2023-08-22T07:37:51-05:00 2022-12-31 BDO USA PA 200 OTTAWA AVE NW STE 300 GRAND RAPIDS MI 49503 990 2022-01-01 270270731 The Assistance Fund Inc % STEVE ALSENE ASSI 8772454412 8427 S Park Circle Bldg D Ste 100 Orlando FL 32819 STEVE ALSENE cfo/treasurer 8772454412 2023-08-16 true STEVE ALSENE XXX-XX-XXXX Jacob Cook P01240455 6167747000 2 2022 2023-04-26 12:10:37Z X STEVE ALSENE 8427 South Park Cir Bldg D 100 Orlando FL 32819 293323124 false X WWW.TAFCARES.ORG X 2009 DE TO PROVIDE UNDERINSURED PEOPLE LIVING WITH LIFE-THREATENING, CHRONIC, AND RARE DISEASES ACCESS TO CRITICAL TREATMENT THROUGH FINANCIAL ASSISTANCE, EDUCATION, AND ADVOCACY. 6 6 121 6 0 0 293276162 284392657 0 0 2466262 3965277 24991 0 295767415 288357934 290285128 253725841 0 0 8043874 9356626 258363 283062 2436364 6171103 5922632 304758468 269288161 -8991053 19069773 376112089 391103788 12720542 11748050 363391547 379355738 X OUR MISSION IS TO PROVIDE UNDERINSURED PEOPLE LIVING WITH LIFE-THREATENING, CHRONIC, AND RARE DISEASES ACCESS TO CRITICAL TREATMENT THROUGH FINANCIAL ASSISTANCE, EDUCATION, AND ADVOCACY. false false 258661396 253725841 0 The Assistance Fund (TAF) is an independent charitable patient assistance organization that helps patients and families facing high medical out-of-pocket costs by providing financial assistance for their copayments, coinsurance, deductibles, and other health-related expenses. TAF assisted 40,806 patients in 2022 and added seven new disease programs, increasing our total from 72 to 79 in 2022. 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DIR COMPLIANCE & MED 40.0 0.0 X 254584 0 30219 JOHN D'ANGELO VP OF BUSINESS INTELLIGENCE 40.0 0.0 X 218300 0 30177 MARGARET FIGLEY DIRECTOR OF COMMUNICATIONS 40.0 0.0 X 197758 0 44182 MISSY JENKINS SR. DIRECTOR OF ADVOCACY 40.0 0.0 X 168625 0 29969 JAN WIGINGTON DIRECTOR OF OPERATIONS 40.0 0.0 X 140430 0 38686 DILIP PARIHAR SOLUTIONS ARCHITECT 40.0 0.0 X 137716 0 36483 STEPHANIE MARSHALL DIRECTOR OF PATIENT ADVOCACY 40.0 0.0 X 140827 0 30075 AKHILASH PENNAM CRM SOFTWARE DEVELOPER 40.0 0.0 X 131121 0 27359 LAWRENCE HATCH CHAIRMAN, BOARD OF DIRECTORS 0.0 0.0 X X 0 0 0 JEFF MILFORD VICE-CHAIR, BOARD OF DIRECTORS 0.0 0.0 X X 0 0 0 JUSTIN ARONSON BOARD OF DIRECTORS MEMBER 0.0 0.0 X 0 0 0 ELLEN FEINSTEIN BOARD OF DIRECTORS MEMBER 0.0 0.0 X 0 0 0 JULIE JUDGE BOARD OF DIRECTORS MEMBER 0.0 0.0 X 0 0 0 KRISTIN MORRIS BOARD OF DIRECTORS MEMBER 0.0 0.0 X 0 0 0 KRISTINE SCHAEFFER SECRETARY, BOARD OF DIRECTORS 0.0 0.0 X 0 0 0 2624605 0 474261 12 false true false Hinckley Allen Snyder LLP 28 State Street BOSTON MA 021091775 Legal Services 620423 SALESFORCE 50 FREMONT SUITE 300 SAN FRANCISCO CA 94105 DEVELOPMENT SERVICES 568889 Ayodia LLC 5 Independence Way Suite 300 PRINCETON NJ 08554 Development Services 456000 AlphaScrip Inc 4647 N 32nd Street Suite 125 PHOENIX AZ 85018 Assistance Processor 449739 Xtivia Inc 2035 Lincoln Highway Suite 1010 EDISON NJ 08817 Development Services 414256 14 284392657 284392657 0 3934794 3934794 0 0 