2023-12-13T13:43:08-06:00 2023-01-31 410746749 CLIFTONLARSONALLEN LLP 901 N GLEBE ROAD SUITE 200 ARLINGTON VA 22203 990 2022-02-01 133271855 AMYOTROPHIC LATERAL SCLEROSIS ASSN AMYO 2024078580 1300 WILSON BLVD 600 ARLINGTON VA 22209 GREGORY MITCHELL CHIEF FINANCIAL OFFICER 2024078580 2023-12-13 1 GREGORY MITCHELL XXX-XX-XXXX 0 ROBERT WILLIAMS P01345960 5712279500 2023-12-13 3 AAL1 IAL1 2022 2023-04-26 12:10:37Z THE ALS ASSOCIATION CALANEET BALAS 1300 WILSON BLVD 600 ARLINGTON VA 22209 77468178 0 4119 X WWW.ALS.ORG X 1985 DE LEADING THE FIGHT TO CURE AND TREAT ALS THROUGH RESEARCH, ADVOCACY AND CARE SERVICES. 31 31 547 31 0 0 37557524 53676289 0 0 2213860 1771537 21419 119782 39792803 55567608 15323942 18722140 0 0 13877954 36210639 333300 648986 22059606 15317102 28618054 44852298 84199819 -5059495 -28632211 98343083 94445022 7253250 30210557 91089833 64234465 X SEE SCHEDULE O FOR THE ASSOCIATION'S MISSION. ALSO SEE SCHEDULE O FOR DISCUSSION ON HOW THE ASSOCIATION RESTRUCTURED INTO A SINGLE CORPORATION. THE ALS ASSOCIATION LEADS THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL, CUTTING-EDGE RESEARCH AND TO EMPOWER PEOPLE WITH AMYOTROPHIC LATERAL SCLEROSIS AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT. 0 0 26960747 4405372 PATIENT AND COMMUNITY SERVICES: THE ASSOCIATION IS COMMITTED TO PROVIDING FULLY DEVELOPED, MANAGED AND EVALUATED PROGRAMS AND SERVICES TO PEOPLE LIVING WITH ALS, FAMILIES, CAREGIVERS AND PROFESSIONALS ACROSS THE UNITED STATES. PROGRAMS INCORPORATE THE PERSPECTIVES FROM KEY STAKEHOLDERS INCLUDING PEOPLE LIVING WITH THE DISEASE, SUBJECT MATTER EXPERTS, CLINICAL BEST PRACTICE, CAREGIVERS, TECHNOLOGY, ACADEMICIANS AND RESEARCH. ACTIVITIES ADDRESS CURRENT NEEDS AND EXPLORE FUTURE SERVICES, CREATING A FOUNDATION FOR INNOVATIVE AND ADVANCED PROGRAM DEVELOPMENT BASED ON SPECIFIC COMMUNITY NEEDS AND KNOWLEDGE ADVANCEMENTS. SPECIFIC ACTIVITIES INCLUDE 1) DEVELOPING AND IMPLEMENTING CLINICAL AND PROFESSIONAL EDUCATION PROGRAMS BASED ON ONGOING NEEDS ASSESSMENTS AND BEST PRACTICE; 2) IMPLEMENTING CERTIFIED CARE CENTER CERTIFICATION AND RECERTIFICATION PROGRAMS BASED ON NATIONALLY-RECOGNIZED STANDARDS OF PRACTICE, INCLUDING GRANTS TO SUPPORT CENTERS OF EXCELLENCE; 3) DEVELOPING STRATEGIES AND ACTUALIZING PLANS TO DELIVER CARE THROUGH OTHER THAN CERTIFIED CENTERS; 4) PROVIDING CURRENT INFORMATION, RESOURCES AND REFERRALS TO THE COMMUNITIES WE SERVE; AND 5) DEVELOPING AND IMPLEMENTING COMPREHENSIVE, CONSISTENT PROGRAMS AND SERVICES THAT ADDRESS INDIVIDUAL, FAMILY, AND CAREGIVER NEEDS BASED ON 'BEST PRACTICE AND AVAILABLE RESOURCES. 