2023-11-09T07:46:21-06:00 2022-12-31 521392008 GELMAN ROSENBERG & FREEDMAN 4550 MONTGOMERY AVE SUITE 800N BETHESDA MD 208142930 990 2022-01-01 832016277 I AM ALS IAMA 2025051256 1200 PENNSYLVANIA AVE NW 14135 WASHINGTON DC 20044 PETER BOWEN TREASURER 2025051256 2023-11-09 1 PETER BOWEN 999009999 0 RICHARD J LOCASTRO CPA P00288314 3019519090 2 AAL1 IAL1 2022 2023-04-26 12:10:37Z PETER BOWEN 1200 PENNSYLVANIA AVE NW 14135 WASHINGTON DC 20044 1643781 0 X WWW.IAMALS.ORG X 2018 IL SEE PART III, LINE 1. 12 11 15 237 0 0 3338131 1609370 0 0 2386 1004 5317 21477 3345834 1631851 2000 0 0 0 1207913 1453539 0 0 69141 1164617 837917 2374530 2291456 971304 -659605 2432581 1680946 55179 38149 2377402 1642797 X I AM ALS EXISTS TO SUPPORT AND MOBILIZE THE ALS COMMUNITY FOR THE PURPOSES OF IMPROVING QUALITY OF LIFE, RAISING AWARENESS, INCREASING FUNDING FOR RESEARCH AND ACCESS, AND IDENTIFYING TREATMENTS AND CURES FOR ALS. 0 0 585949 COMMUNITY SUPPORTTHE I AM ALS COMMUNITY SUPPORT TEAM PROVIDES DIRECT EMOTIONAL SUPPORT SERVICES, SUPPORT GROUPS, PEER MATCHING, AND INFORMATION AND RESOURCES TO INDIVIDUALS LIVING WITH ALS, LOVED ONES, AND CAREGIVERS. 445729 GOVERNMENT AFFAIRS, POLICY, AND RESEARCHI AM ALS ALSO UTILIZES THIS COMMUNITY MOVEMENT AND EXPERTISE TO INFLUENCE CHANGES TO FEDERAL FUNDING, AND TRANSFORM RESEARCH SYSTEMS, INSTITUTIONAL POLICY, AND REGULATORY PROCESSES WITH THE GOALS OF INCREASING RESEARCH FUNDING; IMPROVING PATIENT ACCESS TO TREATMENT; AND SPEEDING THE DEVELOPMENT AND ACCESS OF TREATMENTS AND CURES FOR PEOPLE LIVING WITH ALS. 315458 COMMUNITY ORGANIZING AND COMMUNICATIONS I AM ALS COMMUNICATES WITH AND MOBILIZES THE ALS COMMUNITY IN SELF-ORGANIZED TEAMS AND AS INDIVIDUALS TO CATALYZE POLICY CHANGE AND RESEARCH PROGRESS TO END ALS. THIS INCLUDES EFFORTS AIMED AT PUBLIC AWARENESS; POLICY OUTCOMES; IMPACT ON TRIALS AND TREATMENT ACCESS; AND MORE. 358335 OTHER PROGRAMS 358335 1705471 1 1 0 1 0 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 16 0 1 15 1 0 0 0 0 0 0 0 0 0 0 0 0 X 12 11 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 AL AR CA FL GA HI IL KS KY MD MI MN MS NH NJ NM NY OR PA RI SC TN UT VA WV WI MA NC X X X PETER BOWEN 2025051256 1200 PENNSYLVANIA AVE NW 14135 WASHINGTON DC 20044 LAURA PAZZE DALLE CHIEF EXECUTIVE OFFICER (START 01/22) 50.00 X X 192023 0 3917 LOUISE LANGHEIER BOARD CHAIR 5.00 X X 0 0 0 PETER BOWEN TREASURER 5.00 X X 0 0 0 JESSIE ROSSMAN SECRETARY 5.00 X X 0 0 0 BRIAN WALLACH CO FOUNDER 30.00 X 0 0 0 SANDRA ABREVAYA CO FOUNDER 4.00 X 0 0 0 DANIEL TATE JR MEMBER 15.00 X 0 0 0 JANO CABRERA MEMBER 4.00 X 0 0 0 MICHAEL O'NEIL MEMBER 4.00 X 0 0 0 MICHAEL SLABY MEMBER 4.00 X 0 0 0 NEEL PAREKH MEMBER 4.00 X 0 0 0 CLARE DURRETT MEMBER 15.00 X 0 0 0 MICHAEL J LECKER VP OF ORGANIZING 40.00 X 111376 0 5742 ADITI NARAYAN VP OF COMMUNITY SUPPORT 40.00 X 154815 0 7656 458214 0 17315 3 0 1 0 ALPINE GROUP PARTNERS 500 N CAPITOL STREET NW STE 210 WASHINGTON DC 20001 LEGISLATIVE CONSULTING SERVICES 124000 