2023-11-02T12:48:57-05:00 2023-06-30 541498950 RENNER AND COMPANY CPA PC 700 NORTH FAIRFAX STREET SUITE 400 ALEXANDRIA VA 22314 990 2022-07-01 112779073 SJOGREN'S FOUNDATION INC SJOG 3015304420 10701 PARKRIDGE BLVD 170 RESTON VA 20191 JANET CHURCH CHIEF EXECUTIVE OFFICER 3015304420 2023-11-01 1 JANET CHURCH 999009999 0 ANDREW E YOUNG CPA P01203950 7035351200 2023-11-01 2 AAL1 IAL1 2022 2023-04-26 12:10:37Z JANET CHURCH 10701 PARKRIDGE BLVD 170 RESTON VA 20191 3912670 0 X WWW.SJOGRENS.ORG X 1983 NY SEE SCHEDULE O FOR DESCRIPTION OF ORGANIZATION'S PRIMARY MISSION. 21 21 17 617 14500 0 2391109 2756148 514416 489669 18003 44371 19952 34525 2943480 3324713 175255 275678 0 0 1473225 1657790 0 0 220273 673964 908378 2322444 2841846 621036 482867 2799424 3694277 728882 1128554 2070542 2565723 X THE FOUNDATION'S MISSION IS TO PROVIDE EDUCATION AND RESOURCES TO SJOGREN'S PATIENTS AND THEIR LOVED ONES, PROVIDE CREDIBLE RESOURCES/EDUCATION TO HEALTHCARE PROFESSIONALS, SERVE AS THE VOICE FOR ALL SJOGREN'S PATIENTS AND LEAD AND FUND INNOVATIVE RESEARCH. 0 0 727882 275678 THE SJOGREN'S FOUNDATION AWARDED THREE RESEARCH GRANTS, UNDER THE ANNUAL SJOGREN'S FOUNDATION GRANT PROGRAM, TO UNIVERSITY AFFILIATED RESEARCHERS IN MAY 2023. TWO PILOT AWARDS WERE GRANTED AND ONE HIGH IMPACT AWARD. THE FOUNDATION ALSO EXPANDED THEIR RESEARCH POLICIES TO INCLUDE A DYNAMIC GRANT POLICY AND AWARDED OKLAHOMA MEDICAL RESEARCH FOUNDATION A GRANT TO EXPAND THEIR GENOME RESEARCH PROJECT. WORK IN THE BIOMARKER'S CONSORTIUM AND THE FNIH AMP AIM RESEARCH ON BIOMARKERS IN AUTOIMMUNE DISEASES CONTINUES.THE SJOGREN'S FOUNDATION ALSO WORKED CLOSELY WITH MULTIPLE PHARMA COMPANIES TO PREPARE FOR, AND BRING, PHASE 2 AND PHASE 3 CLINICAL TRIALS FORWARD. THE FOUNDATION SUPPORTED THESE PROGRAMS BY CONFERRING WITH COMPANIES ON DESIGNING SUCCESSFUL TRIALS AND PRESENTING INFORMATION TO PATIENTS ABOUT CLINICAL TRIALS AND ENROLLMENT. 233910 3217 NEWSLETTER - THE FOUNDATION PRODUCES TWO NEWSLETTERS. "CONQUERING SJOGREN'S" IS A PATIENT FOCUSED NEWSLETTER WITH INFORMATION ABOUT SJOGREN'S AND ITS MANY MANIFESTATIONS. CS IS PRODUCED BI-MONTHLY. THE "SJOGREN'S QUARTERLY" IS A PROFESSIONAL PUBLICATION PRODUCED 4 TIMES A YEAR AND OFFERED FREE TO ALL HEALTHCARE PROFESSIONALS TO INCREASE AWARENESS AND EDUCATION AROUND SJOGREN'S. 799913 AWARENESS ACTIVITIES, SUCH AS MEDIA PUBLIC RELATIONS, HELP THE GENERAL PUBLIC, PATIENTS, AND FAMILY MEMBERS BECOME FAMILIAR WITH SJOGREN'S AND UNDERSTAND THAT IT IS A SERIOUS AND SYSTEMIC AUTOIMMUNE DISEASE. PROFESSIONAL AWARENESS ACTIVITIES ENGAGE KEY HEALTHCARE PROVIDERS AND SPECIALISTS TO UNDERSTAND SJOGREN'S DISEASE AND TO RECOGNIZE THE MANY MANIFESTATIONS OF THE DISEASE IN ORDER TO CARE FOR PATIENTS. IN 2023, THE