2022-11-15T08:55:51-06:00 2021-12-31 362658780 MUELLER & CO LLP 1707 N RANDALL ROAD ELGIN IL 60123 990 2021-01-01 364077528 CHILDREN'S HEART FOUNDATION CHIL 8476346474 5 REVERE DRIVE 200 NORTHBROOK IL 600621500 ABIGAIL RODDIE-HAMLIN PRESIDENT AND CEO 8476346474 2022-11-07 1 ABIGAIL RODDIE-HAMLIN 999009999 ELEANOR A LIVINGSTON CPA MST P00226461 8478888600 2022-11-07 3 AAL1 IAL1 2021 2022-09-23 18:48:47Z X ABIGAIL RODDIE-HAMLIN 5 REVERE DRIVE 200 NORTHBROOK IL 600621500 3323738 0 X WWW.CHILDRENSHEARTFOUNDATION.ORG X 1996 IL THE MISSION OF THE CHILDREN'S HEART FOUNDATION (CHF) IS TO ADVANCE THE DIAGNOSIS, TREATMENT, AND PREVENTION OF CONGENITAL HEART DEFECTS (CHDS) BY FUNDING THE MOST PROMISING RESEARCH. 14 13 11 500 0 0 2725561 3295557 0 0 1037 188 -422083 -466438 2304515 2829307 734326 1051688 0 0 799536 939584 0 0 376121 854601 559523 2388463 2550795 -83948 278512 1986794 2685601 808718 1229013 1178076 1456588 X THE MISSION OF THE CHILDREN'S HEART FOUNDATION (CHF) IS TO ADVANCE THE DIAGNOSIS, TREATMENT, AND PREVENTION OF CONGENITAL HEART DEFECTS (CHDS) BY FUNDING THE MOST PROMISING RESEARCH. 0 0 1297089 1051688 RESEARCH - THE CHILDREN'S HEART FOUNDATION FUNDS THE MOST PROMISING CONGENITAL HEART DEFECT (CHD)RESEARCH. SINCE 1996, CHF HAS INVESTED NEARLY $14 MILLION INTO CHD RESEARCH AND SCIENTIFIC COLLABORATIONS.IN 2021, CHF FUNDED MORE THAN $1,000,000 IN CHD RESEARCH AND SCIENTIFIC COLLABORATIONS ACROSS FOUR KEY INITIATIVES: 1. INDEPENDENT RESEARCH FUNDED BY THE FOUNDATION, 2. COLLABORATIVE RESEARCH WITH THE AMERICAN HEART ASSOCIATION THROUGH JOINT CONGENITAL HEART DEFECT RESEARCH AWARDS, 3. FUNDING THE AMERICAN ACADEMY OF PEDIATRICS' PEDIATRIC CARDIOLOGY RESEARCH FELLOWSHIP AWARD, AND 4. FUNDING CARDIAC NETWORKS UNITED (CNU), A NATIONAL PEDIATRIC AND CONGENITAL CARDIOVASCULAR RESEARCH NETWORK.ALONG WITH NEW RESEARCH, THE FOUNDATION PROVIDED THIRD-YEAR FUNDING TO THREE PROJECTS THAT MADE SIGNIFICANT PROGRESS: -KRISTOPHER B. DEATRICK, MD [UNIVERSITY OF MARYLAND] FOR HIS WORK ON STEM CELL THERAPY FOR POST- CARDIOPULMONARY BYPASS LOW CARDIAC OUTPUT SYNDROME. -YOUNGJAE CHUN, PHD [UNIVERSITY OF PITTSBURGH] FOR HIS EFFORTS ON A SELF-GROWING PERCUTANEOUS HEART VALVE FRAME TO TREAT CONGENITAL HEART DISEASE. -ALLEN EVERETT, MD [JOHNS HOPKINS UNIVERSITY] WHO IS STUDYING THE ROLE OF CYCLOHEXANONE TOXICITY IN MEDIATING CONGENITAL CARDIAC SURGICAL OUTCOMES.THESE RESEARCH EFFORTS WILL HELP EXPERTS LEARN MORE ABOUT THE LIFE-LONG CARE NEEDS OF INDIVIDUALS LIVING WITH CHDS AND HOW TO CONTINUE TO IMPROVE THEIR OVERALL QUALITY OF LIFE.THE CHILDREN'S HEART FOUNDATION PROVIDES FUNDING TO CARDIAC NETWORKS UNITED TO IMPROVE OUTCOMES FOR CHILDREN WITH CHDS. ONE OF CNU'S CURRENT RESEARCH EFFORTS - THE PAC3 CHEST TUBE PROJECT - IS NOW BEING IMPLEMENTED AT NEARLY 20 U.S. HOSPITALS AS RESEARCHERS CONSIDER THE OPTIMAL TIME FOR CHEST TUBE REMOVAL IN YOUNG CHD PATIENTS.IN ADDITION, THE FOUNDATION FUNDED THE AMERICAN ACADEMY OF PEDIATRICS' 2021 PEDIATRIC CARDIOLOGY RESEARCH FELLOWSHIP AWARD GIVEN TO MOHAMMAD AL-MOUSILY, MD, PEDIATRIC CARDIOLOGY FELLOW AT MEDICAL UNIVERSITY OF SOUTH CAROLINA. HIS RESEARCH - THE USE OF A 12 LEAD ECG AND ARTIFICIAL INTELLIGENCE WITH A MACHINE LEARNING MODEL TO IDENTIFY STRUCTURAL HEART DISEASE - AIMS TO USE ARTIFICIAL INTELLIGENCE WITH ECG'S TO QUICKLY IDENTIFY CHILDREN WITH STRUCTURAL HEART DISEASE. IF SUCCESSFUL, THIS WILL IDENTIFY PATIENTS WITH STRUCTURAL HEART DISEASE SOONER. 368100 AWARENESS -CONGENITAL HEART WALKS: THE CHILDREN'S HEART FOUNDATION'S CONGENITAL HEART WALK SERIES IS THE NATION'S LARGEST WALK SERIES SOLELY DEDICATED TO RAISING AWARENESS AND FUNDS FOR CONGENITAL HEART DEFECT RESEARCH. THE 2021 CONGENITAL HEART WALK SERIES VIRTUALLY BROUGHT TOGETHER MORE THAN 6,750 WALKERS, 800 TEAMS, AND HUNDREDS OF FAMILIES, PROVIDERS, AND SPONSORS WHO SHARED DIRECT SUPPORT, ALONG WITH 31 AMAZING WALK DAY PROGRAMS, AS WE RAISED OVER $1,650,000 FOR CHD RESEARCH. THE WALKS OFFER A CHANCE TO STRENGTHEN OUR COMMUNITY AND SPREAD AWARENESS ABOUT AMERICA'S MOST COMMON BIRTH DEFECT - CHDS.25TH ANNIVERSARY: IN 2021 THE FOUNDATION CELEBRATED IT'S 25TH ANNIVERSARY. THE 25TH ANNIVERSARY CAMPAIGN SHOWCASED THE DRAMATIC ROLE RESEARCH HAS PLAYED, HIGHLIGHTING BREAKTHROUGH SCIENCE AND THE RESEARCHERS WHO LED IT. FUNDRAISING EVENTS AND CAMPAIGNS: VARIOUS FUNDRAISING EVENTS AND CAMPAIGNS TOOK PLACE THROUGHOUT 2021, INCLUDING HEARTS AT PLAY, GRAEME'S RUN, #GIVINGTUESDAY, HEART MONTH, AND VOLUNTEER APPRECIATION MONTH - ALL OF WHICH HELPED RAISE AWARENESS AND FUNDS OF THE CHILDREN'S HEART FOUNDATION'S CRITICAL MISSION. GENERAL AWARENESS: THE CHILDREN'S HEART FOUNDATION UTILIZES SOCIAL MEDIA AND VIDEO STORYTELLING TO SPREAD FURTHER AWARENESS OF CHDS AND CHF. OUR SOCIAL MEDIA EFFORTS FOCUS ON SHARING STORIES OF CHILDREN, ADULTS, AND FAMILIES IMPACTED BY CHDS, AS WELL AS TELLING OUR AUDIENCE ABOUT THE IMPORTANT RESEARCH EFFORTS WE ARE FUNDING. THESE TOOLS HELP US REACH PEOPLE WHO MAY NOT HAVE PREVIOUSLY KNOWN ABOUT OUR IMPORTANT WORK. 204500 ADVOCACY -WE ENDEAVORED TO CREATE MORE AWARENESS OF THE NEED FOR ADVOCACY FOR THOSE WITH CHDS AND THEIR FAMILY MEMBERS BY TELLING THEIR STORY ON OUR WEBSITES, IN VIDEO, AND THROUGH SPECIAL BROADCAST PRODUCTIONS, LIKE THE PBS VISIONARIES SERIES. OUR ADVOCACY EFFORTS FOCUS ON RAISING AWARENESS OF THE NEED FOR INCREASED FUNDING FOR RESEARCH, SURVIVIVAL, LONGEVITY AND QUALITY OF LIFE EFFORTS WHICH HAVE DRAMATICALLY INCREASED FOR CHD PATIENTS. THERE HAS BEEN A 37.5% DECREASE IN BABIES DYING