2022-02-14T14:44:24-06:00 2021-09-30 042578039 R A HALL & CO LLC CPA'S 183 STATE STREET BOSTON MA 02109 990 2020-10-01 371483975 LUMIND IDSC FOUNDATION LUMI 7818251300 20 BURLINGTON MALL ROAD NO 200 BURLINGTON MA 01803 HAMPUS HILLERSTROM PRESIDENT/CEO 7818251300 2022-02-03 1 HAMPUS HILLERSTROM 999009999 ERIC J HALL P00303080 6177233333 2022-02-03 2 AAL1 IAL1 2020 2022-09-23 18:48:47Z HAMPUS HILLERSTROM 20 BURLINGTON MALL ROAD NO 200 BURLINGTON MA 01803 5338658 0 X LUMINDRDS.ORG X 2003 CA WE ACCELERATE RESEARCH TO INCREASE AVAILABILITY OF THERAPEUTIC, DIAGNOSTIC, AND MEDICAL CARE OPTIONS AND WE EMPOWER FAMILIES THROUGH EDUCATION, CONNECTIONS, AND SUPPORT. 15 15 14 0 0 0 1577945 5112405 0 0 1301 1503 284585 153307 1863831 5267215 1020395 1507000 0 0 956058 1279452 0 0 470641 594339 581474 2570792 3367926 -706961 1899289 2462353 4487214 1621197 1746769 841156 2740445 TO ACCELERATE RESEARCH THAT WILL INCREASE THE AVAILABILITY OF THERAPEUTIC, DIAGNOSTIC AND MEDICAL CARE OPTIONS TO IMPROVE HEALTH AND INDEPENDENCE FOR PEOPLE WITH DOWN SYNDROME AND TO EMPOWER FAMILIES THROUGH EDUCATION, CONNECTIONS AND SUPPORT. 0 0 1290000 1290000 DS-CTN - SUPPORT MEDICAL RESEARCH THAT WILL RESULT IN TREATMENTS TO SIGNIFICANTLY IMPROVE HEALTH AND INDEPENDENCE IN PERSONS WITH DOWN SYNDROME. 217000 217000 RESEARCH AND MEDICAL GRANTS PROGRAM LUMIND IDSC RESEARCH AND MEDICAL GRANTS PROGRAM SUPPORTED 10 PROJECTS THIS YEAR COVERING PROJECTS IN COVID19, GENE THEREAPY, INDEPENDENCE, MEDICAL CARE AND REGULATORY. 1030107 COMMUNITY ENGAGEMENT PROGRAM FOR RESEARCH AWARENESS AND PARTICIPATION PARTICIPATION AND EMPOWERING FAMILIES WITH RESOURCES, MEDICAL INFORMATION AND RESEARCH PARTICIPATION OPPORTUNITIES. INCLUDES COSTS RELATED TO LUMIND IDSC'S MY DOWN SYNDROME COMMUNITY PLATFORM (MYDSC). 2537107 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 1 0 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 13 0 1 14 1 0 0 0 0 0 1 1 0 0 0 0 X 15 15 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 CA MA NY AL AK AZ AR CO CT DC FL GA IL KS KY ME MD MA MI MN MS NH NJ NC ND OH OK OR PA RI SC TN UT VA WA WV WI X X HAMPUS HILLERSTROM PRESIDENT AND C 7818251300 20 BURLINGTON MALL ROAD SUITE 200 BURLINGTON MA 01803 PATRICK KANNAN BOARD MEMBER TREASURER 1.00 X X 0 0 0 MICHAEL J MANNOR PHD BOARD CHAIR 1.00 X 0 0 0 PAUL MURASKO MEMBER 1.00 X 0 0 0 TONY HUNG VICE CHAIR 1.00 X 0 0 0 HAMPUS HILLERSTROM PRESIDENT AND CEO 40.00 X X 278723 0 25869 HECTOR GUINNESS MEMBER 1.00 X 0 0 0 ANTHONY PROVIDENTI MEMBER 1.00 X X 0 0 0 CHRISTOPHER LIS MEMBER 1.00 X 0 0 0 JEFF W STROBEL MEMBER 1.00 X X 0 0 0 CLAUDIA MOREIRA MEMBER 1.00 X 0 0 0 SOHAIL MASOOD MEMBER 1.00 