2022-10-18T08:18:39-05:00 2021-12-31 BDO USA LLP 1100 Peachtree Street Suite 700 ATLANTA GA 303094516 990 2021-01-01 581341679 ARTHRITIS FOUNDATION INC % ROSE THOMAS ARTH 4048727100 1355 PEACHTREE STREET NE Suite 600 Atlanta GA 30309 STEVEN TAYLOR CEO 4048727100 2022-10-17 true STEVEN TAYLOR 999009999 Sandra L Feinsmith P01064157 4046886841 2022-10-17 2 2021 2022-09-23 18:48:47Z STEVEN TAYLOR CEO 1355 PEACHTREE ST NE SUITE 600 Atlanta GA 30309 73030674 false 8510 X WWW.ARTHRITIS.ORG X 1948 GA THE AF IS PURSUING A CURE FOR AMERICA'S #1 CAUSE OF DISABILITY, WHILE CHAMPIONING THE FIGHT AGAINST ARTHRITIS WITH LIFE-CHANGING RESOURCES, SCIENCE, ADVOCACY, & COMMUNITY CONNECTS. 15 15 207 7500 0 54540818 53662706 2779626 3000074 3909214 9841827 2554279 -1279646 63783937 65224961 11004188 11104947 0 0 28020509 19150935 1940532 1913884 5671747 20081945 19307522 61047174 51477288 2736763 13747673 192849128 219924122 26383649 28830224 166465479 191093898 X THE ARTHRITIS FOUNDATION IS BOLDLY PURSUING A CURE FOR AMERICA'S #1 CAUSE OF DISABILITY, WHILE CHAMPIONING THE FIGHT AGAINST ARTHRITIS WITH LIFE-CHANGING RESOURCES, SCIENCE, ADVOCACY, AND COMMUNITY CONNECTIONS. false false 16444558 49223 0 ADVOCACY AND ACCESS: ADVOCACY IS ONE OF THE FOUR PILLARS OF THE ARTHRITIS FOUNDATION. OUR MISSION IS TO BE THE VOICE OF PEOPLE WITH ARTHRITIS WITH POLICY MAKERS, ELECTED OFFICIALS, REGULATORS, AT ALL LEVELS OF GOVERNMENT, AND EMPLOYERS. WE DO THIS BY ENGAGING OUR COMMUNITY OF ADVOCATES IN LEGISLATIVE AND REGULATORY POLICY MAKING, HELPING THEM TO FIND THEIR VOICES THROUGH ADVOCACY TRAINING, MEETINGS WITH CONGRESSIONAL REPRESENTATIVES AND STATE OFFICIALS TO ENSURE ACCESS TO TIMELY, AFFORDABLE ACCESS TO TREATMENTS AND MEDICATIONS. PART OF OUR ADVOCACY PROGRAM ALSO INCLUDES THE ARTHRITIS AMBASSADOR PROGRAM TO STRENGTHEN RELATIONSHIPS WITH MEMBERS OF CONGRESS THROUGH ADVOCACY TRAINING AND RELATIONSHIP DEVELOPMENT. A NEW FOCUS OF THE ADVOCACY PROGRAM IS ACTIVE ENGAGEMENT BY OUR ADVOCATES IN POLICYMAKING AT THE STATE LEVEL. IN ADDITION, THE ARTHRITIS FOUNDATION IS WORKING TO ENSURE THAT RESEARCH FUNDING FOR ARTHRITIS IS INCREASED AND THAT THERE IS RECOGNITION OF THE FACT THAT THIS DISEASE IMPACTS ONE IN FOUR AMERICANS. 13705480 10865272 0 SCIENTIFIC DISCOVERY: FOR ALMOST 70 YEARS, THE ARTHRITIS FOUNDATION HAS INITIATED AND SUPPORTED SCIENTIFIC DISCOVERIES THAT IMPROVE THE LIVES OF PEOPLE WITH ARTHRITIS AND RELATED DISEASES. THE ARTHRITIS FOUNDATION CONTINUES TO LEAD THE WAY IN ADVANCING SCIENTIFIC DISCOVERIES AND SEEKING SOLUTIONS THAT WILL POSITIVELY IMPACT THE LIVES OF THOSE WHO SUFFER. OUR COMMITMENT TO FINDING A CURE IS UNWAVERING. THE SCIENTIFIC