2023-11-08T10:16:57-06:00 2023-06-30 871353108 EISNER ADVISORY GROUP LLC 130 NORTH 18TH STREET SUITE 3000 PHILADELPHIA PA 191032757 990 2022-07-01 412073220 THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION ASSO 2675147221 2700 HORIZON DRIVE 120 KING OF PRUSSIA PA 19406 SUSAN L-J DICKINSON CHIEF EXECUTIVE OFFICER 2675147221 2023-11-07 1 SUSAN L-J DICKINSON 999009999 0 HELEN M MARTIN P01330899 2158818800 2 AAL1 IAL1 2022 2023-04-26 12:10:37Z SUSAN L-J DICKINSON 2700 HORIZON DRIVE 120 KING OF PRUSSIA PA 19406 31899442 0 X WWW.THEAFTD.ORG X 2002 PA PROMOTE AND FUND RESEARCH INTO DEVELOPING BETTER DIAGNOSTIC PROCESSES, THERAPIES, AND CURES FOR FRONTOTEMPORAL DEGENERATION (FTD); PROVIDE INFORMATION, EDUCATION, SUPPORT AND ADVOCACY TO PERSONS DIAGNOSED WITH FTD, THEIR FAMILIES AND CAREGIVERS; EDUCATE PHYSICIANS AND OTHER HEALTH PROFESSIONALS ABOUT FTD AND HOW TO IMPROVE PATIENT CARE; BRING ABOUT GREATER PUBLIC AWARENESS OF THE NATURE AND PREVALENCE OF FRONTOTEMPORAL DEGENERATION AND THE NEEDS OF THOSE WHO ARE COPING WITH IT; ADVOCATE WITH PUBLIC OFFICIALS TO PROMOTE PUBLIC AND PRIVATE PROGRAMS THAT PROVIDE APPROPRIATE, AFFORDABLE AND HIGH-QUALITY, LONG-TERM HEALTH CARE AND SOCIAL SERVICES. 18 18 47 362 0 0 12078806 8797440 1145 2051 193125 -35633 -215118 -226442 12057958 8537416 2449896 2475799 0 0 3481118 4778288 95000 70000 1123275 2549853 2339720 8575867 9663807 3482091 -1126391 44796969 47470345 2227394 2415381 42569575 45054964 X PROMOTE AND FUND RESEARCH INTO DEVELOPING BETTER DIAGNOSTIC PROCESSES, THERAPIES, AND CURES FOR FRONTOTEMPORAL DEGENERATION (FTD); PROVIDE INFORMATION, EDUCATION, SUPPORT AND ADVOCACY TO PERSONS DIAGNOSED WITH FTD, THEIR FAMILIES AND CAREGIVERS; EDUCATE PHYSICIANS AND OTHER HEALTH PROFESSIONALS ABOUT FTD AND HOW TO IMPROVE PATIENT CARE; BRING ABOUT GREATER PUBLIC AWARENESS OF THE NATURE AND PREVALENCE OF FRONTOTEMPORAL DEGENERATION AND THE NEEDS OF THOSE WHO ARE COPING WITH IT; ADVOCATE WITH PUBLIC OFFICIALS AND PROMOTE PUBLIC AND PRIVATE PROGRAMS THAT PROVIDE APPROPRIATE, AFFORDABLE AND HIGH-QUALITY LONG-TERM HEALTH CARE AND SOCIAL SERVICES. 0 0 3441634 1506341 38428 RESEARCH - EACH YEAR AFTD INVESTS IN THE SCIENCE THAT WILL DRIVE DISCOVERY AND DEVELOPMENT OF ACCURATE DIAGNOSTICS AND THE FIRST THERAPEUTICS FOR FTD. TO THAT END, AFTD AWARDED NINE GRANTS DURING FY23, INCLUDING THREE PILOT GRANTS.THROUGH THE DIAGNOSTICS ACCELERATOR PROGRAM, A COLLABORATION WITH THE ALZHEIMER'S DRUG DISCOVERY FOUNDATION, AFTD GAVE ONE AWARD.AFTD DELIVERED TWO AWARDS THROUGH THE ACCELERATING DRUG DISCOVERY PROGRAM IN COLLABORATION WITH ADDF. AWARDEES IN THESE PROGRAMS WILL WORK TO DEVELOP A BLOOD-BASED ASSAY TO DETECT LEVELS OF SEVERAL BIOMARKERS INDICATING