2023-11-15T13:12:30-05:00 2022-12-31 464265129 CASTLE & COMPANY CPAS PLLC 7887 SAN FELIPE ST STE 122 HOUSTON TX 770631600 990 2022-01-01 760661966 THE LONE STAR CHAPTER OF THE NATIONAL HEMOPHILIA FOUNDATION LONE 7136866100 5600 NORTHWEST CENTRAL ROAD STE 140 HOUSTON TX 77092 AMANDA WOLGAMOTT PRESIDENT 7136866100 2023-11-14 true AMANDA WOLGAMOTT 999009999 true DAVID W CASTLE P00542980 7136299770 2023-11-14 2022 2023-04-26 12:10:37Z LONE STAR BLEEDING DISORDERS FOUNDA AMANDA WOLGAMOTT SAME AS ABOVE HOUSTON TX 77092 690748 false X WWW.LONESTARBLEEDINGDISORDERS.ORG X 1985 TX DEDICATED TO TREATMENT AND CURE OF HEMOPHILIA RELATED BLEEDING DISORDERS, ASSOCIATED COMPLICATIONS AND THEIR TREATMENTS, AND IMPROVED QUALITY OF LIFE FOR ALL AFFECTED THROUGH RESEARCH, ADVOCACY, EDUCATION, AND OTHER SERVICES. 7 7 4 25 6908 733254 670041 14171 19549 0 -25857 747425 663733 33840 86763 0 108921 129675 0 3560 335097 439973 477858 656411 269567 7322 1306464 1313786 0 1306464 1313786 X SEE SCHEDULE O false false 564262 86763 19549 EDUCATION AND TRAINING: THE LONE STAR BLEEDING DISORDERS FOUNDATION (LONE STAR BDF) AIDED AND PROMOTED THE EDUCATION OF PERSONS WITH HEMOPHILIA, THEIR FAMILIES, THE GENERAL PUBLIC, AND THE MEDICAL/SCIENTIFIC COMMUNITY REGARDING ALL ASPECTS OF HEMOPHILIA, RELATED COMPLICATIONS, AND TREATMENT. CONTINUED ON SCHEDULE O. 22135 COMMUNITY NEEDS: LONE STAR BDF PROMOTED ACCESS TO HIGH QUALITY, SAFE THERAPEUTIC MATERIALS CRUCIAL IN THE TREATMENT OF HEMOPHILIA AND COMPLICATIONS OF BLEEDING DISORDERS, AND ENCOURAGED THE COMPREHENSIVE CARE INCLUDING MENTAL WELL- BEING OF PERSONS WITH A BLEEDING DISORDER. THROUGH THE HELPING HANDS PROGRAM, LONE STAR BDF ASSISTED OVER 50 FAMILIES IN CRISIS WHO WERE UNABLE TO PAY OR RECEIVE TREATMENT FOR THEIR MEDICAL CONDITION, OR HAD AN UNUSUAL STRAIN PLACED ON HOUSEHOLD FINANCES BECAUSE OF THEIR BLEEDING DISORER. 586397 true true false true false false false false false false true false false false false false false false false false false false false false true false false true true false false false false false false false false false false false false false false false false false false true 6 0 4 true true true false false false false false false false false false false false false false X 7 7 false false false false false false false true true false true true true true true true false false false false false X MELISSA COMPTON 7136866100 5600 NORTHWEST CENTRAL ROAD 140 HOUSTON TX 77092 MELISSA COMPTON EXECUTIVE DI 40.00 X 64534 0 0 AARON GONZALES TRUSTEE 2.00 X 0 0 0 CELIA PATINO TRUSTEE 2.00 X 0 0 0 SABRINA FARINA TRUSTEE X 0 0 0 TRINH NGUYEN TRUSTEE X 0 0 0 AMANDA WOLGAMOTT PRESIDENT 4.00 X X 0 0 0 ALLISON POHL 1ST VICE PRE 3.00 X X 0 0 0 RAY STANHOPE 2ND VICE PRE 3.00 X X 0 0 0 LAURA PORTALES SECRETARY 3.00 X X 0 0 0 JAMES SETLIFF TREASURER 3.00 X X 0 0 0 64534 false false false 62465 607576 670041 EDUCATION CONFERENCE 611710 13799 13799 FACTOR FRIENDS PUBLICATION 541800 5750 5750 19549 62465 27015 -27015 -27015 MISCELLANEOUS 541800 1158 1158 1158 663733 13799 6908 -27015 X 76763 76763 10000 10000 119753 87486 32267 9922 7454 2468 2925 2925 7959 7912 24 23 23278 21561 1717 13196 13196 20780 20780 1188 1188 340 340 3819 3819 FACILITY COSTS FOR EVENTS 228491 228491 CHILDCARE AT EVENTS 29304 29304 HELPING HANDS AID 21281 21281 ENTERTAINMENT AT EVENTS 19173 19173 68239 56192 8510 3537 656411 586397 66454 3560 1284049 1313786 22075 4764 4764 340 1306464 1313786 0 0 X 1306464 1313786 1306464 1313786 1306464 1313786 7322 X false false false X 791878 702751 306890 733254 670041 3204814 791878 702751 306890 733254 670041 3204814 1561265 1643549 961 961 38898 39000 25500 11000 1158 115556 3321331 48087 0.49480 0.50520 X PART II, LINE 10 OTHER INCOME 115,556 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true true false false false false true 750 true 750 false 1500 false SCHEDULE C, PART II-B, LINE 1 BY WORKING WITH FEDERAL AND STATE LAWMAKERS, OTHER GOVERNMENT AGENCIES AND OFFICIALS, AND INDUSTRY AND ALLIED ORGANIZATIONS, LONE STAR BLEEDING DISORDERS FOUNDATION (LONE STAR BDF) ADVOCATES FOR POLICIES THAT PROMOTE THE HEALTH, SAFETY, RIGHTS AND ACCESS TO CARE FOR PERSONS WITH BLEEDING DISORDERS. ANNUALLY IN MARCH, LONE STAR BDF PARTICIPATES IN WASHINGTON DAYS, A GRASSROOTS EVENT ORGANIZED BY THE NATIONAL HEMOPHILIA FOUNDATION THAT BRINGS PATIENTS TO DC TO MEET WITH MEMBERS OF CONGRESS. 4764 4764 UNITE WALKS 62465 62465 8853 2641 4017 11504 62465 62465 8853 2641 4017 11504 27015 -27015 false NATIONAL HEMOPHILIA FOUNDATION 7 PENN PLAZA ST 1204 NEW YORK NY 10001 135641857 C3 10000 TEXAS CENTRAL HEMOPHILIA 12700 HILLCREST RD DALLAS TX 75230 751187148 C3 25000 TEXAS BLEEDING DISORDERS CAMP FOUND 20212 CHAMPION FOREST DR ST 700312 SPRING TX 77379 462115460 C3 35083 SCHOLARSHIPS 4 10000 FORM 990, PART III FORM 990, PART III, LINE 1, THE ORGANIZATION'S MISSION: THE LONE STAR BLEEDING DISORDERS FOUNDATION (LONE STAR BDF) IS DEDICATED TO THE TREATMENT AND THE CURE OF HEMOPHILIA RELATED BLEEDING DISORDERS, COMPLICATIONS OF THOSE DISORDERS AND THEIR TREATMENTS, AS WELL AS TO IMPROVING THE QUALITY OF LIFE FOR ALL THOSE AFFECTED THROUGH THE PROMOTION AND SUPPORT OF RESEARCH, ADVOCACY, EDUCATION, AND OTHER SERVICES. FORM 990, PART III, LINE 4A, PROGRAM SERVICE ACCOMPLISHMENTS: THE TEXAS BLEEDING DISORDERS CONFERENCE (TBDC) WAS A JOINT EFFORT BETWEEN LONE STAR BDF AND TEXAS CENTRAL BLEEDING DISORDERS BRINGING OVER 800 PEOPLE FROM ALL OVER THE STATE OF TEXAS TOGETHER IN SAN ANTONIO FOR A WEEKEND OF EDUCATION, NETWORKING, AND FUN. ACTIVITIES WERE PLANNED FOR THE WHOLE FAMILY, CHILDCARE WAS PROVIDED, AND SPANISH ACCOMODATIONS WERE MADE FOR BILINGUAL PARTICIPANTS. SESSIONS WERE OFFERED TO MAKE EVERY STEP OF LIFE WITH A BLEEDING DISORDER BETTER. THE JULY 2022 CONFERENCE BROUGHT THE RETURN OF AN IN-PERSON, ENGAGING EXPERIENCE FOR PARTICIPANTS; A MUCH ANTICIPATED CHANGE FROM THE VIRTUAL CONFERENCES DURING THE COVID-19 PANDEMIC. LONE STAR BDF PROVIDED CAMP SPONSORSHIPS