2022-05-10T08:53:16-05:00 2021-06-30 521392008 GELMAN ROSENBERG & FREEDMAN 4550 MONTGOMERY AVE SUITE 800N BETHESDA MD 208142930 990 2020-07-01 824218205 ASH REGISTRY INC ASHR 2027760544 2021 L STREET NW NO 900 WASHINGTON DC 20036 MATTHEW GERTZOG EXECUTIVE DIRECTOR 2027760544 2022-05-10 1 MATTHEW GERTZOG 999009999 RICHARD J LOCASTRO CPA P00288314 3019519090 2 AAL1 IAL1 2020 2022-09-23 18:48:47Z ASH RESEARCH COLLABORATIVE MATTHEW GERTZOG 2021 L STREET NW NO 900 WASHINGTON DC 20036 1111574 0 X WWW.ASHRESEARCHCOLLABORATIVE.ORG X 2017 DC SEE PART III, LINE 1. 13 12 0 13 0 0 0 631333 0 500000 0 0 0 -19759 0 1111574 0 0 0 0 1976400 2054921 0 0 0 6554030 5333290 8530430 7388211 -8530430 -6276637 1091496 2547175 13756057 21488373 -12664561 -18941198 X THE ASH RESEARCH COLLABORATIVE (ASH RC) WAS ESTABLISHED BY THE AMERICAN SOCIETY OF HEMATOLOGY IN 2017 TO FOSTER COLLABORATIVE PARTNERSHIPS TO ACCELERATE PROGRESS IN HEMATOLOGY, WITH THE ULTIMATE GOAL OF IMPROVING THE LIVES OF PEOPLE AFFECTED BY BLOOD DISEASES. THE FOUNDATION OF THE ASH RC IS ITS DATA REPOSITORY, THE DATA HUB. THIS TECHNOLOGY PLATFORM FACILITATES THE EXCHANGE OF INFORMATION BY AGGREGATING, AND MAKING AVAILABLE FOR INQUIRY, RESEARCH-GRADE DATA ON HEMATOLOGIC DISEASES. THE SECOND COMPONENT OF THE ASH RC IS THE SICKLE CELL DISEASE (SCD) CLINICAL TRIALS NETWORK. THE GOAL OF THE NETWORK IS TO CREATE A NETWORK OF COLLABORATING CLINICAL RESEARCH SITES TO ACCELERATE AND OPTIMIZE CLINICAL TRIALS RESEARCH IN SCD AND IMPROVE OUTCOMES FOR INDIVIDUALS LIVING WITH SICKLE CELL DISEASE. 0 0 3646869 500000 THE ASH RC DATA HUB WAS CREATED TO FACILITATE THE SHARING OF DATA ON BENIGN AND MALIGNANT HEMATOLOGIC CONDITIONS IN SUPPORT OF SCIENTIFIC INQUIRY AND DISCOVERY. AS A MAJOR INITIATIVE WITHIN ASH RC, THE DATA HUB AIMS TO CREATE THE LARGEST SHARED INFORMATION RESOURCE WITHIN THE GLOBAL HEMATOLOGY COMMUNITY. THE DATA HUB IS CURRENTLY COLLECTING DATA ON THE NOVEL CORONAVIRUS (COVID-19) AND ITS IMPACT ON INDIVIDUALS LIVING WITH HEMATOLOGIC CONDITIONS (COVID-19 REGISTRY), MULTIPLE MYELOMA AND SICKLE CELL DISEASE. THE LONG-TERM GOAL OF THE ASH RC IS TO ADDRESS THE ENTIRE SPECTRUM OF MALIGNANT AND NONMALIGNANT HEMATOLOGIC DISEASES, WHICH MEANS THE DATA HUB WILL EXPAND ITS SCOPE ONCE THESE INITIAL EFFORTS HAVE REACHED MATURITY. CURRENTLY, THE DATA HUB HOUSES DATA ON MORE THAN 3,000 PATIENTS WITH SCD AND 2,000 PATIENTS WITH MULTIPLE MYELOMA. 2282194 THE ASH RC SICKLE CELL DISEASE CLINICAL TRIALS NETWORK WAS LAUNCHED WITH THE MISSION OF IMPROVING OUTCOMES FOR INDIVIDUALS WITH SICKLE CELL DISEASE (SCD) BY EXPEDITING THE DEVELOPMENT OF TREATMENTS AND FACILITATING INNOVATION IN CLINICAL TRIAL RESEARCH. THE NETWORK IS AN UNPRECEDENTED NATIONAL EFFORT TO STREAMLINE OPERATIONS AND FACILITATE DATA SHARING TO EXPEDITE THE DEVELOPMENT OF NEW TREATMENTS FOR THIS RARE DISEASE. 5929063 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 1 0 1 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 13 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 X 13 12 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 0 0 0 X TIFFANY AKE 2027760544 2021 L STREET NW SUITE 900 WASHINGTON DC 20036 X STEPHANIE LEE PRESIDENT (THROUGH 12/20) 2.00 2.00 X X 0 11205 0 MARTIN S TALLMAN PRES.