2022-08-01T10:49:26-05:00 2022-01-31 410746749 CLIFTONLARSONALLEN LLP 901 N GLEBE ROAD SUITE 200 ARLINGTON VA 22203 990 2021-02-01 133271855 AMYOTROPHIC LATERAL SCLEROSIS ASSN AMYO 2024078580 1300 WILSON BLVD 600 ARLINGTON VA 22209 GREGORY MITCHELL CHIEF FINANCIAL OFFICER 2024078580 2022-08-01 1 GREGORY MITCHELL XXX-XX-XXXX J ANDREW SMITH P00635175 5712279500 2022-08-01 3 AAL1 IAL1 2021 2022-09-23 18:48:47Z THE ALS ASSOCIATION CALANEET BALAS 1300 WILSON BLVD 600 ARLINGTON VA 22209 46908315 0 4119 X WWW.ALS.ORG X 1985 DE LEADING THE FIGHT TO CURE AND TREAT ALS THROUGH RESEARCH, ADVOCACY AND CARE SERVICES. 26 26 151 26 0 0 33002036 37557524 34050 0 2132313 2213860 -55882 21419 35112517 39792803 13659140 15323942 0 0 12424475 13877954 349450 333300 8433588 12003131 15317102 38436196 44852298 -3323679 -5059495 100284898 98343083 7215213 7253250 93069685 91089833 X THE ALS ASSOCIATION LEADS THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL, CUTTING-EDGE RESEARCH AND TO EMPOWER PEOPLE WITH AMYOTROPHIC LATERAL SCLEROSIS AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT. 0 0 14145819 12764356 RESEARCH PROGRAMS - THE ASSOCIATION FUNDS SCIENTIFIC RESEARCH GRANTS TO DOCTORS/SCIENTISTS TO FIND THE CAUSE AND CURE OF AMYOTROPHIC LATERAL SCLEROSIS (ALS). 11834451 2559586 PATIENT AND COMMUNITY SERVICES: THE ASSOCIATION'S NATIONAL CARE SERVICES DEPARTMENT, IN WORKING WITH THE ASSOCIATION'S NETWORK OF CHAPTERS, IS COMMITTED TO PROVIDING FULLY DEVELOPED, MANAGED AND EVALUATED PROGRAMS AND SERVICES TO PEOPLE LIVING WITH ALS, FAMILIES, CAREGIVERS AND PROFESSIONALS ACROSS THE UNITED STATES. PROGRAMS INCORPORATE THE PERSPECTIVES FROM KEY STAKEHOLDERS INCLUDING PEOPLE LIVING WITH THE DISEASE, SUBJECT MATTER EXPERTS, CLINICAL BEST PRACTICE, CAREGIVERS, TECHNOLOGY, ACADEMICIANS AND RESEARCH. ACTIVITIES ADDRESS CURRENT NEEDS AND EXPLORE FUTURE SERVICES, CREATING A FOUNDATION FOR INNOVATIVE AND ADVANCED PROGRAM DEVELOPMENT BASED ON SPECIFIC COMMUNITY NEEDS AND KNOWLEDGE ADVANCEMENTS. SPECIFIC ACTIVITIES INCLUDE 1) DEVELOPING AND IMPLEMENTING CLINICAL AND PROFESSIONAL EDUCATION PROGRAMS BASED ON ONGOING NEEDS ASSESSMENTS AND BEST PRACTICE; 2) IMPLEMENTING CERTIFIED CARE CENTER CERTIFICATION AND RECERTIFICATION PROGRAMS BASED ON NATIONALLY-RECOGNIZED STANDARDS OF PRACTICE, INCLUDING GRANTS TO SUPPORT CENTERS OF EXCELLENCE; 3) DEVELOPING STRATEGIES AND ACTUALIZING PLANS TO DELIVER CARE THROUGH OTHER THAN CERTIFIED CENTERS; 4) PROVIDING CURRENT INFORMATION, RESOURCES AND REFERRALS TO THE COMMUNITIES WE SERVE; AND 5) DEVELOPING AND IMPLEMENTING COMPREHENSIVE, CONSISTENT PROGRAMS AND SERVICES THAT ADDRESS INDIVIDUAL, FAMILY, AND CAREGIVER NEEDS BASED ON 'BEST PRACTICE AND AVAILABLE RESOURCES. 5729467 PUBLIC AND PROFESSIONAL EDUCATION: THE ASSOCIATION'S PUBLIC POLICY DEPARTMENT DEVELOPS AWARENESS AND UNDERSTANDING OF ALS AND THE WORK OF THE ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS, THE SCIENTIFIC COMMUNITY, AND ELECTED AND OTHER GOVERNMENT OFFICIALS. FOR THE YEAR ENDING JANUARY 31, 2022, THE ASSOCIATION WORKED WITH CONGRESS TO CONTINUE FUNDING FOR THE NATIONAL ALS REGISTRY AND THE ALS RESEARCH PROGRAM AT THE DEPARTMENT OF DEFENSE AS WELL AS FUNDING FOR ALS RESEARCH AT THE NATIONAL INSTITUTES OF HEALTH. 31709737 1 1 0 1 0 0 0 0 0 1 1 0 0 0 1 1 1 0 0 0 1 1 0 1 1 0 0 1 1 1 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 1 55 0 151 1 0 0 0 0 0 0 0 0 0 1 0 0 0 X 26 26 0 0 0 0 1 1 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 CA AL AK AR CO CT DE DC FL GA HI IL KS KY LA ME MD MA MI MN MS NH NJ NV NY NC ND OH OK OR PA RI SC TN UT WA WV WI NM X X GREGORY MITCHELL CHIEF FINANCIAL OFFICER 2024078580 1300 WILSON BLVD 600 ARLINGTON VA 22209 CALANEET BALAS PRESIDENT AND CEO 37.50 X 351501 0 96062 TINA ZEFF CHIEF OPERATIONS OFFICER 37.50 X 242773 0 91528 NEIL THAKUR CHIEF MISSION OFFICER 37.50 X 245753 0 77102 GREG MITCHELL CHIEF FINANCIAL OFFICER 37.50 X 261808 0 51993 LANCE SLAUGHTER SVP, STRATEGIC ALLIANCES & GOVERNANCE 37.50 X 236295 0 39496 KULDIP DAVE VP, RESEARCH 37.50 X 215346 0 50926 BRIAN FREDERICK SVP, AND HEAD OF CREATIVE 37.50 X 226668 0 17020 KIMBERLY HARDING-MAGINNIS SVP, CARE SERVICES 37.50 X 213473 0 27989 TERESSA HARRIS SVP, FINANCE 37.50 X 194974 0 38471 MONICA SANTA CRUZ CHIEF PEOPLE OFFICER 37.50 X 214647 0 18561 DEAN FEENER CHIEF INFORMATION OFFICER 37.50 X 182049 0 15574 SUE GORMAN CHAIRMAN 5.00 X X 0 0 0 SCOTT KAUFFMAN CHAIR-ELECT 5.00 X X 0 0 0 FRED M DEGRANDIS VICE-CHAIR 5.00 X X 0 0 0 SANDRA PIERSOL SECRETARY 4.00 X X 0 0 0 CONNIE HOUSTON TREASURER 4.00 X 0 0 0 CHARLIE ROBINSON D SC PE TRUSTEE 2.00 X 0 0 0 CHRISTI L KOLARCIK PHD TRUSTEE 2.00 X 0 0 0 CLIFTON GOOCH MD TRUSTEE 2.00 X 0 0 0 DAVID VAN DE RIET TRUSTEE 2.00 X 0 0 0 EUGENE BRANDON PHD TRUSTEE 2.00 X 0 0 0 J THOMAS MAY TRUSTEE 2.00 X 0 0 0 JINSY ANDREWS TRUSTEE 2.00 X 0 0 0 JOHN P KRAVE JD TRUSTEE 2.00 X 0 0 0 JOHN ROBINSON TRUSTEE 2.00 X 0 0 0 JUDY PRATT DMD TRUSTEE 2.00 X 0 0 0 KEITH A GARY PH D TRUSTEE 2.00 X 0 0 0 KENNETH MENKHAUS TRUSTEE 