2023-05-25T14:43:24-05:00 2022-12-31 221478099 COHNREZNICK LLP 14 SYLVAN WAY PARSIPPANY NJ 070543801 990 2022-01-01 131665552 MUSCULAR DYSTROPHY ASSOCIATION INC MUSC 3122605900 161 N CLARK ST 3550 CHICAGO IL 60601 MICHAEL J KENNEDY CFO 3122605900 2023-05-24 1 MICHAEL KENNEDY 999009999 0 LORI ROTHE YOKOBOSKY CPA P01273422 9732283500 2023-05-22 2 AAL1 IAL1 2022 2023-04-26 12:10:37Z DR DONALD S WOOD 161 N CLARK ST 3550 CHICAGO IL 60601 68508927 0 X WWW.MDA.ORG X 1950 NY SEE SCHEDULE O 18 18 231 961 899901 10004 60181680 59144929 0 0 3151404 3244992 60906 837916 63393990 63227837 13666745 13032682 0 0 20116776 24019882 0 0 16582085 19636115 21917743 53419636 58970307 9974354 4257530 75564994 64403820 70843244 57595156 4721750 6808664 X MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS THE #1 VOLUNTARY HEALTH ORGANIZATION IN THE UNITED STATES FOR PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. FOR OVER 70 YEARS, MDA HAS LED THE WAY IN ACCELERATING RESEARCH, ADVANCING CARE, AND ADVOCATING FOR THE SUPPORT OF OUR FAMILIES. MDA'S MISSION IS TO EMPOWER THE PEOPLE WE SERVE TO LIVE LONGER, MORE INDEPENDENT LIVES. 0 0 20061514 8150331 PLEASE SEE SCHEDULE O FOR FURTHER DISCUSSION OF PPP LOAN FORGIVENESS AS IT PERTAINS TO TOTAL CONTRIBUTION REVENUE.HEALTH CARE AND COMMUNITY SERVICES:MDA IS COMMITTED TO EMPOWERING PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS AND RELATED NEUROMUSCULAR DISEASES THROUGH RESEARCH, CARE, AND ADVOCACY. AS THE LARGEST SOURCE OF FUNDING FOR NEUROMUSCULAR DISEASE RESEARCH OUTSIDE OF THE FEDERAL GOVERNMENT MDA HAS COMMITTED MORE THAN $1 BILLION TO ACCELERATE THE DISCOVERY OF THERAPIES AND CURES. WE SUPPORT THE LARGEST NETWORK OF MULTIDISCIPLINARY CLINICS AT MORE THAN 150 TOP MEDICAL INSTITUTIONS, SERVE THE COMMUNITY WITH ONE-ON-ONE SPECIALIZED SUPPORT, AND OFFER EDUCATIONAL CONFERENCES, EVENTS, AND MATERIALS FOR FAMILIES AND HEALTHCARE PROVIDERS. EACH OF OUR MDA CARE CENTERS OFFERS INDIVIDUALS AND FAMILIES BEST-IN-CLASS, COMPREHENSIVE CARE FROM AN INTEGRATED MULTIDISCIPLINARY TEAM OF HEALTHCARE SPECIALISTS CONVENIENTLY SITED AT ONE LOCATION. IN A SINGLE DAY, PATIENTS CAN SEE MULTIPLE HEALTHCARE PROVIDERS WHO WORK TOGETHER TO ENSURE COORDINATED INDIVIDUAL CARE FOR EVERY PATIENT TO BEST FIT THEIR SPECIFIC NEEDS. HIGHLY TRAINED MDA CARE SPECIALISTS SERVE AS AN IMPORTANT PART OF THE CARE TEAM, HELPING FAMILIES NAVIGATE THE HEALTH SYSTEM, ANSWERING QUESTIONS, DISTRIBUTING MDA EDUCATIONAL MATERIALS, COORDINATING MDA SERVICES, AND ASSISTING WITH COMMUNITY RESOURCE REFERRALS. EACH YEAR THOUSANDS OF CHILDREN/YOUNG ADULTS LEARN VITAL LIFE SKILLS AND GAIN INDEPENDENCE AT SUMMER CAMP AND THROUGH RECREATIONAL PROGRAMS, AT NO COST TO FAMILIES. EACH CAMP IS STAFFED WITH DEDICATED HEALTH PROFESSIONALS AND TRAINED CAMP VOLUNTEERS WHO MEET THE MEDICAL AND PHYSICAL NEEDS OF EACH CAMPER ALL AT NO COST TO FAMILIES. 