2022-05-13T14:30:49-05:00 2021-09-30 366055558 GRANT THORNTON LLP 100 E WISCONSIN AVE MILWAUKEE WI 53202 990 2020-10-01 411704734 BE THE MATCH FOUNDATION BETH 7634068700 500 N 5TH ST MINNEAPOLIS MN 554011206 KRISTA DUSIL CFO 7634068694 2022-05-13 1 KRISTA DUSIL 999009999 MICHELLE L WEBER P00556798 4142898200 2022-05-13 2 AAL1 IAL1 2020 2022-09-23 18:48:47Z BE THE MATCH JOY KING 500 N 5TH ST MINNEAPOLIS MN 554011206 21716688 0 X WWW.BETHEMATCH.ORG X 1991 MN FUNDRAISING TO SUPPORT MISSION OF THE NMDP/BE THE MATCH: TO SAVE LIVES THROUGH CELLULAR THERAPY 18 17 44 1874 0 0 18034650 20737956 0 0 474694 491516 -234956 -62198 18274388 21167274 8077451 8823427 0 0 3818929 4124427 615139 699201 1592776 953128 -113509 13464647 13533546 4809741 7633728 17220560 21284478 5533636 999743 11686924 20284735 X FUNDRAISING TO SUPPORT MISSION OF THE NMDP/BE THE MATCH: TO SAVE LIVES THROUGH CELLULAR THERAPY 0 0 6130437 6130437 PATIENT ASSISTANCE - BE THE MATCH FOUNDATION (BTMF) PROVIDES FINANCIAL ASSISTANCE TO PATIENTS THROUGHOUT EACH STAGE OF THE TRANSPLANT PROCESS. FUNDED FULLY BY PHILANTHROPY, IN FY2021 MORE THAN $6.1 MILLION WAS PROVIDED TO OVER 2,600 PATIENTS FROM MORE THAN 150 TRANSPLANT CENTERS. THESE ARE THE HIGHEST NUMBERS IN PROGRAM HISTORY. IN FY2021, THE TEAM IMPROVED ACCESSIBILITY OF GRANT DATA USING THE SOFTWARE LOOKER TO BETTER EVALUATE HOW EQUITABLY THE PROGRAM DISTRIBUTES FUNDING. IN FY2021, THE PROPORTION OF GRANT RECIPIENTS WHO IDENTIFY AS NON-HISPANIC WHITE RANGED FROM 52%-73% DEPENDING ON THE GRANT TYPE. THE CHELL TRAVEL GRANT, WHICH HELPS PEOPLE WITH TRAVEL COSTS ASSOCIATED WITH PARTICIPATING IN A (CONTINUED ON SCHEDULE O) CLINICAL TRIAL, WAS DISTRIBUTED TO THE MOST DIVERSE POPULATION. THE RIKLIS CRISIS GRANT WAS DISTRIBUTED TO THE LEAST DIVERSE POPULATION, WITH 73% OF RECIPIENTS IDENTIFYING AS NON-HISPANIC WHITE. A COMMITTEE REVIEWS EACH RIKLIS CRISIS GRANT APPLICATION WITH RACE/ETHNICITY INFORMATION REDACTED TO INCREASE THE EQUITABLE DISTRIBUTION OF THIS GRANT.TWO GRANT PROGRAMS SUPPORT PATIENTS PRE-TRANSPLANT WHO HAVE INSURANCE AND FINANCIAL BARRIERS THAT DELAY OR PREVENT THEM FROM FINDING A DONOR OR CORD BLOOD UNIT. THE FAMILY TYPING GRANT (FTG) PAYS LABS, ON BEHALF OF THE PATIENTS, FOR THE TYPING OF FIRST-DEGREE RELATIVES NEEDED TO IDENTIFY IF THERE IS A DONOR IN THE FAMILY. THE FTG HELPED 47 PATIENTS THIS FISCAL YEAR. FOR THOSE WITHOUT A DONOR IN THEIR FAMILY, SEARCH ASSISTANCE FUNDS (SAF) HELPS PATIENTS START THE SEARCH FOR AN UNRELATED DONOR OR CORD BLOOD UNIT BY GIVING TRANSPLANT CENTERS A GUARANTEE OF PAYMENT FOR SPECIFIC SEARCH AND/OR PROCUREMENT COSTS SHOULD THEY NOT BE COVERED BY INSURANCE. THERE WERE 113 PATIENTS APPROVED FOR SAF THIS FISCAL YEAR. BTMF ALSO PROVIDES FUNDING TO HELP WITH THE MANY UNCOVERED OUT-OF-POCKET EXPENSES FOR PATIENTS BEFORE AND AFTER A TRANSPLANT. THE TRANSPLANT SUPPORT ASSISTANCE (TSA) GRANT PROVIDES DIRECT FINANCIAL ASSISTANCE TO QUALIFIED FAMILIES BOTH PRE- AND POST-TRANSPLANT. TSA HELPS WITH EXPENSES SUCH AS TRANSPORTATION, TEMPORARY RELOCATION, CO-PAYS, AND INSURANCE PREMIUMS. THIS YEAR, 2,008 TSA AWARDS WERE GRANTED WITH THE AVERAGE AWARD BEING $1,768 TO PATIENTS PRE- AND POST-TRANSPLANT.IN MAY 2020, BTMF OPENED A NEW, TEMPORARY GRANT TO MEET THE EVOLVING NEEDS OF PATIENTS DURING A GLOBAL PANDEMIC. THE COVID-19 RELIEF GRANT PROVIDED A ONE TIME $500 AWARD TO AID IN COVERING MEDICAL AND NON-MEDICAL EXPENSES DUE TO FINANCIAL HARDSHIP RELATED TO COVID. THIS YEAR 540 COVID AWARDS WERE GRANTED TO PATIENTS WHO WERE BOTH PRE- AND POST-TRANSPLANT. THIS GRANT CLOSED IN MAY 2021 AFTER BEING OPEN FOR ONE YEAR.THE JOHN AND CARYN CAMIOLO SURVIVORSHIP GRANT (CAM) PROVIDES DIRECT FINANCIAL ASSISTANCE TO QUALIFIED PATIENTS WHO ARE AT LEAST THREE MONTHS POST-TRANSPLANT AND WHO ARE ACTIVELY RECEIVING TREATMENT FOR CHRONIC GRAFT-VERSUS-HOST DISEASE. CAM HELPS WITH UNCOVERED COSTS OF TREATMENT AND PRESCRIPTIONS. THIS FISCAL YEAR, 140 PATIENTS WERE HELPED THROUGH THE CAM GRANT WITH EACH PATIENT AWARDED $750.THE CHELL TRAVEL GRANT PROVIDES DIRECT FINANCIAL ASSISTANCE TO QUALIFIED PATIENTS WHO NEEDED ASSISTANCE WITH TRAVEL COSTS TO PARTICIPATE IN CLINICAL TRIALS THAT TREAT BLOOD CANCERS OR BLOOD DISORDERS. THIS YEAR 107 CHELL TRAVEL GRANTS WERE AWARDED WITH THE AVERAGE AWARD AMOUNT BEING $1,683.THE IRA AND DIANA RIKLIS CRISIS GRANT PROVIDES $10,000 IN DIRECT FINANCIAL ASSISTANCE TO QUALIFIED PATIENTS POST-TRANSPLANT WHO HAVE EXPERIENCED A SIGNIFICANT CRISIS EVENT IMPACTING PATIENT'S ACCESS TO POST-TRANSPLANT CARE. THIS FISCAL YEAR, 12 PATIENTS WERE HELPED THROUGH THE RIKLIS CRISIS PROGRAM. 