2022-11-15T17:26:19-06:00 2021-12-31 ERNST & YOUNG US LLP 1101 NEW YORK AVE NW WASHINGTON DC 20005 990 2021-01-01 853776266 Alzheimers Disease Data Initiative Inc % HILLARY BOUNDS ALZH 4254974300 4110 CARILLION POINT KIRKLAND WA 98033 TETSUYUKI MARUYAMA EXECUTIVE DIRECTOR 4254974300 2022-11-15 true TETSUYUKI MARUYAMA 999009999 amber gazica P01391011 2023276000 2022-11-14 3 2021 2022-09-23 18:48:47Z TETSUYUKI MARUYAMA 4110 CARILLION POINT KIRKLAND WA 98033 33983859 false X https://www.alzheimersdata.org/ X 2020 DE THE ORGANIZATION IS DEDICATED TO ADVANCING SCIENTIFIC BREAKTHROUGHS IN THE DIAGNOSIS, PREVENTION & TREATMENT OF ALZHEIMERS DISEASE AND RELATED DEMENTIAS. 2 2 0 0 0 0 0 21318395 0 0 0 47069 0 0 0 21365464 0 2363822 0 0 0 0 0 0 0 0 6804030 0 9167852 0 12197612 0 13154573 0 956961 0 12197612 X THE ORGANIZATION IS DEDICATED TO ADVANCING SCIENTIFIC BREAKTHROUGHS IN THE DIAGNOSIS, PREVENTION & TREATMENT OF ALZHEIMERS DISEASE AND RELATED DEMENTIAS. true false 7707980 2333822 0 Development and testing of the AD Workbench, which will systematize and classify the body of scientific knowledge related to Alzheimer's disease and related dementias in order to present it in a useful form. The AD Workbench has permissioned access to 37 datasets; it will allow researchers to more easily utilize this data and provide resources and tools at no cost to the researchers. 275452 0 0 Use of the AD Workbench and related activity to conduct AD research and support others' research by providing a data sharing tools and resources. About 2,125 Alzheimer's and related dementia researchers from 79 countries have registered for an account to use the AD Workbench to discover, access, and analyze Alzheimer's disease and related dementias datasets. About 217 workspaces have been commissioned, including 117 multi-user workspaces, and 104 requests made to access datasets on the AD Workbench. 732919 0 0 Communications and advocacy regarding the need for AD research and the data sources, resources and methodologies available for conducting it. ADDI provided virtual sponsorship of 6 conferences, organized the ADDI Alzheimer's Detection Challenge with 207 participants from 65 countries, and developed its website content and messaging. 8716351 true true false false false false false false false false false false false false false false false false false false true true false false false false true false false false false false false false false false false true false false false false true false false false true 9 0 0 false false false false false false false false false false false X 2 2 false false false false true true true true true false false true true true true false false false false false X HILLARY BOUNDS 4254974300 4110 CARILLION POINT KIRKLAND WA 98033 NIRANJAN BOSE Managing Dir (End 1/7/22), Dir 5.0 0.0 X X 0 0 0 PAUL RAMSEY DIRECTOR 1.0 0.0 X 0 0 0 HILLARY BOUNDS SECRETARY 10.0 0.0 X 0 0 0 Tetsuyuki Maruyama Executive Director 40.0 0.0 X 0 0 0 Tony Pound Treasurer 1.0 0.0 X 0 0 0 0 0 0 0 false false false Aridhia Informatics Limited 163 BATH STREET GLASGOW 0 UK G24SQ Research and Dev 2797886 Critical Path Institute 1730 E River Rd 200 TUCSON AZ 85718 Research and Dev 1833822 Evalueserve Inc 2010 Crow Canyon Place Suite 100 SAN RAMON CA 94583 Research and Dev 1340000 GMMB Inc 3050 K Street NW Suite 100 WASHINGTON DC 20007 Advocacy and Comms 658497 Vivli Inc 14 Story Street 406 CAMBRIDGE MA 02138 Research and Dev 530000 9 21318395 12618395 21318395 0 503 503 0 0 0 0 0 12664961 12618395 46566 46566 46566 0 0 0 0 0 0 0 0 0 0 21365464 47069 X 1833822 1833822 0 530000 530000 0 0 0 0 0 0 0 334950 334950 43659 43659 70947 70947 0 0 0 121596 121596 679026 679026 1945 1945 5477486 5477486 0 0 0 0 74421 74421 0 0 0 0 9167852 8716351 451501 0 0 1088855 0 12015374 0 0 0 0 0 0 0 0 0 0 0 0 0 50344 0 0 0 0 0 0 0 0 0 0 0 0 0 13154573 0 956961 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 956961 X 0 12197612 0 0 0 12197612 0 13154573 12197612 X false false X UNIVERSITY OF WASHINGTON MEDICAL CENTER SEATTLE WA RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true Europe (Including Iceland and Greenland) 0 1 Grantmaking 500000 Europe (Including Iceland and Greenland) 0 6 Program