6422683 4869141 RESEARCH: MDA IS THE LARGEST NON-GOVERNMENTAL FUNDER OF NEUROMUSCULAR DISEASE RESEARCH IN THE COUNTRY, SUPPORTING STRATEGIC RESEARCH FOR MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. SINCE ITS INCEPTION IN 1950, MDA HAS INVESTED MORE THAN $1 BILLION IN NEUROMUSCULAR DISEASE RESEARCH TO UNCOVER NEW TREATMENTS. A SINGLE BREAKTHROUGH CAN LEAD TO A CURE. OUR FUNDING RESEARCH ACROSS MANY NEUROMUSCULAR DISEASES MEANS FINDINGS FROM ONE DISEASE OFTEN ENABLE PROGRESS IN OTHERS, MAXIMIZING THE SPEED AT WHICH WE CAN MAKE PROGRESS. SUPPORT FOR MDA'S RESEARCH ENABLES MDA TO FUND LEADING RESEARCH TEAMS WORKING TOWARD BREAKTHROUGH THERAPIES, WHICH CAN HAVE A LIFE-CHANGING IMPACT ON PATIENTS. MDA-FUNDED BREAKTHROUGHS INCLUDE DRUGS FOR AMYOTROPHIC LATERAL SCLEROSIS (ALS), DUCHENNE MUSCULAR DYSTROPHY (DMD), PERIODIC PARALYSIS, POMPE DISEASE, AND SPINAL MUSCULAR ATROPHY (SMA). MDA LAUNCHED THE MOVR (NEUROMUSCULAR OBSERVATIONAL RESEARCH) DATA HUB AS A TRANSFORMATIVE PLATFORM, COMBINING MDA'S CARE CENTER NETWORK WITH A STATE-OF-THE-ART INFORMATION-MANAGEMENT SYSTEM. AS THE LARGEST CENTRALIZED DATA HUB FOR MULTIPLE NEUROMUSCULAR DISEASES, MOVR AGGREGATES CLINICAL, GENETIC, AND PATIENT-REPORTED DATA ACROSS BROAD COMMUNITIES OF HEALTHCARE PROVIDERS, RESEARCHERS, AND INDUSTRY PARTNERS THAT WILL LEAD TO RAPID DEVELOPMENTS IN PATIENT CARE, TREATMENTS, AND CURES. 12223822 13210 PROFESSIONAL AND PUBLIC HEALTH EDUCATION:MDA OFFERS A BROAD AND EXPANDING ARRAY OF RESOURCES AND EVENTS EXPERTLY DEVELOPED TO RESPOND TO THE RAPIDLY CHANGING TREATMENT LANDSCAPE. OUR RESOURCES FOR PROVIDING RELEVANT MEDICAL EDUCATION TO PROFESSIONALS ARE UNPARALLELED AND OUR SERVICES AND INITIATIVES REFLECT OUR LEADERSHIP IN THIS AREA. WE PROVIDE BOTH ACCREDITED CONTINUING MEDICAL EDUCATION (CME) AND NON-CME PROGRAMS. AS THE MOST COMPREHENSIVE NEUROMUSCULAR DISEASE MEETING IN THE WORLD, OUR ANNUAL MDA CLINICAL & SCIENTIFIC CONFERENCE PROVIDES A UNIQUE OPPORTUNITY TO LEARN FROM, BE INSPIRED BY, AND SHARE IDEAS WITH EXPERTS FROM ACADEMIA, GOVERNMENT, AND INDUSTRY. AT THE COMMUNITY LEVEL, WE ESTABLISHED MDA ENGAGE AND MDA ACCESS EDUCATIONAL EVENT SERIES THAT BRINGS LOCAL HIGH-IMPACT EDUCATIONAL PROGRAMS TO THE NEUROMUSCULARCOMMUNITY IN-PERSON AND VIRTUALLY. EACH OF THE ENGAGE PROGRAMS INCORPORATES MULTIPLE MODULES OF INTEREST, FROM THERAPY DEVELOPMENT ROUNDTABLES TO DISEASE MANAGEMENT TO GENETIC TESTING, DESIGNED SPECIFICALLY FOR COMMUNITY AUDIENCES. EACH EVENT ALSO INCLUDES A SOCIAL ELEMENT FOR FAMILIES AND PARTICIPANTS WITH THE AIM OF STRENGTHENING THE COMMUNITY AND HELPING ATTENDEES MAKE PERSONAL CONNECTIONS. 