2022-05-09T08:59:10-07:00 2021-06-30 134036703 SCHALL & ASHENFARB CPAS LLC 307 FIFTH AVE 15TH FL NEW YORK NY 10016 990 2020-07-01 521704978 CurePSP Inc CURE 8027341185 1216 Broadway 2nd Floor New York NY 10001 Kristophe Diaz Executive Director 2022-05-09 true Kristophe Diaz 999009999 Michael Schall P02024184 2122682800 3 AAL1 IAL1 FAL1 2020 2022-09-23 18:48:47Z Kristophe Diaz 1216 Broadway 2nd Floor New York NY 10001 13890025 false X www.curepsp.org X 1990 MD To raise awareness, build community, improve care and find a cure for PSP, CBS and MSA. 17 17 12 170 0 3419168 6290908 0 80238 27438 22737 23693 3522143 6342039 471836 1006395 0 920284 1138833 0 288246 1240621 1343135 2632741 3488363 889402 2853676 5358201 8414669 784288 916524 4573913 7498145 To raise awareness, build community, improve care and find a cure for PSP, CBS and MSA. false false 1310527 939563 CurePSP advances the understanding and seeks treatment and cure for progressive supranuclear palsy(PSP) and related "prime of life" neurodegenerative diseases by funding research that focuses on (a) the causes and risk factors for these disorders, (b) biomarkers and clinical tests that aid in diagnosis, (c) genetic variants that are associated with the diseases, (d) therapies that would prevent, stop, or reverse brain damage associated with pathological protein accumulation in the brain, and (e) aiding pharmaceutical companies and research institutions in recruitment of cohorts for clinical trials and marketing of those trials. CurePSP provides critical brain-tissue samples to researchers through its support of the Mayo Clinic's brain bank. 849659 35212 CurePSP advocates for patients, families, and caregivers managing prime of life neurodegeneration to improve quality of life and patient outcomes. CurePSP does this through family conferences, caregiver retreats, volunteer development, professional education, online and printed resources, and social media. CurePSP supports some 50 support groups and around 200 volunteers providing online, telephone, and face-to-face support worldwide. CurePSP's Cherie Levien Quality of Life Fund provides professional in-home care to families in need. 633106 31620 CurePSP publishes a library of printed and online educational materials for families, patients, physicians and other healthcare professionals. The foundation sponsors professional education conferences in collaboration with leading institutions to increase knowledge of the disease that will lead to earlier and more accurate diagnosis and better patient care. Several dozen volunteer events annually supported by CurePSP further educate the general public. CurePSP uses several social media platforms to communicate with its constituents, maintains an online patient and caregiver forum, and produces national webinars, online support groups, and online presentations from clinicians and researchers. 2793292 true true false false false false false false false true true false false false false true false true false false true true false false true false false true true true false false false false false false false false false false false false true false false false false true 64 0 true 12 true false false false false false false false 0 false false false false false false false X 17 17 true false false false false false false true true false false true true true true true true true false false AL AR CA FL GA HI IL KS KY MA MD MI MN MS NC NH NJ NM NY OR PA RI SC TN UT VA WI WV X X Kristophe Diaz 6467251455 1216 Broadway 2nd Floor New York NY 10001 David Kemp President 40.00 0.00 X 194000 0 8377 Kristophe Diaz VP-Sci. Affairs 40.00 0.00 X 169932 0 11917 William McFarland Chair 6.00 0.00 X X 0 0 0 Amy Branch Vice Chair 15.00 0.00 X X 0 0 0 Justin Shea Treasurer 2.00 0.00 X X 0 0 0 Lawrence Levien Secretary 2.00 0.00 X X 0 0 0 Everett Cook Director 2.00 0.00 X 0 0 0 Jack Philips Director 0.00 0.00 X 0 0 0 John Sr Burhoe Chair Emeritus 3.00 0.00 X 0 0 0 Larry Golbe Chair SAB 12.00 0.00 X 0 0 0 Ileen McFarland Director 40.00 0.00 X 0 0 0 Andrew Maus Director 2.00 0.00 X 0 0 0 Brent R Bluett Director 3.00 0.00 X 0 0 0 Mana Bhatt Sanghvi Director 0.00 0.00 X 0 0 0 James McClellan Director 1.00 0.00 X 0 0 0 Maggie Orseth Director 3.00 0.00 X 0 0 0 Jessica Shurer Director 3.50 0.00 X 0 0 0 Alexander Pantelyat Director 2.00 0.00 X 0 0 0 Robert Hand Director 1.00 0.00 X 0 0 0 363932 20294 2 false true false Kiwi Partners Inc 237 West 35th Street Suite 1101 New York NY 10001 Accounting Services 104045 Regina Printing 260 Wagner Street Middlesex NJ 08846 Printing Services 181522 2 222837 134035 5934036 6290908 0 18990 18990 0 0 0 7556434 7547986 8448 8448 8448 222837 0 0 0 Other Revenue 23693 23693 23693 6342039 23693 27438 650327 650327 56228 56228 299840 299840 0 202383 131549 50596 20238 0 734849 647017 60353 27479 10562 10173 136 253 119702 102184 11466 6052 71337 60612 7049 3676 0 52324 44849 7475 106706 106706 0 0 0 171668 52127 28460 91081 0 0 157000 100494 19226 37280 0 