2022-12-19T13:21:15-06:00 2022-06-30 871353108 EISNER ADVISORY GROUP LLC 130 NORTH 18TH STREET SUITE 3000 PHILADELPHIA PA 191032757 990 2021-07-01 412073220 THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION ASSO 2675147221 2700 HORIZON DRIVE 120 KING OF PRUSSIA PA 19406 SUSAN L-J DICKINSON CHIEF EXECUTIVE OFFICER 2675147221 2022-12-16 1 SUSAN L-J DICKINSON 999009999 HELEN M MARTIN P01330899 2158818800 3 AAL1 IAL1 2021 2022-09-23 18:48:47Z SUSAN L-J DICKINSON 2700 HORIZON DRIVE 120 KING OF PRUSSIA PA 19406 34343820 0 X WWW.THEAFTD.ORG X 2002 PA PROMOTE AND FUND RESEARCH INTO DEVELOPING BETTER DIAGNOSTIC PROCESSES, THERAPIES, AND CURES FOR FRONTOTEMPORAL DEGENERATION (FTD); PROVIDE INFORMATION, EDUCATION, SUPPORT AND ADVOCACY TO PERSONS DIAGNOSED WITH FTD, THEIR FAMILIES AND CAREGIVERS; EDUCATE PHYSICIANS AND OTHER HEALTH PROFESSIONALS ABOUT FTD AND HOW TO IMPROVE PATIENT CARE; BRING ABOUT GREATER PUBLIC AWARENESS OF THE NATURE AND PREVALENCE OF FRONTOTEMPORAL DEGENERATION AND THE NEEDS OF THOSE WHO ARE COPING WITH IT; ADVOCATE WITH PUBLIC OFFICIALS TO PROMOTE PUBLIC AND PRIVATE PROGRAMS THAT PROVIDE APPROPRIATE, AFFORDABLE AND HIGH-QUALITY, LONG-TERM HEALTH CARE AND SOCIAL SERVICES. 18 18 35 348 0 0 28142577 12078806 13363 1145 371351 193125 0 -215118 28527291 12057958 3495976 2449896 0 0 2583721 3481118 35000 95000 984842 1500399 2549853 7615096 8575867 20912195 3482091 44786288 44796969 1900846 2227394 42885442 42569575 X PROMOTE AND FUND RESEARCH INTO DEVELOPING BETTER DIAGNOSTIC PROCESSES, THERAPIES, AND CURES FOR FRONTOTEMPORAL DEGENERATION (FTD); PROVIDE INFORMATION, EDUCATION, SUPPORT AND ADVOCACY TO PERSONS DIAGNOSED WITH FTD, THEIR FAMILIES AND CAREGIVERS; EDUCATE PHYSICIANS AND OTHER HEALTH PROFESSIONALS ABOUT FTD AND HOW TO IMPROVE PATIENT CARE; BRING ABOUT GREATER PUBLIC AWARENESS OF THE NATURE AND PREVALENCE OF FRONTOTEMPORAL DEGENERATION AND THE NEEDS OF THOSE WHO ARE COPING WITH IT; ADVOCATE WITH PUBLIC OFFICIALS AND PROMOTE PUBLIC AND PRIVATE PROGRAMS THAT PROVIDE APPROPRIATE, AFFORDABLE AND HIGH-QUALITY LONG-TERM HEALTH CARE AND SOCIAL SERVICES. 