2022-08-15T17:07:14-05:00 2021-09-30 822029500 TOAL MURRAY DAY & LALOR LLC 130 ADMIRAL COCHRANE DR SUITE 200 ANNAPOLIS MD 214017368 990 2020-10-01 352222262 CURE JM FOUNDATION CURE 2025966267 19309 WINMEADE DRIVE SUITE 204 LEESBURG VA 20176 JAMES MINOW EXECUTIVE DIRECTOR 2025966267 2022-08-15 JAMES MINOW 999009999 THADDEUS N TOAL CPA P00780668 4102240343 2022-08-15 2020 2022-09-23 18:48:47Z JAMES MINOW 19309 WINMEADE DRIVE SUITE 204 LEESBURG VA 20176 2232153 false X WWW.CUREJM.ORG X 2003 CA TO FIND BETTER TREATMENTS AND A CURE FOR JUVENILE MYOSITIS AND IMPROVE THE LIVES OF FAMILIES. 15 15 6 0 1891711 1670424 0 14640 220 1219 561509 1907570 2232153 1075543 1041260 0 669864 641023 0 377217 219300 305555 1964707 1987838 -57137 244315 1977559 2049716 217801 0 1759758 2049716 X TO FIND BETTER TREATMENTS AND A CURE FOR JUVENILE MYOSITIS AND IMPROVE THE LIVES OF FAMILIES. false false 896410 759760 THE ORGANIZATION DIRECTLY SUPPORTED RESEARCH AS FOLLOWS: 1) 262,548 TO THE CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE (CARRA) TO LAUNCH A MULTI-CENTER JM PATIENT REGISTRY TO COLLECT INFORMATION AT THE TIME OF DIAGNOSIS AND AT REGULAR INTERVALS ABOUT HOW A PATIENT IS DOING, MEDICATIONS USED, AND SIDE EFFECTS; 2) 113,234 TO THE CENTER FOR APPLIED GENOMICS AT CHILDRENS'S HOSPITAL OF PHILADELPHIA, TO INVEST IN A GENETIC DISCOVERY PROGRAM; 3) 100,000 TO THE NATIONAL CENTER FOR ADVANCING TRANSLATIONAL SCIENCES - NIH IN BETHESDA, MD; 4) 95,000 TO GEORGE WASHINGTON UNIVERSITY'S PROJECT TO MEASURE OXIDATIVE STRESS AND MITOCHONDRIAL FUNCTION AS POSSIBLE CAUSES OF FATIGUE; 5) 87,500 TO THE ANN & ROBERT H. LURIE CHILDREN'S HOSPITAL IN CHICAGO, IL FOR CURE JM PROGRAM OF EXCELLENCE RESEARCH; 6) 83,500 TO DUKE UNIVERSITY MEDICAL CENTER IN DURHAM, NC TO IDENTIFY ABERRANT PATTERNS OF METABOLITE EXPRESSION IN THE BLOOD AND MUSCLE OF CHILDREN WITH JDM; 7) 73,938 TO THE HOSPITAL FOR SICK CHILDREN IN WASHINGTON, DC; 8) 60,014 TO THE SEATTLE CHILDREN'S HOSPITAL IN SEATTLE, WA; 9) 20,000 TO THE NATIONAL INSTITUTE OF ENVIRONMENTAL HEALTH SCIENCES IN DURHAM, NC TO INVESTIGATE THE CLINICAL RESPONSE TO THERAPIES IN PATIENTS WITH JDM; 10) 11,581 TO THE GLOBAL CONFERENCE ON MYOSITIS, INC. IN JACKSONVILLE, FL; AND 11) 150,020 TO UNIVERSITY COLLEGE LONDON (UK) FOR THE STUDY OF GENETIC RISK FACTORS FOR JUVENILE DERMATOMYOSITIS. THE ANNUAL NATIONAL FAMILY CONFERENCE & WALK STRONG TO CURE JM EVENT WAS HELD IN VARIOUS LOCATIONS ACROSS THE UNITED STATES. FAMILIES ATTENDED INCLUDING GRANDPARENTS, PARENTS, CHILDREN, TEENS, YOUNG ADULTS. MEDICAL PROFESSIONALS ALSO PARTICIPATED IN A MEDICAL CONFERENCE TO SHARE THE LATEST ADVANCEMENTS IN JM RESEARCH AND TREATMENTS. FAMILIES CAPPED THE WEEKEND WITH ATTENDANCE AT THE WALK STRONG TO CURE JM EVENTS. THE ORGANIZATION IS COMMITTED TO INCREASING AWARENESS AND EDUCATION OF THIS RARE, INCURABLE AUTOIMMUNE DISEASE AS WELL AS PROVIDING A SUPPORT COMMUNITY FOR IMPACTED FAMILIES. THESE EFFORTS ARE ACCOMPLISHED THROUGH A VARIETY OF METHODS SUCH AS: ATTENDANCE AT MEDICAL CONFERENCES REPRESENTING CURE JM FOUNDATION AND ITS WORK/ACTIVITIES; DISTRIBUTION OF PRINTED INFORMATION CARDS, BROCHURES AND EDUCATIONAL BOOKS TO IMPACTED FAMILIES AND THE MEDICAL COMMUNITY; DISTRIBUTION OF WELCOME KITS TO NEWLY DIAGNOSED FAMILIES; NEWSLETTERS; EDUCATIONAL EVENTS AND GATHERINGS; FAMILY SUPPORT; SURVEY AND METRIC TOOLS; MAINTENANCE OF A PATIENT REGISTRY AND MESSAGE BOARD AND UPDATES/MAINTENANCE OF THE ORGANIZATION' S WEBSITE. 