2023-12-13T08:07:37-06:00 2023-02-28 873707167 CBIZ MARKS PANETH LLC 685 THIRD AVENUE NEW YORK NY 10017 990 2022-03-01 237191992 TOURETTE ASSOCIATION OF AMERICA INC TOUR 7182242999 42-40 BELL BOULEVARD BAYSIDE NY 11361 SONJA MASON-VIDAL VICE PRESIDENT, FINANCE 7182242999 2023-11-16 1 SONJA MASON-VIDAL 999009999 0 MAGDALENA CZERNIAWSKI P00535099 2125038800 2023-11-16 2 AAL1 IAL1 2022 2023-04-26 12:10:37Z SONJA MASON-VIDAL 42-40 BELL BOULEVARD BAYSIDE NY 11361 7577464 0 7202 X TOURETTE.ORG X 1972 NY TO IDENTIFY THE CAUSE OF, FIND THE CURE FOR AND CONTROL THE EFFECTS OF TOURETTE SYNDROME. 16 16 34 120 0 0 3971216 4496697 67535 171515 397601 141640 17668 74034 4454020 4883886 491804 699600 0 0 2027138 2373504 0 0 692319 1592951 2134780 4111893 5207884 342127 -323998 11736131 11157402 1455370 1961975 10280761 9195427 X TO IDENTIFY THE CAUSE OF, FIND THE CURE FOR, AND CONTROL THE EFFECTS OF TOURETTE SYNDROME. THE TOURETTE ASSOCIATION IS DEDICATED TO MAKING LIFE BETTER FOR ALL PEOPLE AFFECTED BY TOURETTE AND TIC DISORDERS. 0 0 1878360 263665 PUBLIC EDUCATION - PROVIDE EDUCATION AND AWARENESS BY RAISING PUBLIC AWARENESS AND FOSTERING SOCIAL ACCEPTANCE. EDUCATING PROFESSIONALS TO BETTER SERVE THE NEEDS OF CHILDREN, ADULTS AND FAMILIES CHALLENGED BY TOURETTE AND TIC DISORDERS. ADVOCATING FOR PUBLIC POLICIES AND SERVICES THAT PROMOTE POSITIVE SCHOOL, WORK AND SOCIAL ENVIRONMENTS. PROVIDING HELP, HOPE AND A SUPPORTIVE COMMUNITY ACROSS THE NATION. EMPOWERING OUR COMMUNITY TO DEAL WITH THE COMPLEXITIES OF THIS SPECTRUM OF DISORDERS. 1112425 699600 RESEARCH & MEDICAL PROGRAMS - WORKING TO ADVANCE SCIENTIFIC UNDERSTANDING, TREATMENT OPTIONS AND CARE OPTIONS FOR THE DISORDER BY PROVIDING FUNDING FOR RESEARCH INVESTIGATIONS IN THE AREAS OF NEUROSCIENCES, GENETICS, BEHAVIORIAL THERAPY, CLINICAL TRIALS. 866930 CENTERS FOR DISEASE CONTROL (CDC) PARTNERSHIP - THE ASSOCIATION AND CDC WORK TOGETHER TO PROVIDE EXPERT EDUCATION ABOUT TOURETTE SYNDROME TO PHYSICIANS AND ALLIED PROFESSIONAL AND TO ENCOURAGE PHYSICIANS TO APPLY TO THE ASSOCIATIONS ' REFERRAL LISTS. INCLUDES PROGRAMS TO EDUCATE SCHOOLS AND COMMUNITIES ABOUT TOURETTE SYNDROME. 135063 THE TOURETTE SYNDROME BEHAVIOR TRAINING INSTITUTE ( "TS- BTI") WAS CREATED TO EXPAND THE NUMBER OF HEALTHCARE PROFESSIONALS COMPETENTLY TRAINED IN BEHAVIOR THERAPY FOR TOURETTE SYNDROME AND OTHER TIC DISORDERS. PROFESSIONAL EDUCATION - PROVIDES FOR THE EDUCATION AND AWARENESS OF TOURETTE SYNDROME TO MEDICAL PROFESSIONALS, THROUGH AMONG OTHER THINGS, SEMINARS AND DISTRIBUTION OF RESEARCH UPDATES. 135063 3992778 1 1 0 1 0 0 0 0 0 1 1 0 0 0 1 1 1 0 0 0 1 1 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 31 0 1 34 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 16 16 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 0 0 AL AK AZ AR CA CT FL IL LA ME MD MI MA MN MS NH NJ NC ND OH OK OR PA RI SC TN UT VA WA WV WI X SONJA MASON-VIDAL VP SEC & TREAS 7182242999 42-40 BELL BOULEVARD BAYSIDE NY 113612820 ALICE KANE FOURTH VICE CHAIR 2.00 X X 0 0 0 AZAD ANAND MD DIRECTOR (OUTGOING) 2.00 X 0 0 0 BRUCE D OCHSMAN DIRECTOR 2.00 X 0 0 0 CHERI G DAVID CPA CVA DIRECTOR 2.00 X 0 0 0 CINDY KURTZ DIRECTOR 2.00 X 0 0 0 DANIEL MCGARVEY DIRECTOR 2.00 X 0 0 0 DAVID SCHOENHAAR FIRST VICE CHAIR 2.00 