2023-10-23T02:57:53-07:00 2022-12-31 262176601 EASY OFFICE DBA JITASA 1120 S RACKHAM WAY SUITE 300 MERIDIAN ID 83642 990 2022-01-01 930995453 FANCONI ANEMIA RESEARCH FUND INC FANC 5416874658 360 EAST 10TH AVE SUITE 201 EUGENE OR 97401 MARK QUINLAN EXECUTIVE DIRECTOR 2023-10-23 1 1 Jeremy Cork P01544850 2082874777 2023-10-23 1 11 1 AAL2 X 2022 2023-04-26 12:10:37Z MARK QUINLAN 360 EAST 10TH AVE SUITE 201 EUGENE OR 97401 3171988 0 X Fanconi.org X 1989 OR TO FIND EFFECTIVE TREATMENTS AND A CURE FOR FANCONI ANEMIA AND TO PROVIDE EDUCATION AND SUPPORT SERVICES TO FAMILIES WORLDWIDE. 13 13 11 125 0 0 3309323 2979498 0 23549 281913 164989 7548 3952 3598784 3171988 1500673 1718785 0 0 943978 977926 0 0 354167 584682 1226391 3029333 3923102 569451 -751114 9115039 7540304 210291 629031 8904748 6911273 TO FIND EFFECTIVE TREATMENTS AND A CURE FOR FANCONI ANEMIA AND TO PROVIDE EDUCATION AND SUPPORT SERVICES TO FAMILIES WORLDWIDE. 0 0 2014736 1655885 23549 RESEARCH INITIATIVES - "ADVANCES OUR STAND UP TO CANCER PROJECT, AWARDS AND MANAGES RESEARCH GRANTS, MANAGES THE VIRTUAL TUMOR BOARD, ADVANCES OUR CLINICAL REGISTRY, OVERSEES THE FANCONI ANEMIA RESEARCH MATERIALS PROJECT, KEEPS FANCONI ANEMI GUIDELINES MANUAL UP TO DATE, MANAGES FANCONI ANEMIA CANCER CONSORTIUM, MANGES FANCONI ANEMIA BRUSH BIOPSY PROJECT, CONVENES FARF SPARKS MEETINGS." 713568 1500 0 EVENTS - "ANNUAL PLANNING MEETING, JOEL WALKER SERIES MEETINGS, ANNUAL FAMILY RETREAT, SCIENTIFIC SYMPOSIUM, ADULT FA RETREAT, INTERNATIONAL SUMMIT, SUPPORT FOR FARF SPARKS AND FA CONNECT." 261941 61400 0 FAMILY SUPPORT - "ONBOARDS NEWLY DIAGNOSED FAMILIES, MANAGES ADULT COUNCIL, MANAGES WINN/BYRD AWARD, MANAGES INTERNATIONAL SUPPORT GRANT PROGRAM, MANAGES BEREAVEMENT SUPPORT, MANAGES CAREGIVER SUPPORT, MANAGES PEER SUPPORT, CONVENES FA CONNECT SESSIONS " 0 0 0 2990245 1 1 0 0 0 0 0 0 0 1 1 0 0 0 0 0 1 0 0 0 1 1 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 12 0 0 11 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 13 13 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 0 0 1 0 0 AK AL AZ CA CO CT DC FL GA HI IL KS KY MA MD ME MI MN MS NC ND NH NJ NM NV NY OH OK OR PW RI SC TN UT WA WI WV X EASY OFFICE DBA JITASA 2082874777 1120 S RACKHAM WAY SUITE 300 MERIDIAN ID 83642 Mark Quinlan Executive Director 40 X 133765 0 0 Isis Sroka Scientific Director 40 X 117716 0 6618 Orion Marx President 5 X X 0 0 0 Lisa Mingo Vice President/Treasurer 5 X X 0 0 0 John Connelly Secretary 5 X X 0 0 0 Lynn Frohnmayer Board Member 5 X 0 0 0 Rachel Altmann Board Member 1 X 0 0 0 Stella Davies Board Member 1 X 0 0 0 Aileen Carlos Board Member 1 X 0 0 0 Tracy Strimling Board Member 1 X 0 0 0 Jasmine Bennetsen Board Member 1 X 0 0 0 Win Gouldin Board Member 1 X 0 0 0 Carmem Bonfim Board Member 1 X 0 0 0 Pedro Ravelo Board Member 1 X 0 0 0 Andre Hessels Board Member 5 X 0 0 0 251481 0 6618 2 0 0 0 0 0 0 0 0 0 2979498 0 2979498 REGISTRATION FEES 900099 23549 23549 0 0 0 0 0 0 23549 164431 0 0 164431 0 0 0 0 0 0 0 0 0 0 558 0 0 0 558 0 558 558 0 0 2750 0 0 2750 0 2750 1202 1202 0 0 1202 3171988 25309 