STRATEGY IS THE DIRECTION THE ARTHRITIS FOUNDATION SCIENCE DEPARTMENT IS GOING OVER THE NEXT FOUR YEARS. THE SCIENTIFIC STRATEGY HAS THREE PILLARS. THE GOAL FOR EACH PILLAR IS LISTED BELOW. PILLAR #1: DELIVERING ON DISCOVERY IMPROVED DECISION MAKING AND BETTER LIVES THROUGH IMPROVED PREVENTION, EARLIER DIAGNOSIS AND NEW TREATMENTS TO PREVENT, CONTROL AND CURE ARTHRITIS AND RELATED DISEASES. PILLAR #2: DECISION MAKING WITH METRICS FACT-BASED METRICS FOR DECISION MAKING AND GUIDING ACTIONS TO IMPROVE THE HEALTH OF PEOPLE ACROSS THE LIFESPAN WITH ARTHRITIS AND RELATED DISEASES. PILLAR #3: BUILDING HUMAN CAPITAL SCIENTIFIC RESEARCH PIPELINE IS STRENGTHENED AND SCIENTIFIC DISCOVERY IS CATALYZED AND ACCELERATED FOR ARTHRITIS AND RELATED DISEASES. 9987009 190079 3000074 COMMUNITY HEALTH & SUPPORT: THE ARTHRITIS FOUNDATION COMMUNITY PROGRAMS EMPOWER PEOPLE IN LOCAL COMMUNITIES NATIONWIDE. THE FOUNDATION PROVIDES OPPORTUNITIES FOR PEOPLE TO CONNECT WITH OTHERS WITH SIMILAR CHALLENGES AND DEVELOP SUPPORTIVE RELATIONSHIPS. THE ARTHRITIS FOUNDATION PROGRAMS INCLUDE KIDS AND FAMILY CAMPS, THE JUVENILE ARTHRITIS NATIONAL CONFERENCE, THE WALK WITH EASE EXERCISE PROGRAM, AND EXERCISE AND AQUATICS PROGRAMS. THE PEOPLE WE REACH THROUGH THESE PROGRAMS AND ARM WITH INFORMATION AND SELF-MANAGEMENT STRATEGIES HAVE A BETTER PERSPECTIVE ON THEIR DISEASE AND, IN TURN, BETTER OUTCOMES. 842726 0 0 PROFESSIONAL EDUCATION 842726 0 0 40979773 true true false true false false false false false true true false false true true true true false false false false false false true true false false true false true false false false false false false false false false false false false false false false false false true 26 0 true 207 true false false false false false true true false false false false false false X 15 15 false false false false false false false true true false true true true true true true true true true true false AL AK AR CA CO CT FL GA HI IL KS KY LA ME MD MA MI MN MS NV NH NJ NM NY NC ND OH OK OR PA RI SC TN UT VA WA WV WI X X ROSE THOMAS 4705888625 1355 PEACHTREE STREET NE SUITE 600 ATLANTA GA 30309 X Ann Palmer President/CEO 37.5 0.0 X 635385 0 14109 Steven Taylor EVP Mission&Strategic 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PART X LINE 2 THE FOUNDATION IS EXEMPT FROM FEDERAL INCOME TAX AS AN ORGANIZATION DESCRIBED IN SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. WITH RESPECT TO ANY UNRELATED BUSINESS INCOME GENERATED BY THE FOUNDATION, IT RECORDS INCOME TAXES USING THE LIABILITY METHOD UNDER WHICH DEFERRED TAX ASSETS AND LIABILITIES ARE DETERMINED BASED ON THE DIFFERENCES BETWEEN THE FINANCIAL ACCOUNTING AND TAX