2025-02-03T22:58:04-05:00 2023-12-31 464265129 CASTLE & COMPANY CPAS PLLC 7887 SAN FELIPE ST STE 122 HOUSTON TX 770631600 990 2023-01-01 760661966 LONE STAR BLEEDING DISORDERS FOUNDATION LONE 7136866100 5600 NW CENTRAL DR STE 140 HOUSTON TX 77092 JENNIFER FARNELL TREASURER 7136866100 2025-02-03 true true DAVID W CASTLE P00542980 7136299770 2025-02-03 2023 2025-03-06 01:10:19Z IR2024191 DISASTER RELIEF HURRICANE BERYL AMANDA WOLGAMOTT SAME AS ABOVE HOUSTON TX 77092 923381 false X WWW.LONESTARBLEEDINGDISORDERS.ORG X 1985 TX DEDICATED TO THE TREATMENT AND CURE OF INHERITED BLEEDING DISORDERS, ASSOCIATED COMPLICATIONS AND TREATMENTS, AND AND IMPROVED QUALITY OF LIFE FOR ALL AFFECTED THROUGH RESEARCH, ADVOCACY, EDUCATION, AND OTHER SERVICES. 10 10 4 25 12073 670041 902944 20707 20437 0 -27015 -39019 663733 884362 86763 54000 0 129675 143643 0 3976 439973 545889 656411 743532 7322 140830 1313786 1454616 0 1313786 1454616 X SEE SCHEDULE O false false 653320 54000 20437 EDUCATION AND TRAINING: THE LONE STAR BLEEDING DISORDERS FOUNDATION (LONE STAR BDF) AIDED AND PROMOTED THE EDUCATION OF INDIVIDUALS WITH INHERITED BLEEDING DISORDERS, THEIR FAMILIES, THE GENERAL PUBLIC, AND THE MEDICAL/SCIENTIFIC COMMUNITY REGARDING ALL ASPECTS OF INHERITED BLEEDING DISORDERS, RELATED COMPLICATIONS, AND TREATMENTS. CONTINUED ON SCHEDULE O. 16657 COMMUNITY NEEDS: LONE STAR BDF PROMOTED ACCESS TO HIGH QUALITY, SAFE THERAPEUTIC MATERIALS CRUCIAL IN THE TREATMENT OF INHERITED BLEEDING DISORDERS, AND ENCOURAGED THE COMPREHENSIVE CARE INCLUDING MENTAL WELL-BEING OF PERSONS WITH A BLEEDING DISORDER. THROUGH THE HELPING HANDS PROGRAM, LONE STAR BDF ASSISTED OVER 50 FAMILIES IN CRISIS WHO WERE UNABLE TO PAY OR RECEIVE TREATMENT FOR THEIR MEDICAL CONDITION, OR HAD AN UNUSUAL STRAIN PLACED ON HOUSEHOLD FINANCES BECAUSE OF THEIR BLEEDING DISORER. 669977 true true false true false false false false false false true false false false false false false false false false false false false false true false false true true false false false false false false false false false false false false false false false false false false true 4 0 4 true true true false false false false false false false false false false false false false X 10 10 false false false false false false false true true false true true true true true true true true true false false X MELISSA COMPTON 7136866100 5600 NW CENTRAL DR STE 140 HOUSTON TX 77092 MELISSA COMPTON EXECUTIVE DI 40.00 X 67477 0 0 AARON GONZALES TRUSTEE 2.00 X 0 0 0 CELIA PATINO TRUSTEE 2.00 X 0 0 0 SABRINA FARINA TRUSTEE 2.00 X 0 0 0 TRINH NGUYEN TRUSTEE 2.00 X 0 0 0 LAURA CASTILLO TRUSTEE 2.00 X 0 0 0 AMANDA WOLGAMOTT PRESIDENT 4.00 X X 0 0 0 ALLISON POHL 1ST VICE PRE 3.00 X X 0 0 0 RAY STANHOPE 2ND VICE PRE 3.00 X X 0 0 0 LAURA PORTALES SECRETARY 3.00 X X 0 0 0 JAMES SETLIFF TREASURER 3.00 X X 0 0 0 JENNIFER FARNELL TREASURER X 0 0 0 67477 false false false 115741 787203 902944 NEWSLETTER/ADVERTISING 611710 12073 12073 EDUCATION CONFERENCE 541800 8364 8364 20437 115741 39019 -39019 -39019 884362 8364 12073 -39019 X 44000 44000 10000 10000 67477 33739 33738 65264 