2023-05-09T08:14:03-05:00 2022-06-30 111986323 MARCUM LLP 1899 L STREET NW SUITE 850 WASHINGTON DC 20036 990 2021-07-01 824218205 ASH REGISTRY INC ASHR 2027760544 2021 L STREET NW 900 WASHINGTON DC 20036 MATTHEW GERTZOG EXECUTIVE DIRECTOR 2027760544 2023-05-08 1 MATTHEW GERTZOG XXX-XX-XXXX FRANK H SMITH P00639053 2022274000 2023-05-08 0 AAL1 IAL1 2021 2023-04-26 12:10:37Z ASH RESEARCH COLLABORATIVE MATTHEW GERTZOG 2021 L STREET NW 900 WASHINGTON DC 20036 1021874 0 X WWW.ASHRESEARCHCOLLABORATIVE.ORG X 2017 DC SEE PART III, LINE 1. 13 9 0 120 0 0 631333 1446904 500000 0 0 0 -19759 -425030 1111574 1021874 0 0 0 0 2054921 2108448 0 0 0 5333290 7981116 7388211 10089564 -6276637 -9067690 2547175 1364727 21488373 29373615 -18941198 -28008888 X COLLABORATIVE PARTNERSHIPS TO ACCELERATE PROGRESS IN HEMATOLOGY, WITH THE ULTIMATE GOAL OF IMPROVING THE LIVES OF PEOPLE AFFECTED BY BLOOD DISEASES. THE FOUNDATION OF THE ASH RC IS ITS DATA REPOSITORY, THE DATA HUB. THIS TECHNOLOGY PLATFORM FACILITATES THE EXCHANGE OF INFORMATION BY AGGREGATING, AND MAKING AVAILABLE FOR INQUIRY, RESEARCH-GRADE DATA ON HEMATOLOGIC DISEASES. THE SECOND COMPONENT OF THE ASH RC IS THE SICKLE CELL DISEASE (SCD) CLINICAL TRIALS NETWORK. THE GOAL OF THE NETWORK IS TO CREATE A NETWORK OF COLLABORATING CLINICAL RESEARCH SITES TO ACCELERATE AND OPTIMIZE CLINICAL TRIALS RESEARCH IN SCD AND IMPROVE OUTCOMES FOR INDIVIDUALS LIVING WITH SICKLE CELL DISEASE. 0 0 8597331 THE ASH RC DATA HUB WAS CREATED TO FACILITATE THE SHARING OF DATA ON BENIGN AND MALIGNANT HEMATOLOGIC CONDITIONS TO SUPPORT OF SCIENTIFIC INQUIRY AND DISCOVERY. AS A MAJOR INITIATIVE WITHIN ASH RC, THE DATA HUB AIMS TO CREATE THE LARGEST SHARED INFORMATION RESOURCE WITHIN THE GLOBAL HEMATOLOGY COMMUNITY. THE DATA HUB IS CURRENTLY COLLECTING DATA ON THE NOVEL CORONAVIRUS (COVID-19) AND ITS IMPACT ON INDIVIDUALS LIVING WITH HEMATOLOGIC CONDITIONS (COVID-19 REGISTRY), MULTIPLE MYELOMA AND SICKLE CELL DISEASE. THE LONG-TERM GOAL OF THE ASH RC IS TO ADDRESS THE ENTIRE SPECTRUM OF MALIGNANT AND NONMALIGNANT HEMATOLOGIC DISEASES, WHICH MEANS THE DATA HUB WILL EXPAND ITS SCOPE ONCE THESE INITIAL EFFORTS HAVE REACHED MATURITY. CURRENTLY, THE DATA HUB HOUSES DATA ON MORE THAN 16,000 PATIENTS WITH SCD AND 2,000 PATIENTS WITH MULTIPLE MYELOMA. 