NEUROINFLAMMATION THAT IS LINKED TO FTD, AS WELL AS RESEARCH DRUGS DESIGNED TO PREVENT OR UNDO DISEASE-CAUSING CHANGES IN THE BRAIN. AFTD AWARDED TWO HOLLOWAY POSTDOCTORAL FELLOWSHIPS ONE TO A RESEARCHER WORKING ON NOVEL THERAPEUTICS TARGETING A COMMON FTD PATHOLOGY, THE OTHER TO A RESEARCHER DEVELOPING A VIRTUAL REALITY GAME DESIGNED TO BENEFIT THE SOCIAL COGNITION OF PEOPLE LIVING WITH FTD. AFTD ALSO AWARDED A CLINICAL RESEARCH TRAINING SCHOLARSHIP, FUNDED THROUGH THE GENEROUS SUPPORT OF THE HOLLOWAY FAMILY FUND, WITH ADDITIONAL SUPPORT FROM THE AMERICAN BRAIN FOUNDATION IN COLLABORATION WITH THE AMERICAN ACADEMY OF NEUROLOGY.BUILDING ON THE KNOWLEDGE THAT THE C9ORF72 MUTATION CAN CAUSE BOTH FTD AND ALS, AFTD PARTNERED WITH THE ALS ASSOCIATION TO LAUNCH THE DIGITAL ASSESSMENT TOOLS FOR FTD AND ALS AWARDS TO DRIVE PROGRESS IN COLLABORATIVE DIGITAL TOOL DEVELOPMENT AT THE INTERSECTION OF BOTH DISEASES. AFTD CONTINUED TO SUPPORT THE FTD DISORDER REGISTRY, AN ELECTRONIC DATABASE THAT COLLECTS INFORMATION ABOUT THE FTD EXPERIENCE FROM PERSONS DIAGNOSED AND FTD CARE PARTNERS. THIS ESSENTIAL SOURCE OF FIRST-HAND ACCOUNTS WILL HELP INFORM RESEARCHERS AND CLINICIANS, AND WILL SPUR INNOVATION THAT WILL LEAD TO BETTER DIAGNOSES AND THERAPIES FOR PEOPLE LIVING WITH FTD. AT THE END OF FY23, 6,081 PEOPLE HAD JOINED THE REGISTRY.IN COLLABORATION WITH THE FTD DISORDERS REGISTRY, AFTD PRESENTED THREE PERSPECTIVES IN FTD RESEARCH WEBINARS ADDRESSING TOPICS SUCH AS DIFFERENTIATING BETWEEN TYPES OF RESEARCH STUDIES, HOW FTD-FOCUSED THERAPEUTIC DEVELOPMENT HAS EVOLVED, THE CURRENT CLINICAL TRIAL LANDSCAPE, AND HOW PEOPLE CAN GET INVOLVED, AND WHAT TO CONSIDER WHEN THINKING ABOUT BRAIN DONATION AS PART OF THE FTD JOURNEY. 2118362 874435 2051 EDUCATION AND SUPPORTSUPPORT - AFTD UNDERSTANDS THE CHALLENGES THAT FTD PRESENTS TO PATIENTS AND THEIR FAMILIES, AND WORKS HARD TO DEVELOP UNIQUE RESOURCES AND INFORMATION THAT WILL IMPROVE QUALITY OF LIFE FOR THOSE LIVING WITH FTD. AFTD STAFF RESPONDED TO 3,379 HELPLINE INQUIRIES IN FY23 - A 45 PERCENT INCREASE OVER FY22. AS OF JUNE 30, 2023, THERE ARE 104 AFTD-AFFILIATED SUPPORT GROUP FACILITATORS LEADING 77 GROUPS ACROSS THE UNITED STATES. AFTD AWARDED 748 COMSTOCK GRANTS (TRAVEL, RESPITE AND QUALITY OF LIFE GRANTS) TO FTD CAREGIVERS AND PERSONS DIAGNOSED - A 68 PERCENT INCREASE OVER THE PREVIOUS FISCAL YEAR. EDUCATION AND INFORMATION-AFTD COLLABORATES WITH A GROWING NUMBER OF PARTNERS EACH YEAR TO EDUCATE HEALTHCARE PROFESSIONALS ABOUT FTD, WITH A GOAL OF SPEEDING OUR WAY TOWARD ACCURATE DIAGNOSIS AND EFFECTIVE DISEASE MANAGEMENT AND TREATMENT. AFTD'S 2023 EDUCATION CONFERENCE, HELD IN PERSON IN ST. LOUIS AND ONLINE VIA LIVESTREAM, DREW MORE THAN 900 ATTENDEES