1370263 1370263 RESEARCH - RESEARCH INNOVATIONS ARE CRITICAL TO EXPANDING TREATMENT TO MORE PATIENTS AND IMPROVING OUTCOMES. EACH YEAR, BTMF IS PROUD TO INVEST IN RESEARCH THROUGH:THE AMY STRELZER MANASEVIT RESEARCH PROGRAM (AMY PROGRAM): OUR FLAGSHIP RESEARCH FELLOWSHIP, THE AMY PROGRAM FUNDS EARLY CAREER INVESTIGATORS FOCUSED ON ADVANCES IN THE PREVENTION AND TREATMENT OF POST-CELL THERAPY COMPLICATIONS (E.G., GRAFT-VERSUS-HOST-DISEASE AND INFECTION). IN 2021, WE FUNDED THE WORK OF 15 AMY SCHOLARS. AMY SCHOLARS HAVE GONE ON TO BECOME LEADERS IN THE FIELD, PURSUING SCIENTIFIC ADVANCES THAT HELP BE THE MATCH PATIENTS LIVE LONGER, HEALTHIER LIVES. SINCE 1998, BTMF HAS INVESTED NEARLY $12 MILLION TO HELP (CONTINUED ON SCHEDULE O) LAUNCH THE CAREERS OF 46 YOUNG PHYSICIAN-SCIENTISTS. AFTER RECEIVING THEIR AMY SCHOLAR AWARDS, THIS GROUP HAS GONE ON TO WIN MORE THAN $110 MILLION IN SUBSEQUENT FUNDING TO PURSUE THE DISCOVERIES THAT WILL HELP PATIENTS LIVE LONGER, HEALTHIER LIVES AFTER CELL THERAPY. TODAY, THE AMY STRELZER MANASEVIT RESEARCH PROGRAM FOR THE STUDY OF POST-CELL THERAPY COMPLICATIONS IS ONE OF THE LARGEST AND MOST COVETED FELLOWSHIPS IN THE FIELD OF TRANSPLANTATION.FISCAL YEAR # OF SCHOLARS DOLLARSFY2019 41 NEARLY $9M FY2020 44 NEARLY $11MFY2021 46 NEARLY $12M THE ANTHONY NOLAN TRUST GRANTS PROVIDE SUPPORT TO THE ANTHONY NOLAN RESEARCH INSTITUTE TO CONTINUE DEVELOPMENT AND MAINTENANCE OF AN HLA CLASS I AND II SEQUENCE DATABASE AND PROVISION OF HLA CLASS I AND II SEQUENCE INFORMATION. BE THE MATCH'S CENTER FOR INTERNATIONAL BLOOD AND MARROW TRANSPLANT RESEARCH (CIBMTR) - A PARTNERSHIP WITH THE MEDICAL COLLEGE OF WISCONSIN - IS THE LEADING HUB FOR TRANSPLANT AND CELL THERAPY RESEARCH. BTMF HELPS TO FUND INNOVATIVE RESEARCH STUDIES LED AND MANAGED BY THE CIBMTR. 35612 35612 RECRUITMENT - THE BE THE MATCH REGISTRY PROVIDES THE MOST DIVERSE LISTING OF POTENTIAL DONORS AND CORD BLOOD UNITS IN THE WORLD, WITH ACCESS TO 39 MILLION POTENTIAL DONORS AND 806,000 CORD BLOOD UNITS WORLDWIDE. IN FY2021, OVER 250,000 NEW POTENTIAL DONORS WERE ADDED TO THE BE THE MATCH REGISTRY. ALTHOUGH THERE ARE MILLIONS ON THE REGISTRY, PATIENTS SOMETIMES STILL CANNOT FIND A MATCH. THIS IS DUE IN PART TO THE PATIENT'S ETHNIC BACKGROUND. ON AVERAGE, A PATIENT'S LIKELIHOOD OF FINDING A MATCH ON THE BE THE MATCH REGISTRY RANGES FROM 29% TO 79% DEPENDING ON THE ETHNIC BACKGROUND. SOME ETHNIC GROUPS HAVE MORE COMPLEX TISSUE TYPES THAN OTHERS, SO A PERSON'S BEST CHANCE OF FINDING A DONOR IS WITH SOMEONE OF THE SAME ETHNIC BACKGROUND. THE IMPORTANCE OF INCREASING DIVERSITY ON THE REGISTRY IS AN (CONTINUED ON SCHEDULE O) ORGANIZATION GOAL AND PRIORITY AT BE THE MATCH.BE THE MATCH MEXICO WAS STARTED IN 2017. WITH THE GOAL OF REACHING MORE PATIENTS AND INCREASING DIVERSITY ON THE REGISTRY, WORK HAS BEGUN TO CREATE A NETWORK OF DONOR CENTERS AND FUNDRAISING PARTNERS IN MEXICO. 3641497 1287115 BTMF PARTNERS WITH BE THE MATCH ON VARIOUS INITIATIVES TIED TO THE SHARED MISSION. THESE PROGRAMS INCLUDE:BE THE MATCH PROVIDES COMPREHENSIVE EDUCATION AND SUPPORT SERVICES TO PATIENTS AND THEIR FAMILIES THROUGH ONE-ON-ONE NAVIGATION SUPPORT, VIDEO, PRINTED, AND DIGITAL EDUCATION RESOURCES, COUNSELING, PEER-TO-PEER CONNECT PROGRAM, AND THE JASON CARTER CLINICAL TRIALS SEARCH AND SUPPORT PROGRAM, WHICH HELPS PATIENTS WITH LIFE-THREATENING BLOOD DISORDERS FIND CLINICAL TRIALS. BTMF RAISES FUNDS TO SUPPORT THESE CRITICAL SERVICES. BE THE MATCH IS A LEADER IN PROVIDING HEALTH CARE PROFESSIONALS WITH THE EDUCATION, RESOURCES AND SERVICES THEY NEED TO PROVIDE THE BEST CARE FOR TRANSPLANT PATIENTS. BTMF HELPS TO FUND THE CREATION AND DISTRIBUTION OF A NEWSLETTER FOCUSED ON THE ADVANCEMENTS IN TRANSPLANTATION AS WELL AS QUICK REFERENCE GUIDES, WITH AN ACCOMPANYING APP VERSION, THAT PROVIDES RESOURCES FOR HEALTH CARE PROFESSIONALS WHO CARE FOR PATIENTS BEFORE, DURING, AND/OR AFTER A TRANSPLANT.SPONSORSHIPS FOR THE BE THE MATCH ANNUAL ONE FORUM ARE RECEIVED BY BTMF AND THEN GIFTED TO BE THE MATCH. THIS MEETING CONNECTS ALL THE BTM NETWORK PARTNERS AND FOCUSES ON EDUCATION AND SHARING PROGRESS AND CHALLENGES RELATING TO TRANSPLANTS. BTMF ALLOCATES COMPENSATION AND BENEFITS AND OCCUPANCY COSTS TO PROGRAM BASED ON EMPLOYEE RESPONSIBILITIES. 3641497 1287115 11177809 1 1 0 0 0 0 0 0 0 1 0 0 0 0 0 1 0 1 0 0 1 1 0 1 1 0 0 1 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 1 196 0 1 44 1 0 1 MX 0 0 0 1 1 0 0 0 0 0 0 X 18 17 1 0 0 0 1 1 1 1 1 0 0 1 1 1 1 1 1 1 1 0 AL AR CA FL GA HI IL KS KY MD MA MI MN MS NH NJ NM NY NC OR PA RI SC TN UT VA WV WI X X KRISTA DUSIL 7634064275 500 N 5TH ST MINNEAPOLIS MN 554011206 X AMY RONNEBERG CHIEF EXECUTIVE OFFICER 2.00 48.00 X X 0 1109940 28461 C RANDAL MILLS FORMER CEO - THRU 2/2020 0.00 50.00 X 0 754411 3307 JOY KING E.D. BTMF; CHIEF ADVANCEMENT OFFICER 20.00 30.00 X 160248 240374 51471 GINA GRAVES ACTING CFO - THRU 4/2021 1.00 49.00 X 0 309840 40118 JACQUELINE CHANDONNET DIRECTOR, DEVELOPMENT 50.00 0.00 X 162360 0 21470 ANGIE FITZGERALD SENIOR DIR., CORPORATE PARTNERSHIPS 50.00 0.00 X 154158 0 24636 STEPHEN STOUT SR. DIR., MAJOR GIFTS-THRU 9/2020 50.00 0.00 X 137634 0 