2.00 X 0 0 0 KEVIN SPINELLA TRUSTEE 2.00 X 0 0 0 LARRY FALIVENA TRUSTEE 2.00 X 0 0 0 LOU LIBBY MD TRUSTEE 2.00 X 0 0 0 MARK CALMES TRUSTEE 2.00 X 0 0 0 MARK STANCIL TRUSTEE 2.00 X 0 0 0 MILLIE ARNOLD TRUSTEE 2.00 X 0 0 0 NANCY LEAMOND TRUSTEE 2.00 X 0 0 0 PAUL INGHOLT TRUSTEE 2.00 X 0 0 0 TOBIN M KUCHARSKI TRUSTEE 2.00 X 0 0 0 TOM CARROLL TRUSTEE 2.00 X 0 0 0 WARREN NELSON TRUSTEE 2.00 X 0 0 0 WENDY J SCHRIBER TRUSTEE 2.00 X 0 0 0 2585287 0 524722 39 0 1 0 SALESFORCE 415 MISSION ST 3RD FLOOR SAN FRANCISCO CA 95105 CRM SOFTWARE VENDOR 887657 ATTAIN LLC 1600 TYSONS BLVD 1400 MCLEAN VA 22102 CRM SOFTWARE IMPLEMENTATION 862834 TURNKEY PROMOTIONS 3310 ROSEDALE AVE RICHMOND VA 23230 MARKETING CONSULTING SERVICES 848590 MCDERMOTT WILL & EMERY PO BOX 6043 CHICAGO IL 60680 ATTORNEY 619553 BEYOND DEFINITION 8505 FENTON ST SUITE 212 SILVER SPRING MD 20910 COMMUNICATION CONSULTING 375461 10 64816 1470494 5684058 30338156 954115 37557524 2158934 2158934 7086385 7031459 54926 54926 54926 84053 1470494 84053 0 21419 21419 21419 39792803 0 0 2235279 X 13022773 13022773 150399 150399 2150770 2150770 1849349 990863 778698 79788 9897540 6720682 1087376 2089482 455465 330107 849 124509 780326 518131 102991 159204 895274 590275 135843 169156 745098 745098 96574 96574 333300 333300 224531 224531 8697134 3763903 723375 4209856 237864 207306 912 29646 313488 134902 18714 159872 555067 336412 72268 146387 750378 437685 205983 106710 151946 95006 37509 19431 1710428 943808 254655 511965 CHAPTER SUPPORT 681419 659910 21346 163 CREDIT CARD & DATA FEES 532647 247352 117401 167894 DUES AND SUBSCRIPTIONS 262849 184950 33060 44839 TELECOMMUNICATIONS 240381 174407 20604 45370 117298 50096 31186 36016 44852298 31709737 4708973 8433588 X 1917000 313000 0 1604000 5348757 5640945 821786 924888 7597755 4188908 203455 2518929 1321563 1639445 6654518 3275663 5019544 3378855 78834650 78900690 1137388 1150423 100284898 98343083 2762825 3519829 271383 1150000 10000 4171005 2583421 7215213 7253250 X 77102484 79396160 15967201 11693673 93069685 91089833 100284898 98343083 X -5059495 3103656 -24013 X 0 1 X 1 0 X 23216448 29429700 34202008 33002094 37557524 157407774 23216448 29429700 34202008 33002094 37557524 157407774 1107644 156300130 2156702 2641824 2782381 1985828 2158934 11725669 43647 56636 57282 18824 21419 197808 169331251 365962 0.92300 0.91210 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 177409 177409 44674889 44852298 1000000 250000 0 0 1000000 1000000 1000000 1000000 4000000 6000000 453482 565604 220698 177409 1417193 250000 250000 250000 250000 1000000 1500000 13778 64007 7109 84894 6516315 429109 435694 6509730 6516315 669572 669572 6516315 6454731 587974 526390 6516315 6516315 -61584 6454731 6516315 482577 482577 6516315 0.03681 0.96318 0 0 1097274 182118 915156 748154 368272 379882 4809090 2725273 2083817 3378855 ANNUITY PAYMENT LIABILITY 1008902 DEFERRED RENT 1574519 2583421 X 56757264 3103656 14109349 -24013 17188992 39568272 224531 224531 39792803 58737116 14109349 14109349 44627767 224531 224531 44852298 PART V, LINE 4: EARNINGS FROM THE ENDOWMENT MUST BE USED TO SUPPORT RESEARCH ACTIVITIES. UPON EXPIRATION OF THE TERM ENDOWMENT, THE CORPUS MAY ALSO BE USED TO SUPPORT RESEARCH ACTIVITIES. PART X, LINE 2: THE ASSOCIATION DID NOT HAVE ANY UNRELATED TAXABLE INCOME FOR THE YEARS ENDED JANUARY 31, 2022 AND 2021. ACCORDINGLY, NO PROVISION FOR INCOME TAXES HAS BEEN PROVIDED IN THE FINANCIAL STATEMENTS. THE ASSOCIATION FOLLOWS THE ACCOUNTING STANDARD REGARDING THE RECOGNITION AND MEASUREMENT OF UNCERTAIN TAX POSITIONS. THE ASSOCIATION EVALUATED ITS TAX POSITIONS AND DETERMINED THAT ITS POSITIONS ARE MORE-LIKELY-THAN-NOT TO BE SUSTAINED ON EXAMINATION. THE ASSOCIATION'S TAX RETURNS ARE SUBJECT TO REVIEW AND EXAMINATION BY FEDERAL AND STATE AUTHORITIES. PART XI, LINE 2D - OTHER ADJUSTMENTS: GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUSTS 29,889. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS -53,902. 1 EAST ASIA & THE PACIFIC 0 0 GRANTS RESEARCH 774365 NORTH AMERICA 0 0 GRANTS RESEARCH 675000 EUROPE 0 0 GRANTS RESEARCH 576856 SOUTH AMERICA 0 0 GRANTS RESEARCH 124549 0 0 0 0 0 0 2150770 0 2150770 EAST ASIA AND THE PACIFIC DRUG DEVELOPMENT CONTRACT 249365 CHECK 0 N/A N/A EAST ASIA AND THE PACIFIC STRATEGIC INITIATIVE 525000 CHECK 0 N/A N/A EUROPE INVESTIGATOR INITIATED 353315 CHECK 0 N/A N/A EUROPE POST DOCTORAL FELLOWSHIP 223849 CHECK 0 N/A N/A NORTH AMERICA INVESTIGATOR INITIATED 150000 CHECK 0 N/A N/A NORTH AMERICA POST DOCTORAL FELLOWSHIP 25000 CHECK 0 N/A N/A SOUTH AMERICA DRUG DEVELOPMENT CONTRACT 124549 CHECK 0 N/A N/A NORTH AMERICA CLINICAL TRIAL AWARDS 500000 CHECK 0 N/A N/A 8 0 0 0 0 0 0 0 PART I, LINE 2: FOREIGN RESEARCHERS, SIMILAR TO U.S. RESEARCHERS, ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING AND APPROVED BY OUR RESEARCH DEPARTMENT. PART III ACCOUNTING METHOD: X X X X X X X 1 LAUTMAN MASKA NEILL & COMPANY 1730 RHODE ISLAND AVE NW SUITE 301 WASHINGTON DC 20036 FUNDRAISING COUNSEL 0 3890018 333300 3556718 3890018 333300 3556718 AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY DC WALK - CONCORD, NH 137707 137013 694 694 WALK - PORTLAND, ME 114688 114105 583 583 600 28 1298313 1215537 82776 13460 68716 1550708 1466655 84053 14737 600 68716 84053 0 SCHEDULE G, PART I, LINE 2B, COLUMN (V) THE ASSOCIATION RECEIVES ALL OR 100% OF THE PROCEEDS FROM OUR DIRECT MAIL APPEALS PROGRAM INCLUDING TELEMARKETING. HOWEVER, THE ASSOCIATION IS RESPONSIBLE TO PAY FOR ALL EXPENSES INCURRED IN THE IMPLEMENTATION AND PRODUCTION OF ALL THE DIRECT MAIL AND TELEMARKETING SOLICITATIONS. 