COMBINED. THE CONFERENCE FEATURED EXPERTS FAMILIAR WITH FTD AND THE AFTD COMMUNITY TO COMPREHENSIVELY DISCUSS CONTENT PERTINENT TO PEOPLE LIVING WITH OR AFFECTED BY FTD, AS WELL AS HEALTHCARE PROFESSIONALS SEEKING GREATER UNDERSTANDING OF THIS DISEASE. AFTD OFFERED SIX EXPERT-LED EDUCATIONAL WEBINARS, INCLUDING THREE WITH THE FTD DISORDERS REGISTRY AND FOUR WEBINARS THAT OFFERED CONTINUING EDUCATION CREDITS TO VIEWERS. AFTD ALSO PUBLISHED THREE ISSUES OF THE PARTNERS IN FTD CARE NEWSLETTER FOR HEALTH PROFESSIONALS AND FAMILIES. 2274403 95023 ADVOCACY AND AWARENESS - OUR COMMUNITY IS LEADING THE WAY TO SEND THE MESSAGE THAT DEMENTIA IS A MULTI-FACETED DISEASE THAT CAN OCCUR AT A YOUNG AGE AND BEGIN WITH SYMPTOMS UNRELATED TO MEMORY. AFTD IS WORKING HARD TO ENSURE THAT THIS MESSAGE IS HEARD IN WASHINGTON DC AND OTHER SEATS OF POWER, WHERE DECISIONS ABOUT RESEARCH FUNDING AND SERVICES ARE MADE. 7834399 1 1 0 1 0 0 0 0 0 0 1 0 0 0 1 1 0 1 0 0 1 1 0 1 1 0 0 1 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 1 57 0 1 47 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 18 18 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 AL AK AR CA CO CT DC FL GA HI IL KS KY ME MD MA MI MN MS OR PA RI SC TN NV NH NJ NM NY NC ND OH OK UT VA WA WV WI X X X CHRISTINE ROGERS STEVENS 2675147221 2700 HORIZON DRIVE STE 120 KING OF PRUSSIA PA 19406 KIM TORRES CHAIR 10.00 X X 0 0 0 RITA CHOULA VICE CHAIR 3.00 X X 0 0 0 DAVID PFEIFER DIRECTOR (TREASURER EFF AUGUST 2023) 3.00 X 0 0 0 GAIL ANDERSON SECRETARY 4.00 X X 0 0 0 CHRISTIAN BARROW TREASURER (THRU AUGUST 2023) 3.00 X X 0 0 0 HALIMA AMJAD DIRECTOR 2.00 X 0 0 0 HELEN-ANN COMSTOCK DIRECTOR 3.00 X 0 0 0 SANDRA GROW DIRECTOR 3.00 X 0 0 0 KRISTIN HOLLOWAY DIRECTOR 2.00 X 0 0 0 JULIE KELLY DIRECTOR (EFFECTIVE MAY 2023) 3.00 X 0 0 0 SHOSHANA KRILOW DIRECTOR (EFFECTIVE MAY 2023) 2.00 X 0 0 0 JARY LARSEN DIRECTOR 4.00 X 0 0 0 JOSEPH MARQUEZ DIRECTOR 2.00 X 0 0 0 KATHY MELE DIRECTOR 3.00 X 0 0 0 DON NEWHOUSE DIRECTOR 2.00 X 0 0 0 KRISTIN SCHNEEMAN DIRECTOR 3.00 X 0 0 0 MARG SUTHERLAND DIRECTOR (EFFECTIVE MAY 2023) 2.00 X 0 0 0 ABRAR TANVEER DIRECTOR (EFFECTIVE MAY 2023) 2.00 X 0 0 0 DANNY HEDAYA DIRECTOR (THRU MAY 2023) 2.00 X 0 0 0 KACY KUNESH DIRECTOR (THRU MAY 2023) 2.00 X 0 0 0 BRIAN ROSE DIRECTOR (THRU MAY 2023) 2.00 X 0 0 0 MICHAEL STOWELL DIRECTOR (THRU MAY 2023) 2.00 X 0 0 0 SUSAN L-J DICKINSON CHIEF EXECUTIVE OFFICER 36.00 4.00 X 302707 0 27628 MITCH APPLESON CHIEF OPERATING OFFICER 38.00 2.00 X 169049 0 12092 PENNY DACKS SR. DIRECTOR OF SCIENTIFIC INITIATIVES 30.00 10.00 X 207678 0 15798 CHRISTINE ROGERS STEVENS DIRECTOR OF FINANCE 36.00 4.00 X 180146 0 26752 BENJAMIN FREEMAN DIR OF DEVELOPMENT & COMMUNICATIONS 40.00 X 167819 0 