2022-03-21T08:55:46-05:00 2021-06-30 113266576 GRASSI & CO CPA'S PC 488 MADISON AVENUE 21ST FLOOR NEW YORK NY 10022 990 2020-07-01 133277408 ALZHEIMER'S DISEASE AND RELATED DISORDERS NEW YORK CITY INC ALZH 6467442900 360 LEXINGTON AVENUE 3RD FL NEW YORK NY 10017 ELEONORA CARMEN TORNATORE PRESIDENT AND CEO 6467442900 2022-03-16 1 ELEONORA CARMEN TORNATORE XXX-XX-XXXX DAVID ROTTKAMP P01303468 2126616166 2 AAL1 IAL1 2020 2022-09-23 18:48:47Z CARINGKIND ELEONORA CARMEN TORNATORE 360 LEXINGTON AVE 3RD FL NEW YORK NY 10017 5101292 0 X WWW.CARINGKINDNYC.ORG X 1985 NY THE MISSION OF CARINGKIND IS TO CREATE, DELIVER, AND PROMOTE COMPREHENSIVE AND COMPASSIONATE CARE AND SUPPORT SERVICES FOR INDIVIDUALS AND FAMILIES AFFECTED BY ALZHEIMER'S DISEASE AND RELATED DEMENTIAS, AND TO ELIMINATE ALZHEIMER'S DISEASE THROUGH THE ADVANCEMENT OF RESEARCH. WE ACHIEVE OUR MISSION BY PROVIDING PROGRAMS AND SERVICES FOR INDIVIDUALS WITH DEMENTIA, THEIR FAMILY AND PROFESSIONAL CAREGIVERS; INCREASING PUBLIC AWARENESS; COLLABORATING WITH RESEARCH CENTERS; AND INFORMING PUBLIC POLICY THROUGH ADVOCACY. 17 17 33 240 1520 383 3001014 4836385 445808 18816 8672 -10440 30400 11170 3485894 4855931 233855 214273 0 0 2639712 2453445 27750 0 707848 1529728 1462458 4431045 4130176 -945151 725755 3194996 4187791 1838211 2106195 1356785 2081596 X TO CREATE, DELIVER, AND PROMOTE COMPREHENSIVE AND COMPASSIONATE CARE AND SUPPORT SERVICES FOR INDIVIDUALS AND FAMILIES AFFECTED BY ALZHEIMER'S DISEASE AND RELATED DEMENTIAS, AND TO ELIMINATE ALZHEIMER'S DISEASE THROUGH THE ADVANCEMENT OF RESEARCH. 0 0 1848047 182323 13081 PATIENT AND FAMILY SERVICES - CARINGKIND OFFERS A HELPLINE RUN BY PROFESSIONAL STAFF; INDIVIDUAL AND FAMILY COUNSELING SESSIONS WITH LICENSED SOCIAL WORKERS; A VAST NETWORK OF SUPPORT GROUPS; AND A WANDERER'S SAFETY PROGRAM. THESE SERVICES IMPROVE THE AFFECTED INDIVIDUAL AND THEIR CAREGIVER'S QUALITY OF LIFE AND DECREASES THE STRESSFUL IMPACT OF ALZHEIMER'S AND DEMENTIA. SOCIAL WORKERS IDENTIFY AREAS OF NEED AND PROVIDE ASSISTANCE AND PSYCHOSOCIAL SUPPORT THROUGH EDUCATION ABOUT THE DISEASE AND SYMPTOM MANAGEMENT, PROBLEM SOLVING, PLANNING FOR FUTURE NEEDS, AND LINKAGES WITH RESOURCES, PARTICULARLY DURING TRANSITIONAL OR CRISIS SITUATIONS. 1027341 31950 5735 PUBLIC AWARENESS AND EDUCATION - ALZHEIMER'S IS A PROGRESSIVE, DEGENERATIVE, AND ULTIMATELY FATAL DISEASE. TOO FEW AMERICANS UNDERSTAND THE CURRENT AND FUTURE ECONOMIC IMPACT OF ALZHEIMER'S. ALREADY MORE THAN 5 MILLION AMERICANS ARE LIVING WITH ALZHEIMER'S AND MORE THAN 15 MILLION PEOPLE ARE PROVIDING UNPAID CARE AND SUPPORT. THIS MASSIVE GROUP IS IN NEED OF INFORMATION AND RESOURCES. CARINGKIND HAS INVESTED IN EDUCATION CAMPAIGNS AND INITIATIVES TO INCREASE KNOWLEDGE ABOUT ALZHEIMER'S DISEASE AND AWARENESS OF THE ORGANIZATION AS THE CENTER OF HELP AND HOPE. KEY MESSAGES INCLUDE THE IMPORTANCE OF EARLY DETECTION, RESOURCES FOR PEOPLE WITH ALZHEIMER'S AND THEIR FAMILIES, AND THE SOCIETAL IMPACT OF THE DISEASE. MILLIONS OF CONSTITUENTS ARE ENGAGED TO EDUCATE THEIR COMMUNITIES AND WORKPLACES. 