1 NORTHEASTERN UNIVERSITY 360 HUNTINGTON AVE 540-177 BOSTON MA 02115 041679980 501(C)3 50000 0 N/A N/A INVESTIGATOR INITIATED AWARD MULTI YEAR PRESIDENT AND FELLOWS OF HARVARD COLLEGE 1033 MASSACHUSETTS AVE 5TH FLOOR CAMBRIDGE MA 021385319 042103580 501(C)3 100000 0 N/A N/A MANAGING ALS MASSACHUSETTS GENERAL HOSPITAL 55 FRUIT STREET BOSTON MA 02114 042697983 501(C)3 50000 0 N/A N/A INVESTIGATOR INITIATED AWARD MULTI YEAR MASSACHUSETTS GENERAL HOSPITAL 55 FRUIT STREET BOSTON MA 02114 042697983 501(C)3 75000 0 N/A N/A POST DOCTORAL FELLOWSHIP MASSACHUSETTS GENERAL HOSPITAL 55 FRUIT STREET BOSTON MA 02114 042697983 501(C)3 50000 0 N/A N/A POST DOCTORAL FELLOWSHIP MASSACHUSETTS GENERAL HOSPITAL 55 FRUIT STREET BOSTON MA 02114 042697983 501(C)3 1000000 0 N/A N/A STRATEGTIC INITIATIVE MASSACHUSETTS GENERAL HOSPITAL 55 FRUIT STREET BOSTON MA 02114 042697983 501(C)3 300539 0 N/A N/A STRATEGTIC INITIATIVE THE MGH INSTITUTE OF HEALTH PROFESSIONS 36 1ST AVE CHARLESTOWN MA 02129 042868893 501(C)3 97087 0 N/A N/A MANAGING ALS UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL OFFICE OF THE BURSAR 55 LAKE AVENUE NORTH WORCESTER MA 01655 043167352 501(C)3 50000 0 N/A N/A INVESTIGATOR INITIATED AWARD MULTI YEAR UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL OFFICE OF THE BURSAR 55 LAKE AVENUE NORTH WORCESTER MA 01655 043167352 501(C)3 1109018 0 N/A N/A STRATEGTIC INITIATIVE BROWN UNIVERSITY BOX 1929 PROVIDENCE RI 02912 050258809 501(C)3 100000 0 N/A N/A MANAGING ALS WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY RESEARCH ACCT C/O MELISSA PARAY 575 LEXINGTON AVENUE 9TH FLOOR NEW YORK NY 10022 131623978 501(C)3 125000 0 N/A N/A DRUG DEVELOPMENT CONTRACT ROCKEFELLER UNIVERSITY ATTN PETE MARTTINEN 1230 YORK AVENUE BOX 259A NEW YORK NY 10065 131624158 501(C)3 100000 0 N/A N/A INVESTIGATOR INITIATED AWARD MULTI YEAR NYU GROSSMAN SCHOOL OF MEDICINE PO BOX 415026 BOSTON MA 02241 135562308 501(C)3 300000 0 N/A N/A DRUG DEVELOPMENT CONTRACT THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK 630 W 168TH ST 49 NEW YORK NY 100323725 135598093 501(C)3 100000 0 N/A N/A MANAGING ALS THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK 630 W 168TH ST 49 NEW YORK NY 100323725 135598093 501(C)3 100000 0 N/A N/A POST DOCTORAL FELLOWSHIP THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK 630 WEST 168TH STREET BOX 49 NEW YORK NY 100323702 135598093 501(C)3 110000 0 N/A N/A STRATEGTIC INITIATIVE TACONIC BIOSCIENCES INC 273 HOVER AVE GERMANTOWN NY 125265320 141381104 501(C)3 133658 0 N/A N/A STRATEGTIC INITIATIVE UNIVERSITY OF RHODE ISLAND ATTN SPONSORED COST ACCOUNTING 70 LOWER COLLEGE RD KINGSTON RI 02881 223011455 501(C)3 51751 0 N/A N/A INVESTIGATOR INITIATED AWARD MULTI YEAR THE TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT ST 5TH FLOOR PHILADELPHIA PA 19104 231352685 501(C)3 300000 0 N/A N/A DRUG DEVELOPMENT CONTRACT THE TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT ST 5TH FLOOR PHILADELPHIA PA 19104 231352685 501(C)3 100000 0 N/A N/A INVESTIGATOR INITIATED AWARD MULTI YEAR LUDWIG INSTITUTE FOR CANCER RESEARCH 8950 VILLA LA JOLLA DR SUITE C135 LA JOLLA CA 92037 237121131 501(C)3 125000 0 N/A N/A DRUG DEVELOPMENT CONTRACT LUDWIG INSTITUTE FOR CANCER RESEARCH 8950 VILLA LA JOLLA DR SUITE C135 LA JOLLA CA 92037 237121131 501(C)3 75000 0 N/A N/A POST DOCTORAL FELLOWSHIP THE PENNSYLVANIA STATE UNIVERSITY COLLEGE OF MEDICINE 500 UNIVERSITY DR PO BOX 850 MC A470 HERSHEY PA 17033 246000376 501(C)3 97302 0 N/A N/A MANAGING ALS UNIVERSITY OF PITTSBURGH OFFICE OF RESEARCH 123 UNIVERSITY PLACE B21 PITTSBURGH PA 15213 250965591 501(C)3 50000 0 N/A N/A INVESTIGATOR INITIATED AWARD MULTI YEAR NEUROPORE THERAPIES INC 10835 ROAD TO THE CURE SAN DIEGO CA 92121 262922865 501(C)3 100000 0 N/A N/A DRUG DEVELOPMENT CONTRACT AQUILUS PHARMACEUTICALS INC 225 MYSTIC VALLEY PKWY WINCHESTER MA 01890 264765079 501(C)3 300000 0 N/A N/A DRUG DEVELOPMENT CONTRACT THE OHIO STATE UNIVERSITY OFFICE OF SPONSORED PROGRAMS 1960 KENNY RD COLUMBUS OH 43210 316025986 501(C)3 74188 0 N/A N/A STRATEGTIC INITIATIVE ORIGENT DATA SCIENCES INC 8245 BOONE BLVD SUITE 600 VIENNA VA 22182 383916182 501(C)3 100000 0 N/A N/A STRATEGTIC INITIATIVE REGENTS OF THE UNIVERSITY OF MICHIGAN C/O BNY MELLON BOX 223131 PITTSBURGH PA 152512131 386006309 501(C)3 199374 0 N/A N/A INVESTIGATOR INITIATED AWARD MULTI YEAR BOARD OF REGENTS OF UNIVERSITY OF WISCONSIN SYSTEM PO BOX 500 