19197 DANIEL LEE DIRECTOR, MAJOR AND PLANNED GIFTS 50.00 0.00 X 138363 0 18370 KRISTIN SCOTT MANAGER, MAJOR GIFTS 50.00 0.00 X 137305 0 16222 KRISTA DUSIL CFO - AS OF 4/2021 1.00 49.00 X 0 0 0 ANNE MCGEORGE CHAIR 1.00 0.00 X 0 0 0 MICHAEL STEWART VICE CHAIR 1.00 0.00 X 0 0 0 ROGER PASCHKE SECRETARY 1.00 0.00 X 0 0 0 DIANA CARTER TREASURER 1.00 0.00 X 0 0 0 JASON AHLGREN DIRECTOR 1.00 0.00 X 0 0 0 GUSTAVO ALCOCER DIRECTOR 1.00 0.00 X 0 0 0 ANNIE BALLANTINE DIRECTOR 1.00 0.00 X 0 0 0 ANDREW BLOCK DIRECTOR 1.00 0.00 X 0 0 0 MELISSA KONG DIRECTOR 1.00 0.00 X 0 0 0 JOSEPH LOUGHRAN DIRECTOR 1.00 0.00 X 0 0 0 BRUCE MANASEVIT DIRECTOR 1.00 0.00 X 0 0 0 NICOLE MOORE DIRECTOR 1.00 0.00 X 0 0 0 DAVID PEARCE DIRECTOR 1.00 0.00 X 0 0 0 DERYN POMEROY DIRECTOR 1.00 0.00 X 0 0 0 MICHAEL ROSE DIRECTOR 1.00 0.00 X 0 0 0 RENE SIGMAN DIRECTOR 1.00 0.00 X 0 0 0 THOMAS TEACH DIRECTOR 1.00 0.00 X 0 0 0 890068 2414565 223252 12 1 1 0 COMMUNITY COUNSELING SERVICE 527 MADISON AVENUE FIFTH FLOOR NEW YORK NY 10022 PROGRAM SUPPORT 357561 STREAMWORKS 3640 PHEASANT RIDGE DRIVE NORTHEAST BLAINE MN 55449 CREATIVE, PRINT & MAIL SERVICES 241823 BLACKBAUD PO BOX 930256 ATLANTA GA 31193 SOFTWARE SUPPORT 194852 3 946817 7715917 12075222 114828 20737956 260691 260691 620850 390025 230825 230825 230825 97188 946817 159389 -62201 -62201 FOREIGN CURRENCY GAIN 900099 3 3 3 21167274 0 0 429318 X 3488356 3488356 5265071 5265071 70000 70000 176515 125326 24712 26477 3049259 2164974 426896 457389 169169 120110 23684 25375 466558 331256 65318 69984 262926 186677 36810 39439 25000 25000 699201 699201 6470 6470 643876 457152 77265 109459 5872 5872 174219 36586 12195 125438 8929 6340 1071 1518 148579 105491 20801 22287 26367 22939 3428 13029 13029 REGISTRATION/MEMBERSHIP 25694 25694 RECOGNITION 22509 4725 1575 16209 UBI TAX EXPENSE -987 -987 GRANT PROGRAM UPDATE -1213066 -1213066 13533546 11177809 762961 1592776 0 0 2835023 5371228 3482711 3605240 0 0 0 0 0 0 0 0 0 0 401320 294360 0 0 0 0 10501506 12013650 0 0 17220560 21284478 4327057 999743 1206579 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 5533636 999743 X 3809037 11125976 7877887 9158759 11686924 20284735 17220560 21284478 X 7633728 1014083 -50000 X 0 1 X 1 0 X 11148511 11051487 10751245 18034650 20737956 71723849 11148511 11051487 10751245 18034650 20737956 71723849 24166002 47557847 274817 229695 247043 238703 260691 1250949 552210 345444 198404 102320 97191 1295569 74270367 0.64030 0.69490 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: FUNDRAISING REVENUE - 2016 AMOUNT: $ 532,510. 2017 AMOUNT: $ 324,124. 2018 AMOUNT: $ 176,304. 2019 AMOUNT: $ 99,420. 2020 AMOUNT: $ 97,188. GAMING REVENUE - 2016 AMOUNT: $ 19,700. 2017 AMOUNT: $ 21,320. 2018 AMOUNT: $ 22,100. 2019 AMOUNT: $ 2,900. 2020 AMOUNT: $ 0. FOREIGN CURRENCY GAIN - 2016 AMOUNT: $ 0. 2017 AMOUNT: $ 0. 2018 AMOUNT: $ 0. 2019 AMOUNT: $ 0. 2020 AMOUNT: $ 3. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 5098748 60000 554109 160000 5552857 4612433 200500 285815 5098748 1407960 2963973 240500 4612433 1407960 1407960 0.65020 0.34980 0 0 0 0 0 0 0 X PART V, LINE 4: INTENDED USES OF ENDOWMENT FUNDS THE INTENDED USES OF THE ENDOWMENT FUNDS ARE TO SUPPORT RESEARCH AND PATIENT ASSISTANCE. PART X, LINE 2: ORGANIZATION'S LIABILITY FOR UNCERTAIN TAX POSITIONS UNDER ASC 740 THE INTERNAL REVENUE SERVICE HAS DETERMINED THAT THE PROGRAM AND BTMF ARE TAX-EXEMPT ORGANIZATIONS UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. THE NOT-FOR-PROFIT STATUS OF THE PROGRAM AND BTMF ARE CONSIDERED TAX POSITIONS UNDER FASB ASC 740, INCOME TAXES. THE ORGANIZATION FOLLOWS THE ACCOUNTING STANDARDS FOR CONTINGENCIES IN EVALUATING UNCERTAIN TAX POSITIONS. THIS GUIDANCE PRESCRIBES RECOGNITION THRESHOLD PRINCIPLES FOR THE FINANCIAL STATEMENT RECOGNITION OF TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN ON A TAX RETURN THAT ARE NOT CERTAIN TO BE REALIZED. NO LIABILITY HAS BEEN RECOGNIZED BY THE ORGANIZATION FOR UNCERTAIN TAX POSITIONS AS OF SEPTEMBER 30, 2021 OR 2020. THE ORGANIZATION'S TAX RETURNS ARE SUBJECT TO REVIEW AND EXAMINATION BY FEDERAL AND STATE AUTHORITIES. 1 EUROPE (INCLUDING ICELAND & GREENLAND) 0 0 GRANTMAKING 70000 0 0 0 0 0 0 70000 0 70000 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH/SCHOLAR 70000 CHECK/WIRE 1 0 0 1 0 0 0 PART I, LINE 2: PROCEDURES FOR MONITORING THE USE OF GRANTS OUTSIDE THE U.S. THE GRANT PROVIDED TO ITALY IS PART OF A BONE MARROW TRANSPLANT RESEARCH SCHOLAR PROGRAM THAT WAS STARTED MANY YEARS AGO. THE GRANTEES ARE REQUIRED ON A BI-ANNUAL BASIS TO SUBMIT DETAILED PROGRESS REPORTS TO BE THE MATCH THAT OUTLINE THE USE OF FUNDS. THE PAYMENTS ARE MADE TO THE INSTITUTION THAT THE SCHOLAR IS CONDUCTING RESEARCH AS AN ADDITIONAL PRECAUTION THAT THE FUNDS ARE USED FOR THEIR INTENDED PURPOSE. PART III ACCOUNTING METHOD: X X X X X X 1 ALLEGIANCE FUNDRAISING GROUP PO 9132 FARGO ND 