2023-10-02T09:31:52-05:00 2023-03-31 111986323 MARCUM LLP 1899 L STREET NW 850 WASHINGTON DC 20036 990 2022-04-01 760514428 MELANOMA RESEARCH FOUNDATION MELA 8006731290 1420 K STREET NW 7TH FLOOR WASHINGTON DC 20005 KYLEIGH LIPIRA CEO 8006731290 2023-09-29 1 KYLEIGH LIPIRA 999009999 0 FRANK SMITH P00639053 2028225000 2023-09-29 2 AAL1 IAL1 2022 2023-04-26 12:10:37Z KYLEIGH LIPIRA 1420 K STREET NW 7TH FLOOR WASHINGTON DC 20005 7837105 0 X WWW.MELANOMA.ORG X 1996 TX TO ERADICATE MELANOMA BY ACCELERATING MEDICAL RESEARCH WHILE EDUCATING TO AND ADVOCATING FOR THE MELANOMA COMMUNITY. 11 10 26 295 0 0 6964814 7217360 0 0 21447 56224 -68203 -695361 6918058 6578223 1151805 1907002 0 0 1477972 1905895 0 0 403582 2945533 2665863 5575310 6478760 1342748 99463 5064088 6173374 1895502 2965717 3168586 3207657 X THE MRF IS THE LARGEST INDEPENDENT ORGANIZATION DEVOTED TO MELANOMA. ITS MISSION IS TO ERADICATE MELANOMA BY ACCELERATING MEDICAL RESEARCH WHILE EDUCATING TO AND ADVOCATING FOR THE MELANOMA COMMUNITY. 0 0 3379869 1901402 THE MRF IS COMMITTED TO ADVANCING A BROAD SCIENTIFIC AGENDA ACROSS THE DISCIPLINES OF PREVENTION, DIAGNOSIS, AND TREATMENT. ALTHOUGH THE MRF HAS ACHIEVED A NUMBER OF IMPORTANT SCIENTIFIC MILESTONES, MUCH MORE WORK REMAINS TO BE DONE. TO THIS END, THE MRF FUNDS A SPECTRUM OF RESEARCH GRANTS, SCIENTIFIC INITIATIVES, AND PROGRAMS FOR CUTANEOUS MELANOMA AND RARER MELANOMA SUBTYPES (E.G. OCULAR, PEDIATRIC, ACRAL AND MUCOSAL MELANOMA). ITS RESEARCH GRANT PROGRAM IS A COMPETITIVE, PEER-REVIEWED RESEARCH GRANT PROGRAM FOR INVESTIGATOR-INITIATED RESEARCH HAS BEEN IN EXISTENCE SINCE 1998. MRF-SUPPORTED RESEARCH IS OPEN TO MEDICAL STUDENTS THROUGH SENIOR INVESTIGATIVE TEAMS AND ENCOMPASS. 1057813 2200 THE MRF'S ADVOCACY PROGRAM IS A PLATFORM FOR THOSE AFFECTED BY MELANOMA TO SHARE THEIR VOICE AND TRANSFORM MELANOMA CARE. PATIENTS, CAREGIVERS, SURVIVORS, HEALTHCARE PROFESSIONALS AND PARTNERS ALL PLAY A CRITICAL ROLE IN THE ADVANCEMENT OF BETTER OUTCOMES FOR THE OVER ONE MILLION AMERICANS LIVING WITH MELANOMA AND THEIR LOVED ONES. 882333 3400 THE MRF HAS A ROBUST EDUCATION PROGRAM AIMED AT EDUCATING PATIENTS AND PHYSICIANS ABOUT THE PREVENTION, DIAGNOSIS, AND TREATMENT OF MELANOMA, AS WELL AS INCREASING OVERALL AWARENESS OF THE DISEASE. IN ADDITION, THE MRF MAINTAINS A LARGE PORTFOLIO OF FREE EDUCATIONAL MATERIALS THAT CAN BE USED AT FUNDRAISERS, DOCTORS' OFFICES, SCHOOLS, AND HEALTH FAIRS.PART OF THE MRF'S EDUCATIONAL OFFERINGS ALSO INCLUDE PATIENT-FOCUSED EDUCATIONAL SYMPOSIA THROUGHOUT THE U.S., IMPACTING NEARLY 1,500 PEOPLE TOUCHED BY MELANOMA. THESE SYMPOSIA PROVIDE MELANOMA PATIENTS AND THE PEOPLE WHO SUPPORT THEM THE OPPORTUNITY TO LEARN FROM LEADING MELANOMA EXPERTS ON THE MOST CURRENT PREVENTION, DIAGNOSIS, TREATMENT, AND RESEARCH INFORMATION. 