MILWAUKEE WI 53201 391805963 501(C)3 50000 0 N/A N/A CLINICAL MANAGEMENT AMERICAN BRAIN FOUNDATION ATTN ACCOUNTS RECEIVABLE 201 CHICAGO AVENUE MINNEAPOLIS MN 55415 411717098 501(C)3 105000 0 N/A N/A CLINICAL RESEARCH TRAINING FELLOWSHIP AMERICAN BRAIN FOUNDATION ATTN ACCOUNTS RECEIVABLE 201 CHICAGO AVENUE MINNEAPOLIS MN 55415 411717098 501(C)3 168000 0 N/A N/A CLINICAL SCIENTIST DEVELOPMENT AWARD AMERICAN BRAIN FOUNDATION ATTN ACCOUNTS RECEIVABLE 201 CHICAGO AVENUE MINNEAPOLIS MN 55415 411717098 501(C)3 50000 0 N/A N/A SHELIA ESSEY AWARD MAYO CLINIC 200 FIRST STREET SW ROCHESTER MN 55905 416011702 501(C)3 102000 0 N/A N/A STRATEGTIC INITIATIVE WASHINGTON UNIVERSITY IN ST LOUIS 1 BROOKINGS DR CAMPUS BOX 1054 ST LOUIS MO 63130 430653611 501(C)3 100000 0 N/A N/A INVESTIGATOR INITIATED AWARD MULTI YEAR IRON HORSE DIAGNOSTICS INC 21053 N 75TH ST SCOTTSDALE AZ 85255 454537278 501(C)3 54000 0 N/A N/A STRATEGTIC INITIATIVE ALS NEVERSURRENDER FOUNDATION 12669 W WARREN AVE LAKEWOOD CO 80228 474746935 501(C)3 100000 0 N/A N/A INVESTIGATOR INITIATED AWARD MULTI YEAR INMUNE BIO INC 1200 PROSPECT ST SUITE 525 LA JOLLA CA 92037 475205835 501(C)3 200000 0 N/A N/A DRUG DEVELOPMENT CONTRACT JOHNS HOPKINS UNIVERSITY 855 N WOLFE ST 242 BALTIMORE MD 212051503 520595110 501(C)3 300000 0 N/A N/A DRUG DEVELOPMENT CONTRACT JOHNS HOPKINS UNIVERSITY 855 N WOLFE ST 242 BALTIMORE MD 212051503 520595110 501(C)3 100000 0 N/A N/A INVESTIGATOR INITIATED AWARD MULTI YEAR JOHNS HOPKINS UNIVERSITY 855 N WOLFE ST 242 BALTIMORE MD 212051503 520595110 501(C)3 50000 0 N/A N/A POST DOCTORAL FELLOWSHIP JOHNS HOPKINS UNIVERSITY 855 N WOLFE ST 242 BALTIMORE MD 212051503 520595110 501(C)3 250000 0 N/A N/A STRATEGTIC INITIATIVE NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS AND STROKE 6001 EXECUTIVE BLVD ROOM 3287 ROCKVILLE MD 30852 520858115 501(C)3 87140 0 N/A N/A STRATEGTIC INITIATIVE FOUNDATION FOR THE NATIONAL INSTITUTE OF HEALTH INC 11400 ROCKVILLE PIKE SUITE 600 NORTH BETHESDA MD 20852 521986675 501(C)3 47017 0 N/A N/A STRATEGTIC INITIATIVE NORTHEAST ALS CONSORTIUM (NEALS) 811 W 7TH ST FLOOR 12 LOS ANGELES CA 90017 562547779 501(C)3 162538 0 N/A N/A STRATEGTIC INITIATIVE EMORY UNIVERSITY 1599 CLIFTON ROAD NE 4TH FLOOR ATLANTA GA 30322 580566256 501(C)3 49996 0 N/A N/A INVESTIGATOR INITIATED AWARD MULTI YEAR EMORY UNIVERSITY 1599 CLIFTON ROAD NE 4TH FLOOR ATLANTA GA 30322 580566256 501(C)3 150000 0 N/A N/A POST DOCTORAL FELLOWSHIP MAYO CLINIC JACKSONVILLE RESEARCH FINANCE PO BOX 860334 MINNEAPOLIS MN 554860334 593337028 501(C)3 75000 0 N/A N/A POST DOCTORAL FELLOWSHIP UNIVERSITY OF FLORIDA BOARD OF TRUSTEES CONTRACTS GRANTS 33 TIGERT HALL PO BOX 113001 GAINESVILLE FL 32611 596002052 501(C)3 44963 0 N/A N/A CLINICAL MANAGEMENT UNIVERSITY OF FLORIDA BOARD OF TRUSTEES CONTRACTS GRANTS 33 TIGERT HALL PO BOX 113001 GAINESVILLE FL 32611 596002052 501(C)3 500000 0 N/A N/A CLINICAL TRIAL AWARD UNIVERSITY OF FLORIDA BOARD OF TRUSTEES CONTRACTS GRANTS 33 TIGERT HALL PO BOX 113001 GAINESVILLE FL 32611 596002052 501(C)3 25000 0 N/A N/A POST DOCTORAL FELLOWSHIP UNIVERSITY OF ALABAMA AT BIRMINGHAM 801 5TH AVE S FINANCIAL SVC BLDG BOX 16 BIRMINGHAM AL 35233 636005396 501(C)3 110000 0 N/A N/A STRATEGTIC INITIATIVE NEW YORK GENOME CENTER ATTN KATHLEEN KEARNS 101 SIXTH AVENUE 7TH FLOOR NEW YORK NY 10013 800631734 501(C)3 575000 0 N/A N/A STRATEGTIC INITIATIVE SOLA BIOSCIENCES LLC 27 STRATHMORE RD ABI LAB NATICK MA 02467 811222727 501(C)3 300000 0 N/A N/A DRUG DEVELOPMENT CONTRACT IMMUNOBRAIN CHECKPOINT INC 1120 AVE OF THE AMERICAS FLOOR 20 NEW YORK NY 10036 811652612 501(C)3 199413 0 N/A N/A DRUG DEVELOPMENT CONTRACT RAPA THERAPEUTICS LLC 12712 ROCK CREEK MILL RD SUITE 5B ROCKVILLE MD 20852 812644177 501(C)3 500000 0 N/A N/A CLINICAL TRIAL AWARD QURALIS CORPORATION 700 MAIN ST NORTH CAMBRIDGE MA 02139 814722156 501(C)3 150000 0 N/A N/A DRUG DEVELOPMENT CONTRACT BLOOM SCIENCE INC 11575 SORRENTO VALLEY ROAD SAN DIEGO CA 92121 824752586 501(C)3 100000 0 N/A N/A DRUG DEVELOPMENT CONTRACT STANFORD UNIVERSITY PO BOX 44253 SAN FRANCISCO CA 94144 941156365 501(C)3 75000 0 N/A N/A POST DOCTORAL FELLOWSHIP DIGNITY HEALTH DBA ST JOSEPH'S HOSPITAL AND MEDICAL CTR 350 WEST THOMAS ROAD PHOENIX AZ 85013 941196203 501(C)3 75000 0 N/A N/A POST DOCTORAL FELLOWSHIP UNIVERSITY OF SOUTHERN CALIFORNIA 3720 S FLOWER ST 3RD FLOOR LOS ANGELES CA 90090 951642394 501(C)3 75000 0 N/A N/A POST DOCTORAL FELLOWSHIP DARTMOUTH HITCHCOCK FOUNDATION LEBANON CLINIC ONE MEDICAL CENTER DRIVE LEBANON NH 037560001 020222139 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH UNIVERSITY OF VERMONT DEPARTMENT OF NEUROLOGICAL SCIENCES 1 SOUTH PROSPECT ST BURLINGTON VT 05401 030179440 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH LAHEY CLINIC INC DBA CURT & SHONDA SCHILLING ALS CLINIC DEPARTMENT OF NEUROLOGY 41 MALL ROAD BURLINGTON MA 01805 042704683 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH BROWN NEUROLOGY ATTN FELICIA CATALLOZZI 593 EDDY STREET APC-507 PROVIDENCE RI 01655 050448314 