2023-11-06T14:44:36-08:00 2022-12-31 112883699 SABEL & OPLINGER CPA PC 106 Prospect St Southampton NY 11968 990 2022-01-01 455437249 DYSAUTONOMIA INTERNATIONAL INC DYSA 6312021720 PO BOX 596 EAST MORICHES NY 11940 SHANNON KOPLITZ Treasurer 2023-11-06 true SHANNON KOPLITZ 999009999 true ROBERT J STREBEL CPA P00435213 6312832370 3 AAL1 IAL1 FAL1 2022 2023-04-26 12:10:37Z SHANNON KOPLITZ PO BOX 596 EAST MORICHES NY 11940 1499396 false X WWW.DYSAUTONOMIAINTERNATIONAL.ORG X 2012 NY To increase awareness of Dysautonomia within the medical community and the general public and raise funds for dysautonomia research. 5 4 7 200 0 1123830 1481630 19510 13000 642 456 -10443 -9420 1133539 1485666 175000 340000 0 420077 401117 0 111920 133196 272454 728273 1013571 405266 472095 2460755 2828501 263032 164134 2197723 2664367 X To increase awareness of Dysautonomia within the medical community and the general public and raise funds for dysautonomia research. false false 394260 330000 Providing research funding for projects at major University Research Centers. 144355 2500 159978 Conferences to educate patients, caregivers and medicalprofessionals on dysautonomia conditions, treatments and research. 135044 2500 Advocacy Initiatives - Patient Support and Empowerment programs. 159842 5000 3200 833501 true true false false false false false false false false true false false false false true true false false false false true false false true false false true false false false false false false false false false false false false false false false false false false false true 1 0 true 7 true false false false false false true true false 0 false false false false false false false X 5 4 false false false false false true false true true false false true true true true true true true true false AK AL AR CA CO CT DC FL GA HI IL KS KY LA MA MD ME MI MN MO MS NC ND NH NJ NM NV NY OH OK OR PA RI SC TN TX UT VA WA WI WV X X X SHANNON KOPLITZ 6312021720 PO BOX 596 EAST MORICHES NY 11940 LAUREN STILES JD President & CEO 70.00 0.00 X X 131250 0 0 AMY KOHUT JD CH. COMPL OFCR 2.00 0.00 X X 0 0 0 JACQUELINE RUTTER GULLY Secretary 10.00 0.00 X X 0 0 0 IRENE COLLINS Vice President 2.00 0.00 X X 0 0 0 SHANNON KOPLITZ Treasurer & CFO 10.00 0.00 X X 0 0 0 131250 1 false false false 0 64569 1417061 7464 1481630 CONFERENCES 541700 13000 13000 13000 456 456 0 0 0 0 64569 13730 -13730 0 4310 4310 4310 0 1485666 17310 456 240000 240000 0 100000 100000 0 131250 123375 6562 1313 0 227599 161561 35803 30235 0 11529 8826 1643 1060 30739 23392 4466 2881 0 0 19119 19119 0 0 0 88942 70644 18298 7448 4068 3380 0 30960 27945 521 2494 0 19752 15031 2870 1851 302 136 166 0 10591 7455 3136 0 0 1873 1425 272 176 7329 5108 976 1245 BANK and credit card FEES 32065 147 31918 SUPPLIES 12978 198 12484 296 FUNDRAISING 10118 9494 624 Postage and Shipping 9092 996 449 7647 21885 14581 1480 5824 1013571 833501 68150 111920 659995 449782 1738411 2272156 0 37991 78333 0 0 0 5258 0 884 9875 16332 11493 6713 4839 10003 12016 0 0 0 1500 1500 2460755 2828501 12500 7358 250532 156776 263032 164134 X 2069354 2419973 128369 244394 2197723 2664367 2460755 2828501 472095 -5451 X false true X true false X 1208581 1082127 1236905 1123830 1481630 6133073 193039 172735 4100 29837 4310 404021 0 0 0 1401620 1254862 1241005 1153667 1485940 6537094 100000 13683 9565 8108 6366 137722 619496 239039 293238 33828 60452 1246053 719496 252722 302803 41936 66818 1383775 5153319 1446 1597 818 642 456 4959 0 1446 1597 818 642 456 4959 0 0 1403066 1256459 1241823 