2021-12-28T11:44:47-08:00 2020-12-31 112883699 SABEL & OPLINGER CPA PC 106 Prospect St Southampton NY 11968 990 2020-01-01 455437249 DYSAUTONOMIA INTERNATIONAL INC DYSA 6312021720 PO BOX 596 EAST MORICHES NY 11940 SHANNON KOPLITZ Treasurer 2021-12-28 true SHANNON KOPLITZ 999009999 MARY ANN MENDEL CPA P00551302 6312832370 3 AAL1 IAL1 FAL1 2020 2022-09-23 18:48:47Z SHANNON KOPLITZ PO BOX 596 EAST MORICHES NY 11940 1289906 false X WWW.DYSAUTONOMIAINTERNATIONAL.ORG X 2012 NY To increase awareness of Dysautonomia within the medical community and the generalpublic and raise funds for dysautonomia research. 5 4 5 200 0 1082127 1236905 172735 4100 1597 818 29924 10777 1286383 1252600 808670 205177 0 358431 390793 0 68778 473514 128902 1640615 724872 -354232 527728 1902775 2147198 709182 425877 1193593 1721321 X To increase awareness of Dysautonomia within the medical community and the generalpublic and raise funds for dysautonomia research. false false 252293 205177 Providing research funding for projects at major University Research Centers. 144361 2100 Conferences to educate patients, caregivers and medicalprofessionals on dysautonomia conditions, treatments and research. 95046 2000 Clinician education. 47370 539070 true true false false false false false false false false true false false false false true true false false false false true false false true false false true false false false false false false false false false false false false false false false false false false false true 2 0 true 5 true false false false false false false false 0 false false false false false false false X 5 4 false false false false false true false true true false false true true true true true true true true false AK AL AR CA CO CT DC FL GA HI IL KS KY LA MA MD ME MI MN MO MS NC ND NH NJ NM NV NY OH OK OR PA RI SC TN TX UT VA WA WI WV X X X SHANNON KOPLITZ 6312021720 PO BOX 596 EAST MORICHES NY 11940 LAUREN STILES JD President & CEO 60.00 0.00 X X 124615 0 0 AMY KOHUT JD CH. COMPL OFCR 1.00 0.00 X X 0 0 0 NATASHA GRAVES Vice President 1.00 0.00 X X 0 0 0 JACQUELINE RUTTER GULLY Secretary 25.00 0.00 X X 0 0 0 CHRISTY JAGDFELD CPA Former Treas. 25.00 0.00 X X 0 0 0 SHANNON KOPLITZ Treasurer & CFO 25.00 0.00 X X 0 0 0 jodi parker former bd mbmr 1.00 0.00 X X 0 0 0 124615 1 false false false 0 21617 1215288 21617 1236905 CONFERENCES 541700 4100 4100 4100 818 818 0 0 0 0 20349 21617 21617 -1268 0 27734 15689 12045 12045 0 1252600 16963 89980 89980 0 115197 115197 0 124615 117138 6231 1246 0 224700 119161 77148 28391 0 9882 7239 2114 529 31596 20072 9042 2482 0 0 12252 8209 3063 980 0 0 0 5989 4062 1419 508 8512 6076 2436 5422 3888 1534 17562 13035 3151 1376 0 20764 13781 4525 2458 2656 2508 148 0 0 0 0 2725 2725 3791 2865 373 553 Postage and Shipping 16357 743 49 15565 BANK FEES 11550 962 194 10394 DUES & SUBSCRIPTIONS 8545 4489 3645 411 SUPPLIES 6189 4477 480 1232 6588 5188 1183 217 724872 539070 117024 68778 1819291 823195 1237768 0 69934 75277 0 0 0 6392 3459 644 257 12196 6454 5014 5742 0 0 0 0 1500 1500 1902775 2147198 194849 514333 425877 709182 425877 X 1193593 1575573 145748 1193593 1721321 1902775 2147198 527728 X false true X true false X 474437 801282 1208581 1082127 1236905 4803332 124842 191139 193039 172735 4100 685855 0 0 0 599279 992421 1401620 1254862 1241005 5489187 