2023-05-16T10:17:01-04:00 2022-12-31 260236956 Linda Patterson CPA PA 5732 Whistlewood Circle Sarasota FL 34232 990 2022-01-01 273025707 Macular Degeneration Association MACU 5969 Cattleridge Blvd STE 100 Sarasota FL 34232 Linda Patterson Treasurer 9412591868 2023-02-28 true Linda Patterson Linda Patterson P00543037 9412371040 2023-05-16 0 00 AAL2 IAL1 2022 2023-04-26 12:10:37Z Lawrence Hoffheimer 2894097 false X www.macularhope.org X 2010 FL The mission of Macular Degeneration Association (MDA)is to find a cure for macular degeneration. We disseminate research findings and perform educational programs to help those affected by this disease. 4 1 7 0 0 2520862 2810422 0 61207 83675 0 2582069 2894097 0 0 527558 575029 49630 79302 513253 1197935 1513831 1775123 2168162 806946 725935 4711688 4842918 123209 133911 4588479 4709007 The mission of Macular Degeneration Association (MDA)is to find a cure for macular degeneration. We disseminate research findings and perform educational programs to help those affected by this disease. false false 868265 The Macular Degeneration Association has created educational in-person programs and virtual educational programs for those that cannot come to a live program. These programs not only provide information for the person that has been affected by macular degeneration or diabetic macular edema but will bring precautionary measures to their family members and helpful information for caregivers. All programs feature experts in the field of retina or optomety, providing information about risk factors, genetic predisposition, proper diagnosis, new treatment options, research information, clinical trials and new drug advances. Participants are given a chance to interact with the doctor and ask questions. 268837 The Macular Degenration Association produces newsletters quarterly. The information provided is for those that have age-related macular degeneration, diabetic eye disease, glaucoma and cataracts. The newsletter provides educational information, new research, new drug therapies, clinical trials and treatments. The newsletters go out to 65,000 doctors, patients, families and caregivers. Brochures were designed and provided to doctors to help their patients navigate macular degeneration and find resources that can help. We have a very robust social media following including 17,258 followers on Facebook, 7,905 on Twitter, 1,359 on Linked In and 710 on Pinterest. 208198 Macular Degeneration Association has created a state of the art website to provide an extensive number of resources and information to help those affected by macular degeneration and additional diseases that can affect macular degeneration. This website includes educational videos that are produced for patients, family members and caregivers. The website is ADA compliant and is accessible to people with vision disabilities. There is also a feature for those that speak Sapnish to convert English to Spanish. We continue to include up to date information on all eye diseases, new treatment options, research information, clinical trials and new drug advances. Our user friendly website provides the user with friendly navigation, accessibility tools and information for patients, professionals, caregivers and families. This website has an average 689,000 hits annually. 1345300 true true false false false false false false false false false false false false false true true false false false false false false true false false false false false true false false false false false false true false false false false false false true false false false false true 6 0 true 7 true false false false false false false false false false false false false false false X 4 1 true false false false false false false true false false false true true true true true true true false false AK AL AR AZ CA CO CT DC DE FL GA HI IA ID IL IN KS KY LA MA MD ME MI MN MO MS MT NC ND NE NH NJ NM NV NY OH OK OR PA RI SC SD TN TX UT VA VT WA WI WV WY X X X Linda Patterson 9412591868 5969 Cattleridge Blvd Sarasota FL 34232 Lawrence Hoffheimer Chairman of the Board 25.00 20.00 X X 142230 102230 5460 Donna Auger Director 40.00 1.00 X 144000 0 0 Dustin Tenney Employee 25.00 15.00 X 77424 36898 19399 Linda Patterson Treasurer 20.00 20.00 X X 65000 65000 0 Amy Carroll Secretary 2.00 2.00 X X 0 0 0 428654 204128 24859 2 false true false DirectMailcom 5540 Ketch Road Prince Frederick MD 20678 Direct Mail Servic 868543 1 2810422 2810422 89930 89930 -6255 -6255 -6255 -6255 2894097 83675 0 0 X 207390 103695 103695 326558 290544 26631 9383 41081 30332 10027 722 7700 3850 3850 79302 79302 38863 38863 194197 186937 1320 5940 47680 47680 46290 37032 8332 926 86850 69480 15633 1737 34891 34891 7962 6370 1433 159 Paper & Postage 437775 196999 43777 196999 Direct Mailings 482712 217220 48272 217220 Program Services 85694 85694 Telephone & Internet 11811 9449 2126 236 31406 25127 5650 629 2168162 1345300 309609 513253 X 1012988 405195 101299 506494 719480 988079 13167 11190 6255 3972786 3843649 4711688 4842918 123209 133911 123209 133911 X 4588479 4709007 4588479 4709007 4711688 4842918 725935 -605407 0 X false true X false false X 1466966 3341015 2026061 2385688 2810423 12030153 1466966 3341015 2026061 2385688 2810423 12030153 828376 11201777 27184 61553 90224 178961 12209114 0.91750 0.89930 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED X 2288690 -605407 -605407 2894097 2894097 2168162 2168162 2168162 Footnote for uncertain tax position under FIN 48 (Part X) The Organization is exempt from federal income tax under Section 501(C)(3) of the Internal Revenue Code and qualifies for a charitable contribution deduction by individual donors. However, income from certain activities not directly related to the Organizations tax-exempt purpose is subject to taxation as unrelated business income. In addition, the Organization qualifies for the charitable contribution deduction under Section 170(b)(1)(A) and has been classified as an organization other than a private foundation under Section 509(a)(2). Management has evaluated the effect of an accounting standard relating to accounting for uncertainty in income taxes. Management has determined that the Organization had no uncertain income tax positions that could have a significant effect on the consolidated financial statements for the year ended December 31, 2022. The Organizations federal income tax returns for fiscal years ended December 31, 2021, 2020 and 2019 are subject to examination by the Internal Revenue Service generally for three years after the federal income tax returns were filed. X X X X true Directmailcom Direct Mail Management false 2226082 868543 1357539 Data Management Inc Data Management false 61197 23877 37320 Direct Mail Processors Inc Lockbox true 80225 31301 48924 2367504 923721 1443783 All States Fundraiser custody or control of funds (Part I, line 2b (iii)) Direct Mail Processors Inc receives mail and processes the deposits. X false false false false false false false false false Lawrence Hoffheimer Chairman of the Board 92230 92230 50000 10000 5460 142230 107690 Joanna Hoffheimer Family member of CEO 28150 Employee processes state registrations false Officer directors etc family relationship Part VI line 2 Lawrence Hoffheimer and Amy Carroll are related family members. Committee meeting documentation Part VI line 8b No committee meetings were held. Form 990 governing body review Part VI line 11 All members of the board reviewed the tax return prior to submission to the Internal Revenue Service. Conflict of interest policy compliance Part VI line 12c Officers must sign annual disclosure staement disclosing conflicts of interest. CEO executive director top management comp Part VI line 15a Executive Compensation was compared to other entities reported on their Form 990s and approved by the Board. Other officer or key employee compensation Part VI line 15b Compensation is reviewed annually and approved by the Board. Governing documents etc available to public Part VI line 19 Available upon request. List of other fees for services expenses Part IX line 11g Copywriting 5,940 1,320 5,940Speaker Honoraria 6,000Medical Directors 174,997 General explanation attachment Part IV, Schedule C, Line 17 All states recieve copies of Form 990. Parkinson Research Foundation Inc 5969 Cattleridge Blvd Suite 100 Sarasota FL 34232 200205035 Parkinson Disease - Research Education FL 501c3 10 N/A false