WINNING STRATEGIES WASHINGTON LLC 160 WEST STATE STREET STE 4 TRENTON NJ 08608 CONSULTING SERVICES 104000 2 1609370 1609370 1004 1004 33182 11930 21252 21252 MISCELLANEOUS REVENUE 900099 225 225 225 1631851 21252 0 1229 X 195940 160507 29498 5935 985446 807241 148354 29851 36172 29631 5445 1096 144161 118091 21703 4367 91820 75216 13823 2781 63065 63065 75207 75207 25000 25000 399220 383930 12386 2904 25340 25340 29905 19998 8752 1155 62503 34083 20279 8141 55919 43664 12255 10669 4078 6591 1953 1953 10086 10086 RECRUITMENT FEES 26863 150 26713 DONATION FEES 18139 18139 LICENSES & REGISTRATION 13170 259 12911 PAYROLL PROCESSING 10042 10042 10836 1589 9247 2291456 1705471 516844 69141 1363548 924058 249357 386710 630000 140000 173045 204043 10077 19581 6554 6554 2432581 1680946 55179 38149 55179 38149 X 1557787 1341564 819615 301233 2377402 1642797 2432581 1680946 X -659605 -75000 X 0 1 X 1 0 X 2574735 1631151 3338131 1609370 9153387 2574735 1631151 3338131 1609370 9153387 1206132 7947255 16751 1326 162 1004 19243 470 225 695 9173325 26099 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 0 0 0 0 1 40000 0 0 40000 0 PART II-B, LINE 1: INCREASE ALS RESEARCH FUNDING, IMPLEMENTATION OF ACT FOR ALS, EXPAND TREATMENT ACCESS FOR PEOPLE WITH ALS. 0 X 1631851 0 1631851 0 1631851 2291456 0 2291456 0 2291456 PART X, LINE 2: FOR THE YEAR ENDED DECEMBER 31, 2022, IAA HAS DOCUMENTED ITS CONSIDERATION OF FASB ASC 740-10, INCOME TAXES, THAT PROVIDES GUIDANCE FOR REPORTING UNCERTAINTY IN INCOME TAXES AND HAS DETERMINED THAT NO MATERIAL UNCERTAIN TAX POSITIONS QUALIFY FOR EITHER RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS. X X X X 0 0 0 0 0 0 0 1 0 LAURA PAZZE DALLE CHIEF EXECUTIVE OFFICER (START 01/22 192023 0 0 0 0 0 438 0 3479 0 195940 0 0 0 ADITI NARAYAN VP OF COMMUNITY SUPPORT 149815 0 5000 0 0 0 6193 0 1463 0 162471 0 0 0 PART I, LINE 7 DURING 2022, THE FOLLOWING EMPLOYEES RECEIVED A BONUS PAYMENT: MICHAEL J LECKER $5,000 NARAYAN ADITI $5,000 FORM 990, PART VI, SECTION A, LINE 2 BRIAN WALLACH AND SANDRA ABREVAYA HAVE A FAMILY RELATIONSHIP. FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 WAS PREPARED BY THE OUTSIDE ACCOUNTANTS AND REVIEWED BY THE ORGANIZATION'S AUDIT COMMITTEE. THE RETURN WAS THEN PROVIDED TO THE FULL BOARD, PRIOR TO FILING WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C EACH DIRECTOR, OFFICER, KEY PERSON AND MEMBER OF A COMMITTEE ANNUALLY SIGNS A CONFLICT OF INTEREST STATEMENT, WHICH AFFIRMS THAT SUCH PERSON HAS RECEIVED, READ, UNDERSTANDS AND AGREES WITH THE POLICY. A CONFLICT OF INTEREST ARISES WHEN A PERSON HAS AN EXISTING OR POTENTIAL FINANCIAL INTEREST OR OTHER MATERIAL INTEREST THAT IMPAIRS, OR APPEARS TO IMPAIR HIS OR HER INDEPENDENCE OR OBJECTIVITY IN THE DISCHARGE OF RESPONSIBILITIES AND DUTIES TO I AM ALS. IF A CONFLICT ARISES EACH RELATED PARTY DISCLOSES ANY DIRECT OR INDIRECT FINANCIAL OR OTHER MATERIAL INTEREST WHICH HE OR SHE OR HIS OR HER RELATIVES HAS OR REASONABLY EXPECTS TO