0 0 0 4995673 4965190 30483 30483 30483 0 0 0 0 0 0 0 0 0 0 288357934 3965277 0 253725841 253725841 0 0 2329765 351639 1301042 677084 0 4171961 2054443 1731559 385959 379884 92494 211367 76023 2026191 1233709 669471 123011 448825 184954 204201 59670 0 1003822 1000077 3745 75210 75210 240000 240000 283062 283062 122195 122195 605104 19019 366085 220000 54996 53068 1928 27684 1705 25526 453 2381523 564605 1784662 32256 0 623419 277804 262838 82777 350285 16908 201510 131867 0 59485 11351 15688 32446 0 0 0 34746 34746 OTHER EXPENSES 272931 126924 59924 86083 PAYCHEX PROCESSING FEES 71232 71232 269288161 258661396 8190401 2436364 0 0 315708788 263598138 29087500 77745000 0 0 0 0 0 0 0 0 0 0 1043259 1212021 4173612 2074899 2231563 2098713 28040979 45999196 0 0 0 0 0 0 0 450720 376112089 391103788 878784 1075709 0 0 0 0 0 0 0 0 0 0 0 0 0 0 11841758 10672341 12720542 11748050 X 66683632 65475997 296707915 313879741 363391547 379355738 376112089 391103788 19069773 -3105582 X false true X true false X 212089976 371261409 380949124 293276162 284392657 1541969328 0 0 212089976 371261409 380949124 293276162 284392657 1541969328 982492400 559476928 1630211 2684403 2560824 2129075 3934794 12939307 0 5408 0 0 0 0 5408 1554914043 0.35981 0.38046 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 240000 240000 269048161 269288161 1000000 250000 1000000 1000000 1000000 3000000 4500000 240000 240000 250000 250000 250000 750000 1125000 Schedule C, Part I-A, Line 1: Federal insight and advocacy 242794 201631 41163 20334 12746 7588 3910484 1860522 2049962 2098713 0 CLAIMS PAYABLE 10169764 OPERATING LEASE LIABILITIES 502577 10672341 X 285130157 -3105582 -3105582 288235739 122195 122195 288357934 269165966 269165966 122195 122195 269288161 SCHEDULE D, PART X, LINE 2: THE ORGANIZATION IDENTIFIES AND EVALUATES UNCERTAIN TAX POSITIONS, IF ANY, AND RECOGNIZES THE IMPACT OF UNCERTAIN TAX POSITIONS FOR WHICH THERE IS A LESS THAN MORE-LIKELY-THAN-NOT PROBABILITY OF THE POSITION BEING UPHELD WHEN REVIEWED BY THE RELEVANT TAXING AUTHORITY. SUCH POSITIONS ARE DEEMED TO BE UNRECOGNIZED TAX BENEFITS AND A CORRESPONDING LIABILITY IS ESTABLISHED ON THE STATEMENT OF FINANCIAL POSITION. THE ORGANIZATION HAS NOT RECOGNIZED A LIABILITY FOR UNCERTAIN TAX POSITIONS. IF THERE WERE AN UNRECOGNIZED TAX BENEFIT, THE ORGANIZATION WOULD RECOGNIZE INTEREST ACCRUED RELATED TO UNRECOGNIZED TAX BENEFITS IN INTEREST EXPENSE AND PENALTIES IN OPERATING EXPENSES. THE ORGANIZATION'S REMAINING OPEN TAX YEARS SUBJECT TO EXAMINATION BY THE INTERNAL REVENUE SERVICE GENERALLY REMAIN OPEN FOR THREE YEARS FROM THE DATE OF FILING. X X true FAIRCOM NEW YORK INC 12 WEST 27TH STREET 13TH FLOOR NEW YORK NY 10001 CONSULTING false 107166 275184 -168018 107166 275184 -168018 AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY true COPAY & PREMIUM INS PYMTS TO UNDERINSURED PATIENTS 39801 253725841 SCHEDULE I, PART I, LINE 2: ANNUALLY, INDIVIDUALS GO THROUGH THE APPLICATION AND APPROVAL PROCESS. UPON RECEIPT OF A COMPLETED