0 0 3807005 2098004 RESEARCH - EACH YEAR AFTD INVESTS IN THE SCIENCE THAT WILL DRIVE DISCOVERY AND DEVELOPMENT OF ACCURATE DIAGNOSTICS AND THE FIRST THERAPEUTICS FOR FTD. TO THAT END, AFTD AWARDED MULTIPLE GRANTS DURING FY22, INCLUDING TWO PILOT GRANTS.AFTD PROVIDED THREE AWARDS THROUGH THE TREATFTD PROGRAM, A $10 MILLION MULTI-YEAR PARTNERSHIP BETWEEN AFTD AND ADDF DESIGNED TO BRING BOTH NOVEL AND REPURPOSED TREATMENTS INTO CLINICAL TESTING.THROUGH THE DIAGNOSTICS ACCELERATOR PROGRAM, A COLLABORATION WITH THE ALZHEIMER'S DRUG DISCOVERY FOUNDATION, AFTD GAVE TWO AWARDS.AFTD DELIVERED THREE AWARDS TOTALING $600,000 THROUGH THE DRUG DISCOVERY PROGRAM IN COLLABORATION WITH ADDF. THE RECIPIENTS WILL STUDY THE EFFICACY OF COMPOUNDS THAT COULD PREVENT THE ACCUMULATION OF A PROTEIN LINKED TO FTD AND WORK ON DEVELOPING AN IMMUNOTHERAPY TREATMENT FOR THE MOST COMMON GENETIC MUTATION IN PEOPLE WITH FTD.IN OCTOBER, AFTD PUBLISHED "FRONTOTEMPORAL DEGENERATION: A VOICE OF THE PATIENT REPORT," WHICH SUMMARIZES AND ANALYZES DATA AND PERSPECTIVES FROM MORE THAN 1,750 PEOPLE LIVING WITH FTD, CARE PARTNERS, CAREGIVERS, AND OTHER FAMILY MEMBERS. THE REPORT COMPRISES INFORMATION SHARED BY PARTICIPANTS IN THE AFTD-HOSTED EXTERNALLY LED PATIENT-FOCUSED DRUG DEVELOPMENT (EL-PFDD) MEETING, HELD IN MARCH 2021. IT ALSO INCLUDES DATA FROM THE PRE-MEETING FTD INSIGHTS SURVEY, CONDUCTED BY AFTD AND THE FTD DISORDERS REGISTRY.THE FTD TREATMENT STUDY GROUP MET FOR ITS BIANNUAL MEETING IN DECEMBER 2021. AFTD CONVENED ALMOST 200 PARTICIPANTS FROM ACADEMIC RESEARCH INSTITUTIONS, THE BIOPHARMACEUTICAL INDUSTRY, PEER NONPROFIT ADVOCACY ORGANIZATIONS, AND GOVERNMENT AGENCIES TO COLLABORATE ON WAYS TO ACCELERATE THE DEVELOPMENT OF EFFECTIVE FTD TREATMENTS IN A PRE-COMPETITIVE SPACE. THE HYBRID MEETING FEATURED PRESENTATIONS FROM SIX COMPANIES ON TRIAL DESIGNS THAT ARE ACTIVELY RECRUITING, DEMONSTRATING HOW FAR DRUG DEVELOPMENT HAS PROGRESSED IN THE DECADE SINCE THE FIRST FTSG MEETING IN 2011. IN MAY 2022, AFTD BOARD MEMBER KRISTIN HOLLOWAY HOSTED THE INAUGURAL HOLLOWAY SUMMIT IN MIAMI, BRINGING TOGETHER MORE THAN 50 INTERNATIONALLY RENOWNED LEADERS IN FTD SCIENCE, NEURODEGENERATIVE RESEARCH, AND DIGITAL TOOL DESIGN. ATTENDEES SHARED PROGRESS IN THE DEVELOPMENT OF TOOLS TO ASSESS FTD SYMPTOMS, FOCUSING ON EMERGING TECHNOLOGIES THAT ALLOW RESEARCHERS TO USE SMARTPHONES, WEARABLE TRACKERS, OR OTHER DEVICES TO REMOTELY GATHER DATA - KNOWN AS DIGITAL BIOMARKERS - FROM RESEARCH PARTICIPANTS. AFTD AWARDED $150,000 TO THE FTD DISORDER REGISTRY, AN ELECTRONIC DATABASE THAT COLLECTS INFORMATION ABOUT THE FTD EXPERIENCE FROM PERSONS DIAGNOSED AND FTD CARE PARTNERS. THIS ESSENTIAL SOURCE OF FIRST-HAND ACCOUNTS