2022-05-16T15:09:40-05:00 2021-06-30 PricewaterhouseCoopers LLP 101 SEAPORT BLVD SUITE 500 BOSTON MA 02210 990 2020-07-01 830561457 COUNT ME IN INC % MARY DAVIS COUN 6177147093 415 MAIN STREET CAMBRIDGE MA 02142 NIKHIL WAGLE PRESIDENT 6177147093 2022-05-11 true NIKHIL WAGLE 999009999 Paul J Tanis P01441612 6175305000 2022-05-08 2 2020 2022-09-23 18:48:47Z NIKHIL WAGLE 415 MAIN STREET CAMBRIDGE MA 02142 8017841 false X HTTP://JOINCOUNTMEIN.ORG X 2018 MA SEE SCHEDULE O. 9 8 0 10 0 0 10000500 8001500 0 0 10194 16341 0 0 10010694 8017841 0 0 0 0 1169088 2196870 0 0 0 2922001 4583093 4091089 6779963 5919605 1237878 10002307 7331909 4082702 174426 5919605 7157483 X THE MISSION OF CMI INC. 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ORGANIZATION'S MISSION FORM 990, PART I, LINE 1 THE MISSION OF COUNT ME IN IS TO TRANSFORM CANCER CARE AND OUTCOMES BY EMPOWERING CANCER PATIENTS TO ACCELERATE BIOMEDICAL RESEARCH BY SHARING THEIR SAMPLES, THEIR CLINICAL INFORMATION, AND THEIR VOICES. STATEMENT OF PROGRAM SERVICE ACCOMPLISHMENTS FORM 990, PART III, LINE 4A AS OF JUNE 30, 2021, COUNT ME IN HAS LAUNCHED SIX PROJECTS TO DATE, SPANNING RARE, COMMON AND PEDIATRIC CANCERS: THE METASTATIC BREAST CANCER PROJECT (2015), THE ANGIOSARCOMA PROJECT (2017), THE METASTATIC PROSTATE CANCER PROJECT (2018), THE ESOPHAGEAL AND STOMACH CANCER PROJECT (2018), THE BRAIN TUMOR PROJECT (2019) AND THE OSTEOSARCOMA PROJECT (2020). THE COLORECTAL CANCER PROJECT LAUNCHED IN SEPTEMBER 2021, AND THE LEIOMYOSARCOMA PROJECT HAS BEEN INITIATED AND IS EXPECTED TO LAUNCH IN 2022. IN ADDITION, THE "ALL CANCERS" WEBSITE LAUNCHED IN AUGUST 2021, AND ENABLES ALL PATIENTS IN THE UNITED STATES AND CANADA WHO HAVE EVER BEEN DIAGNOSED WITH ANY TYPE OF CANCER TO JOIN COUNT ME IN. OUR CAPABILITIES AND INFRASTRUCTURE INCLUDE THE ABILITY TO: (A) ENGAGE AND CONSENT PATIENTS REMOTELY; (B) COLLECT LONGITUDINAL PATIENT-REPORTED DATA; (C) SHIP AND RECEIVE SALIVA AND BLOOD COLLECTION KITS FROM PATIENTS; (D) REQUEST AND RECEIVE MEDICAL RECORDS AND TUMOR TISSUES FROM INSTITUTIONS ACROSS THE U.S.; (E) ABSTRACT CLINICAL DATA FROM MEDICAL RECORDS AND PATIENT-REPORTED DATA; (F) PERFORM GENOMIC CHARACTERIZATION (WHOLE EXOME SEQUENCING (WES), RNASEQ, WHOLE GENOME SEQUENCING (WGS)) ON TUMOR, SALIVA, AND PLASMA-DERIVED CELL-FREE DNA; (G) ANALYZE AND INTERPRET CLINICALLY ANNOTATED SOMATIC AND GERMLINE GENOMIC DATA; AND (H) SHARE ALL DE-IDENTIFIED DATA ACQUIRED OR GENERATED IN THE PROJECT REGULARLY - PRE-PUBLICATION AND WITHOUT RESTRICTIONS - VIA PUBLIC/ACCESSIBLE DATABASES (CBIOPORTAL, DBGAP, NCI GENOMIC DATA COMMONS). ACROSS THE SIX PROJECTS ACTIVE IN