2023-10-18T14:15:03-04:00 2022-09-30 814693463 COMPASS US ACCOUNTANTS & ADVISORS 130 ADMIRAL COCHRANE DR SUITE 200 ANNAPOLIS MD 214017368 990 2021-10-01 352222262 CURE JM FOUNDATION CURE 2025966267 19309 WINMEADE DRIVE SUITE 204 LEESBURG VA 20176 JAMES MINOW EXECUTIVE DIRECTOR 2025966267 2022-10-18 JAMES MINOW 999009999 THADDEUS N TOAL CPA P00780668 4102240343 2023-10-18 2021 2023-04-26 12:10:37Z X JAMES MINOW 19309 WINMEADE DRIVE SUITE 204 LEESBURG VA 20176 1824036 false X WWW.CUREJM.ORG X 2003 CA TO FIND BETTER TREATMENTS AND A CURE FOR JUVENILE MYOSITIS AND IMPROVE THE LIVES OF FAMILIES. 15 15 10 0 1670424 1559125 0 220 9 561509 264902 2232153 1824036 1041260 813010 0 641023 569938 0 330517 305555 378005 1987838 1760953 244315 63083 2049716 2112799 0 2049716 2112799 X TO FIND BETTER TREATMENTS AND A CURE FOR JUVENILE MYOSITIS AND IMPROVE THE LIVES OF FAMILIES. false false 965627 813010 THE ORGANIZATION DIRECTLY SUPPORTED RESEARCH AS FOLLOWS: 1) 142,010 TO THE CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE (CARRA) TO LAUNCH A MULTI-CENTER JM PATIENT REGISTRY TO COLLECT INFORMATION AT THE TIME OF DIAGNOSIS AND AT REGULAR INTERVALS ABOUT HOW A PATIENT IS DOING, MEDICATIONS USED, AND SIDE EFFECTS; 2) 118,000 TO THE UNIVERSITY OF CALIFORNIA 3) 112,500 TO GEORGE WASHINGTON UNIVERSITY'S PROJECT TO MEASURE OXIDATIVE STRESS AND MITOCHONDRIAL FUNCTION AS POSSIBLE CAUSES OF FATIGUE; 4) 93,750 TO DUKE UNIVERSITY MEDICAL CENTER IN DURHAM, NC TO IDENTIFY ABERRANT PATTERNS OF METABOLITE EXPRESSION IN THEBLOOD AND MUSCLE OF CHILDREN WITH JDM; 5) 62,884 TO THE SEATTLE CHILDREN'S HOSPITAL IN SEATTLE, WA; 6) 62,500 TO THE MEDICAL COLLEGE OF WISCONSIN, INC. 7) 37,500 TO BINGHAMPTON UNIVERITY 8) 25,000 TO THE ANN & ROBERT H. LURIE CHILDREN'S HOSPITAL IN CHICAGO, IL FOR CURE JM PROGRAM OF EXCELLENCE RESEARCH; 9) 98,851 TO THE UNIVERSITY OF BATH (UK) 10) 61,985 TO THE TORONTO HOSPITAL FOR SICK CHILDREN (CA) THE ANNUAL NATIONAL FAMILY CONFERENCE & WALK STRONG TO CURE JM EVENT WAS HELD IN VARIOUS LOCATIONS ACROSS THE UNITED STATES. FAMILIES ATTENDED INCLUDING GRANDPARENTS, PARENTS, CHILDREN, TEENS, YOUNG ADULTS. MEDICAL PROFESSIONALS ALSO PARTICIPATED IN A MEDICAL CONFERENCE TO SHARE THE LATEST ADVANCEMENTS IN JM RESEARCH AND TREATMENTS. FAMILIES CAPPED THE WEEKEND WITH ATTENDANCE AT THE WALK STRONG TO CURE JM EVENTS. THE ORGANIZATION IS COMMITTED TO INCREASING AWARENESS AND EDUCATION OF THIS RARE, INCURABLE AUTOIMMUNE DISEASE AS WELL AS PROVIDING A SUPPORT COMMUNITY FOR IMPACTED FAMILIES. THESE EFFORTS ARE ACCOMPLISHED THROUGH A VARIETY OF METHODS SUCH AS: ATTENDANCE AT MEDICAL CONFERENCES REPRESENTING CURE JM FOUNDATION AND ITS WORK/ACTIVITIES; DISTRIBUTION OF PRINTED INFORMATION CARDS, BROCHURES AND EDUCATIONAL BOOKS TO IMPACTED FAMILIES AND THE MEDICAL COMMUNITY; DISTRIBUTION OF WELCOME KITS TO NEWLY DIAGNOSED FAMILIES; NEWSLETTERS; EDUCATIONAL EVENTS AND GATHERINGS; FAMILY SUPPORT; SURVEY AND METRIC TOOLS; MAINTENANCE OF A PATIENT REGISTRY AND MESSAGE BOARD AND UPDATES/MAINTENANCE OF THE ORGANIZATION' S WEBSITE. 