2023-06-29T09:38:10-04:00 2022-12-31 461517562 Simmons & Jamieson CPAs 6525 The Corners Parkway Peachtree Corners GA 30092 990 2022-01-01 760700153 AMERICAN PARTNERSHIP FOR EOSINOPHILIC DISORDERS AMER PO BOX 29545 ATLANTA GA 30359 WENDY M BOOK MD PRESIDENT 7134937749 2023-06-28 true WENDY BOOK James B Murphy P00847588 7704482525 2023-06-29 0 00 AAL1 IAL1 2022 2023-04-26 12:10:37Z APFED 729476 false X APFED.ORG X 2001 TX APFEDS MISSION IS TO PASSIONATELY EMBRACE, SUPPORT, AND IMPROVE THE LIVES OF PATIENTS AND FAMILIES AFFECTED BY EOSINOPHIL-ASSOCIATED DISEASES THROUGH EDUCATION, AWARENESS, RESEARCH, SUPPORT, AND ADVOCACY 9 9 3 0 0 419543 504146 222500 224900 82 430 623 0 642748 729476 50000 189658 0 148335 168936 0 25678 215861 241816 414196 600410 228552 129066 651819 786075 7168 12358 644651 773717 APFEDS MISSION IS TO PASSIONATELY EMBRACE, SUPPORT, AND IMPROVE THE LIVES OF PATIENTS AND FAMILIES AFFECTED BY EOSINOPHIL-ASSOCIATED DISEASES THROUGH EDUCATION, AWARENESS, RESEARCH, SUPPORT, AND ADVOCACY 331643 EDUCATION, AWARENESS, ADVOCACY, AND SUPPORT:APFED HOSTED ITS ANNUAL PATIENT CONFERENCE HYBRID ONLINE AND IN SAN DIEGO. LAUNCHED A NEW WEBSITE IN PARTNERSHIP WITH THE ALLERGY & ASTHMA NETWORK TO EDUCATE PATIENTS AND CAREGIVERS ABOUT BIOLOGIC MEDICINES. WE CELEBRATATED NATIONAL EOSINOPHIL AWARENESS WEEK BY CREATING A NATIONAL AWARENESS CAMPAIGN AND LEADING EFFORTS TO INITIATE SPECIAL LIGHTING OF 30 LANDMARKS AROUND THE U.S. TO RAISE AWARENESS. WE ANNOUNCED AND CELEBRATED THE INAUGURAL WORLD EOSINOPHILIC DISEASES DAY WITH PATIENT ADVOCACY GROUPS AROUND THE GLOBE. APFED WAS INVITED TO SPEAK TO THE ITALIAN SENATE ABOUT THE IMPORTANT WORK CARRIED OUT BY PATIENT ADVOCACY GROUPS. APFED PRODUCED 10 NEW PODCAST EPISODES AND 12 WEBINARS TO EDUCATE PATIENTS AND CAREGIVERS ABOUT EOSINOPHIL-ASSOCIATED DISEASE. AWARDED THREE $1,000 COLLEGE SCHOLARSHIPS IN PARTNERSHIP. PUBLISHED MONTHLY EDUCATIONAL E-NEWS, QUARTERLY NEWSLETTER AND SOCIAL MEDIA CONTENT. APFED CONTRIBUTED TO A A MEDICAL EDUCATION PROGRAM ABOUT EOE AND PARTNERED ON A MEDICAL EDUCATION PROGRAM FOR HES. APFED SERVED AS EXPERT FACULTY IN A SERIES OF ROUNDTABLES AND LIVE WEBCASTS FOR MANAGED CARE AND PAYER PROFESSIONALS TO DISCUSS THE CLINICAL AND ECONOMIC BURDEN OF EOE, TREATMENTS, AND THE IMPORTANCE OF EARLY DIAGNOSIS AND MULTIDISCIPLINARY CARE.APFED CO-AUTHORED A VOICE OF THE PATIENT REPORT ABOUT ASTHMA INCLUDINGEOSINOPHILIC ASTHMA, FEATURING OUTCOMES FROM THE LITTLE AIRWAYS, BIG VOICES MEETING THAT WE CO-HOSTED IN 2021. APFED COLLABORATED WITH INTERNATIONAL PATIENT ADVOCATES AND MEDICAL EXPERTS TO DEVELOP AND PUBLISH PATIENT CHARTER FOR EOSINOPHIL DISEASE TO HELP HIGHLIGHT UNMET NEEDS TO ADDRESS. ADVOCATED FOR NEEDS OF PATIENTS AND NEED FOR ACCESS TO THERAPIES. APFED COMMUNICATED UNMET NEEDS IN THERAPEUTICS FOR EOE. 212225 RESEARCH: AWARDED TWO $100,000 (EACH) 2-YEAR RESEARCH GRANTS THROUGH OUR HOPE ON THE HORIZON RESEARCH GRANT PROGRAM.ATTENDED AAAAIS ANNUAL SCIENTIFIC MEETING TO DISSEMINATE RESOURCES TO HEALTH CARE PROVIDERS, AWARDED