2022-11-10T13:11:36-06:00 2022-06-30 541498950 RENNER AND COMPANY CPA PC 700 NORTH FAIRFAX STREET SUITE 400 ALEXANDRIA VA 22314 990 2021-07-01 112779073 SJOGREN'S FOUNDATION INC SJOG 3015304420 10701 PARKRIDGE BLVD 170 RESTON VA 20191 JANET CHURCH CHIEF EXECUTIVE OFFICER 3015304420 2022-11-10 1 JANET CHURCH 999009999 ANDREW E YOUNG CPA P01203950 7035351200 2022-11-10 3 AAL1 IAL1 2021 2022-09-23 18:48:47Z JANET CHURCH 10701 PARKRIDGE BLVD 170 RESTON VA 20191 3121720 0 X WWW.SJOGRENS.ORG X 1983 NY SEE SCHEDULE O FOR DESCRIPTION OF ORGANIZATION'S PRIMARY MISSION. 16 16 16 604 20500 0 2505185 2391109 427253 514416 17070 18003 12094 19952 2961602 2943480 620500 175255 0 0 1623685 1473225 0 0 205458 686731 673964 2930916 2322444 30686 621036 2612292 2799424 1048293 728882 1563999 2070542 X THE FOUNDATION'S MISSION IS TO PROVIDE EDUCATION AND RESOURCES TO SJOGREN'S PATIENTS AND THEIR LOVED ONES, PROVIDE CREDIBLE RESOURCES/EDUCATION TO HEALTHCARE PROFESSIONALS, SERVE AS THE VOICE FOR ALL SJOGREN'S PATIENTS AND LEAD AND FUND INNOVATIVE RESEARCH. 0 0 509900 175255 THE SJOGREN'S FOUNDATION AWARDED THREE RESEARCH GRANTS TO UNIVERSITY AFFILIATED RESEARCHERS IN MAY 2022. THE FOUNDATION ALSO OPENED A NEW GRANT FOR DYSAUTONOMIA IN SJOGREN'S. WORK IN THE BIOMARKER'S CONSORTIUM AND THE FNIH AMP AIM RESEARCH ON BIOMARKERS IN AUTOIMMUNE DISEASES CONTINUES. THE SJOGREN'S FOUNDATION FUNDED THE NEW LIVING WITH SJOGREN'S PATIENT SURVEY IN 2021 AND BEGINNING IN 2022 THE FOUNDATION, IS UTILIZING THE FINDINGS TO HIGHLIGHT THE EXPERIENCES PATIENTS HAVE ON A DAILY BASIS WHILE LIVING WITH THIS DISEASE. 197838 6017 NEWSLETTER - THE FOUNDATION PRODUCES TWO NEWSLETTERS. "CONQUERING SJOGREN'S" IS A PATIENT FOCUSED NEWSLETTER WITH INFORMATION ABOUT SJOGREN'S AND ITS MANY MANIFESTATIONS. CS IS PRODUCED BI-MONTHLY. THE "SJOGREN'S QUARTERLY" IS A PROFESSIONAL PUBLICATION PRODUCED 4 TIMES A YEAR AND OFFERED FREE TO ALL HEALTHCARE PROFESSIONALS TO INCREASE AWARENESS AND EDUCATION AROUND SJOGREN'S. 574362 AWARENESS ACTIVITIES HELP TO PROMOTE SJOGREN'S AND EDUCATE POTENTIAL PATIENTS THROUGH MEDIA AND PUBLIC RELATIONS. THESE PROGRAMS INCLUDE SPEAKING AT PROFESSIONAL CONFERENCES AS WELL AS DISTRIBUTING EDUCATIONAL MATERIALS TO THE PUBLIC AND TO HEALTHCARE PROFESSIONALS. IN JANUARY 2022, THE FOUNDATION LAUNCHED ITS FIRST PROFESSIONAL CONFERENCE, THE STATE OF SJOGREN'S, TARGETING ALL PROVIDERS IN ANY SPECIALTY, RESEARCHERS, AND CORPORATE SCIENTISTS INTERESTED IN THE FIELD OF SJOGREN'S. ADDITIONALLY, THE FOUNDATION PARTNERED WITH PRI-MED TO PRESENT A SJOGREN'S CME COURSE FOR PRIMARY CARE PROVIDERS. 