38708019 1 1 0 1 0 0 0 1 0 1 1 0 0 0 1 1 1 0 0 0 1 1 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 118 0 1 231 1 1 1 0 0 0 0 1 1 0 0 0 0 0 0 X 18 18 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 AL AK AZ CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MO MT NE NV NJ NM NY NC ND OH OK OR PA PR RI SC SD TN UT VA WA WV WI WY X X JON VAN COTT VP OF FINANCE CONTROLLER 6467132020 161 N CLARK STREET STE 3550 CHICAGO IL 60601 ANJAN ARALIHALLI DIRECTOR 1.00 X 0 0 0 ANKUR GHIA DIRECTOR 1.00 X 0 0 0 BENJAMIN CUMBO III DIRECTOR 1.00 X 0 0 0 CHARLES D SCHOOR ESQ DIRECTOR 1.00 X 0 0 0 CHRIS ROSA VICE CHAIR 1.00 X X 0 0 0 DAN FRIES DIRECTOR 1.00 X 0 0 0 ELIZABETH MCNALLY MD PHD DIRECTOR 1.00 X 0 0 0 EUGENE WILLIAMS DIRECTOR 1.00 X 0 0 0 GOVERNOR BRAD HENRY CHAIRMAN 5.00 X X 0 0 0 HON ROBERT E PIPIA DIRECTOR 1.00 X 0 0 0 JENNIFER GOTTLIEB DIRECTOR 1.00 X 0 0 0 JOHN COSTANTINO DIRECTOR 1.00 X 0 0 0 JOHN E HOWELL DIRECTOR 1.00 X 0 0 0 LILIAN WU PHD DIRECTOR 1.00 X 0 0 0 LOUIS KUNKEL PHD DIRECTOR 1.00 X 0 0 0 MARK SMITH DIRECTOR 1.00 X 0 0 0 MATT PLUMMER DIRECTOR 1.00 X 0 0 0 NANCY KINDELAN DIRECTOR 1.00 X 0 0 0 STEVE FARELLA OUTGOING CHAIRMAN 5.00 X X 0 0 0 VICTOR WRIGHT DIRECTOR (DECD. DEC 2022) 1.00 X 0 0 0 DONALD WOOD PRESIDENT & CEO 50.00 X 522923 0 26637 HENRY LANMAN SEC. & CHIEF LEGAL OFFICER 50.00 X 188632 0 36652 MICHAEL KENNEDY TREASURER & CFO 50.00 X 331534 0 61822 BRIAN BEIRNE VP OF MULTI-CHANNEL MARKET 50.00 X 214346 0 6820 KRISTINE WELKER CHIEF OF STAFF 50.00 X 304472 0 71294 ANGELA LEK VP, RESEARCH 50.00 X 186779 0 10511 SHARON HESTERLEE CHIEF RESEARCH OFFICER 50.00 X 229015 0 60219 MONICA PAPPAS VP, TECHNOLOGY 50.00 X 188558 0 27594 2166259 0 301549 55 0 1 0 GLC PART OF SPM GROUP 15 WEST HARRIS AVENUE SUITE 300 LA GRANGE IL 60525 CONTENT MARKETING 539931 MWW GROUP LLC PO BOX 67186 NEWARK NJ 07101 PUBLIC RELATIONS AGENCY 390619 1ST DEGREE LLC 755 GRAND BOULEVARD SUITE B-105 25 MIRAMAR BEACH FL 32550 MARKETING SERVICES 133675 SENTINEL TECHNOLOGIES INC PO BOX 85080 CHICAGO IL 60680 BUSINESS TECHNOLOGY SERVICES 133466 TONIC SOLUTIONS LLC KEITH GORDON 30 WEST 15TH STREET SUITE 4N NEW YORK NY 10011 MARKETING SERVICES 112835 6 X 376985 24417479 2404491 31945974 104664 59144929 1103942 1103942 541532 541532 39000 0 39000 39000 39000 5340126 400 3199476 0 2140650 400 2141050 2141050 1439097 24417479 2081614 -642517 -642517 QUEST ADVERTISING 541800 899901 899901 899901 63227837 0 899901 3183007 11829711 11829711 1202971 1202971 1168200 735578 25442 407180 17112416 10775145 372678 5964593 366891 231020 7990 127881 4116595 2592089 89652 1434854 1255780 790725 27349 437706 172834 109744 10854 52236 161116 161116 869855 869855 143388 143388 2802464 1568139 73881 1160444 3108814 1973988 195242 939584 3824069 1574163 80154 2169752 2758037 1445789 381278 930970 654219 16289 519108 118822 825960 197831 326490 301639 66575 15946 26316 24313 314063 14901 280486 18676 1143350 535102 608248 482661 174876 88605 219180 EVENT EXPENSES 2803270 963667 1839603 PRODUCTION COSTS 740810 740810 UBI TAX 39510 39510 1006748 310170 261926 434652 58970307 38708019 3680203 16582085 X 3372977 1349191 