TWO ABSTRACT AWARDS, AND WERE INVITED SPEAKERS AT A SPECIAL SYMPOSIUM FOR EGID. ATTENDED ANNUAL PROFESSIONAL MEETINGS OF ATS AND ACAAI TO DISCUSS PATIENT UNMET NEEDS WITH ATTENDEES AND DISSEMINATE RESOURCES. TWO APFED RESEARCH COLLABORATIONS WERE PRESENTED AT DIGESTIVE DISEASE WEEK. COLLABORATED ON PATIENT EXPERIENCE RESEARCH FOR EGPA, HES, AND EOSINOPHILIC ASTHMA AND PRESENTED FINDINGS AT THE EACCI AND ACAAI. APFED INFORMED PATIENTS OF RESEACHOPPORTUNITIES,COLLABORATED WITH CEGIR, MAINTAINED PARTNERSHIP FOR THE EOSINOPHIL.CONNECT PATIENT INSIGHTS NETWORK, CONTINUED ON STEERING COMMITTEE FOR THE EGID PARTNERS REGISTRY, AND JOINED AS A MEMBER OF RDCRN CPAG STEERING COMMITTEE IN 2022. 543868 true true false false false false false false false false false false false false false false true false false false false false false false true false false true false false false false false false false false false false false false false false false false false false false true 2 0 true 3 true false false false false false false false false false false false false false false false false false X 9 9 true false false false true false false true true false false true true true true true true false false false AK AL AR CA CO CT FL GA HI KS KY MA MD ME MI MN MO MS NC ND NH NJ NM NY OH OK OR PA RI SC TN UT VA WA WI WV X X MICHAEL PIANSKY MD 7134937749 PO BOX 29545 ATLANTA GA 30359 X DAWN MCCOY DIRECTOR 15.00 0.00 X 0 0 0 GERALD J GLEICH MEDICAL ADVISOR 5.00 0.00 X 0 0 0 JULIET ROSS DIRECTOR 10.00 0.00 X 0 0 0 WILLIAM BUSSE MD DIRECTOR 0.00 0.00 X 0 0 0 JIM DELANO DIRECTOR 5.00 0.00 X 0 0 0 TOM FANNING WEB COORDINATOR 15.00 0.00 X 0 0 0 ELIZABETH MCCARTY VICE PRESIDENT 5.00 0.00 X X 0 0 0 WENDY M BOOK PRESIDENT 15.00 0.00 X X 0 0 0 MICHAEL PIANSKY TREASURER 15.00 0.00 X X 0 0 0 PRADYUMNA TUMMALA CHAIRMAN 5.00 0.00 X X 0 0 0 GILES M SCHANEN SECRETARY 10.00 0.00 X X 0 0 0 0 0 0 0 false false false 3040 45158 455948 504146 PATIENT EDUCATION PARTN 611710 224900 224900 224900 430 430 45158 729476 225330 0 0 189658 189658 157370 137170 20200 11566 11566 10808 10808 5346 5346 5692 5560 132 10873 10873 3623 3623 EDUCATION PROGRAMS 205474 205474 600410 543868 30864 25678 651819 786075 651819 786075 7168 12358 7168 12358 X 644651 773717 644651 773717 651819 786075 129066 0 X false X true X true X 407444 322439 329612 385968 564671 2010134 101270 174538 225216 256075 225798 982897 3192 4059 978 963 1029 10221 511906 501036 555806 643006 791498 3003252 3003252 155 121 55 82 430 843 155 121 55 82 430 843 512061 501157 555861 643088 791928 3004095 0.99970 0.99980 0.00000 0.