710382 417058 OTHER PROGRAMS WITHIN THE FOUNDATION INCLUDE STRATEGIC GOVERNANCE PROJECTS, CONFERENCES AND MEETINGS RELATED TO TOPICS RELEVANT TO THOSE WITH SJOGREN'S, AS WELL AS VARIOUS INDUSTRY AND MEMBERSHIP PROJECTS AND SERVICES FOR THOSE WITH SJOGREN'S OR ENTITIES PROVIDING SUPPORT TO THOSE INDIVIDUALS. 710382 417058 1992482 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 0 0 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 0 0 16 1 1 1 0 0 0 0 0 0 0 0 0 0 0 X 16 16 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 CO FL IL MD MN MS NH OH OR TN UT VA WA WV X X SJOGREN'S FOUNDATION 3015304420 10701 PARKRIDGE BLVD SUITE 170 RESTON VA 20191 DONALD E THOMAS MD CHAIRMAN 2.00 X X 0 0 0 ALAN BAER MD MSAB CHAIRMAN 2.00 X X 0 0 0 SUSAN BARAJAS CHAIR-ELECT 2.00 X X 0 0 0 AVA WU DDS TREASURER 2.00 X X 0 0 0 DAVID SCHRADER SECRETARY 2.00 X X 0 0 0 ALLISSA LATHAM DIRECTOR 2.00 X 0 0 0 CHADWICK JOHR MD DIRECTOR 2.00 X 0 0 0 JASON NICHOLS OD PHD DIRECTOR 2.00 X 0 0 0 JONATHAN MORSE MSC DIRECTOR 2.00 X 0 0 0 KATIE FORTE DIRECTOR 2.00 X 0 0 0 KIM KELLEY PHARMD DIRECTOR 2.00 X 0 0 0 MONICA MCGILL EDD DIRECTOR 2.00 X 0 0 0 ROBYN LAUKIEN DIRECTOR 2.00 X 0 0 0 TAMMY DOTSON DIRECTOR 2.00 X 0 0 0 THERSA LAWRENCE FORD MD DIRECTOR 2.00 X 0 0 0 VIDYA SANKAR DMD MHS DIRECTOR 2.00 X 0 0 0 JANET CHURCH PRESIDENT AND CEO 40.00 X 286490 0 9264 KATHERINE MORLAND VICE PRESIDENT OF MEDICAL & SCIENTIFIC 40.00 X 161860 0 3081 SHERIESE DEFRUSCIO VICE PRESIDENT OF CORPORATE RELATIONS 40.00 X 140916 0 18586 BEN BASLOE VICE PRESIDENT OF PHILANTHROPY 40.00 X 136680 0 21376 725946 0 52307 4 0 1 0 0 319514 2071595 64051 2391109 MEMBERSHIP DUES 541900 251598 251598 CONFERENCE 541900 236301 129301 107000 ADVERTISING 541800 20500 20500 NEWSLETTER 541900 6017 6017 514416 24989 24989 2800 2800 134257 129117 12126 5140 -12126 -6986 -6986 0 319514 19007 -19007 -19007 47381 17990 29391 29391 MISCELLANEOUS INCOME 541900 6768 6768 6768 2943480 423075 20500 108796 175255 175255 500734 427427 34050 39257 765286 690342 20895 54049 23194 19738 1643 1813 101711 90226 4118 7367 82300 72662 3572 6066 9184 9184 31736 31736 7207 7207 43035 39318 358 3359 17992 15884 782 1326 89377 78911 3879 6587 6773 6773 18500 18500 41336 36495 1794 3047 18204 16071 791 1342 PRINTING, DUPLICATING, 76642 61148 831 14663 AWARENESS ACTIVITIES 74556 74556 POSTAGE AND DELIVERY 73327 59784 1448 12095 BANK AND CREDIT CARD FE 39743 14595 25148 