277696 100000 13683 9565 400944 55304 619496 239039 293238 1207077 333000 719496 252722 302803 1608021 3881166 1446 1597 818 3861 0 1446 1597 818 3861 0 0 599279 992421 1403066 1256459 1241823 5493048 0.70660 0.72600 0.00070 0.00064 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 12196 6454 5742 5742 X 1274217 21617 21617 1252600 1252600 746489 21617 21617 724872 724872 Part X : FIN48 Footnote The Organization has been classified by the Internal Revenue Service as a publicly supported tax-exempt charity pursuant to IRC Section 501(c)(3) and as a not-for-profit corporation under the laws of New York State. Accordingly, no provision for federal or state income taxes is required. As of December 31, 2020, no amounts have been recognized for uncertain income tax positions. Part XI, Line 2d: Other revenue amounts included in F/S but not included on form 990 DIRECT FUNDRAISING EXPENSES $21617 Part XII, Line 2d: Other expenses and losses per audited F/S DIRECT FUNDRAISING EXPENSES $21617 EUROPE POTS RESEARCH 19197 WIRE EUROPE POTS RESEARCH 20000 WIRE NORTH AMERICA POTS RESEARCH 76000 WIRE 3 false false false false false false X X X false NY AL AK AR CA CO CT DC FL GA HI IL KS KY LA ME MD MA MI MN MS MO NV NH NJ NM NC ND OH OK OR PA RI SC TN TX UT VA WA WV WI FUNDRAISING EVENTS 41966 21617 20349 21617 41966 21617 20349 21617 21617 -1268 true Brigham & Womens Hospital 15 Francis Street Boston MA 02115 042312909 501(c)(3) 29980 0 Network Analysis in Dysautonomia Leeland Stadford Junior Unive 213 QUARRY ROAD PALO ALTO CA 94304 941156365 501(c)(3) 60000 0 Autonomic Complications of Post-COV 2 0 Grantmaker's Description of How Grants are Used Dysautonomia International (DI) requires that all investigators, collaborators and sub-contractors who receive funding through the DI's Grants Program comply with our Policies Governing the Award of Research Grants (Policies). Investigators will be provided a copy of current Policies when invited to apply for funding. Acceptance of grant funding from Dysautonomia International acknowledges consent and agreement to comply with these Policies by the Principal Investigator.SEMI-ANNUAL AND POST GRANT REPORTS ARE REQUIRED. Form 990, Part III, Line 4d: Other Program Services Description OTHER PROGRAM SERVICES 4: Advocacy Initiatives - Patient Support and Empowerment programs. OTHER PROGRAM SERVICES 5: Clinician education. Form 990, Part VI, Line 11b: Form 990 Review Process THE BOARD WILL REVIEW AND APPROVE THE TAX RETURNS PRIOR TO SUBMISSION. Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of Conflicts ALL CONFLICTS ARE DISCUSSED ANNUALLY AT A BOARD MEETING. Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top Management THE CEO SALARY IS DETERMINED BY INDEPENDENT NON-EMPLOYEE MEMBERS OF THE BOARD OF DIRECTORS AFTER A CAREFUL COMPARATIVE REVIEW OF SALARIES FOR SIMILARLY QUALIFIED INDIVIDUALS IN SIMILAR POSITIONS. Form 990, Part VI, Line 15b: Compensation Review and Approval Process for Officers and Key Employees THE CEO AND OTHER STAFF SALARIES WERE SET BY INDEPENDENT NON-EMPLOYEE MEMBERS OF THE BOARD OF DIRECTORS AFTER A CAREFUL COMPARATIVE REVIEW OF SALARIES FOR SIMILARLY QUALIFIED INDIVIDUALS IN SIMILAR POSITIONS. Form 990, Part VI, Line 19: Other Organization Documents Publicly Available DOCUMENTS ARE AVAILABLE UPON REQUEST.