501(C)3 10000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 RECOGNIZED TREATEMENT CENTER HOSPITAL FOR SPECIAL CARE ATTN FISCAL DEPT 2150 CORBIN AVE NEW BRITAIN CT 06053 060646766 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH NEUROLOGY ASSOCIATES OF STONY BROOK MEDICAL DIRECTOR ALS CENTER STONY BROOK UNIV 179 BELLE MEADE ROAD SUI EAST SETAUKET NY 11733 112587430 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH HOSPITAL FOR SPECIAL SURGERY DEPARTMENT OF NEUROLOGY 535 EAST 70TH ST BELAIRE BUILDING 5TH FLOOR NEW YORK NY 10021 131624135 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH MOUNT SINAI HEALTH SYSTEM DEVELOPMENT OFFICE BOX 1049 ONE GUSTAVE L LEVY PLACE NEW YORK NY 10029 135564934 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH THE TRUSTEES OF COLUMBIA UNIVERSITY-CITY OF NEW YORK MEDICAL CTR OFC OF DEVELOPMENT ATTN MATT REALS 516 W 168TH ST 3RD FLOOR NEW YORK NY 10032 135598093 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH THE RESEARCH FOUNDATION OF SUNY ATTN RESEARCH ACCOUNTING 750 EAST ADAMS STREET CAB 209 SYRACUSE NY 13210 141368361 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH HACKENSACK MERIDIAN HEALTH HMH HOSPITALS CORPORATION 343 THORNALL STREET EDISON NJ 08837 221487576 501(C)3 10000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 RECOGNIZED TREATMENT CENTER ATRIUM HEALTH WAKE FOREST BAPTIST MEDICAL CENTER ALS CENTER DEPT OF NEUROLOGY 1 MEDICAL CENTER BLVD WINSTONSALEM NC 27157 223849199 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH RUTGERS RWJ MEDICAL SCHOOL ATTN CECILY BARRINGTON PH D 125 PATERSON ST SUITE 6200 NEW BRUNSWICK NJ 08901 226195823 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH LEHIGH VALLEY HEALTH NETWORK MELISSA KARAS DEVELOPMENT 2100 MACK BOULEVARD PO BOX 1883 ALLENTOWN PA 18105 231689692 501(C)3 10000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 RECOGNIZED TREATMENT CENTER GEISINGER HEALTH FOUNDATION MC 25-76 100 N ACADEMY AVE DANVILLE PA 17822 231995911 501(C)3 10000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 RECOGNIZED TREATMENT CENTER JEFFERSON WEINBERG ALS CENTER FARBER INSTITUTE FOR NEUROSCIENCE 900 WALNUT STREET JHN SUITE 408 PHILADELPHIA PA 19107 232829095 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH OHIOHEALTH FOUNDATION ATTN MARK FLASH 180 EAST BROAD ST 31ST FLOOR COLUMBUS OH 43215 237446919 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH PENN STATE HERSHEY MEDICAL CENTER DR ZACHARY SIMMONS DEPT OF NEUROLOGY EC 037 30 HOPE DRIVE HERSHEY PA 17033 246000376 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH COMMUNITY FOUNDATION OF GREATER HUNTSVILLE PO BOX 332 HUNTSVILLE AL 35804 263750673 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH ESSENTIA HEALTH FOUNDATION 400 EAST THIRD STREET DULUTH MN 55805 271984704 501(C)3 10000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 RECOGNIZED TREATMENT CENTER ADVANTAGE HEALTH SAINT MARY'S MEDICAL GROUP DBA MERCY HEALTH PHYSICIAN PARTNERS 200 JEFFERSON AVENUE SE GRAND RAPIDS MI 49503 272491974 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH UNIVERSITY OF LOUISVILLE PHYSICIANS INC ATTN TESS OCEAN 500 S PRESTON ST SUITE 113A LOUISVILLE KY 40202 273645560 501(C)3 10000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 RECOGNIZED TREATMENT CENTER FACULTY PHYSICIANS AND SURGEONS OF LLUSM C/O JEFFREY ROSENFELD PHD MD 11370 ANDERSON STREET SUITE B-100 LOMA LINDA CA 92354 330672915 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH CLEVELAND CLINIC FOUNDATION CENTER FOR ALS RELATED DISORDERS DEPT OF NEUROLOGY - DESK S90 9500 E CLEVELAND OH 44195 340714585 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH GEORGIA HEALTH SCIENCES FOUNDATION INC AUGUSTA UNIVERSITY DEPT OF NEUROLOGY EMG LAB 1120 15TH STREET AUGUSTA GA 309120004 352310573 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH INDIANA UNIVERSITY C/O ALS CLINIC 355 WEST 16TH STREET ROOM 3222 INDIANAPOLIS IN 46202 356001673 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH THE UNIVERSITY OF CHICAGO MEDICAL CENTER THE UNIVERSITY OF CHICAGO 5801 SOUTH ELLIS AVENUE CHICAGO IL 606375418 362177139 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH UNIVERSITY OF ILLINOIS AT CHICAGO ALS CLINIC 1801 W TAYLOR ST SUITE 4E CHICAGO IL 60612 376000511 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH HENRY FORD HEALTH SYSTEM DEPARTMENT OF NEUROLOGY HOENSELAAR ALS CLINIC 2799 WEST GRAND BOULEVAR DETROIT MI 482022689 381357020 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH SPECTRUM HEALTH FOUNDATION 100 MICHIGAN STREET NE MAIL CODE 004 GRAND RAPIDS MI 49503 382752328 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH UNIVERSITY OF MICHIGAN ALS CLINIC UNIVERSITY OF MICHIGAN ALS CLINIC 1500 E MEDICAL CENTER DRIVE ANN ARBOR MI 48109 386006309 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH THE MEDICAL COLLEGE OF WISCONSIN INC DEPT OF NEUROLOGY 9200 W WISCONSIN AVE MILWAUKEE WI 53226 390806261 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH MAYO CLINIC 200 FIRST STREET SW ROCHESTER MN 55905 416011702 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH UNIVERSITY OF MINNESOTA FOUNDATION PO BOX 860266 MINNEAPOLIS MN 55486 416042488 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH HENNEPIN HEALTHCARE ALS CLINIC FOUNDATION LSB-3 701 PARK AVE MINNEAPOLIS MN 55415 421707837 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH ST LOUIS UNIVERSITY ALS CENTER 3660 VISTA AVENUE NEUROLOGY CLINIC ROOM 303 ST LOUIS MO 63110 430654872 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH THE CURATORS OF THE UNIVERSITY OF MISSOURI UNIVERSITY OF MISSOURI AR PO BOX 807012 KANSAS CITY MO 64180 436003859 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH ALLEGHENY HEALTH NETWORK 320 E NORTH AVE SUITE 206 PITTSBURGH PA 15212 453674924 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH AVERA MCKENNAN HOSPITAL 1301 S CLIFF AVE PLAZA 2 SUITE 506 SIOUX FALLS SD 57105 460426730 501(C)3 10000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 RECOGNIZED TREATMENT CENTER KU ENDOWMENT ASSOCIATION 3901 RAINBOW BLVD KANSAS CITY KS 66160 480547734 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH TIDALHEALTH PENINSULA REGIONAL MEDICAL CENTER 100 EAST CARROLL STREET SALISBURY MD 21801 520591628 501(C)3 10000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 RECOGNIZED TREATMENT CENTER GW- MFA ALS CLINIC DEPT OF NEUROLOGY 2150 PENNSYLVANIA AVE NW 7-105 WASHINGTON DC 20037 522220700 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH UNIVERSITY OF MARYLAND 110 S PACA ST 3RD FLOOR BALTIMORE MD 21201 526002033 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH UNIVERSITY OF VIRGINIA DEPT OF NEUROLOGY PO BOX 800394 CHARLOTTESVILLE VA 22908 541124769 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH DUKE UNIVERSITY ALS CLINIC DUMC BOX 3333 932 MORREENE ROAD DURHAM NC 27705 560532129 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH VIDANT MEDICAL CENTER JIM CATFISH HUNTER ALS CLINIC JIM CATFISH HUNTER ALS CLINIC OUTPATIENT REHAB BUILDING 2100 STAN GREENVILLE NC 27834 560585243 501(C)3 10000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 RECOGNIZED TREATMENT CENTER ATRIUM HEALTH FOUNDATION 208 EAST BOULEVARD CHARLOTTE NC 28203 566060481 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH PRISMAHEALTH PARTNERS IN HEALTH INC 200 PATEWOOD DR SUITE B350 GREENVILLE SC 29615 571004971 501(C)3 10000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 RECOGNIZED TREATMENT CENTER MEDICAL UNIVERSITY OF SOUTH CAROLINA GRANTS AND CONTRACTS ACCOUNTING 1 SOUTH PARK CIRCLE BUILDING 1 SUITE CHARLESTON SC 29407 576000722 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH THE EMORY CLINIC INC 12 EXECUTIVE PARK DR NE ROOM 433 ATLANTA GA 30329 582030692 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH UNIVERSITY OF MIAMI ALS CENTER OF EXCELLENCE ATTN MICHAEL BENATAR MD 1120 NW 14TH ST MIAMI FL 33136 590624458 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH HOLY CROSS HOSPITAL PHIL SMITH ALS CLINIC PROGRAM 4725 NORTH FEDERAL HIGHWAY FORT LAUDERDALE FL 33308 590791028 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH UNIVERSITY OF SOUTH FLORIDA FOUNDATION INC 4202 E FOWLER AVE ALC 100 FUND 25-0175 ALS OPERATIONS TAMPA FL 33620 590879015 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH UNIVERSITY OF FLORIDA JACKSONVILLE PHYSICIANS INC 580 WEST 8TH ST T-17 JACKSONVILLE FL 32209 591867557 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH MAYO CLINIC FLORIDA 4500 SAN PABLO ROAD S JACKSONVILLE FL 322241865 593337028 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH UNIVERSITY OF KENTUCKY DEPT OF NEUROLOGY-ALS FUND KY CLINIC-WING D-ROOM L445 LEXINGTON KY 405360284 616001218 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH WESLEY NEUROLOGY CLINIC PC 8000 CENTERVIEW PKWY SUITE 305 CORDOVA TN 38018 621499155 501(C)3 10000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 RECOGNIZED TREATMENT CENTER ALABAMA NEUROLOGY ASSOCIATES PC 3105 INDEPENDENCE DRIVE STE 105 BIRMHINGHAM AL 35209 630976742 501(C)3 10000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 RECOGNIZED TREATMENT CENTER OCHSNER CLINIC FOUNDATION ERIC B STILLMAN OCHSNER HEALTH SYS PHILANTHROPY DEPT SUITE 607 1514 JE JEFFERSON LA 70121 720502505 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH LSU HEALTH SCIENCES CENTER ATTN ELLA LEE ASST DIRECTOR SPONSORED PROJECTS 433 BOLIVAR STRE NEW ORLEANS LA 70112 726087770 501(C)3 10000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 RECOGNIZED TREATMENT CENTER UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER SAN ANTONIO SOUTH TEXAS ALS CENTER AT REEVES REHABILITATION CENTER 7703 FLOYD CU SAN ANTONIO TX 782847883 741586031 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH BAYLOR COLLEGE OF MEDICINE PETER MARABELLA JR DIRECTOR GRANTS CONTRACTS ONE BAYLOR PLAZA HOUSTON TX 770303498 741613878 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH BAYLOR SCOTT AND WHITE EB ALS CLINIC