6136 SHARON DENNY SR. DIRECTOR OF PROGRAMS 40.00 X 153941 0 10386 SHANA DODGE DIRECTOR OF RESEARCH ENGAGEMENT 40.00 X 145524 0 14012 1326864 0 112804 11 0 1 0 COREZ 1356 BROADWAY NEW YORK NY 10018 VENUE 148383 PRECON 11910 PARKLAWN DRIVE ROCKVILLE MD 20852 AV FOR ANNUAL EDUCATION CONFERENCE 144794 2 1828287 6969153 161062 8797440 EDUC & AWARENESS PRODUCT SALES 541700 2051 2051 2051 1186362 1186362 21721364 22943359 -1221995 -1221995 -1221995 153797 1828287 418667 -264870 -264870 FTD REGISTRY 541700 38428 38428 38428 8537416 40479 0 -300503 1821218 1821218 417054 417054 237527 237527 586637 319623 133507 133507 3448722 2666162 143369 639191 90113 70063 3439 16611 350492 276302 5791 68399 302324 224123 20268 57933 47648 47648 70000 70000 234706 109286 90850 34570 177819 177819 31966 8418 22500 1048 652708 464239 90059 98410 228014 158434 35630 33950 86721 77875 1772 7074 572758 526796 45962 12769 7661 2554 2554 30178 20194 5657 4327 MISC ADVOCACY AND AWARE 222925 124356 4501 94068 PRINTING AND COPYING 90055 62768 912 26375 BANK & CREDIT CARD FEES 52167 248 1658 50261 TELEPHONE 46695 37132 5868 3695 -147409 27101 44188 -218698 9663807 7834399 706133 1123275 101450 288666 7291224 6186229 7865457 5345553 1983 16691 90160 148697 76791 43130 46430 33661 25706579 34826459 3667623 26063 624389 44796969 47470345 324157 496632 1795659 1052178 30538 198744 77040 667827 2227394 2415381 X 34518938 36911305 8050637 8143659 42569575 45054964 44796969 47470345 -1126391 3693244 -81464 0 X X 0 1 X 1 0 X 8919063 9975434 8142577 12078806 8797440 47913320 8919063 9975434 8142577 12078806 8797440 47913320 19239304 28674016 179830 207149 271150 400405 1186362 2244896 12211 38428 50639 50208855 266860 0.57110 0.57250 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 14023 14023 9889643 9903666 645183 161296 0 0 536176 530755 572666 645183 2284780 3427170 3063 2963 4114 14023 24163 134044 132689 143167 161296 571196 856794 76791 43130 33661 33661 OPERATING LEASE LIABILITY 667827 667827 X 8881953 69044 239860 308904 8573049 -35633 -35633 8537416 9972711 69044 239860 308904 9663807 0 9663807 PART X, LINE 2: THE INTERNAL REVENUE SERVICE HAS CLASSIFIED THE ORGANIZATION AS EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES CLARIFIES THE ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES RECOGNIZED IN AN ENTERPRISE'S FINANCIAL STATEMENTS. MANAGEMENT HAS ANALYZED THE TAX POSITIONS TAKEN BY THE ORGANIZATION, AND HAS CONCLUDED THAT AS OF JUNE 30, 2023 AND 2022, THERE ARE NO UNCERTAIN TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN THAT WOULD REQUIRE RECOGNITION OF A LIABILITY OR DISCLOSURE IN THE CONSOLIDATED FINANCIAL STATEMENTS. THE ORGANIZATION RECOGNIZES ACCRUED INTEREST AND PENALTIES