FISCAL YEAR 2021, WE HAVE REGISTERED OVER 8,500 PATIENTS FROM ALL 50 U.S. STATES AND CANADA - INCLUDING BOTH ADULT AND PEDIATRIC PARTICIPANTS. OVER 5,200 PATIENTS FROM OVER 1,700 DIFFERENT INSTITUTIONS HAVE ENROLLED IN THE STUDY, PROVIDING THEIR CONSENT TO SHARE THEIR MEDICAL RECORDS, TUMOR SAMPLES, AND SALIVA SAMPLES, AS WELL AS TO HAVE COMPREHENSIVE GENOMIC ANALYSIS PERFORMED ON THEIR SAMPLES. WE HAVE COLLECTED MORE THAN 2,300 MEDICAL RECORDS, 3,200 SALIVA SAMPLES, 1,700 BLOOD SAMPLES, AND 1,100 TUMORS SPECIMENS FROM PARTICIPANTS. COUNT ME IN IS COMMITTED TO IMPROVING REPRESENTATION AND INCLUSIVENESS IN CANCER RESEARCH BY INTENTIONALLY ENGAGING WITH PATIENTS AND ADVOCATES FROM UNDERREPRESENTED BACKGROUNDS. AS OF 2021, THE MBCPROJECT AND "ALL CANCERS" WEBSITE AND MATERIALS ARE BOTH FULLY AVAILABLE IN SPANISH, WITH SPANISH-SPEAKING PATIENTS NOW ENROLLING THROUGH THOSE SITES. A NEW INITIATIVE - AMPLIFYING BLACK VOICES ACROSS CANCER - LAUNCHED IN LATE 2021. COUNT ME IN HAS PUBLICLY SHARED DATA FROM THE MBCPROJECT, ASCPROJECT, AND MPCPROJECT ON SEVERAL PLATFORMS, INCLUDING THE GENOMIC DATA COMMONS, DBGAP, CBIOPORTAL AND THROUGH OUR OWN DATA BROWSERS. THIS PUBLICLY AVAILABLE DE-IDENTIFIED DATA HAS BEEN CITED IN OVER 50 PEER REVIEWED PUBLICATIONS TO DATE BY RESEARCHERS INDEPENDENT OF THE COUNT ME IN TEAM. WE HAVE PUBLICLY SHARED CLINICALLY ANNOTATED WHOLE EXOME SEQUENCING DATA FROM 395 TUMOR SAMPLES (AND ASSOCIATED GERMLINE SAMPLES), RNA SEQUENCING FROM 228 SAMPLES, AND PATIENT REPORTED DATA FROM OVER 1,500 PATIENTS. RELATIONSHIPS AMONG FORM 990 PART VI, LINE 2 NIKHIL WAGLE AND LAURIE GLIMCHER HAVE A BUSINESS RELATIONSHIP. NIKHIL WAGLE IS DIRECTOR AND PRESIDENT AT CMI AND LAURIE GLIMCHER IS A DIRECTOR AT CMI. REED JOBS AND MATT BETTONVILLE HAVE A BUSINESS RELATIONSHIP. BOTH ARE DIRECTORS AT CMI. TODD GOLUB, JESSE SOUWEINE, ERIC LANDER, JOHN TRAVIA, ROESHANA MOORE-EVANS AND KRISTEN ZARRELLI HAVE A BUSINESS RELATIONSHIP. JESSE SOUWEINE, TODD GOLUB (BEGINNING JANUARY 2021) AND ERIC LANDER (UNTIL JANUARY 2021) ARE DIRECTORS AT CMI AND JOHN TRAVIA, ROESHANA MOORE-EVANS (BEGINNING FEBRUARY 2021) AND KRISTEN ZARRELLI (UNTIL JANUARY 2021) ARE OFFICERS OF CMI. MEMBERS FORM 990 PART VI, LINE 6 THE MEMBERS OF COUNT ME IN INC. CONSIST OF THE BROAD INSTITUTE, INC., EMERSON COLLECTIVE LLC, DANA FARBER CANCER INSTITUTE, INC. THE BIDEN CANCER INITIATIVE, INC. WAS A MEMBER UNTIL FEBRUARY 2021. DECISIONS OF THE GOVERNING BODY SUBJECT TO APPROVAL BY MEMBERS FORM 990 PART VI, LINE 7A AND 7B MEMBERS EXERCISE ALL POWERS CONSISTENT WITH THE ACTIVITIES AND AFFAIRS OF COUNT ME IN. THE MEMBERS HAVE ALL POWERS AND RIGHTS