5320015 1 1 0 1 0 0 0 0 0 1 1 0 0 1 1 1 1 0 0 0 0 0 0 0 1 0 0 1 1 1 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 1 40 0 1 26 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 11 10 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 AL AK AZ AR CA CO CT FL GA HI IL KS KY MA MD ME MI MN MS NC ND NH NJ NM NY OH OK OR PA RI UT VA WA WI WV TN SC X X KYLEIGH LIPIRA 8006731290 1420 K STREET NW 7TH FLOOR WASHINGTON DC 20005 KYLEIGH LIPIRA CEO 40.00 X 310738 0 10603 JAMES MERRICK CHIEF COMMUNICATIONS OFFICER 40.00 X 145000 0 8006 IVIS ALFARO CHIEF OF STAFF - UNTIL 01/2023 40.00 X 102019 0 11779 DOUGLAS BRODMAN CHAIR 2.00 X X 0 0 0 ALISON MARTIN VICE CHAIR 2.00 X X 0 0 0 CHERYL STRATOS SECRETARY 2.00 X X 0 0 0 JILL WROBEL TREASURER 2.00 X X 0 0 0 STAN ADLER BOARD MEMBER 1.00 X 0 0 0 MICHAEL B ATKINS MD SAC CO-CHAIR 1.00 X 0 0 0 ELISE BARISH BOARD MEMBER 1.00 X 0 0 0 KRISTINA BAUM BOARD MEMBER 1.00 X 0 0 0 LAURA FERRIS BOARD MEMBER 1.00 X 0 0 0 GLENN MERLINO SAC CO-CHAIR 1.00 X 0 0 0 MARK WEINZIERL BOARD MEMBER - UNTIL 12/2022 1.00 X 0 0 0 TOM WESTDYK BOARD MEMBER 1.00 X 0 0 0 557757 0 30388 3 0 1 0 CLIFTONLARSONALLEN LLP 220 S 6TH STREET SUITE 300 MINNEAPOLIS MN 55402 OUTSOURCED ACCOUNTING SERVICES 255063 BLACKBAUD PO BOX 844827 BOSTON MA 02284 DONOR DATABASE & ACCOUNTING SUPPORT 189762 STAN ADLER ASSOCIATES 575 EIGHTH AVE 11TH FLOOR NEW YORK NY 10018 GRAPHIC DESIGN AND PRODUCTION SERVICES 116994 THE EMMES COMPANY LLC 401 N WASHINGTON STREET SUITE 700 ROCKVILLE MD 20850 CLINICAL RESEARCH SERVICES 101969 4 2254830 252406 4710124 69085 7217360 26440 26440 420530 390746 29784 29784 29784 172775 2254830 868136 -695361 -695361 6578223 0 0 -639137 X 1859002 1859002 48000 48000 334735 20085 274482 40168 1281171 1184273 1763 95135 31000 29349 1651 140150 106531 21379 12240 118839 89126 19792 9921 1325 1325 295364 121094 174270 113953 113953 1523 1523 850771 780092 25619 45060 47140 34411 8440 4289 154144 43504 71964 38676 479447 357966 81279 40202 199285 148791 33784 16710 295794 258164 11849 25781 73983 9463 64520 34949 25512 6257 3180 9992 7460 1694 838 BAD DEBT 50000 50000 RECOGNITION/AWARDS 18911 13804 3386 1721 MEMBERSHIP DUES 14595 10654 2613 1328 REGISTRATION FEES 13514 9865 2420 1229 11173 8379 1861 933 6478760 5320015 755163 403582 3163821 927286 0 610769 828358 1623544 282600 343988 674572 473728 225131 200844 564178 1216701 0 1250242 5064088 6173374 342508 303727 