8597331 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 1 0 1 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 21 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 X 13 9 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 0 0 0 X TIFFANY AKE 2027760544 2021 L STREET NW 900 WASHINGTON DC 20036 MATTHEW GERTZOG EXECUTIVE DIRECTOR 18.00 17.00 X 266900 266899 59124 KATHLEEN HEWITT DIRECTOR, DATA HUB 35.00 X 313979 0 29000 MICHELLE WALSER DEPUTY DIRECTOR, OPERATIONS ASH RC 35.00 X 204956 0 19677 ROBERT PLOVNICK CHIEF MEDICAL QUALITY OFFICER 18.00 17.00 X 205998 205996 56580 CHARLES CHESSON FORMER CHIEF PROF. D & DIVERSITY OFFICER 35.00 X 201734 0 7782 SUSAN ROGERS SR. MANAGER, LEARNING COMMUNITY PROGRAMS 35.00 X 162715 0 9158 NICOLE MORTIER DIRECTOR SCD CLINICAL TRIALS NETWORK 35.00 X 156072 0 6562 WENDY STOCK MD COUNCILLOR 2.00 2.00 X 0 17500 0 MARTIN S TALLMAN MD PRESIDENT - UNTIL 12/2021 2.00 2.00 X X 0 17000 0 JANE N WINTER MD PRESIDENT - AS OF 1/2022 2.00 2.00 X X 0 11000 0 MARK A CROWTHER MD TREASURER 2.00 2.00 X X 0 11000 0 ROBERT A BRODSKY MD PRESIDENT-ELECT - AS OF 1/2022 2.00 2.00 X X 0 6750 0 JOSEPH MIKHAEL MD FRCPC MED COUNCILLOR - UNTIL 12/2021 2.00 2.00 X 0 6000 0 CYNTHIA DUNBAR MD SECRETARY 2.00 2.00 X X 0 3000 0 MOHANDAS NARLA DSC VICE PRESIDENT - AS OF 1/2022 2.00 2.00 X X 0 0 0 BELINDA AVALOS MD COUNCILLOR 2.00 2.00 X 0 0 0 ARNOLD GANSER MD COUNCILLOR 2.00 2.00 X 0 0 0 AGNES LEE MD MSC COUNCILLOR - UNTIL 12/2021 2.00 2.00 X 0 0 0 ALISON LOREN MD COUNCILLOR 2.00 2.00 X 0 0 0 BOB LOWENBERG MD PHD COUNCILLOR 2.00 2.00 X 0 0 0 SARAH H O'BRIEN MD MSC COUNCILLOR 2.00 2.00 X 0 0 0 BETTY PACE MD COUNCILLOR 2.00 2.00 X 0 0 0 JAMILE SHAMMO MD COUNCILLOR 2.00 2.00 X 0 0 0 1512354 545145 187883 7 1 1 0 PROMETHEUS RESEARCH LLC 4820 EMPEROR BOULEVARD DURHAM NC 27703 SOFTWARE DEVELOPMENT AND DATA MANAGEMENT 2618649 BREAKTHROUGH STRATEGY 3005 WESTCHESTER AVENUE ELLICOTT CITY MD 21043 DATA INFO./ANALYTICS & GRANT MGMT 338428 GEEKHIVE 28 CHURCH STREET WARWICK NY 10990 IT CONSULTING 272196 MARY ANN FALLON 6 LITCHFORD ROAD CHAPEL HILL NC 27514 CLINICAL TRIALS OPERATIOINS EXPERT 156525 POWERS PYLES SUTTER & VERVILLE PC 1501 M STREET NW WASHINGTON DC 20005 DATA HUB GENERAL MATTERS 117188 8 1346901 100003 1446904 INCOME ADJUSTMENT 900099 -425030 -425030 -425030 1021874 0 0 -425030 X 323499 291149 32350 1528937 1355253 173684 108904 97659 11245 29679 26583 3096 117429 100990 16439 133621 133621 1940 1940 6169623 6082778 86845 11230 3075 8155 6283 5818 465 53348 53348 48939 4920 44019 74157 1421 72736 51199 51199 238576 238576 COST AGREEMENT 980000 980000 HONORARIA 106075 106075 STIPENDS 58176 58176 SUBSCR/PUBLICATIONS 37550 37170 380 10399 719 9680 10089564 8597331 1492233 0 1334526 305000 985573 868037 1518 5411 261955 75676 225558 186279 2547175 1364727 