0 167181 1323090 1323090 12225 12225 383470 383470 258187 131350 48581 78256 532982 271150 100287 161545 20352 20352 23944 8365 2285 13294 142461 88429 2286 51746 705 705 69883 69883 31830 31830 109137 45854 55081 8202 63786 5654 53236 4896 60839 3158 52494 5187 89317 89317 114838 103233 7954 3651 45742 18757 15975 11010 3308 3308 PROGRAM EXPENSES 595434 595434 0 0 BANK CHARGES & PROCESSING FEES 25204 76 25116 12 FAMILY FUNDRAISING EXPENSES 16368 0 0 16368 3923102 2990245 578690 354167 1603409 1994672 47392 38798 459286 51171 408115 7298361 4970524 165877 128195 9115039 7540304 210291 106206 92500 430325 0 210291 629031 X 8904748 6911273 0 0 8904748 6911273 9115039 7540304 -751114 -1242361 0 0 0 0 X 0 1 X 0 0 X 2638623 3213829 235071 3309323 2979498 12376344 2638623 3213829 235071 3309323 2979498 12376344 3853601 8522743 142793 187667 125808 279590 164431 900289 13276633 29180 0.64194 0.63155 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 165877 0 -31193 0 0 6488 128196 150681 0 21457 0 0 6261 165877 133887 700 21533 0 0 5439 150681 85985 34272 17728 0 0 4098 133887 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 459286 51171 408115 0 0 0 0 408115 1901737 -1242361 3940 0 0 -1238421 3140158 31830 0 31830 3171988 3895212 3940 0 0 0 3940 3891272 31830 0 31830 3923102 Schedule D, Part V, Line 4 THE ENDOWMENT FUND WAS SET UP TO FUND THE AMY WINN AND CHRISTOPHER BYRD AWARD THAT IS PRESENTED ANNUALLY TO SOMEONE WHO IS STRIVING TO TO MAKE A DIFFERENCE AND HAS SET HIGH GOALS FOR HIM/HERSELF. IN ADDITION TO FUNDING THE AWARD, THE ENDOWMENT IS SCHEDULED TO FUND THE TRAVEL COST OF THE AWARD WINNER TO THE ANNUAL MEETING FOR ADULTS WITH FANCONI ANEMIA. ALL FUNDS WITHIN THE ENDOWMENT FUND WERE INVESTED IN THE SOCIAL IMPACT POOL WITH THE OREGON COMMUNITY FOUNDATION (OCF). INVESTMENTS WITHIN THIS FUND ARE SUBJECTED TO AN ENVIRONMENTAL, SOCIAL AND GOVERNANCE SCREENING. DISTRIBUTIONS OUT OF THE ENDOWMENT FUND ARE SUBJECT TO OCF DISCRETION. DISTRIBUTIONS ARE BASED ON THE GRANT PERCENTAGE PAYOUT POLICY FOR PERMANENT FUNDS WHICH IS PERIODICALLY UPDATED BY THE BOARD OF DIRECTORS OF OCF. 1 Europe (including Iceland and Greenland) Program Services RESEARCH GRANTS 278778 North America (including Canada and Mexico, but not the United States) Program Services RESEARCH GRANTS 50717 Europe (including Iceland and Greenland) Program Services INTERNATIONAL SUPPORT PROGRAM 29975 North America (including Canada and Mexico, but not the United States) Program Services INTERNATIONAL SUPPORT PROGRAM 10000 Sub-Saharan Africa Program Services INTERNATIONAL SUPPORT PROGRAM 9000 South America Program Services INTERNATIONAL SUPPORT PROGRAM 5000 0 0 383470 Europe (including Iceland and Greenland) RESEARCH 278778 CHECK FMV North America (including Canada and Mexico, but not the United States) RESEARCH 50717 CHECK FMV Europe (including Iceland and Greenland) RESEARCH 29975 CHECK FMV North America (including Canada and Mexico, but not the United States) RESEARCH 10000 CHECK FMV Sub-Saharan Africa RESEARCH 9000 CHECK FMV 0 11 0 0 0 0 0 0 Schedule F, Part I, Line 2 THE ORGANIZATION PROVIDES FUNDS WITH THE UNDERSTANDING THAT THOSE FUNDS WILL BE USED TO FULFILL THE MISSION OF THE RECEIVING ORGANIZATION. 