964107 1081859 249487 0 339400 1580131 1895502 2965717 X 312979 313439 2855607 2894218 3168586 3207657 5064088 6173374 X 99463 -68626 8234 X 0 1 X 1 0 X 5290886 5777261 5117283 6964814 7217360 30367604 5290886 5777261 5117283 6964814 7217360 30367604 5337923 25029681 123 6878 5925 10450 26440 49816 1789 913 5037 7739 30425159 708122 0.82270 0.84280 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: OTHER - 2018 AMOUNT: $ 1,789. 2019 AMOUNT: $ 913. 2020 AMOUNT: $ 5,037. 2021 AMOUNT: $ 0. 2022 AMOUNT: $ 0. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 0 0 0 0 1 50833 0 1 63120 113953 0 PART II-B, LINE 1: A LOBBY FIRM IS RETAINED TO ASSIST WITH DEVELOPING, COORDINATING AND IMPLEMENTING AN ALL-ENCOMPASSING ADVOCACY PROGRAM WHICH INCLUDES BUT IS NOT LIMITED TO FEDERAL FUNDING FOR MELANOMA RESEARCH, ISSUES RELATED TO ADOLESCENTS AND YOUNG ADULTS, PEDIATRIC PATIENTS, RARE MELANOMA SUBTYPES, ACCESS TO CARE, PREVENTION AND SURVIVORSHIP. 692547 900391 -7352 2700 1582886 696488 -3941 692547 0.43998 0.56002 0 0 170608 56369 114239 309413 295169 14244 194551 122190 72361 200844 RIGHT OF USE ASSET - OPERATING 1250242 1250242 OPERATING LEASE LIABILITY 1580131 1580131 X 8217864 -68626 841654 868136 1641164 6576700 1523 1523 6578223 8178793 841654 868136 1709790 6469003 1523 8234 9757 6478760 PART V, LINE 4: MRF ENDOWMENT ACCOUNT EXPENDITURES WILL COINCIDE WITH THE SAME MISSION STATEMENTS AS THE ORGANIZATION. THE CORPUS OF THE ENDOWMENT FUND, COMPRISED OF THE ORIGINAL GIFT(S) AND ANY SUBSEQUENT GIFTS TO THE FUND, IS TO BE HELD IN PERPETUITY AND MAINTAINED AT THE LEVEL OF THE GIFTS MADE TO THE FUND. PART X, LINE 2: THE FOUNDATION PERFORMED AN EVALUATION OF UNCERTAINTY IN INCOME TAXES FOR THE YEAR ENDED MARCH 31, 2023, AND DETERMINED THAT THERE WERE NO MATTERS THAT WOULD REQUIRE RECOGNITION IN THE FINANCIAL STATEMENTS OR THAT MAY HAVE ANY EFFECT ON ITS TAX-EXEMPT STATUS. PART XI, LINE 2D - OTHER ADJUSTMENTS: SPECIAL EVENT EXPENSE 868,136. PART XII, LINE 2D - OTHER ADJUSTMENTS: SPECIAL EVENT EXPENSE 868,136. PART XII, LINE 4B - OTHER ADJUSTMENTS: REFUND OF GRANT 8,234. GALAS 1265374 1197624 67750 11330 150205 49765 271275 MILES FOR MELANOMA 1162231 1057206 105025 132565 2778 6856 243362 2427605 2254830 172775 143895 152983 56621 514637 868136 -695361 1 TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET PHILADELPHIA PA 191046205 231352685 501(C)(3) 300000 0 TO SUPPORT MELANOMA CANCER RESEARCH THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES 10920 WILSHIRE BOULEVARD SUITE 500 LOS ANGELES CA 900951406 956006143 501(C)(3) 200000 0 TO SUPPORT MELANOMA CANCER