0 2023786 7912128 6490910 3720119 3592054 3621220 3820381 2183933 2514895 7263393 4429581 3495647 2833812 53532735 45050644 1074301 76213 24911 24911 75564994 64403820 5293050 6841579 5380356 2897572 2265058 3023278 10500000 7969067 47404780 36863660 70843244 57595156 X 980444 3229419 3741306 3579245 4721750 6808664 75564994 64403820 X 4257530 -11408573 9237957 X 0 1 X 1 0 X 103881886 99904218 51829703 60181680 59144929 374942416 103881886 99904218 51829703 60181680 59144929 374942416 374942416 1548677 1552285 1042846 968429 1684474 6796711 373297 286145 410505 789094 899901 2758942 154174 7499 2950 164623 384662692 0.97470 0.93590 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: GAMING EVENTS - 2018 AMOUNT: $ 154,174. 2019 AMOUNT: $ 7,499. 2020 AMOUNT: $ 2,950. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 869855 869855 38044405 38914260 1000000 250000 0 0 1000000 1000000 1000000 1000000 4000000 6000000 411778 628981 486336 869855 2396950 250000 250000 250000 250000 1000000 1500000 X X X 0 701316 -208661 177362 670017 684320 113304 96308 701316 662010 148733 126423 684320 639479 150206 127675 662010 790985 -43248 108258 639479 1.00000 0 0 487667 64315 423352 6775726 4365266 2410460 2833812 ACCRUED PENSION COST 36321364 OPERATING LEASE LIABILITY 542296 36863660 X 60082511 -11410485 8441809 -2968676 63051187 137250 39400 176650 63227837 57995597 -41312 -41312 58036909 137250 796148 933398 58970307 PART III, LINE 1A: THE ASSOCIATION DOES NOT CAPITALIZE DONATED WORKS OF ART OR RECOGNIZE THEM AS REVENUES OR GAINS. DONATIONS NEED NOT BE RECOGNIZED IF THEY ARE ADDED TO COLLECTIONS THAT ARE HELD FOR PUBLIC EXHIBITION, EDUCATION, OR RESEARCH IN FURTHERANCE OF PUBLIC SERVICE RATHER THAN FINANCIAL GAIN; AND ARE PROTECTED, KEPT UNENCUMBERED, CARED FOR, AND PRESERVED. PART III, LINE 4: THE MDA ART COLLECTION IS ONE OF THE MOST VARIED COLLECTIONS IN THE NATION. THE VERSATILITY ATTESTS TO THE IMAGINATION AND TALENT OF THE ARTISTS. THE COLLECTION FEATURES UNUSUAL ARTISTIC MEDIA, FROM DIGITAL DESIGNS TO COLLAGES WITH CORN, TO PAINT APPLIED WITH WHEELCHAIR WHEELS AND HUMAN FEET. THERE ARE ALSO MANY WORKS IN MORE TRADITIONAL OILS, WATERCOLORS, ACRYLICS, PEN AND INK, CRAYONS, PASTELS, BRONZE, CERAMICS AND PHOTOGRAPHY. SUBJECT MATTER RANGES FROM SELF-PORTRAITS TO LANDSCAPES AND FROM STILL LIFES TO OUTER SPACE FANTASIES. IN ADDITION TO SHOWCASING THE WORK OF TALENTED ARTISTS WHO ARE AFFECTED BY NEUROMUSCULAR DISEASES, THE COLLECTION ALLOWS THE ARTISTS TO ARTICULATE THEIR DISTINCTIVE VISION OF LIVING WITH A DISABILITY. PART V, LINE 4: THE ASSOCIATION'S ENDOWMENT CONSISTS OF ONE INDIVIDUAL FUND ESTABLISHED FOR THE ADVANCEMENT OF RESEARCH, PROGRAMS AND SERVICES FOR THOSE WITH MUSCULAR DYSTROPHY. THE GLEN E. & DAVID K. GUTTORMSEN ENDOWED FUND FOR DUCHENNE MUSCULAR DYSTROPHY RESEARCH WAS ESTABLISHED IN AN AGREEMENT, EFFECTIVE MAY 25, 