15622467 14316768 RESEARCH PROGRAMS - THE ASSOCIATION FUNDS SCIENTIFIC RESEARCH GRANTS TO DOCTORS/SCIENTISTS TO FIND THE CAUSE AND CURE OF AMYOTROPHIC LATERAL SCLEROSIS (ALS). 10549879 PUBLIC AND PROFESSIONAL EDUCATION: THE ASSOCIATION'S PUBLIC POLICY DEPARTMENT DEVELOPS AWARENESS AND UNDERSTANDING OF ALS AND THE WORK OF THE ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS, THE SCIENTIFIC COMMUNITY, AND ELECTED AND OTHER GOVERNMENT OFFICIALS. FOR THE YEAR ENDING JANUARY 31, 2023, THE ASSOCIATION WORKED WITH CONGRESS TO CONTINUE FUNDING FOR THE NATIONAL ALS REGISTRY AND THE ALS RESEARCH PROGRAM AT THE DEPARTMENT OF DEFENSE AS WELL AS FUNDING FOR ALS RESEARCH AT THE NATIONAL INSTITUTES OF HEALTH. IN ADDITION, THE ADVOCACY DEPARTMENT SECURED FUNDING FROM STATE GOVERNMENTS FOR CARE AND SUPPORT OF PEOPLE LIVING WITH ALS. 53133093 1 1 0 1 0 0 0 0 0 1 1 0 0 1 1 1 1 0 0 0 1 1 0 1 1 0 0 1 1 1 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 1 281 0 1 547 1 0 0 0 0 0 1 0 0 0 0 1 0 0 0 X 31 31 0 0 0 0 1 1 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 AK AL AR AZ CA CO CT DC DE FL GA HI IA ID IL IN KS KY LA MA MD ME MI MN MO MS MT NC ND NE NH NJ NM NV NY OH OK OR PA RI SC SD TN TX UT VA VT WA WV WY X X GREGORY MITCHELL CHIEF FINANCIAL OFFICER 2024078580 1300 WILSON BLVD 600 ARLINGTON VA 22209 CALANEET BALAS PRESIDENT AND CEO 37.50 X 456666 0 41099 TINA ZEFF CHIEF OPERATIONS OFFICER 37.50 X 308028 0 41556 GREG MITCHELL CHIEF FINANCIAL OFFICER 37.50 X 306968 0 14816 NEIL THAKUR CHIEF MISSION OFFICER 37.50 X 275627 0 44984 DEAN FEENER CHIEF INFORMATION AND MARKETING OFFICER 37.50 X 247460 0 12356 MONICA SANTA CRUZ CHIEF PEOPLE OFFICER 37.50 X 247360 0 12615 LANCE SLAUGHTER SVP STRATEGIC ALLIANCES AND GOVERNANCE 37.50 X 241396 0 22878 VICKIE LOBELLO SENIOR VICE PRESIDENT ORGANIZATIONAL CHANGE 37.50 X 228324 0 19143 BRIAN FREDERICK SENIOR VICE PRESIDENT STRATEGIC COMMUNICATIONS 37.50 X 224926 0 10962 KULDIP DAVE SENIOR VICE PRESIDENT RESEARCH 37.50 X 222758 0 49556 KEITH GARY VICE PRESIDENT MISSION ACCELERATION 37.50 X 214098 0 33590 SCOTT KAUFFMAN CHAIR 5.00 X X 0 0 0 FRED M DEGRANDIS VICE-CHAIR 5.00 X X 0 0 0 SUE GORMAN IMMEDIATE PAST CHAIR 5.00 X X 0 0 0 CONNIE HOUSTON TREASURER 4.00 X X 0 0 0 SANDRA PIERSOL SECRETARY 5.00 X X 0 0 0 JINSY ANDREWS TRUSTEE 2.00 X 0 0 0 EUGENE BRANDON PHD TRUSTEE 2.00 X 0 0 0 DAVID VAN DE RIET TRUSTEE 2.00 X 0 0 0 CLIFTON GOOCH MD TRUSTEE (THRU 02/22) 2.00 X 0 0 0 CHRISTI L KOLARCIK PHD TRUSTEE 2.00 X 0 0 0 CHARLIE ROBINSON D SC PE TRUSTEE 2.00 X 0 0 0 J THOMAS MAY TRUSTEE 2.00 X 0 0 0 JOHN P KRAVE JD TRUSTEE 2.00 X 0 0 0 JOHN ROBINSON TRUSTEE (THRU 02/22) 