BASES OF ASSETS AND LIABILITIES. DEFERRED TAX ASSETS OR LIABILITIES AT THE END OF EACH PERIOD ARE DETERMINED USING THE CURRENTLY ENACTED TAX RATE EXPECTED TO APPLY TO TAXABLE INCOME IN THE PERIOD THAT THE DEFERRED TAX ASSET OR LIABILITY IS EXPECTED TO BE REALIZED OR TO BE SETTLED. AS OF DECEMBER 31, 2021, AND 2020, THE FOUNDATION HAD NO DEFERRED TAX ASSETS OR LIABILITIES OR ANY UNCERTAIN TAX POSITIONS. PART XI, LINE 2D UNREALIZED GAIN ON BENEFICIAL INTERESTS IN PERPETUAL TRUSTS - $104,327 NET CHANGE IN VALUATION OF SPLIT INTEREST AGREEMENTS - $5,283,433 NET CHANGE IN PENSION LIABILITIES - ($191,951) X X X X X X X true Merkle Inc PO Box 64987 Baltimore MD 21264 Strategic false 0 540295 0 THD 55 Old Bedford Road Suite 201 Lincoln MA 01773 Strategic false 9908243 1373589 8534654 9908243 1913884 8534654 AL AK AR CA CO CT FL GA HI IL KS KY LA ME MD MA MI MN MS NV NH NJ NM NY NC ND OH OK OR PA RI SC TN UT VA WA WV WI CA Coast Classi 985873 975910 9963 6330 151157 69938 129032 Jingle Bell Run 466077 461732 4345 2553 19260 0 7798 240 10002310 9704374 297936 136450 538187 8621 633738 11454260 11142016 312244 145333 708604 78559 770568 1703064 -1390820 true CARRA Inc Stanford Univ Med Palo Alto CA 94304 464152355 501(C)(3) 4333333 RESEARCH Cleveland Clinic Foundation PO Box 931517 Cleveland OH 44193 340714585 501(C)(3) 1224113 RESEARCH University of Iowa B-5 Jessup Hall Iowa City IA 52242 426004813 501(C)(3) 420463 RESEARCH University of Kentucky Research Foundation 105 Kinkead Hall Lexington KY 405060057 616033693 501(C)(3) 322843 RESEARCH University of North Carolina at Chapel Hill 250 E Franklin St Chapel Hill NC 27514 566001393 501(C)(3) 313424 RESEARCH University of California San Francisco 9500 Gilman Drive 0009 La Jolla CA 92093 966006144 501(C)(3) 219244 RESEARCH Trustees of Boston University 881 Commonwealth avenue Boston MA 02215 042103547 501(C)(3) 186410 RESEARCH Vanderbilt University Medical Center 1211 Medical Center Dr Nasville TN 37232 620476822 501(C)(3) 140000 RESEARCH Trustees of Dartmouth College 11 Rope Ferry Rd 6210 Hanover NH 03755 020222111 501(C)(3) 117549 RESEARCH FDN for the National Institutes of Health 11400 RKV Pike North Bethesda MD 20852 521986675 501(C)(3) 100000 RESEARCH Duke University Alumni Dev Records Durham NC 27708 560532129 501(C)(3) 78242 RESEARCH Stanford University PO Box 44253 San Francisco CA 94144 941156365 501(C)(3) 75000 RESEARCH IQVIA 83 Wooster Heights Rd Danbury CT 06810 061506026 C Corp 58500 RESEARCH Indiana University 400 E 7th St Rm 501 Bloomington IN 47405 356001673 501(C)(3) 50000 RESEARCH Seattle Children's Hospital PO BOX 5371 MS S200 Seattle WA 98145 911156519 501(C)(3) 