RESEARCH ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI 150 E 42ND STREET FLOOR 9 NEW YORK NY 10017 136171197 501(C)(3) 200000 0 TO SUPPORT MELANOMA CANCER RESEARCH DUKE UNIVERSITY PO BOX 602651 CHARLOTTE NC 282602651 560532129 501(C)(3) 200000 0 TO SUPPORT MELANOMA CANCER RESEARCH WAKE FOREST UNIVERSITY HEALTH SCIENCES MEDICAL CENTER BOULEVARD WINSTONSALEM NC 27157 223849199 501(C)(3) 199002 0 TO SUPPORT MELANOMA CANCER RESEARCH ALBERT EINSTEIN COLLEGE OF MEDICINE 1300 MORRIS PARK AVENUE BRONX NY 10461 830621846 501(C)(3) 100000 0 TO SUPPORT MELANOMA CANCER RESEARCH CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE - NORD HALL SUITE 615 CLEVELAND OH 441067037 341018992 501(C)(3) 100000 0 TO SUPPORT MELANOMA CANCER RESEARCH THE REGENTS OF THE UNIVERSITYOF CALIFORNIA SAN FRANCISCO 490 ILLINOIS STREET 4TH FLOOR SAN FRANCISCO CA 94143 956006143 501(C)(3) 100000 0 TO SUPPORT MELANOMA CANCER RESEARCH H LEE MOFFITT CANCER CENTER & RESEARCH INSTITUTE INC 12902 MAGNOLIA DRIVE TAMPA FL 33612 592451713 501(C)(3) 100000 0 TO SUPPORT MELANOMA CANCER RESEARCH THE UNIVERSITY OF PITTSBURGH 4200 FIFTH AVENUE PITTSBURGH PA 15260 250965591 501(C)(3) 100000 0 TO SUPPORT MELANOMA CANCER RESEARCH MEMORIAL SLOAN KETTERING CANCER CENTER PO BOX 27106 NEW YORK NY 100877106 131924236 501(C)(3) 100000 0 TO SUPPORT MELANOMA CANCER RESEARCH THE REGENTS OF THE UNIVERSITY OF COLORADO MS F428 AMC BLDG 500 AURORA CO 800452571 846000555 501(C)(3) 100000 0 TO SUPPORT MELANOMA CANCER RESEARCH MEMORIAL SLOAN KETTERING CANCER CENTER PO BOX 27106 NEW YORK NY 100877106 131924236 501(C)(3) 50000 0 TO SUPPORT MELANOMA CANCER RESEARCH UCLA JONSSON CANCER CENTER FOUNDATION 9-623 FACTOR BLDG BOX 951780 LOS ANGELES CA 900951780 952242757 501(C)(3) 10000 0 TO SUPPORT MELANOMA CANCER RESEARCH 14 0 STUDENT MEDICAL AWARDS 16 48000 PART I, LINE 2: THE MRF'S SCIENTIFIC LEADERSHIP IS COMPRISED OF MULTIDISCIPLINARY EXPERTS IN BASIC AND TRANSLATIONAL RESEARCH, DERMATOLOGY, EPIDEMIOLOGY, GENOMICS, PATHOLOGY, SURGERY AND MEDICAL ONCOLOGY. MEMBERS OF ALL OUR ADVISORY/ STEERING COMMITTEES ARE VOLUNTEERS THAT ASSIST IN PROVIDING THE SCIENTIFIC DIRECTION OF THE MRF. X X X 0 0 0 0 0 0 0 1 0 KYLEIGH LIPIRA CEO 282250 0 28488 0 0 0 8556 0 2047 0 321341 0 0 0 JAMES MERRICK CHIEF COMMUNICATIONS OFFICER 145000 0 0 0 0 0 0 0 8006 0 153006 0 0 0 PART I, LINE 7 DURING THE YEAR ENDED DECEMBER 31, 2022, KYLEIGH LIPIRA, CEO, RECEIVED A BONUS PAYMENT IN THE AMOUNT OF $28,488 BASED ON HER PERFORMANCE. IVIS ALFARO RECEIVED A BONUS OF $2,500. STAN ADLER ASSOCIATES STAN ADLER, BOARD MEMBER, IS ALSO THE CHAIR AND FOUNDER OF THE ASSOCIATES 116994 MRF PAID A RETAINER FEE TO THE ASSOCIATES FOR GRAPHIC DESIGN AND MARKETING SERVICES. 