-ELECT TO PRES. (EFF 01/21) 2.00 2.00 X X 0 1000 0 JANE N WINTER VP TO PRES.-ELECT (EFF. 01/21) 2.00 2.00 X X 0 0 0 ROBERT A BRODSKY SEC. TO VICE PRES. (EFF. 01/21) 2.00 2.00 X X 0 12423 0 MARK CROWTHER TREASURER 2.00 2.00 X X 0 0 0 CYNTHIA E DUNBAR COUNCILLOR TO SEC. (EFF. 01/21) 2.00 2.00 X X 0 0 0 BETTY PACE COUNCILLOR (BEG. 01/21) 2.00 2.00 X 0 0 0 ARNOLD GANSER COUNCILLOR 2.00 2.00 X 0 0 0 JOHN C BYRD COUNCILLOR (THROUGH 12/20) 2.00 2.00 X 0 0 0 AGNES LEE COUNCILLOR 2.00 2.00 X 0 0 0 JOSEPH MIKHAEL COUNCILLOR 2.00 2.00 X 0 9000 0 BELINDA AVALOS COUNCILLOR 2.00 2.00 X 0 0 0 BOB LOWENBERG COUNCILLOR 2.00 2.00 X 0 0 0 ALLISON LOREN COUNCILLOR 2.00 2.00 X 0 0 0 JAMILE M SHAMMO COUNCILLOR (BEG. 01/21) 2.00 2.00 X 0 0 0 MATTHEW GERTZOG DEPUTY EXECUTIVE DIRECTOR 18.00 17.00 X 0 504996 54954 ROBERT PLOVNICK CHIEF MEDICAL QUALITY OFFICER 18.00 17.00 X 0 399105 54025 CHARLES CHESSON CHIEF PROF. DEV & DIVERSITY OFFICER 35.00 X 0 303754 49152 KATHLEEN HEWITT DIRECTOR, DATA HUB 35.00 X 0 302552 29322 MICHELLE WALSER DEPUTY DIRECTOR, OPERATIONS ASH RC 35.00 X 0 182641 44994 LOUIS GRUE SR. MANAGER, CLINICAL TRIALS OP. 35.00 X 0 161845 19024 0 1888521 251471 0 0 1 0 PROMETHEUS RESEARCH PO BOX 41125 SAN JOSE CA 95160 SOFTWARE DEVELOPMENT AND DATA MANAGEMENT 1926864 GEEKHIVE 28 CHURCH ST SUITE 2A WARWICK NY 10990 IT CONSULTING 498750 BREAKTHROUGH HEALTHCARE 3005 WESTCHESTER AVE ELLICOT CITY MD 21043 DATA INFO./ANALYTICS & GRANT MGMT 231500 MARY ANN FALLON 6 LITCHFORD ROAD CHAPEL HILL NC 27514 CLINICAL TRIALS OPERATIONS EXPERT 167138 POWERS PYLES SUTTER & VERVILLE 1501 M STREET NW 7TH FLOOR WASHINGTON DC 20005 LEGAL SERVICES 143265 7 431333 200000 631333 DATA ANALYSIS 900099 500000 500000 500000 INCOME ADJUSTMENT 900099 -19759 -19759 -19759 1111574 500000 0 -19759 275614 256971 18643 1437569 1340332 97237 64726 53782 10944 149317 126089 23228 127695 109198 18497 980000 980000 193595 193595 414 414 30721 28733 1988 -1408 -1553 145 14230 14230 3927398 3646320 281078 24477 24477 119650 119650 DUES & SUBSCRIPTIONS 41674 41674 EQUIPMENT 1347 1347 STAFF DEVELOPMENT 1148 1148 MISCELLANEOUS 44 42 2 7388211 5929063 1459148 0 1006238 1334526 985573 85258 1518 250035 24477 0 225558 1091496 2547175 375048 720170 13381009 20768203 13756057 21488373 X -12664561 -18941198 -12664561 -18941198 1091496 2547175 -6276637 0 X 0 1 X 1 0 X X 1 AMERICAN SOCIETY OF HEMATOLOGY INC 237080568 10 1 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 250035 24477 225558 225558 DUE TO ASH 20768203 20768203 X 1111574 0 1111574 0 1111574 7388211 0 7388211 0 7388211 PART X, LINE 2: FOR THE YEARS ENDED JUNE 30, 2021 AND 2020, THE SOCIETY HAS DOCUMENTED ITS CONSIDERATION OF FASB ASC 740-10, INCOME TAXES, THAT PROVIDES GUIDANCE FOR REPORTING UNCERTAINTY IN INCOME TAXES AND HAS DETERMINED THAT NO MATERIAL UNCERTAIN TAX POSITIONS QUALIFY FOR EITHER RECOGNITION OR DISCLOSURE IN THE CONSOLIDATED FINANCIAL STATEMENTS. 