WILL HELP INFORM RESEARCHERS AND CLINICIANS, AND WILL SPUR INNOVATION THAT WILL LEAD TO BETTER DIAGNOSES AND THERAPIES FOR PEOPLE LIVING WITH FTD. 1743239 351892 1145 EDUCATION AND SUPPORTSUPPORT - AFTD UNDERSTANDS THE CHALLENGES THAT FTD PRESENTS TO PATIENTS AND THEIR FAMILIES, AND WORKS HARD TO DEVELOP UNIQUE RESOURCES AND INFORMATION THAT WILL IMPROVE QUALITY OF LIFE FOR THOSE LIVING WITH FTD. AFTD STAFF RESPONDED TO 2,325 HELPLINE CALLS AND EMAILS. AS OF JUNE 30, 2022, THERE ARE 93 AFTD-AFFILIATED SUPPORT GROUP FACILITATORS LEADING 72 GROUPS ACROSS THE UNITED STATES. AFTD AWARDED 446 COMSTOCK GRANTS TO FTD CAREGIVERS AND PERSONS DIAGNOSED - A TOTAL THAT INCLUDES TRAVEL, RESPITE AND QUALITY OF LIFE GRANTS. EDUCATION AND INFORMATION-AFTD COLLABORATES WITH A GROWING NUMBER OF PARTNERS EACH YEAR TO EDUCATE HEALTHCARE PROFESSIONALS ABOUT FTD, WITH A GOAL OF SPEEDING OUR WAY TOWARD ACCURATE DIAGNOSIS AND EFFECTIVE DISEASE MANAGEMENT AND TREATMENT. AFTD'S 2022 EDUCATION CONFERENCE, HELD IN PERSON IN BALTIMORE ONA ONLINE VIA LIVESTREAM, DREW MORE THAN 1,200 REGISTRANTS COMBINED. THE CONFERENCE FEATURED EXPERTS FAMILIAR WITH FTD AND THE AFTD COMMUNITY TO COMPREHENSIVELY DISCUSS CONTENT PERTINENT TO PEOPLE LIVING WITH OR AFFECTED BY FTD, AS WELL AS HEALTHCARE PROFESSIONALS SEEKING GREATER UNDERSTANDING OF THIS DISEASE. AFTD OFFERED SEVEN EXPERT-LED EDUCATIONAL WEBINARS, INCLUDING TWO WITH THE FTD DISORDERS REGISTRY AND ONE WEBINAR THAT OFFERED CONTINUING EDUCATION CREDITS TO VIEWERS. AFTD ALSO PUBLISHED TWO ISSUES OF THE PARTNERS IN FTD CARE NEWSLETTER FOR HEALTH PROFESSIONALS AND FAMILIES. 1455715 ADVOCACY AND AWARENESS - OUR COMMUNITY IS LEADING THE WAY TO SEND THE MESSAGE THAT DEMENTIA IS A MULTI-FACETED DISEASE THAT CAN OCCUR AT A YOUNG AGE AND BEGIN WITH SYMPTOMS UNRELATED TO MEMORY. AFTD IS WORKING HARD TO ENSURE THAT THIS MESSAGE IS HEARD IN WASHINGTON DC AND OTHER SEATS OF POWER, WHERE DECISIONS ABOUT RESEARCH FUNDING AND SERVICES ARE MADE. 7005959 1 1 0 1 0 0 0 0 0 0 1 1 0 0 1 1 0 1 0 0 1 1 0 1 1 0 0 1 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 1 28 0 1 35 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 18 18 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 AL AK AR CA CO CT DC FL GA HI IL KS KY ME MD MA MI MN MS OR PA RI SC TN NV NH NJ NM NY NC ND OH OK UT VA WA WV WI X X X CHRISTINE ROGERS STEVENS 2675147221 2700 HORIZON DRIVE STE 120 