965627 true false false false false false false false false false false false false false false false true false false false false true false false false false false true false false false false false false false false false false false false false false false false false false false true 10 0 false 10 true false false false false false true true false false false false false false false false X 15 15 true false false false false false false true true false false false true true true true true true false false CA OR IL WA MD CO NY FL MN PA MA X X JAMES MINOW 2025966267 19309 WINMEADE DRIVE SUITE 204 LEESBURG VA 20176 KRISTINE ALDERFER DIRECTOR X 0 0 0 MITALI DAVE CHAIRMAN X X 0 0 0 NIKKI HAHN PRESIDENT X X 0 0 0 BRENT HAUSER TREASURER X X 0 0 0 SHARI HUME CO-FOUNDER X 0 0 0 TOM HUME CO-FOUNDER X 0 0 0 DENISE KOCH DIRECTOR X 0 0 0 ANNIE MITCHELL DIRECTOR X 0 0 0 TIM SHELBY DIRECTOR X 0 0 0 TRACY VAN NESS DIRECTOR X 0 0 0 KAREN BERMAN DIRECTOR X 0 0 0 ZACH HARRISON DIRECTOR X 0 0 0 RANDY PUTT DIRECTOR X 0 0 0 JUSTIN WHITNEY DIRECTOR X 0 0 0 DAVE MAHER DIRECTOR X 0 0 0 JAMES MINOW EXECUTIVE DI 40.00 X 143000 0 0 143000 1 false false false 1559125 1559125 9 9 EVENT INCOME 900099 264902 264902 264902 1824036 264902 9 654144 654144 158866 158866 143000 143000 388111 116433 38811 232867 38827 777 23296 14754 935 935 32430 4864 27566 132655 19898 112757 109 109 65944 62944 3000 550 550 917 917 165 106 21 38 7003 7003 FUNDRAISING 126758 46900 79858 WEB REDESIGN 10539 10539 1760953 965627 464809 330517 575766 670592 1423950 1412207 50000 30000 2049716 2112799 0 0 X 2049716 2112799 2049716 2112799 2049716 2112799 63083 X false true X true X 1959884 1854330 1891711 1670424 1559125 8935474 1959884 1854330 1891711 1670424 1559125 8935474 8935474 11812 13143 14640 220 9 39824 1501 819 2320 8977618 1052733 0.99530 0.99450 X PART II, LINE 10 OTHER INCOME 2,320 1824036 1824036 1824036 1760953 1760953 1760953 SCHEDULE D, PAGE 4, PART XIII THE FINANCIAL STATEMENTS WERE AUDITED BY: WILLIAM WHITE, SR., CPA 902 LAFAYETTE BLVD. NW ROANOKE, VA 24017 (540) 342-1440 BATH RESEARCH 96851 WIRE ONTARIO RESEARCH 61985 WIRE false false false false false false false CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE 555 EAST WELLS STREET SUITE 1100 MILWAUKEE WI 53202 464152355 501C3 142010 SUPPORT THE EXPANSIO UNIVERSITY OF CALIFORNIA SAN FRANC 3333 CALIFORNIA STREET SUITE 