65264 10902 8321 2581 3025 3025 5633 4399 617 617 17204 14756 2448 14205 14205 41957 41957 299 299 4930 4930 FACILITY COSTS FOR EVENTS 277832 277832 ENTERTAINMENT AT EVENTS 43432 43432 CHILDCARE AT EVENTS 34130 34130 COMPUTER APPLICATIONS 24073 22596 1477 79169 69551 7736 1882 743532 669977 69579 3976 1313786 1454616 4764 4764 1313786 1454616 0 0 X 1313786 1454616 1313786 1454616 1313786 1454616 140830 X false false false X 702751 306890 733254 670041 892947 3305883 702751 306890 733254 670041 892947 3305883 1704871 1601012 39000 25500 11000 1158 573 77231 3383114 40550 0.47320 0.49480 X PART II, LINE 10 OTHER INCOME 77,231 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true true false false false false true 6865 true 6865 false 13730 false SCHEDULE C, PART II-B, LINE 1 BY WORKING WITH FEDERAL AND STATE LAWMAKERS, OTHER GOVERNMENT AGENCIES AND OFFICIALS, AND INDUSTRY AND ALLIED ORGANIZATIONS, LONE STAR BLEEDING DISORDERS FOUNDATION (LONE STAR BDF) ADVOCATES FOR POLICIES THAT PROMOTE THE HEALTH, SAFETY, RIGHTS AND ACCESS TO CARE FOR PERSONS WITH BLEEDING DISORDERS. ANNUALLY IN MARCH, LONE STAR BDF PARTICIPATES IN WASHINGTON DAYS, A GRASSROOTS EVENT ORGANIZED BY THE NATIONAL HEMOPHILIA FOUNDATION THAT BRINGS PATIENTS TO DC TO MEET WITH MEMBERS OF CONGRESS. 4764 4764 HEROES IN HILLS 27140 27140 7844 UNITE WALKS 88601 88601 13836 947 5264 11128 1 115741 115741 21680 947 5264 11128 39019 -39019 false NATIONAL HEMOPHILIA FOUNDATION 7 PENN PLAZA ST 1204 NEW YORK NY 10001 135641857 C3 10000 TEXAS CENTRAL HEMOPHILIA 12700 HILLCREST RD DALLAS TX 75230 751187148 C3 10000 TEXAS BLEEDING DISORDERS CAMP FOUND 20212 CHAMPION FOREST DR ST 700312 SPRING TX 77379 462115460 C3 22500 SCHOLARSHIPS 4 10000 FORM 990, PART III FORM 990, PART III, LINE 1, THE ORGANIZATION'S MISSION: THE LONE STAR BLEEDING DISORDERS FOUNDATION (LONE STAR BDF) IS DEDICATED TO THE TREATMENT AND THE CURE OF INHERITED BLEEDING DISORDERS, COMPLICATIONS OF THOSE DISORDERS AND THEIR TREATMENTS, AS WELL AS TO IMPROVING THE QUALITY OF LIFE FOR ALL THOSE AFFECTED THROUGH THE PROMOTION AND SUPPORT OF RESEARCH, ADVOCACY, EDUCATION, AND OTHER SERVICES. FORM 990, PART III, LINE 4A, PROGRAM SERVICE ACCOMPLISHMENTS: THE TEXAS BLEEDING DISORDERS CONFERENCE (TBDC) WAS A JOINT EFFORT BETWEEN LONE STAR BDF AND TEXAS CENTRAL BLEEDING DISORDERS BRINGING NEARLY 1000 PEOPLE FROM ALL OVER THE STATE OF TEXAS TOGETHER FOR A WEEKEND OF EDUCATION, NETWORKING, AND FUN. ACTIVITIES WERE PLANNED FOR THE WHOLE FAMILY, CHILDCARE WAS PROVIDED, AND SPANISH ACCOMODATIONS WERE MADE FOR BILINGUAL PARTICIPANTS. SESSIONS WERE OFFERED TO MAKE EVERY STEP OF LIFE WITH A BLEEDING DISORDER BETTER. LONE STAR BDF PROVIDED CAMP SPONSORSHIPS FOR CAMPERS AT CAMP AILIHPOMEH, A PLACE WHERE BOYS THROUGHOUT TEXAS MEET AND BUILD STRONG RELATIONSHIPS WITH OTHER BOYS WITH BLEEDING DISORDERS. CAMP AILIHPOMEH (HEMOPHILIA SPELLED BACKWARDS) BEGAN IN THE SUMMER OF 1979 AS THE FIRST CAMP FOR CHILDREN TRADITIONALLY EXCLUDED FROM SUMMER CAMP PROGRAMS. EACH SUMMER, THE CAMP SERVES HUNDREDS OF KIDS. IN THE SPRING AND SUMMER, LONE STAR BDF HOSTED REGIONAL FAMILY