452564 281500 452564 281500 1348974 true false false false false false false false false false false false false false false false true false false false false true false false false false false true false false false false false false false false false false false false false false false false false false false true 7 0 false 6 true false false false false false true true false false false false false false false false X 15 15 true false false false false false false true true false false false true true true true true true false false CA OR IL WA MD CO NY FL MN PA MA X X JAMES MINOW 2025966267 19309 WINMEADE DRIVE SUITE 204 LEESBURG VA 20176 X KRISTINE ALDERFER DIRECTOR X 0 0 0 RAGAN CANTRELLE SECRETARY X X 0 0 0 KEVIN COFFEY DIRECTOR X 0 0 0 MITALI DAVE CHAIRMAN X X 0 0 0 SUZANNE EDISON DIRECTOR X 0 0 0 NIKKI HAHN PRESIDENT X X 0 0 0 TIM HAUSER TREASURER X X 0 0 0 SHARI HUME CO-FOUNDER X 0 0 0 TOM HUME CO-FOUNDER X 0 0 0 DENISE KOCH DIRECTOR X 0 0 0 RHONDA MCKEEVER CHAIRMAN EME X X 0 0 0 ANNIE MITCHELL DIRECTOR X 0 0 0 TIM SHELBY DIRECTOR X 0 0 0 ALLISON TAYLOR DIRECTOR X 0 0 0 TRACY VAN NESS DIRECTOR X 0 0 0 1 false false false 1670424 1670424 220 220 SERVICES REVENUE 900099 561417 561417 OTHER REVENUE 900099 92 92 561509 2232153 561509 220 1018760 1018760 22500 22500 225473 136650 40995 47828 377383 110988 38240 228155 38167 17572 6128 14467 1000 1000 56685 8504 48181 33959 6792 5992 21175 63879 59426 4453 4821 4485 336 738 459 279 7672 7672 FUNDRAISING 69066 25554 43512 PENALTIES & INTEREST 41170 8646 15233 17291 WEB REDESIGN 26565 18103 8462 1987838 1348974 261647 377217 1177222 575766 797912 1423950 50000 2425 1977559 2049716 100200 117601 217801 0 X 1759758 2049716 1759758 2049716 1977559 2049716 X 244315 45643 X true X false true X 1721373 1959884 1854330 1891711 1670424 9097722 1721373 1959884 1854330 1891711 1670424 9097722 9097722 7916 11812 13143 14640 220 47731 1501 819 2320 9147773 787831 0.99450 0.99360 X PART II, LINE 10 OTHER INCOME 2,320 2232153 2232153 2232153 1987838 1987838 1987838 SCHEDULE D, PAGE 4, PART XI, LINE 2D RECLASSIFICATION OF EVENT EXPENSES 0 SCHEDULE D, PAGE 4, PART XII, LINE 2D RECLASSIFICATION OF EVENT EXPENSES 0 UTRECHT RESEARCH 22500 false false false false false false false CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE 555 EAST WELLS STREET SUITE 1100 MILWAUKEE WI 53202 464152355 501C3 133505 SUPPORT THE EXPANSIO DUKE UNIVERSITY MEDICAL CENTER BOX 3212 DURHAM NC 27710 560532129 501C3 135871 JUVENILE IDIOPATHIC NATIONAL CENTER FOR ADVANCING TRANSLATIONAL SCIENCES - NIH BUILDING 31 RM 3811 31 CENTER DR BETHESDA MD 208922128 560686338 501C3 75000 ADVANCE TRANSLATIONA THE GEORGE WASHINGTON UNIVERSITY 45155 RESEARCH