1154309 1486396 6542053 0.78770 0.72640 0.00080 0.00070 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 16332 11493 4839 4839 X 1493945 -5451 13730 8279 1485666 1485666 1027301 13730 13730 1013571 1013571 Part X : FIN48 Footnote The Organization has been classified by the Internal Revenue Service as a publicly supported tax-exempt charity pursuant to IRC Section 501(c)(3) and as a not-for-profit corporation under the laws of New York State. Accordingly, no provision for federal or state income taxes is required. As of December 31, 2022, no amounts have been recognized for uncertain income tax positions. Part XI, Line 2d: Other revenue amounts included in F/S but not included on form 990 DIRECT FUNDRAISING EXPENSES $13730 Part XII, Line 2d: Other expenses and losses per audited F/S DIRECT FUNDRAISING EXPENSES $13730 EUROPE POTS RESEARCH 50000 CHECK NORTH AMERICA POTS RESEARCH 25000 CHECK NORTH AMERICA POTS RESEARCH 25000 CHECK 3 false false false false false false X X X false NY AL AK AR CA CO CT DC FL GA HI IL KS KY LA ME MD MA MI MN MS MO NV NH NJ NM NC ND OH OK OR PA RI SC TN TX UT VA WA WV WI FUNDRAISING EVENTS 64569 64569 13730 64569 64569 13730 13730 -13730 true Ann & Robert H Lurie Children 225 E Chicago Ave CHICAGO IL 60611 362170833 10000 0 DOUBLE BLINDED PLACEBO CONTROLLED John Hopkins University 600 N Wolfe St BALTIMORE MD 21287 520595100 501(c)(3) 50000 0 SCN9A MUTATION RESEARCH Leeland Stadford Junior Unive 213 QUARRY ROAD PALO ALTO CA 94304 941156365 501(c)(3) 25000 0 Autonomic Complications of Post-COV Regents of Univ of CALIFORNIA 9500 Gilman Drive 0678 LaJolla CA 92093 956996144 501(c)(3) 50000 0 mitochondrial/immune function pots University of Toledo 3000 Arlington Ave Toledo OH 43606 346401483 501(c)(3) 30000 0 POTS Research UNIVERSITY OF UTAH 30 N Medical Drive Rm 4C104 Salt Lake City UT 84132 876000525 501(c)(3) 25000 0 altered nitric oxide metabolism UNIVSERSITY OF TEXAS 5323 Harry Hines Blvd DALLAS TX 75390 756002868 501(c)(3) 50000 0 IVIG in Postural Tachycardia Syndro 6 1 Grantmaker's Description of How Grants are Used Dysautonomia International (DI) requires that all investigators, collaborators and sub-contractors who receive funding through the DI's Grants Program comply with our Policies Governing the Award of Research Grants (Policies). Investigators will be provided a copy of current Policies when invited to apply for funding. Acceptance of grant funding from Dysautonomia International acknowledges consent and agreement to comply with these Policies by the Principal Investigator.SEMI-ANNUAL AND POST GRANT REPORTS ARE REQUIRED. Form 990, Part III, Line 4d OTHER PROGRAM SERVICES 4: Advocacy Initiatives - Patient Support and Empowerment programs. OTHER PROGRAM SERVICES 5: Clinician education. Form 990, Part VI, Section B, Line 11b THE BOARD WILL REVIEW AND APPROVE THE TAX RETURNS PRIOR TO SUBMISSION. Form 990, Part VI, Section B, Line 12c ALL CONFLICTS ARE DISCUSSED ANNUALLY AT A BOARD MEETING. Form 990, Part VI, Section B, Line 15a THE CEO SALARY IS DETERMINED BY INDEPENDENT NON-EMPLOYEE MEMBERS OF THE BOARD OF DIRECTORS AFTER A CAREFUL COMPARATIVE REVIEW OF SALARIES FOR SIMILARLY QUALIFIED INDIVIDUALS IN SIMILAR POSITIONS. Form 990, Part VI, Section B, Line 15b THE CEO AND OTHER STAFF SALARIES WERE SET BY INDEPENDENT NON-EMPLOYEE MEMBERS OF THE BOARD OF DIRECTORS AFTER A CAREFUL COMPARATIVE REVIEW OF SALARIES FOR SIMILARLY QUALIFIED INDIVIDUALS IN SIMILAR POSITIONS. Form 990, Part VI, Section C, Line 19 DOCUMENTS ARE AVAILABLE UPON REQUEST.