ATTN JEFFREY TRAMONTE MD 300 A UNIVERSITY BLVD NEUROLOGY 4TH FLOOR ROUND ROCK TX 78665 742958277 501(C)3 10000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 RECOGNIZED TREATMENT CENTER HOUSTON METHODIST DEPT OF NEUROLOGY HOUSTON METHODIST ALS CLINIC 6560 FANNIN STREET SUITE 802 HOUSTON TX 77030 760094743 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH UNIVERSITY OF NEW MEXICO ALS CENTER - DEPT OF NEUROLOGY MSC 10 5620 1 UNIVERSITY OF NEW MEXICO ALBUQUERQUE NM 87131 856000642 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH MAYO CLINIC - ALS CLINIC NEUROLOGY MAYO CLINIC - ALS CLINIC NEUROLOGY 13400 E SHEA BLVD SCOTTSDALE AZ 85259 860800150 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH UNIVERSITY OF UTAH 175 N MEDICAL DR E DEPT OF NEUROLOGY ROOM 5715 SALT LAKE CITY UT 84132 876000525 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH VIRGINIA MASON MEDICAL CENTER ALS CLINIC NEUROLOGY AND NEUROPHYSIOLOGY 1100 NINTH AVENUE MAILSTOP X7-NEU SEATTLE WA 98111 910565539 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH NEBRASKA MEDICINE ATTN TOVA SAFFORD 988435 NEBRASKA MEDICAL CENTER OMAHA NE 681988435 911858433 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH SWEDISH NEUROSCIENCE INSTITUTE MICHAEL A ELLIOTT MD 550 17TH AVE SUITE 400 SEATTLE WA 98122 912073120 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH PROVIDENCE HEALTH & SERVICES-OREGON 5050 NE HOYT STE 315 PORTLAND OR 97213 930386929 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH OREGON HEALTH AND SCIENCE UNIVERSITY ATTN LYNETTE ARIAS DIRECTOR SPONSORED PROJECTS ADMIN 2525 SW FI PORTLAND OR 97201 931176109 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH DIGNITY HEALTH DBA ST JOSEPH'S HOSPITAL AND MEDICAL CTR 350 WEST THOMAS ROAD PHOENIX AZ 85013 941196203 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH THE PERMANENTE MEDICAL GROUP INC KSF LEANNE SCHWITZER CONTROLLER 350 ST JOSEPHS AVE ROOM 148 SAN FRANCISCO CA 94115 942728480 501(C)3 10000 0 N/A N/A ANNUAL GRANT FY22 RECOGNIZED TREATMENT CENTER THE PERMANENTE MEDICAL GROUP INC KSR KAISER SAN RAFAEL ALS CLINIC DEPT OF NEUROLOGY 99 MONTICELLO ROAD SAN RAFAEL CA 94903 942728480 501(C)3 10000 0 N/A N/A ANNUAL GRANT FY22 RECOGNIZED TREATMENT CENTER HONOR HEALTH NEUROLOGY/ALS CLINIC ATTN KELLY FLEMING 8125 N HAYDEN ROAD SCOTTSDALE AZ 85258 942735850 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH SUTTER WEST BAY HOSPITALS DBA CALIFORNIA PACIFIC MEDICAL CEN SUTTER WEST BAY MEDICAL FND 1100 VAN NESS AVE 6TH FLOOR SAN FRANCISCO CA 94109 942948131 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO UCSF - OFFICE OF SPSRD RES 3333 CALIFORNIA STREET ATTN JOAN KAISER SAN FRANCISCO CA 941430962 946036493 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS 4860 Y ST SUITE 3850 SACRAMENTO CA 95817 946036494 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH KECK MEDICINE OF ALS CLINIC 3500 S FIGUEROA STREET SUITE 102 LOS ANGELES CA 90089 951642394 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH CEDARS-SINAI MEDICAL CENTER DEPT OF NEUROLOGY ALS PROGRAM 8700 BEVERLY BLVD 6TH FLOOR PAVILION LOS ANGELES CA 90048 951644600 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH SOUTHERN CALIFORNIA PERMANENTE MEDICAL GROUP LA DEPT OF NEUROLOGY 1505 N EDGEMONT ST 5TH FLOOR LOS ANGELES CA 90027 951750445 501(C)3 10000 0 N/A N/A ANNUAL GRANT FY22 RECOGNIZED TREATMENT CENTER SOUTHERN CALIFORNIA PERMANENTE MEDICAL GROUP SB ATTN HECTOR GARCIA ALS CLINIC NEUROLOGY DEPT 1050 PACIFIC COAST H HARBOR CITY CA 90710 951750445 501(C)3 10000 0 N/A N/A ANNUAL GRANT FY22 RECOGNIZED TREATMENT CENTER REGENTS OF THE UNIVERSITY OF CALIFORNIA IRVINE 200 S MANCHESTER SUITE 110 ORANGE CA 92868 952226406 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO UCSD DEPT OF NEUROSCIENCE 9500 GILMAN DRIVE MC 0662 LA JOLLA CA 920935004 956006144 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY22 CENTER OF EXCELLENCE/RESEARCH 160 0 QUALITY OF LIFE GRANT 286 150399 N/A N/A PART I, LINE 2: GRANT APPLICATIONS ARE REVIEWED BY COMMITTEES AND STAFF FOR APPROVAL. ALL GRANT AWARDED RESEARCHERS ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING TO OUR RESEARCH DEPARTMENT. THE ASSOCIATION ALSO REQUIRE PROGRESS REPORTS THROUGH OUT THE AWARD TO CONTINUE TO RECEIVE FUNDS. X X X 0 0 0 1 0 1 0 0 0 CALANEET BALAS PRESIDENT AND CEO 351501 0 0 0 0 0 72589 0 23473 0 447563 0 0 0 TINA ZEFF CHIEF OPERATIONS OFFICER 242773 0 0 0 0 0 55373 0 36155 0 334301 0 0 0 NEIL THAKUR CHIEF MISSION OFFICER 245753 0 0 0 0 0 50768 0 26334 0 322855 0 0 0 GREG MITCHELL CHIEF FINANCIAL OFFICER 261808 0 0 0 0 0 50413 0 1580 0 313801 0 0 0 LANCE SLAUGHTER SVP, STRATEGIC ALLIANCES & GOVERNANC 236295 0 0 0 0 0 17363 0 22133 0 275791 0 0 0 KULDIP DAVE VP, RESEARCH 215346 0 0 0 0 0 15873 0 35053 0 266272 0 0 0 BRIAN FREDERICK SVP, AND HEAD OF CREATIVE 226668 0 0 0 0 0 15535 0 1485 0 243688 0 0 0 KIMBERLY HARDING-MAGINNIS SVP, CARE SERVICES 213473 0 0 0 0 0 15361 0 12628 0 241462 0 0 0 TERESSA HARRIS SVP, FINANCE 