AS ARE VESTED IN THEM BY LAW, THE ARTICLES OF ORGANIZATION AND THE BY-LAWS, WHICH INCLUDE AMENDMENTS TO THE BY-LAWS AND ARTICLES OF INCORPORATION, THE ELECTION OR REPLACEMENT OF DIRECTORS AND DISSOLUTION OF THE ORGANIZATION. THE MEMBERS SHALL HOLD AN ANNUAL MEETING FOR ELECTION OF DIRECTORS AND FOR THE CONDUCT OF SUCH OTHER BUSINESS AS MAY COME BEFORE THE MEETING. DOCUMENTATION OF COMMITTEE MEETINGS OR WRITTEN ACTIONS UNDERTAKEN FORM 990 PART VI, LINE 8B THE ORGANIZATION DOES NOT HAVE ANY COMMITTEES. REVIEW OF 990 FORM 990 PART VI, LINE 11B COUNT ME IN'S FORM 990 WAS PREPARED WITH THE ASSISTANCE OF THE ORGANIZATION'S AUDITORS, PRICEWATERHOUSECOOPERS LLP. THE FULL BOARD OF DIRECTORS RECEIVED A COMPLETED COPY OF THE FORM 990 PRIOR TO THE FORM BEING FILED WITH THE IRS. CONFLICT OF INTEREST POLICY FORM 990 PART VI, LINE 12C EACH DIRECTOR AND OFFICER HAS AN ONGOING DUTY TO PLACE THE INTEREST OF COUNT ME IN FOREMOST IN ANY DEALING WITH THE ORGANIZATION. EACH HAS A CONTINUING RESPONSIBILITY TO COMPLY WITH THE THIS POLICY AND TO DISCLOSE THE EXISTENCE OF ANY ACTUAL OR POSSIBLE CONFLICT OF INTEREST. ANNUALLY, EACH DIRECTOR AND OFFICER SHALL ACKNOWLEDGE THEIR FAMILIARITY WITH THIS POLICY AND SHALL DISCLOSE IN WRITING TO THE CLERK ANY EXISTING FINANCIAL OR OTHER MATERIAL INTERESTS SUBJECT TO THIS POLICY BY COMPLETING A CONFLICT OF INTEREST DISCLOSURE STATEMENT. THE CONFLICT OF INTEREST DISCLOSURE STATEMENTS SHALL BE REVIEWED BY THE CLERK. ANY ISSUES NOT PREVIOUSLY DISCLOSED SHALL BE REFERRED BY THE CLERK TO THE BOARD. THE CONFLICT OF INTEREST DISCLOSURE STATEMENTS SHALL BE RETAINED IN THE CONFIDENTIAL FILES OF THE CLERK. IN THE EVENT OF POTENTIAL CONFLICT, AN INTERESTED PERSON MAY MAKE A PRESENTATION AT THE BOARD MEETING, BUT AFTER SUCH PRESENTATION, HE OR SHE WILL LEAVE THE MEETING DURING THE DISCUSSION OF, AND THE VOTE ON, THE TRANSACTION OR ARRANGEMENT THAT RESULTS IN THE CONFLICT OF INTEREST. PUBLIC DISCLOSURE OF DOCUMENTS FORM 990 PART VI, LINE 18 THE FORM 990 IS MADE AVAILABLE UPON REQUEST AND ON GUIDESTAR.ORG. THE FORM 1023 IS MADE AVAILABLE UPON REQUEST. AVAILABILITY OF DOCUMENTS FORM 990 PART VI, LINE 19 COUNT ME IN'S AUDITED FINANCIAL STATEMENTS ARE ATTACHED TO THE ANNUALLY FILED MASSACHUSETTS FORM PC, WHICH IS AVAILABLE TO THE PUBLIC. THE ORGANIZATION'S GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY ARE AVAILABLE TO THE PUBLIC UPON REQUEST. INDEPENDENT CONTRACTORS FORM 990 PART VII, SECTION B, LINE 1(B) SERVICES PROVIDED BY THE BROAD INSTITUTE, INC. INCLUDE DATA SCIENCES AND ENGINEERING, PROGRAM SERVICE AND MANAGEMENT/GENERAL PERSONNEL, SEQUENCING, AND ADMINISTRATIVE SUPPORT.