EDUCATION DAYS WHERE FAMILIES AFFECTED BY BLEEDING DISORDERS WERE ACQUAINTED AND LEARNED FROM ONE ANOTHER, AND MET INDUSTRY PARTNERS OFFERING THE LATEST INFORMATION ABOUT HEALTH AND SERVICES. UNITE WALKS PROVIDED EDUCATION AND AWARENESS OPPORTUNITIES. LONE STAR BDF WAS ONE OF THE FIRST 5 INAUGURAL SITES OF THE NATIONAL HEMOPHILIA FOUNDATION'S HEMOPHILIA WALK PROGRAM IN 2008. IT STARTED IN HOUSTON, AND HAS GROWN TO MULTIPLE WALKS, HOSTING OVER 5,000 WALKERS. LONE STAR BDF SUPPORTED YOUNG ADULTS DIRECTLY AFFECTED WITH AN INHERITED BLEEDING DISORDER, OR AN IMMEDIATE FAMILY MEMBER OF SOMEONE WITH A BLEEDING DISORDER, PURSUING POST-HIGH SCHOOL EDUCATION WITH ACADEMIC SCHOLARSHIPS. IN 2023, 4 SCHOLARSHIPS WERE AWARDED TO STUDENTS ATTENDING TARLETON STATE UNIVERSITY, UNIVERSITY OF HOUSTON, UNIVERSITY OF TEXAS, AND TEXAS A&M UNIVERSITY. LONE STAR BDF WELCOMED NEWLY DIAGNOSED FAMILIES WITH WELCOME BAGS AND HOSTED DINNERS AND EDUCATION EVENTS THROUGHOUT 2023, RANGING FROM PARENTS' BACK TO SCHOOL TIPS FOR STUDENTS WITH BLEEDING DISORDERS, SPANISH EDUCATIONAL DINNERS, RETREATS FOR MEN/WOMEN/TEENS, AND WINTER FAMILY EVENTS IN HOUSTON, THE VALLEY, AND THE HILL COUNTRY FOR PATIENTS TO MEET FOR FUN, HOLIDAY CHEER, CRAFTS, AND THE CHAPTER'S UPDATE. LONE STAR BDF ADVOCATED AT THE FEDERAL AND STATE LEVEL ON ISSUES IMPORTANT TO TEXAS' BLEEDING DISORDERS COMMUNITY, INCLUDING PARTICIPATION IN THE NATIONAL HEMOPHILIA FOUNDATION'S ANNUAL WASHINGTON DAYS BRINGING PATIENTS AND THEIR FAMILIES TO WASHINGTON DC TO MEET WITH LAWMAKERS WHO SHAPE NATIONAL HEALTHCARE POLICY. LONE STAR BDF PUSHED FOR AWARENESS OF RARE DISEASES IN CONNECTION WITH THE NATIONAL RED TIE CAMPAIGN. FORM 990, PAGE 6, PART VI, LINE 11B THE 990 IS EXAMINED BY THE TREASURER. FORM 990, PAGE 6, PART VI, LINE 12C DISCLOSURES ARE ASKED FOR AT THE BEGINNING OF EVERY BOARD MEETING. ANY CONFLICT OF INTEREST RESULTS IN IMMEDIATE LOSS OF VOTING PRIVILEGES. FORM 990, PAGE 6, PART VI, LINE 15A EACH YEAR, A SPECIAL COMPENSATION COMMITTEE COMPRISED OF COMMUNITY MEMBERS AND BOARD OF DIRECTORS INDEPENDENT OF THE EXECUTIVE DIRECTOR(ED) REVIEWS AND ESTABLISHES COMPENSATION AND CRITICAL QUALIFICATIONS FOR THE ED POSITION, PLUS BENEFIT PACKAGES FOR OTHER EMPLOYEES. THE COMMITTEE REVIEWS THE CURRENT COMPENSATION PACKAGE AGAINST THOSE OF OGRANIZATIONS OF SIMILAR SIZE AND OPERATING IN THE SAME TERRITORIAL JURISDICTION. THE COMMITTEE'S DELIBERATIONS ARE INCLUDED WITH EXECUTIVE SESSION MINUTES AND REQUIRE MAJORITY VOTE FOR APPROVAL. FORM 990, PAGE 6, PART VI, LINE 19 THE GOVERNING DOCUMENTS AND FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC UPON REQUEST AT THE ADDRESS AT WHICH THE BOOKS AND RECORDS OF THE ORGANIZATION ARE KEPT. FORM 990, PART IX, LINE 24E HELPING HANDS AID 15,957 0 0 PRINTING AND POSTAGE 15,530 0 0 DIRECT SUPPLIES 14,533 0 0 TRANSLATION SERVICES 10,315 0 0 EXHIBIT FEES 7,118 0 0 TELEPHONE 1,411 1,411 1,882 STORAGE FEES 0 2,381 0 PAYROLL PROC FEES 0 2,339 0 CREDIT CARD & BANK FEES 194 1,605 0 OTHER 1,718 0 0 SPEAKERS AT EVENTS 1,250 0 0 TRAINING AND EDUCATION 950 0 0 DUES AND SUBSCRIPTIONS 575 0 0 TOTAL 69,551 7,736 1,882