2.00 X 0 0 0 JUDY PRATT DMD TRUSTEE 2.00 X 0 0 0 KENNETH MENKHAUS TRUSTEE 2.00 X 0 0 0 KEVIN SPINELLA TRUSTEE (THRU 12/22) 2.00 X 0 0 0 LARRY FALIVENA TRUSTEE 2.00 X 0 0 0 LOU LIBBY MD TRUSTEE 2.00 X 0 0 0 MARK CALMES TRUSTEE 2.00 X 0 0 0 MARK STANCIL TRUSTEE 2.00 X 0 0 0 MILLIE ARNOLD TRUSTEE 2.00 X 0 0 0 NANCY LEAMOND TRUSTEE 2.00 X 0 0 0 PAUL INGHOLT TRUSTEE 2.00 X 0 0 0 TOBIN M KUCHARSKI TRUSTEE (THRU 02/22) 2.00 X 0 0 0 TOM CARROLL TRUSTEE 2.00 X 0 0 0 WARREN NELSON TRUSTEE 2.00 X 0 0 0 WENDY J SCHRIBER TRUSTEE 2.00 X 0 0 0 KEN BALTES TRUSTEE (THRU 09/22) 2.00 X 0 0 0 MICHAEL BENATAR TRUSTEE 2.00 X 0 0 0 KATHLEEN BOYCE TRUSTEE 2.00 X 0 0 0 AMY BRACHIO TRUSTEE 2.00 X 0 0 0 JOHN ROCKY DALLUM TRUSTEE 2.00 X 0 0 0 PETER MCKOWN TRUSTEE 2.00 X 0 0 0 REBECCA MOSS TRUSTEE 2.00 X 0 0 0 KENTON VAN HARTEN TRUSTEE 2.00 X 0 0 0 2973611 0 303555 28 0 1 0 MCDERMOTT WILL & EMERY PO BOX 1675 CAROL STREAM IL 601321675 ATTORNEY (LEGAL SERVICES) 868347 BARNES & THORNBURG LLP 11 SOUTH MERIDIAN ST INDIANAPOLIS IN 46204 ATTORNEY (LEGAL SERVICES) 792577 MCCORMICK GROUP 20 MAPLE ST LEXINGTON MA 02420 CONSULTING SERVICES 404394 THROUGHCO COMMUNICATIONS 2109 BROADWAY 10-18 NEW YORK NY 10023 MARKETING & COMMUNICATIONS SERVICES 275637 FAEGRE DRINKER BIDDLE & REATH LLP PO BOX 536777 PITTSBURGH PA 152535909 PROFESSIONAL SERVICES FOR LEGISLATIVE PU 161241 12 1198414 7846854 1976304 42654717 542107 53676289 1849992 1849992 83 83 19066395 19144850 -78455 -78455 -78455 2755720 7846854 2755720 0 119699 119699 119699 55567608 0 0 1891319 14641389 14641389 2012096 2012096 2068655 2068655 2009534 655782 1262342 91410 27608816 15966274 2013950 9628592 1706558 945498 205493 555567 2683237 1535337 199699 948201 2202494 1251771 212462 738261 1998496 11325 1987171 215467 4663 88147 122657 172117 172117 648986 648986 180821 180821 4511839 2470962 1175069 865808 2043993 694580 28220 1321193 2070747 546300 71601 1452846 5455057 2207417 541600 2706040 1541161 817587 132799 590775 2549205 1256172 474205 818828 227710 128857 41311 57542 28346 28346 1924151 960944 184623 778584 185917 85629 34450 65838 CHAPTER SUPPORT 3534121 3534121 TELECOMMUNICATIONS 483048 245266 35653 202129 PRINTING AND PUBLICATIO 421025 225737 14108 181180 DUES AND SUBSCRIPTIONS 295805 101526 58911 135368 779028 593088 36139 149801 84199819 53133093 9007120 22059606 X 2978000 441000 0 2537000 5640945 4617066 924888 732559 4188908 13399732 2518929 2928243 1639445 1909791 16476709 11877931 3378855 4598778 78900690 58740613 1150423 7518240 98343083 94445022 3519829 13447062 1150000 3462525 0 240955 0 3396470 2583421 9663545 7253250 30210557 X 79396160 