126352 94797 2216 29339 2322444 1992482 124504 205458 462810 752247 669866 669928 21506 87290 5610 7239 20396 10392 245080 177058 108268 68022 1265330 1159015 49557 36342 8949 8949 2612292 2799424 38852 46534 691451 281250 179286 296545 138704 104553 1048293 728882 X 563103 1069646 1000896 1000896 1563999 2070542 2612292 2799424 621036 -114493 0 X X 0 1 X 1 0 X 1844508 3035820 2004952 2505185 2391109 11781574 383928 331972 357683 368639 434297 1876519 2228436 3367792 2362635 2873824 2825406 13658093 1172598 2318228 1361236 791081 742203 6385346 0 1172598 2318228 1361236 791081 742203 6385346 7272747 22481 24943 30736 20326 27789 126275 22481 24943 30736 20326 27789 126275 2000 632 1798 12486 6768 23684 2252917 3393367 2395169 2906636 2859963 13808052 0.52670 0.47170 0.00910 0.00870 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1000896 1000896 1000896 1000896 1072896 72000 1000896 1122896 50000 1072896 1.00000 0 0 166103 100741 65362 78977 76317 2660 68022 DEFERRED RENT 39178 CAPITAL LEASE PAYABLE 54 DEFERRED TENANT ALLOWANCE 65321 104553 X 2851896 -114493 -114493 2966389 7207 -30116 -22909 2943480 2345353 30116 30116 2315237 7207 7207 2322444 PART V, LINE 4: THE FOUNDATION'S ENDOWMENT FUNDS CONSIST OF A BEQUEST THAT WAS RESTRICTED FOR THE PURPOSES OF RESEARCH. PART X, LINE 2: IN ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES, ACCOUNTING STANDARDS REQUIRE AN ENTITY TO RECOGNIZE THE FINANCIAL STATEMENT IMPACT OF A TAX POSITION WHEN IT IS MORE-LIKELY-THAN-NOT THAT THE POSITION WILL NOT BE SUSTAINED UPON EXAMINATION. MANAGEMENT EVALUATED THE FOUNDATION'S TAX POSITIONS AND CONCLUDED THERE ARE NO UNCERTAIN TAX POSITIONS THAT REQUIRE ADJUSTMENT TO THE FINANCIAL STATEMENTS TO COMPLY WITH THE PROVISIONS OF THIS GUIDANCE. PART XI, LINE 4B - OTHER ADJUSTMENTS: RECLASSIFICATION OF COSTS OF GOODS SOLD -17,990. LOSS ON DISPOSAL OF ASSETS -12,126. PART XII, LINE 2D - OTHER ADJUSTMENTS: RECLASSIFICATION OF COSTS OF GOODS SOLD 17,990. LOSS ON DISPOSAL OF ASSETS 12,126. WALKABOUTS AND SIPS EVENTS 298847 298847 19007 PARTNER PROGRAMS 20667 20667 319514 319514 19007 19007 -19007 1 THE BRIGHAM AND WOMEN'S HOSPITAL INC 75 FRANCIS STREET BOSTON MA 021156110 042312909 SECTION 501(C)(3) 75000 0 FMV N/A RESEARCH GRANT JOHNS HOPKINS UNIVERSITY 3400 N CHARLES ST BALTIMORE MD 21218 520595110 SECTION 501(C)(3) 25000 0 FMV N/A RESEARCH GRANT UNIVERSITY OF WASHINGTON BLOEDEL HALL 060 BOX 352115 SEATTLE WA 98195 916001537 SECTION 501(C)(3) 25000 0 FMV N/A RESEARCH GRANT 3 PART I, LINE 