APPLICATION, A FINAL DETERMINATION IS MADE AND FUNDS ARE MADE PAYABLE DIRECTLY TO THE PHARMACY, SITE OF CARE OR HEALTHCARE PROVIDER FOR THE DISPENSING OF THE APPROVED THERAPY. THE ASSISTANCE FUND ELECTRONICALLY MONITORS UTILIZATION OF SAID FUNDS DOWN TO THE PATIENT LEVEL ON A DAILY BASIS AND RECONCILES AND AUDITS PAYMENTS WEEKLY. X X true true X X true true false true false false false false false MARK MCGREEVY PRESIDENT 255615 0 86775 0 1500 0 28050 0 0 0 371940 0 0 0 STEVEN ALSENE CFO, TREASURER 242946 0 63261 0 1800 0 26747 0 27958 0 362712 0 0 0 GERALD LAURIA VP OF BUSINESS DEVELOPMENT 279367 0 57000 0 1800 0 47500 0 27958 0 413625 0 0 0 JUDITH FOX SR. DIR COMPLIANCE & MED 205657 0 47127 0 1800 0 29890 0 329 0 284803 0 0 0 DANIELLE VIZCAINO VP OF OPERATIONS 201380 0 42000 0 1800 0 20823 0 28075 0 294078 0 0 0 JOHN D'ANGELO VP OF BUSINESS INTELLIGENCE 189151 0 27349 0 1800 0 20500 0 9677 0 248477 0 0 0 MISSY JENKINS SR. DIRECTOR OF ADVOCACY 138912 0 27913 0 1800 0 24150 0 5819 0 198594 0 0 0 MARGARET FIGLEY DIRECTOR OF COMMUNICATIONS 183458 0 12500 0 1800 0 16224 0 27958 0 241940 0 0 0 STEPHANIE MARSHALL DIRECTOR OF PATIENT ADVOCACY 129027 0 10000 0 1800 0 20398 0 9677 0 170902 0 0 0 JAN WIGINGTON DIRECTOR OF OPERATIONS 128630 0 10000 0 1800 0 11577 0 27109 0 179116 0 0 0 DILIP PARIHAR SOLUTIONS ARCHITECT 125916 0 10000 0 1800 0 8525 0 27958 0 174199 0 0 0 AKHILASH PENNAM CRM SOFTWARE DEVELOPER 119321 0 10000 0 1800 0 8056 0 19303 0 158480 0 0 0 SCHEDULE J, PART I, LINE 1: TAF'S CEO HAS A CITRUS CLUB MEMBERSHIP USED FOR BUSINESS MEETING PURPOSES. IN ADDITION, ALL EMPLOYEES RECEIVE WIFI COMPENSATION TO ACCOMMODATE A HYBRID WORK SCHEDULE. SCHEDULE J, PART I, LINE 4A: Mark McGreevy received the following severance: $50,532. SCHEDULE J, PART I, LINE 4B: DURING 2022, TAF ESTABLISHED A NON-QUALIFIED DEFERRED COMPENSTION PLAN UNDER IRC SECTION 457(F) FOR CERTAIN KEY EMPLOYEES. THERE ARE NO EMPLOYEE CONTRIBUTIONS ALLOWED UNDER THE 457(F) PLAN, WHICH IS FULLY FUNDED BY TAF. THE FOLLOWING INDIVIDUALS RECEIVED CONTRIBUTIONS TO THEIR 457(F) PLAN: GERALD LAURIA $142,500 STEVE ALSENE $126,522 DANIELLE VIZCAINO $105,000 JOHN D'ANGELO $91,164 ELLEN JENKINS $50,750 JUDITH FOX $45,000 THIRTY PERCENT (30%) OF THESE AWARD AMOUNTS VEST AT THE END OF THREE YEARS FROM THE DATE OF ISSUANCE, WITH THE REMAINING SEVENTY PERCENT (70%) VESTING AT THE END OF FIVE YEARS FROM THE DATE OF ISSUANCE. INDIVIDUALS MUST BE CONTINUOUSLY EMPLOYED THROUGH THE VESTING DATE TO EARN THE RESPECTIVE AWARD AMOUNTS. IN ADDITION TO THESE AMOUNTS, MARK MCGREEVY WAS AWARDED $162,750 WHICH WAS FULLY FORFEITED UPON HIS SEPARATION FROM TAF. SCHEDULE J, PART I, LINE 5: BONUSES FOR THE DIRECTOR OF BUSINESS DEVELOPMENT ARE BASED IN PART ON CERTAIN CRITERIA RELATING TO FUND AND DONOR RETENTION/GROWTH. FORM 990, PART III, LINE 4A CONTINUED: In 2022, TAF had a GuideStar Platinum Seal of Transparency, a five-star GreatNonprofits rating, a perfect rating from Charity Navigator, was listed in The NonProfit Times' NPT 