KING OF PRUSSIA PA 19406 SUSAN L-J DICKINSON CHIEF EXECUTIVE OFFICER 36.00 4.00 X 226222 0 24592 PENNY DACKS SR DIRECTOR OF SCIENTIFIC INITIATIVES 30.00 10.00 X 197475 0 14834 CHRISTINE ROGERS STEVENS CHIEF FINANCIAL OFFICER 36.00 4.00 X 184890 0 25615 BENJAMIN FREEMAN DIR OF DEVELOPMENT & COMMUNICATIONS 40.00 X 154091 0 5753 SHARON DENNY SR DIRECTOR OF PROGRAMS 40.00 X 144277 0 5454 DEBRA NIEHOFF DIRECTOR OF RESEARCH AND GRANTS 40.00 X 104868 0 23129 ESTHER KANE DIRECTOR OF SUPPORT AND EDUCATION 40.00 X 110445 0 12794 MITCH APPLESON CHIEF OPERATING OFFICER 38.00 2.00 X 0 0 0 DAVID PFEIFER CHAIR 10.00 X X 0 0 0 KIM TORRES VICE CHAIR 3.00 X X 0 0 0 BRIAN ROSE TREASURER 4.00 X X 0 0 0 KACY KUNESH SECRETARY 4.00 X X 0 0 0 HELEN-ANN COMSTOCK DIRECTOR 3.00 X 0 0 0 HALIMA AMJAD DIRECTOR 3.00 X 0 0 0 GAIL ANDERSON DIRECTOR 4.00 X 0 0 0 CHRISTIAN BARROW DIRECTOR 3.00 X 0 0 0 RITA CHOULA DIRECTOR 2.00 X 0 0 0 SANDRA GROW DIRECTOR 3.00 X 0 0 0 DANIEL HEDAYA DIRECTOR 2.00 X 0 0 0 KRISTIN HOLLOWAY DIRECTOR 2.00 X 0 0 0 JARY LARSEN PHD DIRECTOR 3.00 X 0 0 0 JOSEPH MARQUEZ MD DIRECTOR 2.00 X 0 0 0 KATHY MELE DIRECTOR 2.00 X 0 0 0 DONALD E NEWHOUSE DIRECTOR 2.00 X 0 0 0 KRISTIN SCHNEEMAN DIRECTOR 3.00 X 0 0 0 MICHAEL STOWELL PHD DIRECTOR 2.00 X 0 0 0 1122268 0 112171 7 0 1 0 0 2190874 9887932 3052077 12078806 EDUC & AWARENESS PRODUCT SALES 541700 1145 1145 1145 400405 400405 21721364 21928644 -207280 -207280 -207280 129889 2190874 357218 -227329 -227329 FTD REGISTRY 541700 12211 12211 12211 12057958 13356 0 -34204 2069388 2069388 201892 201892 178616 178616 566563 310373 128095 128095 2384791 1917994 68242 398555 61540 49780 1468 10292 251997 204859 5089 42049 216227 163984 13521 38722 166757 77378 61255 28124 42850 42850 95000 95000 264804 195114 42030 27660 127360 127360 82543 16842 63985 1716 611880 437758 63967 110155 230687 159740 36717 34230 13372 10799 607 1966 734773 695134 39636 3 12144 7287 2428 2429 21968 15606 3018 3344 PRINTING AND COPYING 77362 66839 401 10122 BANK & CREDIT CARD FEES 41665 585 811 40269 TELEPHONE 39321 30985 5699 2637 POSTAGE 33153 23092 2411 7650 49214 44554 2836 1824 8575867 7005959 585066 984842 111742 101450 7161448 7291224 8762487 7865457 1517 1983 47744 90160 76791 30361 37499 46430 18636308 25706579 10001480 3667623 26063 26063 44786288 44796969 248287 324157 1496196 1795659 75934 30538 80429 77040 1900846 2227394 X 34129522 34518938 8755920 