2: THE SJOGREN'S FOUNDATION ENCOURAGES AND SUPPORTS RESEARCH INTO SJOGREN'S BY OFFERING ANNUAL RESEARCH GRANTS. BOTH AWARD CATEGORIES ARE OPEN TO APPLICANTS AT U.S. INSTITUTIONS. GRANTS ARE AWARDED BY A PEER REVIEW PANEL OF SJOGREN'S RESEARCH PROFESSIONALS AND GRANTEES ARE REGULARLY REVIEWED THROUGHOUT THE GRANT CYCLE. OUR RESEARCH PROGRAM PROMOTES BASIC SCIENCE AND CLINICAL INVESTIGATIONS INTO THE CAUSE, PREVENTION, DIAGNOSIS, TREATMENT AND ULTIMATELY A CURE FOR THIS PREVALENT AUTOIMMUNE DISEASE. X X X X X 0 0 0 0 0 0 0 0 0 JANET CHURCH PRESIDENT AND CEO 256490 0 30000 0 0 0 0 0 9264 0 295754 0 0 0 KATHERINE MORLAND VICE PRESIDENT OF MEDICAL & SCIENTIF 154860 0 7000 0 0 0 2145 0 936 0 164941 0 0 0 SHERIESE DEFRUSCIO VICE PRESIDENT OF CORPORATE RELATION 110416 0 30500 0 0 0 3534 0 15052 0 159502 0 0 0 BEN BASLOE VICE PRESIDENT OF PHILANTHROPY 112180 0 24500 0 0 0 3515 0 17861 0 158056 0 0 0 X 4 64051 FMV 0 1 0 FORM 990, PART I, LINE 1 THE FOUNDATION'S MISSION IS TO PROVIDE EDUCATION AND RESOURCES TO SJOGREN'S PATIENTS AND THEIR LOVED ONES, PROVIDE CREDIBLE RESOURCES/EDUCATION TO HEALTHCARE PROFESSIONALS, SERVE AS THE VOICE FOR ALL SJOGREN'S PATIENTS AND LEAD AND FUND INNOVATIVE RESEARCH. FORM 990, PART VI, SECTION B, LINE 11B BOARD MEMBERS WILL HAVE A WEEK TO REVIEW 990 AND MAKE COMMENTS BEFORE IT IS FILED. THE 990 WILL BE READ BY THE CHIEF EXECUTIVE OFFICER BEFORE IT IS SIGNED. FORM 990, PART VI, SECTION B, LINE 12C EACH DIRECTOR, OFFICER, COMMITTEE MEMBER OR EMPLOYEE MUST ANNUALLY REVIEW A COPY OF THIS POLICY AND SHALL BE REMINDED OF THE OBLIGATION TO CONFORM TO IT. EACH COVERED PERSON MUST ANNUALLY COMPLETE A CONFLICT OF INTEREST INFORMATION FORM IDENTIFYING ANY RELATIONSHIPS, POSITIONS OR CIRCUMSTANCES IN WHICH THE COVERED PERSON IS INVOLVED THAT HE OR SHE BELIEVES COULD CREATE A CONFLICT OF INTEREST. FORM 990, PART VI, SECTION B, LINE 15A BOARD ANNUALLY REVIEWS COMPARABLE SALARY AND BONUS INFORMATION AND COMPARES CEO SALARY. FORM 990, PART VI, SECTION C, LINE 19 FINANCIALS ARE POSTED ON THE FOUNDATION'S WEBSITE FOR DONORS, PATIENTS AND VISITORS TO REVIEW. GOVERNANCE DOCUMENTS, CONFLICT OF INTEREST, ETC. ARE ALL AVAILABLE BY CONTACTING THE MAIN OFFICE, FREE OF CHARGE. ALSO THE COPIES OF OUR 990S AND FINANCIALS ARE AVAILABLE BY CONTACTING THE MAIN OFFICE. FORM 990, PART XII, LINE 2C THE FOUNDATION HAS NOT CHANGED THIS PROCESS FROM THE PRIOR YEAR. THE BOARD OF DIRECTORS IS RESPONSIBLE FOR OVERSIGHT OVER THE INDEPENDENT AUDIT AND SELECTION OF THE INDEPENDENT AUDITORS.