1 Stand Up To Cancer 10880 Wilshire Boulevard Suite 140 Los Angeles CA 90024 951644609 501c3 375000 National Cancer Institute 9000 Rockville Pike Building 31 Roo Bethesda MD 20892 521986675 501c3 184577 University of Washington 1959 NE Pacific St Seattle WA 98915 911486484 501c5 144052 Boston Children's Hospital 300 Longwood Avenue Boston MA 02115 042774441 501c3 125000 The Regents of the University of California - San Francisco 490 Illinois Street 4th Floor Box San Francisco CA 94143 943067788 501c3 121118 Georgetown University (Kupfer) 37th O Streets NW Washington DC 20057 530196603 501c3 62500 Yale University (Burtness) PO Box 1873 New Haven CT 065081873 060646973 501c3 62500 University of Minnesota 2231 6th St SE Minneapolis MN 55455 416007513 501c3 62500 The Rockefeller University 1230 York Ave New York NY 10065 131624158 501c3 50841 Stanford University 3160 Porter Drive Palo Alto CA 94304 941156365 501c3 39167 The Trustees of Columbia University in the City of New York 615 West 131st Street New York NY 10027 135598093 501c3 39167 The Children's Hospital of Philadelphia Research Institute (Kurre) Lockbox 1457 Po Box 8500 Philadelhia PA 191781457 231352166 501c3 27044 Oregon State University 3181 SW Sam Jackson Park Rd Portland OR 97239 237083114 501c3 24624 12 1 Award Winners 3 5000 Reimbursements 3 3925 Stipends 9 3300 Schedule I, Part I, Line 2 THE ORGANIZATION COMPILES A GRANT FILE FOR EACH GRANT RECIPIENT THAT HOUSES THE GRANT APPLICATION, REVIEWS CONDUCTED BY OUTSIDE REVIEWERS, THE PROPOSAL REVIEW COMMITTEES REPORT, A CV FOR ALL PARTICIPATING IN THE PROJECT, AND A SIGNED ACCEPTANCE OF THE AWARD. THIS DOCUMENT MUST BE SIGNED BY THE PRINCIPAL INVESTIGATOR AND THE OFFICIAL SIGNING AUTHORITY OF THE INSTITUTION WHERE THE RESEARCH WILL BE PERFORMED. TO MONITOR THE USE OF FUNDS FINANCIAL AND RESEARCH REPORTS ARE REQUIRED ON AN ANNUAL BASIS DURING THE LIFE OF THE GRANT AND REVIEWED BY THE EXECUTIVE DIRECTOR TO ENSURE FUNDS ARE BEING USED APPROPRIATELY IN ADDITION TO BEING REVIEWED BY THE PROPOSAL COMMITTEE AND THE BOARD. Form 990, Part VI, Section B, Line 11b THE 990 IS REVIEWED AT A REGULAR MEETING OF THE BOARD OF DIRECTORS. Form 990, Part VI, Section B, Line 12c THE EXECUTIVE DIRECTOR REVIEWS THE POLICY ANNUALLY AT THE ANNUAL LEADERSHIP MEETING. Form 990, Part VI, Section B, Line 15 EXECUTIVE DIRECTOR COMPENSATION IS SET BY THE BOARD PRESIDENT AFTER REVIEWING SELF-CONDUCTED MARKET RESEARCH. EMPLOYEE COMPENSATION IS EVALUATED BY COLLECTING COMPARABLE DATA FROM NON-PROFIT, STATE, AND COUNTY SOURCES, AS WELL AS A WGE ANALYSIS REVIEW BY INDEPENDENT PERSONS WHICH IS THEN USED TO FORMULATE WAGES BY THE EXECUTIVE DIRECTOR. Form 990, Part VI, Section C, Line 19 WHEN GOVERNING DOCUMENTS OR THE CONFLICT OF INTEREST POLICY ARE REQUESTED A COPY IS MAILED TO THE REQUESTING PARTY. THE ANNUAL FORM 990 AND AUDIT REPORT ARE ON THE ORGANIZATIONS WEBSITE AND COPIES ARE ALSO ISSUED WHEN REQUESTED.