581069132 FUNDRAISING CONSULTANT 0 0 326923 0 COMMUNITY COUNSELING SERVICE 527 MADISON AVENUE 5TH FLOOR NEW YORK NY 10022 GIFT & CAMPAIGN EFFORTS CONSULTANT 0 0 115500 0 GOODUNITED 796 MEETING STREET CHARLESTON SC 29403 FUNDRAISING CONSULTANT 0 0 107627 0 CREATIVE CIRCLE LLC 5900 WILSHIRE BOULEVARD 11TH FLOOR LOS ANGELES CA 90036 SOCIAL MEDIA CONSULTANT 0 0 61779 0 AMY HERNANDEZ 1327 BUCHANAN STREET NORTHEAST MINNEAPOLIS MN 55413 FUNDRAISING CONSULTANT 0 0 44444 0 THE STELTER COMPANY 10435 NEW YORK AVE DES MOINES IA 503223774 GIFT & NEWSLETTER CONSULTANT 0 0 42928 0 699201 AL AK AR CA CO CT FL GA HI IL KS KY ME MD MA MI MN MO MS NV NH NJ NM NY NC ND OH OK OR PA RI SC TN UT VA WA WV WI VIRTUAL GALA 964587 880749 83838 27654 10346 64282 23687 MIRACLE MATCH GOLF 79418 66068 13350 10509 5190 17721 1044005 946817 97188 27654 20855 69472 41408 159389 -62201 SCHEDULE G, PART I, LINE 2B, COLUMN (IV) GROSS RECEIPTS FROM FUNDRAISERS THE GROSS RECEIPTS FROM THE ACTIVITIES THAT ONE & ALL INC AND COMMUNITY COUNSELING SERVICE ASSIST OUR ORGANIZATION ON ARE NOT ABLE TO BE SEPARATELY REPORTED. ONE & ALL INC WORKS ON OUR DIRECT MAIL AND ONLINE GIVING APPEALS. COMMUNITY COUNSELING SERVICE WORKS ON GENERAL FUNDRAISING STRATEGY AND FUNDRAISING CAMPAIGN CONSULTING. THE WORK OF THESE ORGANIZATION AIDS IN MANY OF OUR FUNDRAISING INITIATIVES THROUGHOUT OUR FISCAL YEAR AND THUS CANNOT BE SEPARATELY REPORTED. SCHEDULE G, PART II, LINE 1 THE VIRTUAL GALA EVENT WAS HELD ON OCTOBER 1, 2021 WHICH IS OUTSIDE OF THE 2020 FORM 990 REPORTING PERIOD. THE REVENUE AND EXPENSES INCURRED DURING FY2021 HAVE BEEN CAPTURED IN THE 2020 FORM 990 AND THERE WILL BE ADDITIONAL REVENUE AND EXPENSES REPORTED IN THE 2021 FORM 990 FOR THIS EVENT. 1 NATIONAL MARROW DONOR PROGRAM 500 N 5TH ST MINNEAPOLIS MN 55401 840865803 501(C)(3) 264772 BOOK SALARY PROGRAM SUPPORT NATIONAL MARROW DONOR PROGRAM 500 N 5TH ST MINNEAPOLIS MN 55401 840865803 501(C)(3) 130657 CLINICAL TRIALS SUPPORT NATIONAL MARROW DONOR PROGRAM 500 N 5TH ST MINNEAPOLIS MN 55401 840865803 501(C)(3) 551975 VARIOUS NMDP PROGRAM NATIONAL MARROW DONOR PROGRAM 500 N 5TH ST MINNEAPOLIS MN 55401 840865803 501(C)(3) 1148012 BTMM PATIENT ASSISTANCE NATIONAL MARROW DONOR PROGRAM 500 N 5TH ST MINNEAPOLIS MN 55401 840865803 501(C)(3) 429323 RESEARCH BAYLOR COLLEGE OF MEDICINE PO BOX 4803 HOUSTON TX 77210 741613878 501(C)(3) 74000 RESEARCH/SCHOLAR LITTLE TOKYO SERVICE CENTER 244 SOUTH SAN PEDRO STREET STE 503 LOS ANGELES CA 90012 954444102 501(C)(3) 35612 DONOR RECRUITMENT LIFESHARE BLOOD CENTERS 8910 LINWOOD AVENUE SHREVEPORT LA 71106 720511367 501(C)(3) 28533 VARIOUS PROGRAM JULIE ROGERS GIFT OF LIFE PROGRAM 2390 DOWLEN ROAD BEAUMONT TX 77706 760550450 501(C)(3) 28533 VARIOUS PROGRAM CHILDRENS HOSPITAL CORPORATION 300 LONGWOOD AVENUE BOSTON MA 02115 042774441 501(C)(3) 80000 RESEARCH/SCHOLAR CHILDREN'S RESEARCH INSTITUTE 801 ROEDER ROAD SUITE 500 SILVER SPRING MD 20910 521654453 501(C)(3) 36000 RESEARCH/SCHOLAR DANA-FABER CANCER INSTITUTE PO BOX 414744 BOSTON MA 02241 042263040 501(C)(3) 40000 RESEARCH/SCHOLAR FRED HUTCHINSON CANCER RESEARCH CENTER MAILSTOP LF-272 PO BOX 19024 SEATTLE WA 98109 237156071 501(C)(3) 194000 RESEARCH/SCHOLAR MEMORIAL SLOAN KETTERING CANCER CENTER 633 3RD AVENUE 4TH FLOOR NEW YORK NY 10017 131924236 501(C)(3) 116000 RESEARCH/SCHOLAR UNIVERSITY OF TEXAS MD ANDERSON CANCER CENTER 1515 HOLCOMBE BOULEVARD HOUSTON TX 77030 746001118 501(C)(3) 40000 RESEARCH/SCHOLAR UNIVERSITY NORTH CAROLINA AT CHAPEL HILL PO BOX 402420 ATLANTA GA 30384 566001393 501(C)(3) 80000 RESEARCH/SCHOLAR UNIVERSITY OF ALABAMA 701 20TH STREET SOUTH BIRMINGHAM AL 35294 630649108 501(C)(3) 80000 RESEARCH/SCHOLAR UNIVERSITY OF PITTSBURGH PO BOX 371220 PITTSBURGH PA 15251 250965591 501(C)(3) 50939 RESEARCH/SCHOLAR WASHINGTON UNIVERSITY OF ST LOUIS 600 SOUTH EUCLID AVENUE ST LOUIS MO 63110 430654872 501(C)(3) 80000 RESEARCH/SCHOLAR 15 0 COVID PATIENT ASSISTANCE 540 270000 0 PATIENT TRANSPLANT ASSISTANCE 2160 3751938 0 CLINICAL TRIALS ASSISTANCE 107 180100 0 PATIENT TYPING & SEARCH ASSISTANCE 160 780387 0 DONOR ASSISTANCE 307 282646 0 PART I, LINE 2: PROCEDURE FOR MONITORING THE USE OF GRANT FUNDS INSIDE THE U.S. COVID PATIENT ASSISTANCE, PATIENT TRANSPLANT ASSISTANCE, CLINICAL TRIALS ASSISTANCE, AND PATIENT TYPING & SEARCH ASSISTANCE GRANTS ARE AWARDED BY BTMF PATIENT CARE TEAMS TO ORGANIZATIONS AND INDIVIDUALS THROUGH ONLINE APPLICATIONS. THESE APPLICATIONS ARE TRACKED IN AN ORACLE-BASED SYSTEM AND MONITORED BY THE PATIENT OUTCOMES AND EXPERIENCES TEAM WITHIN NMDP BASED ON PUBLISHED CRITERIA, ALL WITH THE GOAL TO EQUITABLY ADMINISTER TO HELP PATIENTS OVERCOME BARRIERS BEFORE AND AFTER TRANSPLANT. DONOR ASSISTANCE GRANTS ARE AWARDED THROUGH BTMF. THE NMDP DONOR ADVOCACY TEAM REVIEWS ELECTRONIC APPLICATIONS WEEKLY AND DETERMINE ASSISTANCE NEEDS FOR LOST INCOME DURING THE DONATION PROCESS, WITH