0 0 0 0 0 0 0 0 0 MATTHEW GERTZOG DEPUTY EXECUTIVE DIRECTOR 0 467612 0 37384 0 0 0 28500 0 26454 0 559950 0 0 ROBERT PLOVNICK CHIEF MEDICAL QUALITY OFFICER 0 394105 0 5000 0 0 0 26821 0 27204 0 453130 0 0 CHARLES CHESSON CHIEF PROF. DEV & DIVERSITY OFFICER 0 303754 0 0 0 0 0 28500 0 20652 0 352906 0 0 KATHLEEN HEWITT DIRECTOR, DATA HUB 0 302552 0 0 0 0 0 10500 0 18822 0 331874 0 0 MICHELLE WALSER DEPUTY DIRECTOR, OPERATIONS ASH RC 0 182641 0 0 0 0 0 18479 0 26515 0 227635 0 0 LOUIS GRUE SR. MANAGER, CLINICAL TRIALS OP. 0 161845 0 0 0 0 0 10939 0 8085 0 180869 0 0 PART I, LINE 3 ASH RC RELIED ON ASH, A RELATED ORGANIZATION, TO DETERMINE COMPENSATION. ASH USED THE FOLLOWING METHODS TO DETERMINE COMPENSATION: - INDEPENDENT COMPENSATION CONSULTANT - COMPENSATION SURVEY OR STUDY - APPROVAL BY THE BOARD OR COMPENSATION COMMITTEE - FORM 990 OF OTHER ORGANIZATIONS - COMPENSATION COMMITTEE FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 WAS PREPARED BY THE OUTSIDE ACCOUNTANTS AND REVIEWED FIRST BY THE CHIEF FINANCIAL OFFICER, AND THEN BY THE EXECUTIVE DIRECTOR. IT WAS THEN SENT TO THE ENTIRE BOARD PRIOR TO FILING WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C ASH RC'S CONFLICT OF INTEREST POLICY QUESTIONNAIRE IS FILLED OUT ELECTRONICALLY BY ALL BOARD MEMBERS AND OFFICERS. BEFORE EACH BOARD OR COMMITTEE MEETING A MEMBER IS PUT IN CHARGE OF REVIEWING ALL CONFLICT OF INTEREST STATEMENTS FOR THE MEMBERS ATTENDING. FURTHERMORE, MEMBERS ARE ASKED TO DISCLOSE ANY CHANGES BEFORE EVERY MEETING. WHEN AN ASH RC MEMBER HAS A CONFLICT, S/HE WILL NOT: 1. TAKE ANY ACTION ON BEHALF OF ASH CONCERNING THE SUBJECT IN CONFLICT OR ANY ISSUE RELEVANT TO THE SUBJECT IN CONFLICT; 2. PARTICIPATE IN DISCUSSIONS ON THE SUBJECT WITHOUT FULL DISCLOSURE; 3. PARTICIPATE IN DECISION-MAKING DISCUSSIONS OR CAST A VOTE; 4. IMPLY THAT HE/SHE IS ACTING ON BEHALF OF ASH RC WHEN DISCUSSING THE RELEVANT SUBJECT WITH THIRD PARTIES; OR 5. FAIL TO CLARIFY WITH THIRD PARTIES WITH WHOM HE/SHE DEALS ON THE RELEVANT SUBJECT THAT HE/SHE IS NOT ACTING ON BEHALF OF ASH RC. FORM 990, PART VI, SECTION B, LINE 15 ASH RC RELIES ON A RELATED ORGANIZATION, THE AMERICAN SOCIETY OF HEMATOLOGY (ASH), TO DETERMINE COMPENSATION. AS PART OF THE PROCESS FOR DETERMINING THE COMPENSATION FOR ALL OF ITS EMPLOYEES, THE COMPENSATION FOR KEY EMPLOYEES OF THE ORGANIZATION (INCLUDING THE EXECUTIVE DIRECTOR OF ASH RC) IS REVIEWED BY AN OUTSIDE HR GROUP AND APPROVED BY THE EXECUTIVE DIRECTOR OF ASH. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION'S GOVERNING DOCUMENTS AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. THE CONFLICT OF INTEREST POLICY IS LOCATED ON THE ORGANIZATION'S WEBSITE. PART VII, SECTION A - COMPENSATION OF BOARD MEMBERS: BOARD MEMBERS MAY RECEIVE COMPENSATION RELATED TO SPEAKING ENGAGEMENTS OR WRITING ARTICLES FOR THE SOCIETY. AMERICAN SOCIETY OF HEMATOLOGY INC 2021 L STREET NW SUITE 900 WASHINGTON DC 20036 237080568 SEE PART VII DC 501(C)(3) LINE 10 N/A 0 0 0 1 0 1 0 0 0 0 0 0 0 0 1 1 0 1 0 0 SCHEDULE R, PART II, RELATED TAX-EXEMPT ORGANIZATIONS: (B) PRIMARY ACTIVITY: PROFESSIONAL SOCIETY SERVING BOTH CLINICIANS & SCIENTISTS AROUND THE WORLD WHO ARE WORKING TO CONQUER BLOOD DISEASES.