HAVE IN A RELATED PARTY TRANSACTION PRIOR TO OR AS SOON AS PRACTICABLE FOLLOWING THE START OF ANY NEGOTIATIONS WITH RESPECT TO SUCH MATTER. INTERESTS WILL BE DISCLOSED IN WRITING TO THE SECRETARY OF THE CORPORATION. THE SECRETARY OF THE CORPORATION PROVIDES A COPY OF ALL SUCH DISCLOSURES TO THE DIRECTORS OF THE CORPORATION. THE BOARD REVIEWS ALL TRANSACTIONS, AGREEMENTS OR ANY OTHER ARRANGEMENTS BETWEEN THE CORPORATION AND A RELATED PARTY, AND ANY OTHER TRANSACTIONS WHICH MAY INVOLVE A POTENTIAL CONFLICT OF INTEREST. NO RELATED PARTY VOTES ON ANY MATTER WITH RESPECT TO WHICH HE OR SHE HAS BEEN DETERMINED BY THE BOARD TO HAVE A FINANCIAL INTEREST. IF THE BOARD OR COMMITTEE HAS REASONABLE CAUSE TO BELIEVE THAT A MEMBER HAS FAILED TO DISCLOSE ACTUAL OR POSSIBLE CONFLICTS OF INTEREST, IT INFORMS THE MEMBER OF THE BASIS FOR SUCH BELIEF AND AFFORD THE MEMBER AN OPPORTUNITY TO EXPLAIN THE ALLEGED FAILURE TO DISCLOSE. IF, AFTER HEARING THE MEMBER'S RESPONSE AND INVESTIGATING FURTHER, AS WARRANTED BY THE CIRCUMSTANCES, THE BOARD OR COMMITTEE DETERMINES THAT THE MEMBER HAS IN FACT FAILED TO DISCLOSE AN ACTUAL OR POSSIBLE CONFLICT OF INTEREST, THE BOARD TAKES APPROPRIATE CORRECTIVE ACTION. FORM 990, PART VI, SECTION B, LINE 15 TO SET THE CEO'S INITIAL SALARY THE ORGANIZATION SOUGHT DATA FROM SEVERAL SOURCES TO ASSESS THE APPROPRIATE COMPENSATION RANGE, INCLUDING AN INDEPENDENT SEARCH FIRM AND REVIEWED SEVERAL COMPENSATION STUDIES FROM PROFESSIONALS FOR NON-PROFITS TO KOYA LEADERSHIP PARTNERS. WE DETERMINED THE KEY CRITERIA FOR OUR DECISION WERE 1) COMPETITIVE DATA FROM THE SOURCES LISTED ABOVE, 2) QUALIFICATIONS OF THE CANDIDATE INCLUDING EXPERIENCE TO DATE AND GRADUATE TRAINING, AND 3) OUR COMPENSATION PHILOSOPHY THAT WE SHOULD PAY COMPETITIVELY GIVEN THE DEMANDING AND URGENT TIMELINE OF THE JOB. THE SEARCH COMMITTEE OF THE BOARD DEVELOPED THE CRITERIA VIA PHONE CONVERSATIONS AND EMAIL IN PARTNERSHIP WITH THE INDEPENDENT SEARCH FIRM. THIS PROPOSAL WAS PRESENTED TO THE EXECUTIVE BOARD ON A WEEKLY CALL AND SENT IN WRITING TO THE FULL BOARD FOR DISCUSSION AT A BOARD MEETING. THE CEO'S MOST RECENT PERFORMANCE REVIEW WAS PRESENTED TO THE FULL BOARD ON THE OCTOBER 2022 BOARD MEETING. IN ADDITION TO THE CEO'S SALARY, THE BOARD APPROVES THE ANNUAL BUDGET, WHICH INCLUDES THE SALARIES OF ALL EMPLOYEES. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC PER REQUEST. FORM 990, PART IX, LINE 11G ADVOCACY: PROGRAM SERVICE EXPENSES 247,973. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 247,973. COMMUNICATION: PROGRAM SERVICE EXPENSES 114,344. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 1,800. TOTAL EXPENSES 116,144. CONSULTING: PROGRAM SERVICE EXPENSES 21,613. MANAGEMENT AND GENERAL EXPENSES 12,386. FUNDRAISING EXPENSES 1,104. TOTAL EXPENSES 35,103. FORM 990, PART XI, LINE 9: IN CONNECTION WITH THE ADOPTION OF ASU 2018-08, IAA RESTATED ITS BEGINNING NET ASSETS TO PROPERLY REFLECT THE RETROSPECTIVE IMPLEMENTATION OF THE ASU. -75,000.