ASSOCIATED WITH UNCERTAIN TAX POSITIONS, IF ANY. THERE WERE NO INCOME TAX RELATED INTEREST OR PENALTIES RECORDED FOR EITHER OF THE YEARS ENDED JUNE 30, 2023 OR 2022. PART XI, LINE 2D - OTHER ADJUSTMENTS: ADDITIONAL SPECIAL EVENTS EXPENSES 239,860. PART XI, LINE 4B - OTHER ADJUSTMENTS: INVESTMENT INCOME NET OF REALIZED LOSSES -35,633. PART XII, LINE 2D - OTHER ADJUSTMENTS: ADDITIONAL SPECIAL EVENTS COSTS 239,860. PART XII, LINE 4B - OTHER ADJUSTMENTS: GRANTS RETURNED NETTED AGAINST EXPENSE ON FINANCIAL STATEMENTS 1 0 0 0 0 0 0 0 0 0 CANADA HOLLOWAY POST DOCTORAL FELLOWSHIP - UNIVERSITY OF TORONTO 120000 0 NETHERLANDS HOLLOWAY POST DOCTORAL FELLOWSHIP - ERASMUS MC ROTTERDAM 115123 0 2 0 0 0 0 0 0 0 PART I, LINE 2: GRANTEES SUBMIT INTERIM AND FINAL REPORTS WITH PROGRESS AND FINANCIAL INFORMATION. PART III ACCOUNTING METHOD: X 1 EVENT ASSOCIATES INC 162 W 56TH STREET SUITE 405 NEW YORK NY 10019 COORDINATION AND PLANNING OF EVENT -"HOPE RISING" 0 1849730 70000 1779730 1849730 70000 1779730 AL AL AR CA CO CT DC FL GA IL KS ME MD MA MI MN MS OR PA RI SC TN NV NH NJ NM NY NC ND OH OK UT VA WA WV WI HOPE RISING 1849730 1732025 117705 202242 44242 123143 DRIVING HOPE NY 103455 72416 31039 34071 659 3551 1 28899 23846 5053 3819 852 6088 1982084 1828287 153797 240132 45753 132782 418667 -264870 1 ALZHEIMER'S DRUG DISCOVERY FOUNDATION 57 WEST 57TH STREET SUITE 904 NEW YORK NY 10019 201082179 501(C)(3) 700000 0 DRUG DISCOVERY, TREAT FTD INITIATIVE AMERICAN BRAIN FOUNDATION 201 CHICAGO AVENUE MINNEAPOLIS MN 55415 411717098 501(C)(3) 100000 0 CLINICAL RESEARCH TRAINING SCHOLARSHIP IN FTD THE TANK LTD 312 W 36TH STREET FLOOR 1 NEW YORK NY 10018 010798319 501(C)(3) 95023 0 UNRAVELLED UCSF 490 ILLINOIS STREET 4TH FLOOR SAN FRANSCISCO CA 94143 946036493 501(C)(3) 110000 0 PILOT GRANT - DANIEL MORDES UNIVERSITY OF MICHIGAN ARBOR LAKES 4251 PLYMOUTH ROAD SUITE 2400 ANN ARBOR MI 48109 386006309 501(C)(3) 109784 0 PILOT GRANT - ALEXANDRU IORDAN BAYLOR COLLEGE OF MEDICINE PO BOX 301207 DALLAS TX 75303 741613878 501(C)(3) 110000 0 PILOT GRANT - STEVEN BOEYNAEMS BLUEFIELD PROJECT TO CURE FTD 637 CAROLINA STREET SAN FRANSCISCO CA 94107 272444495 501(C)(3) 290000 0 GENFI RESEARCH CENTER SUPPORT 7 TRAVEL SCHOLARSHIPS 3 5171 RESPITE CARE, TRAVEL AND QUALITY OF LIFE GRANTS 649 324435 PART I, LINE 2: RESEARCH GRANTS: GRANTEES SUBMIT INTERIM AND FINAL REPORTS WITH PROGRESS AND FINANCIAL INFORMATION. RESPITE AND TRAVEL GRANTS: GRANTEES SUBMIT A LISTING OF EXPENSES INCURRED AND PAYMENT IS MADE VIA REIMBURSEMENT. QUALITY OF LIFE GRANTS: GRANTEE EXPENDITURES ARE MONITORED THRU ON-LINE REPORTING. X X 0 0 0 0 0 0 0 0 0 SUSAN L-J DICKINSON CHIEF EXECUTIVE OFFICER 302593 0 0 0 114 0 8745 0 18883 0 330335 0 0 0 PENNY