0 X 2 28645 FMV X MILES FOR MELANOMA T-SHIRTS 1 40440 FMV 0 1 0 PART I, COLUMN (B): THIS COLUMN REPRESENTS THE NUMBER OF ACTUAL CONTRIBUTIONS, NOT THE NUMBER OF ITEMS CONTRIBUTED. FORM 990, PART VI, SECTION B, LINE 11B THE OUTSOURCED ACCOUNTING FIRM AND THE CHIEF EXECUTIVE OFFICER REVIEW THE FEDERAL FORM 990 PREPARED BY AN INDEPENDENT ACCOUNTING FIRM. UPON SUBMISSION OF THE FINAL DRAFT, THE FORM 990 IS DISTRIBUTED TO THE BOARD OF DIRECTORS AND THE FINANCE COMMITTEE FOR THEIR REVIEW PRIOR TO FILING WITH THE INTERNAL REVENUE SERVICE. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST POLICY IS DISTRIBUTED ANNUALLY TO ALL MEMBERS OF THE BOARD OF DIRECTORS, KEY PERSONNEL, AND COMMITTEE MEMBERS. EACH RECIPIENT OF THE POLICY RETURNS A SIGNED AND DATED RESPONSE FORM INDICATING THEY REVIEWED THE POLICY WHILE NOTING IF ANY CONFLICTS EXIST. FOLLOWING THE FULL DISCLOSURE OF A POSSIBLE CONFLICT OF INTEREST DURING THE YEAR, THE BOARD OF DIRECTORS WILL DETERMINE WHETHER A CONFLICT OF INTEREST EXISTS AND THE BOARD MEMBER WITH THE POSSIBLE CONFLICT WILL RECUSE HIMSELF OR HERSELF FROM THE DISCUSSION AND VOTE. FORM 990, PART VI, SECTION B, LINE 15A COMPENSATION FOR THE CHIEF EXECUTIVE OFFICER IS DETERMINED IN THE EXECUTIVE SESSION OF A BOARD OF DIRECTORS MEETING AND IS BASED UPON COMPARABLE SALARY DATA. THE BOARD OF DIRECTORS CONVENES AN AD HOC COMPENSATION COMMITTEE THAT CONTRACTED WITH AN OUTSIDE EXPERT IN SALARY EVALUATION. APPROPRIATE ADJUSTMENTS ARE MADE TO ENSURE THAT MRF SALARIES ARE IN KEEPING WITH BEST PRACTICES. THE LAST COMPENSATION REVIEW FOR THE EXECUTIVE DIRECTOR WAS CONDUCTED IN 2022. FORM 990, PART VI, SECTION C, LINE 19 MRF'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC UPON REQUEST. FORM 990, PART IX, LINE 11G OTHER PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 664,284. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 32,582. TOTAL EXPENSES 696,866. WEB DESIGN: PROGRAM SERVICE EXPENSES 48,023. MANAGEMENT AND GENERAL EXPENSES 11,778. FUNDRAISING EXPENSES 5,986. TOTAL EXPENSES 65,787. RECRUITING: PROGRAM SERVICE EXPENSES 35,370. MANAGEMENT AND GENERAL EXPENSES 7,855. FUNDRAISING EXPENSES 3,937. TOTAL EXPENSES 47,162. TEMPORARY SERVICES: PROGRAM SERVICE EXPENSES 17,200. MANAGEMENT AND GENERAL EXPENSES 2,607. FUNDRAISING EXPENSES 861. TOTAL EXPENSES 20,668. PAYROLL FEES: PROGRAM SERVICE EXPENSES 15,215. MANAGEMENT AND GENERAL EXPENSES 3,379. FUNDRAISING EXPENSES 1,694. TOTAL EXPENSES 20,288. FORM 990, PART XI, LINE 9: GRANT REFUNDS 8,234.