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true false false false false false false false false false 729476 729476 729476 600410 600410 600410 General Appe 25114 25114 HOPE-HORIZON 20044 20044 45158 45158 45158 false THE REGENTS OF THE UNIVERSITY OF CA 9500 GILMAN DRTIVE MC 0009 LA JOLLA CA 920930009 25000 RESEARCH Northwestern University 633 Clark Crown G-547 Evanston IL 60208 50000 RESEARCH Regent of Univ of CA San Fancisco PO Box 748872 Los Angeles CA 900744972 50000 RESEARCH Mayo Clinic Arizona PO Box 860334 Minneapolis MN 554860334 25000 RESEARCH AAAAI 555 East Wells St Suite 1100 Milwaukee WI 53202 35000 RESEARCH Officer directors etc family relationship Part VI line 2 Wendy M Book, MD - PresidentMichael Piansky, MD - TreasurerRelated by marriage Members or stockholder classes and rights Part VI line 6 The organization has members and memberships that are open to anyone who wishes to be involved in the cause. Form 990 governing body review Part VI line 11 The organizations tax return preparer provided a preliminary copy of the return to board members for review. Any necessary changes are made and the final return is presented to the president for signature and filing. Conflict of interest policy compliance Part VI line 12c AT THE BOARDS ANNUAL MEETING, THE CONFICT OF INTEREST POLICY IS REVIEW WITH ALL THE BOARD MEMBERS. Governing documents etc available to public Part VI line 19 The organization makes its governing documents, conflicts of interest statement and financial statements available to the pubic upon written request. General explanation attachment FORM 990 PART III LINE 4 THE ORGANIZATION MOST SIGNIFICANT PROGRAMSLINE 4a EDUCATION, AWARENESS, ADVOCACY, AND SUPPORT:APFED HOSTED ITS ANNUAL PATIENT CONFERENCE HYBRID ONLINE AND IN SAN DIEGO. LAUNCHED A NEW WEBSITE IN PARTNERSHIP WITH THE ALLERGY & ASTHMA NETWORK TO EDUCATE PATIENTS AND CAREGIVERS ABOUT BIOLOGIC MEDICINES. WE CELEBRATATED NATIONAL EOSINOPHIL AWARENESS WEEK BY CREATING A NATIONAL AWARENESS CAMPAIGN AND LEADING EFFORTS TO INITIATE SPECIAL LIGHTING OF 30 LANDMARKS AROUND THE U.S. TO RAISE AWARENESS. WE ANNOUNCED AND CELEBRATED THE INAUGURAL WORLD EOSINOPHILIC DISEASES DAY WITH PATIENT ADVOCACY GROUPS AROUND THE GLOBE. APFED WAS INVITED TO SPEAK TO THE ITALIAN SENATE ABOUT THE IMPORTANT WORK CARRIED OUT BY PATIENT ADVOCACY GROUPS. APFED PRODUCED 10 NEW PODCAST EPISODES AND 12 WEBINARS TO EDUCATE PATIENTS AND CAREGIVERS ABOUT EOSINOPHIL-ASSOCIATED DISEASE. AWARDED THREE $1,000 COLLEGE SCHOLARSHIPS IN PARTNERSHIP. PUBLISHED MONTHLY EDUCATIONAL E-NEWS, QUARTERLY NEWSLETTER AND SOCIAL MEDIA CONTENT. APFED CONTRIBUTED TO A MEDICAL EDUCATION PROGRAM ABOUT EOE AND PARTNERED ON A MEDICAL EDUCATION PROGRAM FOR HES. APFED SERVED AS EXPERT FACULTY IN A SERIES OF ROUNDTABLES AND LIVE WEBCASTS FOR MANAGED CARE AND PAYER PROFESSIONALS TO DISCUSS THE CLINICAL AND ECONOMIC BURDEN OF EOE, TREATMENTS, AND THE IMPORTANCE OF EARLY DIAGNOSIS AND MULTIDISCIPLINARY CARE.APFED CO-AUTHORED A VOICE OF THE PATIENT REPORT ABOUT ASTHMA INCLUDINGEOSINOPHILIC ASTHMA, FEATURING OUTCOMES FROM THE LITTLE AIRWAYS, BIG VOICES MEETING THAT WE CO-HOSTED IN 2021. APFED COLLABORATED WITH INTERNATIONAL PATIENT ADVOCATES AND MEDICAL EXPERTS TO DEVELOP AND PUBLISH PATIENT CHARTER FOR EOSINOPHIL DISEASE TO HELP HIGHLIGHT UNMET NEEDS TO ADDRESS. ADVOCATED FOR NEEDS OF PATIENTS AND NEED FOR ACCESS TO THERAPIES. APFED COMMUNICATED UNMET NEEDS IN THERAPEUTICS FOR EOE.