AT BIRTH WHICH IS A TREMENDOUS RESULT, BUT WE KNOW THAT BABIES ARE STILL BEING BORN DAILY WITH CHDS. WITH CHD PATIENTS LIVING LONGER WE ARE LOOKING TO DRIVE MORE RESEARCH FUNDING AND ADVOCATE FOR EFFORTS IN NEURODEVELOPMENT, COGNITIVE FUNCTION, MENTAL HEALTH CARE, DEVICES, AND PROCEDURAL RESEARCH, TRANSITIONAL CARE, AND LONG-TERM CARE FOR ADULTS WITH CHDS. LAST YEAR, WE HELD MORE THAN 20 VIRTUAL RESEARCH RECEPTIONS THAT UNDERSCORED THIS CRITICAL LINKAGE FROM THE DOLLARS RAISED IN COMMUNITIES THROUGH OUR WALKS AND OTHER EVENTS, CREATING MORE AWARENESS OF CHDS, AND, ADVOCATING FOR MORE FUNDING THROUGH PARTNERSHIPS AND HEALTH SYSTEM RELATIONSHIPS. WE ARE MOVING FORWARD TO ENGAGE MORE IN ADVOCACY EFFORTS BY RECRUITING GRASSROOTS VOLUNTEERS, CREATING A STRATEGIC LEGISLATIVE AGENDA, AND ADVOCATING THROUGH VOLUNTEER EFFORTS TO INFLUENCE MORE FUNDING FOR CARDIAC HEART DEFECTS. 1869689 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 0 0 0 0 1 0 0 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 18 0 1 11 1 0 0 0 0 0 0 0 0 0 0 0 0 X 14 13 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 0 0 0 0 0 IL X X ABIGAIL RODDIE-HAMLIN 8476346474 5 REVERE DRIVE ONE NORTHBROOK PLACE NORTHBROOK IL 600621500 KATHRYN OSTEEN MEMBER 10.00 X 0 0 0 DANIELLE PRADAS MEMBER 10.00 X 0 0 0 MELISSA ALEXANDER MEMBER 10.00 X 0 0 0 SALLY POWERS MEMBER 10.00 X 0 0 0 LORI JONES SECRETARY 10.00 X X 0 0 0 WILLIAM ROACH MEMBER 10.00 X 0 0 0 TAMARA THOMAS IMMEDIATE PAST BOARD CHAIR 10.00 X X 0 0 0 DR JENNIFER ROMANO MEDICAL ADVISORY COUNCIL L 10.00 X 0 0 0 DR JOHN COSTELLO MEDICAL ADVISORY COUNCIL I 10.00 X 0 0 0 KEVIN SLAWIN BOARD CHAIR 10.00 X X 0 0 0 MARTHA HAUBER MEMBER 10.00 X 0 0 0 JIM BOLOTIN TREASURER 10.00 X X 0 0 0 KELLY WITTICH ADVOCACY CHAIR 10.00 X 0 0 0 ABIGAIL RODDIE-HAMLIN PRESIDENT & CEO 40.00 X X 101500 0 0 FARRAH WATSON DIRECTOR OF FINANCE 40.00 X 53555 0 0 JOHN GILARDI DIRECTOR OF FINANCE 40.00 X 74340 0 0 229395 0 0 1 0 0 0 ALL COMMUNITY EVENTS 1152 ENSELL RD LAKE ZURICH IL 60047 EVENT MANAGEMENT 189611 1 2050973 133600 1110984 3295557 188 188 6000 2050973 494431 -488431 -488431 OTHER INCOME 812900 21993 21993 21993 2829307 21993 0 -488243 754153 754153 297535 297535 229395 74359 116567 38469 597290 374365 79936 142989 45418 24653 10796 9969 67481 36629 16040 14812 151541 82256 36022 33263 19559 10617 4649 4293 40396 21927 9602 8867 23058 5765 17293 12150 6595 2888 2667 35684 19369 8482 7833 58792 31912 13975 12905 449 244 107 98 1294 702 308 284 2907 1578 691 638 9743 5288 2316 2139 SPECIAL EVENTS 192986 115791 0 77195 MISCELLANEOUS 10964 5951 2606 2407 2550795 1869689 304985 376121 1263993 1976581 411077 411115 160098 145134 109813 121339 28258 24300 6865 3958 34948 27474 1986794 2685601 776045 974388 32673 