50000 RESEARCH The University of Alabama at Birmingham 1530 3rd Ave Birmingham AL 35294 636005396 501(C)(3) 50000 RESEARCH University of Arizona 1401 East Univ Blvd Tucson AZ 85721 742652689 501(C)(3) 50000 RESEARCH University of California Los Angeles 10889 Wilshire BLVD Los Angeles CA 90095 956006143 501(C)(3) 50000 RESEARCH University of Florida Suite 1250 Gainesville FL 32611 596002052 501(C)(3) 50000 RESEARCH University of Minnesota - Twin Cities 1300 S 2nd St Minneapolis MN 55454 416007513 501(C)(3) 50000 RESEARCH Children's Hospital Colorado Foundation 13123 East 16th Ave Aurora CO 80045 840813462 501(C)(3) 50000 RESEARCH Hackensack University Medical Center 343 Thornall Street Edison NJ 08837 222339534 501(C)(3) 50000 RESEARCH Owl Brook Associates LLC PO Box 5218 Hanover NH 03755 810575028 Partnership 25976 RESEARCH University of North Carolina at Charlotte 9201 Univ City BLVD Charlotte NC 28223 560791228 501(C)(3) 14352 RESEARCH 22 2 PART I LINE 2 MONITORING IS PROVIDED BY THE ARTHRITIS FOUNDATION'S NATIONAL OFFICE THROUGH OVERSIGHT OF THE TERMS AND CONDITIONS OF A WRITTEN AGREEMENT. MULTIYEAR AGREEMENTS REQUIRE YEARLY PROGRESS AND FINANCIAL REPORTS FOR CONTINUATION OF FUNDING. X X X X X X false false false false false false false false false Ann Palmer President/CEO 471365 0 155520 0 8500 0 0 0 14109 0 649494 0 0 0 Steven Taylor EVP Mission&Strategic Initiati 307865 0 0 0 25750 333615 0 Sabrina Sexton SVP Mkting Comms. & eCommerce 229518 0 0 6688 22000 258206 0 Richard Willis SVP, Community Engagement 215081 0 0 13663 26626 255370 0 Victoria Fung SVP, Mission Delivery 175848 0 0 14010 1756 191614 0 Maria Vassileva SVP Scientific Strategy 161531 0 0 0 13736 175267 0 Nancy Stinson Harris Natl VP Corporate Partnerships 184012 0 0 7271 13793 205076 0 Andrew Gammuto Chief Information Officer 181386 0 0 6987 16493 204866 0 Cathy Hood VP HR/Assistant Secretary 173962 0 0 7145 19658 200765 0 Anna Hyde VP Advocacy & Access 11C 175362 0 0 10503 1621 187486 0 Jason Kim VP Osteoarthritis Research Prg 180301 0 0 6646 1691 188638 0 Rose Thomas Assistant Treasurer 156779 0 0 6477 13707 176963 0 Leanne Greco East Region Vice President 157835 0 0 6373 12151 176359 0 FORM 990, PART VI, SECTION A, LINE 1 THE EXECUTIVE COMMITTEE HAS BEEN GIVEN THE AUTHORITY TO EXERCISE ANY AND ALL POWERS OF THE NATIONAL BOARD BETWEEN MEETINGS OF THE FULL NATIONAL BOARD. THE EXECUTIVE COMMITTEE CONSISTS OF THE OFFICERS AND UP TO EIGHT ADDITIONAL DIRECTORS. FORM 990, PART VI, SECTION B, LINE 11 THE FORM 990 WAS PREPARED BY A PUBLIC ACCOUNTING FIRM WITH INPUT FROM THE FOUNDATION'S ACCOUNTING STAFF AND VICE PRESIDENT OF FINANCE. A DRAFT COPY OF THE FORM 