8050637 42885442 42569575 44786288 44796969 X 3482091 -3743251 -68457 13750 X X 0 1 X 1 0 X 5358325 8919063 9975434 8142577 12078806 44474205 5358325 8919063 9975434 8142577 12078806 44474205 18364217 26109988 63330 179830 207149 271150 400405 1121864 12211 12211 45608280 450987 0.57250 0.61370 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 4114 4114 8449211 8453325 572666 143167 0 0 499092 536176 530755 572666 2138689 3208034 4515 3063 2963 4114 14655 124773 134044 132689 143167 534673 802010 76791 30361 46430 46430 EDGEWOOD GROWTH FUND CLASS INSTITUTIONAL 3667623 F 3667623 DEFERRED RENT 77040 77040 X 12138701 86909 186959 273868 11864833 193125 193125 12057958 8835985 86909 186959 273868 8562117 13750 13750 8575867 PART X, LINE 2: THE INTERNAL REVENUE SERVICE HAS CLASSIFIED THE ORGANIZATION AS EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES CLARIFIES THE ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES RECOGNIZED IN AN ENTERPRISE'S FINANCIAL STATEMENTS. MANAGEMENT HAS ANALYZED THE TAX POSITIONS TAKEN BY THE ORGANIZATION, AND HAS CONCLUDED THAT AS OF JUNE 30, 2022 AND 2021, THERE ARE NO UNCERTAIN TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN THAT WOULD REQUIRE RECOGNITION OF A LIABILITY OR DISCLOSURE IN THE CONSOLIDATED FINANCIAL STATEMENTS. THE ORGANIZATION RECOGNIZES ACCRUED INTEREST AND PENALTIES ASSOCIATED WITH UNCERTAIN TAX POSITIONS, IF ANY. THERE WERE NO INCOME TAX RELATED INTEREST OR PENALTIES RECORDED FOR EITHER OF THE YEARS ENDED JUNE 30, 2022 OR 2021. PART XI, LINE 2D - OTHER ADJUSTMENTS: ADDITIONAL SPECIAL EVENTS EXPENSES 186,959. PART XI, LINE 4B - OTHER ADJUSTMENTS: INVESTMENT INCOME NET OF REALIZED LOSSES 193,125. PART XII, LINE 2D - OTHER ADJUSTMENTS: ADDITIONAL SPECIAL EVENTS COSTS 186,959. PART XII, LINE 4B - OTHER ADJUSTMENTS: GRANTS RETURNED NETTED AGAINST EXPENSE ON FINANCIAL STATEMENTS 13,750. 1 0 0 0 0 0 0 0 0 0 EAST ASIA AND THE PACIFIC WELL BEING IN FTD PILOT GRANT 58616 0 EUROPE (INCLUDING ICELAND & GREENLAND) HOLLOWAY POST DOCTORAL FELLOWSHIP - JULIA FAURA LLORENS 120000 0 2 0 0 0 0 0 0 0 PART I, LINE 2: GRANTEES SUBMIT INTERIM AND FINAL REPORTS WITH PROGRESS AND FINANCIAL INFORMATION. PART III ACCOUNTING METHOD: X 1 EVENT ASSOCIATES INC 162 W 56TH STREET SUITE 405 NEW YORK NY 10019 COORDINATION AND PLANNING OF EVENT -"HOPE RISING" 0 2215444 95000 2120444 2215444 95000 2120444 AL AL AR CA CO CT DC FL GA