52105755 11693673 12128710 91089833 64234465 98343083 94445022 X -28632211 -6798204 8575047 X 0 1 X 1 0 X 29429700 34202008 33002036 37557524 53676289 187867557 29429700 34202008 33002036 37557524 53676289 187867557 503060 187364497 2641824 2782381 1985828 2158934 1850075 11419042 56636 57282 18824 21419 119699 273860 199560459 293362 0.93890 0.92300 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: OTHER INCOME - 2018 AMOUNT: $ 56,636. 2019 AMOUNT: $ 57,282. 2020 AMOUNT: $ 18,824. 2021 AMOUNT: $ 21,419. 2022 AMOUNT: $ 119,699. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 183829 688506 872335 52260758 53133093 1000000 250000 0 0 1000000 1000000 1000000 1000000 4000000 6000000 565604 220698 177409 872335 1836046 250000 250000 250000 250000 1000000 1500000 64007 7109 183829 254945 6509730 -503564 5305205 700961 6516315 429109 435694 6509730 6516315 669572 669572 6516315 6454731 587974 526390 6516315 6516315 -61584 6454731 0.30723 0.69277 0 0 1327429 273078 1054351 979173 630086 349087 14170107 10974767 3195340 4598778 BENEFICIAL INTEREST IN PERPETUAL TRUSTS 763677 CONTRIBUTIONS RECEIVABLE FROM REMAINDER TRUSTS 103853 RIGHT OF USE ASSET 6650710 7518240 ANNUITY PAYMENT LIABILITY 959985 LEASE LIABILITIES - OPERATING 8703560 9663545 X 70288037 -6798204 13105854 -282893 6024757 64263280 180821 -8876493 -8695672 55567608 97143405 13105854 18553 13124407 84018998 180821 180821 84199819 PART V, LINE 4: EARNINGS FROM THE ENDOWMENT MUST BE USED TO SUPPORT RESEARCH ACTIVITIES. UPON EXPIRATION OF THE TERM ENDOWMENT, THE CORPUS MAY ALSO BE USED TO SUPPORT RESEARCH ACTIVITIES. PART X, LINE 2: THE ASSOCIATION DID NOT HAVE ANY UNRELATED TAXABLE INCOME FOR THE YEARS ENDED JANUARY 31, 2023 AND 2022. ACCORDINGLY, NO PROVISION FOR INCOME TAXES HAS BEEN PROVIDED IN THE FINANCIAL STATEMENTS. THE ASSOCIATION FOLLOWS THE ACCOUNTING STANDARD REGARDING THE RECOGNITION AND MEASUREMENT OF UNCERTAIN TAX POSITIONS. THE ASSOCIATION EVALUATED ITS TAX POSITIONS AND DETERMINED THAT ITS POSITIONS ARE MORE-LIKELY-THAN-NOT TO BE SUSTAINED ON EXAMINATION. THE ASSOCIATION'S TAX RETURNS ARE SUBJECT TO REVIEW AND EXAMINATION BY FEDERAL AND STATE AUTHORITIES. PART XI, LINE 2D - OTHER ADJUSTMENTS: GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUSTS -110,870. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS -172,023. PART XI, LINE 4B - OTHER ADJUSTMENTS: EVENTS, NET OF EXPENSES NOT ON AUDITED FINANCIAL STATEMENT -2,755,720. EXCESS FAIR VALUE OF ASSETS ACQUIRED -6,120,773. PART XII, LINE 2D - OTHER ADJUSTMENTS: UNUSED GRANTS 18,553. 