2021-04-08T12:01:31-05:00 2020-06-30 521392008 GELMAN ROSENBERG & FREEDMAN 4550 MONTGOMERY AVE SUITE 800N BETHESDA MD 208142930 990 2019-07-01 824218205 ASH REGISTRY INC ASHR 2027760544 2021 L STREET NW NO 900 WASHINGTON DC 20036 MATTHEW GERTZOG EXECUTIVE DIRECTOR 2027760544 2021-04-08 1 RICHARD J LOCASTRO CPA P00288314 3019519090 2019 2022-09-23 18:48:47Z ASH RESEARCH COLLABORATIVE MATTHEW GERTZOG 2021 L STREET NW NO 900 WASHINGTON DC 20036 0 0 X WWW.ASHRESEARCHCOLLABORATIVE.ORG X 2017 DC SEE PART III, LINE 1. 13 10 0 13 0 0 10000 0 0 0 0 0 0 0 10000 0 0 0 0 0 1094396 1976400 0 0 0 3049735 6554030 4144131 8530430 -4134131 -8530430 1466643 1091496 5600774 13756057 -4134131 -12664561 X THE ASH RESEARCH COLLABORATIVE (ASH RC) WAS ESTABLISHED BY THE AMERICAN SOCIETY OF HEMATOLOGY IN 2017 TO FOSTER COLLABORATIVE PARTNERSHIPS TO ACCELERATE PROGRESS IN HEMATOLOGY, WITH THE ULTIMATE GOAL OF IMPROVING THE LIVES OF PEOPLE AFFECTED BY BLOOD DISEASES. THE FOUNDATION OF THE ASH RC IS ITS DATA REPOSITORY, THE DATA HUB. THIS TECHNOLOGY PLATFORM FACILITATES THE EXCHANGE OF INFORMATION BY AGGREGATING, AND MAKING AVAILABLE FOR INQUIRY, RESEARCH-GRADE DATA ON HEMATOLOGIC DISEASES. THE SECOND COMPONENT OF THE ASH RC IS THE SICKLE CELL DISEASE (SCD) CLINICAL TRIALS NETWORK. THE GOAL OF THE NETWORK IS TO CREATE A NETWORK OF COLLABORATING CLINICAL RESEARCH SITES TO ACCELERATE AND OPTIMIZE CLINICAL TRIALS RESEARCH IN SCD AND IMPROVE OUTCOMES FOR INDIVIDUALS LIVING WITH SICKLE CELL DISEASE. 0 0 8045175 THE ASH RC DATA HUB WAS CREATED TO FACILITATE THE SHARING OF DATA ON BENIGN AND MALIGNANT HEMATOLOGIC CONDITIONS TO SUPPORT OF SCIENTIFIC INQUIRY AND DISCOVERY. AS A MAJOR INITIATIVE WITHIN ASH RC, THE DATA HUB AIMS TO CREATE THE LARGEST SHARED INFORMATION RESOURCE WITHIN THE GLOBAL HEMATOLOGY COMMUNITY. THE DATA HUB IS CURRENTLY COLLECTING DATA ON THE NOVEL CORONAVIRUS (COVID-19) AND ITS IMPACT ON INDIVIDUALS LIVING WITH HEMATOLOGIC CONDITIONS (COVID-19 REGISTRY), MULTIPLE MYELOMA AND SICKLE CELL DISEASE. THE LONG-TERM GOAL OF THE ASH RC IS TO ADDRESS THE ENTIRE SPECTRUM OF MALIGNANT AND NONMALIGNANT HEMATOLOGIC DISEASES, WHICH MEANS THE DATA HUB WILL EXPAND ITS SCOPE ONCE THESE INITIAL EFFORTS HAVE REACHED MATURITY. CURRENTLY, THE DATA HUB HOUSES DATA ON MORE THAN 3,000 PATIENTS WITH SCD AND 2,000 PATIENTS WITH MULTIPLE MYELOMA. 8045175 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 1 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 9 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 X 13 10 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 X TIFFANY AKE 2027760544 2021 L STREET NW SUITE 900 WASHINGTON DC 20036 X ROY SILVERSTEIN SEE SCH O PRESIDENT (THROUGH 12/19) 2.00 2.00 X X 0 15721 0 STEPHANIE LEE SEE SCH O PRES-ELECT TO PRES (EFF. 01/20) 2.00 2.00 X X 0 4683 0 JANE N WINTER BOARD MEMBER TO VP (EFF. 01/20) 2.00 2.00 X X 0 0 0 MARTIN S TALLMAN SEE SCH O VP TO PRES.