DACKS SR. DIRECTOR OF SCIENTIFIC INITIATIV 207564 0 0 0 114 0 5949 0 9849 0 223476 0 0 0 CHRISTINE ROGERS STEVENS DIRECTOR OF FINANCE 180112 0 0 0 34 0 5349 0 21403 0 206898 0 0 0 MITCH APPLESON CHIEF OPERATING OFFICER 168973 0 0 0 76 0 5539 0 6553 0 181141 0 0 0 BENJAMIN FREEMAN DIR OF DEVELOPMENT & COMMUNICATIONS 167705 0 0 0 114 0 4996 0 1140 0 173955 0 0 0 SHARON DENNY SR. DIRECTOR OF PROGRAMS 153827 0 0 0 114 0 4573 0 5813 0 164327 0 0 0 SHANA DODGE DIRECTOR OF RESEARCH ENGAGEMENT 145410 0 0 0 114 0 4365 0 9647 0 159536 0 0 0 X 10 161062 HI/LOW DATE OF GIFT 0 1 0 PART I, COLUMN (B): THE COUNT ABOVE REPRESENTS THE NUMBER OF UNIQUE STOCK DONATIONS RECEIVED FROM INDIVIDUAL DONORS. FORM 990, PART VI, SECTION A, LINE 2 DIRECTORS DON NEWHOUSE AND KATHY MELE HAVE A FAMILY RELATIONSHIP. FORM 990, PART VI, SECTION B, LINE 11B THE COMPLETE 990 WILL BE REVIEWED AND APPROVED BY AFTD'S AUDIT COMMITTEE AND PROVIDED TO THE FULL BOARD PRIOR TO SUBMISSION. FORM 990, PART VI, SECTION B, LINE 12C ALL BOARD MEMBERS AND CEO SIGN THE CONFLICT OF INTEREST FORM EVERY YEAR. IF AN ISSUE WERE TO ARISE IT WOULD BE ADDRESSED BY THE EXECUTIVE COMMITTEE AND THE BOARD MEMBER/CEO IN QUESTION. FORM 990, PART VI, SECTION B, LINE 15 THE PERFORMANCE REVIEW OF AFTD'S CEO WAS BASED ON THE PAST FISCAL YEAR RESULTS. IT INCLUDES INPUT THAT THE BOARD CHAIR AND VICE CHAIR OBTAINED FROM AFTD BOARD MEMBERS, AFTD STAFF AND MAJOR DONORS. THE PERFORMANCE REVIEW WAS WRITTEN BY THE CHAIR WITH INPUT FROM THE VICE CHAIR. BASED ON PERFORMANCE REVIEW AND FISCAL YEAR RESULTS, THE CHAIR RECOMMENDED A SALARY RANGE AND PROPOSED INCREASE WHICH WAS PUT FORWARD TO THE EXECUTIVE COMMITTEE FOR DISCUSSION AND ALIGNMENT. THE FINAL COMPENSATION WAS THEN APPROVED BY THE BOARD. THE SALARY RANGE AND ANNUAL INCREASE WAS DETERMINED AFTER REVIEWING SALARY COMPARABILITY DATA FOR NON PROFITS OF SIMILAR SIZE NATIONALLY AND IN THE GREATER PHILADELPHIA AREA ADJUSTED FOR COST OF LIVING INCREASES. A COMPARABILITY STUDY WAS PERFORMED DURING FY22 AND AFTD USED 3 SURVEYS FOR BENCHMARKS FOR ALL STAFF AT AFTD. IN ADDITION, AFTD DOCUMENTS ALL SALARY RECOMMENDATIONS. FORM 990, PART VI, SECTION C, LINE 19 ALL GOVERNING DOCUMENTS ARE AVAILABLE UPON REQUEST FROM THE OFFICE. FORM 990, PART XII, LINE 2C THE AUDIT COMMITTEE ASSUMES RESPONSIBILITY FOR THE OVERSIGHT OF THE AUDIT OF ITS FINANCIAL STATEMENTS AND SELECTION OF THE INDEPENDENT ACCOUNTANT. THIS PROCESS HAS NOT CHANGED FROM THE PRIOR YEAR. THE FTD DISORDERS REGISTRY LLC 2700 HORIZON DRIVE SUITE 120 KING OF PRUSSIA PA 19406 473601782 PROVIDES PATIENT REGISTRY FOR THOSE AFFECTED BY FTD DE 501(C)(3) LINE 7 THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION 0 0 1 0 0 0 0 0 0 0 0 0 1 0 0 1 0 1 0 0