2022-09-08T11:21:46-07:00 2021-12-31 860528831 Hunter Hagan & Company Ltd 4110 N Scottsdale Rd Ste 200 Scottsdale AZ 85251 990 2021-01-01 472329330 NATIONAL CMV FOUNDATION INC NATI 4809460751 PO BOX 18322 TAMPA FL 33679 KRISTEN SPYTEK President 2022-09-08 true KRISTEN SPYTEK 999009999 Julie Prue Cauich CPA P00002712 4809460751 2 AAL1 IAL1 FAL1 2021 2022-09-23 18:48:47Z KRISTEN SPYTEK PO BOX 18322 TAMPA FL 33679 508797 false X NATIONALCMV.ORG X 2014 MI Our program activities are focused around congenital CMV education and advocacy. We deliver education about congenital CMV to families and women of childbearing age through digital platforms, strategic partnerships, public health initiatives, and grassroots advocacy efforts. We advocate for the screening of newborns so we may properly evaluate and identify these babies to enroll them in the proper treatment as standard of care. Our programs include the CMV Community Alliance; CMV Partnership Alliance; education & outreach services targeting the women of childbearing age and general public, childcare providers, and healthcare providers; advocacy support; and early career research awards 9 0 2 20 0 315222 499784 0 2 6585 0 315224 506369 55000 25950 0 202723 155358 0 35429 64592 92334 322315 273642 -7091 232727 423702 655495 3719 2785 419983 652710 Our mission is to prevent pregnancy loss, childhood death, and disability due to congenital CMV. Our strategic goals are to: raise awareness through advocacy accelerate mission-driven research target education programs grow resources in support of the mission demonstrate commitment to diversity, equity and inclusion false false 86054 Public Health Awareness: The National CMV Foundation creates and disseminates health content regarding prevention education during pregnancy, modes for transmission, possible outcomes, newborn screening, treatment options, and public health policies related to congenital cytomegalovirus (CMV) infection. We share vital health information with women of childbearing age and their families, child care providers, and health care professionals through various communication channels, including web, email marketing, social media, paid media, print, videos, toolkits, educational downloads, and continuing education activities. 38387 Community Building: Representatives of the National CMV Foundation held several global and local virtual meetings and events centered around awareness building, advocacy training and fundraising to reach audiences near and far during the global pandemic. Participants also joined quarterly "Care to Talk" sessions providing a supportive outlet for caregivers and family members. 25950 25950 Research Support: The National CMV Foundation funds young investigators and early career researchers interested in pursuing research on maternal or congenital CMV infection in areas including public health, epidemiology, diagnosis, treatment, outcomes, basic science, or vaccine development, to further its mission, promote maternal and newborn health, and reduce the rate of congenital CMV incidence in the United States 150391 true true false false false false false false false false false false false true true false false false false false false false false false false false false true false false false false false false false false false false false false false false false false false false false true 0 0 true 2 true false false false false false false false 0 false false false false false false false X 9 0 true false false false false false false true false false false true true true false false false false false false AK AL AR AZ CA CO CT DC FL GA HI IL KS KY LA MA MD ME MI MN MS NC ND NH NJ NM NV NY OH OK OR PA RI SC TN TX UT VA WA WI WV X JULIE CAUICH 4809460751 4110 N SCOTTSDALE RD SUITE 200 SCOTTSDALE AZ 85251 X KRISTEN SPYTEK President 20.00 0.00 X X 0 0 0 JOHN SPYTEK Director 5.00 0.00 X 0 0 0 SARA MENLOVE DOUTRE Secretary 5.00 0.00 X X 0 0 0 DANIELLE KINKEL Director 5.00 0.00 X 0 0 0 SURESH BOPPANA Director 5.00 0.00 X 0 0 0 ZACHARY RIGONI Treasurer 5.00 0.00 X X 0 0 0 SALLIE PERMAR Director 5.00 0.00 X X 0 0 0 MEGAN PESCH President Elect 5.00 0.00 X 0 0 0 MARY URAN Director 5.00 0.00 X 0 0 0 0 false false false JUDY MEEHAN 1421 TOWNE SQUARE DRIVE ALLISON PARK PA 15101 CONSULTING 8650 0 499784 499784 0 6373 6373 0 0 0 2640 2428 212 212 212 0 0 0 0 506369 6585 25950 25950 0 0 0 0 0 139760 56592 54316 28852 1925 1540 96 289 2382 1906 119 357 11291 4649 4315 2327 0 3634 3634 2450 2450 0 0 0 6626 6626 44062 44062 4246 4246 6047 3054 687 2306 0 0 2583 2583 0 3135 3135 0 0 0 2258 2258 CONTRACT LABOR 8650 6920 432 1298 PAYROLL PROCESSING 2357 2357 LICENSES AND FEES 2256 2256 MEETING 1851 1851 2179 2179 273642 150391 87822 35429 423702 508892 15016 0 0 0 0 0 0 0 0 0 0 0 0 131587 423702 655495 3719 2785 3719 2785 X 419983 652710 419983 652710 423702 655495 232727 X false false false X 144235 238572 358077 285499 499381 1525764 0 0 144235 238572 358077 285499 499381 1525764 0 1525764 2 2 2 3301 3307 0 0 1529071 0.99780 1.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 131587 PAYROLL TAX LIABILITY 2785 2785 true PED INFECTIOUS DISEASE SOC 4040 WILSON BLVD SUITE 300 ARLINGTON VA 22203 25000 0 RESEARCH AWARD 1 0 Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, Et KRISTEN AND JOHN SPYTEK, OFFICERS/DIRECTORS ON THE BOARD, ARE HUSBAND AND WIFE AND FOUNDERS OF THE FOUNDATION. Form 990, Part VI, Line 11b: Form 990 Review Process FORM 990 REVIEWED BY PRESIDENT AND SELECT BOARD MEMBERS FOR ACCURACY AND COMPLETENESS. Form 990, Part VI, Line 19: Other Organization Documents Publicly Available FINANCIAL STATEMENTS AND ORGANIZATION DOCUMENTS AVAILABLE ON THE ORGANIZATIONS WEBSITE.