1 EAST ASIA & THE PACIFIC 0 0 GRANTS RESEARCH 224843 NORTH AMERICA 0 0 GRANTS RESEARCH 550000 EUROPE 0 0 GRANTS RESEARCH 1262365 SUB-SAHARAN AFRICA 0 0 GRANTS RESEARCH 50000 0 0 0 0 0 0 2087208 0 2087208 SUB-SAHARAN AFRICA SEED GRANTS PROGRAM 50000 WIRE TRANSFER 0 N/A N/A EAST ASIA AND THE PACIFIC SEED GRANTS PROGRAM 49843 WIRE TRANSFER 0 N/A N/A EAST ASIA AND THE PACIFIC CLINICAL TRIAL AWARD 125000 WIRE TRANSFER 0 N/A N/A EAST ASIA AND THE PACIFIC SEED GRANTS PROGRAM 50000 WIRE TRANSFER 0 N/A N/A EUROPE DRUG DEVELOPMENT CONTRACT 300000 CHECK 0 N/A N/A EUROPE PREVENTION PROGRAM 200000 WIRE TRANSFER 0 N/A N/A EUROPE STRATEGIC INITIATIVE 100000 WIRE TRANSFER 0 N/A N/A EUROPE POST DOCTORAL FELLOWSHIP 75000 CHECK 0 N/A N/A EUROPE SEED GRANTS PROGRAM 50000 WIRE TRANSFER 0 N/A N/A EUROPE INVESTIGATOR INITIATED AWARD MULTI-YEAR 42223 WIRE TRANSFER 0 N/A N/A EUROPE PREVENTION PROGRAM 200000 WIRE TRANSFER 0 N/A N/A EUROPE INVESTIGATOR INITIATED AWARD MULTI-YEAR 75000 CHECK 0 N/A N/A EUROPE POST DOCTORAL FELLOWSHIP 75000 CHECK 0 N/A N/A EUROPE SEED GRANTS PROGRAM 49987 WIRE TRANSFER 0 N/A N/A EUROPE INVESTIGATOR INITIATED AWARD MULTI-YEAR 45155 WIRE TRANSFER 0 N/A N/A EUROPE SEED GRANTS PROGRAM 50000 WIRE TRANSFER 0 N/A N/A NORTH AMERICA DRUG DEVELOPMENT CONTRACT 100000 WIRE TRANSFER 0 N/A N/A NORTH AMERICA PREVENTION PROGRAM 200000 WIRE TRANSFER 0 N/A N/A NORTH AMERICA INVESTIGATOR INITIATED AWARD MULTI-YEAR 50000 CHECK 0 N/A N/A NORTH AMERICA TRIAL CAPACITY PROGRAM 200000 CHECK 0 N/A N/A 20 0 0 0 0 0 0 0 PART I, LINE 2: FOREIGN RESEARCHERS, SIMILAR TO U.S. RESEARCHERS, ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING AND APPROVED BY OUR RESEARCH DEPARTMENT. PART III ACCOUNTING METHOD: X X X X X X X 1 LAUTMAN MASKA NEILL & COMPANY 1730 RHODE ISLAND AVE NW SUITE 301 WASHINGTON DC 20036 FUNDRAISING COUNSEL 0 4586736 366850 4219886 CREATIVE DIRECT RESPONSE INC 16900 SCIENCE DR SUITE 210 BOWIE MD 20715 FUNDRAISING COUNSEL 0 0 282136 -282136 4586736 648986 3937750 AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY DC KANSAS CITY WALK 695373 666883 28490 9907 3966 460 135 14022 WASHINGTON WALK 519377 477341 42036 2486 20184 178 2125 17063 4 9387824 6702630 2685194 169268 597217 109263 79775 1729671 10602574 7846854 2755720 181661 621367 109901 82035 1760756 2755720 0 SCHEDULE G, PART I, LINE 2B, COLUMN (V) THE ASSOCIATION RECEIVES ALL PROCEEDS FROM OUR DIRECT MAIL APPEALS PROGRAM INCLUDING TELEMARKETING. HOWEVER, THE ASSOCIATION IS RESPONSIBLE TO PAY FOR ALL EXPENSES INCURRED IN THE IMPLEMENTATION AND PRODUCTION OF ALL THE DIRECT MAIL AND TELEMARKETING SOLICITATIONS. 