2022-05-09T18:29:57-04:00 2021-12-31 273840548 LUDWIG BUSINESS CONSULTANTS 1120 WELSH ROAD SUITE 200 North Wales PA 19454 990 2021-01-01 453768161 CYSTIC FIBROSIS RESEARCH FUND INC CYST 100 ST GEORGES ROAD STE G1 ARDMORE PA 19003 MICHAEL GOLINKOFF PRESIDENT 2153416720 2022-04-29 true MICHAEL GOLINKOFF Phyllis A Ludwig P00916318 2158390985 2022-05-09 0 00 AAL2 IAL1 2021 2022-09-23 18:48:47Z EMILYS ENTOURAGE 2178167 false X WWW.EMILYSENTOURAGE.ORG X 1987 PA THE CYSTIC FIBROSIS RESEARCH FUND (EMILYS ENTOURAGE) ACCELERATES RESEARCH AND DRUG DEVELOPMENT FOR NONSENSE MUTATIONS OF CYSTIC FIBROSIS. 14 14 5 106 0 0 1781373 2148299 0 20192 28868 240833 -85435 2042398 2091732 679835 510175 0 197024 197792 0 107076 292432 235963 1169291 943930 873107 1147802 3196742 4381158 25431 62045 3171311 4319113 THE CYSTIC FIBROSIS RESEARCH FUND (EMILYS ENTOURAGE) ACCELERATES RESEARCH AND DRUG DEVELOPMENT FOR NONSENSE MUTATIONS OF CYSTIC FIBROSIS. false false 744701 510175 THE ORGANIZATION RAISES MONEY FOR CYSTIC FIBROSIS RESEARCH THROUGH DIRECT SOLICITATION ACTIVITIES. 744701 true true false false false false false false false false false false false false false true true false false false false false false false true false false true false false false false false false false false false false false false false false false false false false false true 13 0 true 5 true false false false false false false false false false false X 14 14 true false false false false false false true true false false true false false true false false false NY PA X MICHAEL GOLINKOFF 2153416720 100 ST GEORGES ROAD ARDMORE PA 19003 X GREG REH DIRECTOR 0.50 0.00 X 0 0 0 JESSICA RUTSTEIN LAZARUS DIRECTOR 0.50 0.00 X 0 0 0 BETH SHAPIRO LAVIN DIRECTOR 2.00 0.00 X 0 0 0 JULIE WERTHEIMER DIRECTOR 0.20 0.00 X 0 0 0 COBY KRAMER-GOLINKOFF DIRECTOR 5.00 0.00 X 0 0 0 DANIELLE SELBER DIRECTOR 0.50 0.00 X 0 0 0 DOUG YOUNG DIRECTOR 0.20 0.00 X 0 0 0 NICKIE BOSTON DIRECTOR 1.00 0.00 X 0 0 0 EMILY K KRAMER-GOLINKOFF DIRECTOR 10.00 0.00 X 0 0 0 NICK DINGES DIRECTOR 1.00 0.00 X 0 0 0 NANCY ASTOR FOX DIRECTOR 0.20 0.00 X 0 0 0 JOAN DENENBERG DIRECTOR 2.00 0.00 X 0 0 0 MICHAEL GOLINKOFF PRESIDENT 10.00 0.00 X X 0 0 0 ELIZABETH P KRAMER SECRETARY 20.00 0.00 X X 0 0 0 0 0 0 0 false false false 1139352 54765 954182 2148299 28868 28868 1139352 86435 -86435 -86435 OTHER 900099 1000 1000 1000 2091732 0 0 -56567 510175 510175 192141 74560 68154 49427 5651 3686 1418 547 11269 3506 4257 3506 5741 5504 62 175 3686 699 1381 1606 16796 4213 387 12196 1040 1040 SUBCONTRACTORS 89774 89774 LICENSES 1938 1938 CONTRACTS SERVICES 55846 21652 13290 20904 FUNDRAISING 44393 30932 13461 5480 226 5254 943930 744701 92153 107076 386980 492528 2809762 3888630 3196742 4381158 8644 62045 16787 25431 62045 X 3171311 4184113 135000 3171311 4319113 3196742 4381158 1147802 0 X false true X false false X 1242850 1775304 1843829 1781373 2094534 8737890 1242850 1775304 1843829 1781373 2094534 8737890 657853 8080037 6591 5874 445724 276983 28868 764040 9501930 0.85040 0.82560 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED X 2091732 2091732 2091732 943930 943930 943930 Footnote for uncertain tax position under FIN 48 (Part X) PART X, LINE 2CYSTIC FIBROSIS RESEARCH FUND, INC. (EMILYS ENTOURAGE0 IS A NOT-FOR-PROFIT ORGANIZATION WHICH HAS BEEN DETERMINATED BY THE IRS TO BE EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. THE ORGANIZATION RECOGNIZES ACCRUED INTEREST AND PENALTIES ASSOCIATED WITH UNCERTAIN TAX POSITIONS, IF ANY, AS PART OF THE INCOME TAX PROVISION. THERE ARE NO INCOME TAX RELATED INTEREST AND PENALTIES RECORDED FOR THE YEAR ENDED DECEMBER 31, 2021.THE TAX RETURNS OF THE ORGANIZATION FOR THE YEARS ENDED DECEMBER 31, 2018, 2019, AND 2020 ARE SUBJECT TO EXAMINATION BY THE INTERNAL REVENUE SERVICE AND OTHER VARIOUS TAXING AUTHORITIES, GENERALLY FOR THREE YEARS AFTER THEY WERE FILED. ANNUAL GALAS 1139352 1139352 86435 1139352 1139352 86435 86435 -86435 true THE ROCKEFELLER UNIVERSITY 1230 YORK AVENUE New York NY 10065 131624158 110000 CASH REGENTS OF THE UNIVERSITY OF CALIFO 9500 GILMAN DRIVE La Jolla CA 920930967 956006144 165000 CASH STATE UNIVERSITY OF IOWA -MITOCHON 105 JESSUP HALL Iowa City IA 52242 426004813 1425 CASH YALE UNIVERSITY PO BOX 208234 New Haven CT 06520 060646973 68750 CASH THE WISTAR INSTITUTE 3601 SPRUCE STREET Philadelphia PA 19104 236434390 110000 CASH CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE Cleveland OH 441067037 341018992 55000 CASH Officer directors etc family relationship Part VI line 2 FORM 990, PART VI, SECTION A, LINE 2;THREE BOARD MEMBERS ARE RELATED (PARENTS AND CHILD). Form 990 governing body review Part VI line 11 FORM 990 IS DISTRIBUTED TO BOARD MEMBERS PRIOR TO ITS FILING WITH THE INTERNAL REVENUE SERVICE Governing documents etc available to public Part VI line 19 ISSUED UPON REQUEST General explanation attachment Schedule A - Part II - Section A Public Support Test - Line 1Gifts, grants, contributions and membership fees received were adjusted for years 2017 and 2018. Certain contributions received in 2017 and 2018 were omitted in error from prior years Public Support Test calculations.