100 charities, and was ranked number 63 in Forbes' Top Charities For 2022 list. And for the first time, TAF was ranked as one of The Nonprofit Times' best nonprofits to work for. In July, TAF launched Violet, our new virtual assistant, to help patients get answers to their most common questions. The chatbot is available 24 hours a day, seven days a week. And our contact center handled 250,000 calls during 2022. In 2022, TAF's Advocacy Team exhibited at 10 patient advocacy conferences, reaching nearly 2,000 patients and caregivers with information about TAF and the role of independent charitable patient assistance. The team also led coalition efforts for the establishment of a new federal health agency, the Advanced Research Projects Agency for Health, which focuses on fostering breakthroughs in healthcare. TAF also supported legislation passed in 2022 that would cap out-of-pocket costs for Medicare beneficiaries at $2,000 starting in 2025 and would smooth those costs out over the year. The Philanthropy team led efforts to invest in diversifying our revenue sources to increase the stability of our funding for years to come. In 2022, they secured 2,376 new individual contributors. In 2022, TAF approved 89% of the Reenrollment applications we received for 2023 financial assistance. FORM 990, PART VI, SECTION B, LINE 11: THE BOARD OF DIRECTORS IS PROVIDED WITH A COPY OF THE COMPLETED FORM 990 PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C: THE SECRETARY OF THE CORPORATION SHALL DISTRIBUTE ANNUALLY TO ALL DIRECTORS, OFFICERS AND KEY EMPLOYEES (AS IDENTIFIED BY THE CORPORATION), A FORM SOLICITING THE DISCLOSURE OF ALL CONFLICTS OF INTEREST, INCLUDING SPECIFIC INFORMATION CONCERNING THE TERMS OF ANY CONTRACT OR TRANSACTION WITH THE CORPORATION AND WHETHER THE PROCESS FOR APPROVAL SET FORTH IN THIS POLICY WAS USED. SUCH DISCLOSURE FORM MAY REQUIRE DISCLOSURE OF OTHER RELATIONSHIPS THAT MAY NOT CONSTITUTE AN ACTUAL CONFLICT OF INTEREST, BUT WHICH ARE REQUIRED TO BE DISCLOSED IN ORDER FOR THE CORPORATION TO COMPLY WITH ITS ANNUAL REPORTING REQUIREMENTS. AN EMPLOYEE OF THE CORPORATION WITH A POTENTIAL CONFLICT OF INTEREST IN A PARTICULAR MATTER SHALL PROMPTLY AND FULLY DISCLOSE THE POTENTIAL CONFLICT TO HIS SUPERVISOR. THE EMPLOYEE SHALL THEREAFTER REFRAIN FROM PARTICIPATING IN DELIBERATIONS AND DISCUSSION, AS WELL AS ANY DECISIONS, RELATING TO THE MATTER AND FOLLOW THE DIRECTION OF THE SUPERVISOR AS TO HOW THE CORPORATION DECISIONS WHICH ARE THE SUBJECT OF THE CONFLICT WILL BE DETERMINED. THE BOARD CHAIR SHALL BE RESPONSIBLE FOR DETERMINING THE PROPER WAY FOR THE CORPORATION TO HANDLE CORPORATION DECISIONS WHICH INVOLVE UNRESOLVED EMPLOYEE CONFLICTS OF INTEREST. IN MAKING SUCH DETERMINATIONS, THE BOARD CHAIR MAY CONSULT WITH LEGAL COUNSEL. THE BOARD CHAIR SHALL REPORT TO THE BOARD AT LEAST ANNUALLY CONCERNING EMPLOYEE CONFLICTS OF INTEREST WHICH HAVE BEEN DISCLOSED AND CONTRACTS AND TRANSACTIONS INVOLVING EMPLOYEE CONFLICTS WHICH THE BOARD CHAIR HAS APPROVED. FORM 