IL KS ME MD MA MI MN MS OR PA RI SC TN NV NH NJ NM NY NC ND OH OK UT VA WA WV WI HOPE RISING 2215444 2109569 105875 196594 72284 57273 DRIVING HOPE NY 81509 63029 18480 267 16350 2319 1 23810 18276 5534 267 5259 1176 5429 2320763 2190874 129889 534 218203 73460 65021 357218 -227329 1 ALZHEIMER'S DRUG DISCOVERY FOUNDATION 57 WEST 57TH STREET SUITE 904 NEW YORK NY 10019 201082179 501(C)(3) 600000 0 DRUG DISCOVERY, TREAT FTD INITIATIVE THE FTD DISORDERS REGISTRY LLC 2700 HORIZON DRIVE STE 120 KING OF PRUSSIA PA 19406 473601782 501(C)(3) 150000 0 FTD PATIENT REGISTRY AMERICAN BRAIN FOUNDATION 201 CHICAGO AVENUE MINNEAPOLIS MN 55415 411717098 501(C)(3) 50000 0 CLINICAL RESEARCH TRAINING SCHOLARSHIP WITH THE AMERICAN ACADEMY OF NEUROLOGY TARGET ALS FOUNDATION INC PO BOX 1598 NEW YORK NY 10101 810756743 501(C)(3) 625000 0 ALS AND FTD BIOMARKERS RESEARCH NORTH TEXAS COMMUNITY FOUNDATION 777 MAIN STREET SUITE 2850 FORT WORTH TX 76102 752267767 501(C)(3) 200000 0 INTEGRATED BIOBANKING PLATFORM SUPPORT FOUNDATION FOR THE NATIONAL INSTITUTES OF HEALTH 11400 ROCKVILLE PIKE600 NORTH BETHESDA MD 20852 521986675 501(C)(3) 84388 0 SUPPLEMENTAL FUNDING FOR BIOMARKERS CONSORTIUM NEUROFILAMENT REGENERATIVE RESERACH FOUNDATION 1 DISCOVERY DRIVE RENSSELAER NY 12144 203654626 501(C)(3) 60000 0 PATHWAYS FOR HOPE PILOT GRANT - MEYSAM YAZDANKHAH CASE WESTERN RESERVE UNIVERSITY PATHOLOGY DEPARTMENT 2103 CORNELL ROAD 5313 WOLSTEIN RESEARCH BUILDING CLEVELAND OH 44106 341018992 501(C)(3) 60000 0 PATHWAYS FOR HOPE PILOT GRANT - AARON BURBERRY UNIVERSITY OF CALIFORNIA SAN DIEGO DEPT OF CHEMISTRY AND BIOCHEMISTRY 9500 GILMAN DRIVE SAN DIEGO CA 92093 956006144 501(C)(3) 120000 0 HOLLOWAY POST DOCTORAL FELLOWSHIP - SUBORNO JATI CHILDREN'S HOSPITAL OF PITTSBURGH JOHN G RANGOS RESEARCH CTR 4401 PENN AVENUE PITTSBURGH PA 15224 251865744 501(C)(3) 120000 0 AFTD POST DOCTORAL FELLOWSHIP - ERIC ANDERSON 10 0 RESPITE CARE, TRAVEL AND QUALITY OF LIFE GRANTS 446 201892 PART I, LINE 2: RESEARCH GRANTS: GRANTEES SUBMIT INTERIM AND FINAL REPORTS WITH PROGRESS AND FINANCIAL INFORMATION. RESPITE AND TRAVEL GRANTS: GRANTEES SUBMIT A LISTING OF EXPENSES INCURRED AND PAYMENT IS MADE VIA REIMBURSEMENT. QUALITY OF LIFE GRANTS: GRANTEE EXPENDITURES ARE MONITORED THRU ON-LINE REPORTING. X X 0 0 0 0 0 0 0 0 0 SUSAN L-J DICKINSON CHIEF EXECUTIVE OFFICER 226108 0 0 0 114 0 6766 0 17826 0 250814 0 0 0 PENNY DACKS SR DIRECTOR