315 SAN FRANCISO CA 94143 941156628 501C3 118000 CURE JM FELLOW UNDER THE GEORGE WASHINGTON UNIVERSITY 45155 RESEARCH PLACE SUITE 260 ASHBURN VA 20147 530196584 501C3 112500 STUDY TO EXPLORE REL DUKE UNIVERSITY MEDICAL CENTER BOX 3212 DURHAM NC 27710 560532129 501C3 93750 JUVENILE IDIOPATHIC SEATTLE CHILDRENS HOSPITAL PO BOX 5371 MS RC-507 SEATTLE WA 981455005 910564748 501C3 62884 SUPPORT CHILDREN'S MEDICAL COLLEGE OF WISCONSIN INC 8701 W WATERTOWN PLAN RD MILWAUKEE WI 53226 390806261 501C3 62500 SUPPORT DISEASE RESE BINGHAMPTON UNIVERSITY 4400 VESTAL PARKWAY E BINGHAMPTON NY 13902 130827234 501C3 37500 SUPPORT CHILDREN'S FORM 990, PAGE 1, ITEM B THIS TAX RETURN IS AMENDED TO INDICATE THAT THE FINANCIAL STATEMENTS HAVE BEEN AUDITED BY AN INDEPENDENT AUDITOR. FORM 990, PAGE 2, PART III, LINE 4A THE ORGANIZATION DIRECTLY SUPPORTED RESEARCH AS FOLLOWS: 1) 142,010 TO THE CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE (CARRA) TO LAUNCH A MULTI-CENTER JM PATIENT REGISTRY TO COLLECT INFORMATION AT THE TIME OF DIAGNOSIS AND AT REGULAR INTERVALS ABOUT HOW A PATIENT IS DOING, MEDICATIONS USED, AND SIDE EFFECTS; 2) 118,000 TO THE UNIVERSITY OF CALIFORNIA 3) 112,500 TO GEORGE WASHINGTON UNIVERSITY'S PROJECT TO MEASURE OXIDATIVE STRESS AND MITOCHONDRIAL FUNCTION AS POSSIBLE CAUSES OF FATIGUE; 4) 93,750 TO DUKE UNIVERSITY MEDICAL CENTER IN DURHAM, NC TO IDENTIFY ABERRANT PATTERNS OF METABOLITE EXPRESSION IN THEBLOOD AND MUSCLE OF CHILDREN WITH JDM; 5) 62,884 TO THE SEATTLE CHILDREN'S HOSPITAL IN SEATTLE, WA; 6) 62,500 TO THE MEDICAL COLLEGE OF WISCONSIN, INC. 7) 37,500 TO BINGHAMPTON UNIVERITY 8) 25,000 TO THE ANN & ROBERT H. LURIE CHILDREN'S HOSPITAL IN CHICAGO, IL FOR CURE JM PROGRAM OF EXCELLENCE RESEARCH; 9) 98,851 TO THE UNIVERSITY OF BATH (UK) 10) 61,985 TO THE TORONTO HOSPITAL FOR SICK CHILDREN (CA) FORM 990, PAGE 6, PART VI, LINE 2 TOM HUME SHARI HUME CO-FOUNDER CO-FOUNDER HUSBAND/WIFE FORM 990, PAGE 6, PART VI, LINE 11B DRAFT COPY OF FORM 990 WAS PROVIDED TO THE EXECUTIVE COMMITTEE FOR REVIEW BEFORE IT WAS FILED. FORM 990, PAGE 6, PART VI, LINE 12C THE ORGANIZATION REGULARLY REVIEWS CONTRACTS AND RELATIONSHIPS WITH VENDORS TO ASSURE COMPLIANCE WITH ITS CONFLICT OF INTEREST POLICY. FORM 990, PAGE 6, PART VI, LINE 15A THE BOARD OF DIRECTORS RESEARCHED THE COMPENSATION OF COMPARABLE ORGANIZATIONS BASED ON JOB DESCRIPTION AND EVALUATED THE PERFORMANCE OF EXECUTIVE DIRECTOR. FORM 990, PAGE 6, PART VI, LINE 19 THE ORGANIZATION'S EXEMPT ORGANIZATION TAX RETURNS AND AUDITED FINANCIAL STATEMENTS ARE AVAILABLE FOR REVIEW ON ITS WEBSITE AT WWW.CUREJM.ORG. THE ORGANIZATION'S FORM 1023, CONFLICT OF INTEREST POLICY AND OTHER GOVERNING DOCUMENTS ARE AVAILABLE FOR REVIEW UPON REQUEST.