1 ALABAMA NEUROLOGY ASSOCIATES 3105 INDEPENDENCE DR STE 105 BIRMINGHAM AL 35209 630976742 501(C)3 10000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 RECOGNIZED TREATMENT CENTER ALLEGHENY HEALTH NETWORK 490 E NORTH AVE STE 500 PITTSBURGH PA 15212 453674924 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH ATRIUM HEALTH FOUNDATION 2709 WATER RIDGE PARKWAY STE 300 CHARLOTTE NC 28217 566060481 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH AVERA MCKENNAN 1301 S CLIFF AVE STE 506 SIOUX FALLS SD 57105 460224743 501(C)3 10000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 RECOGNIZED TREATMENT CENTER BAYLOR COLLEGE OF MEDICINE PO BOX 301207 DALLAS TX 75303 741613878 501(C)3 25000 0 N/A N/A ANNUAL GRANT PAYMENT FY23 CENTER OF EXCELLENCE/RESEARCH BAYLOR COLLEGE OF MEDICINE ONE BAYLOR PLAZA 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ALL GRANT AWARDED RESEARCHERS ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING TO OUR RESEARCH DEPARTMENT. THE ASSOCIATION REQUIRES PROGRESS REPORTS THROUGHOUT THE AWARD TO CONTINUE TO RECEIVE FUNDS. X X X X X 0 0 0 0 0 0 0 0 0 CALANEET BALAS PRESIDENT AND CEO 404213 0 50000 0 2453 0 19051 0 22048 0 497765 0 0 0 TINA ZEFF CHIEF OPERATIONS OFFICER 268389 0 37500 0 2139 0 14818 0 26738 0 349584 0 0 0 GREG MITCHELL CHIEF FINANCIAL OFFICER 272824 0 32000 0 2144 0 14816 0 0 0 321784 0 0 0 NEIL THAKUR CHIEF MISSION OFFICER 242988 0 30500 0 2139 0 18246 0 26738 0 320611 0 0 0 DEAN FEENER CHIEF INFORMATION AND MARKETING OFFI 245451 0 0 0 2009 0 12356 0 0 0 259816 0 0 0 MONICA SANTA CRUZ CHIEF PEOPLE OFFICER 244142 0 0 0 3218 0 12530 0 85 0 259975 0 0 0 LANCE SLAUGHTER SVP STRATEGIC ALLIANCES AND GOVERNAN 237763 0 0 0 3633 0 13169 0 9709 0 264274 0 0 0 VICKIE LOBELLO SENIOR VICE PRESIDENT ORGANIZATIONAL 223885 0 0 0 4439 0 8774 0 10369 0 247467 0 0 0 BRIAN FREDERICK SENIOR VICE PRESIDENT STRATEGIC COMM 222913 0 0 0 2013 0 10962 0 0 0 235888 0 0 0 KULDIP DAVE SENIOR VICE PRESIDENT RESEARCH 220727 0 0 0 2031 0 13643 0 35913 0 272314 0 0 0 KEITH GARY VICE PRESIDENT MISSION ACCELERATION 209709 0 0 0 4389 0 11542 0 22048 0 247688 0 0 0 PART I, LINE 3 THE EXECUTIVE COMPENSATION COMMITTEE PERFORMS THE ANNUAL REVIEW OF THE PRESIDENT AND CEO AND DETERMINES THE SALARY AND/OR BONUSES USING INFORMATION OBTAINED FROM OUTSIDE SOURCES FOR SIMILAR SIZED ORGANIZATIONS. THIS IS REVIEWED AND COMPARED WITH MARKET DATA FROM ORGANIZATIONS OF A SIMILAR SIZE AND IN THE SAME INDUSTRY. THIS PROCESS RECENTLY TOOK PLACE IN 2023. X 72 120465 NET PROCEEDS X 46 245957 AVG HIGH/LOW AT DATE X 2 174793 NET PROCEEDS X CRYPTO CURRENCY 4 892 NET PROCEEDS 0 0 1 1 PART I, COLUMN (B): COLUMN B REPRESENTS THE NUMBER OF