72430 61505 7196 3729 12745 6468 6277 0 4040 3790 250 0 0 5654 4803 560 291 18288 18288 Direct mail 336361 294749 41612 Recruiting and marketing 148737 116902 7261 24574 Postage and Shipping 79794 37767 12829 29198 Other expenses 79718 22091 55718 1909 97670 89817 7229 624 3488363 2793292 406825 288246 170337 2166770 2899072 3126783 108000 82874 0 0 0 0 0 132506 130293 203718 199317 10055 4401 1914755 2771922 0 0 0 123476 131626 5358201 8414669 114914 150591 356532 542420 178807 223513 134035 784288 916524 X 3326160 6394463 1247753 1103682 4573913 7498145 5358201 8414669 2853676 70556 X false true X true false X 2577806 2598398 2845244 3419168 6290908 17731524 112913 191356 205367 509636 0 0 0 2690719 2789754 3050611 3419168 6290908 18241160 138765 93594 74320 33051 82413 422143 0 138765 93594 74320 33051 82413 422143 17819017 10394 12836 27191 76559 18990 145970 0 10394 12836 27191 76559 18990 145970 0 39664 16637 22737 23693 102731 2701113 2842254 3094439 3518464 6333591 18489861 0.96370 0.96030 0.00790 0.00920 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 316620 80458 397078 332916 -1296 15000 316620 452650 9116 128850 332916 403444 52826 3620 452650 372118 34596 3270 403444 1.00000 false false false 203718 199317 4401 4401 X 6412595 70556 70556 6342039 6342039 3488363 3488363 3488363 Part X : FIN48 Footnote The Organization does not believe its financial statements include any uncertain tax positions. Tax filing for the period ending June 30, 2018 and later are subject to examination by applicable taxing authorities. true Europe 0 0 Grant making 299840 299840 299840 Europe Research 299840 Wire 1 false false false false false false Part I, Line 2 - Grantmakers Explanation For Monitoring Use of Funds Outside US Investigators are required to provide four progress reports during the term of the grant: two financial reports and two scientific progress reports. The scientific progress reports are sent for review and approval to the Chief Science Officer and payment may be released only after approval has been given. If progress reports are not determined to be satisfactory, payment may be withheld until the investigator can provide a satisfactory report. false Fundraising Event 222837 222837 222837 222837 true AFTD 2700 Horizon Drive Suite 120 King of Prussia PA 19406 412073220 501(c)(3) 10000 0 Sponsorship Amazon Web Services 410 Terry Avenue North Seattle WA 98109 911646860 5575 0 Research Banner Health 901 East Willeta Street Phoenix AZ 85006 450233470 501(c)(3) 90000 0 Research Jeff Golub Documentary LLC TBA New York NY 10010 31620 0 Research North Texas Community Fdtn 777 Main Street Suite 2850 Fort Worth TX 76102 752267767 501(c)(3) 200000 0 Research The Regents of the UCLA 10889 Wilkshire Blvd Los Angeles CA 90095 956006143 501(c)(3) 100000 0 Research UM Amherst 100 Venture Way Ste 201 Hadley MA 01035 043167352 501(c)(3) 90000 0 Research University of Pennsylvania 3541 Walnut Street Philadelphia PA 19104 231352685 501(c)(3) 90000 0 Research USC Keck School of Medicine 3500 S Figueroa Street Los Angeles CA 90089 951642394 501(c)(3) 30000 0 Research 7 2 Respite Care Fund 23 25213 Brain Tissue Grants 43 31015 Grantmaker's Description of How Grants are Used Investigators are required to provide two progress reports during the term of the grant. The progress report is sent for review and approval to the Vice President of Scientific Affairs and payment may be released only after approval has been given. If progress reports are not determined to be satisfactory, payment may be withheld until the investigator can provide a satisfactory report. X false false false false false false false false false David Kemp President 194000 6000 2377 202377 Kristophe Diaz VP-Sci. Affairs 169932 11917 181849 Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, Et William R. McFarland and Ileen J McFarland are husband and wife. Form 990, Part VI, Line 11b: Form 990 Review Process The 990 is provided to the finance committee for review and approval. The form is then provided to the full board of directors for a period to make comments before filing with the IRS. Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of Conflicts The organization has a board approved conflicts of interest policy. Each board member must fill out an annual declaration stating they had no conflicts or identifying the nature of their interested party transactions. Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top Management The Board of Directors discussed performance and uses salary data to determine. Periodically the Board also obtains an independent compensation study to determine salary levels. Form 990, Part VI, Line 19: Other Organization Documents Publicly Available Governing documents are made available upon request. Patient Engagement Program LLC 1216 Broadway New York NY 10001 474679085 Research NY 9389 CurePSP Inc false false false false false false false false false false false false false false false false false false false