OF SCIENTIFIC INITIATIVE 197361 0 0 0 114 0 5442 0 9392 0 212309 0 0 0 CHRISTINE ROGERS STEVENS CHIEF FINANCIAL OFFICER 184776 0 0 0 114 0 5161 0 20454 0 210505 0 0 0 BENJAMIN FREEMAN DIR OF DEVELOPMENT & COMMUNICATIONS 153977 0 0 0 114 0 4613 0 1140 0 159844 0 0 0 X 9 3052077 HI/LOW DATE OF GIFT 0 1 0 PART I, COLUMN (B): AFTD RECOGNIZES IN COLUMN B EACH UNIQUE NON-CASH CONTRIBUTION RECEIVED FROM A DONOR. FORM 990, PART VI, SECTION B, LINE 11B THE COMPLETE 990 WILL BE REVIEWED AND APPROVED BY AFTD'S AUDIT COMMITTEE AND PROVIDED TO THE FULL BOARD PRIOR TO SUBMISSION. FORM 990, PART VI, SECTION B, LINE 12C ALL BOARD MEMBERS AND CEO SIGN THE CONFLICT OF INTEREST FORM EVERY YEAR. IF AN ISSUE WERE TO ARISE IT WOULD BE ADDRESSED BY THE EXECUTIVE COMMITTEE AND THE BOARD MEMBER/CEO IN QUESTION. FORM 990, PART VI, SECTION B, LINE 15 THE PERFORMANCE REVIEW OF AFTD'S CEO WAS BASED ON THE PAST FISCAL YEAR RESULTS. IT INCLUDES INPUT THAT THE BOARD CHAIR AND VICE CHAIR OBTAINED FROM AFTD BOARD MEMBERS, AFTD STAFF AND MAJOR DONORS. THE PERFORMANCE REVIEW WAS WRITTEN BY THE CHAIR WITH INPUT FROM THE VICE CHAIR. BASED ON PERFORMANCE REVIEW AND FISCAL YEAR RESULTS, THE CHAIR RECOMMENDED A SALARY RANGE AND PROPOSED INCREASE WHICH WAS PUT FORWARD TO THE EXECUTIVE COMMITTEE FOR DISCUSSION AND ALIGNMENT. THE FINAL COMPENSATION WAS THEN APPROVED BY THE BOARD. THE SALARY RANGE AND ANNUAL INCREASE WAS DETERMINED AFTER REVIEWING SALARY COMPARABILITY DATA FOR NON PROFITS OF SIMILAR SIZE NATIONALLY AND IN THE GREATER PHILADELPHIA AREA ADJUSTED FOR COST OF LIVING INCREASES. A COMPARABILITY STUDY WAS PERFORMED DURING FY22 AND AFTD USED 3 SURVEYS FOR BENCHMARKS FOR ALL STAFF AT AFTD. IN ADDITION, AFTD DOCUMENTS ALL SALARY RECOMMENDATIONS. FORM 990, PART VI, SECTION C, LINE 19 ALL GOVERNING DOCUMENTS ARE AVAILABLE UPON REQUEST FROM THE OFFICE. FORM 990, PART XI, LINE 9: RETURN OF PRIOR YEAR GRANT AWARDED 13,750. FORM 990, PART XII, LINE 2C THE AUDIT COMMITTEE ASSUMES RESPONSIBILITY FOR THE OVERSIGHT OF THE AUDIT OF ITS FINANCIAL STATEMENTS AND SELECTION OF THE INDEPENDENT ACCOUNTANT. THIS PROCESS HAS NOT CHANGED FROM THE PRIOR YEAR. THE FTD DISORDERS REGISTRY LLC 2700 HORIZON DRIVE SUITE 120 KING OF PRUSSIA PA 19406 473601782 PROVIDES PATIENT REGISTRY FOR THOSE AFFECTED BY FTD DE 501(C)(3) LINE 7 THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION 0 0 1 0 0 0 0 0 0 0 0 0 1 0 0 1 0 1 0 0