2010, WHEREBY THE ASSOCIATION IS TO MAINTAIN AND ADMINISTER THE FUND IN ACCORDANCE WITH THE DONOR'S DESIRES. PART X, LINE 2: MANAGEMENT HAS CONSIDERED ITS TAX POSITIONS AND BELIEVES THAT ALL OF THE POSITIONS TAKEN BY THE ASSOCIATION IN ITS FEDERAL AND STATE EXEMPT ORGANIZATION TAX RETURNS ARE MORE LIKELY THAN NOT TO BE SUSTAINED UPON EXAMINATION. THE ASSOCIATION'S RETURNS FOR YEARS ENDED DECEMBER 31, 2022, 2021, 2020, 2019 ARE OPEN FOR EXAMINATION BY FEDERAL AND STATE TAXING AUTHORITIES, WHICH GENERALLY IS FOR THREE YEARS AFTER THEY ARE FILED. IF APPLICABLE, THE ASSOCIATION WOULD RECOGNIZE INTEREST AND PENALTIES ASSOCIATED WITH TAX MATTERS AS PART OF GENERAL AND ADMINISTRATIVE EXPENSES AND WOULD INCLUDE ACCRUED INTEREST AND PENALTIES IN ACCRUED EXPENSES. PART XI, LINE 2D - OTHER ADJUSTMENTS: CHANGES IN UNRECOGNIZED BENEFIT PLAN COSTS 9,015,718. FUNDRAISING EXPENSES -573,909. PART XI, LINE 4B - OTHER ADJUSTMENTS: LOSS ON DISPOSAL OF FIXED ASSETS 400. SUBLEASE RENTAL 39,000. PART XII, LINE 2D - OTHER ADJUSTMENTS: LOSS ON DISPOSAL OF FIXED ASSETS -400. SUBLEASE RENTAL -39,000. UNREALIZED GAIN -1,912. PART XII, LINE 4B - OTHER ADJUSTMENTS: REFUND OF PREVIOUSLY REPORTED GRANTS 222,239. FUNDRAISING EXPENSES 573,909. 0 EAST ASIA AND THE PACIFIC - AUSTRALIA, BRUNEI, BURMA, CAMBODIA, 0 0 PROGRAM SERVICES RESEARCH GRANT 247632 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM 0 0 PROGRAM SERVICES RESEARCH GRANT 592857 NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES 0 0 PROGRAM SERVICES RESEARCH GRANT 356767 SOUTH AMERICA - ARGENTINA, BOLIVIA, BRAZIL, CHILE, COLUMBIA, ECUADOR, 0 0 PROGRAM SERVICES RESEARCH GRANT 5714 0 0 0 0 0 0 1202970 0 1202970 EAST ASIA AND THE PACIFIC - AUSTRALIA, BRUNEI, BURMA, CAMBODIA, RESEARCH 247632 CHECK/WIRE 0 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESEARCH 592857 CHECK/WIRE 0 NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES RESEARCH 356767 CHECK/WIRE 0 SOUTH AMERICA - ARGENTINA, BOLIVIA, BRAZIL, CHILE, COLUMBIA, ECUADOR, RESEARCH 5714 CHECK/WIRE 0 0 28 0 0 0 0 0 0 PART I, LINE 2: UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. 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WINSTONSALEM NC 27157 223849199 501(C)(3) 25000 0 RESEARCH WASHINGTON UNIVERSITY IN ST LOUIS 700 ROSEDALE AVENUECAMPUS BOX 1034 STLOUIS MO 63112 430653611 501(C)(3) 159918 0 RESEARCH WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY 1300 YORK AVENUE NEW YORK NY 10065 911770772 501(C)(3) 55289 0 RESEARCH WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION OFFICE OF SPONSORED PROGRAMS 886 CHESTNUT RIDGE ROAD MORGANTOWN WV 26506 911770773 501(C)(3) 25000 0 MEDICAL DIAGNOSIS WRIGHT STATE UNIVERSITY 201J UNIVERSITY HALL 3640 COLONEL GLENN HWY DAYTON OH 45435 310732831 501(C)(3) 7692 0 RESEARCH YALE UNIVERSITY PO BOX 208327 NEW HAVEN CT 06520 060646973 C CORP 127769 0 RESEARCH 186 20 PART I, LINE 