X 0 0 0 BEV PAPERIELLO MEMBER 1.00 X 0 0 0 MARIA DELLAPINA MEMBER 1.00 X 0 0 0 DR JAMES HENDRIX CHIEF SCIENTIFIC OFFICER 40.00 X 181202 0 29271 MICHELLE PETRONIO CHIEF DEVELOPMENT OFFICER 40.00 X 156294 0 17261 ANGELLA BRITTON VICE PRESIDENT, CLINICAL OPERATIONS 40.00 X 105250 0 0 721469 0 72401 4 0 1 0 0 324071 4788334 5112405 1503 1503 224750 71443 153307 153307 5267215 0 0 154810 1507000 1507000 894922 646801 50411 197710 151944 20763 35514 95667 39516 25200 3244 11072 101441 80069 11351 10021 91629 58430 7521 25678 89251 40300 5735 43216 86538 86538 29657 29657 22218 22218 50961 23226 17859 9876 118316 69721 8751 39844 45088 31587 4483 9018 4118 4110 8 65582 65582 27724 27724 BANK FEES AND CREDIT CA 16775 4520 12255 STATE FILING FEES 10063 800 9263 PRINTING 9711 4244 5467 POSTAGE AND SHIPPING 2920 1650 234 1036 2552 1788 254 510 3367926 2537107 360178 470641 39147 914870 244092 637017 1823377 2655533 2925 0 85191 34321 304726 88673 236871 216053 30750 29420 2462353 4487214 218501 167209 1202036 1563845 600 12555 200060 3160 1621197 1746769 X 117205 832028 723951 1908417 841156 2740445 2462353 4487214 1899289 0 X X 0 1 X 1 0 X 1420558 1378038 3589169 1577945 5112405 13078115 1420558 1378038 3589169 1577945 5112405 13078115 13078115 1241 601 1890 1301 1503 6536 10 240 19393 26044 45687 13130338 2161528 0.99600 0.99940 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 304726 88673 216053 216053 CREDIT CARD 3160 3160 X 5314485 47270 47270 5267215 0 5267215 3415196 47270 47270 3367926 0 3367926 PART X, LINE 2: THE ORGANIZATION IS EXEMPT FROM TAXATION UNDER THE PROVISION OF SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE, EXCEPT ON ANY NET INCOME DERIVED FROM UNRELATED BUSINESS ACTIVITIES. THE ORGANIZATION HAS ALSO BEEN CLASSIFIED AS AN ENTITY THAT IS NOT A PRIVATE FOUNDATION WITHIN THE MEANING OF SECTION 509(A)(1) AND QUALIFIES FOR DEDUCTIBLE CONTRIBUTIONS AS PROVIDED IN SECTION 170(B)(1)(A)(VI). ACCORDINGLY, NO PROVISION FOR INCOME TAXES IS INCLUDED IN THE FINANCIAL STATEMENTS. THE ORGANIZATION FOLLOWS THE RECOGNITION REQUIREMENTS FOR UNCERTAIN INCOME TAX POSITIONS AS REQUIRED BY GENERALLY ACCEPTED ACCOUNTING PRINCIPLES BY ANNUALLY EVALUATING ITS TAX STATUS AND TAX POSITIONS WITH RESPECT TO ITS OPERATIONS AND FINANCIAL POSITION. LUMIND HAS NOT RECORDED ANY RESERVES, OR RELATED ACCRUALS FOR INTEREST AND PENALTIES FOR UNCERTAIN INCOME TAX PROVISIONS AT SEPTEMBER 30, 2021 AND 2020. THE FEDERAL INFORMATION RETURNS OF THE ORGANIZATION FOR THE YEARS ENDED SEPTEMBER 30, 2021, 2020 AND 2019 ARE SUBJECT TO EXAMINATION BY THE INTERNAL REVENUE SERVICE GENERALLY FOR THREE YEARS AFTER THEY WERE FILED. CANADA 