701 560532129 80000 0 Research Ichan School of Medicine 1 Gustave L Levy Place New York NY 10029 136171197 50000 0 Research North Texas Community Foundat 777 Main Street Suite 2850 Fort Worth TX 76102 752267767 100000 0 Research Regenerative Research Foundat One Discovery Drive Rensselaer NY 12144 203654626 80000 0 Research UT Southwestern Medical Cente Office of Devel PO Box 910888 Dallas TX 75391 756002868 80000 0 Research 4 1 Grantmaker's Description of How Grants are Used Investigators are required to provide two progress reports during the term of the grant. The progress report is sent for review and approval to the Vice President of Scientific Affairs and payment may be released only after approval has been given. If progress reports are not determined to be satisfactory, payment may be withheld until the investigator can provide a satisfactory report. X false false false false false false false false false David Kemp President 200000 20000 6000 2305 228305 Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, Et William R. McFarland and Ileen J McFarland are husband and wife.John T. Burhoe and John T. Burhoe, Jr. are father and son. Form 990, Part VI, Line 11b: Form 990 Review Process The 990 is provided to the finance committee for review and approval. The form is then provided to the full board of directors for a period to make comments before filing with the IRS. Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of Conflicts The organization has a board approved conflicts of interest policy. Each board member must fill out an annual declaration stating they had no conflicts or identifying the nature of their interested party transactions. Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top Management The Board of Directors discussed performance and uses salary data to determine. Periodically the Board also obtains an independent compensation study to determine salary levels. Form 990, Part VI, Line 19: Other Organization Documents Publicly Available Governing documents are made available upon request. Other Changes In Net Assets Or Fund Balances - Other Increases Refund of grants = $95872 Patient Engagement Program LLC 1216 Broadway New York NY 10001 474679085 Research NY 38 59509 CurePSP Inc false false false false false false false false false false false false false false false false false false false