254625 808718 1229013 X 843803 1289371 334273 167217 1178076 1456588 1986794 2685601 278512 0 X 0 1 X 1 0 X 2509205 2544951 2396929 2303135 3295557 13049777 6000 6000 2509205 2544951 2396929 2303135 3301557 13055777 0 0 0 13055777 400 83 612 1037 188 2320 400 83 612 1037 188 2320 2323 30507 257746 343 21993 312912 2511928 2575541 2655287 2304515 3323738 13371009 0.97640 0.97640 0.00020 0.00020 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 28258 24300 3958 3958 X 3323738 494431 494431 2829307 0 2829307 3045226 494431 494431 2550795 0 2550795 PART X, LINE 2: THE FOUNDATION HAS BEEN DETERMINED TO BE EXEMPT FROM INCOME TAX UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE, AND ACCORDINGLY, NO PROVISION HAS BEEN MADE FOR EITHER FEDERAL OR STATE INCOME TAXES. THE FOUNDATION HAS EVALUATED THE TAX POSITIONS TAKEN FOR ALL OPEN TAX YEARS. CURRENTLY, THE 2018, 2019, AND 2020 TAX YEARS ARE OPEN AND SUBJECT TO EXAMINATION BY THE INTERNAL REVENUE SERVICE; HOWEVER, THE FOUNDATION IS NOT CURRENTLY UNDER AUDIT NOR HAS THE FOUNDATION BEEN CONTACTED BY THIS JURISDICTION. BASED ON THE EVALUATION OF FOUNDATION'S TAX POSITIONS, MANAGEMENT BELIEVES ALL POSITIONS WOULD BE UPHELD UNDER AN EXAMINATION; THEREFORE, NO PROVISION FOR THE EFFECTS OF UNCERTAIN TAX POSITIONS HAS BEEN RECORDED FOR THE YEARS ENDED DECEMBER 31, 2021 AND 2020. PART XI, LINE 2D - OTHER ADJUSTMENTS: SPECIAL EVENTS 494,431. PART XII, LINE 2D - OTHER ADJUSTMENTS: SPECIAL EVENTS 494,431. EXTERNAL SPECIAL EVENTS 2056973 2050973 6000 37858 142366 314207 2056973 2050973 6000 37858 142366 314207 494431 -488431 0 AMERICAN HEART ASSOCIATION 7272 GREENVILLE AVE DALLAS TX 75231 225000 0 RESEARCH AMERICAN ACADEMY OF PEDIATRICS 345 PARK BLVD ITASCA IL 60143 35000 0 RESEARCH UNIVERSITY OF MICHIGAN HEART CENTER 1000 OAKBROOK DR STE 100 ANN ARBOR MI 48104 300000 0 RESEARCH UNIVERSITY OF CALIFORNIA SAN FRANCISCO 490 ILLINOIS STREET 6TH FLOOR SAN FRANCISCO CA 94143 194153 0 RESEARCH 4 0 RESEARCH FUNDING 1 297535 FORM 990, PART VI, SECTION B, LINE 11B THE ORGANIZATION'S BOARD TREASURER REVIEWS FORM 990 AND DISCUSSES IT DURING THE TREASURER'S REPORT AT THE NEXT BOARD MEETING. FORM 990, PART VI, SECTION B, LINE 12C EVERY DIRECTOR AND OFFICER, IN A MANNER, FORM AND FREQUENCY TO BE PRESCRIBED BY THE BOARD OF DIRECTORS, SHALL BE REQUIRED, AS A CONDITION OF HIS OR HER OFFICE, TO DISCLOSE FULLY ANY INTEREST THAT COULD GIVE RISE TO A CONFLICT OF INTEREST AS DEFINED IN ARTICLE 8 OF THE ORGANIZATION'S BYLAWS AND ANY POLICY ADOPTED BY THE BOARD RELATING TO CONFLICT OF INTEREST. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION'S GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY ARE AVAILABLE UPON REQUEST. THE FINANCIAL STATEMENTS ARE AVAILABLE ON THEIR WEBSITE.