X X 0 0 0 FRED COOK DIRECTOR (OUTGOING) 2.00 X 0 0 0 JASMINE TARKOFF SECOND VICE CHAIR 2.00 X X 0 0 0 JEFFREY KRAMER THIRD VICE CHAIR 2.00 X X 0 0 0 JERRY GIDNER DIRECTOR (OUTGOING) 2.00 X 0 0 0 JOHN WALKUP MD DIRECTOR 2.00 X 0 0 0 JULIE MOELIS DIRECTOR 2.00 X 0 0 0 MONTE REDMAN DIRECTOR 2.00 X 0 0 0 PAUL S DEVORE FINANCE CHAIR 2.00 X X 0 0 0 RANDI ZEMSKY DIRECTOR 2.00 X 0 0 0 ROVENA SCHIRLING DIRECTOR 2.00 X 0 0 0 SIDNEY KOCH DIRECTOR (OUTGOING) 2.00 X 0 0 0 STEPHEN BARRON CHAIR 4.00 X X 0 0 0 SUSAN COUREY PHD DIRECTOR 2.00 X 0 0 0 AMANDA TALTY PRESIDENT & CEO 40.00 X 267940 0 15850 DIANA FELNER VICE PRES., PUBLIC POLICY 40.00 X 136279 0 52580 KARON WILLIAMS VP. RESOURCE DEV & MARKETI 40.00 X 170341 0 22064 SONJA MASON-VIDAL VP OF FINANCE & ADM. 40.00 X 144687 0 19785 719247 0 110279 4 0 1 0 0 1286854 894431 2315412 31804 4496697 CONFERENCE INCOME 900099 171515 171515 171515 190767 190767 2513938 6910 2549024 20951 -35086 -14041 -49127 -14041 -35086 91446 1286854 123603 -32157 -32157 MISCELLANEOUS INCOME 900099 106191 106191 106191 4883886 263665 0 123524 399600 399600 300000 300000 862911 602727 152337 107847 1227946 910118 113018 204810 9208 6729 2479 127800 87447 9981 30372 145639 105491 14566 25582 39674 9747 26296 3631 34629 34629 362806 275687 37005 50114 143038 114911 28127 500871 367160 18902 114809 99583 49587 38377 11619 100489 53094 23997 23398 184980 137566 1534 45880 230207 207463 3311 19433 14041 4691 7282 2068 61295 31847 26243 3205 NATIONAL CONFERENCE 161459 161459 CHAPTER SUPPORT 77956 77956 MISCELLANEOUS 47038 44717 2321 MEMBERSHIP DUES 37448 23027 6145 8276 39266 21754 9164 8348 5207884 3992778 522787 692319 286413 134967 3064439 3096314 662482 1102926 7637 19725 117999 164955 168185 140477 35961 27708 7512894 6196112 48306 414695 11736131 11157402 284352 407459 1151316 863852 19702 5796 331196 0 353672 1455370 1961975 X 9063123 7813479 1217638 1381948 10280761 9195427 11736131 11157402 -323998 -761336 0 X X 0 1 X 1 1 1 X 4228564 3607075 3462232 3971216 4496697 19765784 4228564 3607075 3462232 3971216 4496697 19765784 1025838 18739946 178745 124391 120737 150792 190767 765432 123370 101125 3185 81614 197637 506931 21038147 640352 0.89080 0.85320 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: FUNDRAISING INCOME - 2018 AMOUNT: $ 123,370. 2019 AMOUNT: $ 101,125. 2021 AMOUNT: $ 61,295. 2022 AMOUNT: $ 91,446. MISCELLANEOUS INCOME - 2020 AMOUNT: $ 3,185. 2021 AMOUNT: $ 20,319. 2022 AMOUNT: $ 106,191. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 0 1 149213 0 0 1 4465 0 0 153678 0 PART I-A, LINE 1: TAA ADVOCATES TO ENSURE GOVERNMENT OFFICIALS UNDERSTAND TOURETTE SYNDROME (TS) AND TIC DISORDERS (TD) AND TO ENSURE POLICIES AND REGULATIONS BEING DRAFTED, RELEASED AND FINALIZED OR SIGNED INTO LAW ARE IN THE BEST INTERESTS OF THOSE WITH TS OR TD. WE ALSO ADVOCATE TO ENSURE ADEQUATE GOVERNMENT FUNDING IS PROVIDED FOR THE CDC TOURETTE SYNDROME PUBLIC HEALTH EDUCATION AND RESEARCH PROGRAM AND AT THE NATIONAL INSTITUTES OF HEALTH'S NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS AND STROKE AND THE NATIONAL INSTITUTE OF MENTAL HEALTH. 