194974 0 0 0 0 0 14266 0 24205 0 233445 0 0 0 MONICA SANTA CRUZ CHIEF PEOPLE OFFICER 214647 0 0 0 0 0 15483 0 3078 0 233208 0 0 0 DEAN FEENER CHIEF INFORMATION OFFICER 182049 0 0 0 0 0 13803 0 1771 0 197623 0 0 0 PART I, LINE 3 A COMPENSATION COMMITTEE ASSISTS THE BOARD IN FULFILLING ITS RESPONSIBILITY TO OVERSEE THE COMPENSATION AND BENEFITS TO ITS PRESIDENT/CEO, BY PROVIDING COMPARABLE DATA TO DETERMINE THE REASONABLENESS OF THE PRESIDENT'S SALARY. THE SALARY IS THEN REVIEWED BY THE BOARD OF TRUSTEES AND APPROVED. PART I, LINE 5 ACCRUED INCENTIVE BONUSES AND SPOT BONUSES, NO PAYMENT. PART I, LINE 6 ACCRUED INCENTIVE BONUSES AND SPOT BONUSES, NO PAYMENT. X 104 151478 NET PROCEEDS X 72 562079 AVG HIGH/LOW AT DATE X 1 229674 NET PROCEEDS X CRYPTO CURRENCY 3 10884 NET PROCEEDS 0 1 1 PART I, COLUMN (B): REPRESENTS NUMBER OF ITEMS CONTRIBUTED PART I, LINE 32B: THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION USED THE SERVICES OF A CAR PROGRAM DONATION PROCESSOR SERVICE, AMERICA'S CAR DONATION CENTER, TO ACCEPT, PROCESS, AND SELL NON-CASH DONATIONS OF AUTOMOBILES. FORM 990, PART VI, SECTION A, LINE 1A THE EXECUTIVE COMMITTEE CAN BE MADE UP OF UP TO TEN BOARD MEMBERS, WHICH ARE USUALLY BOARD OFFICERS AND COMMITTEE CHAIRS. THIS COMMITTEE CAN MEET IN BETWEEN REGULARLY SCHEDULED BOARD OF TRUSTEE MEETINGS AND HAS THE POWERS OF THE BOARD OF TRUSTEES. ACTIONS TAKEN BY THE EXECUTIVE COMMITTEE ARE REPORTED TO THE FULL BOARD OF TRUSTEES AT THE NEXT REGULARLY SCHEDULED BOARD OF TRUSTEES MEETING. FORM 990, PART VI, SECTION A, LINE 6 MEMBERS. THE MEMBERS OF THE ASSOCIATION (THE "MEMBERS AND EACH, A "MEMBER") SHALL BE CHARTERED CHAPTERS OF THE ASSOCIATION (THE "CHAPTERS AND EACH, A "CHAPTER"). CHAPTERS WITHOUT A CHARTER OR OTHER ENTITIES OR ORGANIZATIONS MAY BE AFFILIATED WITH AND/OR MANAGED BY THE ASSOCIATION, BUT ARE NOT ENTITLED TO ALL OF THE RIGHTS OF CHAPTERS AS PROVIDED BY THESE BYLAWS AND THE CHAPTER CHARTER AGREEMENT. CHAPTERS SHALL BE ADMITTED TO MEMBERSHIP BY THE BOT BASED ON CRITERIA CONSISTENT WITH THESE BYLAWS AS ADOPTED BY THE BOT. FORM 990, PART VI, SECTION A, LINE 7A BOARD OF REPRESENTATIVES ELECTS THE MEMBERS OF THE BOARD OF TRUSTEES. BOR IS COMPOSED OF A REPRESENTATIVE FROM EACH MEMBER/CHAPTER. FORM 990, PART VI, SECTION B, LINE 11B THE 990 IS REVIEWED IN ITS ENTIRETY BY THE FINANCE COMMITTEE OF THE BOARD OF TRUSTEES AND ONCE ACCEPTED AND APPROVED, FULL RETURN IS PRESENTED TO ENTIRE BOARD OF TRUSTEES PRIOR TO SUBMISSION TO THE INTERNAL REVENUE SERVICE FORM 990, PART VI, SECTION B, LINE 12C ANNUALLY BOARD MEMBERS SIGN A NEW CONFLICT OF INTEREST STATEMENT AS WELL AS ALL STAFF. MANAGEMENT TRACKS THE CONFLICT OF INTEREST STATEMENTS FOR ALL BOARD AND COMMITTEE MEMBERS AS WELL AS STAFF. WHERE IT IS DETERMINED THAT AN ACTUAL CONFLICT OF INTEREST EXITS, THE RESPONSIBLE PERSON HAVING THE CONFLICT OF INTEREST SHALL NOT BE COUNTED IN DETERMINING THE PRESENCE OF A QUORUM FOR PURPOSES OF THE VOTE ON THAT CONTRACT OR TRANSACTION. SUCH RESPONSIBLE PERSON MAY MAKE A STATEMENT OR PRESENTATION REGARDING THE MATTER OR RESPOND TO QUESTIONS, BUT SUCH RESPONSIBLE PERSON (I) SHALL NOT PARTICIPATE IN OR BE PERMITTED TO HEAR THE BOARD'S OR ASSOCIATION COMMITTEE'S DISCUSSION OF THE MATTER; (II) SHALL NOT ATTEMPT TO EXERT HIS OR HER PERSONAL INFLUENCE WITH RESPECT TO THE MATTER, EITHER AT OR OUTSIDE THE MEETING; (III) SHALL NOT VOTE ON THE CONTRACT OR TRANSACTION; AND (IV) SHALL NOT BE PRESENT IN THE MEETING ROOM WHEN THE VOTE IS TAKEN. FORM 990, PART VI, SECTION B, LINE 15 THE EXECUTIVE COMPENSATION COMMITTEE PERFORMS THE ANNUAL REVIEW OF THE PRESIDENT AND CEO AND DETERMINES SALARY AND/OR BONUSES USING INFORMATION OBTAINED FROM OUTSIDE SOURCES FOR SIMILAR SIZED ORGANIZATIONS. THIS IS REVIEWED AND COMPARED WITH MARKET DATA FROM ORGANIZATIONS OF A SIMILAR SIZE AND IN THE SAME INDUSTRY. THIS PROCESS RECENTLY TOOK PLACE IN 2022. THE PRESIDENT AND CEO REVIEWS ALL SENIOR LEVEL MANAGEMENT AND DETERMINES SALARY AND/OR BONUSES USING INFORMATION OBTAINED FROM OUTSIDE SOURCES FOR SIMILAR SIZED ORGANIZATIONS. THIS IS REVIEWED AND COMPARED WITH MARKET DATA FROM ORGANIZATIONS OF A SIMILAR SIZE AND IN THE SAME INDUSTRY. THIS PROCESS RECENTLY TOOK PLACE IN 2022. FORM 990, PART VI, SECTION C, LINE 19 THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION'S FORM 990S, FINANCIAL STATEMENTS, CONFLICT OF INTEREST POLICY AND GOVERNING DOCUMENTS ARE AVAILABLE FOR REVIEW AT ITS OFFICE UPON WRITTEN REQUEST. FORM 990 AND THE FINANCIAL STATEMENTS ARE AVAILABLE ON ITS WEBSITE AS WELL. FORM 990, PART IX, LINE 11G TELECOMMUNICATIONS, PUBLIC POLICY, OTHER CONSULTING: PROGRAM SERVICE EXPENSES 3,763,903. MANAGEMENT AND GENERAL EXPENSES 723,375. FUNDRAISING EXPENSES 2,297,134. TOTAL EXPENSES 6,784,412. DIRECT MAIL: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 1,912,722. TOTAL EXPENSES 1,912,722. FORM 990, PART XI, LINE 9: GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUSTS 29,889. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS -53,902.