5000 RESEARCH - CARINGKIND REMAINS COMMITTED TO THE ADVANCEMENT OF RESEARCH TOWARDS THE GOAL OF ELIMINATING ALZHEIMER'S DISEASE. WE ACHIEVE THIS GOAL THROUGH COLLABORATING WITH RESEARCH CENTERS, AND SCIENTISTS IN NEW YORK CITY, NATIONALLY AND INTERNATIONALLY; HELPING TO RECRUIT SUBJECTS FOR RESEARCH, EDUCATING OUR COMMUNITY ABOUT THE IMPORTANCE OF RESEARCH, AND HOW TO PARTICIPATE IN RESEARCH TRIALS. ALL RESTRICTED RESEARCH DONATIONS ARE PASSED-THROUGH TO OUR RESEARCH PARTNERS. 51 PUBLIC POLICY - ADVOCATES FOR PUBLIC POLICIES AIMED AT ADVANCING RESEARCH TOWARD BETTER THERAPIES, DETECTION, METHODS OF PREVENTION AND ULTIMATELY A CURE, AS WELL AS FOR BETTER CARE AND RESOURCES, AND HEALTH AND LONG-TERM COVERAGE TO ENSURE HIGH QUALITY COST EFFECTIVE CARE FOR PEOPLE WITH ALZHEIMER'S DISEASE AND THEIR FAMILIES. POLICY ACTIVITIES ALSO INCLUDE COLLABORATING WITH OTHER ORGANIZATIONS TO IMPROVE QUALITY CARE AND RAISE AWARENESS OF KEY ISSUES. 51 2880439 1 1 0 1 0 0 0 0 0 1 1 0 0 0 1 1 1 0 0 0 0 0 0 0 1 0 0 0 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 77 0 33 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 17 17 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 NY X X ALEX WONG 6467442916 360 LEXINGTON AVENUE 3RD FL NEW YORK NY 10017 DAVID Z HIRSH CHAIR 1.00 X X 0 0 0 SHARON KILMER VICE CHAIR & TREASURER 1.00 X X 0 0 0 PAULINE YEUNG-HA SECRETARY 1.00 X X 0 0 0 SANDRA S BARON DIRECTOR 1.00 X 0 0 0 RACHEL BERK DIRECTOR 1.00 X 0 0 0 BETSY BILLARD STARTED 92020 DIRECTOR 1.00 X 0 0 0 BETTY BRENNAN DIRECTOR 1.00 X 0 0 0 RICHARD S HELSTEIN DIRECTOR 1.00 X 0 0 0 JONATHAN S HENES DIRECTOR 1.00 X 0 0 0 DIANE HERDLING STARTED 92020 DIRECTOR 1.00 X 0 0 0 SARAH HOIT DIRECTOR 1.00 X 0 0 0 BENJAMIN J JENKINS DIRECTOR 1.00 X 0 0 0 JEFFREY JONES DIRECTOR 1.00 X 0 0 0 LINDA LAGORGA DIRECTOR 1.00 X 0 0 0 ELAINE THOMAS DIRECTOR 1.00 X 0 0 0 GURNEY WILLIAMS III DIRECTOR 1.00 X 0 0 0 MARK ZURACK DIRECTOR 1.00 X 0 0 0 JED A LEVINE PRESIDENT & CEO (RETIRED 7/1/20) 30.30 X 141399 0 17541 ELEONORA CARMEN TORNATORE PRESIDENT & CEO (STARTED 6/1/20) 50.70 X 126923 0 209 ALEX WONG CHIEF FINANCIAL OFFICER 44.70 X 113325 0 14723 CAROL BERNE SENIOR VICE PRESIDENT OF DEVELOPMENT 40.60 X 139667 0 15334 LOU-ELLEN BARKAN FOUNDING DIRECTOR (RETIRED 6/30/20) 23.00 X 105220 0 12530 626534 0 60337 5 0 1 0 0 1871860 911800 2052725 246501 4836385 PATIENT AND FAMILY SER 624100 13081 13081 PUBLIC AWARENESS AND E 624100 5735 5735 18816 1268 1268 233653 245361 -11708 -11708 -11708 0 1871860 0 0 OTHER 900099 11170 1520 9650 11170 4855931 18816 1520 -790 214273 214273 344892 64096 108430 172366 1659035 1217076 246723 195236 72779 50079 8973 13727 176836 117917 26282 32637 199903 128728 34631 36544 32177 32177 201743 157392 4574 39777 79759 29841 138 49780 126093 