474000 4795 4795 474000 334000 140000 5146 5146 474000 334000 5518 5518 334000 334000 6521 6521 334000 326000 8000 6701 6701 334000 1.00000 1 0 168185 140477 27708 27708 OPERATING LEASE LIABILITY 322270 FINANCING LEASE LIABILITY 31402 353672 X 4168525 -761336 108632 -28028 -680732 4849257 34629 34629 4883886 5253859 108632 108632 5145227 34629 28028 62657 5207884 PART V, LINE 4: THE INTENDED USE OF THE ORGANIZATION'S ENDOWMENT FUNDS IS TO SUPPORT THE WORK OF THE PUBLIC EDUCATION (INFORMATION & REFERRAL SERVICE) PROGRAM. PART X, LINE 2: THE ASSOCIATION BELIEVES IT HAS NO UNCERTAIN TAX POSITIONS AS OF FEBRUARY 28, 2022 AND FEBRUARY 28, 2021 IN ACCORDANCE WITH ACCOUNTING STANDARDS CODIFICATION ("ASC") TOPIC 740, WHICH PROVIDES STANDARDS FOR ESTABLISHING AND CLASSIFYING ANY TAX PROVISIONS FOR UNCERTAIN TAX POSITIONS. PART XI, LINE 2D - OTHER ADJUSTMENTS: INDIRECT FUNDRAISING EXPENSE -28,028. PART XII, LINE 4B - OTHER ADJUSTMENTS: INDIRECT FUNDRAISING EXPENSE 28,028. 1 NORTH AMERICA 0 0 PROGRAM SERVICES RESEARCH GRANT TO FURTHER TOURETTE'S MISSION 150000 EUROPE (INCLUDING ICELAND & GREENLAND) 0 0 PROGRAM SERVICES RESEARCH GRANT TO FURTHER TOURETTE'S MISSION 150000 0 0 0 0 0 0 300000 0 300000 NORTH AMERICA RESEARCH GRANT TO FURTHER RESEARCH 150000 WIRE 0 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH GRANT TO FURTHER RESEARCH 150000 WIRE 0 2 0 0 0 0 0 0 PART I, LINE 2: GRANTEE IS REQUIRED TO SUBMIT ANNUAL PROGRESS REPORTS. PART III ACCOUNTING METHOD: GALA 1161427 1107677 53750 30380 786 10895 GOLF-LI 216873 179177 37696 1615 55669 18433 5825 1378300 1286854 91446 1615 55669 48813 786 16720 123603 -32157 1 AMERICAN BRAIN FOUNDATION 201 CHICAGO AVENUE MINNEAPOLIS MN 55415 411717098 501(C)(3) 100000 0 RESEARCH STANFORD UNIVERSITY O O BOB 884253 LOS ANGELES CA 90088 941156365 501(C)(3) 149600 0 RESEARCH WEST VIRGINIA UNIVERSITY 886 CHESNUT RIDGE ROAD PO BOX 6845 MORGAN WV 26506 550665758 501(C)(3) 150000 0 RESEARCH 3 PART I, LINE 2: THE ASSOCIATION MUST RECEIVE A FINAL PROGRESS REPORT DESCRIBING RESEARCH AND OUTCOMES AS WELL AS HOW FUNDS HAVE BEEN USED. ADVISORY BOARDS REVIEW AND APPROVE BEFORE FINAL PAYMENT IS MADE. X X X X X 0 0 0 0 0 0 0 0 0 AMANDA TALTY PRESIDENT & CEO 267400 0 0 0 540 0 8250 0 7600 0 283790 0 0 0 KARON WILLIAMS VP. RESOURCE DEV & MARKETI 170026 0 0 0 315 0 5376 0 16688 0 192405 0 0 0 DIANA FELNER VICE PRES., PUBLIC POLICY 135964 0 0 0 315 0 4786 0 47794 0 188859 0 0 0 SONJA MASON-VIDAL VP OF FINANCE & ADM. 144372 0 0 0 315 0 4490 0 15295 0 164472 0 0 0 X 489 31804 FMV 0 0 0 PART I, COLUMN (B): THE NUMBER IN COLUMN B REPRESENTS THE NUMBER OF SHARES RECEIVED. FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 IS PREPARED BY AN INDEPENDENT ACCOUNTING FIRM. THE FORM 990 IS PROVIDED TO EACH BOARD MEMBER FOR THEIR REVIEW. THE FORM 990 IS ONLY FILED AFTER EACH BOARD MEMBER FORMALLY APPROVES THE 990. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST POLICY IS SIGNED ANNUALLY BY BOARD MEMBERS AND MANAGEMENT. FORM 990, PART VI, SECTION B, LINE 15A THERE IS A PERSONNEL/COMPENSATION COMMITTEE. THE CHAIR ASSIGNS THE MEMBERS TO DO RESEARCH AND COME UP WITH RECOMMENDATIONS TO THE COMMITTEE FOR THE OFFICERS. FORM 990, PART VI, SECTION C, LINE 19 ALL DOCUMENTS ARE AVAILABLE UPON REQUEST. FORM 990, PART XII, LINE 2C: THE PROCESS OF OVERSEEING THE AUDIT AND SELECTION OF AN INDEPENDENT ACCOUNTANT HAS NOT CHANGED FROM THE PRIOR YEAR.