2: UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. X X X X X 0 0 0 0 0 0 0 1 0 DONALD WOOD PRESIDENT & CEO 494959 0 27964 0 0 0 0 0 26637 0 549560 0 0 0 MICHAEL KENNEDY TREASURER & CFO 289534 0 42000 0 0 0 27000 0 34822 0 393356 0 0 0 KRISTINE WELKER CHIEF OF STAFF 292472 0 12000 0 0 0 27000 0 44294 0 375766 0 0 0 SHARON HESTERLEE CHIEF RESEARCH OFFICER 229015 0 0 0 0 0 27000 0 33219 0 289234 0 0 0 HENRY LANMAN SEC. & CHIEF LEGAL OFFICER 188632 0 0 0 0 0 12923 0 23729 0 225284 0 0 0 BRIAN BEIRNE VP OF MULTI-CHANNEL MARKET 204346 0 10000 0 0 0 5182 0 1638 0 221166 0 0 0 MONICA PAPPAS VP, TECHNOLOGY 188558 0 0 0 0 0 27000 0 594 0 216152 0 0 0 ANGELA LEK VP, RESEARCH 186779 0 0 0 0 0 9917 0 594 0 197290 0 0 0 PART I, LINE 7 INCLUDED ON SCHEDULE J, PART II, COLUMN B(II) REPRESENTS EMPLOYEE BONUSES BASED ON INDIVIDUAL AND ORGANIZATIONAL PERFORMANCE METRICS. THESE PAYMENTS ARE SUBJECT TO FINAL BOARD APPROVAL. X 2186 104664 FMV 0 0 0 PART I, COLUMN (B): COLUMN B REPRESENTS NUMBER OF CONTRIBUTIONS. FORM 990, PART I, LINE 1 MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS THE #1 VOLUNTARY HEALTH ORGANIZATION IN THE UNITED STATES FOR PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. FOR OVER 70 YEARS, MDA HAS LED THE WAY IN ACCELERATING RESEARCH, ADVANCING CARE, AND ADVOCATING FOR THE SUPPORT OF OUR FAMILIES. MDA'S MISSION IS TO EMPOWER THE PEOPLE WE SERVE TO LIVE LONGER, MORE INDEPENDENT LIVES. FORM 990, PART VI, SECTION B, LINE 11B ALL BOARD MEMBERS WERE PROVIDED A COPY OF THE FEDERAL FORM 990 BEFORE FILING WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST POLICY IS MONITORED BY THE HUMAN RESOURCES DEPARTMENT IN CONJUNCTION WITH LEGAL. BOARD MEMBERS ARE REQUIRED TO SIGN AN CONFLICT OF INTEREST DISCLOSURE ANNUALLY. WHEN A CONFLICT OF INTEREST ARISES, THE PERSON WITH THE CONFLICT IS REQUIRED TO RECUSE HIS/HERSELF FROM THE MATTER AND DISCUSSION INVOLVED. FORM 990, PART VI, SECTION B, LINE 15 MDA HAS A COMPENSATION COMMITTEE OF THE GOVERNING BOARD THAT REVIEWS THE CEO AND EXECUTIVE TEAM COMPENSATION. A COMPENSATION STUDY IS COMPLETED BY AN INDEPENDENT CONSULTANT AND REVIEWED WITH THE COMPENSATION COMMITTEE. ANNUAL REVIEWS ARE COMPLETED AND CONTRACTS ARE AMENDED AS THEY EXPIRE. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS AND THE CONFLICT OF INTEREST POLICIES ARE INTERNAL DOCUMENTS. COPIES OF THE AUDITED FINANCIAL STATEMENTS ARE AVAILABLE ON MDA'S WEBSITE. FORM 990, PART VIII, LINE 1E: BOTH TAX YEAR 2021 AND 2022 TOTAL CONTRIBUTIONS INCLUDE AMOUNTS RELATED TO FORGIVENESS OF PPP LOAN, IN ACCORDANCE WITH THE IRS 990 INSTRUCTIONS, $8,659,377, AND $2,000,000, RESPECTIVELY. NOT INCLUDING THESE AMOUNTS THE TOTAL CONTRIBUTIONS GREW BY $5,622,626 (10.9%) FROM $51,522,303 TO $57,144,929. FORM 990, PART XI, LINE 9: CHANGE IN UNRECOGNIZED BENEFIT PLAN COSTS 9,015,718. REFUND OF PREVIOUSLY REPORTED GRANTS 222,239.