FOUNDATION DOUBLED ITS ATTENDANCE OF HCPS TO OUR STATE OF SJOGREN'S PROFESSIONAL CONFERENCE AND EXPANDED OUR OUTREACH OF SPECIALTIES TO INCLUDE NEUROLOGISTS. WE CONTINUE TO ADVANCE OUR RELATIONSHIPS WITH CLINICIANS, RESEARCHERS, GOVERNMENT SCIENTISTS AND CORPORATE SCIENTISTS WHO ARE INTERESTED IN THE FIELD OF SJOGREN'S. ADDITIONALLY, THE FOUNDATION CONTINUED PARTNERING WITH CME COMPANIES TO PRESENT MORE SOLUTIONS TO EDUCATE HEALTHCARE PROVIDERS. 687657 447820 OTHER PROGRAMS WITHIN THE FOUNDATION INCLUDE STRATEGIC GOVERNANCE PROJECTS, CONFERENCES AND MEETINGS RELATED TO TOPICS RELEVANT TO THOSE WITH SJOGREN'S, AS WELL AS VARIOUS INDUSTRY AND MEMBERSHIP PROJECTS AND SERVICES FOR THOSE WITH SJOGREN'S OR ENTITIES PROVIDING SUPPORT TO THOSE INDIVIDUALS. 687657 447820 2449362 1 1 0 0 0 0 0 0 0 0 1 0 0 1 1 1 1 0 0 0 0 0 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 0 0 17 1 1 1 0 0 0 0 0 0 0 0 0 0 0 X 21 21 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 CA CO FL MD MS OH OR SC TN VA WA X X SJOGREN'S FOUNDATION 3015304420 10701 PARKRIDGE BLVD SUITE 170 RESTON VA 20191 DONALD E THOMAS MD CHAIRMAN 2.00 X X 0 0 0 SUSAN BARAJAS CHAIR-ELECT 2.00 X X 0 0 0 AVA WU DDS TREASURER 2.00 X X 0 0 0 DAVID SCHRADER SECRETARY 2.00 X X 0 0 0 ALAN BAER MD DIRECTOR, CHAIRMAN OF MSAC 2.00 X 0 0 0 ALLISSA LATHAM DIRECTOR 2.00 X 0 0 0 BRENT P GOODMAN MD DIRECTOR 2.00 X 0 0 0 CHADWICK JOHR MD DIRECTOR 2.00 X 0 0 0 DANIEL WALLACE MD DIRECTOR 2.00 X 0 0 0 JASON NICHOLS OD PHD DIRECTOR 2.00 X 0 0 0 JONATHAN MORSE MSC DIRECTOR 2.00 X 0 0 0 KATIE FORTE DIRECTOR 2.00 X 0 0 0 KIM KELLEY PHARMD DIRECTOR 2.00 X 0 0 0 NISHANT GUPTA MD DIRECTOR 2.00 X 0 0 0 ROBYN LAUKIEN DIRECTOR 2.00 X 0 0 0 SARA MCCOY MD DIRECTOR 2.00 X 0 0 0 SCOTT LIEBERMAN MD DIRECTOR 2.00 X 0 0 0 TAMMY DOTSON DIRECTOR 2.00 X 0 0 0 TOM IATESTA DIRECTOR 2.00 X 0 0 0 VATINEE BUNYA MD MSCE DIRECTOR 2.00 X 0 0 0 VIDYA SANKAR DMD MHS DIRECTOR 2.00 X 0 0 0 JANET CHURCH PRESIDENT AND CEO 40.00 X 326700 0 22196 KATHERINE MORLAND VICE PRESIDENT OF MEDICAL & SCIENTIFIC 40.00 X 164562 0 5865 BEN BASLOE VICE PRESIDENT OF PHILANTHROPY 40.00 X 127744 0 16345 MICHELE CHAMPIGNY DIRECTOR OF PROFESSIONAL AWARENESS 40.00 X 106500 0 3120 725506 0 47526 4 0 1 0 0 314952 2441196 31760 2756148 MEMBERSHIP DUES 541900 268230 268230 CONFERENCE 541900 203722 121147 82575 ADVERTISING 541800 14500 14500 NEWSLETTER 541900 3217 3217 489669 20031 20031 2130 2130 573974 549634 24340 24340 24340 0 314952 26048 -26048 -26048 33000 12275 20725 20725 MISCELLANEOUS INCOME 541900 37718 37718 37718 3324713 451037 14500 103028 275678 275678 586800 518966 24411 43423 839659 743475 33975 62209 50710 44326 2675 3709 93997 82596 4490 6911 86624 76610 3604 6410 9293 9293 34173 34173 6885 6885 88327 