-ELECT (EFF. 01/20) 2.00 2.00 X X 0 1500 0 ROBERT A BRODSKY SEE SCH O SECRETARY 2.00 2.00 X X 0 12175 0 MARK CROWTHER TREASURER 2.00 2.00 X X 0 0 0 STEVEN ALLEN BOARD MEMBER (THROUGH 12/31/19) 2.00 2.00 X 0 0 0 ARNOLD GANSER BOARD MEMBER 2.00 2.00 X 0 0 0 CYNTHIA E DUNBAR SEE SCH O BOARD MEMBER 2.00 2.00 X 0 2500 0 JOHN C BYRD SEE SCH O BOARD MEMBER 2.00 2.00 X 0 20000 0 AGNES LEE BOARD MEMBER 2.00 2.00 X 0 0 0 JOSEPH MIKHAEL BOARD MEMBER 2.00 2.00 X 0 0 0 BELINDA AVALOS BOARD MEMBER 2.00 2.00 X 0 0 0 BOB LOWENBERG BOARD MEMBER (BEG. 01/20) 2.00 2.00 X 0 0 0 ALLISON LOREN BOARD MEMBER (BEG. 01/20) 2.00 2.00 X 0 0 0 MATTHEW GERTZOG EXECUTIVE DIRECTOR 18.00 18.00 X 0 432408 52999 ROBERT PLOVNICK CHIEF MEDICAL QUALITY OFFICER 18.00 18.00 X 0 329912 53344 CHARLES CHESSON-DIR SICKLE CELL DISEASE CLINICAL TRIAL NETWORK 35.00 0.00 X 0 240149 52500 UCHENNA ONYEACHOM SR. MANAGER, DATA HUB INFORMATICS 35.00 0.00 X 0 145639 33284 0 1204687 192127 0 0 1 0 PROMETHEUS RESEARCH PO BOX 41125 SAN JOSE CA 95160 SOFTWARE DEVELOPMENT AND DATA MANAGEMENT 4072119 GEEKHIVE 28 CHURCH ST SUITE 2A WARWICK NY 10990 IT CONSULTING 340560 CISCRP ONE LIBERTY SQUARE SUITE 1100 BOSTON MA 02109 COMMUNITY-CENTRIC RESEARCH DESIGN 232426 MARY ANN FALLON 6 LITCHFORD ROAD CHAPEL HILL NC 27514 CLINICAL TRIALS OPERATIONS EXPERT 150333 NELSON MULLLINS RILEY & SCARBOROUGH PO BOX 11070 COLUMBIA SC 29211 LEGAL SERVICES 113474 5 0 0 0 0 X 301977 287533 14444 1353548 1288808 64740 90073 83538 6535 130227 120815 9412 100575 97045 3530 205707 205707 1562 1562 5406219 5023593 382626 85036 85036 28966 26560 2406 29702 29702 246256 246256 140578 140578 135666 135666 71132 71132 154420 154420 MISCELLANEOUS 27129 27129 DUES & SUBSCRIPTIONS 20079 20079 STAFF DEVELOPMENT 1578 1578 8530430 8045175 485255 0 1378507 1006238 88136 85258 1466643 1091496 310334 375048 5290440 13381009 5600774 13756057 X -4134131 -12664561 -4134131 -12664561 1466643 1091496 -8530430 0 X 0 1 X 1 0 X X 1 AMERICAN SOCIETY OF HEMATOLOGY INC 237080568 10 1 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 DUE TO ASH 13381009 13381009 X 0 0 0 0 0 8530430 0 8530430 0 8530430 PART X, LINE 2: FOR THE YEARS ENDED JUNE 30, 2020 AND 2019, THE SOCIETY HAS DOCUMENTED ITS CONSIDERATION OF FASB ASC 740-10, INCOME TAXES, THAT PROVIDES GUIDANCE FOR REPORTING UNCERTAINTY IN INCOME TAXES AND HAS DETERMINED THAT NO MATERIAL UNCERTAIN TAX POSITIONS QUALIFY FOR EITHER RECOGNITION OR DISCLOSURE IN THE CONSOLIDATED FINANCIAL STATEMENTS. 