Services Conference/Research 2915643 North America 0 1 Program Services research 50000 Russia and the Newly Independent States 0 1 Grantmaking 10000 Middle East and North Africa 0 1 Grantmaking 5000 East Asia and the Pacific 0 1 Grantmaking 15000 0 11 0 11 3495643 3495643 Europe (Including Iceland and Greenland) World-Wide FINGERS - first global network of multidomain dementia prevention trials: Data harmonization and data sharing effort 500000 wire N/A N/A 1 Data Challenge winner Middle East and North Africa 1 5000 wire N/A N/A Data Challenge winner East Asia and the Pacific 1 15000 wire N/A N/A Data Challenge winner Russia and the Newly Independent States 1 10000 wire N/A N/A false false false false false false Part I, Line 2 ADDI MAINTAINS RECORDS INCLUDING GRANT PROPOSALS AND OTHER INFORMATION USED TO EVALUATE GRANTEES, GRANT AGREEMENTS, REPORTS FROM GRANTEES ON THEIR USE OF FUNDS AND PROJECT STATUS, AND FOLLOW-UP INFORMATION OBTAINED WHILE INVESTIGATING ANY AT-RISK GRANTS. ADDI's SELECTION PROCESS MAY VARY, BUT IN ANY EVENT THE ORGANIZATION WILL ONLY MAKE A GRANT UPON A WRITTEN DETERMINATION THAT THE RECIPIENT IS A SUITABLE GRANTEE AND THE GRANT WILL FURTHER THE ORGANIZATION'S CHARITABLE PURPOSES. IF ADDI RECEIVES INFORMATION INDICATING THAT A DIVERSION OF GRANT FUNDS HAS TAKEN PLACE, ADDI WILL WITHHOLD ANY FURTHER FUNDS AND WILL INVESTIGATE. IF ADDI DETERMINES THAT A DIVERSION OCCURRED, IT WILL TAKE APPROPRIATE STEPS TO SECURE REPAYMENT AND WITHHOLD FUTURE PAYMENTS UNTIL IT IS SATISFIED FUTURE DIVERSIONS WON'T OCCUR AND THE GRANTEE IS TAKING APPROPRIATE PRECAUTIONS. true Critical Path Institute 1730 E River Road Suite 200 Tucson AZ 85718 201991334 501(C)(3) 1833822 N/A N/A Aiding in scaling up 1 PART I, LINE 2 ADDI MAINTAINS RECORDS INCLUDING GRANT PROPOSALS AND OTHER INFORMATION USED TO EVALUATE GRANTEES, GRANT AGREEMENTS, REPORTS FROM GRANTEES ON THEIR USE OF FUNDS AND PROJECT STATUS, AND FOLLOW-UP INFORMATION OBTAINED WHILE INVESTIGATING ANY AT-RISK GRANTS. ADDI's SELECTION PROCESS MAY VARY, BUT IN ANY EVENT THE ORGANIZATION WILL ONLY MAKE A GRANT UPON A WRITTEN DETERMINATION THAT THE RECIPIENT IS A SUITABLE GRANTEE AND THE GRANT WILL FURTHER THE ORGANIZATION'S CHARITABLE PURPOSES. IF ADDI RECEIVES INFORMATION INDICATING THAT A DIVERSION OF GRANT FUNDS HAS TAKEN PLACE, ADDI WILL WITHHOLD ANY FURTHER FUNDS AND WILL INVESTIGATE. IF ADDI DETERMINES THAT A DIVERSION OCCURRED, IT WILL TAKE APPROPRIATE STEPS TO SECURE REPAYMENT AND WITHHOLD FUTURE PAYMENTS UNTIL IT IS SATISFIED FUTURE DIVERSIONS WON'T OCCUR AND THE GRANTEE IS TAKING APPROPRIATE PRECAUTIONS. X 2 12618394 FAIR MARKET VALUE false false false PART I, LINE 9 Column B represents the number of contributors Form 990, PART III, LINE 2 See Part III, Line 4 descriptions. FORM 990, PART VI, LINE 6 ALZHEIMERS DISEASE DATA INITIATIVE INC HAS TWO MEMBERS. FORM 990, PART VI, LINE 7A THE MEMBERS HAVE THE RIGHT TO APPOINT AND REMOVE THEDIRECTORS OF THE ORGANIZATION. FORM 990, PART VI, LINE 7B MEMBERS HAVE THE POWER TO APPOINT SUCCESSOR MEMBERS. FORM 990, PART VI, LINE 11B THE DRAFT RETURN IS REVIEWED BY THE FINANCE AND LEGAL FUNCTIONS ANDAPPROVED BY THE SECRETARY AND TREASURER. A FINAL VERSION OF THE FORM ISMADE AVAILABLE TO THE BOARD BEFORE FILING WITH THE IRS. FORM 990, PART VI, LINE 12C THE CONFLICT OF INTEREST POLICY APPLIES TO DIRECTORS, OFFICERS AND KEYEMPLOYEES. THEY ARE REQUIRED TO DISCLOSE POTENTIAL CONFLICTS WITH RESPECTTO ANY TRANSACTION TO THE BOARD OF DIRECTORS, OR A COMMITTEE THEREOF,WHICH DETERMINES IF THERE IS A CONFLICT. IF THERE IS A CONFLICT, THEPERSON WITH THE CONFLICT MUST REFRAIN FROM ATTEMPTING TO INFLUENCEDECISIONS REGARDING THE TRANSACTION AND IS NOT PERMITTED TO PARTICIPATEIN DISCUSSIONS OF THE TRANSACTION EXCEPT TO RESPOND TO REQUESTS FORINFORMATION ABOUT THE TRANSACTION. DIRECTORS, OFFICERS AND KEY EMPLOYEESARE REQUIRED TO ANNUALLY COMPLETE STATEMENTS DISCLOSING FAMILY MEMBERSAND RELATED ENTITIES WHO MAY DO BUSINESS WITH THE ORGANIZATION. THESESTATEMENTS ARE REVIEWED BY THE ORGANIZATION'S LEGAL COUNSEL AND AREAVAILABLE FOR INSPECTION BY MEMBERS OF THE BOARD OF DIRECTORS. FORM 990, PART VI, LINE 19 THESE DOCUMENTS ARE NOT PUBLIC. 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