44837 39557 3933 16368 14476 681 1211 89006 78718 3702 6586 27729 27729 946 946 39447 34887 1641 2919 18963 16771 789 1403 AWARENESS ACTIVITIES 134708 134708 MISCELLANEOUS 109005 102133 995 5877 POSTAGE AND DELIVERY 81597 67059 1044 13494 PRINTING, DUPLICATING, 78092 51622 255 26215 173839 133825 4041 35973 2841846 2449362 172211 220273 752247 226724 669928 469995 87290 13473 7239 13185 10392 18879 260120 182796 68022 77324 1159015 2657226 36342 23126 8949 194345 2799424 3694277 46534 92492 281250 350150 296545 394017 104553 291895 728882 1128554 X 1069646 1564827 1000896 1000896 2070542 2565723 2799424 3694277 482867 12314 0 X X 0 1 X 1 0 X 3035820 2004952 2505185 2391109 2756148 12693214 331972 357683 368639 434297 425594 1918185 3367792 2362635 2873824 2825406 3181742 14611399 2318228 1361236 791081 742203 960014 6172762 0 2318228 1361236 791081 742203 960014 6172762 8438637 24943 30736 20326 27789 22161 125955 24943 30736 20326 27789 22161 125955 632 1798 12486 6768 37718 59402 3393367 2395169 2906636 2859963 3241621 14796756 0.57030 0.52670 0.00850 0.00910 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1000896 1000896 1000896 1000896 1000896 1000896 1072896 72000 1000896 1122896 50000 1072896 1.00000 0 0 166103 123127 42976 94017 59669 34348 77324 SECURITY DEPOSIT 8949 RIGHT OF USE ASSETS 185396 194345 LEASE LIABILITY 291895 291895 X 3341368 12314 12314 3329054 6885 -11226 -4341 3324713 2846187 11226 11226 2834961 6885 6885 2841846 PART V, LINE 4: THE FOUNDATION'S ENDOWMENT FUNDS CONSIST OF A BEQUEST THAT WAS RESTRICTED FOR THE PURPOSES OF RESEARCH. PART X, LINE 2: IN ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES, ACCOUNTING STANDARDS REQUIRE AN ENTITY TO RECOGNIZE THE FINANCIAL STATEMENT IMPACT OF A TAX POSITION WHEN IT IS MORE-LIKELY-THAN-NOT THAT THE POSITION WILL NOT BE SUSTAINED UPON EXAMINATION. MANAGEMENT EVALUATED THE FOUNDATION'S TAX POSITIONS AND CONCLUDED THERE ARE NO UNCERTAIN TAX POSITIONS THAT REQUIRE ADJUSTMENT TO THE FINANCIAL STATEMENTS TO COMPLY WITH THE PROVISIONS OF THIS GUIDANCE. PART XI, LINE 4B - OTHER ADJUSTMENTS: RECLASSIFICATION OF COSTS OF GOODS SOLD -11,226. PART XII, LINE 2D - OTHER ADJUSTMENTS: RECLASSIFICATION OF COSTS OF GOODS SOLD 11,226. WALKABOUTS AND SIPS EVENTS 300828 300828 26048 PARTNER PROGRAMS 14124 14124 314952 314952 26048 26048 -26048 1 THE CURATORS OF THE UNIVERSITY OF MISSOURI 1201 ROLLINS STREET COLUMBIA MO 65211 436003859 SECTION 501(C)(3) 75000 0 FMV N/A RESEARCH GRANT MIAMI VETERANS AFFAIRS MEDICAL CENTER 1201 NW 16TH STREET MIAMI FL 33125 650207903 SECTION 501(C)(3) 25000 0 FMV N/A RESEARCH GRANT OKLAHOMA MEDICAL RESEARCH FOUNDATION 825 NE 13TH STREET OKLAHOMA CITY OK 73104 750580274 SECTION 501(C)(3) 150000 0 FMV N/A