990 WAS REVIEWED BY KEY ACCOUNTING STAFF AND SENIOR MANAGEMENT. EACH PERSON INDIVIDUALLY REVIEWED THE FORM (INCLUDING SCHEDULES) AND SUBMITTED QUESTIONS OR COMMENTS TO MANAGEMENT AS NECESSARY. QUESTIONS AND COMMENTS WERE RESOLVED APPROPRIATELY TO THE SATISFACTION OF THE FOUNDATION'S VICE PRESIDENT OF FINANCE. THE FORM 990 (INCLUDING SCHEDULES) WAS THEN REVIEWED AND APPROVED BY THE AUDIT COMMITTEE OF THE BOARD OF DIRECTORS PRIOR TO SUBMISSION. THE FINAL FORM WAS PROVIDED TO THE ENTIRE BOARD OF DIRECTORS AT A SCHEDULED MEETING. COMMENTS AND SUGGESTED CHANGES WERE INCORPORATED INTO A SUBSEQUENT DRAFT OF THE FORM 990. THE FINAL DRAFT OF THE FORM 990 WAS PRESENTED TO THE FULL BOARD OF DIRECTORS PRIOR TO SUBMISSION. FORM 990, PART VI, SECTION B, LINE 12C AT LEAST ANNUALLY, ALL EMPLOYEES MUST SIGN A CONFLICT OF INTEREST DISCLOSURE FORM. VOLUNTEERS IN POSITIONS OF GOVERNANCE SUCH AS FOR BOARD MEMBERS, COMMITTEE MEMBERS AND AD HOC TASK FORCE MEMBERS SHALL COMPLETE A CONFLICT OF INTEREST DISCLOSURE FORM ANNUALLY AND PRIOR TO INITIAL APPOINTMENT TO SERVE IN THE VARIOUS POSITIONS. THE BOARD OF DIRECTORS AUDIT COMMITTEE REVIEWS AND ADJUDICATES POTENTIAL VOLUNTEER CONFLICTS. IF POTENTIAL CONFLICTS EXIST AS TO ARTHRITIS FOUNDATION STAFF, THE APPROPRIATE MANAGEMENT AND/OR THE HUMAN RESOURCES DEPARTMENT SHALL ADDRESS THEM. FORM 990, PART VI, SECTION B, LINE 15 THE COMPENSATION AND PERSONNEL COMMITTEE MET ON January 14, 2021 AND SEPTEMBER 8, 2021 TO REVIEW TOTAL COMPENSATION AND BENEFITS FOR THE CEO AND OTHER KEY EMPLOYEES. THE COMMITTEE RECEIVED COMPENSATION REPORTS PREPARED BY AN INDEPENDENT COMPENSATION CONSULTANT, JER HR ASSOCIATES LLC, AND REVIEWED THE COMPARATIVE ANALYSIS OF MARKET DATA FOR PEER ORGANIZATIONS WITH THE TOTAL COMPENSATION PAID BY THE ARTHRITIS FOUNDATION FOR EACH POSITION. IT WAS THE CONSULTANT'S UNRESERVED OPINION THAT THE BASE SALARIES AND TOTAL COMPENSATION PROVIDED TO THE FOUNDATION'S SENIOR MANAGEMENT EXECUTIVES, INCLUDING THE CEO, MEET ALL STANDARDS OF REASONABLENESS AND ARE NOT EXCESSIVE. THE COMMITTEE MEETS ANNUALLY TO COMPLETE THIS REVIEW AND REPORTS TO THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES PUBLIC THE MAJORITY OF ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS VIA THE NATIONAL OFFICE'S WEBSITE AT WWW.ARTHRITIS.ORG. ALL OTHER DOCUMENTS NOT READILY AVAILABLE VIA THIS WEBSITE ARE AVAILABLE UPON REQUEST. FORM 990, PART XI, LINE 9 UNREALIZED GAIN ON BENEFICIAL INTERESTS IN PERPETUAL TRUSTS - $104,327 NET CHANGE IN VALUATION OF SPLIT INTEREST AGREEMENTS - $550,206 NET CHANGE IN VALUATION OF BENEFICIAL INTERESTS PERPETUAL TRUSTS - $4,733,227 NET CHANGE IN PENSION LIABILITIES - ($191,951)