PLACE SUITE 260 ASHBURN VA 20147 530196584 501C3 142500 STUDY TO EXPLORE REL SEATTLE CHILDRENS HOSPITAL PO BOX 5371 MS RC-507 SEATTLE WA 981455005 910564748 501C3 272884 ANN & ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO 2225 E CHICAGO AVENUE BOX 4 CHICAGO IL 606112605 362170833 501C3 150000 RETURN UNUSED FUNDS UNIVERSITY OF CALIFORNIA SAN FRANC 3333 CALIFORNIA STREET SUITE 315 SAN FRANCISO CA 94143 941156628 501C3 41500 CURE JM FELLOW UNDER WASHINGTON UNIVERSITY IN ST LOUIS 1 BROOKINGS DRIVE ST LOUIS MO 63130 430653611 501C3 37500 UNIVERSITY OF COLORADO 1201 LARIMER ST DENVER CO 80204 846000555 501C3 30000 FORM 990, PAGE 2, PART III, LINE 4A THE ORGANIZATION DIRECTLY SUPPORTED RESEARCH AS FOLLOWS: 1) 262,548 TO THE CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE (CARRA) TO LAUNCH A MULTI-CENTER JM PATIENT REGISTRY TO COLLECT INFORMATION AT THE TIME OF DIAGNOSIS AND AT REGULAR INTERVALS ABOUT HOW A PATIENT IS DOING, MEDICATIONS USED, AND SIDE EFFECTS; 2) 113,234 TO THE CENTER FOR APPLIED GENOMICS AT CHILDRENS'S HOSPITAL OF PHILADELPHIA, TO INVEST IN A GENETIC DISCOVERY PROGRAM; 3) 100,000 TO THE NATIONAL CENTER FOR ADVANCING TRANSLATIONAL SCIENCES - NIH IN BETHESDA, MD; 4) 95,000 TO GEORGE WASHINGTON UNIVERSITY'S PROJECT TO MEASURE OXIDATIVE STRESS AND MITOCHONDRIAL FUNCTION AS POSSIBLE CAUSES OF FATIGUE; 5) 87,500 TO THE ANN & ROBERT H. LURIE CHILDREN'S HOSPITAL IN CHICAGO, IL FOR CURE JM PROGRAM OF EXCELLENCE RESEARCH; 6) 83,500 TO DUKE UNIVERSITY MEDICAL CENTER IN DURHAM, NC TO IDENTIFY ABERRANT PATTERNS OF METABOLITE EXPRESSION IN THE BLOOD AND MUSCLE OF CHILDREN WITH JDM; 7) 73,938 TO THE HOSPITAL FOR SICK CHILDREN IN WASHINGTON, DC; 8) 60,014 TO THE SEATTLE CHILDREN'S HOSPITAL IN SEATTLE, WA; 9) 20,000 TO THE NATIONAL INSTITUTE OF ENVIRONMENTAL HEALTH SCIENCES IN DURHAM, NC TO INVESTIGATE THE CLINICAL RESPONSE TO THERAPIES IN PATIENTS WITH JDM; 10) 11,581 TO THE GLOBAL CONFERENCE ON MYOSITIS, INC. IN JACKSONVILLE, FL; AND 11) 150,020 TO UNIVERSITY COLLEGE LONDON (UK) FOR THE STUDY OF GENETIC RISK FACTORS FOR JUVENILE DERMATOMYOSITIS. FORM 990, PAGE 6, PART VI, LINE 2 TOM HUME SHARI HUME CO-FOUNDER CO-FOUNDER HUSBAND/WIFE FORM 990, PAGE 6, PART VI, LINE 11B DRAFT COPY OF FORM 990 WAS PROVIDED TO THE EXECUTIVE COMMITTEE FOR REVIEW BEFORE IT WAS FILED. FORM 990, PAGE 6, PART VI, LINE 12C THE ORGANIZATION REGULARLY REVIEWS CONTRACTS AND RELATIONSHIPS WITH VENDORS TO ASSURE COMPLIANCE WITH ITS CONFLICT OF INTEREST POLICY. FORM 990, PAGE 6, PART VI, LINE 15A THE BOARD OF DIRECTORS RESEARCHED THE COMPENSATION OF COMPARABLE ORGANIZATIONS BASED ON JOB DESCRIPTION AND EVALUATED THE PERFORMANCE OF EXECUTIVE DIRECTOR. FORM 990, PAGE 6, PART VI, LINE 19 THE ORGANIZATION'S EXEMPT ORGANIZATION TAX RETURNS AND AUDITED FINANCIAL STATEMENTS ARE AVAILABLE FOR REVIEW ON ITS WEBSITE AT WWW.CUREJM.ORG. THE ORGANIZATION'S FORM 1023, CONFLICT OF INTEREST POLICY AND OTHER GOVERNING DOCUMENTS ARE AVAILABLE FOR REVIEW UPON REQUEST. FORM 990, PART XI, LINE 9 RECLASSIFICATION OF EVENT EXPENSES 0 RECLASSIFICATION OF EVENT EXPENSES 0