FOR CAMPERS AT CAMP AILIHPOMEH, A PLACE WHERE BOYS THROUGHOUT TEXAS MEET AND BUILD STRONG RELATIONSHIPS WITH OTHER BOYS WITH BLEEDING DISORDERS. CAMP AILIHPOMEH (HEMOPHILIA SPELLED BACKWARDS) BEGAN IN THE SUMMER OF 1979 AS THE FIRST CAMP FOR CHILDREN TRADITIONALLY EXCLUDED FROM SUMMER CAMP PROGRAMS. EACH SUMMER, THE CAMP SERVES AROUND 140 KIDS. IN THE SPRING AND SUMMER, LONE STAR BDF HOSTED REGIONAL FAMILY EDUCATION DAYS WHERE FAMILIES AFFECTED BY BLEEDING DISORDERS WERE ACQUAINTED AND LEARNED FROM ONE ANOTHER, AND MET INDUSTRY PARTNERS OFFERING THE LATEST INFORMATION ABOUT HEALTH AND SERVICES. UNITE WALKS PROVIDED EDUCATION AND AWARENESS OPPORTUNITIES. LONE STAR BDF WAS ONE OF THE FIRST 5 INAUGURAL SITES OF THE NATIONAL HEMOPHILIA FOUNDATION'S HEMOPHILIA WALK PROGRAM IN 2008. IT STARTED IN HOUSTON, AND HAS GROWN TO 2 WALKS, HOSTING OVER 5,000 WALKERS. LONE STAR BDF SUPPORTED YOUNG ADULTS DIRECTLY AFFECTED WITH AN INHERITED BLEEDING DISORDER, OR AN IMMEDIATE FAMILY MEMBER OF SOMEONE WITH A BLEEDING DISORDER, PURSUING POST-HIGH SCHOOL EDUCATION WITH ACADEMIC SCHOLARSHIPS. IN 2022, 4 SCHOLARSHIPS WERE AWARDED TO STUDENTS ATTENDING AUSTIN COLLEGE, TEXAS A&M UNIVERSITY, UNIVERSITY OF TEXAS DALLAS, AND UNIVERSITY OF TEXAS SAN ANTONIO. LONE STAR BDF WELCOMED NEWLY DIAGNOSED FAMILIES WITH WELCOME BAGS AND HOSTED DINNERS AND EDUCATION EVENTS THROUGHOUT 2022, RANGING FROM PARENTS' BACK TO SCHOOL TIPS FOR STUDENTS WITH BLEEDING DISORDERS, SPANISH EDUCATIONAL DINNERS, RETREATS FOR MEN/WOMEN/TEENS, AND WINTER FAMILY EVENTS IN HOUSTON, THE VALLEY, AND THE HILL COUNTRY FOR PATIENTS TO MEET FOR FUN, HOLIDAY CHEER, CRAFTS, AND THE CHAPTER'S UPDATE. LONE STAR BDF ADVOCATED AT THE FEDERAL AND STATE LEVEL ON ISSUES IMPORTANT TO TEXAS' BLEEDING DISORDERS COMMUNITY, INCLUDING PARTICIPATION IN THE NATIONAL HEMOPHILIA FOUNDATION'S ANNUAL WASHINGTON DAYS BRINGING PATIENTS AND THEIR FAMILIES TO WASHINGTON DC TO MEET WITH LAWMAKERS WHO SHAPE NATIONAL HEALTHCARE POLICY. IN THE SPRING, LONE STAR BDF WORKED FOR AWARENESS OF RARE DISEASES IN CONNECTION WITH THE NATIONAL RED TIE CAMPAIGN. FORM 990, PAGE 6, PART VI, LINE 11B THE 990 IS EXAMINED BY THE TREASURER. FORM 990, PAGE 6, PART VI, LINE 12C DISCLOSURES ARE ASKED FOR AT THE BEGINNING OF EVERY BOARD MEETING. ANY CONFLICT OF INTEREST RESULTS IN IMMEDIATE LOSS OF VOTING PRIVILEGES. FORM 990, PAGE 6, PART VI, LINE 19 THE GOVERNING DOCUMENTS AND FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC UPON REQUEST AT THE ADDRESS AT WHICH THE BOOKS AND RECORDS OF THE ORGANIZATION ARE KEPT. FORM 990, PART IX, LINE 24E COMPUTER APPLICATIONS 13,870 1,531 1,477 DIRECT SUPPLIES 15,883 155 0 PRINTING AND POSTAGE 15,132 0 0 TRANSLATION SERVICES 5,266 0 0 TELEPHONE 1,546 1,545 2,060 PAYROLL PROC FEES 0 2,065 0 STORAGE FEES 0 1,850 0 EXHIBIT FEES 1,493 0 0 CREDIT CARD & BANK FEES 37 1,364 0 SPEAKERS AT EVENTS 1,277 0 0 DIRECT MAIL 963 0 0 DUES AND SUBSCRIPTIONS 575 0 0 TRAINING AND EDUCATION 150 0 0 TOTAL 56,192 8,510 3,537