CONTRIBUTIONS PART I, LINE 32B: THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION USED THE SERVICES OF A CAR PROGRAM DONATION PROCESSOR SERVICE, ADVANCED REMARKETING SERVICES INC., TO ACCEPT, PROCESS, AND SELL NON-CASH DONATIONS OF AUTOMOBILES. THE ASSOCIATION USES THE SERVICES OF THE GIVING BLOCK TO ACCEPT, PROCESS AND SELL CRYPTO CURRENCY DONATIONS. THE ASSOCIATION USES BANK OF AMERICA MERRILL LYNCH TO ACCEPT, PROCESS AND SELL STOCK DONATIONS. FORM 990, PART III - RESTRUCTURING & UNIFICATION OF AFFILIATED CHAPTERS BEGINNING FEBRUARY 1, 2022, THE ASSOCIATION RESTRUCTURED TO A SINGLE CORPORATION. AS OF JANUARY 31, 2023, THE ASSOCIATION ASSUMED THE OPERATING ACTIVITY OF 17 OF ITS AFFILIATED CHAPTERS WHICH AGREED TO MERGE INTO THE ASSOCIATION. THIS MEANS THAT FORMER CHAPTER EMPLOYEES ARE NOW EMPLOYEES OF THE ASSOCIATION AND ALL NEW REVENUE AND EXPENSE ACTIVITY FORMERLY ASSOCIATED WITH THE 17 AFFILIATED CHAPTERS ARE RECORDED BY THE ASSOCIATION AND INCLUDED IN THIS TAX RETURN. TWO ADDITIONAL CHAPTERS HAVE MERGED INTO THE ASSOCIATION POST JANUARY 31, 2023. EFFECTIVE SEPTEMBER 1, 2023, 18 OF THE MERGED CHAPTERS COMPLETED THE MERGER PROCESS WITH THE ASSOCIATION. THE MERGED CHAPTERS ARE NO LONGER OPERATING AND HAVE TERMINATED THEIR BOARDS, CORPORATE STATUS AND CHARTER AGREEMENTS. THEY HAVE SUBSEQUENTLY TRANSFERRED ANY UNSPENT RESERVES TO THE ASSOCIATION AS PART OF COMPLETING THE MERGER. THE REMAINING CHAPTERS WHO DID NOT UNIFY FILED A LAWSUIT AGAINST ASSOCIATION IN JANUARY 2023 TO KEEP THE ASSOCIATION FROM MOVING FORWARD WITH UNIFICATION. THE ASSOCIATION ULTIMATELY SETTLED THE CLAIM WITH THIS GROUP. EFFECTIVE SEPTEMBER 1, 2023, THESE CHAPTERS ARE NO LONGER AFFILIATED WITH THE ASSOCIATION AS PART OF THE EXECUTED SETTLEMENT AGREEMENT. FORM 990, PART VI, SECTION A, LINE 1A BOARD OFFICERS AND CHAIRS OF STANDING COMMITTEES UP TO 10 MEMBERS FORM 990, PART VI, SECTION A, LINE 6 MEMBERS. THE MEMBERS OF THE ASSOCIATION (THE "MEMBERS AND EACH, A "MEMBER") SHALL BE CHARTERED CHAPTERS OF THE ASSOCIATION (THE "CHAPTERS AND EACH, A "CHAPTER"). CHAPTERS WITHOUT A CHARTER OR OTHER ENTITIES OR ORGANIZATIONS MAY BE AFFILIATED WITH AND/OR MANAGED BY THE ASSOCIATION, BUT ARE NOT ENTITLED TO ALL OF THE RIGHTS OF CHAPTERS AS PROVIDED BY THESE BYLAWS AND THE CHAPTER CHARTER AGREEMENT. CHAPTERS SHALL BE ADMITTED TO MEMBERSHIP BY THE BOT BASED ON CRITERIA CONSISTENT WITH THESE BYLAWS AS ADOPTED BY THE BOT. FORM 990, PART VI, SECTION A, LINE 7A BOARD OF REPRESENTATIVES ELECTS THE MEMBERS OF THE BOARD OF TRUSTEES. BOT IS COMPOSED OF A REPRESENTATIVE FROM EACH MEMBER/CHAPTER. FORM 990, PART VI, SECTION