720170 238178 20768203 29135437 21488373 29373615 X -18941198 -28008888 -18941198 -28008888 2547175 1364727 -9067690 0 X 0 1 X 1 0 X X 1 AMERICAN SOCIETY OF HEMATOLOGY INC 237080568 10 1 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 261955 75676 186279 186279 DUE TO ASH 29135437 29135437 X 1021874 0 1021874 0 1021874 10089564 0 10089564 0 10089564 PART X, LINE 2: THE SOCIETY EVALUATED ITS UNCERTAINTY IN INCOME TAXES FOR THE YEAR ENDED JUNE 30, 2022, AND DETERMINED THAT THERE WERE NO MATTERS THAT WOULD REQUIRE RECOGNITION IN THE CONSOLIDATED FINANCIAL STATEMENTS OR THAT MAY HAVE ANY EFFECT ON ITS TAX-EXEMPT STATUS; AND THERE ARE CURRENTLY NO EXAMINATIONS PENDING OR IN PROGRESS. 1 0 0 0 0 0 0 0 0 MATTHEW GERTZOG EXECUTIVE DIRECTOR 237134 237133 13024 13024 16742 16742 14500 14500 15062 15062 296462 296461 0 0 KATHLEEN HEWITT DIRECTOR, DATA HUB 309926 0 1130 0 2923 0 29000 0 0 0 342979 0 0 0 MICHELLE WALSER DEPUTY DIRECTOR, OPERATIONS ASH RC 192709 0 8620 0 3627 0 19677 0 0 0 224633 0 0 0 ROBERT PLOVNICK CHIEF MEDICAL QUALITY OFFICER 197615 197615 547 546 7836 7835 14500 14500 13790 13790 234288 234286 0 0 CHARLES CHESSON FORMER CHIEF PROF. D & DIVERSITY OFFICER 87091 0 0 0 114643 0 7376 0 406 0 209516 0 0 0 SUSAN ROGERS SR. MANAGER, LEARNING COMMUNITY PROG 157000 0 1656 0 4059 0 9158 0 0 0 171873 0 0 0 NICOLE MORTIER DIRECTOR SCD CLINICAL TRIALS NETWORK 152625 0 1120 0 2327 0 6562 0 0 0 162634 0 0 0 PART I, LINE 3 ASH RC RELIED ON ASH, A RELATED ORGANIZATION, TO DETERMINE COMPENSATION. ASH USED THE FOLLOWING METHODS TO DETERMINE COMPENSATION: - INDEPENDENT COMPENSATION CONSULTANT - COMPENSATION SURVEY OR STUDY - APPROVAL BY THE BOARD OR COMPENSATION COMMITTEE - FORM 990 OF OTHER ORGANIZATIONS - COMPENSATION COMMITTEE PART I, LINE 4A DURING THE YEAR ENDED DECEMBER 31, 2021, CHARLES CHESSON, CHIEF PROF. DEV & DIVERSITY OFFICER UNTIL MARCH 26, 2022, RECEIVED A SEVERANCE PAYMENT IN THE AMOUNT OF $85,700. PARTS I AND II: ASH RC DOES NOT DIRECTLY HIRE OR COMPENSATE EMPLOYEES. AMERICAN SOCIETY OF HEMATOLOGY, INC., A RELATED ORGANIZATION EXEMPT UNDER IRS SECTION 501(C)(3), IS RESPONSIBLE FOR FILING FORMS W-2S FOR ALL EMPLOYEES. THE COMPENSATION AND RELATED NON-TAXABLE BENEFITS ARE REPORTED ON PART VII, SECTION A AS WELL AS PART IX OF EACH ORGANIZATION AS INCURRED. FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 WAS PREPARED BY THE OUTSIDE ACCOUNTANTS AND REVIEWED FIRST BY THE CHIEF FINANCIAL OFFICER, AND THEN BY THE EXECUTIVE DIRECTOR. IT WAS THEN SENT TO THE ENTIRE BOARD PRIOR TO FILING WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C ASH RC'S CONFLICT OF INTEREST POLICY QUESTIONNAIRE IS FILLED OUT ELECTRONICALLY BY ALL BOARD MEMBERS AND OFFICERS. BEFORE EACH BOARD OR COMMITTEE MEETING A MEMBER IS PUT IN CHARGE OF REVIEWING ALL CONFLICT OF INTEREST STATEMENTS FOR THE MEMBERS ATTENDING. FURTHERMORE, MEMBERS ARE ASKED TO DISCLOSE ANY CHANGES BEFORE EVERY MEETING. WHEN AN ASH RC MEMBER HAS A CONFLICT, S/HE WILL NOT: 1. TAKE ANY ACTION ON BEHALF OF ASH CONCERNING THE SUBJECT IN CONFLICT OR ANY ISSUE RELEVANT TO THE SUBJECT IN CONFLICT; 2. PARTICIPATE IN DISCUSSIONS ON THE SUBJECT WITHOUT FULL DISCLOSURE; 3. PARTICIPATE IN DECISION-MAKING DISCUSSIONS OR CAST A VOTE; 4. IMPLY THAT HE/SHE IS ACTING ON BEHALF OF ASH RC WHEN DISCUSSING THE RELEVANT SUBJECT WITH THIRD PARTIES; OR 5. FAIL TO CLARIFY WITH THIRD PARTIES WITH WHOM HE/SHE DEALS ON THE RELEVANT SUBJECT THAT HE/SHE IS NOT ACTING ON BEHALF OF ASH RC. FORM 990, PART VI, SECTION B, LINE 15 ASH RC RELIES ON A RELATED ORGANIZATION, THE AMERICAN SOCIETY OF HEMATOLOGY (ASH), TO DETERMINE COMPENSATION. AS PART OF THE PROCESS FOR DETERMINING THE COMPENSATION FOR ALL OF ITS EMPLOYEES, THE COMPENSATION FOR KEY EMPLOYEES OF THE ORGANIZATION (INCLUDING THE EXECUTIVE DIRECTOR OF ASH RC) IS REVIEWED BY AN OUTSIDE HR GROUP AND APPROVED BY THE EXECUTIVE DIRECTOR OF ASH. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION'S GOVERNING DOCUMENTS AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. THE CONFLICT OF INTEREST POLICY IS LOCATED ON THE ORGANIZATION'S WEBSITE. FORM 990, PART IX, LINE 11G CONSULTANTS: PROGRAM SERVICE EXPENSES 4,711,742. MANAGEMENT AND GENERAL EXPENSES 66,722. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 4,778,464. SITE COORDINATORS: PROGRAM SERVICE EXPENSES 1,250,899. MANAGEMENT AND GENERAL EXPENSES 17,714. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 1,268,613. OTHER PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 77,863. MANAGEMENT AND GENERAL EXPENSES 1,810. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 79,673. TEMPORARY SUPPORT: PROGRAM SERVICE EXPENSES 42,274. MANAGEMENT AND GENERAL EXPENSES 599. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 42,873. AMERICAN SOCIETY OF HEMATOLOGY INC 2021 L STREET NW SUITE 900 WASHINGTON DC 20036 237080568 SEE PART VII DC 501(C)(3) LINE 10 N/A 0 0 0 1 0 1 0 0 0 0 0 0 0 0 1 1 0 1 0 0 FORM 990, SCHEDULE R, PART II, COLUMN (B), PRIMARY ACTIVITY: PROFESSIONAL SOCIETY SERVING BOTH CLINICIANS SCIENTISTS AROUND THE WORLD WHO ARE WORKING TO CONQUER BLOOD DISEASES.