THE GOAL TO REMOVE FINANCIAL BARRIERS TO DONATION. RECRUITMENT VOLUMES ARE TRACKED THROUGH A CUSTOM-BUILT APPLICATION WITH FUNDING HELPING COVER LAB SERVICE INVOICED COSTS. RESEARCH SCHOLARS SUBMIT SEMI-ANNUAL STATUS REPORTS IN ORDER TO RECEIVE FUNDING. SCHEDULE I, PART II, LINE 1(H): PURPOSE OF GRANT DONOR RECRUITMENT REFERS TO ADDING NEW DONORS TO THE BE THE MATCH REGISTRY. SCHEDULE I, PART III: GRANTS AND OTHER ASSISTANCE TO DOMESTIC INDIVIDUALS SEVERAL GRANTS WERE AVAILABLE IN FY2021 TO ELIGIBLE PATIENTS PRE- AND POST-TRANSPLANT. THESE INCLUDE: THE FAMILY TYPING GRANT (FTG) PAYS FOR THE TYPING OF FIRST-DEGREE RELATIVES NEEDED TO IDENTIFY IF THERE IS A DONOR IN THE FAMILY. SEARCH ASSISTANCE FUNDS (SAF) HELPS PATIENTS START THE SEARCH FOR AN UNRELATED DONOR OR CORD BLOOD UNIT BY GIVING TRANSPLANT CENTERS A GUARANTEE OF PAYMENT FOR SPECIFIC SEARCH AND/OR PROCUREMENT COSTS SHOULD THEY NOT BE COVERED BY INSURANCE. TRANSPLANT SUPPORT ASSISTANCE (TSA) PROVIDES DIRECT FINANCIAL ASSISTANCE TO QUALIFIED FAMILIES BOTH PRE- AND POST-TRANSPLANT. THE TEMPORARY COVID-19 RELIEF GRANT PROVIDED A ONE TIME $500 AWARD FOR PATIENTS WITH FINANCIAL HARDSHIP RELATED TO COVID. THIS GRANT CLOSED IN MAY 2021 AFTER BEING OPEN FOR ONE YEAR. THE JOHN AND CARYN CAMIOLO SURVIVORSHIP GRANT (CAM) PROVIDES DIRECT FINANCIAL ASSISTANCE TO PATIENTS POST-TRANSPLANT WHO ARE ACTIVELY RECEIVING TREATMENT FOR CHRONIC GRAFT-VERSUS-HOST DISEASE. THE CHELL TRAVEL GRANT PROVIDES DIRECT FINANCIAL ASSISTANCE TO PATIENTS WHO NEEDED ASSISTANCE WITH TRAVEL COSTS TO PARTICIPATE IN CLINICAL TRIALS. THE IRA AND DIANA RIKLIS CRISIS GRANT PROVIDES DIRECT FINANCIAL ASSISTANCE TO PATIENTS POST-TRANSPLANT WHO HAVE EXPERIENCED A SIGNIFICANT CRISIS EVENT IMPACTING THEIR ACCESS TO POST-TRANSPLANT CARE. 1 1 0 0 0 0 0 1 0 AMY RONNEBERG CHIEF EXECUTIVE OFFICER 0 646059 0 358924 0 104957 0 25185 0 3276 0 1138401 0 0 C RANDAL MILLS FORMER CEO - THRU 2/2020 0 100063 0 4999 0 649349 0 0 0 3307 0 757718 0 0 JOY KING E.D. BTMF; CHIEF ADVANCEMENT OFFICER 107418 161128 38762 58143 14068 21103 10074 15111 10514 15772 180836 271257 0 0 GINA GRAVES ACTING CFO - THRU 4/2021 0 198041 0 87331 0 24468 0 24870 0 15248 0 349958 0 0 JACQUELINE CHANDONNET DIRECTOR, DEVELOPMENT 144528 0 14389 0 3443 0 11557 0 9913 0 183830 0 0 0 ANGIE FITZGERALD SENIOR DIR., CORPORATE PARTNERSHIPS 132361 0 18202 0 3595 0 0 0 24636 0 178794 0 0 0 STEPHEN STOUT SR. DIR., MAJOR GIFTS-THRU 9/2020 123004 0 3250 0 11380 0 0 0 19197 0 156831 0 0 0 DANIEL LEE DIRECTOR, MAJOR AND PLANNED GIFTS 121637 0 14250 0 2476 0 8092 0 10278 0 156733 0 0 0 KRISTIN SCOTT MANAGER, MAJOR GIFTS 121987 0 9496 0 5822 0 8917 0 7305 0 153527 0 0 0 PART I, LINE 3 TOP MANAGEMENT'S COMPENSATION BTMF USES NMDP'S COMPENSATION COMMITTEE WHICH IS CHARGED WITH SETTING THE COMPENSATION OF NMDP'S CEO. AS REPORTED ON NMDP'S FORM 990, SCHEDULE J, A COMPENSATION COMMITTEE, INDEPENDENT COMPENSATION CONSULTANT, WRITTEN EMPLOYMENT CONTRACT, COMPENSATION SURVEY OR STUDY, AND APPROVAL BY THE BOARD OR COMPENSATION COMMITTEE ARE ALL UTILIZED WHEN DETERMINING COMPENSATION. PLEASE ALSO SEE THE SCHEDULE O, FORM 990, PART VI, SECTION B, LINE 15 NARRATIVE. PART I, LINES 4A-B LINE 4A SEVERANCE PAYMENT THE FOLLOWING INDIVIDUAL LEFT NMDP DURING 2020 AND RECEIVED A SEPARATION PAYMENT DURING CALENDAR YEAR 2020. THE AMOUNT HAS BEEN INCLUDED IN SCHEDULE J, PART II, COLUMN B (III): C. RANDAL MILLS $591,667 LINE 4B SUPPLEMENTAL NONQUALIFIED RETIREMENT PLAN THE ORGANIZATION OFFERS ITS OFFICERS, SENIOR VICE PRESIDENTS, VICE PRESIDENTS, AND DIRECTORS A 457(B) DEFERRED COMPENSATION PLAN (THE "PLAN") CREATED IN ACCORDANCE WITH APPLICABLE PROVISIONS OF THE INTERNAL REVENUE CODE. THE PLAN PERMITS EMPLOYEES TO DEFER A PORTION OF THEIR SALARY UNTIL FUTURE YEARS. THE ACCUMULATED DEFERRED COMPENSATION BALANCE IS NOT AVAILABLE TO EMPLOYEES UNTIL TERMINATION, RETIREMENT, DEATH, OR UNFORESEEABLE EMERGENCY. ALL AMOUNTS OF COMPENSATION DEFERRED UNDER THE PLAN, AND ALL INCOME ATTRIBUTABLE TO THOSE AMOUNTS, ARE (UNTIL PAID OR MADE AVAILABLE TO THE EMPLOYEE OR OTHER BENEFICIARY) SOLELY THE PROPERTY OF THE ORGANIZATION, AND THE ORGANIZATION HAS ALL THE RELATED RIGHTS OF OWNERSHIP (NOT RESTRICTED TO THE PAYMENT OF BENEFITS UNDER THE PLAN), SUBJECT ONLY TO THE CLAIM OF THE ORGANIZATION'S GENERAL CREDITORS. PARTICIPANTS' RIGHTS UNDER THE PLAN ARE EQUAL TO THOSE OF GENERAL CREDITORS OF THE ORGANIZATION IN AN AMOUNT EQUAL TO THE FAIR MARKET VALUE OF THE DEFERRED ACCOUNT FOR EACH PARTICIPANT. THE RELATED ASSETS AND LIABILITIES ARE REPORTED AT FAIR MARKET VALUE BASED ON QUOTED MARKET PRICES AND ARE INCLUDED WITHIN DEFERRED COMPENSATION FUNDS AND DEFERRED COMPENSATION PAYABLE IN THE CONSOLIDATED STATEMENTS OF FINANCIAL POSITION. THE ORGANIZATION OFFERS A SUPPLEMENTAL BENEFITS PLAN (THE SUPPLEMENTAL PLAN) FOR ITS OFFICERS, SENIOR VICE PRESIDENTS AND VICE