B, LINE 11B THE 990 IS REVIEWED IN ITS ENTIRETY BY THE FINANCE COMMITTEE OF THE BOARD OF TRUSTEES AND ONCE ACCEPTED AND APPROVED, FULL RETURN IS PRESENTED TO ENTIRE BOARD OF TRUSTEES PRIOR TO THE SUBMISSION TO THE INTERNAL REVENUE SERVICE. FORM 990, PART VI, SECTION B, LINE 12C ANNUALLY BOARD MEMBERS SIGN A NEW CONFLICT OF INTEREST STATEMENT AS WELL AS ALL STAFF. MANAGEMENT TRACKS THE CONFLICT OF INTEREST STATEMENTS FOR ALL BOARD AND COMMITTEE MEMBERS AS WELL AS STAFF. WHERE IT IS DETERMINED THAT AN ACTUAL CONFLICT OF INTEREST EXITS, THE RESPONSIBLE PERSON HAVING THE CONFLICT OF INTEREST SHALL NOT BE COUNTED IN DETERMINING THE PRESENCE OF A QUORUM FOR PURPOSES OF THE VOTE ON THAT CONTRACT OR TRANSACTION. SUCH RESPONSIBLE PERSON MAY MAKE A STATEMENT OR PRESENTATION REGARDING THE MATTER OR RESPOND TO QUESTIONS, BUT SUCH RESPONSIBLE PERSON (I) SHALL NOT PARTICIPATE IN OR BE PERMITTED TO HEAR THE BOARD'S OR ASSOCIATION COMMITTEE'S DISCUSSION OF THE MATTER; (II) SHALL NOT ATTEMPT TO EXERT HIS OR HER PERSONAL INFLUENCE WITH RESPECT TO THE MATTER, EITHER AT OR OUTSIDE THE MEETING; (III) SHALL NOT VOTE ON THE CONTRACT OR TRANSACTION; AND (IV) SHALL NOT BE PRESENT IN THE MEETING ROOM WHEN THE VOTE IS TAKEN. FORM 990, PART VI, SECTION B, LINE 15 THE EXECUTIVE COMPENSATION COMMITTEE PERFORMS THE ANNUAL REVIEW OF THE PRESIDENT AND CEO AND DETERMINES SALARY AND/OR BONUSES USING INFORMATION OBTAINED FROM OUTSIDE SOURCES FOR SIMILAR SIZED ORGANIZATIONS. THIS IS REVIEWED AND COMPARED WITH MARKET DATA FROM ORGANIZATIONS OF A SIMILAR SIZE AND IN THE SAME INDUSTRY. THE PROCESS DESCRIBED HERE WAS LAST COMPLETED FOR THE FISCAL YEAR 01/31/23 THE PRESIDENT AND CEO REVIEWS ALL SENIOR LEVEL MANAGEMENT AND DETERMINES SALARY AND/OR BONUSES USING INFORMATION OBTAINED FROM OUTSIDE SOURCES FOR SIMILAR SIZED ORGANIZATIONS. THIS IS REVIEWED AND COMPARED WITH MARKET DATA FROM ORGANIZATIONS OF A SIMILAR SIZE AND IN THE SAME INDUSTRY. THE PROCESS DESCRIBED HERE WAS LAST COMPLETED FOR THE FISCAL YEAR 01/31/23 FORM 990, PART VI, SECTION C, LINE 19 THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION'S FORM 990S, FINANCIAL STATEMENTS, CONFLICT OF INTEREST POLICY AND GOVERNING DOCUMENTS ARE AVAILABLE FOR REVIEW AT ITS OFFICE UPON WRITTEN REQUEST. FORM 990 AND THE FINANCIAL STATEMENTS ARE AVAILABLE ON ITS WEBSITE AS WELL. FORM 990, PART XI, LINE 9: CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS -172,023. GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUSTS -110,870. EXCESS FAIR VALUE OF ASSETS ACQUIRED OVER LIABILITIES ASSUMED 6,120,773. SPECIAL EVENT EXPENSES 2,755,720. UNUSED GRANTS -18,553.