0 0 GRANT TO FUND RESEARCH GOAL ATTAINMENT SCALING TO MEASURE DEMENTIA 130000 0 0 0 0 0 0 130000 0 130000 0 0 0 0 0 0 PART I, LINE 2: LUMIND REQUIRES MILESTONE-BASED DELIVERABLES, FINANCIAL OR OTHER REPORTS FROM OUR GRANTEES INSIDE AND OUTSIDE THE UNITED STATES TO ENSURE FUNDS ARE USED APPROPRIATELY. PART III ACCOUNTING METHOD: ASHLEY ROSE 42333 42333 2218 13650 610 1520 SUMMER DOUBLE DIP 100806 100806 600 7110 2268 43467 2 81611 81611 224750 224750 2818 20760 2878 44987 71443 153307 1 DOWN SYNDROME CLINICAL TRIALS NETWORK MULTIPLE GRANTS 20 MALL ROAD SUITE 200 BURLINGTON MA 01803 1290000 TO SUPPORT DOWN SYNDROME MEDICAL RESEARCH UCONN HEALTH - PINTER 236 FARMINGTON AVE FRAMINGTON CT 06030 100000 TO SUPPORT GENE THERAPY RESEARCH FOR DOWN SYNDROME GDPR IT GOVERNANCE USA INC 420 LEXINGTON AVENUE SUITE 300 NEW YORK NY 10170 15000 SECURITY IMPLEMENTATION ADVOCATE HEALTH RESOURCES 3075 HIGHLAND PARKWAY STE 600 DOWNERS GROVE IL 60515 30000 TO SUPPORT DOWN SYNDROME MEDICAL INFORMATION EMORY 201 DOWMAN DRIVE ATLANTA GA 30322 27000 COVID RESEARCH DSC2U 152 NASHUA STREET STE 540 BOSTON MA 02109 45000 TO SUPPORT DOWN SYNDROME MEDICAL INFORMATION X X 0 0 0 1 0 0 0 0 0 HAMPUS HILLERSTROM PRESIDENT AND CEO 278723 0 0 0 0 0 8907 0 16962 0 304592 0 0 0 DR JAMES HENDRIX CHIEF SCIENTIFIC OFFICER 181202 0 0 0 0 0 15188 0 14083 0 210473 0 0 0 MICHELLE PETRONIO CHIEF DEVELOPMENT OFFICER 156294 0 0 0 0 0 4918 0 12343 0 173555 0 0 0 PART I, LINE 3 BOARD OF DIRECTORS APPROVED CEO COMPENSATION IS CONTAINED IN A WRITTEN EMPLOYMENT AGREEMENT PART I, LINE 5 A PORTION OF THE CEO COMPENSATION IS RELATED TO SUPPORT GROWTH FORM 990, PART VI, SECTION B, LINE 11B THE ORGANIZATION'S PROCESS TO REVIEW THE FINAL FORM 990 IS TO HAVE MANAGEMENT REVIEW RETURN PRIOR TO SUBMISSION AND THEN THE RETURN IS SIGNED BY AN AUTHORIZED OFFICER. FORM 990, PART VI, SECTION B, LINE 12C THE PROCESS FOR MONITORING THIS IS BY ADDRESSING ACTIVITY IN QUARTERLY BOARD MEETINGS AND AD HOC CALLS AS NEEDED. FORM 990, PART VI, SECTION B, LINE 15 COMPENSATION FOR CEO IS APPROVED BY THE BOARD OF DIRECTORS, OTHER EMPLOYEES ARE BENCHMARKED AND BASED ON SALARY RANGES AND USE OF EMPLOYEE COMPENSATION POLICY. INCREASES ARE APPROVED IN THE BUDGET. FORM 990, PART VI, SECTION C, LINE 18 FORM 1023 AND FORM 990 ARE AVAILABLE UPON REQUEST AND AVAILABLE ONLINE THROUGH PUBLIC NON PROFIT WEBSITES. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS DISCLOSURE, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. FORM 990, PART XII, LINE 2C: THE ORGANIZATION HAS MANAGEMENT OVERSEE AND REVIEW THE AUDIT AND FORM 990 PRIOR TO SUBMISSION. THE PROCESS HAS NOT BEEN CHANGED IN CURRENT YEAR.