PRESIDENTS. ALL SUPPLEMENTAL PLAN PARTICIPANTS RECEIVED LIFE INSURANCE, DISABILITY SALARY CONTINUATION, LONG-TERM DISABILITY AND LONG-TERM CARE INSURANCE. THE SUPPLEMENTAL PLAN WAS CREATED IN ACCORDANCE WITH APPLICABLE PROVISIONS OF THE INTERNAL REVENUE CODE (IRC SEC 7702) WHEREBY AFTER-TAX CONTRIBUTIONS INTO THE PLAN ACCUMULATE WITHOUT TAXATION AND MAY BE DISTRIBUTED WITHOUT TAXATION USING A COMBINATION OF TAX-FREE WITHDRAWALS AND LOANS. CONTRIBUTIONS WILL RESULT IN CURRENT INCOME TAXATION. PLAN BALANCES ARE PERSONALLY OWNED BY THE PLAN PARTICIPANTS IMMEDIATELY AND ARE NOT SUBJECT TO A RISK OF FORFEITURE; AS SUCH, THE PLAN ASSETS ARE NOT RECORDED ON THE ORGANIZATION'S FINANCIAL STATEMENTS. THE SUPPLEMENTAL PLAN ALSO PROVIDES FOR ADDITIONAL LIFE INSURANCE UP TO $750,000. EFFECTIVE OCTOBER 1, 2020, THE ORGANIZATION OFFERS A LONG-TERM INCENTIVE PLAN (LTIP) FOR ITS EXECUTIVES, REPLACING THE PREVIOUS GUARANTEED EXECUTIVE BENEFIT ALLOWANCE AND TIME OFF CONVERSION TO THE SUPPLEMENTAL 457(B) PLAN. THE LTIP IS A VARIABLE COMPENSATION PROGRAM THAT LINKS EXECUTIVE COMPENSATION TO ACHIEVEMENT OF LONG-TERM PERFORMANCE RESULTS AND STRATEGIC INITIATIVES. THE LTIP IS UNFUNDED AND PARTICIPANTS' ESTIMATED EARNINGS UNDER THE PROGRAM ARE RECORDED AS A LIABILITY WITHIN ACCRUED COMPENSATION AND BENEFITS FOR THE SHORT-TERM PORTION AND DEFERRED COMPENSATION PAYABLE FOR THE LONG-TERM PORTION IN THE CONSOLIDATED STATEMENT OF FINANCIAL POSITION, UNTIL PAID OUT. PART I, LINE 7 EMPLOYEE INCENTIVE PLAN PAYMENTS EMPLOYEE ANNUAL INCENTIVE PLAN PAYMENTS ARE DETERMINED EACH YEAR AS PART OF THE PERFORMANCE EVALUATION COMPLETED BY HUMAN RESOURCES IN COLLABORATION WITH THE INDIVIDUAL'S MANAGER. THE ANNUAL INCENTIVE PLAN IS DETERMINED BY TAKING INTO ACCOUNT THE RESULTS OF THE ORGANIZATION'S OPERATING METRICS AND EACH DEPARTMENT'S GOALS. THE LTIP IS AN INCENTIVE PLAN THAT LINKS OFFICER'S, SENIOR VICE PRESIDENT'S AND VICE PRESIDENT'S COMPENSATION TO ACHIEVEMENT OF LONG-TERM PERFORMANCE RESULTS AND STRATEGIC INITIATIVES OVER A THREE-YEAR PERFORMANCE PERIOD. INITIAL AWARDS INCLUDED A TWO-YEAR PERFORMANCE PERIOD TO TRANSITION FROM THE PRIOR PROGRAM. LTIP AWARDS WILL BE CALCULATED USING THE BASE SALARY IN EFFECT ON THE LAST DAY OF THE PERFORMANCE PERIOD, MULTIPLIED BY THE LTIP TARGET PERCENTAGE ESTABLISHED AT THE BEGINNING OF EACH PERFORMANCE PERIOD, MULTIPLIED BY FINAL EXECUTIVE OPERATING PERFORMANCE INDEX ("EXECUTIVE OPI") RESULTS FOR THE PERFORMANCE PERIOD, SUBJECT TO ACHIEVING THRESHOLD PERFORMANCE REQUIREMENTS. X 13 114076 FMV X 4 752 FMV 0 1 0 PART I, COLUMN (B): METHOD USED BTMF USES THE NUMBER OF CONTRIBUTIONS AS THE METHOD FOR DETERMINING THE AMOUNT IN COLUMN (B). FORM 990, PART I, LINE 6 TOTAL NUMBER OF VOLUNTEERS THE NUMBER OF VOLUNTEERS INCREASED COMPARED TO TAX YEAR ENDED SEPTEMBER 30, 2020 PRIMARILY DUE TO AN INCREASE IN VOLUNTEERS REPORTING THEIR HOURS UTILIZING OUR VOLUNTEER PLATFORM AND MORE OPPORTUNITIES. FORM 990, PART III, LINE 1, ELABORATION OF MISSION STATEMENT BE THE MATCH IS A GLOBAL LEADER WORKING EVERY DAY TO SAVE LIVES THROUGH CELLULAR THERAPY. FOR PEOPLE WITH LIFE-THREATENING BLOOD CANCERS LIKE LEUKEMIA AND LYMPHOMA OR OTHER BLOOD DISORDERS LIKE SICKLE CELL, A CURE EXISTS. BE THE MATCH CONNECTS PATIENTS WITH A MATCHING DONOR FOR A LIFE-SAVING BLOOD STEM CELL TRANSPLANT. THE BE THE MATCH REGISTRY IS THE MOST DIVERSE REGISTRY IN THE WORLD AND INCLUDES BOTH ADULT DONORS WILLING TO DONATE TO A STRANGER IN NEED AND STORED CORD BLOOD UNITS. IN ADDITION, BE THE MATCH PROVIDES PATIENTS AND THEIR FAMILIES ONE-ON-ONE SUPPORT, EDUCATION, AND GUIDANCE BEFORE, DURING AND AFTER TRANSPLANT. BE THE MATCH IS ALSO A GLOBAL LEADER IN RESEARCH THROUGH THE CIBMTR (CENTER FOR INTERNATIONAL BLOOD AND MARROW TRANSPLANT RESEARCH)A COLLABORATION WITH MEDICAL COLLEGE OF WISCONSIN, INVESTING IN AND MANAGING RESEARCH STUDIES THAT IMPROVE PATIENT OUTCOMES AND ADVANCE THE FUTURE OF CARE. THE BE THE MATCH FOUNDATION SUPPORTS PATIENTS BEFORE, DURING AND AFTER TRANSPLANT BY RAISING FUNDS TO: -ADD NEW POTENTIAL DONORS TO THE REGISTRY -HELP PAY UNINSURED PATIENT COSTS ASSOCIATED WITH TRANSPLANT -FUND LIFE-SAVING RESEARCH THROUGH THE CIBMTR. AS THE WORLD'S LEADING NONPROFIT ORGANIZATION FOCUSED ON SAVING LIVES THROUGH CELLULAR THERAPY, BE THE MATCH CONTINUES TO IMPROVE ACCESS TO TRANSPLANT BY LEADING EFFORTS TO REMOVE BARRIERS TO TREATMENT AND STRENGTHEN OUR ABILITY TO MEET THE GROWING NEED. THROUGH OUR GLOBAL NETWORK, WE CONNECT CENTERS AND PATIENTS TO BEST CELL THERAPY OPTION - FROM BLOOD STEM CELL TRANSPLANT TO A NEXT-GENERATION THERAPY - AND COLLABORATE WITH CELL AND GENE THERAPY COMPANIES TO SUPPORT THERAPY DEVELOPMENT AND DELIVERY THROUGH BE THE MATCH BIOTHERAPIES. THE DEFINITION FOR THE BE THE MATCH TRUE NORTH GOAL OF LIVES EQUALS THE NUMBER OF PATIENTS WHO RECEIVE BE THE MATCH-FACILITATED CELL THERAPIES. AS THE USE OF THERAPIES