47976 5649 72468 740609 628679 55440 56490 782 365 417 36740 15590 21150 203300 177240 13296 12764 26746 18753 4483 3510 RESEARCH PAYMENTS 5000 5000 CLIENT SERVICES 3754 3754 STAFF DEVELOPMENT 2991 2991 OTHER MISCELLANEOUS 2764 689 1093 982 4130176 2880439 541889 707848 X 232729 76912 0 155817 298 248 1243811 2168366 180643 422444 135525 114006 1632 0 85057 111510 3378838 2135472 1419206 1243366 13894 12284 114930 115567 3194996 4187791 223013 270273 467400 467400 1147798 1368522 1838211 2106195 X 489261 1367504 867524 714092 1356785 2081596 3194996 4187791 725755 -944 0 X X 0 1 X 1 0 X 5389521 4406241 5849129 3001014 4836385 23482290 5389521 4406241 5849129 3001014 4836385 23482290 629146 22853144 26774 10168 10548 8288 1268 57046 17249 18225 5010 3520 1520 45524 440528 392935 216027 43505 9650 1102645 24687505 3436876 0.92570 0.91780 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: SPECIAL EVENT REVENUE - 2016 AMOUNT: $ 425,675. 2017 AMOUNT: $ 351,530. 2018 AMOUNT: $ 179,123. 2019 AMOUNT: $ 0. 2020 AMOUNT: $ 0. OTHER INCOME - 2016 AMOUNT: $ 14,853. 2017 AMOUNT: $ 41,405. 2018 AMOUNT: $ 36,904. 2019 AMOUNT: $ 43,505. 2020 AMOUNT: $ 9,650. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 0 1 1 0 0 1 50 0 0 51 0 PART II-B, LINE 1: CARINGKIND PARTICIPATES IN FEDERAL, STATE AND LOCAL ADVOCACY AND PROMOTION OF POLICIES AND LEGISLATION FAVORABLE TO THE ALZHEIMER'S AND DEMENTIA COMMUNITY BY PARTICIPATING IN ADVOCACY COALITIONS, SIGNING ON TO SUPPORT LETTERS, ASKING VOLUNTEERS TO SIGN ON AND SHARE THESE WITH THEIR NETWORKS. ONE MAJOR FOCUS IS ON LOCAL SUPPORT FOR FUNDING OF CARINGKIND'S PROGRAMS OF EDUCATION, CARE AND SUPPORT FOR FAMILIES LIVING WITH AND CARING FOR AN INDIVIDUAL WITH DEMENTIA. THIS INCLUDES FACE TO FACE OR VIRTUAL MEETINGS WITH STATE AND LOCAL ELECTED OFFICIALS, APPLYING FOR CITY COUNCIL AND BOROUGH PRESIDENTIAL FUNDS. 271280 17 107888 163409 261423 9857 271280 261236 5269 266585 261162 74 261236 261135 27 261162 1.00000 0 0 2695842 1506093 1189749 682996 629379 53617 1243366 ANNUITY PAYMENT OBLIGATIONS 18190 DEFERRED RENT 1350332 1368522 X 4868170 -944 13183 12239 4855931 0 4855931 4143359 13183 13183 4130176 0 4130176 PART V, LINE 4: CARINGKIND RECEIVED APPROVAL FROM THE NYSAG TO RELEASE TWO ENDOWMENT FUNDS IN JULY 2020. CARINGKIND'S REMAINING ENDOWMENT CONSISTS OF TWO INDIVIDUAL DONOR-RESTRICTED ENDOWMENT FUNDS ESTABLISHED TO CREATE AND PROMOTE COMPREHENSIVE AND HUMANE CARE AND TREATMENT FOR PERSONS WITH ALZHEIMER'S DISEASE AND RELATED DISEASES. PART X, LINE 2: CARINGKIND HAS DETERMINED THAT THERE ARE NO MATERIAL UNCERTAIN TAX POSITIONS THAT REQUIRE RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS. CARINGKIND IS SUBJECT TO ROUTINE AUDITS BY TAXING JURISDICTIONS; HOWEVER, THERE ARE CURRENTLY NO AUDITS FOR ANY TAX PERIODS IN PROGRESS. CARINGKIND BELIEVES IT IS NO LONGER SUBJECT TO INCOME TAX EXAMINATIONS FOR YEARS PRIOR TO 2018. CARINGKIND