RESEARCH GRANT UNIVERSITY OF PITTSBURGH 4200 FIFTH AVENUE PITTSBURGH PA 15260 250965591 SECTION 501(C)(3) 25000 0 FMV N/A RESEARCH GRANT 4 0 PART I, LINE 2: THE SJOGREN'S FOUNDATION ENCOURAGES AND SUPPORTS RESEARCH INTO SJOGREN'S BY OFFERING ANNUAL RESEARCH GRANTS. THERE ARE TWO ANNUAL AWARDS: A HIGH IMPACT GRANT AND A PILOT GRANT. THE FOUNDATION ADDED TWO NEW RESEARCH GRANT POLICIES CALLED DYNAMIC GRANT POLICY AND PARTNER GRANT POLICY, TO ENCOURAGE ADDITIONAL PROPOSALS THAT FALL OUTSIDE OF THE SCOPE OF OUR ANNUAL GRANTS. ALL GRANT OPPORTUNITIES ARE OPEN TO APPLICANTS AT U.S. INSTITUTIONS. GRANTS ARE AWARDED BY A PEER REVIEW PANEL OF SJOGREN'S RESEARCH PROFESSIONALS AND GRANTEES ARE REGULARLY REVIEWED THROUGHOUT THE GRANT CYCLE. OUR RESEARCH PROGRAM PROMOTES BASIC SCIENCE AND CLINICAL INVESTIGATIONS INTO THE CAUSE, PREVENTION, DIAGNOSIS, TREATMENT AND ULTIMATELY A CURE FOR THIS PREVALENT AUTOIMMUNE DISEASE. X X X X X 0 0 0 0 0 0 0 0 0 JANET CHURCH PRESIDENT AND CEO 292700 0 34000 0 0 0 8850 0 13346 0 348896 0 0 0 KATHERINE MORLAND VICE PRESIDENT OF MEDICAL & SCIENTIF 160562 0 4000 0 0 0 4902 0 963 0 170427 0 0 0 X 4 31760 FMV 0 1 0 FORM 990, PART I, LINE 1 THE FOUNDATION'S MISSION IS TO PROVIDE EDUCATION AND RESOURCES TO SJOGREN'S PATIENTS AND THEIR LOVED ONES, PROVIDE CREDIBLE RESOURCES/EDUCATION TO HEALTHCARE PROFESSIONALS, SERVE AS THE VOICE FOR ALL SJOGREN'S PATIENTS AND LEAD AND FUND INNOVATIVE RESEARCH. FORM 990, PART VI, SECTION B, LINE 11B BOARD MEMBERS WILL HAVE A WEEK TO REVIEW 990 AND MAKE COMMENTS BEFORE IT IS FILED. THE 990 WILL BE READ BY THE CHIEF EXECUTIVE OFFICER BEFORE IT IS SIGNED. FORM 990, PART VI, SECTION B, LINE 12C EACH DIRECTOR, OFFICER, COMMITTEE MEMBER OR EMPLOYEE MUST ANNUALLY REVIEW A COPY OF THIS POLICY AND SHALL BE REMINDED OF THE OBLIGATION TO CONFORM TO IT. EACH COVERED PERSON MUST ANNUALLY COMPLETE A CONFLICT OF INTEREST INFORMATION FORM IDENTIFYING ANY RELATIONSHIPS, POSITIONS OR CIRCUMSTANCES IN WHICH THE COVERED PERSON IS INVOLVED THAT HE OR SHE BELIEVES COULD CREATE A CONFLICT OF INTEREST. FORM 990, PART VI, SECTION B, LINE 15A BOARD ANNUALLY REVIEWS COMPARABLE SALARY AND BONUS INFORMATION AND COMPARES CEO SALARY. FORM 990, PART VI, SECTION C, LINE 19 FINANCIALS ARE POSTED ON THE FOUNDATION'S WEBSITE FOR DONORS, PATIENTS AND VISITORS TO REVIEW. GOVERNANCE DOCUMENTS, CONFLICT OF INTEREST, ETC. ARE ALL AVAILABLE BY CONTACTING THE MAIN OFFICE, FREE OF CHARGE. ALSO THE COPIES OF OUR 990S AND FINANCIALS ARE AVAILABLE BY CONTACTING THE MAIN OFFICE. FORM 990, PART XII, LINE 2C THE FOUNDATION HAS NOT CHANGED THIS PROCESS FROM THE PRIOR YEAR. THE BOARD OF DIRECTORS IS RESPONSIBLE FOR OVERSIGHT OVER THE INDEPENDENT AUDIT AND SELECTION OF THE INDEPENDENT AUDITORS.