EXPANDS, SO HAS BE THE MATCH'S WORK IN UNRELATED AND RELATED DONOR TRANSPLANTS AND BIOTHERAPIES AUTOLOGOUS (DONATION FOR SELF), ALLOGENEIC (DONATION FOR NON-SPECIFIC PATIENT) AND CLINICAL TRIALS. THE VISION OF BE THE MATCH IS FOR EVERY PATIENT TO RECEIVE A TRANSPLANT NO MATTER THEIR ETHNIC BACKGROUND. EVERY YEAR, MORE PATIENTS ARE RECEIVING THE LIFE-SAVING MARROW OR CORD BLOOD TRANSPLANT THEY NEED BECAUSE OF THE COMMUNITY OF DONORS, VOLUNTEERS, HEALTH CARE PROFESSIONALS, RESEARCHERS AND FINANCIAL SUPPORTERS. FORM 990, PART VI, SECTION A, LINE 2 REPORTABLE RELATIONSHIPS THE FOLLOWING DIRECTORS OF BTMF HAVE A REPORTABLE BUSINESS RELATIONSHIP: ANNE MCGEORGE AND AMY RONNEBERG (MS. MCGEORGE AND MS. RONNEBERG WERE BOTH VOTING DIRECTORS OF MAGENTA THERAPEUTICS DURING FY2021) FORM 990, PART VI, SECTION A, LINE 6 MEMBERS OR STOCKHOLDERS NMDP IS THE SOLE CORPORATE MEMBER OF BTMF. FORM 990, PART VI, SECTION A, LINE 7A MEMBERS OR STOCKHOLDERS WHO MAY ELECT GOVERNING BODY THE NMDP BOARD ELECTS THE BOARD OF DIRECTORS OF BTMF. FORM 990, PART VI, SECTION A, LINE 7B MEMBERS OR STOCKHOLDERS WHO MAY APPROVE DECISIONS THE NMDP BOARD APPROVES THE ACTIONS OF BTMF. FORM 990, PART VI, SECTION B, LINE 11B FORM 990 REVIEW PROCESS THE ORGANIZATION CONTRACTED WITH THE OUTSIDE PUBLIC ACCOUNTING FIRM, GRANT THORNTON LLP, TO PREPARE THE FORM 990. PREPARING THE DETAILS AND SUPPORTING REPORTS FOR THE RETURN IS A COLLABORATIVE EFFORT AMONG A SMALL GROUP OF INDIVIDUALS IN THE FINANCIAL REPORTING & COMPLIANCE AREA OF FINANCE, INTERNAL AUDIT AND HUMAN RESOURCES. THAT WORK IS THEN REVIEWED BY THE SENIOR MANAGER OF FINANCIAL REPORTING PRIOR TO SENDING TO GRANT THORNTON LLP; THE CHIEF LEGAL OFFICER ALSO REVIEWS THE GOVERNANCE SECTIONS PRIOR TO SENDING TO GRANT THORNTON LLP. ONCE A DRAFT IS RECEIVED BACK FROM GRANT THORNTON LLP, IT IS REVIEWED BY THE TEAM THAT PULLED THE DETAILS TOGETHER, NMDP CHIEF FINANCIAL OFFICER AND BTMF EXECUTIVE DIRECTOR. A COPY OF THE RETURN IS PROVIDED TO THE NMDP AUDIT AND FINANCE COMMITTEE AND BTMF BOARD OF DIRECTORS PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C CONFLICT OF INTEREST POLICY MONITORING & ENFORCEMENT THE CONFLICT OF INTEREST POLICY STATES THE FOLLOWING: "THE EXISTENCE OF AN ACTUAL OR POTENTIAL CONFLICT OF INTEREST TURNS ON THE SPECIFIC FACTS AND CIRCUMSTANCES IN EACH CASE. IF A MEMBER HAS AN INTEREST WHICH MAY CONFLICT WITH THOSE OF THE ORGANIZATIONS, HE/SHE/THEY MUST IMMEDIATELY DISCLOSE THE MATTERS AND DISCUSS THEM FULLY AND FRANKLY WITH THE APPLICABLE ORGANIZATION'S FULL BOARD OR ITS EXECUTIVE COMMITTEE, AS SET FORTH IN DETAIL BELOW. A MEMBER MUST NOT PARTICIPATE IN ANY MATTER IN WHICH THAT MEMBER MAY HAVE AN ACTUAL OR POTENTIAL CONFLICT OF INTEREST WITHOUT THE EXPRESS APPROVAL OF THE APPLICABLE ORGANIZATION'S BOARD OF DIRECTORS OR EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS (EXECUTIVE COMMITTEE). ALL MEMBERS MUST DISCLOSE TO THE APPLICABLE ORGANIZATION'S BOARD OF DIRECTORS OR EXECUTIVE COMMITTEE ALL CONFLICTS OF INTEREST AND REPORTABLE RELATIONSHIPS, AND MUST ANNUALLY COMPLETE AND SUBMIT THE CONFLICT OF INTEREST QUESTIONNAIRE WHICH IS REQUIRED BY THIS POLICY. WHENEVER IN THE COURSE OF EVENTS A MEMBER'S CIRCUMSTANCES CHANGE SUCH THAT THE MEMBER KNOWS OR HAS REASON TO BELIEVE THAT THE MEMBER MAY HAVE AN ACTUAL OR PERCEIVED CONFLICT OF INTEREST, SUCH MEMBER SHALL PROMPTLY DISCLOSE THE POTENTIAL CONFLICT TO THE APPLICABLE ORGANIZATION'S BOARD OF DIRECTORS OR EXECUTIVE COMMITTEE. FOR THE PURPOSES OF THIS ARTICLE, A MEMBER MAY FORMALLY DISCLOSE A CONFLICT OR REPORTABLE RELATIONSHIP TO THE CHIEF EXECUTIVE OFFICER (CEO) OF NMDP, THE BTMF EXECUTIVE DIRECTOR AND SENIOR VICE PRESIDENT (SVP) OF PHILANTHROPY, OR THE NMDP CHIEF LEGAL OFFICER (CLO), AS APPLICABLE, WHO SHALL INFORM THE APPLICABLE ORGANIZATION'S BOARD OF DIRECTORS OR EXECUTIVE COMMITTEE FOR RESOLUTION. AS NOTED HEREIN, IF THE POTENTIAL CONFLICT INVOLVES A DIRECTOR OR COMMITTEE MEMBER, THAT DIRECTOR OR COMMITTEE MEMBER SHALL NOT PARTICIPATE IN OR VOTE UPON SUCH MATTERS UNTIL THE QUESTION OF THE EXISTENCE OF THE CONFLICT OF INTEREST HAS BEEN RESOLVED IN ACCORDANCE WITH THIS POLICY. LIKEWISE, AN OFFICER OR KEY EMPLOYEE MAY NOT BECOME SUBSTANTIALLY INVOLVED IN DECISION-MAKING INVOLVING ANY COVERED LITIGATION, CONTRACT OR TRANSACTION UNTIL THE RESOLUTION OF THE MATTER IN ACCORDANCE WITH THIS POLICY." FORM 990, PART VI, SECTION B, LINE 15 PROCESS FOR DETERMINING COMPENSATION THE BTMF CHIEF ADVANCEMENT OFFICER REPORTS DIRECTLY TO THE NMDP CEO AND IS CONSIDERED A KEY EMPLOYEE PER THE IRS DEFINITION DURING FY2021. THE COMPENSATION OF THE BTMF CHIEF ADVANCEMENT OFFICER IS REVIEWED, EVALUATED, AND SET IN ACCORDANCE WITH THE NMDP BYLAWS AND COMPENSATION COMMITTEE CHARTER. THE NMDP BYLAWS STATE: "THE COMPENSATION COMMITTEE SHALL BE COMPRISED ONLY OF VOTING DIRECTORS AND SHALL INCLUDE THE CHAIR OF THE BOARD AND AT LEAST