0 0 0 0 0 0 0 0 0 MATTHEW GERTZOG EXECUTIVE DIRECTOR 0 412408 0 20000 0 0 0 28000 0 24999 0 485407 0 0 ROBERT PLOVNICK CHIEF MEDICAL QUALITY OFFICER 0 324912 0 5000 0 0 0 28000 0 25344 0 383256 0 0 CHARLES CHESSON-DIR SICKLE CELL DISEASE CLINICAL TRIAL NETWORK 0 240149 0 0 0 0 0 26239 0 26261 0 292649 0 0 UCHENNA ONYEACHOM SR. MANAGER, DATA HUB INFORMATICS 0 145639 0 0 0 0 0 16113 0 17171 0 178923 0 0 PART I, LINE 3 ASH RC RELIED ON ASH, A RELATED ORGANIZATION, TO DETERMINE COMPENSATION. ASH USED THE FOLLOWING METHODS TO DETERMINE COMPENSATION: - INDEPENDENT COMPENSATION CONSULTANT - COMPENSATION SURVEY OR STUDY - APPROVAL BY THE BOARD OR COMPENSATION COMMITTEE - FORM 990 OF OTHER ORGANIZATIONS - COMPENSATION COMMITTEE FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 WAS PREPARED BY THE OUTSIDE ACCOUNTANTS AND REVIEWED FIRST BY THE CHIEF FINANCIAL OFFICER, AND THEN BY THE EXECUTIVE DIRECTOR. IT WAS THEN SENT TO THE ENTIRE BOARD PRIOR TO FILING WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C ASH RC'S CONFLICT OF INTEREST POLICY QUESTIONNAIRE IS FILLED OUT ELECTRONICALLY BY ALL BOARD MEMBERS AND OFFICERS. BEFORE EACH BOARD OR COMMITTEE MEETING A MEMBER IS PUT IN CHARGE OF REVIEWING ALL CONFLICT OF INTEREST STATEMENTS FOR THE MEMBERS ATTENDING. FURTHERMORE, MEMBERS ARE ASKED TO DISCLOSE ANY CHANGES BEFORE EVERY MEETING. WHEN AN ASH RC MEMBER HAS A CONFLICT, S/HE WILL NOT: 1. TAKE ANY ACTION ON BEHALF OF ASH CONCERNING THE SUBJECT IN CONFLICT OR ANY ISSUE RELEVANT TO THE SUBJECT IN CONFLICT; 2. PARTICIPATE IN DISCUSSIONS ON THE SUBJECT WITHOUT FULL DISCLOSURE; 3. PARTICIPATE IN DECISION-MAKING DISCUSSIONS OR CAST A VOTE; 4. IMPLY THAT HE/SHE IS ACTING ON BEHALF OF ASH RC WHEN DISCUSSING THE RELEVANT SUBJECT WITH THIRD PARTIES; OR 5. FAIL TO CLARIFY WITH THIRD PARTIES WITH WHOM HE/SHE DEALS ON THE RELEVANT SUBJECT THAT HE/SHE IS NOT ACTING ON BEHALF OF ASH RC. FORM 990, PART VI, SECTION B, LINE 15A ASH RC RELIES ON A RELATED ORGANIZATION, THE AMERICAN SOCIETY OF HEMATOLOGY (ASH), TO DETERMINE COMPENSATION. AS PART OF THE PROCESS FOR DETERMINING THE COMPENSATION FOR ALL OF ITS EMPLOYEES, THE COMPENSATION FOR KEY EMPLOYEES OF THE ORGANIZATION (INCLUDING THE EXECUTIVE DIRECTOR OF ASH RC) IS REVIEWED BY AN OUTSIDE HR GROUP AND APPROVED BY THE EXECUTIVE DIRECTOR OF ASH. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION'S GOVERNING DOCUMENTS AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. THE CONFLICT OF INTEREST POLICY IS LOCATED ON THE ORGANIZATION'S WEBSITE. PART VII, SECTION A - COMPENSATION OF BOARD MEMBERS: BOARD MEMBERS MAY RECEIVE COMPENSATION RELATED TO SPEAKING ENGAGEMENTS OR WRITING ARTICLES FOR THE SOCIETY. FORM 990, PART IX, LINE 11G ASH REGISTRY CONSULTANTS: PROGRAM SERVICE EXPENSES 5,023,593. MANAGEMENT AND GENERAL EXPENSES 382,626. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 5,406,219. AMERICAN SOCIETY OF HEMATOLOGY INC 2021 L STREET NW SUITE 900 WASHINGTON DC 20036 237080568 SEE PART VII DC 501(C)(3) LINE 10 N/A 0 0 0 0 0 1 0 0 0 0 0 0 0 1 1 1 0 0 0 0 SCHEDULE R, PART II, RELATED TAX-EXEMPT ORGANIZATIONS: (B) PRIMARY ACTIVITY: PROFESSIONAL SOCIETY SERVING BOTH CLINICIANS & SCIENTISTS AROUND THE WORLD WHO ARE WORKING TO CONQUER BLOOD DISEASES.