WALK 489190 489190 VIRTUAL GALA 1317042 1317042 3 61895 61895 1868127 1868127 1 WANDERER'S SAFETY PROGRAM-INDIVIDUAL GRANTS UNDER $5,000 491 43648 FAIR MARKET VALUE FINANCIAL ASSISTANCE PROVIDED TO FAMILY AND OTHER CAREGIVERS 55 138675 FAIR MARKET VALUE TRAINING STIPENDS UNDER $5,000 213 31950 FAIR MARKET VALUE PART I, LINE 2: ALL FINANCIAL ASSISTANCE AWARDS GIVEN TO INDIVIDUALS OR ORGANIZATIONS ARE REVIEWED ON A REGULAR BASIS. PAYMENTS ARE REVIEWED AND APPROVED BY THE RESPONSIBLE MANAGER(S) TO ENSURE PROPER JUSTIFICATION. THERE ARE NO INDIVIDUAL GRANTS OVER $5,000. X X X X X 0 0 0 0 0 0 0 0 0 JED A LEVINE PRESIDENT & CEO (RETIRED 7/1/20) 141399 0 0 0 0 0 11683 0 5858 0 158940 0 0 0 CAROL BERNE SENIOR VICE PRESIDENT OF DEVELOPMENT 139667 0 0 0 0 0 7051 0 8283 0 155001 0 0 0 X 5 2026 SELLING PRICE X 16 244475 MARKET VALUE 0 1 1 PART I, LINE 32B: THE ORGANIZATION USES "INSURANCE AUTO AUCTIONS" TO PROCESS VEHICLE DONATIONS. FORM 990, PART VI, SECTION B, LINE 11B A DRAFT OF FORM 990 IS DISTRIBUTED TO THE AUDIT COMMITTEE APPROXIMATELY 14 DAYS PRIOR TO THE FILING DATE FOR THEIR REVIEW AND COMMENT. THE AMENDED DRAFT IS THEN SENT TO THE FULL BOARD APPROXIMATELY 7 DAYS PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C ALL BOARD MEMBER PROSPECTS MUST SIGN THE CONFLICT OF INTEREST POLICY, BEFORE THEY ARE INVITED TO JOIN THE BOARD. ADDITIONALLY, ALL CURRENT OFFICERS, DIRECTORS, TRUSTEES AND KEY EMPLOYEES ARE REQUIRED TO SIGN THE POLICY EACH YEAR. THEY ARE ALSO REQUIRED TO DISCLOSE IMMEDIATELY ANY INTERESTS THAT COULD GIVE RISE TO CONFLICTS, SHOULD THESE OCCUR DURING THE YEAR. FORM 990, PART VI, SECTION B, LINE 15 CEO'S PERFORMANCE WAS REVIEWED BY THE EXECUTIVE COMMITTEE AND PRESENTED TO THE FULL BOARD. THE BOARD'S EXECUTIVE COMMITTEE ALSO REVIEWS DATA RELATING TO SALARIES OF CEOS OF OTHER SIMILARLY SITUATED NON-PROFIT ORGANIZATIONS. IN ADDITION, ALL STAFF MEMBERS WERE ASKED TO FILL OUT AN EMPLOYEE FEEDBACK SURVEY AROUND ENGAGEMENT THAT ADDRESSED THE WORK ENVIRONMENT AND PERFORMANCE OF ORGANIZATION LEADERSHIP. BASED UPON THIS FEEDBACK AND MARKET DATA, THE EXECUTIVE COMMITTEE RECOMMENDED THE COMPENSATION AMOUNT FOR THE CEO FOR THE UPCOMING FISCAL YEAR TO THE FULL BOARD FOR APPROVAL. THE SALARIES OF KEY MANAGEMENT EMPLOYEES WERE DETERMINED BY THE CEO AND PRESENTED TO THE BOARD'S EXECUTIVE COMMITTEE. UPON THE APPROVAL OF THE EXECUTIVE COMMITTEE, THE FULL BOARD REVIEWED COMPENSATION THROUGH THE APPROVAL OF THE ANNUAL BUDGET. FORM 990, PART VI, SECTION C, LINE 19 CARINGKIND'S FINANCIAL STATEMENTS ARE MADE AVAILABLE TO THE PUBLIC ON THE ORGANIZATION'S WEBSITE. THE CONFLICT OF INTEREST POLICY IS AVAILABLE UPON REQUEST. FORM 990, PART XII, LINE 2C CARINGKIND HAS AN AUDIT COMMITTEE THAT ASSUMES RESPONSIBILITY FOR OVERSIGHT OF THE AUDIT AND COMPILATION OF THE FINANCIAL STATEMENTS AND SELECTION OF AN INDEPENDENT ACCOUNTANT. THE OVERSIGHT PROCESS HAS NOT CHANGED SINCE THE PRIOR YEAR.