990, PART VI, SECTION B, LINE 15: IT IS THE POLICY OF THE CORPORATION TO PAY NO MORE THAN REASONABLE COMPENSATION FOR PERSONAL SERVICES RENDERED TO THE CORPORATION BY OFFICERS AND EMPLOYEES. THE DIRECTORS OF THE CORPORATION SHALL NOT RECEIVE COMPENSATION FOR FULFILLING THEIR DUTIES AS DIRECTORS, ALTHOUGH DIRECTORS MAY BE REIMBURSED FOR ACTUAL OUT-OF-POCKET EXPENSES WHICH THEY INCUR IN ORDER TO FULFILL THEIR DUTIES AS DIRECTORS. EXPENSE OF SPOUSES WILL NOT BE REIMBURSED BY THE CORPORATION UNLESS THE EXPENSES ARE NECESSARY TO ACHIEVE A CORPORATION PURPOSE. THE BOARD OF DIRECTORS MUST APPROVE IN ADVANCE THE AMOUNT OF ALL COMPENSATION FOR OFFICERS OF THE CORPORATION. BEFORE APPROVING THE COMPENSATION OF AN OFFICER, THE BOARD SHALL DETERMINE THAT THE TOTAL COMPENSATION TO BE PROVIDED BY THE CORPORATION TO THE OFFICER IS REASONABLE IN AMOUNT IN LIGHT OF THE POSITION, RESPONSIBILITY AND QUALIFICATION OF THE OFFICER FOR THE POSITION HELD, INCLUDING THE RESULT OF AN EVALUATION OF THE OFFICER'S PRIOR PERFORMANCE FOR THE CORPORATION, IF APPLICABLE. IN MAKING THE DETERMINATION, THE BOARD SHALL CONSIDER TOTAL COMPENSATION TO INCLUDE THE SALARY AND THE VALUE OF ALL BENEFITS PROVIDED BY THE CORPORATION TO THE INDIVIDUAL IN PAYMENT FOR SERVICES. AT THE TIME OF THE DISCUSSION AND DECISION CONCERNING AN OFFICER'S COMPENSATION, THE OFFICER SHOULD NOT BE PRESENT IN THE MEETING. THE BOARD SHALL OBTAIN AND CONSIDER APPROPRIATE DATA CONCERNING COMPARABLE COMPENSATION PAID TO SIMILAR OFFICERS IN LIKE CIRCUMSTANCES. THE BOARD SHALL SET FORTH THE BASIS FOR ITS DECISIONS WITH RESPECT TO COMPENSATION IN THE MINUTES OF THE MEETING AT WHICH THE DECISIONS ARE MADE, INCLUDING THE CONCLUSIONS OF THE EVALUATION AND THE BASIS FOR DETERMINING THAT THE INDIVIDUAL'S COMPENSATION WAS REASONABLE IN LIGHT OF THE EVALUATION AND THE COMPARABILITY DATA. FOR OTHER KEY EMPLOYEES, COMPENSATION IS DETERMINED BY THE EXECUTIVE DIRECTOR AFTER REVIEW OF COMPARABILITY DATA, INCLUDING A SALARY SURVEY. THE INFORMATION GATHERED AND FACTORS CONSIDERED IN ARRIVING AT THE COMPENSATION IS DOCUMENTED IN THE EMPLOYEES' PERSONNEL FILE. THIS PROCESS IS PERFORMED ON AN ANNUAL BASIS. FORM 990, PART VI, SECTION C, LINE 19: THERE SHALL BE KEPT AT THE OFFICE OF THE CORPORATION: (1) CORRECT AND COMPLETE BOOKS AND RECORDS OF ACCOUNT; (2) MINUTES OF THE PROCEEDINGS OF THE BOARD OF DIRECTORS AND THE EXECUTIVE COMMITTEE; (3) A CURRENT LIST OF THE DIRECTORS AND OFFICERS OF THE CORPORATION AND THEIR RESIDENCE ADDRESSES; (4) A COPY OF THESE BY-LAWS; (5) A COPY OF THE CORPORATION'S APPLICATION FOR RECOGNITION OF EXEMPTION WITH THE INTERNAL REVENUE SERVICE; AND (6) COPIES OF THE PAST THREE (3) YEARS' INFORMATION RETURNS TO THE INTERNAL REVENUE SERVICE. ANY OF THE BOOKS, MINUTES AND RECORDS OF THE CORPORATION MAY BE IN WRITTEN FORM OR IN ANY OTHER FORM CAPABLE OF BEING CONVERTED INTO WRITTEN FORM WITHIN A REASONABLE TIME. THE ORGANIZATION'S GOVERNING DOCUMENTS AND FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC UPON REQUEST.