ONE (1) NON-OFFICER BOARD MEMBER AS VOTING COMMITTEE MEMBERS. THE COMPENSATION COMMITTEE SHALL REVIEW AND EVALUATE THE OVERALL COMPENSATION AND BENEFIT STRUCTURE OF THE CORPORATION AND SHALL HAVE SUCH OTHER AUTHORITY AND RESPONSIBILITIES AS SET FORTH IN THE COMPENSATION COMMITTEE CHARTER." THE COMPENSATION COMMITTEE CHARTER STATES: "THE COMMITTEE SHALL REVIEW AND EVALUATE THE OVERALL COMPENSATION AND BENEFIT STRUCTURE OF THE CORPORATION, AND APPROVE AND ADOPT A COMPENSATION PHILOSOPHY AND PRINCIPLES CONSISTENT WITH THE CORPORATION'S NOT-FOR-PROFIT STATUS (THE COMPENSATION PHILOSOPHY AND PRINCIPLES). THE COMMITTEE SHALL CONDUCT THE CHIEF EXECUTIVE OFFICER (CEO) PERFORMANCE EVALUATION. THE COMMITTEE SHALL MAKE CEO TOTAL COMPENSATION AND BENEFIT RECOMMENDATIONS TO THE EXECUTIVE COMMITTEE, CONSISTENT WITH THE COMPENSATION PHILOSOPHY AND PRINCIPLES. IN MAKING COMPENSATION AND BENEFIT RECOMMENDATIONS FOR THE CEO, THE COMMITTEE SHALL UTILIZE, AMONG OTHER THINGS, COMPARABILITY DATA FOR COMPLIANCE WITH IRS INTERMEDIATE SANCTION PROVISIONS SO AS TO ALLOW THE CORPORATION TO TAKE ADVANTAGE OF THE REBUTTABLE PRESUMPTION OF REASONABLENESS. ON A PERIODIC BASIS, THE COMMITTEE SHALL OBTAIN COMPARABILITY DATA FROM AN INDEPENDENT COMPENSATION CONSULTANT. IN ADDITION, THE COMMITTEE SHALL ADVISE THE CEO IN HIS/HER/THEIR EVALUATION OF AND DECISIONS REGARDING THE COMPENSATION OF AND BENEFITS FOR SENIOR CORPORATION EMPLOYEES, AS WELL AS THE PRESIDENT (OR EQUIVALENT LEADER) OF ANY SUBSIDIARY OF THE CORPORATION REPORTING TO THE CEO (TOGETHER, SENIOR LEADERSHIP). IN ADVISING THE CEO IN MAKING HIS/HER/THEIR COMPENSATION AND BENEFIT DECISIONS FOR SENIOR LEADERSHIP, THE COMMITTEE SHALL ENSURE THAT SUCH DECISIONS ARE CONSISTENT WITH THE COMPENSATION PHILOSOPHY AND PRINCIPLES, AND UTILIZE, AMONG OTHER THINGS, COMPARABILITY DATA FOR COMPLIANCE WITH IRS INTERMEDIATE SANCTION PROVISIONS. IF DECISIONS PROPOSED BY THE CEO ARE OUTSIDE THE PARAMETERS OF THE COMPENSATION PHILOSOPHY AND PRINCIPLES, THE CEO MUST OBTAIN THE COMMITTEE'S APPROVAL PRIOR TO IMPLEMENTATION." FORM 990, PART VI, SECTION C, LINE 19 HOW DOCUMENTS ARE MADE AVAILABLE TO THE PUBLIC THE CONFLICT OF INTEREST POLICY, ARTICLES OF INCORPORATION AND CONSOLIDATED AUDITED FINANCIAL STATEMENTS AND ADDITIONAL CONSOLIDATING INFORMATION ARE ALL MADE AVAILABLE TO THE PUBLIC UPON REQUEST. THE CONSOLIDATED AUDITED FINANCIAL STATEMENTS ARE ALSO AVAILABLE ON OUR WEBSITE. SUMMARY FINANCIAL STATEMENTS ARE ALSO INCLUDED IN OUR ANNUAL REPORT, WHICH IS MAILED TO KEY STAKEHOLDERS AND POSTED ON OUR WEBSITE. ADDITIONALLY, ARTICLES OF INCORPORATION ARE AVAILABLE AT THE MN OFFICE OF THE SECRETARY OF STATE, AND CONSOLIDATED AUDITED FINANCIAL STATEMENTS MAY BE OBTAINED AT THE MN OFFICE OF THE ATTORNEY GENERAL. FORM 990, PART VII, SECTION A, LINE 1A, COLUMN B HOURS FOR RELATED ORGANIZATION THE HOURS LISTED ON THE 990 PART VII ARE BASED ON A 50 HOUR WEEK THAT THESE INDIVIDUALS DEVOTED TO NMDP AND BTMF IN TOTAL DURING THE YEAR. FORM 990, PART IX, LINE 24D FUNCTIONAL EXPENSE GRANT PROGRAM PROCEDURE UPDATE THE U.S. SEARCH ASSISTANCE GRANTS WERE CREATED TO REMOVE BARRIERS FOR PATIENTS TO GET TRANSPLANTS MORE QUICKLY AS INSURANCE APPROVAL WAS A SIGNIFICANT BARRIER TO STARTING THE SEARCH PROCESS. THE SEARCH ASSISTANCE FUND GRANT REQUIRED AN APPLICATION AND AN APPROVAL, WHICH WOULD REIMBURSE UP TO $20,000 PER PATIENT DEPENDING ON THE VARIOUS SEARCH ACTIVITIES THAT WERE APPROVED. THIS GRANT WOULD BE APPROVED AND EXPIRE AFTER ONE YEAR IF IT WAS NOT USED BY THE PATIENT. MANY TIMES, INSURANCE COVERAGE WAS PROVIDED SO ONLY A PORTION OF THE AMOUNT AWARDED WAS ACCRUED SINCE THE INCEPTION OF THIS PROGRAM MANY YEARS AGO. AN ACCRUED LIABILITY CAPTURED THE COMMITMENT TO PAY THESE GRANTS UP TO ONE YEAR. LATE IN FY2020, THE ORGANIZATION REMOVED THE PRE-APPROVAL APPLICATION FOR SEARCH ASSISTANCE FUNDS. IT CAN NOW BE ASSUMED THAT ALL PATIENTS WILL RECEIVE A BLANKET APPROVAL FOR SEARCH/PROCUREMENT ACTIVITIES UP TO $20,000. THESE ARE THE SEARCH/PROCUREMENT ACTIVITIES THAT NMDP CHARGES TRANSPLANT CENTERS. REIMBURSEMENT WILL NOW REQUIRE THE INSURANCE APPEAL DENIAL LETTER. THE COMMITMENT TO PROVIDE THESE FUNDS IS NO LONGER GUARANTEED PRIOR TO KNOWING IF/WHEN INSURANCE WILL DENY COVERAGE SO IT IS NO LONGER RECORDED AS AN OUTSTANDING ESTIMATED EXPENSE. FORM 990, PART XI, LINE 9: ALLOWANCE FOR DOUBTFUL ACCOUNTS ADJUSTMENT -50,000. NATIONAL MARROW DONOR PROGRAM 500 N 5TH ST MINNEAPOLIS MN 554011206 840865803 TRANSPLANTS CO 501(C)(3) LINE 10 N/A 0 BE THE MATCH MX AC VERACRUZ AV 93 101 PISO CUIDAD DE MEXICO CONDESA MX RECRUITMENT MX N/A N/A NMDP 0 BE THE MATCH AUXILIARY SERVICES LLC 500 N 5TH ST MINNEAPOLIS MN 554011206 811248190 CELLULAR THERAPY MN NMDP C 0 CLEAR INSURANCE LTD 62 FORUM LN 3RD FL PO BOX 30600 GRAND CAYMAN CJ KY1-1203 840865803 CAPTIVE INSURANCE CJ NMDP C 0 0 1 1 0 0 0 0 0 0 0 0 0 0 1 1 0 1 0 0